3. Social Networks
• People
– Family
– Friends
– Neighbors
– Co-workers
– Religious groups
– Recreational groups
– Volunteer/ Charity groups
• Media
– Local Newspaper
– Community flyers
– Church bulletin
– Email groups
– Blogs
– Facebook
– Craigslist
– Personal website
4. Utilizing Social Networks
• Plan ahead
• Ask for help
• Approach group/ community leaders ahead of time
• Brainstorm the most appropriate way to approach
people (in-person, over the phone, via email, etc.)
• Plan what to say in advance
• Post bulletins or flyers that allow people to contact
you
• Give people contact information for our program and
for Johns Hopkins Transplant Center
6. Writing A Story
• Be honest
• Be direct
• USE DETAILS
– Your story
– Facts about live donation
• Include contact information
– Your contact information
– Johns Hopkins Donor Office Information
410-614-9345
7. Sample Language
Over 1300 people in Maryland are waiting for a kidney
transplant.
Our ________ (brother, sister, father, etc), ______ (Name here)
has been diagnosed with _______ and will need dialysis
….unless he receives a kidney transplant. The wait time for
_______ to receive a kidney transplant from a deceased donor
could be over 5 years. We are reaching out to our community to
explore opportunities for living kidney donation. Living kidney
donors are usually healthy people between the ages of 18-60
who are free from kidney disease, diabetes, cancer and heart
disease. Many people who choose to donate a kidney do so
because they want to help others. If you would like more
information about how you can help others through living kidney
donation, please contact us at _________________.
8. Writing a Story
• Please take 30 minutes and write your story
• Use sample language provided
9. Session #3:
Challenging Issues in Kidney
Transplantation
Johns Hopkins Comprehensive Transplant Center
Presented by: Elizabeth A. King, M.D.
10. Waitlist
• High Infectious Risk Donors
• HBV+ Donors
• Expanded Criteria/ KDPI
• Organ offers
11. Infectious Risk Donors
• Certain behaviors place individuals at higher risk for
HIV and HCV
• All donors are tested for HIV and HCV at the time of
organ recovery
• Test would not pick up infection acquired in past
– 7 days for HCV
– 9 days for HIV
12. Infectious Risk Donors
• Men who have sex with men (past 5 yrs)
• Injection drug use (past 5yrs)
• Hemophiliacs/ Blood clotting disorder
• Commercial sex workers
• High risk sex (past 12 months)
• HIV blood exposure (past 12 months)
• Incarcerated
13. Infectious Risk Donors
7-9 days
Donation
If acquired by donor here
test would be + and
organs would not be used
If acquired by donor here test may
be – despite HIV/ HCV infection
Time
14. Recommendation
• Say “YES”
• Organs can be very high quality
• Consider each offer on a case by case basis with
your provider
15. HBV Core +
• HBV Core + = Exposure to hepatitis in the past
• Active virus in the blood is rare
• Small Risk for HBV transmission to recipient
• Organs offered to candidates that have antibodies
against HBV
• Recipient is treated with anti-retrovirals until blood
tests for virus are negative
16. Extended Criteria Donors
• Standard criteria Donor
– Age < 60
– If age 50-59, no history of
the following
High blood pressure
Impaired kidney
function (Cr >1.5)
Death due to stroke or
aneurysm
• Extended Criteria Donor
– Age 60 or older
– Age 50-59 with history of
two or more of the
following
High blood pressure
Impaired kidney
function (Cr >1.5)
Death due to stroke or
aneurysm
17. KDPI
• Numerical measure of organ quality
• Percentile ranking from 1-100%
• Lower number = better quality organ
• Factors Considered
– Age
– Height
– Weight
– Ethnicity
– History of hypertension
– History of Diabetes
– Cause of Death
– Serum Creatinine
– HCV status
– Donation after cardiac death
19. Organ Offers
• More than one patient may be called for the same
organ
• Based on wait-time, final cross-match, and organ
quality the transplant team will make a decision on
who receives the organ
• Makes sure you can arrive at the hospital in a timely
fashion
• You may receive multiple calls before you actually
get a transplant
22. Delayed Graft Function
• Low urine output and need for dialysis within first
week after transplant
• Occurs in ~20% of kidney transplant recipients
• Donor and recipient risk factors
– Anything decreasing blood flow to the kidney
24. Homework
• Speak to at least 10 people
• What materials do you need?
• Contact us with questions
– 443-287-0134
– livedonorchampion@lists.johnshopkins.edu
25. Post Survey
• Take 10 minutes to fill out the survey
Next Meeting:
“Success Stories- Live Donor and Recipient Panel”
