SlideShare a Scribd company logo
1 of 7
Theoretical Foundations
for Research:
Fatigue in Congestive
Heart Failure Implications
for Chronic Disease
Management
Walden University
Constance Schumacher RN BScN MSN
Phenomenon: Fatigue in Congestive Heart Failure
• Fatigue is a common symptom of Congestive Heart Failure (Heart and Stroke
Foundation of Ontario, 2010).
Concept Descriptors
• Overwhelming, sustained sense of exhaustion
• Persistent tiredness
• Decreased capacity for physical and mental work
• Increased dependency
(North American Nursing Diagnosis Association, 2004; Trendall, 2000; Yang & Wu, 2005)
Fatigue Mental Work (Cognition) Decision Making
The Middle-RangeTheory of Unpleasant SymptomsLenz, Pugh, Milligan, Gift, & Suppe (1997)
Physiologic
Factors
(systems,
pathologic
problems,
energy
substrate)
• Congestive Heart
Failure
• Fatigue
• Shortness of Breath
• Edema
Psychologic
Factors
(mental,
reaction to
illness)
• Depression
• Anxiety
• Increased dependence
for personal support
• Lives in Community
Situational
Factors (life
style,
personal
experience)
• Recent Hospitalization
• Previous CHF
exacerbation
• Received CHF
management education
Performance
Functional Status: Role
Cognitive Functioning:
Problem Solving
Physical Performance:
Activity Level
Self-Care in Congestive Heart Failure
• Self-Care is comprised of self-care maintenance, self-care monitoring, and self-
care management (Riegel, Jaarsma, & Stromberg, 2012).
Self-Care Management Descriptors
• Recognition of alteration in health status, reflection, insight, decision making,
and deliberate actions to promote a healthy state(Harkness et al., 2014; Orem, 2001; Riegel et al.,
2012).
Recognition Reflect/Insight Decision Making Action
A Middle-RangeTheory of
Self-Care of Chronic Illness:
Congestive Heart Failure
Adapted from A Middle-Range Theory of Self-Care of Chronic Illness. Riegel,
Jaarsma, & Stromberg (2012)
•Medications as prescribed
•Attend regular medical
appointments
•Healthy diet
•Exercise
Self- Care
Maintenance
•Daily weights
•Monitor fluid intake
•Monitor sodium intake
•Monitor edema
•Monitor for changes in
symptoms (breathing)
Self-Care
Monitoring
•Recognition of change in
symptoms
•Evaluate change in symptom/
Decision making/Insight
•Action/ Help seeking
behaviors
Self-Care
Management
• Negative Outcomes:
Performance
•Physical: Activities of Daily
Living (ADL)
•Role: Instrumental Activities
of Daily Living (IADL)
•Cognitive: concentration,
problem solving
•Mood: depression, anxiety
•Cognitive Functioning -
•Recognition of change in
symptoms
•Evaluate change in
symptom/ Decision
making/Insight
•Action/ Help seeking
behaviors
•Role Performance (IADL) -
•Cognitive Functioning -
•Daily weights
•Monitor fluid intake
•Monitor sodium intake
•Monitor edema
•Monitor for changes in
symptoms (breathing)
•Adherence Decreased
•Role Performance (IADL) -
•Medications as prescribed
•Attend regular medical
appointments
•Healthy diet
• Physical Activity Level
(ADL) -
•Exercise
•Adherence Decreased Self-Care
Maintenance
Self-Care
Monitoring
Introduction
of
Unpleasant
Symptom
(fatigue)
Self-Care
Management
Self-Care Management in the Presence of Unpleasant Symptoms
Adapted from Middle-Range Theory of Self-Care of Chronic Illness and Middle-Range Theory of Unpleasant Symptoms. Riegel, Jaarsma, & Stromberg (2012); Lenz, Pugh, Milligan, Gift, & Suppe (1997)
Constance Schumacher
References
Harkness, K., Heckman, G. A., Akhtar-Danesh, N., Demers, C., Gunn, E., & McKelvie, R. S. (2014). Cognitive function and self-care
management in older patients with heart failure. European Journal of Cardiovascular Nursing, 13(3), 277-284.
Heart and Stroke Foundation of Ontario. (2010). End of Life Planning and Care for Heart Failure Patients. Retrieved from
www.heartandstroke.on.ca/.../END%20OF%20LIFE%20PLANNING%2...
Lenz, E., Pugh, L., Milligan, R., Gift, A., & Suppe, F. (1997).The middle-range theory of unpleasant symptoms: An update. Advances
in Nursing Science, 19(3), 14-27.
North American Nursing Diagnosis Association. (2004). Nursing diagnosis: Definitions and classification, 2003-2004. Philadelphia,
PA: NANDA.
Orem, D. (2001). Nursing concepts of practice (6th Ed.). St. Louis: Mosby.
Riegel, B., Jaarsma,T., & Stromberg, A. (2012). A middle-range theory of self-care of chronic illness. Advances in Nursing Science,
35(3), 194-204.
Trendall, J. (2000). Concept analysis: Chronic fatigue. Journal of Advanced Nursing, 32(5), 1126-1131.
Yang, C., &Wu, C. (2005).The situational fatigue scale: A different approach to measuring fatigue. Quality of Life Research, 14, 1357-
1362. doi: 10.1007/s11136-004-5680-0

More Related Content

Viewers also liked

Collaborative Examination Item Review Process in a Team-Taught Course
Collaborative Examination Item Review Process in a Team-Taught CourseCollaborative Examination Item Review Process in a Team-Taught Course
Collaborative Examination Item Review Process in a Team-Taught CourseExamSoft
 
Heart failure resources
Heart failure resourcesHeart failure resources
Heart failure resourcesRyan Squire
 
Comprehensive approach to managing heart Failure Patient
Comprehensive approach to managing heart Failure PatientComprehensive approach to managing heart Failure Patient
Comprehensive approach to managing heart Failure Patientdrucsamal
 
Topic palliative care ณัฐวุธ 13 ก.ค. 54
Topic palliative care  ณัฐวุธ 13 ก.ค. 54Topic palliative care  ณัฐวุธ 13 ก.ค. 54
Topic palliative care ณัฐวุธ 13 ก.ค. 54Watcharapong Rintara
 
Handoutการดูแลผู้ป่วยระยะสุดท้าย25ม.ค.53
Handoutการดูแลผู้ป่วยระยะสุดท้าย25ม.ค.53Handoutการดูแลผู้ป่วยระยะสุดท้าย25ม.ค.53
Handoutการดูแลผู้ป่วยระยะสุดท้าย25ม.ค.53Pain clinic pnk
 
Palliative care, ระบบการดูแลผู้ป่วยระยะท้ายควนเนียง
Palliative care, ระบบการดูแลผู้ป่วยระยะท้ายควนเนียงPalliative care, ระบบการดูแลผู้ป่วยระยะท้ายควนเนียง
Palliative care, ระบบการดูแลผู้ป่วยระยะท้ายควนเนียงKhanawut Nitikul
 
Palliative Symptom Management
Palliative Symptom ManagementPalliative Symptom Management
Palliative Symptom Managementmeducationdotnet
 
4. illness behavior and perceptions of illness
4. illness behavior and perceptions of illness4. illness behavior and perceptions of illness
4. illness behavior and perceptions of illnessM.Vijaya Rani
 
Nursing role in pain management
Nursing role in pain managementNursing role in pain management
Nursing role in pain managementAsma' Salem
 
Palliative Care คู่มือ การดูแลผู้ป่วยระยะสุดท้ายแบบประคับประคอง
Palliative Care คู่มือ การดูแลผู้ป่วยระยะสุดท้ายแบบประคับประคอง Palliative Care คู่มือ การดูแลผู้ป่วยระยะสุดท้ายแบบประคับประคอง
Palliative Care คู่มือ การดูแลผู้ป่วยระยะสุดท้ายแบบประคับประคอง Utai Sukviwatsirikul
 
Palliative Care Presentation
Palliative Care PresentationPalliative Care Presentation
Palliative Care Presentationguestfed9d3
 
Basic Principles In Palliative Care For Ca Pt
Basic Principles In Palliative Care For Ca PtBasic Principles In Palliative Care For Ca Pt
Basic Principles In Palliative Care For Ca PtAl-Sadeel Society
 
Role of a nurse in palliative care
Role of a nurse in palliative careRole of a nurse in palliative care
Role of a nurse in palliative carenetworknursing
 
The Nursing Role In Palliative Care
The Nursing Role In Palliative CareThe Nursing Role In Palliative Care
The Nursing Role In Palliative CareAl-Sadeel Society
 
Palliative Care Advance Care Planning A Collaborative Approach
Palliative Care Advance Care Planning A Collaborative ApproachPalliative Care Advance Care Planning A Collaborative Approach
Palliative Care Advance Care Planning A Collaborative ApproachSheldon Lewin
 
Performance Management presentation
Performance Management presentationPerformance Management presentation
Performance Management presentationLaurie Armstrong
 

Viewers also liked (18)

Collaborative Examination Item Review Process in a Team-Taught Course
Collaborative Examination Item Review Process in a Team-Taught CourseCollaborative Examination Item Review Process in a Team-Taught Course
Collaborative Examination Item Review Process in a Team-Taught Course
 
Heart failure resources
Heart failure resourcesHeart failure resources
Heart failure resources
 
Chapter 11
Chapter 11Chapter 11
Chapter 11
 
Comprehensive approach to managing heart Failure Patient
Comprehensive approach to managing heart Failure PatientComprehensive approach to managing heart Failure Patient
Comprehensive approach to managing heart Failure Patient
 
Topic palliative care ณัฐวุธ 13 ก.ค. 54
Topic palliative care  ณัฐวุธ 13 ก.ค. 54Topic palliative care  ณัฐวุธ 13 ก.ค. 54
Topic palliative care ณัฐวุธ 13 ก.ค. 54
 
Handoutการดูแลผู้ป่วยระยะสุดท้าย25ม.ค.53
Handoutการดูแลผู้ป่วยระยะสุดท้าย25ม.ค.53Handoutการดูแลผู้ป่วยระยะสุดท้าย25ม.ค.53
Handoutการดูแลผู้ป่วยระยะสุดท้าย25ม.ค.53
 
Chpn hpna review week 3
Chpn hpna review week 3Chpn hpna review week 3
Chpn hpna review week 3
 
Palliative care, ระบบการดูแลผู้ป่วยระยะท้ายควนเนียง
Palliative care, ระบบการดูแลผู้ป่วยระยะท้ายควนเนียงPalliative care, ระบบการดูแลผู้ป่วยระยะท้ายควนเนียง
Palliative care, ระบบการดูแลผู้ป่วยระยะท้ายควนเนียง
 
Palliative Symptom Management
Palliative Symptom ManagementPalliative Symptom Management
Palliative Symptom Management
 
4. illness behavior and perceptions of illness
4. illness behavior and perceptions of illness4. illness behavior and perceptions of illness
4. illness behavior and perceptions of illness
 
Nursing role in pain management
Nursing role in pain managementNursing role in pain management
Nursing role in pain management
 
Palliative Care คู่มือ การดูแลผู้ป่วยระยะสุดท้ายแบบประคับประคอง
Palliative Care คู่มือ การดูแลผู้ป่วยระยะสุดท้ายแบบประคับประคอง Palliative Care คู่มือ การดูแลผู้ป่วยระยะสุดท้ายแบบประคับประคอง
Palliative Care คู่มือ การดูแลผู้ป่วยระยะสุดท้ายแบบประคับประคอง
 
Palliative Care Presentation
Palliative Care PresentationPalliative Care Presentation
Palliative Care Presentation
 
Basic Principles In Palliative Care For Ca Pt
Basic Principles In Palliative Care For Ca PtBasic Principles In Palliative Care For Ca Pt
Basic Principles In Palliative Care For Ca Pt
 
Role of a nurse in palliative care
Role of a nurse in palliative careRole of a nurse in palliative care
Role of a nurse in palliative care
 
The Nursing Role In Palliative Care
The Nursing Role In Palliative CareThe Nursing Role In Palliative Care
The Nursing Role In Palliative Care
 
Palliative Care Advance Care Planning A Collaborative Approach
Palliative Care Advance Care Planning A Collaborative ApproachPalliative Care Advance Care Planning A Collaborative Approach
Palliative Care Advance Care Planning A Collaborative Approach
 
Performance Management presentation
Performance Management presentationPerformance Management presentation
Performance Management presentation
 

Similar to Self-Care Management in the Presence of Unpleasant Symptoms

Defining and measuring fatigue
Defining and measuring fatigueDefining and measuring fatigue
Defining and measuring fatigueChiaying Li
 
面對癌症病人之心理與靈性需求 蕭妃秀
面對癌症病人之心理與靈性需求 蕭妃秀面對癌症病人之心理與靈性需求 蕭妃秀
面對癌症病人之心理與靈性需求 蕭妃秀Kit Leong
 
History taking and examination in Palliative care
History taking and examination in Palliative careHistory taking and examination in Palliative care
History taking and examination in Palliative careruparnakhurana
 
Mood, Movement and Memory 2013
Mood, Movement and Memory 2013Mood, Movement and Memory 2013
Mood, Movement and Memory 2013EsserHealth
 
Behavioral and Psychological Symptoms of Dementia: Assessment and Non-Pharmac...
Behavioral and Psychological Symptoms of Dementia: Assessment and Non-Pharmac...Behavioral and Psychological Symptoms of Dementia: Assessment and Non-Pharmac...
Behavioral and Psychological Symptoms of Dementia: Assessment and Non-Pharmac...Ravi Soni
 
Psych 200 Health Psychology
Psych 200   Health PsychologyPsych 200   Health Psychology
Psych 200 Health PsychologyDon Thompson
 
Diagnosis and Treatment of Psychosomatic Disorder (Educational Slides)
Diagnosis and Treatment of Psychosomatic Disorder (Educational Slides)Diagnosis and Treatment of Psychosomatic Disorder (Educational Slides)
Diagnosis and Treatment of Psychosomatic Disorder (Educational Slides)Andri Andri
 
133835244 disease-causation
133835244 disease-causation133835244 disease-causation
133835244 disease-causationAmrinder Singh
 
iCAAD London 2019 - Dr James Stallard - THE REVOLVING DOOR - PSYCHIATRY IN T...
 iCAAD London 2019 - Dr James Stallard - THE REVOLVING DOOR - PSYCHIATRY IN T... iCAAD London 2019 - Dr James Stallard - THE REVOLVING DOOR - PSYCHIATRY IN T...
iCAAD London 2019 - Dr James Stallard - THE REVOLVING DOOR - PSYCHIATRY IN T...iCAADEvents
 
Parkinson’s disease
Parkinson’s diseaseParkinson’s disease
Parkinson’s diseaseshayiamk
 
Dr Nicassio Presents "Coping with Lupus" at Lupus LA's Annual Patient Educat...
Dr  Nicassio Presents "Coping with Lupus" at Lupus LA's Annual Patient Educat...Dr  Nicassio Presents "Coping with Lupus" at Lupus LA's Annual Patient Educat...
Dr Nicassio Presents "Coping with Lupus" at Lupus LA's Annual Patient Educat...LupusNY
 
Clinical strategies in the management of Alcohol Use Disorders. Lundbeck Inst...
Clinical strategies in the management of Alcohol Use Disorders. Lundbeck Inst...Clinical strategies in the management of Alcohol Use Disorders. Lundbeck Inst...
Clinical strategies in the management of Alcohol Use Disorders. Lundbeck Inst...Antoni Gual
 
Psychiatry and palliative care medicine
Psychiatry and palliative care medicinePsychiatry and palliative care medicine
Psychiatry and palliative care medicineSaleh Uddin
 
Non-pharmacological interventions in dementia
Non-pharmacological interventionsin dementiaNon-pharmacological interventionsin dementia
Non-pharmacological interventions in dementia kkapil85
 

Similar to Self-Care Management in the Presence of Unpleasant Symptoms (20)

Defining and measuring fatigue
Defining and measuring fatigueDefining and measuring fatigue
Defining and measuring fatigue
 
面對癌症病人之心理與靈性需求 蕭妃秀
面對癌症病人之心理與靈性需求 蕭妃秀面對癌症病人之心理與靈性需求 蕭妃秀
面對癌症病人之心理與靈性需求 蕭妃秀
 
CSD inservice
CSD inserviceCSD inservice
CSD inservice
 
History Taking .pdf
History Taking .pdfHistory Taking .pdf
History Taking .pdf
 
History taking and examination in Palliative care
History taking and examination in Palliative careHistory taking and examination in Palliative care
History taking and examination in Palliative care
 
Mood, Movement and Memory 2013
Mood, Movement and Memory 2013Mood, Movement and Memory 2013
Mood, Movement and Memory 2013
 
Behavioral and Psychological Symptoms of Dementia: Assessment and Non-Pharmac...
Behavioral and Psychological Symptoms of Dementia: Assessment and Non-Pharmac...Behavioral and Psychological Symptoms of Dementia: Assessment and Non-Pharmac...
Behavioral and Psychological Symptoms of Dementia: Assessment and Non-Pharmac...
 
Psych 200 Health Psychology
Psych 200   Health PsychologyPsych 200   Health Psychology
Psych 200 Health Psychology
 
Geriatric rehab
Geriatric rehabGeriatric rehab
Geriatric rehab
 
Severe Asthma Psychology Service
Severe Asthma Psychology Service Severe Asthma Psychology Service
Severe Asthma Psychology Service
 
Diagnosis and Treatment of Psychosomatic Disorder (Educational Slides)
Diagnosis and Treatment of Psychosomatic Disorder (Educational Slides)Diagnosis and Treatment of Psychosomatic Disorder (Educational Slides)
Diagnosis and Treatment of Psychosomatic Disorder (Educational Slides)
 
133835244 disease-causation
133835244 disease-causation133835244 disease-causation
133835244 disease-causation
 
iCAAD London 2019 - Dr James Stallard - THE REVOLVING DOOR - PSYCHIATRY IN T...
 iCAAD London 2019 - Dr James Stallard - THE REVOLVING DOOR - PSYCHIATRY IN T... iCAAD London 2019 - Dr James Stallard - THE REVOLVING DOOR - PSYCHIATRY IN T...
iCAAD London 2019 - Dr James Stallard - THE REVOLVING DOOR - PSYCHIATRY IN T...
 
Parkinson’s disease
Parkinson’s diseaseParkinson’s disease
Parkinson’s disease
 
Dr Nicassio Presents "Coping with Lupus" at Lupus LA's Annual Patient Educat...
Dr  Nicassio Presents "Coping with Lupus" at Lupus LA's Annual Patient Educat...Dr  Nicassio Presents "Coping with Lupus" at Lupus LA's Annual Patient Educat...
Dr Nicassio Presents "Coping with Lupus" at Lupus LA's Annual Patient Educat...
 
Heart failure ppt
Heart failure pptHeart failure ppt
Heart failure ppt
 
Clinical strategies in the management of Alcohol Use Disorders. Lundbeck Inst...
Clinical strategies in the management of Alcohol Use Disorders. Lundbeck Inst...Clinical strategies in the management of Alcohol Use Disorders. Lundbeck Inst...
Clinical strategies in the management of Alcohol Use Disorders. Lundbeck Inst...
 
Depression
DepressionDepression
Depression
 
Psychiatry and palliative care medicine
Psychiatry and palliative care medicinePsychiatry and palliative care medicine
Psychiatry and palliative care medicine
 
Non-pharmacological interventions in dementia
Non-pharmacological interventionsin dementiaNon-pharmacological interventionsin dementia
Non-pharmacological interventions in dementia
 

Self-Care Management in the Presence of Unpleasant Symptoms

  • 1. Theoretical Foundations for Research: Fatigue in Congestive Heart Failure Implications for Chronic Disease Management Walden University Constance Schumacher RN BScN MSN
  • 2. Phenomenon: Fatigue in Congestive Heart Failure • Fatigue is a common symptom of Congestive Heart Failure (Heart and Stroke Foundation of Ontario, 2010). Concept Descriptors • Overwhelming, sustained sense of exhaustion • Persistent tiredness • Decreased capacity for physical and mental work • Increased dependency (North American Nursing Diagnosis Association, 2004; Trendall, 2000; Yang & Wu, 2005) Fatigue Mental Work (Cognition) Decision Making
  • 3. The Middle-RangeTheory of Unpleasant SymptomsLenz, Pugh, Milligan, Gift, & Suppe (1997) Physiologic Factors (systems, pathologic problems, energy substrate) • Congestive Heart Failure • Fatigue • Shortness of Breath • Edema Psychologic Factors (mental, reaction to illness) • Depression • Anxiety • Increased dependence for personal support • Lives in Community Situational Factors (life style, personal experience) • Recent Hospitalization • Previous CHF exacerbation • Received CHF management education Performance Functional Status: Role Cognitive Functioning: Problem Solving Physical Performance: Activity Level
  • 4. Self-Care in Congestive Heart Failure • Self-Care is comprised of self-care maintenance, self-care monitoring, and self- care management (Riegel, Jaarsma, & Stromberg, 2012). Self-Care Management Descriptors • Recognition of alteration in health status, reflection, insight, decision making, and deliberate actions to promote a healthy state(Harkness et al., 2014; Orem, 2001; Riegel et al., 2012). Recognition Reflect/Insight Decision Making Action
  • 5. A Middle-RangeTheory of Self-Care of Chronic Illness: Congestive Heart Failure Adapted from A Middle-Range Theory of Self-Care of Chronic Illness. Riegel, Jaarsma, & Stromberg (2012) •Medications as prescribed •Attend regular medical appointments •Healthy diet •Exercise Self- Care Maintenance •Daily weights •Monitor fluid intake •Monitor sodium intake •Monitor edema •Monitor for changes in symptoms (breathing) Self-Care Monitoring •Recognition of change in symptoms •Evaluate change in symptom/ Decision making/Insight •Action/ Help seeking behaviors Self-Care Management
  • 6. • Negative Outcomes: Performance •Physical: Activities of Daily Living (ADL) •Role: Instrumental Activities of Daily Living (IADL) •Cognitive: concentration, problem solving •Mood: depression, anxiety •Cognitive Functioning - •Recognition of change in symptoms •Evaluate change in symptom/ Decision making/Insight •Action/ Help seeking behaviors •Role Performance (IADL) - •Cognitive Functioning - •Daily weights •Monitor fluid intake •Monitor sodium intake •Monitor edema •Monitor for changes in symptoms (breathing) •Adherence Decreased •Role Performance (IADL) - •Medications as prescribed •Attend regular medical appointments •Healthy diet • Physical Activity Level (ADL) - •Exercise •Adherence Decreased Self-Care Maintenance Self-Care Monitoring Introduction of Unpleasant Symptom (fatigue) Self-Care Management Self-Care Management in the Presence of Unpleasant Symptoms Adapted from Middle-Range Theory of Self-Care of Chronic Illness and Middle-Range Theory of Unpleasant Symptoms. Riegel, Jaarsma, & Stromberg (2012); Lenz, Pugh, Milligan, Gift, & Suppe (1997) Constance Schumacher
  • 7. References Harkness, K., Heckman, G. A., Akhtar-Danesh, N., Demers, C., Gunn, E., & McKelvie, R. S. (2014). Cognitive function and self-care management in older patients with heart failure. European Journal of Cardiovascular Nursing, 13(3), 277-284. Heart and Stroke Foundation of Ontario. (2010). End of Life Planning and Care for Heart Failure Patients. Retrieved from www.heartandstroke.on.ca/.../END%20OF%20LIFE%20PLANNING%2... Lenz, E., Pugh, L., Milligan, R., Gift, A., & Suppe, F. (1997).The middle-range theory of unpleasant symptoms: An update. Advances in Nursing Science, 19(3), 14-27. North American Nursing Diagnosis Association. (2004). Nursing diagnosis: Definitions and classification, 2003-2004. Philadelphia, PA: NANDA. Orem, D. (2001). Nursing concepts of practice (6th Ed.). St. Louis: Mosby. Riegel, B., Jaarsma,T., & Stromberg, A. (2012). A middle-range theory of self-care of chronic illness. Advances in Nursing Science, 35(3), 194-204. Trendall, J. (2000). Concept analysis: Chronic fatigue. Journal of Advanced Nursing, 32(5), 1126-1131. Yang, C., &Wu, C. (2005).The situational fatigue scale: A different approach to measuring fatigue. Quality of Life Research, 14, 1357- 1362. doi: 10.1007/s11136-004-5680-0

Editor's Notes

  1. Fatigue from three dimensions – Physiological, Psychological, and Situational Impacting performance – Relational statements mirrored in the tasks of self-care stages.
  2. Relational statements : Reflection/Insight related to relational statements in the theory of unpleasant symptoms (Cognition/ Problem Solving)
  3. Self-care as a complex cyclic process of tasks.
  4. Implications : Practice; The model breaks down the process of self-care when influenced by unpleasant symptoms, this helps to identify areas that are critical for successful management skills. If the cognitive component of recognition, decision making is not optimized the patient will not initiate the help seeking behaviors required to halt/minimize an impending exacerbation. Are recall and teach-back methods of evaluating health literacy accurate reflections of whether the patient has acquired insight and adopted the behavior skill of help seeking? Do patients that experience fatigue require decision making support measures to decrease exacerbations (telemedicine, nurse monitoring). Theory: Towards a theory of adherence in chronic illness.