Living Kidney Project - 4/15/2015
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Rotary Club of Sylva, Living Kidney Project
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Living Kidney Project - 4/15/2015
- 1. Lyn Ellen Burkett Presentation to Sylva Rotary Club The Need for Living Kidney Donors
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- 4. Goals for Today • Introduce you to the Living Kidney Donors Network • Overview the Living Kidney Donation Process • Provide Information on How One Kidney Donor Can Save Many Lives 4
- 5. Transplant Waiting List • ALL Organs - 123,000+ people • Kidneys – 102,000+ people • Kidney Dialysis Patients – 400,000+ 5
- 6. Kidney Transplant Statistics • 17,107 Kidney Transplants in 2014 –11,570 Deceased Donors Transplants –5,537 Living Donor Transplants • Wait for a deceased donor kidney - 5-10 years 6
- 7. Transplant Waiting List - All Organs 1993-2013 ( 20 Years) 7 20000 40000 60000 80000 100000 1992 1997 2002 2007 2012 Year WaitingList Transplants Source: United Network for Organ Sharing. Waiting list and transplants for all transplant organs. 1992-2012 The Growing Shortage
- 8. Benefits: Living vs. Deceased Donation • Short & Long Term Survival Rates • New Organ Functions Immediately • Cost of Kidney Dialysis • Virtually an Unlimited Supply of Living Donors 8
- 9. 9 10.5 14.2 17.8 28.0 0 10 20 30 Donors 0-5 Antigen Match Donors 6 Antigen Match Living Donors 0-5 Antigen Match Living Donors 6 Antigen Match Years Deceased Donors Living Donors Kidney Transplants The point in time when exactly 50% of kidneys are still functioning Transplanted Kidneys Expected Lifespan
- 10. Donors Procedure • Major Surgery • Laparoscopic Procedure • Living with One Kidney… • Donor Medical Advocate 10
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- 12. What about Matching? Isn’t it difficult to find a Match? –New Drugs –Incompatible donors 12
- 13. 13 Living Kidney Transplant Options • < • Paired Exchanges
- 14. 14 Paired Exchange Donor 1 Recipient 2Recipient 1 Donor 2 [Not Compatible] [Not Compatible]
- 15. 15 Living Kidney Transplant Options • < • Non Directed Donation – Domino Paired Exchange
- 16. 16 Domino Paired Exchange Donor 1 Recipient 2Recipient 1 Donor 2 Not Compatible Not Compatible With Recipient #1 or #2 Altruistic Donor Recipient 3 Not Compatible From Waiting List
- 17. 17 Living Kidney Transplant Options • < • Non Directed Donation – Domino Paired Exchange – Never Ending or Ongoing Donor Chains
- 18. 18 Never Ending or Ongoing Donor Chains Donor 1 Recipient 2Recipient 1 Donor 2 Not Compatible Non-Directed Donor Next Transplant Bridge Donor Donor‘s Organ Not Used
- 19. Non Directed Donors – Saving Lives Each NDD resulted in 5 kidney transplants 19
- 20. Having Knowledge Knowledge is Power… Power to Educate, Promote Change and Save Lives 20
- 21. Status Quo is NOT Working • Current Deceased Donor Registration Programs • Offer Compensation to Donors • Presumed Consent 21
- 22. How to Increase the # of Transplants Need to Educate the Public about Living and Non - Directed Donation 22
- 23. Recap • You might be able to help someone in need • Paired Exchanges have great potential • Non-Directed Donors – A game changer? 23
- 25. 25 Harvey Mysel Living Kidney Donors Network a Nonprofit 501(c)3 Organization 312-473-3772 www.LKDN.org http://lkdnblog.blogspot.com www.twitter.com/harveymysel harvey@LKDN.org Lyn Ellen Burkett Cullowhee, NC leburkett@wcu.edu
Editor's Notes
- Thank the person and the organization for the invitation to speak. Provide the audience with a brief background and the reason why you are making this presentation. Ask the audience to raise their hand if they are aware of the program to register to be an organ donor in the event of their untimely death. Acknowledge that most people raised their hands and how successful and important this program is. Mention that even if all the deceased donor organs were used, it still would not be enough to keep up with the current need. If you are handing out information on how to register to be an organ and tissue donor reference where the information is available.
- The primary Mission of the LKDN is to help those who need a kidney transplant understand the living kidney donation options….and prepare them to be successful at finding a living kidney donor. LKDN has helped hundreds of donors a recipients through the transplant process.
- Of the people on the kidney transplant waiting list over 4,700 die each year. 15 – 20 % of the people on dialysis die each year and over 100,000 new people start dialysis each year.
- We are at the lowest level of living kidney transplants since 2000. # of Living Kidney Transplants have gone down in 8 of last 10 years # of Deceased Donor Transplant have gone down in 4 or the last 10 years. Since 2000 the number of deceased donor transplants has gone up by only 25%. Say only because millions of dollars are being spent promoting deceased donation Individual wait times for a deceased donor kidney varies by location and each person’s medical condition.
- (THIS GRAPH WILL BE UPDATED) This shows All Organ Transplants 85% kidney of the people waiting for an organ transplant are waiting for a kidney. Waiting list continues to increase while the number of transplants has been flat.
- A Kidney from a living donor lasts on average twice as long as one from a deceased donor. The kidney doesn’t start working in about 25% of the deceased donor transplants, called a “sleepy kidney.” It almost never happens with a living donor kidney. It is estimated that there is a present value savings of between $250,000 and $1 million for each person who is on kidney dialysis that receives a kidney transplant, let alone the quality of life is much better after a transplant.
- Confirms that a kidney from a living donor lasts on average twice as long as one from a deceased donor.
- There’s a balance to discussing donor risks. On one hand, studies have shown that living donors can expect to live a normal life without any long term consequences, but there are definitely risks to donating, so you’ll read information about these risks. The purpose of pointing the risks is not to scare off potential donors but to point out that there are real risks to the donation procedure and future risks too. A fact that is not very well known is that 1 in 750 people are born with one kidney……life expectancy for someone born with one kidney is the same as someone born with 2. The independent donor advocate serves as a resource for the potential living donor and represents his/her interests in donor evaluation, separate from the medical decisions related to the potential transplant recipient.
- New drugs make matching much easier If a donor is not compatible with their intended recipient, they could get involved in a paired exchanges.
- A recipient and donor enter into a paired exchange if the donor is not compatible with their intended recipient.
- Using an example of 2 recipients benefiting, there could be more. There was a 30 paired exchange.
- A non-directed donor (NDD) is someone who wants to donate but doesn’t know someone in need. There are two different options available for a paired exchange with a NDD.
- Recipient 3 is from the WAITING LIST!!! Sometimes referred to as a closed exchange. The 30 paired exchange that I referenced was started with a NDD.
- A Never Ending or Ongoing Donor chain is when they don’t take someone from the waiting list as I described with a Domino Paired Exchange.
- There isn’t a 3rd recipient from the waiting list so there’s an extra donor. Donor 2 starts another paired exchange/chain and there’s a extra donor in that paired exchange too. These chains could continue indefinitely. The next chain could have more pairs.
- A study from 2012 showed that one NDD on average resulted in 5 kidney transplants.
- There aren’t enough deceased donor kidneys to keep up with the demand. Compensating donors, either deceased or living is very controversial. Those who are against it often use the term “repugnant.” It’s a very emotional issue. (Will provide you with info about presumed consent and why it alone is not effective.) Presumed consent benefits a nation and is more likely to be accepted in a country that has more socialistic programs. In the U.S. we are more concerned about individual rights.
- After you finish with this slide, ask, Please raise you hand if you learned something significant about living donation today. Education about living donation can be very powerful.
- Before I open up to questions, if anyone is visiting from another club and thinks their club would benefit form hearing this information I’d welcome talking before you leave or provide me with your business card and I’ll follow up with you another time.
- You could add your name and contact info.