Health Datapalooza 2013: Datalab - Rick Moser


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Health Datapalooza 2013: Datalab - Rick Moser

  1. 1. Richard P. Moser, PhDResearch PsychologistBehavioral Research ProgramDivision of Cancer Control and Population SciencesNational Cancer Institutemoserr@mail.nih.govNational Cancer Institute:Utilizing Survey Data for CancerPrevention and Control
  2. 2. NCI: Established by congress in 1937, is the leading Federal agency and world’slargest organization solely dedicated to cancer-related research, training, anddissemination of information.DCCPS: aims to reduce the risk, incidence, and deaths from cancer as well asenhance the quality of life for cancer survivors. The Division conducts andsupports an integrated program of the highest qualitybehavioral, epidemiologic, genetic, health services, and surveillance cancerresearch.“Much of the suffering and death from cancer could be prevented by moresystematic efforts to reduce tobacco use, improve diet and physicalactivity, reduce obesity, and expand the use of established screeningtests. The American Cancer Society estimates that in 2011 about 171,600cancer deaths will be caused by tobacco use alone. In addition, approximatelyone-third of the 571,950 cancer deaths expected to occur in 2011 areattributed to poor nutrition, physical inactivity, overweight, and obesity.”11. American Cancer Society. Cancer Prevention & Early Detection Facts & Figures2011. Atlanta: American Cancer Society; 2011.
  3. 3. Multi-level peersupport, consumers/clinicians, information, monitoringDecision support, care coordination, collaborationFollow-up and decision support, carecoordination, patient engagementCompliance, care coordination, collaboration, remindersystemsTransition to 1o, surveillance, health promotion, end-of-life
  4. 4. • Big Data To Knowledge(BD2K) Initiative• Facilitating Broad Use ofBiomedical Big Data• Developing and DisseminatingAnalysis Methods andSoftware for Biomedical BigData• Enhancing Training forBiomedical Big Data• Establishing Centers ofExcellence for Biomedical BigData• Common Data Elements(CDE) Site• National Library of Medicine
  5. 5. Surveillance Epidemiology and EndResults (SEER) to adultsMethodData collected from cancer registries that cover ~26% of the USpopulation; follow-up with individual cases until deathContentCancer incidence, prevalence, and survival data; cancer site, stage,morphology, treatment; limited demographics (age, race/ethnicity,region)Data100% of cancer cases in registries; Six million cases with ~350,000 addedeach year; 1973 to 2010;NoteNeed specialized software to analyze (SEER*Stat or SEER*Prep)downloaded from website;Must sign user agreement to obtain; limited to research purposes;Can be linked to Medicare data
  6. 6. PopulationNon-institutionalized adults (18+)Method2003, 2005: Random digit dial (RDD)2007: Dual frame/dual mode2012-2014 (4 Cycles): Address frame/self-administered mail modeContentHealth communications trends and practicesCancer information access and usageCancer risk perceptionMental models of cancerHealth behaviorsNumeracyData2003 (n= 6,469); 2005 (n= 5,586); 2008 (n= 7,674); 2012 Cycle 1 (n=3,956)Note* Cycle 2 data available summer, 2013; Data Users Conference October, 2013*(pending approval)
  7. 7. 15+ 1992-06; 18+ 2007-Method: National HH address-based frame, 8 panelsConducted every 3-4 years by Census for NCI65% telephone (allows cell phone if preferred); 35% in-homeTranslated into Spanish and 4 Asian languagesContent: Monitor, evaluate and conduct research on cigarette & other tobacco product usagepatterns; Cessation: attempts, intentions, & treatment ; Policy: work, home, “real” price, attitudes &clinician adviceData: ~240,000 U.S. respondents per cycleNotes: National, state, sub-state estimates;Health disparities (e.g. race/ethnicity; low SES, rural)Economic aspects with CPS detailed occupational, & health disability dataPanel design links to other CPS data (e.g., ASEC, ATUS, Food Security, Internet Use)Panel design allows for adding prospective Follow-Up (2002-03, 2010-2011)Webinar September 17, 2013; Contact Julia Strasser for info: strasserj@mail.nih.govLinkage to outcome data (CMS, mortality and SEER data) through NLMS
  8. 8.
  9. 9. National Health Interview Survey(NHIS), families, adults and childrenMethodFace to face interviewContent• Supplements• Cancer (1987, 1992, 2000, 2003, 2005, 2010)• Immunization/vaccination usage (annual)• CAM (2002, 2007; yoga/acupuncture/massage etc.)• Arthritis (2002)• Health care utilization (2011)• Child mental health (2011)Datan~40,000 households (~87,000 individuals)Initiated in 1957
  10. 10. California Health InterviewSurveyPopulationAdult, adolescent and child questionnairesVery diverse racial/ethnic populationMethodTelephone survey (landline/cell phone) of all California countiesContentHealth behaviors (Diet/drug use/sexual/sun safety)Health statusHealth conditions (asthma, diabetes etc.)Cancer history and preventionHealth insuranceData2001, 2003, 2005, 2007, 2009 data available~40-50,000 respondents/surveyNoteMany latino and asian groups represented; oversamples of Koreans and VietnameseFielded in five languages: English, Spanish, Chinese, Vietnamese, and Korean
  11. 11. American Time Use Survey; 15 and olderMethodSelf report telephone interview using 24 hour recallContentEstimates of activities people do (work, childcare, socializing, exercising,eating, educational, sports and religious activities), whom they were with,and the time spent doing them by sex, age, educational attainment, laborforce status, and other characteristics, as well as by weekday and weekendday.Eating and health module.Datan ~ 13,000 per yearData currently available: 2003-2011NoteData files can be linked to Current Population Survey (CPS)
  12. 12. representative household survey, with additional follow-up of theirmedical providers (doctors, hospitals, etc.), and separate survey of employersacross the United States about health insuranceHousehold Survey MethodFive in-person interviewsContentDemographics, health statusEmployment, insurance coverage and access to careHealth care utilization and expendituresDataSubset of NHIS with N= ~40,000/surveyNew cohort initiated annuallyNoteHas overlapping panel component2011 most recently available dataExperiences with Cancer survey available in 2013
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  14. 14. Other Federal SurveysNational Longitudinal Mortality Study Hospital Care Survey Ambulatory Medical Care Survey Current Beneficiary Survey Health Outcomes Survey Survey of Family Growth
  15. 15. Data Resources• Univ. of Michigan Consortium for social research:• NCHS Research Data Center:• NCCOR Catalogue of Surveillance Systems
  16. 16. Data Resource Contacts - NCI DCCPSBehavioral Research ProgramAudie Atienza ( Moser ( Research ProgramEric J (Rocky) Feuer (