Providing Services to People Living with Alzheimer's: Additional Resources (September 2017)

1. LIBRARY SERVICES FOR PEOPLE
LIVING WITH ALZHEIMER’S
Dr. Timothy J. Dickey
ALA eLearning
Sept. 26, 2017
GENERAL RESOURCES:
Alzheimer’s Association (www.alz.org)
Alzheimer’s Disease Facts and Figures 2017
(http://www.alz.org/documents_custom/2017-facts-and-figures.pdf)
Know the 10 Signs (http://www.alz.org/alzheimers_disease_10_signs_of_alzheimers.asp)
Caregiver Center (http://www.alz.org/care)
IGARD (ALA interest group for Alzheimer’s and related dementias),
(http://www.ala.org/ascla/interestgroups/igard)
IFLA (www.ifla.org), Guidelines for Library Services to Persons with Dementia (2008)
(https://www.ifla.org/files/assets/hq/publications/professional-report/104.pdf)
National Center on Caregiving: Family Caregiver Alliance (https://www.caregiver.org)
RUSA, Guidelines for Library & Information Services to Older Adults
(http://www.ala.org/rusa/resources/guidelines/libraryservices )
AARP (www.aarp.org)
National Council on Aging (ncoa.org)
Reaching Across IL Library System RAILS
(https://www.railslibraries.info/community/groups/serving-patrons-dementia-group ); and
other local and statewide collaborations
(webinar: https://www.youtube.com/watch?v=DlSjev7GdW4 )
Senior Service Associates (www.seniorservicesassoc.org)
Senior.com (for facilities location)
Senior Living Source (http://www.seniorlivingsource.org)
Senior Living (www.seniorliving.org)
Visiting Nurses’ Associations
Care Facilities themselves
T. Dickey, Alzheimer’s Fiction and Memoirs Bibliography (in BiblioCommons for sharing)
ASSOCIATED INFORMATION NEEDS:
Consumer Health databases:
EBSCO’s Consumer Health Complete (https://www.ebsco.com/products/research-
databases/consumer-health-complete )
ProQuest Health & Medicine (http://www.proquest.com/libraries/public/health-medicine)
The National Library of Medicine’s MedLine (https://medlineplus.gov ) and PubMed;
NetWellness (http://www.netwellness.org )
Healthcare.gov (https://www.healthcare.gov )

2. LIBRARY SERVICES FOR PEOPLE
LIVING WITH ALZHEIMER’S
Dr. Timothy J. Dickey
ALA eLearning
Sept. 26, 2017
Financial, Legal & Ethical information:
National Academy of Elder Law Attorneys (https://www.NAELA.org)
American Bar Association
(https://www.americanbar.org/groups/senior_lawyers/elder_law.html)
National Hospice and Palliative Care Organization (http://www.nhpco.org)
Grief hotline (http://www.widownet.org)
Memoirs and other Print resources:
Block, Stefan Merrill. The Story of Forgetting. (Random House, 2008).
Borrie, Cathy. The Long Hello: Memory, my Mother, and Me. (Arcade Publishing, 2016).
Capsambelis, Niki. The Inheritence: A Family on the Front Lines of the Battle Against
Alzheimer’s Disease. (Simon & Schuster, 2017).
Carper, Jean. 100 Simple Things You Can Do to Prevent Alzheimer’s and Age-related
Memory Loss. (Little, Brown, 2010).
Comer, Meryl. Slow Dancing with a Stranger. (Harper, 2014).
Hanstedt, Constance. Don’t Leave Yet: How my Mother’s Alzheimer’s Opened my Heart.
(She Writes Press, 2015).
Harvey, Samantha. The Wilderness. (Nan Talese, 2009).
Hepworth, Sally. The Things We Keep. (St. Martin’s, 2015).
Kozol, Jonathan. The Theft of Memory: Losing My Father One Day at a Time. (Crown
Publishers, 2015).
Leavitt, Sarah. Tangles: A Story about Alzheimer’s, my Mother, and Me. (Skyhorse,
2012).
Moody, Tyora. When Memories Fade. (Urban Christian, 2013).
O’Brien, Greg. On Pluto: Inside the Mind of Alzheimer’s. (Codfish Press, 2016).
Rill, Eric. An Absent Mind. (Lake Union, 2015).
Sacks, Oliver. Awakenings. (Harper, 1973).
_____. The River of Consciousness. (Knopf, 2017).
Saunders, Gerda. Memory’s Last Breath: Field Notes on my Dementia. (Hachette, 2017).
Schnurbush, Barbara. Striped Shirts and Flowered Pants. (Magination Press, 2007).
Shenk, David. The Forgetting: Alzheimer’s Portrait of an Epidemic. (Doubleday, 2001).
Smith, B. Before I Forget. (Harmony, 2016).
Summit, Pat Head. Sum It Up: 1,098 Victories, a Couple of Irrelevant Losses, and A Life
in Perspective. (Crown, 2013).
White, Dave. The Evil That Men Do. (Three Rivers Press, 2013)

3. LIBRARY SERVICES FOR PEOPLE
LIVING WITH ALZHEIMER’S
Dr. Timothy J. Dickey
ALA eLearning
Sept. 26, 2017
SELECTED PROGRAMS:
Dementia-Friendly America (http://www.dfamerica.org)
Memorable Pets (stuffed animals: www.memorablepets.com)
Memory Cafés (www.memorycafedirectory.com), and the Library Memory Project
(http://www.librarymemoryproject.org)
Memory Garden (http://www.aurorapubliclibrary.org/parker-garden-latest-philanthropic-
addition-to-santori-library)
MOMA Alzheimer’s Project (www.moma.org/meetme), and Columbus Museum of Art
(https://www.columbusmuseum.org/joy-imaginations)
Music & Memory (http://www.MusicandMemory.org ;
https://www.youtube.com/watch?v=fyZQf0p73QM)
Reminiscence Kits: Bi-Folkal Productions (Madison WI, http://www.bifolkal.org ), and Winslow
in the U.K. (www.winslow-cat.com ).
Tales & Travel (http://talesandtravelmemories.com)