The current research evaluates a new smartphone app designed to help people with Parkinson’s Disease manage their medication & improve their health behaviours through self-tracking. We found that self-tracking leads to - Improved medication adherence – Improved health behaviours (water & exercise) – Improved well being (mood, sleep & energy) Poster presented at World Parkinson Congress, Montréal, Oct 2013

1. Assessing uMotif’s smartphone
based Parkinson’s wellbeing tracker
Dr. Caspar Addyman*,1
Bruce Hellman2
and Dr. Jon Stamford3
*Correspondence email
c.addyman@bbk.ac.uk
3. Cure Parkinson’s Trust
St Botolphs, Aldgate High Street
London
EC3N 1AB
1. Centre for Brain and Cognitive Development
(CBCD), Birkbeck, University of London,
Malet Street, London,
WC1E 7HX, UK
2. uMotif Limited, UK
www.uMotif.com
contact@uMotif.comuMotif
DigitalHealth Midlands and East
Pre & post test questionnaires Cognitive Testing
1
2
3
4
5
START END
AverageSelfRating
Suppleness scores
1
2
3
4
5
START ENDAverageSelfRating
Tremor scores
1
2
3
4
5
START END
AverageSelfRating
Dyskinesia scores
1
2
3
4
5
START END
AverageSelfRating
Bradykinesia scores
Parkinson’s symptoms
Limited App (N=14) Full App (N=15)
† p<.1, * p<.05, ** p<.01,*** p<.005
Health Behaviours
***
1
2
3
4
5
START END
Exercise
1
2
3
4
5
START END
Water
*
1
2
3
4
5
START END
AverageSelfRating
Medication
Well Being Measures
1
2
3
4
5
START END
Energy
**
1
2
3
4
5
START END
Sleep
†
1
2
3
4
5
START END
AverageSelfRating
Mood
†
Daily Self Report Data
Background
The current research evaluates a new smartphone app designed to help
people with Parkinson’s Disease manage their medication & improve
their health behaviours through self-tracking. The app also represents
an interesting new research platform for in-situ testing of cognitive
performance. Detailed daily tracking provides the potential to empower
and motivate patients with long term conditions, encouraging them to
engage positively with the management of their conditions while
providing better data to healthcare professionals.
Trial Summary
• Users reported engagement with tracking and ease of use
• App was used on average 38.5 out of 55 days (70%)
• App provides rich new source of data on the daily effects of
Parkinson’s Disease
• Self-tracking leads to
- Improved medication adherence
– Improved health behaviours (water & exercise)
– Improved well being (mood, sleep & energy)
Next Steps
• Successful second round NHS SBRI funding (June 2013 – June 2014)
• Extensive further development of smartphone app and web portal
• Randomised Control Trial (RCT)
– 300 person, multi-centre trial across 6 NHS
trusts in England and Scotland
– 4 month trial period (Jan-May 2014)
– Using Full app. vs. Treatment As Usual
– Evaluation by Neurologists & PD nurses
Design
Web-based portal for Health Professionals
Pre TrialPre Trial
Daily Self Report Medicine Reminders Tapping Test
Numerical Stroop
Partial
41 people with Parkinson’s initially recruited
Questionnaires
PDQ-39, Parkinson’s Non-Motor Symptoms (NMS),
Quality of Life Score (QOLS), Morisky Medicines Adherence
6-8
Weeks
6-8
Weeks
PARTIAL APP
N = 14
FULLAPP
N = 15
Post
Trial
Post
Trial
FullFull
Questionnaires
N = 10
Questionnaires
N = 6
Results