Ingrid Brindle describes her experience of having access to her records and what they mean for her and other patients as well as some of the other things this has lead to including Health Pledge
Ingrid Brindle presented this talk on the 30th June 2016 at the British Computer Society Health Northern Specialist Group meeting http://www.hinorth.bcs.org.uk
1. Hello! My name is Ingrid Brindle
Chair of Haughton Thornley Patient Group Hyde
Chair of Neighbourhood Steering group
Member of Patient Exp Group GM AHSN
Member of NHS Patient Online Programme
Member of Integrated Services Steering Group
Founder of Healthpledge
@ingridbrindle
ingridbrindle44@gmail.com
2. It’s about me!
• Ankylosing Spondylitis
• Heart Arrythmia
• Eye problems, partially sighted
• Joint problems
• Fused neck
• Hip replacements
• Immunosupressed
• I won’t bore you with the rest!
3. Our health – our lifetime’s work!
Our most important project
Most of it done
“Home Alone!”
4. You are already your own doctor!
Tom Ferguson MD 1985
• Our interactions with the healthcare system are just
the tip of the iceberg
• Self Care is and has always been our predominant
form of health care
6. Test results
• All test results available
• Blood tests
• If regularly tested, can monitor trends
• Understandable, value, graphic, Normal / Abnormal
• Labtests Online
• Comment by doctor
• Can avoid repeating tests
• No need to contact practice
7. See result, what
the normal range is
(not always
accurate) and a
graphical display to
show if in the
normal range or
not as well as
whether normal /
abnormal.
You can also see
comments written
by the doctor here
Please note further information about test results is available on the practice website www.htmc.co.uk
In particular, you may find Lab Tests Online useful and of course the advice your doctor or nurse may have given you too. If
you are not sure then please book an appointment with your doctor or nurse who may provide you with more information
8. Summary of significant events
• Form filling, insurance & benefits etc.
• Useful when you are asked the same thing
over and over again!
• Good to be a reminded of progress
• Links to trusted sites where information is
available
9. Letters, referrals etc
• All communications that go in & out of the practice
• Gives the patient confidence, knows what has been done
• No need to contact practice
• Letters from consultants……supposed to send but often
don’t
• Can check understanding and roles in what happens next
• Can use the letters to inform others who don’t communicate
• Examples…..France, Grandson, Yvonne, Margaret
10. Consultations etc.
• Patient retention of information can be as low as 10%
• Can check understanding & what happens next
• Can get family or friends / carers help
• Language difficulties …… Australia………. Nursing homes
• Elderly man in A&E
• Safe medicine
• No need to contact practice
11. Mobile Phone app
• Have information available anywhere home and abroad with
just 2 passwords! How cool is that?
• A large percentage of the population have a suitable mobile
phone
• Information about passwords can be stored under ICE or
using an ICE app on the lockscreen
• ICE app is next to the Patient Access records access app
• If someone steals the phone, passwords can be changed
12. Other digital devices
• ECG recorder on mobile phone
• Useful when arrythmia is spasmodic
• Gives ECG which can be assessed
• Can be emailed to cardiologist
• Implanted heart loop monitor
• Automatically downloads
13. What is needed is for all the patient information to
be ‘joined up’
• GP records
• My information (blood pressure, glucose levels, etc.)
• In-patient information
• Out-patient information
• Information from other agencies
(social care, physiotherapy, chiropody etc)
• Information from carers
• My significant information summary