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U.S. Citizens are Dying 
Needlessly Due to Our 
Organ Shortage 
We seem unwilling to admit that our 
existing strategies cannot resolve the 
organ transplant shortage gap
Why Should We Care? 
 1 in 3 American adults are currently at risk for 
developing kidney disease. The risk increases to 1 in 2 
over the course of a lifetime. 
 An estimated 31 million people (10% of U.S. 
population) have chronic kidney disease (CKD). 
 Kidney disease is the 8th leading cause of death in the 
United States…killing over 90,000 Americans every 
year – more than breast and prostate cancer combined. 
 Every day 14 - 30 people die waiting for a kidney. 
Primary Source: American Kidney Fund … http://www.kidneyfund.org/about-us/assets/pdfs/akf-kidneydiseasestatistics-2012.pdf
So What Does This Mean … 
 End stage renal disease (ESRD) is the last stage of CKD and is the time 
when dialysis or transplant is needed to stay alive. 
 There are 120,000 Americans currently on the waiting list for a lifesaving 
organ transplant, more than 100,000 need a kidney (84%) but fewer than 
17,000 people receive one each year. 
 Approximately 430,000 Americans are currently on dialysis. Without a 
transplant, they have an average life expectancy of about five years. The 
longer they are on dialysis…the less likely a subsequent transplant will be 
successful. 
 Approximately 185,000 lucky individuals are alive today thanks to 
receiving a functioning kidney transplant.
People are DYING for a Solution 
90,000 per year 
246 per day 
10+ per hour 
1 every 6 min
How long do we have to wait?
106,566 Candidates On Kidney Wait List – 
2013 Outcomes…
A Transplant is Your Best Option
Kidney Transplant Facts 
 16,894 Kidney 
Transplants in 2013 
 34% Living Donor 
 66% Deceased Donor 
 Kidney Transplant Wait 
List – 106,566 
 Current supply of kidney 
organs only serve less 
than 16% of wait list 
demand! 
2013 Kidney Donor 
Transplants 
11,161 
5,733 
Living Donor 
Deceased Donor
Living Kidney Donor Facts… 
 Living Donors 
 5,733 kidneys 
 83% donations from 
family/spouse/friend 
 60% Male/40% 
Female 
 50% Age 50 & up 
 Living donor trend 
has declined over 
last 8 years even 
though some states 
offer tax 
credits/deductions 
or leave of absence 
Current Reimbursement Practices Have 
NOT Been Effective In Soliciting More 
Live Transplant Organ Donors 
8000 
7000 
6000 
5000 
4000 
3000 
2000 
1000 
0 
2006 2007 2008 2009 2010 2011 2012 2013 
Live Transplant Donors 
Total Living Donors (50) Leave of Absence Only (27) Tax Credit/Deduction (17) 
Both Leave/Tax C-D (13) Neither Reimbursement (19)
Deceased Kidney Donor Facts 
 Deceased Donors 
 11,161 kidneys from 
7,546 actual donors 
 1.48 kidney per 
donor 
 Over 100 Million 
citizens registered as 
organ donor 
candidates 
 Of 2.5 million who 
died in 2013…less 
than 1% became an 
actual deceased 
organ donor!
If We Sign Up EVERY ADULT in the USA 
to be a Deceased Donor Someday… 
 Total U.S. Population = 316,128,839 
 Adult Population = 240,257,918 
 Current Registry Sign Ups = 100,000,000+ 
(now 41.6% of all U.S. Adults) 
 100% Sign Ups = 2.4 Times Current rate 
 Current Deceased Transplants = 11,161 
 100% Sign Up Level = 26,786 Transplants 
We would STILL only satisfy 25% of our CURRENT 
Demand with Kidneys from Deceased Donors!
It’s Mathematically Impossible… 
HARVESTING KIDNEYS from LESS THAN 
1% of people who die each year 
is a losing proposition … 
100,253 on Kidney Wait List (as of 4/25/2014) 
 2013 Wait List Additions – 36,397 
 2013 Wait List Removals – 29,647* 
*7,422 either died or were too sick for transplant
We Need to Face Reality … 
Our current approach is simply inadequate to meet 
our current and future organ transplant needs
We Have Great Medical Staffs … 
 235+ U.S. Hospitals perform Kidney transplants 
 Kidney transplant is one of the most cost-effective 
surgery interventions available 
 Primary Medicare Cost for transplant through 
one year post-transplant is comparable to one 
year cost of dialysis 
 Our hospitals are operating UNDER capacity… 
they need MORE organ donors!
No Shortage of Valuable Resources
The Solution… 
 Emphasis only on Deceased Donor Registrations 
will NEVER be adequate to meet demand 
 Need MORE emphasis on Living Organ Donors 
as these transplants are MORE successful and 
LONGER LASTING than Deceased Donor 
transplants 
 Dialysis Medicare Costs are Higher than 
Transplant Costs over the life of the patient 
 Living Donor Transplants are the BEST option 
to fill the kidney organ shortage gap!
Recommendations 
 Modify existing 1984 law to make it affordable for Living 
Donors to donate a kidney 
 Resolve the gap between deceased donor candidate 
sign-ups and actual deceased organ transplant donors 
 Better integration of Hospital/Hospice/Funeral Home/Family 
to comply with deceased’s commitment to become an organ 
donor 
 Formal documentation of reason(s) organs not harvested 
for any designated deceased donor 
 Educate General Public/Hospitals/Medical Staff on NEED 
for Encouraging Organ Transplant Participation
Let’s Declare War on Kidney Disease! 
Years Major War U.S. Deaths 
1917 - 1918 World War I 116,516 
1941 - 1945 World War II 405,399 
1950 - 1953 Korean War 36,516 
1955 - 1975 Vietnam War 58,209 
2001 - Present Iraq / Afghanistan 6,717 
623,357 
3 Times Higher than all U.S. War Deaths in last 100 years! 
1980 - Present War on Kidney Disease 1,900,992
Start Now by Signing this Petition 
PLEASE sign this petition to explore ways 
that we can compensate eligible living donors 
to save lives and help curb 
our “out-of-control” healthcare costs. 
Click Here to Sign Petition 
Thanks for taking this first step in helping someone 
with Kidney Disease…please share this petition 
request with others and consider becoming a donor!
Will You Help??? 
 Thus far … we have all failed to resolve this 
serious organ transplant shortage gap. 
 Far worst … there is a solution in our grasp that 
would SAVE lives today by making living organ 
transplant donations more affordable for everyone. 
 Help get this message out … otherwise, 90,000 
more will continue to die each year without our 
intervention. 
Thanks for your consideration!

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Kidney Organ Shortage in America is Preventable

  • 1. U.S. Citizens are Dying Needlessly Due to Our Organ Shortage We seem unwilling to admit that our existing strategies cannot resolve the organ transplant shortage gap
  • 2. Why Should We Care?  1 in 3 American adults are currently at risk for developing kidney disease. The risk increases to 1 in 2 over the course of a lifetime.  An estimated 31 million people (10% of U.S. population) have chronic kidney disease (CKD).  Kidney disease is the 8th leading cause of death in the United States…killing over 90,000 Americans every year – more than breast and prostate cancer combined.  Every day 14 - 30 people die waiting for a kidney. Primary Source: American Kidney Fund … http://www.kidneyfund.org/about-us/assets/pdfs/akf-kidneydiseasestatistics-2012.pdf
  • 3. So What Does This Mean …  End stage renal disease (ESRD) is the last stage of CKD and is the time when dialysis or transplant is needed to stay alive.  There are 120,000 Americans currently on the waiting list for a lifesaving organ transplant, more than 100,000 need a kidney (84%) but fewer than 17,000 people receive one each year.  Approximately 430,000 Americans are currently on dialysis. Without a transplant, they have an average life expectancy of about five years. The longer they are on dialysis…the less likely a subsequent transplant will be successful.  Approximately 185,000 lucky individuals are alive today thanks to receiving a functioning kidney transplant.
  • 4. People are DYING for a Solution 90,000 per year 246 per day 10+ per hour 1 every 6 min
  • 5. How long do we have to wait?
  • 6. 106,566 Candidates On Kidney Wait List – 2013 Outcomes…
  • 7. A Transplant is Your Best Option
  • 8. Kidney Transplant Facts  16,894 Kidney Transplants in 2013  34% Living Donor  66% Deceased Donor  Kidney Transplant Wait List – 106,566  Current supply of kidney organs only serve less than 16% of wait list demand! 2013 Kidney Donor Transplants 11,161 5,733 Living Donor Deceased Donor
  • 9. Living Kidney Donor Facts…  Living Donors  5,733 kidneys  83% donations from family/spouse/friend  60% Male/40% Female  50% Age 50 & up  Living donor trend has declined over last 8 years even though some states offer tax credits/deductions or leave of absence Current Reimbursement Practices Have NOT Been Effective In Soliciting More Live Transplant Organ Donors 8000 7000 6000 5000 4000 3000 2000 1000 0 2006 2007 2008 2009 2010 2011 2012 2013 Live Transplant Donors Total Living Donors (50) Leave of Absence Only (27) Tax Credit/Deduction (17) Both Leave/Tax C-D (13) Neither Reimbursement (19)
  • 10. Deceased Kidney Donor Facts  Deceased Donors  11,161 kidneys from 7,546 actual donors  1.48 kidney per donor  Over 100 Million citizens registered as organ donor candidates  Of 2.5 million who died in 2013…less than 1% became an actual deceased organ donor!
  • 11. If We Sign Up EVERY ADULT in the USA to be a Deceased Donor Someday…  Total U.S. Population = 316,128,839  Adult Population = 240,257,918  Current Registry Sign Ups = 100,000,000+ (now 41.6% of all U.S. Adults)  100% Sign Ups = 2.4 Times Current rate  Current Deceased Transplants = 11,161  100% Sign Up Level = 26,786 Transplants We would STILL only satisfy 25% of our CURRENT Demand with Kidneys from Deceased Donors!
  • 12. It’s Mathematically Impossible… HARVESTING KIDNEYS from LESS THAN 1% of people who die each year is a losing proposition … 100,253 on Kidney Wait List (as of 4/25/2014)  2013 Wait List Additions – 36,397  2013 Wait List Removals – 29,647* *7,422 either died or were too sick for transplant
  • 13. We Need to Face Reality … Our current approach is simply inadequate to meet our current and future organ transplant needs
  • 14. We Have Great Medical Staffs …  235+ U.S. Hospitals perform Kidney transplants  Kidney transplant is one of the most cost-effective surgery interventions available  Primary Medicare Cost for transplant through one year post-transplant is comparable to one year cost of dialysis  Our hospitals are operating UNDER capacity… they need MORE organ donors!
  • 15. No Shortage of Valuable Resources
  • 16. The Solution…  Emphasis only on Deceased Donor Registrations will NEVER be adequate to meet demand  Need MORE emphasis on Living Organ Donors as these transplants are MORE successful and LONGER LASTING than Deceased Donor transplants  Dialysis Medicare Costs are Higher than Transplant Costs over the life of the patient  Living Donor Transplants are the BEST option to fill the kidney organ shortage gap!
  • 17. Recommendations  Modify existing 1984 law to make it affordable for Living Donors to donate a kidney  Resolve the gap between deceased donor candidate sign-ups and actual deceased organ transplant donors  Better integration of Hospital/Hospice/Funeral Home/Family to comply with deceased’s commitment to become an organ donor  Formal documentation of reason(s) organs not harvested for any designated deceased donor  Educate General Public/Hospitals/Medical Staff on NEED for Encouraging Organ Transplant Participation
  • 18. Let’s Declare War on Kidney Disease! Years Major War U.S. Deaths 1917 - 1918 World War I 116,516 1941 - 1945 World War II 405,399 1950 - 1953 Korean War 36,516 1955 - 1975 Vietnam War 58,209 2001 - Present Iraq / Afghanistan 6,717 623,357 3 Times Higher than all U.S. War Deaths in last 100 years! 1980 - Present War on Kidney Disease 1,900,992
  • 19. Start Now by Signing this Petition PLEASE sign this petition to explore ways that we can compensate eligible living donors to save lives and help curb our “out-of-control” healthcare costs. Click Here to Sign Petition Thanks for taking this first step in helping someone with Kidney Disease…please share this petition request with others and consider becoming a donor!
  • 20. Will You Help???  Thus far … we have all failed to resolve this serious organ transplant shortage gap.  Far worst … there is a solution in our grasp that would SAVE lives today by making living organ transplant donations more affordable for everyone.  Help get this message out … otherwise, 90,000 more will continue to die each year without our intervention. Thanks for your consideration!