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SYNOPSIS – LIVING BETTER WITH DEMENTIA
Chapter 1 Introduction
Chapter 2 Specialist groups living well with dementia
e.g. LBGT, travellers, racial groups, persons with learning difficulties
Chapter 3 Young onset dementia and living well
This chapter is likely to include a focused look on the changing needs of the early onset
dementia/young onset group.
It is also likely to include the drive for genetic risk factors identification and whether this is
likely to help policy or not.
Current state of play in the genetics of the ‘tauopathies’ in dementia of the Alzheimer type and
frontotemporal dementia.
Personalised medicine, genomics and data sharing.
Chapter 4 Delirium and dementia: are they living well together in policy?
There is currently a slight confusion how cases are found in secondary care in delirium which
inform on case finding in dementia.
An analysis will be presented on a relative lack of interest in assessing an effect of timely
interventions to promote living well with dementia, and how this has unwittingly distorted the
screening debate for dementia based upon the Wilson and Jungner (1967) criteria.
Chapter 5 Who cares about living well with dementia?
Shared purpose in dementia person-centred care.
Relationship-centred care.
Institutional and inclusive approaches to care.
Carers and living well with dementia – tip of an iceberg?
Carers and unpaid family caregivers.
The anticipated demographics of unpaid family caregivers.
Signposting carers to appropriate services.
How to assess the ‘quality’ of a care home.
‘Triangle of care’ and RCN guidelines.
Carers’ Trust.
Intermediate care.
Kate Swaffer’s “prescribed disengagement model”.
The rôle of dementia specialist nurses, including Admiral Nurses.
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Chapter 6 Framing the narrative for living well with dementia
The effect of language in the media on living better with dementia.
Cultural metaphors: war, tides and fights.
Stigma and discrimination.
Questionnaire study of perception and identity: the #G8dementia summit.
Medicalisation, Alzheimerisation and living well with dementia.
Problems with the “dementia friendly communities” concept.
Chapter 7 Can living well with dementia with personal budgets work?
Cascading cultural change: “dementia champions”.
Schein’s model.
Personal budgets and living well with dementia.
History of this policy theme.
Implications for choice and control.
Implications for advocacy.
Chapter 8 Nutrition and living well with dementia
Dementia care pathway.
How to support a patient with dementia on the ward.
Self-reflection.
The design of eating environment.
Nutrition champions.
Difference between audit and research.
Royal College of Psychiatrists Dementia Audit.
“Food First”.
Disseminating research and audit findings.
Chapter 9 Art and creativity in living well with dementia
Emergence of creative talent in dementia
Theatre trips in dementia
Singing and the brain
Drama and living well with dementia
‘Humour therapy’
Chapter 10 Living well with dementia with sporting memories
The cognitive neurology of “sporting memories” and living well with dementia.
The application of neuroscience to understanding reminiscence in dementia.
There is a temptation not to take sporting memories and reminiscence techniques not very
seriously, as they are currently poor understood.
This chapter will review the evolution of the “sporting memories” initiatives, and consider how
they might have a powerful neuroscientific substrate in memory systems after all.
Chapter 11 Incontinence and living well with dementia
Stress and urge incontinence.
Incontinence in different types of dementia.
Incontinence and medications.
Non-surgical approaches for incontinence.
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Chapter 12 Thinking globally about living well with dementia
Examples of various initiatives domestically and internationally.
Global trends.
The G8 Dementia Summit
The UK Dementia Strategy 2014 and other dementia strategies
Chapter 13 Why does housing matter for living well with dementia?
Design of housing and adaptations.
Supportive housing.
The structure and function of the English housing sector.
Chapter 14 Challenging behaviours, safeguarding and living well with dementia
Challenging behaviours
General principles of safeguarding.
Safety.
Human rights, liberty and the law.
Smart technology”.
Chapter 15 Networks, innovation and living well with dementia
Networks and innovation.
The importance of collaboration and innovation in securing competitive advantage .
Social media and mitigation against loneliness.
Case study: life story networks.
Chapter 16 Promoting leadership
The ‘Dementia Care Pathway’.
Supporting and motivating colleagues.
Leadership in person-centred care.
The involvement of “people” in the JRF ‘four cornerstones’ model.
Corporate social responsibility, marketing and strategy.
The history of the Japanese befriending policy and implications for England.
RSA Social Brain and collective decision making.
Promoting dementia in schools.
Some real-life experiences.
Chapter 17 Seeing the whole person in living well with dementia
Going from a philosophy of ‘risk mitigation’ to ‘living well’.
Whole person care and living better with dementia.
Oldham Commission report on “whole person care”.
Philosophy of integrated care.
Frailty and ‘front door’ approaches.
Principles of “Transforming primary care”.
Chapter 18 Conclusion

Synopsis

  • 1.
    1 SYNOPSIS – LIVINGBETTER WITH DEMENTIA Chapter 1 Introduction Chapter 2 Specialist groups living well with dementia e.g. LBGT, travellers, racial groups, persons with learning difficulties Chapter 3 Young onset dementia and living well This chapter is likely to include a focused look on the changing needs of the early onset dementia/young onset group. It is also likely to include the drive for genetic risk factors identification and whether this is likely to help policy or not. Current state of play in the genetics of the ‘tauopathies’ in dementia of the Alzheimer type and frontotemporal dementia. Personalised medicine, genomics and data sharing. Chapter 4 Delirium and dementia: are they living well together in policy? There is currently a slight confusion how cases are found in secondary care in delirium which inform on case finding in dementia. An analysis will be presented on a relative lack of interest in assessing an effect of timely interventions to promote living well with dementia, and how this has unwittingly distorted the screening debate for dementia based upon the Wilson and Jungner (1967) criteria. Chapter 5 Who cares about living well with dementia? Shared purpose in dementia person-centred care. Relationship-centred care. Institutional and inclusive approaches to care. Carers and living well with dementia – tip of an iceberg? Carers and unpaid family caregivers. The anticipated demographics of unpaid family caregivers. Signposting carers to appropriate services. How to assess the ‘quality’ of a care home. ‘Triangle of care’ and RCN guidelines. Carers’ Trust. Intermediate care. Kate Swaffer’s “prescribed disengagement model”. The rôle of dementia specialist nurses, including Admiral Nurses.
  • 2.
    2 Chapter 6 Framingthe narrative for living well with dementia The effect of language in the media on living better with dementia. Cultural metaphors: war, tides and fights. Stigma and discrimination. Questionnaire study of perception and identity: the #G8dementia summit. Medicalisation, Alzheimerisation and living well with dementia. Problems with the “dementia friendly communities” concept. Chapter 7 Can living well with dementia with personal budgets work? Cascading cultural change: “dementia champions”. Schein’s model. Personal budgets and living well with dementia. History of this policy theme. Implications for choice and control. Implications for advocacy. Chapter 8 Nutrition and living well with dementia Dementia care pathway. How to support a patient with dementia on the ward. Self-reflection. The design of eating environment. Nutrition champions. Difference between audit and research. Royal College of Psychiatrists Dementia Audit. “Food First”. Disseminating research and audit findings. Chapter 9 Art and creativity in living well with dementia Emergence of creative talent in dementia Theatre trips in dementia Singing and the brain Drama and living well with dementia ‘Humour therapy’ Chapter 10 Living well with dementia with sporting memories The cognitive neurology of “sporting memories” and living well with dementia. The application of neuroscience to understanding reminiscence in dementia. There is a temptation not to take sporting memories and reminiscence techniques not very seriously, as they are currently poor understood. This chapter will review the evolution of the “sporting memories” initiatives, and consider how they might have a powerful neuroscientific substrate in memory systems after all. Chapter 11 Incontinence and living well with dementia Stress and urge incontinence. Incontinence in different types of dementia. Incontinence and medications. Non-surgical approaches for incontinence.
  • 3.
    3 Chapter 12 Thinkingglobally about living well with dementia Examples of various initiatives domestically and internationally. Global trends. The G8 Dementia Summit The UK Dementia Strategy 2014 and other dementia strategies Chapter 13 Why does housing matter for living well with dementia? Design of housing and adaptations. Supportive housing. The structure and function of the English housing sector. Chapter 14 Challenging behaviours, safeguarding and living well with dementia Challenging behaviours General principles of safeguarding. Safety. Human rights, liberty and the law. Smart technology”. Chapter 15 Networks, innovation and living well with dementia Networks and innovation. The importance of collaboration and innovation in securing competitive advantage . Social media and mitigation against loneliness. Case study: life story networks. Chapter 16 Promoting leadership The ‘Dementia Care Pathway’. Supporting and motivating colleagues. Leadership in person-centred care. The involvement of “people” in the JRF ‘four cornerstones’ model. Corporate social responsibility, marketing and strategy. The history of the Japanese befriending policy and implications for England. RSA Social Brain and collective decision making. Promoting dementia in schools. Some real-life experiences. Chapter 17 Seeing the whole person in living well with dementia Going from a philosophy of ‘risk mitigation’ to ‘living well’. Whole person care and living better with dementia. Oldham Commission report on “whole person care”. Philosophy of integrated care. Frailty and ‘front door’ approaches. Principles of “Transforming primary care”. Chapter 18 Conclusion