Ethical Considerations and Relation Centered Design for mHealth Applications presented in the Medical Devices Track: Strategies for Successful Implementation of mHealth in Low Resource Settings chaired by Walter Karlen, PhD, Grand Challenges Canada grantee and post-doc at University of British Columbia and Stellenbosch University.
Presented June 6, 2014, at UNESCO Technology for Development 2014, theme: What is Essential?, hosted by EPFL and CODEV in Lausanne, Switzerland. For more information: http://wiki.epfl.ch/opentech4dev
Please Message To Request Copy of this Presentation for Download
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Rock Report: Smart Seating - Opportunities at the intersection of automotive ...Rock Health
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Rapid technological advances, regulatory reform, and the new science of personalized medicine are the three primary factors driving unprecedented levels of innovation in the healthcare industry. These factors are forcing convergence among all members of the healthcare ecosystem in ways that enable all members to create greater value through extensive coordination, collaboration, and competition. Increasingly, providers, payers, products, and patients are leveraging mobile information technology to participate in M2M (mobile-to-mobile) digital healthcare delivery. Some of the key questions facing healthcare organizations, and particularly their CIOs, are: Where in the healthcare innovation ecosystem should we focus? What types of innovations create the most value for our organization? How do we enable greater levels of innovations from a strategic, process, and infrastructure perspectives? What are the barriers to developing and adopting innovation in the healthcare industry, and within healthcare organizations, and how do we overcome these barriers?
Algorithms and bias: What lenders need to knowWhite & Case
The algorithms that power fintech may discriminate in ways that can be difficult to anticipate—and financial institutions can be held accountable even when alleged discrimination is clearly unintentional.
Healthcare, along with many other sectors, is facing increasing uncertainty driven by technology disruption and greater individual / patient empowerment. The barrier to entry into the sector is dropping fast enabling Asia entrepreneurs to significantly improve the Asia healthcare ecosystem
Telehealth Failures & Secrets to Success Conference 2017 by VSee
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More info here: vsee.com/conference
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Powering the Future of Healthcare in Asia Pacific | Full ReportGalen Growth
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2) Data driven healthcare
3) Funding
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In today’s digital world, mobile devices are the powerful bridges between a connected ecosystem of healthcare professionals, caregivers and patients. New developments in big data, wearable sensors and the application of social layers are shifting an industry that used to focus on curing diseases to one that emphasizes health and wellness. But the mass adoption of connected healthcare will only happen when solutions are designed to be intuitive and technologies are forgotten. The future of healthcare will happen when mobile disappears into the background, placing the patient in the center and in control of their lives.
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The Smart Health Centers project places trained health information specialists (Navigators) in traditional and non-traditional health facilities to assist patients in connecting to their own medical records and find reliable information about their own conditions. All Navigators are trained in the Smart Health Center Model using this training guide.
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In August 2013, Health 2.0 and Enspektos, LLC discussed a range of big picture health technology and consumer digital health insights and more during a special Webinar. The two firms also discussed how they will collaborate around the health technology arena.
Telehealth Failures & Secrets to Success Conference 2017 by VSee
Speaker: Trey McMillian
Health & Life Sciences Lead of Dell
More info here: vsee.com/conference
Rock Report: Fitness Technology for Athletes by @Rock_HealthRock Health
Point of view on how apps and sensors are transforming fitness and athletics, from the perspective of experts, including Olympians, coaches and entrepreneurs. Purchase the report here: https://gumroad.com/l/BTnV
Overcoming Cloud-Based Mobility Challenges in HealthcareAnyPresence
April Sage of Online Tech and Rich Mendis of AnyPresence review the common challenges associated with mobile enablement, and introduced the new technologies that are empowering healthcare providers to securely engage their patients and practitioners through the mobile channel.
Designing for Dialogue: Persona-fying Healthcare UsersGuiseppe Getto
This is a poster for the 2014 NC Health Informatics Career and Internship Fair/Business of Healthcare Symposium at East Carolina University. The poster explains how developing personas can help improve healthcare communication and the design of digital healthcare systems.
Current Trends of Wearable Technology Devices in Clinical DiagnosticsAwladHussain3
Wearable devices are real-time, and noninvasive biosensors allow for the continuous monitoring of individuals and thus provide sufficient information for determining health status and even preliminary medical diagnosis. This presentation briefly introduces the latest advances in wearable healthcare systems, which can be used for real-time diagnosis and treatment of patients.
Eliminating Machine Bias - Mary Ann Brennan - ML4ALL 2018MaryAnnBrennan3
Slides from Mary Ann Brennan's ML4ALL Machine Learning conference talk on Machine Bias. Machine Learning algorithms often exhibit systematic, unfair bias against certain groups of people, all while the supposed impartiality of machines dissolves accountability. I touch on definitions, criminal justice, and solutions and finish with a success story from NLP and a slide listing resources. Video here: https://www.youtube.com/watch?v=VksAAI60GEc
Powering the Future of Healthcare in Asia Pacific | Full ReportGalen Growth
How technology will change healthcare delivery
1) The creative destruction of healthcare
2) Data driven healthcare
3) Funding
4) Disruption in Healthcare
5) Opportunity to leapfrog to accelerate change
The future of healthcare: when mobile disappearsMatteo Penzo
In today’s digital world, mobile devices are the powerful bridges between a connected ecosystem of healthcare professionals, caregivers and patients. New developments in big data, wearable sensors and the application of social layers are shifting an industry that used to focus on curing diseases to one that emphasizes health and wellness. But the mass adoption of connected healthcare will only happen when solutions are designed to be intuitive and technologies are forgotten. The future of healthcare will happen when mobile disappears into the background, placing the patient in the center and in control of their lives.
How Wearables will transform the EHR (Electronic Disease Record), slide deck for presentation by David Doherty (@mHealth) at Wearables Europe, London, 28 May 2015.
The Smart Health Centers project places trained health information specialists (Navigators) in traditional and non-traditional health facilities to assist patients in connecting to their own medical records and find reliable information about their own conditions. All Navigators are trained in the Smart Health Center Model using this training guide.
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Ethical Considerations and Relation Centered Design for mHealth Applications
1. ETHICAL CONSIDERATIONS &
RELATION-CENTERED DESIGN FOR
MOBILE HEALTH APPLICATIONS
UNESCOTech4Dev
Lausanne, 2014
Kate Michi Ettinger, JD
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
2. WHY ISTHE
ADOPTION OF
HEALTH CARE IT
SO CHALLENGING?
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Challenges
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
CC Wikimedia
3. Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
CHALLENGE # 1
Failure culture of tech
meets reality of health
care delivery.
PRODUCT
DESIGN
CLINICAL
BIOETHICS
Challenges
Flat Tire by Luis Prado & Pulse by TNS (The Noun Project)
4. Flat Tire by Luis Prado; Pulse by TNS; Patient by Wilson Joseph
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
CHALLENGE # 1
“When we fail,
we fail real people.”
- Christie George
Impact Investor
New MediaVentures
PRODUCT
DESIGN
CLINICAL
BIOETHICS
Challenges
5. TECH
CHALLENGE #2
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
For technologists:
success = working product
SOCIAL
ENTREPRENEUR
Challenges
Mountain Climber by Juan Pablo Bravo from The Noun Project
6. FUNDER
CONSULTANT
CHALLENGE #2
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
For funders:
success = product & users
SOCIAL
ENTREPRENEUR
Challenges
Mountain Climber by Juan Pablo Bravo & Team by Jon Prepeluh
7. CHALLENGE #2
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
For clinicians:
success = data that shows
improved clinical outcomes
SOCIAL
ENTREPRENEUR
CLINICAL
MEDICINE
Challenges
Mountain Climber by Juan Pablo Bravo & Patient by Wilson Joseph
8. TECH
CHALLENGE #2
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
Different metrics for
success result in differing
views on product value.
CLINICAL
MEDICINE
Challenges
Mountain Climber by Juan Pablo Bravo; Patient by Wilson Joseph & Team by Jon Prepeluh
9. Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
CHALLENGE #3
User-centered design:
meets one set of needs at
the expense of the clinical
relationship
Challenges
PRODUCT
DESIGN
CLINICAL
BIOETHICS
11. RELATION CENTERED DESIGN
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
RCD
Build products in service to our
relationships.
addresses the relational aspect of user interactions
12. How does your mHealth app
impact the clinical relationship?
RELATION CENTERED DESIGN
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
RCD
mHealth by Edward Boatman from The Noun Project
13. RELATION CENTERED DESIGN
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
RCD
mHealth by Edward Boatman from The Noun Project
Respect for Persons
Benefit/Harm (Beneficence/Non-maleficence)
Privacy
Quality | Reliability | Safety
Transparency
14. PRODUCT DEVELOPMENT
Stages
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
Scaffold
Research &
Development
Deployment &
Maintenance
Prototype &
Usability
15. PRODUCT DEVELOPMENT
For Each Stage:
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
Scaffold
Research &
Development
Deployment &
Maintenance
Prototype &
Usability
2 Parts to Inquiry:
Technical Development | Clinical Application
16. SCAFFOLD
Research &
Development
Research &
Development
Prototype &
Usability
Prototype &
Usability
Deployment &
Maintenance
Deployment &
Maintenance
Ethical considerations Technical Clinical Technical Clinical Technical Clinical
Respect for Persons
Beneficence
Non-Maleficence
Justice
Research Ethics
- Risk-Benefit
- Informed Consent
- Harm from research
Privacy
Quality | Reliability | Safety
Transparency
Relation-centered design
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
Scaffold
18. Research &
Development
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
R&D
Tech developers build clinical
decision support tools that
enable people with lower
levels of training to provide
higher levels of care.
19. Research &
Development
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
R&D
Current regulatory
approaches are mismatched to
tech’s iterative development
Photo: Richard Holder
20. Prototype &
Usability
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
P&U
mHealth by Edward Boatman from The Noun Project
21. Deployment &
Maintenance
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
D&M
SystemicPressures
Personal/Family
Pressures
mHealth by Edward Boatman from The Noun Project
22. Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
To respond to the challenges:
1.Address the clinical reality of technical
failure from the outset of design
2. Include all metrics of success
3. Strengthen the clinical relationship
4. Build apps with integrity by design
Research &
Development
Research &
Development
Prototype &
Usability
Prototype &
Usability
Deployment &
Maintenance
Deployment &
Maintenance
Technical Clinical Technical Clinical Technical Clinical
Respect for
Persons
Harm/Benefit
Privacy
Quality/
Reliability
Transparency
Relation-
centered
design
SCAFFOLDWHEN?
WHAT?
HOW?
WHY?
Conclusion
23. “THE DIFFERENCE BETWEEN
WHAT WE DO AND
WHAT WE ARE CAPABLE OF
DOING WOULD SUFFICETO
SOLVE MOST OFTHE WORLD’S
PROBLEMS.” - GANDHI
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
Conclusion
24. SystemicPressures
WHAT IS ESSENTIAL FOR MHEALTH?
Research &
Development
Research &
Development
Prototype &
Usability
Prototype &
Usability
Deployment &
Maintenance
Deployment &
Maintenance
Technical Clinical Technical Clinical Technical Clinical
Respect for
Persons
Beneficence
Non-
Maleficence
Justice
Research Ethics
Privacy
Quality |
Reliability |
Safety
Transparency
Relation-
centered design
Kate Michi Ettinger
@k8ethics
integritybydesign.org
Ethical Considerations & Relation-Centered Design for Mobile Health Applications
Snapshot
Personal/Family
Pressures
Apps that strengthen the
clinical relationship
Build products with integrity by
design
Create technology in service
to our relationships
mHealth by Edward Boatman from The Noun Project