Self-Management for Life My Condition, My Life

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Explore how self management empowers people of all ages to live well with a long term condition. Improving how our systems, services and how communities connect can make a real difference to living well at all stages of life.

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  • I’ll start by letting you read the Long Term Conditions Alliance Scotland vision. This vision is something that we at LTCAS ( as you will hear Jen and I refer to it throughout our presentation) keep in mind in all areas of our work. I am going to begin our talk by giving you an overview of the work of LTCAS, an umbrella organisation for the larger set of groups that support or represent people living with long term conditions and their unpaid carers.
  • I’ll start by letting you read the Long Term Conditions Alliance Scotland vision. This vision is something that we at LTCAS ( as you will hear Jen and I refer to it throughout our presentation) keep in mind in all areas of our work. I am going to begin our talk by giving you an overview of the work of LTCAS, an umbrella organisation for the larger set of groups that support or represent people living with long term conditions and their unpaid carers.
  • The role of NHISS is being well explored today, but I want to tell you about ALISS – Access to Local Information to Support Self Management. This is the messy, grubby information. This is the evening class that moves venue, changes the contact telephone number and skips a couple of weeks because the tutor is ill. This is the hard to capture and keep clean end of information. But it’s also very often the most useful – it’s in your neighbourhood.
  • In ALISS we want to get this really rich useful information scraped off the poster boards and into mobile phones, blogs websites – making it freely available to all however they get their information.
  • Have good information about areas of relatively high cost – hospital emergency admissions and specialist community based services Need more intelligence about primary and community care – primary care team skills and knowledge and patterns of consultation
  • Self-Management for Life My Condition, My Life

    1. 1. Self Management for Life: My Condition, My Life NHS Annual Conference August 2011
    2. 2. LTCAS and Self Management Jen McCole Grants Development Officer
    3. 3. Overview <ul><li>LTCAS </li></ul><ul><li>Self Management Fund </li></ul><ul><li>Self Management good practice examples </li></ul><ul><li>LTCAS new developments </li></ul>
    4. 4. What is LTCAS? <ul><li>Umbrella body for third sector organisations supporting those living with an LTC </li></ul><ul><li>40% of population live with one or more LTC </li></ul>
    5. 5. LTCAS: What do we do? <ul><li>“ Our vision is for a Scotland where people with long term conditions enjoy, not endure, full and positive lives, free from discrimination and supported by access to high quality services, information and support.” </li></ul>
    6. 6. LTCAS: What do we do? <ul><li>Represent views of members. </li></ul><ul><li>Strategic partner of Scottish Government . </li></ul><ul><li>Support and strengthen organisations that support people living with LTCs. </li></ul><ul><li>Manage the Self Management Fund for Scotland. </li></ul>
    7. 7. What is Self Management? <ul><li>Specific to the individual </li></ul><ul><li>Person centred approach leading to empowerment - person has control over life and condition management </li></ul><ul><li>Not about “going it alone” </li></ul><ul><li>Recognises that the medical aspects only forms part of life with a condition. </li></ul>
    8. 8. Self Management Fund <ul><li>Support ‘Good Practice’ </li></ul><ul><li>Support existing work </li></ul><ul><li>Develop new ways of working </li></ul>
    9. 9. Self Management Fund <ul><li>81 Projects </li></ul><ul><li>£4 million </li></ul><ul><li>Conditions </li></ul><ul><li>Approaches </li></ul><ul><li>Resources </li></ul>
    10. 10. Parkinson’s UK <ul><li>Support and research. </li></ul><ul><li>Lived Experiences become inspiration for funding. </li></ul><ul><li>Joint Working </li></ul><ul><li>Outcomes </li></ul>
    11. 11. <ul><li>‘‘ In the 25 years since Mel was diagnosed, I could count on one hand the nights I’d had a good’ sleep’’- Jean Ballantyne </li></ul><ul><li>‘ I have learnt so much about the effects of lack of good sleep for people living with Parkinson’s and their families- it was invaluable to be there from the start’ – Consultant </li></ul>
    12. 12. Evaluation <ul><li>Evaluation to demonstrate: </li></ul><ul><li>-Value of cross sector </li></ul><ul><li>partnerships </li></ul><ul><li>-Improved outcomes for </li></ul><ul><li>statutory and voluntary </li></ul><ul><li>sector and those living </li></ul><ul><li>with LTCs. </li></ul><ul><li>Final evaluation </li></ul><ul><li>Special reports </li></ul>
    13. 13. Awareness Raising <ul><li>My Condition, My Terms, My Life, educating the public about Self management </li></ul><ul><li>Current work: professionals </li></ul>
    14. 14. www.myconditionmylife.org
    15. 15. LTCAS: Current Work <ul><li>Development Fund and new SM Fund </li></ul><ul><li>Life Changes Fund </li></ul><ul><li>SMC project </li></ul><ul><li>LTCAS events: Health and social care conference, Self Management Week </li></ul><ul><li>Policy and Campaigns </li></ul>
    16. 16. [email_address] www.ltcas.org.uk
    17. 18. Reshaping Care for Older People Community Capacity Building & Co-production
    18. 19. Community Capacity Building (CCB) <ul><li>Community capacity building is one of the twin pillars of community development, the other pillar being community engagement. Community capacity building involves activities, resources and support that strengthen the skills, abilities and confidence of people and community groups to take effective action and leading roles in the development of communities. </li></ul><ul><li>Adapted from Scottish Community Development Centre </li></ul>
    19. 20. Coproduction (CP) <ul><li>“ Delivering public services in an equal and reciprocal relationship between professionals, people using services, their families and their neighbours. Where activities are co-produced in this way, both services and neighbourhoods become far more effective agents of change.” </li></ul><ul><li>National Endowment for Science, Technology & the Arts (NESTA) </li></ul><ul><li>& New Economics Foundation (NEF) </li></ul>
    20. 21. Reshaping Care for Older People ‘Change Fund’ <ul><li>£70 million 2011/2012– expected circa £300 million over 4 years </li></ul><ul><li>Bridging finance to lever improvement across the entirety of older people’s spend in health and social care across 32 health and social care partnerships </li></ul><ul><li>Partnership planning process – Health, Local Government and now Third and Independent sectors too </li></ul><ul><li>A Programme for Change – 10 year Delivery Plan www.scotland.gov.uk/Topics/Health/care/reshaping/programmeforchange </li></ul><ul><li>Delivery Plan Volume 2 – funding and demographic projections for future years, Autumn 2011 </li></ul><ul><li>2011/12 development of Joint Commissioning Strategies (to 2020) </li></ul>
    21. 22. Existing example: SHINE in Fife <ul><li>“ The project will intentionally design a micro-market for highly tailored care packages for frail and vulnerable older people in their communities provided by independent micro-enterprises.  It will provide “proof of concept” to convince staff that radically different models of community care can work.” </li></ul>
    22. 23. Existing example: Perth & Kinross Healthy Communities Collaborative <ul><li>“ The Healthy Communities Collaborative is such a good idea. A small number of professionals working in partnership with unlimited numbers of volunteers, so that older people can stay fitter and healthier for longer, has to be good ” </li></ul>
    23. 24. Contact Details <ul><li>Andrew Jackson </li></ul><ul><ul><li>andrew.jackson @scotland.gsi.gov.uk </li></ul></ul><ul><ul><li>0131 244 5424 </li></ul></ul><ul><li>Gerry Power </li></ul><ul><ul><li>[email_address] </li></ul></ul><ul><ul><li>0131 244 2374 </li></ul></ul><ul><li>www.jitscotland.org.uk/action-areas/reshaping-care-for-older-people/community-capacity-building </li></ul>
    24. 26. Information to support self management <ul><li>NHS Inform – quality assured health information </li></ul><ul><li>ALISS – local resources, citizens informing and supporting each other. Promote mutuality by encouraging self supporting communities </li></ul>
    25. 34. Next steps <ul><li>ALISS technical model tested and working </li></ul><ul><li>Future management with LTCAS </li></ul><ul><li>Build on synergies with others: </li></ul><ul><ul><li>Information Partnership </li></ul></ul><ul><ul><li>Macmillan </li></ul></ul><ul><ul><li>NESTA, IRISS, Local Libraries, NHS Inform </li></ul></ul><ul><li>Local and national assets already being added to ALISS Engine </li></ul><ul><li>GG&C eHealth project to develop tools </li></ul>
    26. 35. Deep End Reports <ul><li>“ additional services could be made known to patients…., if primary care staff were better informed about what is available locally.” </li></ul><ul><li>Key intervention: An internet directory of community resources: if user friendly, locally relevant and kept up to date. </li></ul><ul><li>http://www.rcgp.org.uk/college_locations/rcgp_scotland/initiatives/health_inequalities.aspx </li></ul>
    27. 36. Links Project Connecting primary care and communities
    28. 37. <ul><li>Learn how pc teams find, understand and use local resources </li></ul><ul><li>Is there a need to improve connections between pc and local communities? </li></ul><ul><li>Are pc teams interested in accessing local support if available? </li></ul><ul><li>Identify processes - training/time/skills required </li></ul><ul><li>Report on key learning points </li></ul><ul><li>Link with ALISS </li></ul>Aims of Links Project
    29. 38. Method <ul><li>Short time scale – 5 months to test idea </li></ul><ul><li>6 primary care practices in Glasgow – all in deprived areas </li></ul><ul><li>4 from Fife – mix of populations </li></ul><ul><li>Data collection supported by LTCC </li></ul><ul><li>Clinical lead for each group </li></ul>
    30. 39. Early findings <ul><li>Enthusiasm and interest </li></ul><ul><li>Surprise at amount of community support, formal and informal </li></ul><ul><li>Face to face connections, personal relationships important </li></ul><ul><li>Role for ALISS obvious – staff need easy, quick way to find local support, eg during consultation </li></ul>
    31. 40. ALISS Further information web: http://www.aliss.org twitter: @ALISSproject

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