What those with FASD would like from Guest blog: Adults with FASD – Priorities for Research JULY 3, 2019 BY CANFASDBLOG

1. What those with FASD would like from Guest blog: Adults with FASD
– Priorities for Research
JULY 3, 2019 BY CANFASDBLOG
Research led by adults with FASD, such as the health survey
completed by Myles Himmelreich, C.J. Lutke and Emily
Travis. They could make sure that the research information would
get into the hands of people with FASD in a way that they can
understand.
More about genetic testing, and if it was possible to create a test
that could bypass the requirement for confirmation of prenatal
alcohol exposure.
Research that could identify an “FASD profile” which could be
used diagnostically.
Research that identified how many individuals with other
disabilities may actually have FASD.
Research to assess the level of knowledge of FASD in various
professions, specifically doctors, educators and people working in
the Justice system.
Research about effective interventions: what works in the areas of
employment, addictions, education, mental and physical health.
More longitudinal studies, because, as a lifelong disability, FASD
looks different depending on the age of the individual.
Research on FASD and aging with particular attention to FASD.
Research on the effectiveness of job coaching and peer mentoring
programs.

2. Research based on the individual, rather than on groups. For
example, single case studies that followed an individual over time
to see what works.
Research using the point of view of the individual and their
experience through life.
Research to help explain the wide range of individual differences
in people with FASD.
Research into the variability within an individual and needed help
understanding why they could do something one day and not be
able to do it the next.
Research to support their experiential wisdom to help them show
educators and employers how to accommodate their needs.
Research into why sensory overload occurs more often in
individuals with FASD, and once we know why, then what
interventions would be effective for an individual experiencing
sensory overload.
Research into effective communication strategies for people with
FASD.
Research into the use of medications for people with FASD.
Research into Effective addictions treatment strategies for
individuals with FASD.
Research evidence to support their knowledge and assist in
changing policy and service provision.