Health Datapalooza 2013: Datalab - David Forrest

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Health Data Consortium

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HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE 1
HEALTHDATA.GOV ROADMAP
HEALTH DATA PALOOZA!
JUNE 3, 2013

HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE
Healthdata.gov Roadmap
David
ForrestDavid.Forrest@hhs.gov
@DavidForrest

HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE
3
Healthdata.gov – Phase 1
Early March 2012

HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE
4
Healthdata.gov – Phase 1
David! We
need an
awesome
new
Healthdata
portal.

HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE
5
Healthdata.gov – Phase 1
Oh, we need
it by June 6th
for Palooza!
Cool? Great!

HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE
6
Healthdata.gov – Phase 1

HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE
7
Healthdata.gov – Phase 1

HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE
8
Healthdata.gov – Three Dimensions
3 Audiences
3 Speeds
3 Goals

HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE
Healthdata.gov – Audiences
Internal
Publishers
Academics /
Researchers
Developers /
Entrepreneurs

HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE
Healthdata.gov – Speeds
Web 1.0 Web 2.0 Web 3.0

HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE
Healthdata.gov – Goals - Phase 4 +
Discovery Programmatic
Access
Create
“Linkages”
- Simplify publishing
- Get more data!
- Create taxonomy
- Improve search
- Catalog API
- Blog
- Social distribution
- Focus on API’s
- CKAN Data store
- JSON/RDF/XML
- Federate!
- Health Knowledge
Graph
- Celebrate the SME!
- Build a data
marketplace
- Share our work
- Participate in
relevant
communities (Stack
Overflow)

HEALTH ANDHUMAN SERVICES DOMAIN
IT PROGRAM MANAGEMENT OFFICE
Healthdata.gov Roadmap
David
ForrestDavid.Forrest@hhs.gov
@DavidForrest

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Response one PHB-06 The diabetes prevention program is great for individuals who are struggling with being overweight or obese and who are prediabetic. The program is designed to help prevent type 2 diabetes. They will work with a trained professional for one year to better their lifestyle. They will focus on learning to eat a healthier diet and incorporate exercise into their daily routine. An alternative strategy I suggest for this program, is to shorten it by 6 months. The purpose of the program is not only to prevent diabetes in overweight adults, but to change their lifestyle. I think 6 months is an adequate time to do that. I think one year may be too long and as a result, individuals will give up or not be completely devoted to the program. I also think that group sessions would increase the success rate in this program. I believe that exercising or eating healthy with another person, motivates that person even more. I think that group exercises and support groups could motivate people more. With any weight loss or dietary program, comes fear of losing participants. It will be difficult for people to understand that this program is not just a fad diet, but a new lifestyle. Not monitoring the success of the participants could lead to them not following the program. The participants should be checking in with their trained professional every week to talk about the progress they have made or to improve certain aspects of the program, such as diet. I think a possible problem that I would encounter when implementing my suggestion would be the group sessions and activities. It certainly helps people to be exercising and eating healthy with others, but for some it may be uncomfortable. Seeing that the program includes group classes may steer people away from it. For the people who feel uncomfortable with exercising or talking in front of others, one on one sessions can be added. This will ensure the participant that their information is confidential and will only be displayed to the trained professional helping them. Response two PHB-06 Monitoring the Progress of Program Implementation COLLAPSE Top of Form The public health issue I have chosen for my project is diabetes and the program I have selected is the National Diabetes Educational Program (NDEP). This program is very detailed and covers a lot of grounds. Most importantly, it offers a lot of resources such as personnel, booklets, CDs, workshops, etc. However, an important component to the treatment and prevention of diabetes is diet. Research shows that by increasing the intake of vegetables and fruits, an individual decreases the risk of developing type 2 diabetes and it can help with the treatment of type 2 diabetes (Bryce et al., 2017). In order to bring the program down to the local level, the alternative strategy I suggested is a partnership with local farmer’s markets so that health care providers can “prescribe” fruits and vegetables. This “prescription” would be part.

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Health Datapalooza 2013: Datalab - Jim Craver

Health Data Consortium

Health Datapalooza IV: June 3rd-4th, 2013 HEALTH DATA CONSORTIUM AFFILIATES APP DEMOS Monday June 3, 2013 • 4:30pm - 5:30pm Location: Regency Ballroom Moderator: Sunnie Southern, Founder and Chief Executive Officer, Viable Synergy, LLC; Ohio Health Data Affiliate hGraph is an open source information visualization which provides a complete overview of an individual’s health from an aggregated, high-level “how am I doing” status to detailed, metriclevel results and analysis. This single picture method can have a profound effect on a person’s understanding of his/her total well-being, because it compiles multiple metrics and inputs into a unified graph that can be viewed at a glance.

Health Datapalooza 2013: HDC Affiliates Apps Demos - Involution Studios hGraph

Health Datapalooza 2013: HDC Affiliates Apps Demos - Involution Studios hGraph

Health Datapalooza 2013: HDC Affiliates Apps Demos - Involution Studios hGraph

Health Data Consortium

Health Datapalooza IV: June 3rd-4th, 2013 Linked Data – Structured Data on the Web Moderator: David Wood, Chief Technology Officer, 3 Round Stones Speaker: Bernadette Hyland, Chief Executive Officer, 3 Round Stones Linked Data is a standards-driven model for representing structured data on the Web that gives developers, publishers, and information architects a consistent, predictable way to publish, merge and consume data. Find out what Linked Data is all about from Bernadette Hyland and David Wood from 3 Round Stones, who will present the Linked Data mode in plain, jargon-free language while provide an example of how Linked Data is being used by Sentara Healthcare to combine authoritative open government data with user entered information to providing personalized guidance for patients suffering from asthma, diabetes and heart disease.

Health Datapalooza 2013: Linked Data

Health Datapalooza 2013: Linked Data

Health Datapalooza 2013: Linked Data

Health Data Consortium

Health Datapalooza IV: June 3rd-4th, 2013 Cooperation Without Coordination: Managed Distributed Clinical Trial Data Moderator: Bernadette Hyland, Chief Executive Officer, 3 Round Stones Speaker: David Wood, Chief Technology Officer, 3 Round Stones Sivaram Arabandi, Clinical Informatician, Ontopro Tom Plasterer, Principal Informatics Scientist, AstraZeneca A challenge common among many healthcare organizations is to relate the detailed outcomes of external data, e.g., clinical trials, to their own research. Learn how Linked Data techniques were developed for the Web and allow for “cooperation without coordination”. This presentation will describe how 3 Round Stones and an international pharmaceutical company created a system to allow coordinated views of distributed clinical trial information. The system extended the Callimachus Project, an Open Source Linked Data management system.

Health Datapalooza 2013: Cooperation Without Coordination

Health Datapalooza 2013: Cooperation Without Coordination

Health Datapalooza 2013: Cooperation Without Coordination

Health Data Consortium

Health Datapalooza IV: June 3rd-4th, 2013 Hearing from the Community: Where We Are and Where We Would Like to Be Moderator: Edward J. Sondik, former Director, National Center for Health Statistics Speakers: Georges Benjamin, Executive Director, American Public Health Association (APHA) Samuel ‘Woodie’ Kessel, Professor, University of Maryland School of Public Health Patrick Remington, Associate Dean for Public Health, University of Wisconsin School of Medicine and Public Health Jean Nudelman, Director, Community Benefits Programs, Kaiser Permanente Donald F. Schwarz, Health Commissioner, Deputy Mayor for Health and Opportunity, City of Philadelphia, Pennsylvania Afshin Khosravii, Chief Executive Officer, Trilogy Integrated Resources Richard Martin, Vice President, Heritage Provider Network This session will focus on advances in the use of health data in developing or implementing new tools that impact local community health. It will explore the data and technology needs of local community health organizations and discuss the challenges they face when attempting to meet these needs. It will also present recommendations from non-data oriented people regarding opportunities in the data and technology fields that could enhance their experience in local community health.

Health Datapalooza 2013: Hearing from the Community - Jean Nudelman

Health Datapalooza 2013: Hearing from the Community - Jean Nudelman

Health Datapalooza 2013: Hearing from the Community - Jean Nudelman

Health Data Consortium

Health Datapalooza IV: June 3rd-4th, 2013 Closing Session Gather to share insights with Health Datapalooza organizers and to establish future pathways for progress in efforts to liberate health data. Health Code-a-palooza and Apps Finalists will also be announced. Speakers: Bob Kocher, Planning Committee Co-Chair, Health Datapalooza; Venture Partner, Venrock Steven Krein, Planning Committee Co-Chair, Health Datapalooza; Co-Founder and Chief Executive Officer, StartUp Health Dwayne Spradlin, Chief Executive Officer, Health Data Consortium

Health Datapalooza 2013: Closing session

Health Datapalooza 2013: Closing session

Health Datapalooza 2013: Closing session

Health Data Consortium

Health Datapalooza IV: June 3rd-4th, 2013 Health Data Consortium Affiliates: Igniting Around Health Data in Your Community Moderator: Dwayne Spradlin, Chief Executive Officer, Health Data Consortium Speakers: Sunnie Southern, Founder and Chief Executive Officer, Viable Synergy, LLC and Innov8 for Health Colorado: Phil Kalin, Center for Improving Values in Health Care (CIVHC) Louisiana: Ramesh Kolluru, NSF Center for Visual and Decision Informatics (CVDI) New York: Dave Whitlinger, New York eHealth Collaborative The Health Data Consortium Affiliates have spent the past year rallying their communities around health data. Leaders from each affiliate will discuss how they have liberated data at the state and local levels and how they have seeded data with local entrepreneurs and application developers to build solutions. If you are interested in working on health data in your region, this is the panel for you. (And the Affiliate network is now accepting applications!) Whether hosting a state-level Datapalooza, setting up a new incubator, or just hosting local meet-ups, representatives from affiliates will answer your questions about what has worked well and what can be improved.

Health Datapalooza 2013: Health Data Consortium Affiliates - Sunnie Southern,...

Health Datapalooza 2013: Health Data Consortium Affiliates - Sunnie Southern,...

Health Datapalooza 2013: Health Data Consortium Affiliates - Sunnie Southern,...

Health Data Consortium

Health Datapalooza IV: June 3rd-4th, 2013 Datalab Moderator: Todd Park, Chief Technology Officer, United States Damon Davis, Health Data Initiative Program Director, Department of Health and Human Services Speakers: Susan Queen, Director, Division of Data Policy, Office of the Assistant Secretary for Planning and Evaluation Steve Cohen, Director, Center for Financing, Access and Cost Trends, Agency for Healthcare Research & Quality Rick Moser, National Institutes of Health Victor Lazzaro, Performance & Data Analytics Manager, Office of the National Coordinator for Health IT Niall Brennan, Director of the Office of Information Products and Data Analytics, Center for Medicare and Medicaid Services Miya Cain, Office of the Assistant Secretary, Administration for Children and Families, US Department of Health and Human Services Edward Salsberg, Director, National Center for Health Workforce Analysis, Health Resources and Services Administration Robert Post, Environmental Protection Agency (EPA) Eugene Hayes, the Substance Abuse and Mental Health Services Administration (SAMHSA) Jim Craver, Center for Disease Control and Prevention (CDC) David Forrest, Senior Advisor, Health and Human Services Office of the Chief Technology Officer Tania Allard, Director of Intergovernmental Affairs & Special Projects, New York State Department of Health Steven Edwards, Environmental Protection Agency Steve Emrick, National Library of Medicine Carol A. Gotway Crawford, Director of Behavioral Surveillance, Centers for Disease Control This perennial favorite breakout session is back! This is the best opportunity to meet some of the federal government data experts who champion action in improving public access to information to catalyze innovation. Come learn how to use assets from the Department of Health & Human Services (HHS), the Department of Agriculture (USDA), the Environmental Protection Agency (EPA) and more. Each agency in the federal government is staffed by experts who are well versed in the information resources available from their division on data.gov (administrative data, survey data, research data, medical/scientific content, etc.) The Datalab will also feature opportunities for one-on-one meet-ups with data experts for “deep dives” into agency’s resources. Participants can join live demonstrations and check out new data resources and tools. The goal of the session is to give innovators and entrepreneurs an overview of new, updated, and emerging datasets that can be used to support new applications and services.

Health Datapalooza 2013: Datalab - Tania Allard

Health Datapalooza 2013: Datalab - Tania Allard

Health Datapalooza 2013: Datalab - Tania Allard

Health Data Consortium

Health Datapalooza IV: June 3rd-4th, 2013 Datalab Moderator: Todd Park, Chief Technology Officer, United States Damon Davis, Health Data Initiative Program Director, Department of Health and Human Services Speakers: Susan Queen, Director, Division of Data Policy, Office of the Assistant Secretary for Planning and Evaluation Steve Cohen, Director, Center for Financing, Access and Cost Trends, Agency for Healthcare Research & Quality Rick Moser, National Institutes of Health Victor Lazzaro, Performance & Data Analytics Manager, Office of the National Coordinator for Health IT Niall Brennan, Director of the Office of Information Products and Data Analytics, Center for Medicare and Medicaid Services Miya Cain, Office of the Assistant Secretary, Administration for Children and Families, US Department of Health and Human Services Edward Salsberg, Director, National Center for Health Workforce Analysis, Health Resources and Services Administration Robert Post, Environmental Protection Agency (EPA) Eugene Hayes, the Substance Abuse and Mental Health Services Administration (SAMHSA) Jim Craver, Center for Disease Control and Prevention (CDC) David Forrest, Senior Advisor, Health and Human Services Office of the Chief Technology Officer Tania Allard, Director of Intergovernmental Affairs & Special Projects, New York State Department of Health Steven Edwards, Environmental Protection Agency Steve Emrick, National Library of Medicine Carol A. Gotway Crawford, Director of Behavioral Surveillance, Centers for Disease Control This perennial favorite breakout session is back! This is the best opportunity to meet some of the federal government data experts who champion action in improving public access to information to catalyze innovation. Come learn how to use assets from the Department of Health & Human Services (HHS), the Department of Agriculture (USDA), the Environmental Protection Agency (EPA) and more. Each agency in the federal government is staffed by experts who are well versed in the information resources available from their division on data.gov (administrative data, survey data, research data, medical/scientific content, etc.) The Datalab will also feature opportunities for one-on-one meet-ups with data experts for “deep dives” into agency’s resources. Participants can join live demonstrations and check out new data resources and tools. The goal of the session is to give innovators and entrepreneurs an overview of new, updated, and emerging datasets that can be used to support new applications and services.

Health Datapalooza 2013: Datalab - Steven Cohen

Health Datapalooza 2013: Datalab - Steven Cohen

Health Datapalooza 2013: Datalab - Steven Cohen

Health Data Consortium

Health Datapalooza IV: June 3rd-4th, 2013 Datalab Moderator: Todd Park, Chief Technology Officer, United States Damon Davis, Health Data Initiative Program Director, Department of Health and Human Services Speakers: Susan Queen, Director, Division of Data Policy, Office of the Assistant Secretary for Planning and Evaluation Steve Cohen, Director, Center for Financing, Access and Cost Trends, Agency for Healthcare Research & Quality Rick Moser, National Institutes of Health Victor Lazzaro, Performance & Data Analytics Manager, Office of the National Coordinator for Health IT Niall Brennan, Director of the Office of Information Products and Data Analytics, Center for Medicare and Medicaid Services Miya Cain, Office of the Assistant Secretary, Administration for Children and Families, US Department of Health and Human Services Edward Salsberg, Director, National Center for Health Workforce Analysis, Health Resources and Services Administration Robert Post, Environmental Protection Agency (EPA) Eugene Hayes, the Substance Abuse and Mental Health Services Administration (SAMHSA) Jim Craver, Center for Disease Control and Prevention (CDC) David Forrest, Senior Advisor, Health and Human Services Office of the Chief Technology Officer Tania Allard, Director of Intergovernmental Affairs & Special Projects, New York State Department of Health Steven Edwards, Environmental Protection Agency Steve Emrick, National Library of Medicine Carol A. Gotway Crawford, Director of Behavioral Surveillance, Centers for Disease Control This perennial favorite breakout session is back! This is the best opportunity to meet some of the federal government data experts who champion action in improving public access to information to catalyze innovation. Come learn how to use assets from the Department of Health & Human Services (HHS), the Department of Agriculture (USDA), the Environmental Protection Agency (EPA) and more. Each agency in the federal government is staffed by experts who are well versed in the information resources available from their division on data.gov (administrative data, survey data, research data, medical/scientific content, etc.) The Datalab will also feature opportunities for one-on-one meet-ups with data experts for “deep dives” into agency’s resources. Participants can join live demonstrations and check out new data resources and tools. The goal of the session is to give innovators and entrepreneurs an overview of new, updated, and emerging datasets that can be used to support new applications and services.

Health Datapalooza 2013: Datalab - Robert Post

Health Datapalooza 2013: Datalab - Robert Post

Health Datapalooza 2013: Datalab - Robert Post

Health Data Consortium

Health Datapalooza IV: June 3rd-4th, 2013 Datalab Moderator: Todd Park, Chief Technology Officer, United States Damon Davis, Health Data Initiative Program Director, Department of Health and Human Services Speakers: Susan Queen, Director, Division of Data Policy, Office of the Assistant Secretary for Planning and Evaluation Steve Cohen, Director, Center for Financing, Access and Cost Trends, Agency for Healthcare Research & Quality Rick Moser, National Institutes of Health Victor Lazzaro, Performance & Data Analytics Manager, Office of the National Coordinator for Health IT Niall Brennan, Director of the Office of Information Products and Data Analytics, Center for Medicare and Medicaid Services Miya Cain, Office of the Assistant Secretary, Administration for Children and Families, US Department of Health and Human Services Edward Salsberg, Director, National Center for Health Workforce Analysis, Health Resources and Services Administration Robert Post, Environmental Protection Agency (EPA) Eugene Hayes, the Substance Abuse and Mental Health Services Administration (SAMHSA) Jim Craver, Center for Disease Control and Prevention (CDC) David Forrest, Senior Advisor, Health and Human Services Office of the Chief Technology Officer Tania Allard, Director of Intergovernmental Affairs & Special Projects, New York State Department of Health Steven Edwards, Environmental Protection Agency Steve Emrick, National Library of Medicine Carol A. Gotway Crawford, Director of Behavioral Surveillance, Centers for Disease Control This perennial favorite breakout session is back! This is the best opportunity to meet some of the federal government data experts who champion action in improving public access to information to catalyze innovation. Come learn how to use assets from the Department of Health & Human Services (HHS), the Department of Agriculture (USDA), the Environmental Protection Agency (EPA) and more. Each agency in the federal government is staffed by experts who are well versed in the information resources available from their division on data.gov (administrative data, survey data, research data, medical/scientific content, etc.) The Datalab will also feature opportunities for one-on-one meet-ups with data experts for “deep dives” into agency’s resources. Participants can join live demonstrations and check out new data resources and tools. The goal of the session is to give innovators and entrepreneurs an overview of new, updated, and emerging datasets that can be used to support new applications and services.

Health Datapalooza 2013: Datalab - Miya Cain

Health Datapalooza 2013: Datalab - Miya Cain

Health Datapalooza 2013: Datalab - Miya Cain

Health Data Consortium

Health Datapalooza IV: June 3rd-4th, 2013 Transforming Benefits Design and Delivery Through the Analysis and Exchange of Personal Health Data Moderator: Myrl Weinberg, Chief Executive Officer, National Health Council Speakers: Martha Wofford, Vice President / Head of Consumer Platform, Aetna Sherri Zink, Vice President, Medical Informatics, BlueCross BlueShield of Tennessee New products and services are making it easier for people to gather information about their health, as well as share this information with providers and other health care stakeholders. Learn how health plans are looking at the future of consumer engagement and how new emerging sources and types of health data are being used to prevent and manage disease more effectively. This session is eligible for continuing education credit.

Health Datapalooza 2013: Transforming Benefits Design - Sherri Zink

Health Datapalooza 2013: Transforming Benefits Design - Sherri Zink

Health Datapalooza 2013: Transforming Benefits Design - Sherri Zink

Health Data Consortium

More from Health Data Consortium (15)

Health Datapalooza 2013: Datalab - Victor Lazarro

Health Datapalooza 2013: Datalab - Victor Lazarro

Health Datapalooza 2013: Datalab - Victor Lazarro

Health Datapalooza 2013: Datalab - Rick Moser

Health Datapalooza 2013: Datalab - Rick Moser

Health Datapalooza 2013: Datalab - Rick Moser

Health Datapalooza 2013: Datalab - Mike Byrne

Health Datapalooza 2013: Datalab - Mike Byrne

Health Datapalooza 2013: Datalab - Mike Byrne

Health Datapalooza 2013: Datalab - Jim Craver

Health Datapalooza 2013: Datalab - Jim Craver

Health Datapalooza 2013: Datalab - Jim Craver

Health Datapalooza 2013: HDC Affiliates Apps Demos - Involution Studios hGraph

Health Datapalooza 2013: HDC Affiliates Apps Demos - Involution Studios hGraph

Health Datapalooza 2013: HDC Affiliates Apps Demos - Involution Studios hGraph

Health Datapalooza 2013: Linked Data

Health Datapalooza 2013: Linked Data

Health Datapalooza 2013: Linked Data

Health Datapalooza 2013: Cooperation Without Coordination

Health Datapalooza 2013: Cooperation Without Coordination

Health Datapalooza 2013: Cooperation Without Coordination

Health Datapalooza 2013: Hearing from the Community - Jean Nudelman

Health Datapalooza 2013: Hearing from the Community - Jean Nudelman

Health Datapalooza 2013: Hearing from the Community - Jean Nudelman

Health Datapalooza 2013: Closing session

Health Datapalooza 2013: Closing session

Health Datapalooza 2013: Closing session

Health Datapalooza 2013: Health Data Consortium Affiliates - Sunnie Southern,...

Health Datapalooza 2013: Health Data Consortium Affiliates - Sunnie Southern,...

Health Datapalooza 2013: Health Data Consortium Affiliates - Sunnie Southern,...

Health Datapalooza 2013: Datalab - Tania Allard

Health Datapalooza 2013: Datalab - Tania Allard

Health Datapalooza 2013: Datalab - Tania Allard

Health Datapalooza 2013: Datalab - Steven Cohen

Health Datapalooza 2013: Datalab - Steven Cohen

Health Datapalooza 2013: Datalab - Steven Cohen

Health Datapalooza 2013: Datalab - Robert Post

Health Datapalooza 2013: Datalab - Robert Post

Health Datapalooza 2013: Datalab - Robert Post

Health Datapalooza 2013: Datalab - Miya Cain

Health Datapalooza 2013: Datalab - Miya Cain

Health Datapalooza 2013: Datalab - Miya Cain

Health Datapalooza 2013: Transforming Benefits Design - Sherri Zink

Health Datapalooza 2013: Transforming Benefits Design - Sherri Zink

Health Datapalooza 2013: Transforming Benefits Design - Sherri Zink

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3. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE 3 Healthdata.gov – Phase 1 Early March 2012

4. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE 4 Healthdata.gov – Phase 1 David! We need an awesome new Healthdata portal.

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6. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE 6 Healthdata.gov – Phase 1

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