This document provides an update on Sofie's journey with epilepsy. It describes how Sofie was diagnosed with epilepsy at age 5 after her first seizure. She continued having seizures despite medications. Eventually she was evaluated by doctors at UCLA who determined she was a candidate for brain surgery. Sofie had a left temporal lobectomy in 2009 to remove the part of her brain that was causing seizures. The surgery was a success, and Sofie has been seizure-free since. The document also discusses how the parents now work to raise epilepsy awareness and help other families.
Nadiya Parkar, a student, is creating a documentary called "The Big MiSTEAK" about how rising food prices can affect people's health. She discovered that unhealthy foods are often cheaper than healthier options. The BBC contacted Nadiya about her documentary idea after seeing her YouTube videos. She decided to focus on food after her mother suggested the topic at a family barbecue where Nadiya shared the BBC's interest. Nadiya's documentary explores how food prices can impact people's weight and health by interviewing students and experts.
Centre for the Creative Arts and Media (CCAM) | GMIT DAC Drawings Jonathan Flanagan
This document contains plans and drawings related to a proposed accessibility upgrade project at Galway Mayo Institute of Technology. It includes a site location map showing the project site boundaries, an existing site layout plan, a proposed site layout plan, and several floor plans of the proposed renovations. The plans provide dimensions and details of proposed accessibility features like accessible parking areas, ramps, entrance paths, and circulation routes.
This document contains 3 building details labeled PO1, PO2, and PO3. PO1 shows a wall section with 12.5mm plasterboard attached to steel angles, a universal column, insulation, and brick cladding. PO2 depicts a wall with metal cladding, an internal liner, insulation, and an external metal sheet. PO3 illustrates a curtain wall section with a steel post, internal liner, insulation, and angled flashing.
This CV is for Able P. Abraham, an Indian national seeking a career in accounts, finance, customer service, or a related field. Abraham has over 5 years of experience working in money exchange for Joyalukkas Exchange in Dubai, where he performed tasks like processing remittances, foreign exchange transactions, and customer support. He then worked as a Business Development Officer for 2 years. Previously, Abraham worked for 1 year as an Accounts Officer for Muthoot Fin Corp Ltd. in India. He has an MBA in Finance and Marketing and is proficient in English, Hindi, Tamil, Malayalam, and basic Arabic.
This document proposes a framework for handling point-of-interest (POI) queries in dynamic road networks. It presents algorithms that allow POIs to be queried based on a user-defined cost function, while supporting changes to both the road network and set of POIs. The most flexible variant enables interactive queries on continental networks even when the network and POIs can change frequently.
This document provides details for proposed upgrades to the walls, floors, windows, and structures of a protected mill building and silo. It includes specifications for insulating existing masonry walls, upgrading wood floors, installing triple glazed windows, and adding rigid insulation and cladding to silo walls. Diagrams show wall section details, proposed plans, and structural connection details. The work is designed according to conservation best practices to ensure reversibility of the upgrades.
The Vertical Shift - Avoiding the Malthusian Catastrophe - Gordon GraffSBCBreakfastSessions
The document discusses ways to avoid a Malthusian catastrophe of population growth outpacing food production through land consumption. It outlines how human agricultural land use has already claimed 38% of the earth's land area, with 80% of potentially arable land in use. To feed the additional 2.5 billion people expected by 2050 will require an area the size of Brazil. Initiatives proposed include dramatically improving land efficiency through vertical farming projects like SkyFarm, which can produce the same yield as 1,369 acres of conventional farming on only 1.34 hectares of land. These initiatives aim to avoid issues like massive starvation, irreversible ecological damage from further land clearing, and make agriculture independent of fossil fuels.
Nadiya Parkar, a student, is creating a documentary called "The Big MiSTEAK" about how rising food prices can affect people's health. She discovered that unhealthy foods are often cheaper than healthier options. The BBC contacted Nadiya about her documentary idea after seeing her YouTube videos. She decided to focus on food after her mother suggested the topic at a family barbecue where Nadiya shared the BBC's interest. Nadiya's documentary explores how food prices can impact people's weight and health by interviewing students and experts.
Centre for the Creative Arts and Media (CCAM) | GMIT DAC Drawings Jonathan Flanagan
This document contains plans and drawings related to a proposed accessibility upgrade project at Galway Mayo Institute of Technology. It includes a site location map showing the project site boundaries, an existing site layout plan, a proposed site layout plan, and several floor plans of the proposed renovations. The plans provide dimensions and details of proposed accessibility features like accessible parking areas, ramps, entrance paths, and circulation routes.
This document contains 3 building details labeled PO1, PO2, and PO3. PO1 shows a wall section with 12.5mm plasterboard attached to steel angles, a universal column, insulation, and brick cladding. PO2 depicts a wall with metal cladding, an internal liner, insulation, and an external metal sheet. PO3 illustrates a curtain wall section with a steel post, internal liner, insulation, and angled flashing.
This CV is for Able P. Abraham, an Indian national seeking a career in accounts, finance, customer service, or a related field. Abraham has over 5 years of experience working in money exchange for Joyalukkas Exchange in Dubai, where he performed tasks like processing remittances, foreign exchange transactions, and customer support. He then worked as a Business Development Officer for 2 years. Previously, Abraham worked for 1 year as an Accounts Officer for Muthoot Fin Corp Ltd. in India. He has an MBA in Finance and Marketing and is proficient in English, Hindi, Tamil, Malayalam, and basic Arabic.
This document proposes a framework for handling point-of-interest (POI) queries in dynamic road networks. It presents algorithms that allow POIs to be queried based on a user-defined cost function, while supporting changes to both the road network and set of POIs. The most flexible variant enables interactive queries on continental networks even when the network and POIs can change frequently.
This document provides details for proposed upgrades to the walls, floors, windows, and structures of a protected mill building and silo. It includes specifications for insulating existing masonry walls, upgrading wood floors, installing triple glazed windows, and adding rigid insulation and cladding to silo walls. Diagrams show wall section details, proposed plans, and structural connection details. The work is designed according to conservation best practices to ensure reversibility of the upgrades.
The Vertical Shift - Avoiding the Malthusian Catastrophe - Gordon GraffSBCBreakfastSessions
The document discusses ways to avoid a Malthusian catastrophe of population growth outpacing food production through land consumption. It outlines how human agricultural land use has already claimed 38% of the earth's land area, with 80% of potentially arable land in use. To feed the additional 2.5 billion people expected by 2050 will require an area the size of Brazil. Initiatives proposed include dramatically improving land efficiency through vertical farming projects like SkyFarm, which can produce the same yield as 1,369 acres of conventional farming on only 1.34 hectares of land. These initiatives aim to avoid issues like massive starvation, irreversible ecological damage from further land clearing, and make agriculture independent of fossil fuels.
This document provides details on the wall construction for a primary health care centre, including:
- Rockwool insulation with a thermal conductivity of 0.044W/mk and C studs every 900mm
- Curtain walling supported by CHS columns to structural engineers' specifications
- Plasterboard with a smooth finish and antibacterial properties, adapted for nurses' and surgery rooms
- Fibre cement and Forticrete rainscreen cladding of various sizes for the walls and atrium
- Insulation materials including PIR rigid insulation boards and filled rockwool for thermal and acoustic purposes
This is a technical presentation which I delivered in the later half of Senior Year during my Undergraduate studies. I spoke about the implementation of a DSP algorithm on an FPGA board.
The document discusses several methods for migrating from IPv4 to IPv6 including native dual stack, DS-Lite, NAT64, and 6RD. Native dual stack allows simultaneous use of IPv4 and IPv6 but is the most complex to deploy. DS-Lite tunnels IPv4 packets over IPv6 to allow an IPv6-only access network. NAT64 provides IPv4-IPv6 translation to allow access to IPv4 servers from an IPv6 network. 6RD allows lightweight IPv6 deployment without upgrades by encapsulating IPv6 in IPv4. Each method has different impacts on the access network, subscriber edge, and home network domains.
If you're designing applications using lithium batteries, it is important to understand the impact of certifications and regulatory requirements so companies are prepared prior to entering their product to market.
In this webinar as we discuss the new UN 38.3 testing requirements and the recent IATA regulations changes required for lithium batteries. We will also review the challenges OEM's may face with the regulation changes.
To learn more about our custom battery pack solutions visit http://www.epectec.com/batteries/
This document provides an overview of the International Air Transport Association (IATA) and their Dangerous Goods Regulations (DGR) manual. IATA was formed in 1945 and represents over 200 airlines. Their main aims are to provide safe and secure air transportation. The DGR defines dangerous goods and provides classification, packaging, labeling and handling requirements to safely transport dangerous goods by air. It is based on United Nations recommendations and ICAO technical instructions. The DGR aims to minimize risks to health, safety, property and the environment from dangerous goods transported by air.
Current problems with the spina bifida diagnosisAmanda Kern
This document discusses problems with the diagnosis of spina bifida and provides recommendations for improvement. It notes that families often receive outdated or inaccurate information when given a spina bifida diagnosis and are sometimes encouraged to terminate their pregnancy. It recommends that all medical professionals providing a diagnosis give patients an accurate up-to-date explanation and connect them with specialists, support groups, and their local spina bifida clinic. The document also shares personal experiences of families raising a child with spina bifida to show that it is possible despite challenges.
The document summarizes the activities of a group called Activists In Da Streets (A.I.D.S) over 5 weeks to raise awareness about HIV/AIDS. The group included 12 members who went on a scavenger hunt around Philadelphia collecting information and flags. They visited several organizations and got tested themselves. The group also had a potluck dinner fundraiser, created flyers and brochures with information, translated materials to Spanish, and launched a website. They performed a skit to illustrate mistakes made by not discussing HIV status that they felt fulfilled their goal despite challenges.
This document provides the program schedule and guide for the Creative Problem Solving Institute (CPSI) conference taking place from June 14-19, 2016 in Buffalo, New York. The schedule outlines the daily timing of events like breakfast, sessions, breaks, lunches, dinners and evening activities. There are multiple concurrent tracks of sessions including Youthwise, Main Tracks and Extending workshops. The guide also includes introductory letters, information on special events, speaker bios and acknowledgements.
Harper Alm, a 3-year-old girl with Down syndrome, has shown great determination in overcoming obstacles through her physical and speech therapy at East Tennessee Children's Hospital. She learned to walk before age 2 and can now run and jump. She has also mastered fine motor skills and learned to say many words. Her drive to learn and cheerful personality inspire those around her. Her family is grateful for the specialized care and resources she has received at the children's hospital.
Mt. Washington Pediatric Hospital Annual Report FY 2013 Kathleen Lee
The annual report summarizes Mt. Washington Pediatric Hospital's activities and finances for FY 2013. It discusses that over 40,000 outpatient visits and 750 inpatients were served, with inpatients staying an average of 29 days. Financially, it was a good year despite challenges. The report highlights programs and services including inpatient, outpatient, community outreach and benefits.
Families We Helped - Review Shared by Proud Parents and Happy Patient of Surr...Surrogacy Centre India
The SCI Healthcare team feels privileged to meet many wonderful people from around the world. We are all proud of the contribution we make in helping our clients realise their dream of becoming parents. Below are some words from our international surrogacy family.
Families We Helped - Review Shared by Proud Parents and Happy Patient of Surr...Surrogacy Centre India
The SCI Healthcare team feels privileged to meet many wonderful people from around the world. We are all proud of the contribution we make in helping our clients realize their dream of becoming parents. Below are some words from our international surrogacy family.
A persuasive essay about autism could discuss increasing awareness and acceptance of those on the autism spectrum. It may focus on dispelling common myths and misconceptions, emphasizing that those with autism have unique strengths and ways of experiencing the world. The essay could advocate for increased funding for research, early diagnosis, and support services to help people with autism reach their full potential.
This annual report summarizes Racker Center's activities and achievements in 2014. Some key points:
- Racker Center was founded in 1948 to support people with disabilities and help them feel like they belong in their communities. Their new strategic plan from 2014 reaffirms this mission.
- They provided services to over 2,000 individuals in 2014, with the majority of services taking place in community locations rather than Racker Center sites.
- Success stories highlight programs like their partnership with BOCES that helped a student with mental health challenges find belonging and success at school.
- The report recognizes donors and supporters who make their work possible.
The document summarizes a service learning project hosted by a university group for the Down Syndrome Association of Central Florida. The group planned a Spring Fling event with arts and crafts at the Association's facility. Only 2 children attended, though more were expected. A highlight was a storytelling activity led by a girl named Zoe who shared her own version of the story. The experience gave the group insight into working with children with Down syndrome.
March of DImes, March for Babies – Fundraising Tips from Team LevineJosh Levine
Josh and Paulina Levine lost their twin daughters Chloe and Isabelle who were born prematurely in 2006. They have since had two other children, Olivia and Julian. They are dedicated to supporting the March of Dimes to help prevent premature births and ensure all babies are born healthy. Their fundraising tips include telling their personal story, creating videos to share on social media, developing a donor database to track supporters, sending targeted email campaigns to different lists, being active on social media and creating a team page, and organizing fundraising events.
The document summarizes a woman's maternity journey from weeks 4 through 10 of her pregnancy. It describes her surprise at discovering she was pregnant, sharing the news with family and friends, attending early doctor appointments to hear the baby's heartbeat, feeling the baby's development, experiencing common symptoms like bloating, and preparing for the baby's arrival in July. She looks forward to determining the baby's gender and discussing potential names with her partner and son.
Dr. Mehmet Oz, a famous physician from New Jersey, shares his insights on health, family, and happiness. He discusses common health concerns parents have about their children like puberty starting earlier in girls. He also talks about the rise in childhood obesity and how kids are less active nowadays. Dr. Oz emphasizes the importance of parental love and attention for children's emotional well-being. He discusses some common parenting mistakes like being overprotective and not letting kids fail at times.
The Rare Disease Awareness Network is holding several upcoming events in February to raise awareness for rare diseases, including their First Annual Blood Drive on February 24th. They are also asking local businesses to offer 10% discounts on February 28th for Rare Disease Day to help spread information. The newsletter highlights an individual named Imran Khan who was diagnosed with Friedreich's Ataxia at age 18 and discusses his experiences raising awareness for the condition through social media and advocacy work.
This document provides details on the wall construction for a primary health care centre, including:
- Rockwool insulation with a thermal conductivity of 0.044W/mk and C studs every 900mm
- Curtain walling supported by CHS columns to structural engineers' specifications
- Plasterboard with a smooth finish and antibacterial properties, adapted for nurses' and surgery rooms
- Fibre cement and Forticrete rainscreen cladding of various sizes for the walls and atrium
- Insulation materials including PIR rigid insulation boards and filled rockwool for thermal and acoustic purposes
This is a technical presentation which I delivered in the later half of Senior Year during my Undergraduate studies. I spoke about the implementation of a DSP algorithm on an FPGA board.
The document discusses several methods for migrating from IPv4 to IPv6 including native dual stack, DS-Lite, NAT64, and 6RD. Native dual stack allows simultaneous use of IPv4 and IPv6 but is the most complex to deploy. DS-Lite tunnels IPv4 packets over IPv6 to allow an IPv6-only access network. NAT64 provides IPv4-IPv6 translation to allow access to IPv4 servers from an IPv6 network. 6RD allows lightweight IPv6 deployment without upgrades by encapsulating IPv6 in IPv4. Each method has different impacts on the access network, subscriber edge, and home network domains.
If you're designing applications using lithium batteries, it is important to understand the impact of certifications and regulatory requirements so companies are prepared prior to entering their product to market.
In this webinar as we discuss the new UN 38.3 testing requirements and the recent IATA regulations changes required for lithium batteries. We will also review the challenges OEM's may face with the regulation changes.
To learn more about our custom battery pack solutions visit http://www.epectec.com/batteries/
This document provides an overview of the International Air Transport Association (IATA) and their Dangerous Goods Regulations (DGR) manual. IATA was formed in 1945 and represents over 200 airlines. Their main aims are to provide safe and secure air transportation. The DGR defines dangerous goods and provides classification, packaging, labeling and handling requirements to safely transport dangerous goods by air. It is based on United Nations recommendations and ICAO technical instructions. The DGR aims to minimize risks to health, safety, property and the environment from dangerous goods transported by air.
Current problems with the spina bifida diagnosisAmanda Kern
This document discusses problems with the diagnosis of spina bifida and provides recommendations for improvement. It notes that families often receive outdated or inaccurate information when given a spina bifida diagnosis and are sometimes encouraged to terminate their pregnancy. It recommends that all medical professionals providing a diagnosis give patients an accurate up-to-date explanation and connect them with specialists, support groups, and their local spina bifida clinic. The document also shares personal experiences of families raising a child with spina bifida to show that it is possible despite challenges.
The document summarizes the activities of a group called Activists In Da Streets (A.I.D.S) over 5 weeks to raise awareness about HIV/AIDS. The group included 12 members who went on a scavenger hunt around Philadelphia collecting information and flags. They visited several organizations and got tested themselves. The group also had a potluck dinner fundraiser, created flyers and brochures with information, translated materials to Spanish, and launched a website. They performed a skit to illustrate mistakes made by not discussing HIV status that they felt fulfilled their goal despite challenges.
This document provides the program schedule and guide for the Creative Problem Solving Institute (CPSI) conference taking place from June 14-19, 2016 in Buffalo, New York. The schedule outlines the daily timing of events like breakfast, sessions, breaks, lunches, dinners and evening activities. There are multiple concurrent tracks of sessions including Youthwise, Main Tracks and Extending workshops. The guide also includes introductory letters, information on special events, speaker bios and acknowledgements.
Harper Alm, a 3-year-old girl with Down syndrome, has shown great determination in overcoming obstacles through her physical and speech therapy at East Tennessee Children's Hospital. She learned to walk before age 2 and can now run and jump. She has also mastered fine motor skills and learned to say many words. Her drive to learn and cheerful personality inspire those around her. Her family is grateful for the specialized care and resources she has received at the children's hospital.
Mt. Washington Pediatric Hospital Annual Report FY 2013 Kathleen Lee
The annual report summarizes Mt. Washington Pediatric Hospital's activities and finances for FY 2013. It discusses that over 40,000 outpatient visits and 750 inpatients were served, with inpatients staying an average of 29 days. Financially, it was a good year despite challenges. The report highlights programs and services including inpatient, outpatient, community outreach and benefits.
Families We Helped - Review Shared by Proud Parents and Happy Patient of Surr...Surrogacy Centre India
The SCI Healthcare team feels privileged to meet many wonderful people from around the world. We are all proud of the contribution we make in helping our clients realise their dream of becoming parents. Below are some words from our international surrogacy family.
Families We Helped - Review Shared by Proud Parents and Happy Patient of Surr...Surrogacy Centre India
The SCI Healthcare team feels privileged to meet many wonderful people from around the world. We are all proud of the contribution we make in helping our clients realize their dream of becoming parents. Below are some words from our international surrogacy family.
A persuasive essay about autism could discuss increasing awareness and acceptance of those on the autism spectrum. It may focus on dispelling common myths and misconceptions, emphasizing that those with autism have unique strengths and ways of experiencing the world. The essay could advocate for increased funding for research, early diagnosis, and support services to help people with autism reach their full potential.
This annual report summarizes Racker Center's activities and achievements in 2014. Some key points:
- Racker Center was founded in 1948 to support people with disabilities and help them feel like they belong in their communities. Their new strategic plan from 2014 reaffirms this mission.
- They provided services to over 2,000 individuals in 2014, with the majority of services taking place in community locations rather than Racker Center sites.
- Success stories highlight programs like their partnership with BOCES that helped a student with mental health challenges find belonging and success at school.
- The report recognizes donors and supporters who make their work possible.
The document summarizes a service learning project hosted by a university group for the Down Syndrome Association of Central Florida. The group planned a Spring Fling event with arts and crafts at the Association's facility. Only 2 children attended, though more were expected. A highlight was a storytelling activity led by a girl named Zoe who shared her own version of the story. The experience gave the group insight into working with children with Down syndrome.
March of DImes, March for Babies – Fundraising Tips from Team LevineJosh Levine
Josh and Paulina Levine lost their twin daughters Chloe and Isabelle who were born prematurely in 2006. They have since had two other children, Olivia and Julian. They are dedicated to supporting the March of Dimes to help prevent premature births and ensure all babies are born healthy. Their fundraising tips include telling their personal story, creating videos to share on social media, developing a donor database to track supporters, sending targeted email campaigns to different lists, being active on social media and creating a team page, and organizing fundraising events.
The document summarizes a woman's maternity journey from weeks 4 through 10 of her pregnancy. It describes her surprise at discovering she was pregnant, sharing the news with family and friends, attending early doctor appointments to hear the baby's heartbeat, feeling the baby's development, experiencing common symptoms like bloating, and preparing for the baby's arrival in July. She looks forward to determining the baby's gender and discussing potential names with her partner and son.
Dr. Mehmet Oz, a famous physician from New Jersey, shares his insights on health, family, and happiness. He discusses common health concerns parents have about their children like puberty starting earlier in girls. He also talks about the rise in childhood obesity and how kids are less active nowadays. Dr. Oz emphasizes the importance of parental love and attention for children's emotional well-being. He discusses some common parenting mistakes like being overprotective and not letting kids fail at times.
The Rare Disease Awareness Network is holding several upcoming events in February to raise awareness for rare diseases, including their First Annual Blood Drive on February 24th. They are also asking local businesses to offer 10% discounts on February 28th for Rare Disease Day to help spread information. The newsletter highlights an individual named Imran Khan who was diagnosed with Friedreich's Ataxia at age 18 and discusses his experiences raising awareness for the condition through social media and advocacy work.
The document summarizes accomplishments of the National Reye's Syndrome Foundation in 2010, including publishing a commemorative book, removing children's aspirin from store shelves, holding fundraising events, and distributing educational materials. The Foundation advocates to protect children from Reye's Syndrome and raise awareness of the dangers of aspirin use in children.
LIKE FATHER, LIKE DAUGHTER - ENVIRONMENTAL STUDIES CBSE-VBIOLOGY TEACHER
Tell
Does your face or anything else look similar to that of someone else in your family? What is it? Did someone tell you this or did you find it out yourself? How do you feel when people compare you with someone else in your family? Why do you feel so? Who laughs the loudest in your family? Laugh like that person.
This document discusses raising a child with disabilities and advocating for inclusion. It shares the experiences of two mothers, Nicola and Ethan, who have disabilities but whose parents focus on their abilities rather than limitations. The mothers learned to have hope instead of anger, and to continue dreaming for their children as for others. They have created support networks for families and believe all people should feel valued for their gifts. The goal is total transformation to a culture where the most vulnerable are safe and supported to fulfill their potential.
Poland Syndrome is a rare birth defect which typically results in one hand smaller than the other, missing chest muscle(s) one the same side. This presentation is to give a brief overview of our charity PIP-UK which is raising awareness on Poland Syndrome and offering a place to share stories and learn more.
1.
Sofie’s
Journey
2016
update
Brad
&
Candy
Levy
This
is
a
follow
up
to
our
original
story
from
April
2014.
We
want
to
update
families,
so
that
people
can
see
that
continued
progress
and
success
is
possible.
We
also
want
to
update
everyone
on
the
growth
of
Epilepsy
Awareness
Day
at
Disneyland
and
the
upcoming
event
this
Nov.
2&3,
2016.
Until
our
only
child,
Sofie,
developed
epilepsy,
Brad
focused
on
the
family’s’
retail
store
and
consulting
business
and
Candy
worked
representing
composers,
volunteering
at
Sofie’s
school
and
with
their
local
special
needs
group.
Sofie
was
5
and
a
half
years
old
when
we
noticed
her
first
seizure.
We
are
not
sure
how
many
went
undetected,
as
they
were
pretty
mild
in
the
beginning.
Sofie’s
first
identified
seizure
was
on
Friday,
May
20,
2005
just
before
6
a.m.,
a
day
we
will
never
forget.
Sofie
woke
up,
tried
to
talk,
but
her
speech
was
“stuck”
(for
lack
of
a
better
word)
at
first
we
thought
she
was
playing
around,
but
then
we
panicked.
Like
any
scared
parent,
we
called
9-‐1-‐1.
By
the
time
the
paramedics
arrived,
3
of
the
longest
minutes
later,
she
was
yapping
up
a
storm
and
questioning
why
there
were
paramedics
in
the
house!
Sofie
continued
to
have
seizures
despite
many
medications
and
many
(mis)diagnoses.
We
sought
several
opinions
and
consulted
many
neurologists,
epileptologists
and
neurosurgeons
nationwide.
2.
Sofie’s
Journey
2016
update
Brad
&
Candy
Levy
When
Sofie
continued
to
have
seizures,
3
and
a
half
years
later,
the
opportunity
was
presented
for
Sofie
to
have
a
neurosurgical
evaluation
to
see
if
she
was
truly
a
surgical
candidate.
The
evaluation
included
neuropsychological
testing,
as
well
as
the
Wada
Test.
We
were
fortunate
enough
to
be
lead
to
Sofie’s
cure:
at
the
pediatric
epilepsy
surgery
program
at
UCLA
Mattel
Children’s
Hospital
with
our
hero,
Dr.
Gary
Mathern
and
Dr.
Raman
Sankar
&
their
team.
We
always
thought
brain
surgery
was
a
last
option,
not
understanding
that
sometimes
it’s
the
best
option.
Great
news,
Sofie
was
a
candidate!
It
was
time
to
explain
how
fortunate
she
was
to
be
a
surgical
candidate,
that
she
wound
up
a
lucky
one
to
have
a
surgically
treatable
disorder!
Once
we
understood,
our
focus
changed
to
helping
our
child,
and
now,
others
like
her,
with
epilepsy.
We
didn’t
realize
what
a
stigma
epilepsy
carries.
Looking
back,
we
were
guilty
of
it
too
by
telling
people
she
had
a
“seizure
disorder.”
What
is
often
called
seizure
disorder
is
really
EPILEPSY,
but
it
doesn’t
sound
as
bad!
Friday,
February
27,
2009
became
the
scariest
and
at
the
same
time,
the
best
day
of
our
lives.
Sofie
had
a
left
temporal
medial
lobectomy;
her
“troublemaker”
was
removed.
It
was
the
lesion
that
was
the
cause
of
her
focal
dyscognitive
seizures
that
she
used
to
call
her
“crookies.”
We
had
agreed
that
surgery
was
the
best
chance
for
Sofie
to
be
a
“regular”
kid,
but
it
was
still
hard
to
grasp
that
she
was
having
brain
surgery.
We
had
plenty
of
friends
and
family
question
our
decision.
Some
thought
we
weren’t
making
the
right
choice,
and
to
them
we
can
only
say
we
followed
our
heart,
we
trusted
the
tests
and
the
doctors
and
they
didn’t
let
us
down.
When
the
surgery
was
described
as
“just
another
day
at
the
office”
we
were
in
awe.
We
brought
our
Rabbi,
family
and
close
friends
to
UCLA
on
the
big
day
and
prayed
for
this
surgery
to
be
Sofie’s
cure.
Brad
added
the
promise
to
ensure
others
would
have
opportunities
like
his
daughter,
and
this
has
happened.
Now,
nearly
7
years
later,
Brad
Levy
&
family
is
EEG
to
Go,
a
full
service
EEG
monitoring
service
catering
to
kids
(&
adults)
mainly,
but
not
only
with
special
needs.
3.
Sofie’s
Journey
2016
update
Brad
&
Candy
Levy
As
her
parents,
we
are
ecstatic
that
Sofie
is
coming
up
on
7
years
seizure
free
this
February
27th!!
Sofie
is
currently
in
10th
grade,
mastering
American
Sign
language,
aerial
acrobatics
and
doing
alot
of
writing.
Sofie
has
a
unique
connection
with
younger
kids
(&
older
adults)
and
is
currently
working
on
becoming
a
Neurodiognostic
technician
and
performing
EEGs
on
kids
very
soon!
As
a
family,
we
have
further
focused
our
passion
for
epilepsy
awareness,
ensuring
others
are
afforded
opportunities
to
receive
great
epilepsy
care
by
creating
EPILEPSY
AWARENESS
DAY
AT
DISNEYLAND
RESORT,
which
debuted
11/7/2013.
The
following
day,
Candy
volunteered
to
continue
as
the
coordinator
for
EADDL
2014
and
beyond.
2015
was
an
awesome
gathering.
Over
1700
people
came
from
Europe,
Australia,
all
across
the
USA
and
Canada.
We
are
determined
to
make
the
2016
event
the
biggest
&
most
educational
gathering
of
Epilepsy
support
ever!
Please
visit
the
website
and
Facebook
page
for
current
information.
We
will
be
updating
it
often
so
check
back
for
new
info!
We
did
it;
a
lot
of
people
do
it.
We
are
just
trying
to
give
back
to
those
who
need
a
bit
of
guidance.
When
we
began
on
Sofie’s
Journey,
we
didn’t
know
about
support
groups,
I
don’t
know
if
there
were
any
Facebook
pages
for
epilepsy
or
brain
surgery,
but
those
times
have
changed
and
we
are
making
sure
of
it.
PLEASE
look
us
up,
pass
the
information
on
to
someone
you
know,
whether
they
are
affected
(or
not),
by
epilepsy
or
know
someone
who
is.
It
can
be
the
best
thing
you
do
for
them.
Please
come
and
support
someone
you
love!