Over the last 18 months, a group of organisations and Redbridge Council have worked together to establish a Disabled People's User-Led Organisation (DPULO) in the area. This report summarises a workshop where everyone came together to discuss establishing the DPULO.

1. NOTHING ABOUT US WITHOUT US
A WORKSHOP TO EXPLORE HOW WE CAN WORK
TOGETHER TO PUSH FOR CHANGE
PROMOTING INDEPENDENCE, INCLUSIVE LIVING
AND A CREDIBLE VOICE FOR EVERYONE
WHO USES SERVICES IN REDBRIDGE
AUGUST 2010

3. Table of Contents
Executive Summary
2
Jargon Buster
5
Introduction
7
Background
7
Purpose of the Workshop
7
The national policy context: Transforming Adult Social Care
7
Creating a User Led Organisation: What has happened so far?
10
The Purpose of the workshop
11
Workshop Summary
13
Key Recommendations from the Workshop:
13
The Guest Speakers
15
Question and Answer Session
16
Possible roles for the User Led Organisation
18
Appendix 1:
20
Organisations who attended
20
Appendix 2: Documents
21
Appendix 3: Equality, Diversity and Evaluation of Event
22
Appendix 4: Redbridge User Led Organisation Road Map
24
1

4. Executive Summary 4. Go out and meet people
Connect with individual organisations to
explain the User Led Organisation process
and the reasons for it. This should include
minority groups and groups supporting
The Vision
people with learning difficulties.
Promoting independence,
5. Language we use
inclusive living and a credible Other groups, carers, older people, minority
voice for everyone who uses organisations, must feel more involved in
services in Redbridge this process. For example, the term ‘user of
services’ might be misleading.
The Key Messages
Social care is an issue that can touch the
1. The Role of User Led Organisation. lives of every family whether we are carers,
The express wish of attendees was that the
old or young, disabled people, experiencing
User Led Organisation should have a
mental health conditions or from a black
prominent ‘engagement’ role in Redbridge.
and ethnic minority group. People who use
This is compatible with a brokerage type of
local services and their families want and
function.
expect choice, control, dignity, respect and
2. Tell people what the User Led equality to be at the heart of service
Organisation is doing provision. People also quite rightly insist on
The User Led Organisation should have its
the right type of support and care. All these
own website to publicise all decisions and
elements are essential to ensure that
activities.
everyone has the opportunity to make the
3. Involve more service users most of their chances in their life as well as
Greater involvement of users of services is to lead fulfilling, flourishing and purposeful
essential. This might be achieved via the lives.
Redbridge User Reference Group. Users of
The journey for the Redbridge community
services must have greater influence upon
started back in June 2009 when Adult
decisions made by the Steering Group.
Social Care and local grassroots
organisations in Redbridge agreed to
2

5. explore the potential of setting up a User
Led Organisation (ULO) in Redbridge. Over The Guest Speakers
the last year, the ULO Steering Group has
The first part of the day was given over to
talked to a wide range of people and
three main speakers. They were John
organisations culminating in the Workshop
Powell, the Director of Adult Social Services
at the end of April 2010: ‘Nothing about us
in Redbridge, Nick Danagher, a member of
without us’
Equality 2025, UK Government Network on
The event received wide support. 81 Disability Equality and Neil Nerva, part of the
people attended of which over half identified London Division of the Department of
themselves as users of local services. There Health. Each spoke about how important
were also representatives or users from over this development is and how committed
30 different organisations including: social they were to establishing a ULO & Centre
care; the NHS; independent; third sector for Independent Living in Redbridge it.
and service user organisations. A wide and Indeed, it should be remembered that
diverse range of people turned up including: without Transforming Adult Social Services
carers; older people; people with a learning funding to support this process from the
disability; people with mental health London Borough of Redbridge it is unlikely
conditions; physical and sensory we could have got to this point in the User
impairments; long term chronic conditions; Led Organisation’s development.
young and old and people from minority
communities. The Role of the User Led Organi-
sation
The Purpose of the workshop
The rest of the day was given over to the
The purpose was, first, to inform them of
Workshop participants. They were first
the progress that had been made in
asked for their opinions about the progress
Redbridge towards developing a User Led
so far. In the second part participants were
Organisation. Second, was to ask
asked to select the roles they wanted the
participants what roles a User Led
User Led Organisation to play in Redbridge.
Organisation should play in Redbridge.
Overwhelmingly, the participants wanted it
These objectives are in line with the
to be a “Campaigning organization” that
Transforming Adult Social Care initiative.
gives a louder voice to people that may not
From April 2011, “anybody who receives
be able to express their needs as individuals
social care support will have genuine choice
and a One-stop shop that could provide
and control over the services they receive
services including Brokerage
and the way they receive them.”
3

6. Strategic Direction
Having listened to the views of local people
we are now ready to take the next step
towards independence. This report
summarises our vision for the future based
on the findings from the workshops and the
discussion and debates we have had with
various stakeholders, local service users • Use and promote plain language
and policy makers over the last year. • Build on the work already provided
by the voluntary sector, to provide a
• It must be controlled and run by the unique service, across service user
people using its services and carer groups based on individual
• It must be a universal service that needs ;
anyone, experiencing barriers, serv- • Let people know what it is doing and
ice user or not, will be welcome to involve more seldom heard citizens
use using a range of methods including
• Empower people to have greater an internet website, easy read and
control over their lives, by helping translated material etc
them make meaningful choices • Promote greater inclusion, inde-
• give people a louder voice to influ- pendence and health and well being
ence decisions that affect their lives • Work with local organisations to as-
• take forward issues voiced by the sist with the delivery of local strategic
membership including those raised priorities.
at the workshops • It must meet its obligations and
• Provide advice, information and bro- commitments to funders
kerage support
User Led Organisation Steering Group Members
Age Concern Redbridge - London Borough of Redbridge - Redbridge Carers Support
Service - Redbridge Concern For Mental Health - Redbridge LINk - Redbridge Disability
Association - Redbridge Forum for People with a Learning Disability - Redbridge People
First - RUN-UP - The Daffodil Advocacy Project - RADAR (The Royal Association for
Disability Rights) - Refugee and Migrant Forum for East London - Redbridge Children &
Young People's Network
4

7. Jargon Buster Commissioning
The process by which local authorities
decide how to spend their money to get the
It is helpful to set out some definitions of
best possible services for local people.
words and phrases used in this report.
Direct payments
User Led Organisation
These are monthly payments given to
User-led organisations are those where the
service users as the means of controlling
people who the organisation represents or
their own care - allowing more choice and
provides a service to, have a majority on the
flexibility. They enable people to purchase
Management Committee or Board, and
their own care rather than use council
where there is clear accountability to
services.
members and / or service users.
Individual budgets
Brokerage
Individual budgets (IBs) give a clear
The scope of the Broker’s role includes
allocation of cash to an individual to control
helping people to identify the changes they
the way money is spent to meet his or her
want to make to their lives; find support
care needs. IBs can bring together a variety
services and community opportunities that
of income streams from different agencies
the person requires; negotiate with
as well as social care. People can use
providers and prepare community resources
individual budgets to 'buy' services from
as necessary; cost and write a support plan
public, private and voluntary sectors.
and identify and obtain funding.
Independent living
Centre for Independent Living
Means having choice and control over your
Centres of independent living are grass
life.
roots organisations run and controlled by
people who use local services. Their aims Inclusive living
are that people who use services should
Means being fully included in your
have control over their lives and achieve full
community.
participation in society. They work towards
these aims by representing peoples views Outcomes
both nationally and locally, and by providing
The end results or impact something has on
services which promote independent living.
a service user's life eg. Improved quality of
life
5

8. Personal budget replace the current care management
process over the next three years
This is an individual budget made up solely
of social care funding. Service users
Service user means people who need
Personalisation
support and / or equipment in order to go
The process by which state provided about their daily lives and who use services
services can be adapted to suit service that are provided as part of the welfare
users. This means everyone having choice state.
and control over the shape of their support
along with a greater emphasis on prevention User-led Groups
and early intervention.
Are groups run by and for the people they
Putting People First speak up for. The group is managed and
controlled by its members
The Government's shared vision and
commitment to the transformation of adult The social model of disability
social care
Says that the problem is not someone’s
ReSURG impairment, illness, frailty or learning
disability but instead, the problem is that
ReSURG is the Redbridge Service User
they don’t have the support, equipment or
Reference Group. It was set up to provide
housing they need and they don’t have
service user and carer input into the work
choice and control over their daily lives.
that Adult Social Services are doing to
Although the social model of disability was
develop more personalised social care. This
initially developed by people with physical
is a role that the ULO will carry out in the
impairments, it is just as relevant to people
future. However, as the ULO Steering Group
with a learning disability, older people, and
is busy setting up the new organisation, it
people with mental health support needs.
was decided to set up ReSURG as an
interim measure, with a plan for it to merge
with the ULO when the time is right.
Self-Directed Support
This is the name given to the change in the
way the whole social care system operates
to give service users the choice, control and
power over the support they receive. It will
6

9. Introduction
Background
This is a Report of the views and
conclusions of service users and Social Care, is to develop ways of ensuring
organisations that attended the ‘Nothing people can exercise choice and control over
about us without us’ Workshop on Tuesday their lives. To help give them a voice on
27th April 2010. This event was essential to service development through advocacy and
ensure that people locally learnt about what brokerage support linked to the
had happened so far. Also, it was important development of a User Led Organisations in
that people are involved in all future each region.
decisions about the role a User Led
The second reason for this Workshop was
Organisation would have in Redbridge.
to ask the participants what roles a User
Purpose of the Workshop Led Organisation in Redbridge should
There were two reasons why we asked have? The purpose of a User Led
people who use local services to attend this Organisation is to help the London Borough
Workshop. First, it was to inform them of of Redbridge meet its agenda for
the progress that had been made in Transforming Social Care (TASC) locally.
Redbridge in developing a User Led
The national policy context:
Organisation. One of the central
Transforming Adult Social Care
requirements identified by the Department
There has been a gathering policy
of Health Strategy “Putting People
First” (see Appendix 1); Transforming Adult momentum leading to local authority and
health service reform. A number of key
7

10. messages and themes have emerged in responsibilities) should have a user-led
particular that public sector services will organisation modelled on existing Centres
have to change the way they look after for Independent Living”[see appendix 2].
people. In particular by putting service users
Putting People First (December 2007) has
at the heart of the process; enabling them
an objective “Support for at least one local
to decide what care, support or service will
user led organisation and mainstream
meet their needs in the best way possible,
mechanisms to develop networks which
how it should be provided with an emphasis
ensure people using services and their
on supporting people to live independently
families have a collective voice, influencing
and to have choice and control over the
policy and provision”.[see appendix 2]
way they wish to live their lives
“A User Led Organisation is an organisation that is run and controlled by
people who use support services including people with physical and/or
sensory impairments, mental health service users, people with a learn-
ing difficulty, older people, and their families and carers.
Social Care Institute for excellence (2009)
”
In January 2005, in Improving the life The March 2009 Transforming Adult Social
chances of disabled people, the Care local authority circular (LAC) states that
Government set out an ambitious vision that a core component should be “An enabling
“By 2025, disabled people in Britain should framework to ensure people can exercise
have full opportunities and choices to choice and control with accessible
improve their quality of life and will be advocacy, peer support and brokerage
respected and included as equal members systems with strong links to user led
of society.”[1] Promoting independent living organisations. Where ULOs do not exist, a
and the active participation of disabled strategy to foster, stimulate and develop
people in the design, delivery and user led organisations locally.”[Appendix 2]
monitoring of resources and services are
The Local Authority intends to change the
recognised as being fundamental to the
way services are provided to adults in
process of improving their life chances.
Redbridge. From April 2011 “anybody who
Improving the life chances of disabled receives social care support will have
people also made the recommendation that genuine choice and control over the
“By 2010, each locality (defined as that area services they receive and the way they
covered by a Council with social services receive them. (see Appendix 1 for link)
8

11. There are four areas in which this will be • SOCIAL CAPITAL. This is key and
achieved. means engaging with people to show
them how they can influence the decisions
The four areas are:
that affect their lives. People who have
• UNIVERSAL SERVICES. This support needs, their carers and others
means creating general support and who find support difficult to access need
services available to everyone locally to be encouraged to be part of those
(universal services). These services discussions about community life.
including things like transport, leisure,
How The User Led Organisation
education, health, housing, community
safety and access to information and helps this
advice. A User-Led Organisation will play an
important role in transforming the way
• E A R LY INTERVENTION &
services are delivered. It will be a vehicle
PREVENTION SERVICES. This is
through which people can make their views
about the support available to assist
know. The User-Led Organisation will also
people who need a little more help, at an
deliver unique services that people want
early stage to stay independent for as long
and cannot be easily run by smaller
as possible. For example, support to
organizations. Finally, it will be the place
recover from the effects of illness or help
where advice and information can be easily
to manage a long- term condition from
found.
someone with experience of a similar
condition. It can even be job training, Redbridge began the process of creating a
gardening or exercise. local User Led Organisation in March 2009
with a Report to the Redbridge Health &
• CHOICE AND CONTROL. This
Social Care Advisory Committee (Appendix
about self-directed support. This means 1). Since then a number events have taken
having services available to meet people’s
place, which have lead to where we are
needs rather than people having to fit in today.
with the things on offer. People who need
support should be able to choose who
provides that support, and control when
and where the services are provided.
9

12. Creating a User Led Organisation:
What has happened so far?
DATE EVENT
April 2009 Public meeting about how TASC will inform the Commissioning Strategy
June 2009 Developing a User Led Organisation in Redbridge Workshop: This began
discussions with service users and existing user led organisations about
how to become a User Led Organisation – (see appendix 2 for doc).
September 2009 Workshop to Develop a model for User and Carer involvement. From this
Workshop the Redbridge User Reference Group was established
(ReSURG) – (see appendix 2 for doc).
October 2009 The Voluntary Sector produced their ‘ROAD MAP” to the establishment
of a ULO – (see appendix 1 for Road Map link)
November 2009 London Borough of Redbridge accepted the Report and Road Map as
the route to be taken to establish a ULO in Redbridge.
January 2010 First meeting of User Led Organisation Steering Group. This group is
charged with creating the User Led Organisation.
March 2010 ReSURG met and endorsed progress so far.
April 2010 Stakeholder Group met and chose structure of the User Led
Organisation.
10

13. The Purpose of the workshop
The Visual Journey
To aid the recording of the
event, a graphic artist (Ryan
Jones) was commissioned to
capture people’s views in a
graphical representation. Quite,
simply this provided a visual
representation of everything that
happened at the Workshop. This picture
The first aim of the workshop was to ask
participants for their views about the was in the form of a journey. This allowed
people to follow the proceedings visually,
progress made so far towards establishing a
User Led Organisation in Redbridge. The and enabled the artist to capture all the
presentations, the responses of the
second aim was to ask attendees to state
their preferred choice of role a User Led attendees, and feedback at the event.
Organisation might have in Redbridge. The Limitations
choices were set within Transforming Adult
Social Care Agenda. They also had an The scope of the Workshop was to provide
opportunity to raise any “burning issues” information about the progress of the User-
that they had and which would be recorded Led Organisation’s development and, more
and taken up at a later date. Finally, i m p o r t a n t l y, t o g i v e a t t e n d e e s t h e
evaluation forms were handed out at the opportunity to influence the next steps in its
end of the event to give participants the development. Its aim was also to encourage
opportunity to comment on the quality of greater involvement in this process. There
the Workshop and also to suggest ways in were no pre-meetings to better inform
which to improve communication and attendees. This did place some at a
subsequent involvement.. disadvantage. Nor did we distinguish
between employees of organisations and
service users when we asked for people’s
11

14. views. It is estimated that more than half of significantly influence what the User Led
those who attended were made up of Organisation will eventually do.
people who use services. Finally, attendees
Despite widespread publicity, it is likely that
were asked to choose the role they wished
many people were unaware of this event or
to see the User Led Organisation adopt in
could not attend. This Workshop is only one
Redbridge. They were reminded that the
small part of the engagement and
role of the User Led Organisation has yet to
involvement of users of services in
be determined. Their views would not be
Redbridge. There will be many subsequent
binding and the User Led Organisation
meetings and events, large and small, to
might do other things. However, their
maintain the momentum begun at this
opinions stated at this Workshop will
Workshop.
“
ULOs are local and driven by what their
users know works for them. With the
right level of resources they could be a
power-house for social change towards
full participation for all as equal citizens
because their voice is authentic.
Maynard-Campbell 2007
”
12

15. Workshop Summary
The workshop involved 81 participants. Local Authority Circular (March 2010 - see
These included service users and voluntary appendix 2 for reference) based on the
sector organisations. The purpose of the principles of “nothing about us without us”.
event was to, first, inform them of the
According to the Circular: “This is a phrase
progress that had been made in Redbridge
in developing a User Led Organisation. The widely used by those users and carers who
want to contribute to the transformation of
second was to ask the participants what
roles the User Led Organisation in services. At the heart of personalisation are
the principles of empowering customers to
Redbridge could potentially take on.
take more control over their lives, and to
Key Recommendations from the assist them in making choices as to how
Workshop: and when their care and support needs are
1. The Role of User Led met. It is expected that not only will all
Organisation service users understand what the changes
will mean for them but also that those who
The express wish of attendees was that the want to contribute to the development of
User Led Organisation should have a new services and new ideas can do so
prominent ‘engagement’ role in Redbridge alongside the local authority as partners in
and to act as a forum where users of local delivering the local transformation.”
services can voice their views and opinions
This is also clearly compatible with a
in effect to be a ‘coalition of voices’ .
brokerage type of function.
This clearly ties in with the transformation
programme set out by Department of Health
13

16. 2.
Tell people what the User
Led Organisation is doing 4. Go out and meet people
The User Led Organisation should have its
Meet with individual organisations to explain
own website to publicise all decisions and the User Led Organisation process and the
activities.
reasons for it. This should include minority
3. Involve more service users groups and groups supporting people with
learning difficulties and a learning disability.
Greater involvement of users of services is
essential. This might be done via the 5. Language we use
Redbridge User Reference Group. They Other groups, carers, older people, minority
must have greater influence upon decisions
organisations, must feel more involved in
made by the Steering Group. this process. For example, the term ‘user of
services’ might be misleading.
“
A lot of thought is going into forming a User Led Organisa-
tion which will co-ordinate many issues that other smaller
organisations either struggle or cannot cope with. In es-
sence to give a stronger voice to people with a disability
so they do not remain invisible.
”
14

17. be to the Local Authority in helping it deliver
better services in Redbridge.
The Guest Speakers
We would like to take this opportunity to
thank the London Borough of Redbridge for
John Powell, Director of Adult
the many thousands of pounds they have
Social Services committed to this Project.
John reminded us of the London Borough A special thanks, also, to John for finding
of Redbridge’s great commitment to choice the time to attend, despite being delayed
and control for all users of services. Also, abroad by the Icelandic Volcanic Ash!
how important a User-Led Organisation will
“
Supporting people to become active citizens would be part of providing in-
formation. There’s no point in just having information for information’s
sake. There are lots of elements on this list which could be put together.
”
N i c k D a n a g h e r, m e m b e r o f undertook at the June 2009 Workshop. Neil
Equality 2025, UK Government spoke of the hope to see more adventurous
services supported by Local Authorities. He,
Network on Disability Equality
also, recognised the difficulties that might
NICK DANAGHER was also a guest be faced when establishing a User Led
speaker. Nick reminded us of the historic Organisation. However, he applauded the
context of the struggle disabled people have ‘coalition’ model approach Redbridge has
had to gain control of their lives. The title chosen to ensure User Led Organisation
‘nothing about us, without us’ is representation. He saw it as accountable
symbolic of the purpose of a User Led and representative, both key to ensuring
Organisation. It is to empower disabled that the voices of users of services are
people and help them exercise choice and heard.
control over their lives.
We would like to thank all the speakers for
Neil Nerva, London Division of the taking the time to attend the Workshop.
Department of Health
Like John Powell, NEIL NERVA kindly
reprised his role as guest speaker, a role he
15

18. Question and families did not use information technology.
They would be penalised. The User Led
Answer Session Organisation should ensure all had equal
access to information.
This session followed a description of what
Some also felt the language used in the
had taken place over the last year in
workshop was far too complex and
developing the User-Led Organisation.
excluded many who attended. It was
People were invited to ask questions in
suggested that smaller meetings to explain
response to what they had heard. Below is
the issues more clearly would be very
a summary of the themes that came from
useful.
those questions.
Concerns raised about what a
Confusion about the ULO’s role
User Led Organisation would be
and how we can get involved
like
A large User Led Organisation that
Many people felt they or their organisation represented everybody would lose the
had not had an opportunity to get involved. ‘spontaneity’ of a smaller organisation.
It was suggested that those responsible There was little trust in a very conservative
should have smaller meetings with individual Local authority to be innovative with
groups to explain what had happened. services. Can we believe in all this ‘user
control’ rhetoric? The view was that there
The User Led Organisation could
was no outcome-based accountability when
be the interface between a union performance measures fail to be delivered.
of small organisations, users and “Whose measures do we accept? What
the local authority about the outcomes that the users have?”
It was felt that services and service user How it relates to us: Real Life
groups were very fragmented. That,
A few users gave examples of being bullied
participation of users and their organisation
and harassed by children or neighbours
were always after the decisions had been
because of their disability or beliefs. They
made. Users were merely asked to ‘rubber
wanted a User Led Organisation that
stamp’ decisions already made.
considered wider social issues to be
The ULO must be accessible to all important, not just social care issues.
There was a concern that key information They considered early intervention and
would only be web based. Many users and prevention to be vital. A User Led
16

19. Organisation should use and support the It is important to state here that all the focus
existing voluntary sector to have area is on adult social care. The funding of the
meetings especially to break down stigma User Led Organisation and the people it will
at grass-roots level. be expected to assist will be adults who use
adult social care services. It is not yet clear if
The User Led Organisation and
this will include young people in ‘transition’
children and carer’s of disabled or not.
children
People who are carers of disabled children
wanted to know whether the User Led
Organisation would represent them?
“
When you look at the feedback people gave, most of the points
made were about individual rights. We need to be able to advo-
cate for our communities. Our voices need to be heard first –
who is campaigning for you? It’s not campaigning where you tie
yourself to railings but about having clear representation to the
local authority.
”
17

20. Possible roles for the User Led
Organisation
We asked the participants what roles they 4. Supporting people to be active
thought a User-Led Organisation should citizens (community engagement).
have? To assist this process, the attendees
were given a list of 5 options to choose 5. Building and supporting community
from. network
The list from which people were asked The Most Popular Choice: A
to select from were: campaigning voice that empowers and
engages local service users
1. A One-Stop Information Shop. Of this, attendees said:
2. A centre to help people to plan and “When you look at the feedback people
find the care and support services gave, most of the points made were about
they need (Brokerage).
individual rights. We need to be able to
3. A campaigning organisation. advocate for our communities. Our voices
need to be heard first – who is campaigning
for you? It’s not campaigning where you tie
18

21. yourself to railings but about having clear
representation to the local authority.” Also:
Also: “Our organisation is isolated because
we are faith based. It makes it harder
“Are we reinventing the wheel with
for us to be integrated with the wider
some of these ideas? It would be
range of groups, which has
useful to capacity build the existing
implications for our funding.”
organisations to provide the best care,
but the campaigning issue is the most
important potential function of a ULO.
Is there an issue of not actually being
able to campaign if you are in receipt
of public money? You can’t criticise
“
the local council if they are funding
you.” “Supporting people to become active
citizens would be part of providing in-
Second most popular choice: One stop formation. There’s no point in just hav-
shop and a Brokerage service ing information for information’s sake.
There are lots of elements on this list
The majority of attendees agreed that both which could be put together.”
a one-stop shop and brokerage and advice
are services they would like the User Led
Organisation to run.
”
“There was a concern of what you
mean by a one stop shop. If it’s just a
leaflet drop then forget it. But if it
offered brokerage and campaigning
we could accept that. But we thought
a ULO should incorporate all the
options and no one could exist without
the other. So we thought the ULO
should be a hub which actually
undertakes the campaigning on behalf
of individuals, but the overriding thing
about it is for it to maintain its
independence and autonomy.”
19

22. Appendix 1:
Organisations who attended
Air Football Refugee & Migrant Forum of East Lon-
Department of Health don (RAMFEL)
Indigo Project - Transition Group Re-Start (working with ex-offenders)
Intake and Brief Intervention Team Richmond Fellowship Employment
Service Redbridge
Interface Redbridge
Jewish Care's Mitkadem Centre for RUN-UP
Wellbeing Sikh Community Care Project
London Borough of Redbridge Springboard
NHS Redbridge The Daffodil Advocacy Project
North East London NHS Foundation The Royal Association for Disability
Trust Rights
Pensioner's Forum Thinkarts
People's Platform Uniting Friends
Redbridge Carers Support Service
Redbridge Concern For Mental Health Thanks to:
Redbridge CVS Maddy Edwards, BASIS Coach
Redbridge Disability Association Maggie and her team at the Blue River Cafe
Redbridge Forum for People with a Ryan Jones, the graphic artist
Learning Disability
The Parish Church & Community Centre of
Redbridge Indian Welfare Association St Paul's Goodmayes for use of the venue.
Redbridge Link
Chris Wyatt and the Redbridge Music
Redbridge Music Lounge Lounge
Redbridge People First Roxanne Keynejad, for taking the notes and
Redbridge Resource Centre collating them
Redbridge Transport Elliott Tucker for producing a film of the
event
20

23. Appendix 2:
Documents
Developing a model for Service User and Carer Involvement in the Transforming Adult Social
Care Programme, Sept 2009. http://www.redbridge.gov.uk/ (Search on ‘transforming‘)
accessed May 6, 2010
Developing a User Led Organisation in Redbridge, June 2009http://www.redbridge.gov.uk/
(Search on ‘transforming‘) accessed May 6, 2010
Putting people first: a shared vision and commitment to the transformation of adult social
care; DH (2007) http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/
PublicationsPolicyAndGuidance/DH_081118 accessed May 6, 2010
P u t t i n g P e o p l e F i r s t : Tr a n s f o r m i n g A d u l t S o c i a l C a r e w e b s i t e : h t t p : / /
www.puttingpeoplefirst.org.uk/ accessed May 6, 2010
Redbridge User Led Organisation Update to REDBRIDGE HEALTH AND SOCIAL CARE
ADVISORY COMMITTEE, March 2009. http://www.redbridge.gov.uk/ (search on
‘transforming‘) accessed May 6, 2010
Road Map - Redbridge ULO Roadmap Stakeholder Event October 22nd Endorse Report
Accountability to users of ULO Relationship to stakeholders Next Step. http://
www.redbridge.gov.uk/ (Search on ‘Road Map’) accessed May 6, 2010
Local Authority Circular LAC (DH) (29 March 2010) 1, TRANSFORMING ADULT SOCIAL
CARE – the Social Care Reform Grants, http://www.dh.gov.uk/prod_consum_dh/groups/
dh_digitalassets/documents/digitalasset/dh_114790.pdf
21

24. Appendix 3:
Equality, Diversity and Evaluation of Event
Ethnicity (Some of the categories below reflect self-defined identities)
6% 2%
2% 10%
2%
2%
4%
6%
Black African
4% Black Caribbean
Indian
Mixed Ethnicity
White British
White Irish
Brown British
Chinese
Jewish
Did Not Respond
62%
Faith 12%
4%
Christian
44% Hindu
Jewish
Muslim
21%
None
Sikh
Did not Respond
2%
15% 2%
22

25. Age 6%
12%
8%
8%
6% 2%
2% 10%
2% 25 to 34
2%
35 to 49
4%
6% 50 to 65
Black African
65+
4% Black Caribbean
Under 25
Indian
Did not respond
19% Mixed Ethnicity
White British
White Irish
47% Brown British
Chinese
Jewish
Did Not Respond
62%
I found out all I
wanted to know 6%
15%
19%
Strongly agree
Agree
Disagree
Don't know
Did not answer
13%
47%
23

26. Appendix 4: Redbridge User Led Organisation Road Map
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24

27. Produced and published by Redbridge Concern for Mental Health
To discuss the report please contact:
Jon Abrams
020 8925 2435
jon@redbridgeconcern.org
25

28. Equality Choice
Respect
Support
Voice
Dignity
Control