- Maureen Trask and Brenda Richard will present on peer support for families of missing persons and ambiguous loss.
- Maureen's son Daniel went missing in 2011 and was found in 2015, leading her to seek peer support. She now co-facilitates a peer support group for families of the missing.
- Ambiguous loss describes the situation of a missing loved one, where their presence or absence cannot be verified, causing limbo and lack of closure. It differs from traditional grief where the loss is clearly defined. Support and understanding of ambiguous loss helps families cope.
1. Missing Persons –
Peer Support and More
Bereavement Ontario Network (BON)
Fireside Chat
Presented by: Maureen Trask and
Brenda Richard
On: Tues. March 21, 2023
At: 1:00 - 2:00 PM
1
2. Outline
Introduce Self Help and Peer
Support at CMHAWW
Discuss the Peer Support Group
for Families of the Missing
Q&A about anything related to
the issue of Missing
2
4. My Journey to Peer Support
4
Bringing Families Together “Music for the Missing”, Dec. 2011
Calling on Grief and Loss Experts
Bereaved Families of Ontario (BFO), Nov. 2012
Bereavement Ontario Network (BON), Jan. 2013
BON Conf, Ambiguous Loss presentation, Oct. 2013 and 2021
BFO Breakfast Networking Group, Oct. 2013
Community Counselling Agencies, Sept. 2013
8 Month Support Group Cardinal Counselling, Nov. 2012-June 11, 2013
Peer Support for Families with Missing Loved Ones (Missing Persons)
Brenda Richard, CSW CPS, Self Help & Peer Support Facilitator at CMHA Waterloo Wellington
6. “Peer support is
a supportive
relationship
between people
who have a lived
experience in
common”
(Mental Health Commission of Canada, 2013)
6
What is Peer Support?
7. What is Peer
Support?
Dec 2015 – Maureen approached Self Help,
CMHAWW
Jan 2016 – Began hosting an onsite peer
support group for families of the missing
2020 –Began hosting a virtual peer support
group for families of the missing
10. Ambiguous Loss Explained
Dr. Pauline Boss, principal theorist of the concept of Ambiguous Loss
and Dr. Gloria Horsley, founder and president of Open to Hope
Foundation, discuss Ambiguous Loss at the annual Association of
Death Education and Counseling (ADEC) Conference, 2011.
http://www.youtube.com/watch?v=C2vYyefAgZ0
10
11. Ambiguous Loss Aspects
Uncertain/unclear Loss
Can be a Traumatic Loss
Externally Caused
Lacks Closure / Understanding
Frozen Grief / Being Stuck in Limbo
A Unique Individual Journey
Families need support (someone to listen)
It’s about finding meaning and hope
Balance and self-care are necessary
11
12. Types of Ambiguous Loss
1. Physically Absent-
Psychologically Present
2. Psychologically Absent-
Physically Present
Adoption
Migration
Miscarriage and stillborn loss
Missing person
Natural disaster and
catastrophic tragedy
Addictions
Dementia and Alzheimer’s
Mental health issues
Separation/Divorce
Traumatic brain injury or coma
There is no verification of death.
There is no certainty that the person will come back.
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13. Ambiguous Loss differs
from Traditional Loss
Traditional Loss Ambiguous Loss
Knowledge and understanding from
society and western culture
Lack of knowledge about what
ambiguous loss is and its effects
Services/supports available - grief
counsellors/professionals
Lack of services and supports – lack
of support specialists
Seen as “normal” - you have/will
experience a loved one who dies
Seen as “not normal” and affecting the
minority
Spiritual/belief teachings exist to
speak to death, mourning & rituals
No spiritual/belief teachings of
ambiguous loss -no defined death.
The loss as a result of a death is
legitimized by society
Ambiguous loss is not legitimized by
society
Boss, P. (1999). Ambiguous loss: Learning to live with unresolved grief.
Cambridge, MA: Harvard University Press.
13
14. Needs of Families
Be heard, believed, and supported
Be safe and connected, with trust
Understand the systems and processes
Know what to expect of self and others
Minimize the emotional roller coaster
Take care of self first, find balance
Cope in healthy ways, reduce stress
Strive to maintain Hope, build Resiliency
Access to timely information and resources
14
15. What to Avoid
Guidance for Facilitators
Supporting the person from a grief
perspective (like a death)
Focusing on advice or assumed cause
Assuming every situation is the same
Asking “How does that make you feel”
Trying to “fix” problems
Thinking newfound Hope remains
Using the word “Closure”
15
16. The Myth of “Closure”
“Guidance for beginning
to cope with this lingering
distress, and even learn
how this time of pandemic
has taught us to
tolerate ambiguity,
build resilience, and
emerge from crises
stronger than we were before.
Released Dec. 2021
16
17. What Helped Me
Learning about Ambiguous Loss
Sharing my story & ask “What would Daniel want?”
Knowing I’m not “Crazy”, it’s the Situation!
Connection through the Peer Support Group
17
18. From both of us to each of you:
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Maureen Trask: trasker@rogers.com
Brenda Richard: brichard@cmhaww.ca
cmhawwselfhelp.ca
Links to the Presentation and Resource Materials will be emailed.
“Thanks”
Editor's Notes
Land Acknowledgement
The land across Mother Earth is known to many Indigenous people as Turtle Island.
The story of Turtle Island varies among Indigenous communities, but by most accounts, it acts as a creation story that places emphasis on the Turtle as a symbol of life and earth.
We live and work on this land that is home to many diverse First Nations, Inuit, and Metis people.
In respect of all Indigenous people and their ancestors, and in the spirit of truth and reconciliation, I humbly offer this land acknowledgement, in a good way.
- I’m here to share my journey of peer support and ambiguous loss, with having had a missing son for 3 ½ years.
- Daniel had set me on this path, which was new to me, but I have learned lots about strength, resiliency, never giving up. This was his gift to me.
- As a parent, no one prepares you for this type of loss..
-Through this presentation, I will share what ambiguous loss is, what you helps to support families and how to relate to their experience of uncertainty, especially in these times of COVID, offering new opportunity for peer support.
So, as a Mom left behind, living in limbo, with frozen grief, not knowing what I was grieving or how to deal with this loss, with more questions than answers.
My journey was 3 ½ years. Many have endured this path on their own, for far to many years.
A poem “When Someone you love goes missing”, by Tom M. Brown, speaks to this journey. In the Reference Materials.
I met Maureen back in December 2015. Maureen had come across Self Help & Peer Support at CMHA WW and was exploring the idea of creating a peer support group around her own lived experience of having a missed loved one. Maureen and her family endured a hard, difficult time when her son went missing in the remote wilderness of northern Ontario. Maureen approached Self Help and shared her story with us.
She told us about the unique loss that is ambiguous loss and the emotional experience of powerlessly wavering between hope and hopelessness. Maureen desired to create a drop-in peer support group where she could create a safe place for other’s experiencing the loss of a missing loved one to come together. We felt Maureen’s unique experience was an appropriate fit with our services as ambiguous loss is an experience that impacts mental health and frozen grief is often hidden or misunderstood.
Over the next few months Maureen and Self Help, mostly Maureen) worked together to create Families with Missing Loves Ones peer support group. Our first group starting in January 2016. The group met in-person once a month for 2 years, then was paused for a few years until we could shift the group to meet virtually. Over the course of the pandemic, the now bi-weekly group, has had great success in an online format, with people from all over Canada joining and helping each other by sharing their lived experience and providing emotional support to one another.
Maureen has not only given so much of her time to the creation and continued success of the Families of Missing Loved Ones group but has also been successful in advocating for changes to how missing persons cases are handled in Ontario. On July 1 2019, thanks to Maureen’s relentless efforts, the Missing Persons Act became law in Ontario.
I am excited for Maureen to share more with you about the Families of Missing Loved Ones group and her ongoing advocacy around missing persons.
Brenda Richard, CSW CPS, Self Help & Peer Support Facilitator at CMHA Waterloo Wellington.
Self Help & Peer Support is a service of CMHAWW that provides peer support to those experiencing a mental health and/or addiction issue.
Self Help & Peer Support offers Drop-In Peer Support groups, Enrolled Recovery Learning groups and one-to-one peer support.
A Drop-In Peer Support groups focus on connection with others, sharing skills and strategies, and providing each other peer support.
No information about participants is required and no attendance is tracked. Participation is anonymous and folks attend group as often as they desire.
Enrolled Recovery Learning groups follow a curriculum and occur for a determined number of sessions, with the same participants
attending each week. These are closed groups. Participating in a Recovery Learning group requires enrollment with Self Help & Peer Support.
During enrollment staff will collect some basic contact and demographic information from participants and attendance is tracked.
One-to-one peer support is offered to those who attend our group services.
All staff and volunteers at Self Help & Peer Support have adequate education and training in peer support.
Self Help & Peer Support is a unique service where peer workers support those experiencing any mental health and/or addiction issue through their own lived experience.
Peers are people who are all directly affected by a particular issue, illness or circumstance.
Peers use their “lived experience” to assist each other.
Peer support is a common practice in many fields. It is recognized as a valuable adjunct to professional services and social interventions.
Peer support is based on *mutuality. The peer relationship is mutual and reciprocal. Peer support breaks down hierarchies.
Peer support is affordable. Peer support is NOT cheap health care for peer people, but good health care for anyone.
Peer support is a practical way to get help, information, encouragement, reinforcement, and decreased sense of isolation.
Peer support helps to improve quality of life, health behaviors, chronic disease control, and decreases hospitalizations and mortality.
* Mutuality: The peer support worker and the peer equally co-create the relationship, and both participate in boundary creation.
Dec 2015 – Therefore, it is because of Maureen’s lived experience with a missing loved one that she approached Self Help and was interested in starting a peer support group for families of the missing. Maureen wanted to support others through her own lived experience.
And since we felt Maureen’s group was a good fit with our services, we began planning for onsite peer support groups to begin in Jan 2016.
There was a pause for a few years until we could shift the group to meet virtually and the pandemic opened this opportunity up in 2020 to offer the group virtually.
The Journey Continued with:
Joint Planning Group: Families, Police, Media, Apr. 2013
The Record, Missing Series, Nov. 2013 - Mar. 2014
CTV Kitchener, Cold Case Series, Mar. 2014
Rogers TV, Families/Police Speak Out, Apr. 2014
Ontario Needs Missing Persons Legislation, Oct. 2014, Eff, Jul, 1, 2019
Victim Services Waterloo, May/Sept. 2014
Victim Services, Volunteer Training, Nov. 2014 – ongoing
Crime Prevention Council, Dec. 2013
Trauma Informed Initiative, July 2014
Waterloo Region Social Development Centre, Crime Prevention Council, Community Wellbeing, Children and Youth Planning Table
CMHA WWD, Dec. 2014 (now CMHA WW), Here 24/7, Service 211Crime Prevention Council (Dec. Peer Support Group, Jan. 2015 (now CMHA WW)
INFORM Presentation, June 2016 (get Missing Category in Service 211 Directory
Canadian Municipal Network for Crime Prevention (CMNCP), Nov. 25, 2020
Dr. Pauline Boss presented the theory of ambiguous loss in 1999 (book).
This comment explains ambiguous loss as an uncertain, unexplained loss, lacking answers, unsolvable.
The term “ambiguous loss” has been researched by Pauline Boss, PhD, of the University of Minnesota.
It came from her research and the clinical studies she has been conducting since 1974.
She thinks this type of loss is the most devastating of all "because it remains
unclear, indeterminate.“
Boss goes on to explain the power of this loss in her book, Ambiguous Loss:
Learning to Live with Unresolved Grief, 1999.
Dr. Pauline Boss presented the theory of ambiguous loss in 1999 (book). She has also applied her theory by facilitating support for families in numerous disasters including 9/11, Thailand tsunami, and Malaysian air crash.
When I learned of her work, I read her books and immediately connected with what I was experiencing, it made sense. It wasn’t me, it was the situation.
I contacted her to learn more and determine if support material or services were available for families such as mine, very little in Canada. This short video clip is an excellent introduction to ambiguous loss.
Pauline has written subsequent books on Loss, Trauma and Resilience (2006) and Dementia (2011), building on research and clinical experience of ambiguous loss.
In Loss, Trauma, and Resilience, Boss provides the therapeutic insight and wisdom that aids mental health professionals in not "going for closure," but rather building strength and acceptance of ambiguity. What readers will find is a concrete therapeutic approach that is at once directive and open to the complex contexts in which people find meaning and discover hope in the face of ambiguous losses.
In Loving Someone Who Has Dementia, Boss builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.
I would like to note that I will be using the term “traditional loss” to refer to loss from a death that is followed by a funeral.
Unclear Loss- the loss is unclear because the relationship is not completely gone. Rather a part of the loved one is still very present yet the other part of them is gone which I will further discuss in a moment.
Senseless Loss- the loss is confusing and incomprehensible due to the many uncertainties and unanswered questions.
Traumatic Loss - typically with ambiguous loss the loss comes from a traumatic experience.
Externally Caused- external circumstances and situations cause the loss rather than individual pathology. This situation has caused sadness in my life. But, I’m not crazy, or depressed – I’m heart broken.
Frozen grief / Stuck in limbo- ambiguous loss freezes the grief process because not all is fully lost, there is no finality, and it does not feel right to fully mourn. It is an ongoing grief. It is essentially as though being stuck in limbo.
A unique individual journey- much like a traditional loss, each person’s grief journey is unique and individual. While two people may experience ambiguous loss for the same reasons, their journey will always be different. Having said that it is very important for those experiencing ambiguous loss to have a community connection with others experiencing the same thing as it helps to normalize the emotions, and the feeling connected helps to find the needed meaning.
Two types of ambiguous loss…
Physically absent- Psychologically present
The loved one is physically absent but remains psychologically present. Missing People (for example disappeared, kidnapped, missing in action, or mass disasters such as 9/11)
Psychologically absent- Physically present
The loved one is physically present however; they are cognitively and emotionally absent.
It is also possible to be experiencing both at the same time as I was with a missing son and a mother with dementia.
As you can see with all of these examples there is no real goodbye to the relationship and roles, no farewell ritual, and yet someone is lost and
something remains creating ambiguity.
Traditional Loss means there is a death, with Verification and Certainty.
Dr. Pauline Boss states that Closure is a myth. There is no closure when it comes to relationships with people. Not even when death. This book provides many strategies for coping: encouraging us to increase our tolerance of ambiguity and acknowledging our resilience as we express a normal grief, and still look to the future with hope and possibility. How do we begin to cope with loss that cannot be resolved? The COVID-19 pandemic has left many of us haunted by feelings of anxiety, despair, and even anger. In this book, pioneering therapist Pauline Boss identifies these vague feelings of distress as caused by ambiguous loss, losses that remain unclear and hard to pin down, and thus have no closure. Collectively the world is grieving as the pandemic continues to change our everyday lives.
“Closure” is a terrible word in human relationships. Once you’ve become attached to somebody, love them, care about them –when they’re lost, you still care about them. It’s a different dimension, but you can’t just turn it off. Pauline Boss