This document outlines the agenda and expected outcomes of the RDA-NISO Interest Group on Privacy Implications of Research Data Sets. The group aims to develop frameworks for responsible data sharing, define key privacy issues and vectors, identify variances in privacy laws, and recommend technical metadata and outreach materials. It discusses the merging of two task groups, reports from other task forces, and related working groups. The document encourages participation in the interest group's activities and provides contact information.

1. RDA-NISO Interest Group on Privacy
Implications of Research Data Sets

2. 2
 Welcome & Introductions
 Recap of Charge & IG
 Discussion of German Research Data Infrastructure
with a focus on sharing sensitive data
 Reports/Discussions from Task Forces Output
 Collection of Value Statements and Codes of Ethics
 Personas
 Resources for Stakeholders
 Breakout discussions of the IG Task Group
 Report of liaisons with other WGs & IGs
 Discussion of next steps
Agenda

3. 3
The group will work to achieve the following specific outcomes:
 Development of a framework that explains, at a high level, the
precautions that data creators, repositories, aggregators and
scientists should use in creating, using, preserving, and providing
access to research data.
 Definitions of key vectors where privacy issues are evident in the
ecosystem of data sharing and reuse.
 An outline of situations where the privacy principles would be
applied.
 Identification of key areas of variance in privacy laws or regulations
at national and international levels that are significant when sharing
data worldwide.
Expected Outcomes (1)

4. 4
 Definition of a set of technical metadata that can be used to
describe privacy-related information contained within a data set,
parameters for use, and description of where it should be applied.
 Gather and share a bibliography of data-and-privacy-related
materials for public use.
 Advancement of adoption of the principles through an outreach and
communications campaign
Other ideas or suggestions for outputs welcome!
Expected Outcomes (2)

5. 5
 Chair(s): Todd Carpenter, Bonnie Tijerina, Bonnie
Tijerina, Libby Bishop (resigned), Freyja Van den Boom
 Working group members: Currently 73 (Apr 4, 2017)
 Received TAB Approval
 Target participants
 Researchers, Privacy/Legal Experts, Administrators, Repository
Managers, Librarians,
About the Interet Group

6. 6
IG Home on the RDA Website

7. 7
DATE Milestone
December 2015 Kicking off project – Submission of the Case Statement
Jan-Feb 2016 RDA Case Statement Review
March 2016 Project Approval
First meeting of Working Group (Tokyo P7)
Public webinar announcing launch
March —August 2016 Nine bi-weekly meetings with working group
September 2016 Second full-day meeting of Working Group (Denver P8)
Public Teleconference about progress on project
NISO public symposium on data & privacy
Oct 2016—March 17 Ten bi-weekly meetings with working group
January 2017 Public review of draft outputs for review
Open Teleconference to discuss process
April 2017 Second in-person working group meeting (Barcelona P9)
Report to RDA
Public Webinar to announce products
April—July 2017 Six bi-weekly meetings with working group
May—June 2017 Promotional presentations about project and outputs
July 2017 Working group completes drafting work
Drafting of final report to RDA
September 2017 Final WG Meeting and Report presented to RDA (at P10)
Timeline for the Working Group (Original)

8. 8
DATE Milestone
December 2015 Kicking off project – Submission of the Case Statement
Jan-Feb 2016 RDA Case Statement Review
March 2016 Project Approval
First meeting of Working Group (Tokyo P7)
Public webinar announcing launch
March —August 2016 Nine bi-weekly meetings with working group
September 2016 Second full-day meeting of Working Group (Denver P8)
Public Teleconference about progress on project
NISO public symposium on data & privacy
Oct 2016—March 17 Ten bi-weekly meetings with working group
January 2017 Public review of draft outputs for review
Open Teleconference to discuss process
April 2017 Second in-person working group meeting (Barcelona P9)
Report to RDA
Public Webinar to announce products
April—July 2017 Six bi-weekly meetings with working group
May—June 2017 Promotional presentations about project and outputs
July 2017 Working group completes drafting work
Drafting of final report to RDA
September 2017 Final WG Meeting and Report presented to RDA (at P10)
Timeline for the Working Group (Original)

9. 9
Ethics and Social Aspects of Data IG – Seeking chair, no IG meeting at P9
Joint session tomorrow at 3:00 on Data Rescue
WG for Data Security &Trust (WGDST) Case Statement released last month
Health Data IG – Approved. Joint meeting with Big Data IG tomorrow 11:30
Breakout IG meeting at 2 – Data for research & industry
BoF Health Data & Blockchain on Friday at 9:00
RDA/CODATA Legal Interoperability IG – meeting Friday at 9 on Open
Access
Metadata IG – Proposal on metadata for interoperation (now), Metadata
lifecycle session at 11:00 on Friday
BioSharing Registry – meeting on data policies, standards and data sets this
morning at 11:30 – Outputs presentation tomorrow at 16:00
Related RDA Working/Interest Groups

10. 10
 On Tuesday 24 January, IG leadership discussed the
potential overlap between the two task groups and
decided that the two task groups (Frameworks/Policy
and Practice) will merge into a single group: Policy
Frameworks to Practice.
 No risk of duplication efforts/work.
 Better information flow and synergy between all group
members-
 Better time and energy investment:-
 Less administrative burden to lead these groups
Merging of two task groups

11. 11
 Collection of Value Statements and
Codes of Ethics
 Personas
 Resources for Stakeholders
Reports/Discussions from Task Forces Output

12. 12
Sign up for the working group
Go to: http://bit.ly/1WO6YUd
Login to RDA system (or create a profile, if you don’t have one)
On the Right-hand column, select “Join this working group”
Regular meetings are taking place, but limited number of people in the group
are participating.
Comment on the case statement, start a conversation topic. Lets get ideas rolling
How to engage

13. 13
Thank you to this effort’s sponsors

14. 14
 Join the group
 Participate in the calls
 Input on the Google Docs
 For more information:
 Todd Carpenter – tcarpenter@niso.org
 Nettie Lagace – nlagace@niso.org
 Bonnie Tijerina - bonnie@datasociety.net
 Freyja Van den Boom - freyja.vandenboom@okfn.org
Next Steps and Contact Information