Patient-centric social media for outcomes and pharmacovigilance consideration...Inspire
Through the use of de-identified Big Data from online patient forums open to healthcare providers, the pharmaceutical industry may glean useful insights into both the safety of existing products as well as future needs of patients. Post-marketing safety surveillance for pharmaceuticals currently relies on data from adverse event reports to companies or regulatory authorities, medical literature, and observational databases. Together these sources provide some insight into everyday product safety or risk, but the unique insight the patients themselves can offer is also highly desirable.
Using insights from a 2016 research project involving Inspire, GlaxoSmithKline (GSK) Pharmaceuticals, and Epidemico, an innovative informatics company, we are exploring the use of social listening data for pharmacovigilance and other R&D concerns. A core question is, “What valuable insights can we glean from social listening to help improve patients’ lives—whether through improved safety, more relevant clinical trials, or research and development of new treatment options?”
Experts by Experience 2016: A compilation of patient storiesInspire
In cooperation with Stanford Medicine, Inspire presents the special report, "Experts by Experience 2016: A compilation of patient stories," the fourth in an ongoing series.
Experts by experience 2014: A compilation of patients’ storiesInspire
Experts by experience 2014: A compilation of patients’ stories: A special report by Inspire, developed in cooperation with the Stanford University School of Medicine, featuring columns written by patients as part of a monthly series in Stanford University School of Medicine’s Scope medical blog.
Experts by Experience 2015: A compilation of patients’ storiesInspire
In cooperation with Stanford Medicine, Inspire presents "Experts by Experience 2015: A compilation of patients’ stories." The special report is the third in an ongoing series.
Support Without Borders: The Ovarian Cancer Online CommunityInspire
Inspire CEO Brian Loew presents online research data to the national conference of the Ovarian Cancer Research Fund Alliance (OCRFA), an Inspire partner. The conference session took place July 10, 2016, in Washington, DC.
The "Pulmonary Fibrosis Patient/Caregiver Experience Survey" explored the experiences of people affected by pulmonary fibrosis. Inspire conducted the survey in cooperation with its partner, the Pulmonary Fibrosis Foundation (PFF). Inspire CEO Brian Loew presented the findings during the PFF Summit in Nov. 2015 in Washington, DC.
Patient-centric social media for outcomes and pharmacovigilance consideration...Inspire
Through the use of de-identified Big Data from online patient forums open to healthcare providers, the pharmaceutical industry may glean useful insights into both the safety of existing products as well as future needs of patients. Post-marketing safety surveillance for pharmaceuticals currently relies on data from adverse event reports to companies or regulatory authorities, medical literature, and observational databases. Together these sources provide some insight into everyday product safety or risk, but the unique insight the patients themselves can offer is also highly desirable.
Using insights from a 2016 research project involving Inspire, GlaxoSmithKline (GSK) Pharmaceuticals, and Epidemico, an innovative informatics company, we are exploring the use of social listening data for pharmacovigilance and other R&D concerns. A core question is, “What valuable insights can we glean from social listening to help improve patients’ lives—whether through improved safety, more relevant clinical trials, or research and development of new treatment options?”
Experts by Experience 2016: A compilation of patient storiesInspire
In cooperation with Stanford Medicine, Inspire presents the special report, "Experts by Experience 2016: A compilation of patient stories," the fourth in an ongoing series.
Experts by experience 2014: A compilation of patients’ storiesInspire
Experts by experience 2014: A compilation of patients’ stories: A special report by Inspire, developed in cooperation with the Stanford University School of Medicine, featuring columns written by patients as part of a monthly series in Stanford University School of Medicine’s Scope medical blog.
Experts by Experience 2015: A compilation of patients’ storiesInspire
In cooperation with Stanford Medicine, Inspire presents "Experts by Experience 2015: A compilation of patients’ stories." The special report is the third in an ongoing series.
Support Without Borders: The Ovarian Cancer Online CommunityInspire
Inspire CEO Brian Loew presents online research data to the national conference of the Ovarian Cancer Research Fund Alliance (OCRFA), an Inspire partner. The conference session took place July 10, 2016, in Washington, DC.
The "Pulmonary Fibrosis Patient/Caregiver Experience Survey" explored the experiences of people affected by pulmonary fibrosis. Inspire conducted the survey in cooperation with its partner, the Pulmonary Fibrosis Foundation (PFF). Inspire CEO Brian Loew presented the findings during the PFF Summit in Nov. 2015 in Washington, DC.
Jackie Manthorne's presentation from the CAPO conference covers many issues that cancer survivors face today, based on a survey done by the Canadian Cancer Survivor Network in 2013.
Treatment For Cancer - Alternative Cancer Treatment Options To Traditional Ca...Keith Loucks
This is a guide for those looking for alternative cancer treatment information. Treatment For Cancer - Alternative Options to Traditional Cancer Therapy
Let's Talk About It: Ovarian Cancer - Treatment Decision Makingbkling
Making treatment decisions are stressful. The work of understanding complex medical information, crafting questions for your medical team, and trusting oneself is hard. Join us as we break down this intense time in ways that may make it feel more manageable and help you regain a sense of calm as you work hard to care for yourself at each turn in the road. Let’s Talk About It.
Cancer support groups are becoming an integral part of lives of most cancer patients, survivors, and their families. Support groups are the greatest pillars of strengths for patients who have survived cancer and look forward to a new life.
A new survey of negative patient experiences finds that patients rank unpleasant waiting areas as a bigger reason for not returning to a facility than long wait times. Here’s more:
•Waiting areas: Some 30% of respondents said dirty waiting areas at urgent care and primary care facilities would keep them from returning. Some 11% said the same for waiting times at urgent care centers, while 6% said so for primary care.
•Urgent care: Patients visiting these facilities were twice as likely to report dissatisfaction if they had to see more than two health professionals during a visit.
•Primary care: Women were 2.5 times more likely than men to say they wouldn’t want to return if the doctor or nurse forgets their name. At the same time, men were five times more likely to not want to return because of waiting rooms that lack entertainment options.
How Young People Learn About PrEP: Implications for Sexual Health Promotion I...YTH
The CRUSH study, a four-year demonstration project housed within an existing HIV clinic in Oakland, California, offered HIV pre-exposure prophylaxis (PrEP) as part of a comprehensive sexual health package to young people (18-29) who self-identified as being at-risk for HIV. We sought to understand how young people learn about and make the decision to use PrEP, and how they talk about the impact of PrEP use on their social and sexual lives. We describe themes related to learning about PrEP and address key questions: whom do young people turn to for information about PrEP, at what time or in what context do young people take in the information about PrEP, and what facilitates young people moving from resistance to acceptance of PrEP? We discuss implications on shaping future sexual health interventions and learning opportunities that spark both interest in and excitement about using a daily pill to prevent HIV infection.
Real World Takeaway Strategies for Successful PartnershipsInspire
Conference presentation by Claire Gill, National Osteoporosis Foundation, and Brian Loew of Inspire, on topic of online patient support communities and how nonprofit patient advocacy organizations are leveraging members to help further their mission. Gill and Loew discussed how pharma companies can connect effectively with nonprofit patient advocacy organizations.
Jackie Manthorne's presentation from the CAPO conference covers many issues that cancer survivors face today, based on a survey done by the Canadian Cancer Survivor Network in 2013.
Treatment For Cancer - Alternative Cancer Treatment Options To Traditional Ca...Keith Loucks
This is a guide for those looking for alternative cancer treatment information. Treatment For Cancer - Alternative Options to Traditional Cancer Therapy
Let's Talk About It: Ovarian Cancer - Treatment Decision Makingbkling
Making treatment decisions are stressful. The work of understanding complex medical information, crafting questions for your medical team, and trusting oneself is hard. Join us as we break down this intense time in ways that may make it feel more manageable and help you regain a sense of calm as you work hard to care for yourself at each turn in the road. Let’s Talk About It.
Cancer support groups are becoming an integral part of lives of most cancer patients, survivors, and their families. Support groups are the greatest pillars of strengths for patients who have survived cancer and look forward to a new life.
A new survey of negative patient experiences finds that patients rank unpleasant waiting areas as a bigger reason for not returning to a facility than long wait times. Here’s more:
•Waiting areas: Some 30% of respondents said dirty waiting areas at urgent care and primary care facilities would keep them from returning. Some 11% said the same for waiting times at urgent care centers, while 6% said so for primary care.
•Urgent care: Patients visiting these facilities were twice as likely to report dissatisfaction if they had to see more than two health professionals during a visit.
•Primary care: Women were 2.5 times more likely than men to say they wouldn’t want to return if the doctor or nurse forgets their name. At the same time, men were five times more likely to not want to return because of waiting rooms that lack entertainment options.
How Young People Learn About PrEP: Implications for Sexual Health Promotion I...YTH
The CRUSH study, a four-year demonstration project housed within an existing HIV clinic in Oakland, California, offered HIV pre-exposure prophylaxis (PrEP) as part of a comprehensive sexual health package to young people (18-29) who self-identified as being at-risk for HIV. We sought to understand how young people learn about and make the decision to use PrEP, and how they talk about the impact of PrEP use on their social and sexual lives. We describe themes related to learning about PrEP and address key questions: whom do young people turn to for information about PrEP, at what time or in what context do young people take in the information about PrEP, and what facilitates young people moving from resistance to acceptance of PrEP? We discuss implications on shaping future sexual health interventions and learning opportunities that spark both interest in and excitement about using a daily pill to prevent HIV infection.
Real World Takeaway Strategies for Successful PartnershipsInspire
Conference presentation by Claire Gill, National Osteoporosis Foundation, and Brian Loew of Inspire, on topic of online patient support communities and how nonprofit patient advocacy organizations are leveraging members to help further their mission. Gill and Loew discussed how pharma companies can connect effectively with nonprofit patient advocacy organizations.
Design Trials to Better Satisfy Patient Centric Outcomes Prior to Product LaunchInspire
Incorporate Patient Participation – Design Trials to Better Satisfy Patient Centric Outcomes Prior to Product Launch
Presentation by Inspire Research Director Dave Taylor at Evidence for Value-Based Programs conference
August 12, 2015
Advancing Quality of Care for Tuberous Sclerosis Complex Patients: A Case St...Inspire
"Advancing Quality of Care for Tuberous Sclerosis Complex Patients" was a session at the iPharma conference (May 2014) in which officials from Inspire, Tuberous Sclerosis Alliance and Novartis discussed the power of patient engagement and online patient communities.
Optimize Social Listening and Monitoring to Uncover Unmet Consumer NeedsInspire
Dave Taylor, director of research at Inspire, discusses ways that pharmaceutical and biotech companies can appropriately and effectively leverage social listening and monitoring. Taylor presented at the CBI BioPharma Social Media and Digital Platforms conference in February 2016 in Philadelphia, PA.
Do you know what kind of claims your sales people are making in order to get customers. companies that promise anything to acquire customers eventually find themselves with tarnished reputation. Keep reading to find out what not to do when acquiring customers.
This presentation give a small flavor what we can do, if we mix technology in right proportion, instead of getting over obsessed and blowing playing our own trumpet...
Very few Sales People understand, each technology does not solve every business problem...
My Best Wishes...
Vineet
Advocacy in the Digital Age: Leveraging the Mental Health America/Inspire Sup...Inspire
Inspire CEO Brian Loew presented, "Advocacy in the Digital Age: Leveraging the Mental Health America/Inspire Support Community," at the June 2015 annual conference of nonprofit advocacy organization Mental Health America.
Successfully Navigating the Parent Landmines in the NICU Inspire
Deb Discenza of PreemieWorld and the Inspire Preemie Support Community, presents at the 9th Council of International Neonatal Nurses Conference (COINN), in August 2016.
El sistema de silicatos es la unión de los tetraedros de Si-O en la estructura de los cristales que dan lugar a los tipos de silicatos.
Los elementos que forman esta estructura compleja son: Na, K, Ca, Al y Fe.
Patients facing chronic illness re-frame their definition of wellness and manage to cope in spite of adversity. This patient led research project delves into the myriad ways that those suffering from chronic illness chart a new path for themselves.
This is the slidedeck of our Health Smartees Webinar, presented by Saartje Van den Branden on Wednesday 12 March, 2014. The presentation elaborates on a Roche Customer Consulting Board case study.
Medicine is at heart a narrative activity–the telling and receiving of story. The patient interview is based on the notion that the patient, as story-teller, will share his or her experience, and that the doctor, as active listener, will be able to take that story and make sense of it in the world of science and medicine.
Health care is supposed to build on the story with each contact, but if we don’t know the story, each contact becomes a closed episode of its own, disconnected from every other episode. Fragmentation results as the outcome of a nonstoried approach to health care.
In this workshop, we will explore how the ancient art of storytelling can foster an empathetic healthcare model and generate a framework for a more holistic approach to treating the patient, while at the same time providing a rich source of diagnostic clues.
Narrative medicine represents a storied understanding of health. It’s a return to listening to the patient’s story. Doctors who are trained to listen to the story of the disease need to learn to listen also to the story of the illness. We’ll explore how to incorporate narrative medicine and storytelling into medical education
Connecting and Protecting. The Benefits and Pitfalls of Online DisclosureMarie Ennis-O'Connor
Presentation at Queen's University Belfast. The Medical, Ethical and Legal Repercussions of Blogging and Micro-Blogging Experiences of Illness and Disease.
Mental health continues to be an important issue affecting so many Canadians. I wrote three stories for the series for the Canadian Nurses Association in partnership with the Mental Health Commission of Canada. The stories were: Reducing Stigma in Health-Care Settings; Suicide Prevention and Postvention Initiatives; and When Mental Illness and the Justice System Intersect.
In this lesson, you’ll:
- Learn about your own support needs: Decide when you need support, how much is needed, and from whom.
- Learn how to find people and places for support.
- Understand the benefits and risks of online support.
Join international leader in Palliative Medicine, Dr. Cleary, as he discusses a variety of unique issues faced by late stage colorectal cancer patients, including the integration of palliative care, end of life planning, keeping hope alive, and more.
Exercise and cancer: How staying active can positively impact your health and...Inspire
In an hour-long webinar, nationally recognized exercise specialist Carol Michaels, MBA, ACE, ACSM discussed how maintaining an exercise program during cancer treatment and recovery can help patients to minimize treatment side effects, increase energy levels, and reduce stress, along with many other benefits. Inspire produced the educational webinar in partnership with the Bladder Cancer Advocacy Network, US TOO International, and ThyCa: Thyroid Cancer Survivors' Association.
What Do Patients Really Want Out Of Adherence Technology?Inspire
Drawing insights from the 13,000-response Inspire Annual Survey, Dave Taylor, Inspire's director of research, presented at CBI’s Patient Adherence (PAAS) conference in Philadelphia, PA, in June 2015.
Insights into the e-Patient: An Analysis of the Inspire Annual SurveyInspire
"Insights into the e-Patient: An Analysis of the Inspire Annual Survey" was a presentation that Inspire's Dave Taylor made in May 2015 to the iPharma conference
TalkPsoriasis is the largest online support community of people impacted by psoriasis or psoriatic arthritis. Sponsored by the National Psoriasis Foundation and Inspire, TalkPsoriasis is an open and encouraging environment where people affected by psoriasis or psoriatic arthritis can connect, exchange information, and meet friends.
Voice of the Empowered Patient: An Analysis of the Inspire Annual SurveyInspire
Inspire teamed with the trade organization Biotechnology Industry Organization for the seminar, “Connecting With the Empowered Patient in the Digital Age,” held Feb. 2015 at BIO headquarters in Washington, DC. The event brought together leaders from the patient advocacy community and life sciences industry to discuss how social media can be utilized to empower patients and engage advocates.
Inspire's Research Director Dave Taylor led the session, "Voice of the Empowered Patient: An Analysis of the Inspire Annual Survey."
Scleroderma Foundation/Inspire Support Community at a Glance Inspire
The Scleroderma Foundation/Inspire Support Community is the peer-to-peer resource for support and inspiration for people affected by the rare disease scleroderma.
Strategies and Tactics to Leverage Social and Digital Media in Clinical Rese...Inspire
Inspire CEO Brian Loew presents "Strategies and Tactics to Leverage Social and Digital Media in Clinical Research," at the 2014 conference of the Drug Information Association (DIA) in San Diego, CA.
Inspire Rare Disease Health Communities at a GlanceInspire
People affected by rare diseases come to Inspire's health communities for peer-to-peer information and support. The number of discussions and the types and depths of connections are what make the communities invaluable to tens of thousands of patients and caregivers worldwide.
Closing perception gaps between patients and their caregiversInspire
This session at the Stanford University School of Medicine "Medicine X 2013" conference examined the perception gap between patients and their spouses about severity of disease and suffering, with insights from a cancer patient, Maggie Heim, and her husband, Paul Hoffman, and from Aanand Naik, MD. Healthcare professionals need to be more attuned to the potential for a communications disconnect between a patient and his/her caregiver, which could lead to inadequate treatment. We discussed several studies, including a survey that Inspire conducted in 2012 in collaboration with Novartis, illustrating this gap: "Perceptions of stage IV NSCLC patients and caregivers regarding severity of symptoms and willingness to participate in supportive care trials."
Neurofibromatosis Social Media Trends -- a Medicine 2.0 Presentation Inspire
Inspire CEO Brian Loew discusses findings from Neurofibromatosis Social Media Trends, a survey report from the Inspire/Neurofibromatosis Network Support Community.
Beyond Privacy: Social Media’s Ethical Responsibility to the Clinical Trial P...Inspire
Presentation by Inspire CEO Brian Loew to Society of Clinical Research Associates (SoCRA), Harnessing Social Media to Advance Clinical Research conference, August 2, 2013
Brian Loew, CEO of Inspire, and patient advocate Katherine Leon presented at a June 2013 conference, #140YOU, on the topic of rare diseases and social networks. Katherine, internationally known for her "SCAD Ladies" advocacy, described how she and other women with a rare heart condition, spontaneous coronary artery dissection, self-organized on an Inspire online support community and fueled new research by the Mayo Clinic.
Designing for search and discovery is crucial: an example from rare diseaseInspire
"Designing for search and discovery is crucial: an example from rare disease," a presentation by Inspire CEO Brian Loew on March 25, 2013, at the Healthcare Experience Design Conference.
We understand the unique challenges pickleball players face and are committed to helping you stay healthy and active. In this presentation, we’ll explore the three most common pickleball injuries and provide strategies for prevention and treatment.
Global launch of the Healthy Ageing and Prevention Index 2nd wave – alongside...ILC- UK
The Healthy Ageing and Prevention Index is an online tool created by ILC that ranks countries on six metrics including, life span, health span, work span, income, environmental performance, and happiness. The Index helps us understand how well countries have adapted to longevity and inform decision makers on what must be done to maximise the economic benefits that comes with living well for longer.
Alongside the 77th World Health Assembly in Geneva on 28 May 2024, we launched the second version of our Index, allowing us to track progress and give new insights into what needs to be done to keep populations healthier for longer.
The speakers included:
Professor Orazio Schillaci, Minister of Health, Italy
Dr Hans Groth, Chairman of the Board, World Demographic & Ageing Forum
Professor Ilona Kickbusch, Founder and Chair, Global Health Centre, Geneva Graduate Institute and co-chair, World Health Summit Council
Dr Natasha Azzopardi Muscat, Director, Country Health Policies and Systems Division, World Health Organisation EURO
Dr Marta Lomazzi, Executive Manager, World Federation of Public Health Associations
Dr Shyam Bishen, Head, Centre for Health and Healthcare and Member of the Executive Committee, World Economic Forum
Dr Karin Tegmark Wisell, Director General, Public Health Agency of Sweden
QA Paediatric dentistry department, Hospital Melaka 2020Azreen Aj
QA study - To improve the 6th monthly recall rate post-comprehensive dental treatment under general anaesthesia in paediatric dentistry department, Hospital Melaka
Navigating Challenges: Mental Health, Legislation, and the Prison System in B...Guillermo Rivera
This conference will delve into the intricate intersections between mental health, legal frameworks, and the prison system in Bolivia. It aims to provide a comprehensive overview of the current challenges faced by mental health professionals working within the legislative and correctional landscapes. Topics of discussion will include the prevalence and impact of mental health issues among the incarcerated population, the effectiveness of existing mental health policies and legislation, and potential reforms to enhance the mental health support system within prisons.
India Clinical Trials Market: Industry Size and Growth Trends [2030] Analyzed...Kumar Satyam
According to TechSci Research report, "India Clinical Trials Market- By Region, Competition, Forecast & Opportunities, 2030F," the India Clinical Trials Market was valued at USD 2.05 billion in 2024 and is projected to grow at a compound annual growth rate (CAGR) of 8.64% through 2030. The market is driven by a variety of factors, making India an attractive destination for pharmaceutical companies and researchers. India's vast and diverse patient population, cost-effective operational environment, and a large pool of skilled medical professionals contribute significantly to the market's growth. Additionally, increasing government support in streamlining regulations and the growing prevalence of lifestyle diseases further propel the clinical trials market.
Growing Prevalence of Lifestyle Diseases
The rising incidence of lifestyle diseases such as diabetes, cardiovascular diseases, and cancer is a major trend driving the clinical trials market in India. These conditions necessitate the development and testing of new treatment methods, creating a robust demand for clinical trials. The increasing burden of these diseases highlights the need for innovative therapies and underscores the importance of India as a key player in global clinical research.
CHAPTER 1 SEMESTER V PREVENTIVE-PEDIATRICS.pdfSachin Sharma
This content provides an overview of preventive pediatrics. It defines preventive pediatrics as preventing disease and promoting children's physical, mental, and social well-being to achieve positive health. It discusses antenatal, postnatal, and social preventive pediatrics. It also covers various child health programs like immunization, breastfeeding, ICDS, and the roles of organizations like WHO, UNICEF, and nurses in preventive pediatrics.
Telehealth Psychology Building Trust with Clients.pptxThe Harvest Clinic
Telehealth psychology is a digital approach that offers psychological services and mental health care to clients remotely, using technologies like video conferencing, phone calls, text messaging, and mobile apps for communication.
Medical Technology Tackles New Health Care Demand - Research Report - March 2...pchutichetpong
M Capital Group (“MCG”) predicts that with, against, despite, and even without the global pandemic, the medical technology (MedTech) industry shows signs of continuous healthy growth, driven by smaller, faster, and cheaper devices, growing demand for home-based applications, technological innovation, strategic acquisitions, investments, and SPAC listings. MCG predicts that this should reflects itself in annual growth of over 6%, well beyond 2028.
According to Chris Mouchabhani, Managing Partner at M Capital Group, “Despite all economic scenarios that one may consider, beyond overall economic shocks, medical technology should remain one of the most promising and robust sectors over the short to medium term and well beyond 2028.”
There is a movement towards home-based care for the elderly, next generation scanning and MRI devices, wearable technology, artificial intelligence incorporation, and online connectivity. Experts also see a focus on predictive, preventive, personalized, participatory, and precision medicine, with rising levels of integration of home care and technological innovation.
The average cost of treatment has been rising across the board, creating additional financial burdens to governments, healthcare providers and insurance companies. According to MCG, cost-per-inpatient-stay in the United States alone rose on average annually by over 13% between 2014 to 2021, leading MedTech to focus research efforts on optimized medical equipment at lower price points, whilst emphasizing portability and ease of use. Namely, 46% of the 1,008 medical technology companies in the 2021 MedTech Innovator (“MTI”) database are focusing on prevention, wellness, detection, or diagnosis, signaling a clear push for preventive care to also tackle costs.
In addition, there has also been a lasting impact on consumer and medical demand for home care, supported by the pandemic. Lockdowns, closure of care facilities, and healthcare systems subjected to capacity pressure, accelerated demand away from traditional inpatient care. Now, outpatient care solutions are driving industry production, with nearly 70% of recent diagnostics start-up companies producing products in areas such as ambulatory clinics, at-home care, and self-administered diagnostics.
Antibiotic Stewardship by Anushri Srivastava.pptxAnushriSrivastav
Stewardship is the act of taking good care of something.
Antimicrobial stewardship is a coordinated program that promotes the appropriate use of antimicrobials (including antibiotics), improves patient outcomes, reduces microbial resistance, and decreases the spread of infections caused by multidrug-resistant organisms.
WHO launched the Global Antimicrobial Resistance and Use Surveillance System (GLASS) in 2015 to fill knowledge gaps and inform strategies at all levels.
ACCORDING TO apic.org,
Antimicrobial stewardship is a coordinated program that promotes the appropriate use of antimicrobials (including antibiotics), improves patient outcomes, reduces microbial resistance, and decreases the spread of infections caused by multidrug-resistant organisms.
ACCORDING TO pewtrusts.org,
Antibiotic stewardship refers to efforts in doctors’ offices, hospitals, long term care facilities, and other health care settings to ensure that antibiotics are used only when necessary and appropriate
According to WHO,
Antimicrobial stewardship is a systematic approach to educate and support health care professionals to follow evidence-based guidelines for prescribing and administering antimicrobials
In 1996, John McGowan and Dale Gerding first applied the term antimicrobial stewardship, where they suggested a causal association between antimicrobial agent use and resistance. They also focused on the urgency of large-scale controlled trials of antimicrobial-use regulation employing sophisticated epidemiologic methods, molecular typing, and precise resistance mechanism analysis.
Antimicrobial Stewardship(AMS) refers to the optimal selection, dosing, and duration of antimicrobial treatment resulting in the best clinical outcome with minimal side effects to the patients and minimal impact on subsequent resistance.
According to the 2019 report, in the US, more than 2.8 million antibiotic-resistant infections occur each year, and more than 35000 people die. In addition to this, it also mentioned that 223,900 cases of Clostridoides difficile occurred in 2017, of which 12800 people died. The report did not include viruses or parasites
VISION
Being proactive
Supporting optimal animal and human health
Exploring ways to reduce overall use of antimicrobials
Using the drugs that prevent and treat disease by killing microscopic organisms in a responsible way
GOAL
to prevent the generation and spread of antimicrobial resistance (AMR). Doing so will preserve the effectiveness of these drugs in animals and humans for years to come.
being to preserve human and animal health and the effectiveness of antimicrobial medications.
to implement a multidisciplinary approach in assembling a stewardship team to include an infectious disease physician, a clinical pharmacist with infectious diseases training, infection preventionist, and a close collaboration with the staff in the clinical microbiology laboratory
to prevent antimicrobial overuse, misuse and abuse.
to minimize the developme
How many patients does case series should have In comparison to case reports.pdfpubrica101
Pubrica’s team of researchers and writers create scientific and medical research articles, which may be important resources for authors and practitioners. Pubrica medical writers assist you in creating and revising the introduction by alerting the reader to gaps in the chosen study subject. Our professionals understand the order in which the hypothesis topic is followed by the broad subject, the issue, and the backdrop.
https://pubrica.com/academy/case-study-or-series/how-many-patients-does-case-series-should-have-in-comparison-to-case-reports/
How many patients does case series should have In comparison to case reports.pdf
Reaching out to real people: Tools to humanize stories
1. Reaching out to real people:
Tools to humanize stories
Association of Health Care Journalists
April 2016
Cleveland, OH
John Novack
Communications Director
Inspire
www.inspire.com
@TeamInspire
2. About me, about Inspire
The leading social network for health, connecting
patients and caregivers.
About me
• Former AHCJ board member and officer
• Former newspaper reporter and healthcare
trade publishing editor/group publisher
• Currently communications director at Inspire
About Inspire
• Privately held company based in Arlington,
VA
• 750,000+ members
• 200+ health communities
• 100+ advocacy partners
3. About healthcare social networks
Different types, different missions, different audiences
3
• Inspire
• PLM
• WEGO
• MyHealthTeams
• Facebook groups
• Nonprofit organization-sponsored groups
• Patient-created portals
4. Reaching nonprofit associations
4
• Going through communications dept. is usually best route
• Get to know policy/research people
• Get to know advocacy org’s scientific advisory boards (SABs)
• Smaller organizations sometimes have great networks, BUT some are
not as responsive because leaders are affected by the disease for
which they’re advocating
6. When things don’t go well
6
“The tendency...especially, in headlines, to use a format like: "Person with X Disease
does Y Achievement" instead of saying "Person does Y with X Disease.” The first way
make it seem like having the health condition is the real, big achievement and the
action/hobby/achievement is much diminished. I view this along the lines of person-
first language--the evolution where we first consider what the person DOES or is
interested in, versus what disease they HAVE.”
--Carly Medosch
“My favorite journalists have taken a real interest in me as a human being that
continued after the story was published---that makes me feel incredible---like I am so
much more than just my disease.”
--Linnea Olson
“If an organization is going to spend time helping compile info/facts for your article but
it's edited out, the least you can do is offer a polite heads up that it didn't make the cut
instead of them finding out the hard way.”
--Danielle Burgess
7. When things don’t go well 2
7
“If discussing step therapy, don't say the patient failed on the drug. The drug failed to
work in a given patient. We don't fail. We just put this crap in our bodies and hope
for the best...(Also), find a patient that is able to speak for a cross section of the
community and not one who is simply seeking the limelight. Those of us who will
likely be reading those stories can spot that a mile away and frankly, it's a turn off.”
--AnneMarie Ciccarella
“Please do not sensationalize prospective cancer treatments. Too often I've seen
headlines proclaiming ‘Cancer Cure Identified by XYZ Organization’ only to find that
the research was preclinical (cellular level) or in mouse models.”
--Anne Loeser
“Patients want to help but the way general media plays out people are hesitant to
talk to the press because of the potential for a ‘gotcha question’ that makes them
look stupid.”
--Deb Discenza
8. Tips
8
“I appreciate having an open-ended question, such as, "Are there any other
thoughts you have on the subject?" This opens the door for me to go into
more detail on material that I wasn't specifically asked about but which I feel is
relevant, and also gives me an opportunity to offer possible considerations for
additional directions that the piece could go in.”
--Michael Bihovsky
“I love it when reporters are willing to email me to make sure I'm quoted/
represented accurately. ”
--Danielle Burgess
“Attend not just to the dramatic, picturesque near-death story with the happy
ending, but also to the messy underbelly of the story: the persistent mental
health needs of patients, the difficulties in getting appropriate care, the
inadequacy (sometimes) of the health care system, the stress and trauma
experienced by family members.”
--Tina Pittman Wagers
9. Tips 2
9
“It is vital that there is a balance between actual facts and personal stories. For
example, stories related to mental illness and violence.”
--Gabe Howard
“Interviewing patients or caregivers is very different than interviewing subject
matter experts, and the expectations must be different. While a subject matter
expert wants his/her information out there and is doing this to help the cause,
more or less, the patient is sharing something personal, often with the hopes of
helping others who are going through the same thing. ”
--Marijke Vroomen Durning
“I am sick and tired of hearing about ’patient stories.’ They are everywhere. So
what? Instead, focus on a group of patients who've exhibited an exceptional
response to a therapy and try to determine what attributes they have in common.”
--Anne Loeser
10. Tips 3
10
“Sometimes journalists are very careful in the way to ask cancer patients, afraid to
offend. I think in the moment you are willing to give an interview you are ready
to tell all.”
--Alexandra Leighton
“Realize that the person going through the health crisis also has deadlines--
everything from doctor's appointments to therapy appointments, to school-
based appointments in addition to caring for the individual and likely having a
full-time job outside of all of this. If you can be flexible on the interview calls/
times/dates that would be most helpful. That way the individual can bring his or
her best self to the interview. It will be well worth a bit of a wait.”
--Deb Discenza
“I have Charcot-Marie-Tooth, a disease that is rare and also‘invisible.’ The
shaming and judgment of people with invisible diseases seems to be a real
problem and one that journalists could try to tackle.”
--Joy Aldrich
11. Tips 4
11
“Individuals with chronic illness fight to be recognized and have their
limitations acknowledged and supported, but it doesn’t mean that we are in
some way sad or unable to live a full life. For most of us it’s just that the world
is set up in a way that can be difficult for our bodies and it’s very hard to
change a system that is built around productivity and individuality when you
need help a lot. Having a disability really shows you the need for a large and
flexible community system.”
--Emma Caroline Lewin Opitz
“I like first-person accounts from patients who tell it like it really is, not some
fluff piece about how inspirational or brave they are. I am very protective of
my story and not writing it in a way where someone comes away thinking I
am brave but inherently think less of me or my capabilities.”
--Christopher Anselmo
“Real people inspire both trust in and engagement with your message.”
--Casey Quinlan
12. Stay in touch
John Novack
Communications Director
Inspire
john@inspire.com
800-945-0381
www.inspire.com
@TeamInspire