Dee O'Sullivan's document discusses the rise of sleep apps for self-management in the context of healthcare system challenges due to chronic illness. It highlights the need for quality health apps that empower patients and facilitate self-care, while addressing concerns related to safety, quality, and data privacy. The document also presents a benchmarking study of sleep apps, emphasizing the importance of informed choices and transparency for users.

1. Dee O’Sullivan Slaap-apps voor zelfmanagement: hype of waardevol? Benchmark van slaap-apps door PatientView
MET DE STEUN VAN:

2. About PatientView
•UK-based research, consulting and publishing company
•Collects and analyses the viewpoints of thousands of patient groups (and their members) worldwide – since 2000
•Has the capacity to reach out to 120,000 patient organisations worldwide, covering over 1,000 health specialties.

3. Surveys, reports, white papers, directories, toolkits…
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4. The unavoidable logic of health apps
• Healthcare systems are in crisis, chiefly because chronic illness
is on the rise as populations age
• Policymakers realise that without greater patient empowerment
and self-care, healthcare systems will no longer be sustainable
• People living with chronic disease manage their condition alone,
on average, more than 99% of the time (Stanford University research)

5. Why do we need quality health apps?
• Health apps help the public and patients provide continuity of self-care during illness
• Health apps support self-management of health and wellbeing generally, not just the primary illness
• Health apps inform, bringing health information to the public and patients 24/7
• Health apps even can take a little pressure off time-stressed clinicians

6. •Smartphones are now used even by some of the more vulnerable and hard-to- reach sections of the population
•Today, among the 100,000 health apps on the market are many that can help people cope with a huge range of health issues—from diet and exercise, to monitoring their glucose levels or managing their medication
•People who download apps can be supplied with continuous, up-to-date services by those tools
•The services (information, practical facilities, and support) can often be free

7. 7
Apps can promote self-care by providing: • round-the- clock support to patients and the public • when and where they need it

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•The number of health apps available is currently huge—so great, that informed choice is hard
•Health apps vary widely in quality and reliability
•Lack of clarity as to whether health apps produce positive outcomes
•Accessibility of apps—cost, technical problems, ease of use on smartphones
•Fears about data privacy
•Issues of transparency about who has developed and financed the health apps

10. What patients and the public want from their health apps

12. Multi-stakeholder partnerships are key…

13. OUR PARTNERS
Pharma
● GSK
● Janssen
● Novo Nordisk
Mobile operators
● Telefonica
● Vodafone Foundation (development phase)
Non-commercial:
Media partners
● European Health Forum Gastein
Government
● NHS England (Health Apps Library)
● Knowledge Transfer Network (UK)
Network and alliances
● European Connected Health Alliance
● Health 2.0
● Mobile World Capital (tbc)
● GARI (Global Accessibility Reporting Initiative – Mobile Manufacturers’ Forum)

14. Where we are today…
•Over 400 apps
•Covering 150+ health specialties
•Apps in 50 languages (38 in Dutch)
•Reviews by over 550 patient organisations worldwide

15. Wider context of sleep apps
•Approx 500 ‘sleep’ apps on Google Play
•Difficult to calculate on Apple App Store:
- IMS Health Institute Report (October 2013) assessed all 43,000+ apps classified as ‘health apps’ on iTunes App Store and found that only 16,275 apps were directly related to patient health and treatment, of very variable quality and utility – so how are the public and patients to know how to find them and which ones to trust?

16. How sites like myhealthapps.net aim to help
8 apps on sleep or sleep-related factors….
Sleep Cycle Alarm Clock developed by Maciek Drejak Labs AB, Sweden
Available in English
Cost: £0.69 [approximately €0.88, $1.17]
Reviews
Reviewer: Canadian AIDS Society (CAS), Canada Review: “ ‘Sleep Cycle’ wakes you according to your sleep cycle, which it monitors throughout the night. It uses vibrations and sound to wake you from the lightest possible sleep. ” Source: PatientView survey, July-August 2012 Weblink of reviewer: http://bit.ly/16dQTlw
Reviewer: C3 Collaborating for Health, UK Review: Recommended by C3 Collaborating for Health, UK Source: PatientView survey, July-August 2012 Usage: Not specified Weblink of reviewer: http://bit.ly/16dR54n

17. Sleep apps on myhealthapps.net
8 apps on sleep or sleep-related factors….
FibroMapp developed by BodyMap Apps, UK
Available in English
Cost: £3.99 [approximately €5.09, $6.81]
Reviews
Reviewer: Fibromyalgia Association (FMA) UK Review: “This app is a sleep tracker, a symptoms tracker, a medications tracker, and an alarm system. It is also a journal, in which the user can log the severity of the pain, the location of the pain, the type of the pain. The app has charting, a report-writing facility, and allows printout and email. ” Source: PatientView survey, July-August 2012
Weblink of reviewer: http://www.fibromyalgia-associationuk.org
Reviewer: Bodymap App, UK -social enterprise Reviewer: Bodymap App, UK -social enterprise
Review: -medications tracker/alarms -sleep tracker/sleep debt -symptoms tracker -location of pain - medical devices/aids used -severity of pain -journal -report writing facility for print outs/emails -charting - reporting facility Source: PatientView survey 2012 -2013 Weblink of reviewer: http://www.bodymapapps.com

18. Sleep apps on myhealthapps.net
8 apps on sleep or sleep-related factors….
Calorie Counter PRO by MyNetDiary developed by MyNetDiary Inc, USA
Available in English Cost: Free for Blackberry non-'Pro' version; $3.99 [approximately €3; £2.50]
Weight- and nutrition-management app that allows dietary goals to be set.
Blood sugars can be logged, as well as blood pressure, daily steps taken, and hours of sleep and work. The developer’s website, 'mynetdiary.com', provides access to an online community, Twitter integration, and in-depth reporting functions (registration required). Entries made in offline mode sync upon connecting to the Web.
Review
Reviewer: Diabetes Forecast article in Healthy Living Magazine , American Diabetes Association (ADA), USA Review: “You can record meals, water intake, exercise, and weight loss with this comprehensive app, which works with ‘MyNetDiary’ online. It includes a library of more than 400,000 foods (including restaurant picks), and a barcode scanner for easy identification and logging of packaged foods. Searches with ‘Calorie Counter’ are fast, thanks to the app’s ability to search as you type.” Source: http://bit.ly/VMKZ2s Weblink of reviewer: http://forecast.diabetes.org

19. 04-02-2014

20. The regulatory landscape is changing…
… as is the demand for high- quality apps

21. In future, app developers may need to secure a presence (gain approval) among many of the organisations involved with quality assessments of health apps

22. “Some initiatives focus more on the transparency of the information about reliable health apps like the first European Directory of Health Apps [myhealthapps.net].”
The importance of transparency is recognised in the European Commission Green Paper on mHealth
(10 April 2014)

23. 23
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SLIDE 23

24. Key issues to be addressed
•SAFETY
•QUALITY AND STANDARDS OF APPS
•DATA SECURITY AND PRIVACY
•REGULATION
Autumn 2014: The Commission is due to publish the responses to the public consultation on its mHealth Green Paper
Early 2015: The Commission is due to publish its proposals on the regulation of mHealth tools and devices, including apps

25. Our next steps
1 October 2014
at European Health Forum Gastein
• Launch of a print and online (free) toolkit for the public and patients to help them get the best from health apps but be aware of the pitfalls
12 November 2014, London
• A free collaborative workshop to connect patient and carer groups, health policymakers, healthcare professionals, telecoms and mobile experts, and pharma and medical device experts with health app developers.
• To help define 5 new important apps to be designed in response to patient unmet needs

26. THANK YOU
Dee O’Sullivan
M: (+32) 0495 893925
dee@patient-view.com
www.myhealthapps.net