Women's Access to Healthcare - Alzheimer's Association Presentation
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Alzheimer's Association Presentation to the Georgia Senate Women's Adequate Healthcare Study Committee www.gacommissiononwomen.org
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Women's Access to Healthcare - Alzheimer's Association Presentation
- 1. 1 Women and Alzheimer’s Disease Presented to the Senate Women’s Adequate Health Care Study Committee Tuesday, October 6, 2015 Augusta, GA
- 2. 2 Alzheimer’s—National Landscape • 5.3 million Americans are living with Alzheimer’s disease, including an estimated 200,000 under the age of 65. By 2050, up to 16 million will have the disease. • Nearly two-thirds of those with Alzheimer’s disease—3.2 million—are women. • Women are substantially more likely than men to assume intensive, time-consuming caregiving roles such as those in which the care recipient lives in the caregiver’s household and requires round-the-clock care.
- 3. 3 The cost of caring for those with Alzheimer’s and other dementias is estimated at $226 billion in 2015, increasing to $1.1 trillion (in today’s dollars) by mid-century.
- 4. 4 Americans—Age 60+ Fear Getting Alzheimer’s
- 5. 5 Risk of Alzheimer’s and Breast Cancer Remaining Lifetime Risk of a Woman in Her 60s 28.7% 10.8%
- 6. 6 Alzheimer’s Disease in Georgia • Over 130,000 Georgians are living with Alzheimer’s disease—190,000 by 2050. • We know that only ½ of those living with the disease have received a diagnosis—so the number is higher.
- 7. 7 According to Medicare— In Georgia in 2012 • Approximately 93,200 Georgia Medicare beneficiaries had Alzheimer’s Disease or a Related Dementia (ADRD) • That is 1 in every 10 Medicare beneficiaries had ADRD • 13% were hospitalized • Total cost to Medicare was $467.2 million • 3,650 patients died
- 8. 8 Alzheimer’s Disease in Georgia • 63% of Georgians age 65+ with Alzheimer’s disease are women • In 2014, 506,000 Georgians provided 576,000,000 of unpaid care, and had $251,000,000 higher health care costs— largely attributed to their careving
- 9. 9 Population Living with Depression
- 10. 10 Emotional Stress of Alzheimer’s Caregiving
- 11. 11 Alzheimer’s and Dementia Caregivers By Age of Caregiver 1% of respondents refused to provide age.
- 12. 12 Burden of Caregiving Proportion of Alzheimer’s Caregivers Who Provide Help with Daily Activities
- 13. 13 Financial Considerations • Getting a Diagnosis—not always a physician in local community—especially in rural areas • Power of Attorney—not a “license to steal” • Guardianship Issues—especially if the family member resides in another state • Respite Care—Cost of Care—CCSP and HCBS • Other Services—through CCSP and HCBS
- 15. 15 Cognitive Decline in Georgia According to Data from the 2013 BRFSS • 12.6% of adult women in Georgia age 45 and older reported increased confusion or memory loss in the past year • 51.4% of those women 45+ reported experiencing functional difficulties associated with the confusion/memory loss • 65.6% of those women age 45 and older reported needing assistance
- 16. 16 2012 BRFSS Georgia Caregiver Data • 25% of all adult women in Georgia are caregivers. • Among those caregivers, 12.3% reported that Alzheimer’s disease or a related dementia was the care recipient’s major health problem. • 15.6% of women reported her greatest difficulty in caregiving was financial burden.
- 17. 17 2012 BRFSS Georgia Caregiver Data • 4.4% stated the greatest difficulty was that caregiving interfered with work • 3.8% stated that the greatest difficult was that caregiving created or aggravated her own health problems. • The average amount of caregiving women provided was: 0-8 hr/wk: 43% 9-19 hr/wk: 21.8% 20-39 hr/wk: 18.5% 40+ hr/wk: 16.6%
- 18. 18 Women and Caregiving— Burden vs. Labor of Love
- 19. 19 Women and Caregiving— Impact on Employment
- 20. 20 Deaths from Major Diseases Change in Number of Deaths, 2000-2013
- 22. 22 Alzheimer’s Deaths in Georgia Due to work on the Georgia Alzheimer’s and Related Dementias State Plan, the death certificate in Georgia was changed in 2014, to capture not only the cause of death but contributing causes of death—such as Alzheimer’s.
- 23. 23 Georgia Alzheimer’s and Related Dementias State Plan • Signed by the Governor in 2014, the State Plan (GARD) will enable Georgia to collect state-specific data • That data will enable the State Plan Advisory Council to implement the state plan and to ensure that we meet the needs of Georgians living with the disease and their caregivers, and create and support existing infrastructure to meet those needs.
Editor's Notes
- In 2015, the costs of caring for seniors with Alzheimer’s and other dementias will total an estimated $226 billion. Most of that – nearly 70 percent ($153 billion) – will be spent by Medicare and Medicaid. Alzheimer’s is the 6th leading cause of death in the United States, and the only cause of death in the top 10 than cannot be prevented, cured or slowed. (NOTE: Figures in the chart do not add to total – including Medicare plus Medicaid combined total – due to rounding.) Source: Changing the Trajectory of Alzheimer’s Disease: How a Treatment by 2025 Saves Lives and Dollars
- The 2014 Alzheimer’s Association Women and Alzheimer’s Poll questioned 3,102 American adults about their attitudes, knowledge and experiences related to Alzheimer’s disease and dementia.
- A 65-year old woman has a remaining lifetime risk of developing Alzheimer’s disease – that is, the chances she will develop Alzheimer’s over the rest of her life – of one in six (17.2 percent). Comparatively, a 60-year old woman has a 1 in 11 (9.3 percent) remaining lifetime risk of developing breast cancer. This means that women in their 60s are about two times more likely to develop Alzheimer’s over the rest of their lives than they are to develop breast cancer. Source: Alzheimer’s Disease Facts and Figures (remaining lifetime risk of Alzheimer’s disease) and National Cancer Institute (remaining lifetime risk of breast cancer)
- Alzheimer’s is the most expensive disease in America. Alzheimer’s is over-taxing state and federal budgets. Nearly 1 in 5 Medicare dollars is spent on a person with Alzheimer’s.
- Caregivers report high levels of stress over the course of providing care: 59 percent of family caregivers of people with Alzheimer’s and other dementias rated the emotional stress of caregiving as high or very high. Source: Alzheimer’s Disease Facts and Figures
- Most Alzheimer’s and dementia caregivers are of working age, caring for a parent or a parent-in-law with the disease. And 23 percent of them are part of the “sandwich generation” – caring for an elderly person with Alzheimer’s and at the same time caring for a child under the age of 18. Source: Alzheimer’s Association 2014 Alzheimer’s Association Women and Alzheimer’s Poll
- Family caregivers of people with dementia are more likely than caregivers of other older people to provide more extensive and intense assistance. More than half of dementia caregivers report providing help with getting in and out of bed; and about one-third of family caregivers provide help to their care recipients with getting to and from the toilet, bathing, managing incontinence, and feeding. Fewer caregivers of other older people report providing help with each of these types of care. These findings suggest the heightened degree of dependency experienced by some people with Alzheimer’s disease and other dementias – and the greater burden placed on Alzheimer’s caregivers. Source: Alzheimer’s Disease Facts and Figures
- Caregivers of people wiith Alzheimer’s and other dementias provide care for a longer time, on average, than do caregivers of older adults with other conditions. 43 percent of caregivers of people with Alzheimer’s and other dementias provide care for one to four years compared with 33 percent of other caregivers. 32 percent of dementia caregivers provide care for over five years compared with 28 percent of caregivers of people without dementia. Source: Alzheimer’s Disease Facts and Figures
- The percentage of female caregivers reporting stresses and strains associated with caregiving are substantially higher among full-time caregivers than among those providing care for 20 hours per week or less. Even though full-time caregivers carried a much heavier burden than those providing care for less than 20 hours per week, the burden carried by the latter group was still quite heavy, with the potential to cause significant disruption of life. For example, among those providing care for less than 20 hours each week, 24% reported that it led to marital strain or was emotionally stressful. Nearly as many reported strains on finances and family relationships.
- More than 60 percent of all unpaid caregivers of those with Alzheimer’s and other dementias are women. And while caregiving can be a heavy burden on both men and women, studies have consistently found that the burden of caregiving is felt more strongly by women than men. For example, 20 percent of working women Alzheimer’s and dementia caregivers went from full-time to part-time work because of the burden of caregiving. That compares with only 3 percent of male Alzheimer’s caregivers. Source: Alzheimer’s Association 2014 Alzheimer’s Association Women and Alzheimer’s Poll
- Between 2000 and 2013, deaths from many major diseases have gone down, including for the number one cause of death, heart disease. Meanwhile, the number of deaths from Alzheimer’s disease has increased 71 percent. Much of the progress in other diseases can be attributed to the commitment by the federal government to research. The lack of progress on Alzheimer’s is, in part, a consequence of the lack of funding for Alzheimer’s research. Source: Alzheimer’s Disease Facts and Figures
- In 2013, over 84,000 Americans officially died from Alzheimer’s disease [the green circle in the chart], making it the 6th leading cause of death in the United States. Not only have studies shown that Alzheimer’s deaths are underreported, this official mortality number understates the true impact Alzheimer’s disease has. In 2010, Alzheimer’s disease played some role in the deaths of 500,000 Americans aged 75 and older [gold circle] – that is, the disease in some way contributed to 500,000 deaths. In 2015, an estimated 700,000 Americans [purple circle] will die with Alzheimer’s disease – that is, they will die after having developed the disease. And, one in every 3 seniors in America who dies in a given year has been diagnosed with Alzheimer’s or another dementia. (NOTE: Despite media reports, the 500,000 deaths attributable to Alzheimer’s does NOT mean that Alzheimer’s is actually the third leading cause of death.) Source: Alzheimer’s Disease Facts and Figures