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Meeting the Needs of Children
     and Families Part 1
         By, Kellie Downing
             300607008
             Lisa McCaie
              ECEP - 233
         Due: April 4th 2013
Brittany’s family has moved from the sunny state of
    Florida to Toronto since her diagnosis of Bloom
 Syndrome. She has been assigned to your preschool
room and will begin in a couple of days. Since the move
 Brittany is feeling sad because she misses her friends
back home. Her brother is very mad at Brittany because
he believes that the move is all her fault. His behavior is
 very difficult for the parents. They ask for your help.
                                                Exact Quote from Case Study
                      (Case Study)
Needs of the Child and Family

       Brittany has been diagnosed with Blooms
       Syndrome. This is going to cause changes in not
       only her life but her families as well. They had to
       move from the state of Florida to Toronto.

       Brittany is upset because she is missing her friends
       from her old house and school. She may be feeling
       lonely not being able to see and speak to her old
       friends all the time. It may take some time for her to
       find some new friends.




Info from Case Study
Needs of the Child and Family Cont’d

    Brittany’s family is new to the city of Toronto so they
    may not know many resources around the community.
    They are going to need some guidance and help with
    finding some agencies or resources they can access, if
    needed.


    One need or concern for Brittany and her family
    would be the fact that Brittany’s brother is
    blaming her for the move. This is causing
    Brittany’s brothers behavior to change.



Info from Case Study
Needs of the Child and Family Cont’d

     Brittany’s brother is blaming her for the move
     and is very mad at her. A need for this would be
     to allow Brittany and her brother resolve their
     issues towards one another about the move.



   Because Brittany has Bloom
   Syndrome, she is at a
   greater risk to cancer.




Info from case study and wisegeek.com
What is Bloom Syndrome?
“Bloom Syndrome is a genetic condition characterized by a problem
with the BLM gene, which normally governs recombination during
cell division. Due to a malfunction in this gene, people
with Bloom Syndrome experience chromosomal breakage and
rearrangement, which can in turn cause a number of complications.”
(wisegeek.com)




Bloom Syndrome has no cure. Prevention is something that is always
focused on, when it is possible. For someone who already has Bloom
  Syndrome, they can try and manage the symptoms it may cause.
                          (wisegeek.com).
Bloom Syndrome Cont’d




“About one out of every 100 people with Ashkenazi
Jewish ancestry carries a particular mutation known as
BLMAsh. Almost every Jewish person known to have
Bloom's syndrome has two copies of this mutation.”
(www.23andme.com)

Video: http://www.youtube.com/watch?v=1jNbeOR1ryI
Symptoms of Bloom Syndrome

 “What are the symptoms of Bloom syndrome?
 - Growth delay.
 - Congenital telangiectatic erythema (dilated blood vessels)
 - Facial rash that developed shortly after first exposure to sun (Rash may be
 butterfly-shaped patch mainly on the cheeks).
 - Pigmentation changes in skin including hyper or hypo pigmented areas.
 - Café-au-lait spots
 - High pitch voice
 - Long and narrow face, micrognathism of the mandible and prominent nose and
 ears.
 - Immune deficiency characterized by recurrent respiratory tract infection like
 pneumonia and ear infection.
 - Most patients have Type 2 diabetes mellitus.
 - About 20% patients with bloom syndrome may develop malignancies like acute
 leukemia, lymphoma, and gastrointestinal adenocarcinoma.” (emedicinezone.com)


All points taken from (www.emedicinezone.com)
History of Bloom Syndrome
The genetic disorder of Bloom Syndrome is named
after Dr. David Bloom. He discovered the syndrome
in 1954. The disorder is more commonly found in
Eastern Europeans, including Ashkenazim.
(wisegeek.com)




                 In order for a child to have Bloom Syndrome both
                 parents must carry the damaged gene.
                 (wisegeek.com)
How Bloom syndrome
                         diagnosed?
“Bloom syndrome is diagnosed by patient’s history; physical examination
and lab test. Bloom syndrome is only confirmed by chromosomal study.”
                         (emedicinezone.com)


                     Looking for abnormal chromosomes in a sample of ones cells is the
                     most common way to test for Bloom Syndrome. (23andme.com)
Treating and Managing Bloom Syndrome
            Although Bloom Syndrome has no cure, there are still ways to
                              treat and manage it.




        Cancer prevention is a main priority for individuals who have
        Bloom Syndrome. The screening process for cancer must be
        started very early on. (www.23andme.com)

The most common cancer type for individuals with Bloom Syndrome is Colon
Cancer. This cancer must be checked for and treated for way before anything else.
It should also be checked more frequently than any other type of cancer.
(www.23andme.com)
Meeting the Needs
          Changes to Physical Environment

Since Bloom Syndrome                  “Being outdoors provides
can cause a rash from                 many benefits to
exposure to sun one                   children’s health
thing I would change to               including the opportunity
our physical                          to receive physical
environment would be                  exercise. However, there
to make sure outside in               are two potential
the playground there is               concerns that we must be
a set place that has                  aware of so that we can
shade. Not just a spot in             provide protection
the corner with some                  against them. These are
shade but a big area                  the use of arsenic on
created that the child                playground equipment
can expand and play                   and ultraviolet rays from
like everyone else.                   the sun” (Bullard, page
                                      335).
Meeting the Needs
Changes to Physical Environment Cont’d




 This change in the environment would not only benefit a
 child who has Bloom Syndrome but as well as all the children
 in the environment as well. Having protection from the sun
 is something everyone in the room can be included in and
 benefit from.

 “To protect children, it is important to provide shade on the
 playground. This can be both natural shade from trees and
 bushes, and human-made shade.” (Bullard, page 335).
Meeting the Needs
   Changes to Classroom Environment Cont’d
Brittany should be able to sit with her friends at the tables in our classroom
for any activities. Which is why chairs or desks must be at a level she too can
be comfortable at as well.

“The materials and equipment should be accessible to children where they can
reach and use the materials by themselves with
adaptations to furniture to meet all children’s needs” (gov.mb.ca)
Also when Brittany needs to use the sink or maybe reach onto a small shelf I
will make sure to incorporate step stools around the classroom so she can
access them.
Meeting the Needs
                Changes to Physical Environment
In the classroom, I will make sure to have no scented lotions or creams that may cause
irritation. I will make sure to always have specific sunscreen for Brittany, through
conversations with her parents we can find out which ones are best suited for her. As well
as any creams her parents use for her when she may get a rash.




In the environment I will make sure to keep hats as well, not just for Brittany but for
all the children as well. To make sure they can keep their heads and faces protected
from the sun.
Meeting the Needs
Changes to Physical Environment Cont’d
  Since Brittany will be new to this center and doesn’t know any of
  the children. I will make sure to set up the environment in a way
  where she can be sociable without being forced to. I would do this
  by allowing centers and areas to be a place for more than 1 child so
  she would be included. As well as also setting up a lot of group
  activities to make Brittany feel welcome and get her interacting
  right away. This also will help all the other children to be more
  social and will take less time to incorporate Brittany into their
  friendships.


                                             “All children benefit from inclusion
                                            with others. Better social and adaptive
                                             skills.” (Class Notes, Connectability,
                                                       Inclusion Workshop)
Meeting the Needs
     Changes to Physical Environment Cont’d
  Growth delay is a symptom seen in children with Bloom Syndrome. So
  practicing motor skills with children can help to increase skills in that area.

For Brittany, as well as her classmates I would make sure to set up Motor Skill areas
within the classroom. Things that can help her to develop and practice her motor
skills over and over.

     I would include a bowling game within the classroom. “Model by
     tapping your chest, stating “my turn” before throwing the ball. Set up
     again and repeat for “your turn”” (Class Notes, Connectability Toy
     Workshop). This game would also be good to help Brittany meet new
     friends in a social interactions.


                                                                    “In many ways, the ways
                                                                     you include a child with
                                                                     physical differ-ences or
                                                                    impairments will benefit
                                                                    all children in your care.”
                                                                          (ces.ncsu.edu)
Meeting the Needs - Strategies

Gross Motor Skills could be practiced through the activity of “Feed the Clown: Position
your child with (his) back against the wall. The act of throwing will encourage him to
move away briefly and to balance in the standing position. Gradually move further away
from the wall.” (Connectability, Toy Shop Workshop). This activity is a great way to get
Brittany to use more of her gross motor development, as well as practicing her balance. It
can also involve other children as well to help her social development as well.



                                                      Through the preschool years,
                                                      children move beyond simple
                                                      walking to running and jumping
                                                      and other complex motor skills that
                                                      require greater coordination and
                                                      precise timing of movements, such
                                                      as swinging.” (Kail, 228)
Meeting the Needs - Strategies
For Fine Motor Skills an
activity I would include would
be “Scarf-in-a Bottle: Provide
hand over hand assistance as
the child grasps the toy to
place it into the bottle and
then grasping the end of the
scarf to remove it. The child is
expected to poke it into the
bottle until fully inserted.”
(Connectability, Toy Shop
Workshop). This activity
would be good for Brittany
because it would encourage         “Preschool children become much more
her to use her fine motor          dexterous, able to make many precise and
skills such as pushing and         delicate movements with their hands and
pulling through with her           fingers. Improved fine motor skills means
fingers.                           that school children can begin to care for
                                   themselves.” (Kail, 229)
Meeting the Needs - Strategies
In order to help                          For example, using the
Brittany become                           story “Tucker the Turtle
familiar with the                         Takes Time to Tuck and
classroom and other                       Think” (Rochelle Lentini)
children, and to help                     and allowing Brittany to
her feel comfortable I                    be interactive with the
would allow a time for                    process of the story as
her to be sociable in a                   well as participating in
group.                                    the actions alongside her
                                          peers.




                            Tucker the Turtle taken from Class Notes and story. (ECEP-233)
Meeting the Needs - Strategies
Routine Posters will be kept up around the classroom as
well, including what to wear during those activities. For
example “Outdoor Activity (summer): hats, sun lotion etc”.
These posters would be also near the children’s cubbies.
That way, when they are getting ready to go outside. Also I
would make sure to allow children enough time daily to get
their sunscreen applied and put on their hats.



                                      “place transition times on the daily
                                      schedule and on the daily plan.”
                                      (Bullard, 60).
Meeting the Needs
Any of the changes made to the environment or any teaching
strategies used would be beneficial to other children in the
classroom as well. The environment will be including for
Brittany, but wont be spotlighting her either. This allows equal
opportunity for all children within the classroom.




“Play, engaged in by children throughout the world, is a very
important vehicle for children's development. A rich
environment can support children's’ play, providing social,
emotional, physical, and cognitive benefits.” (Bullard, 6).
Meeting the Needs – Strategies for Working with Parents
I would always make sure Brittany’s parents know they can approach me at any
time and that if they have any concerns or questions in the future to not hesitate
and let me know. “Create and open door atmosphere from the start.”
(Connectability, Inclusion Workshop”.



Daily Journals of Brittany’s daily
activities, anything parents should
know. This keeps parents informed and
allows room for parent-questions.
“Maintaining open communication
with a child’s family is very important
but sometimes difficult to do. A
communication book allows child care
staff and parents to exchange a few
written words about the child's day or
                                                     This can also allow the parents an
night, share information about
appointments or special events and it                opportunity to be familiar with
can also be used as a record-keeping                 the strategies we use in class with
tool.” (Reading Package, Unit 5, page                Brittany and the other children
1).                                                  and will gave them the chance to
                                                     try them out at home.
Meeting the Needs – Strategies for Working with Parents

 Having Conversations with the parents, and finding out what they
 want and need from the childcare setting and how I and the other
 staff can help make them feel as comfortable as possible.

 I would also make sure to
 present the Brittany and
 her family resources in the
 community that could help
 them out as well. “A major
 responsibility of teachers is
 to refer children to the
 appropriate support and
 services. It is important that
 ECE’s know the local
 community services.” (Class
 Notes, week 5)
Meeting the Needs – Strategies for Working with Parents

In order to meet the need of Brittany’s brother having anger towards her for the family
move, I would suggest the parents sit down with him and have a conversation about why
they had to move and discuss all the ways it can be a good thing. I would encourage them
to use positive wording about the new city and allow Brittany’s brother a chance to speak
his mind as well. They should continue to have conversations like this daily with Brittany’s
brother, not only to show him it is not Brittany’s fault, but also to allow him to let out his
frustrations and thoughts.



   I would suggest family
   counseling if they feel those at-
   home conversations aren’t
   working well enough. Brittany’s
   parents can also bring her
   brother with them to any
   doctors appointments so he can
   be knowledgeable about what is
   going on around him.
Resources and Agencies in the Local
              Community




“A major responsibility of teachers is to refer children to the appropriate
    support and services. It is important that ECE’s know the local
              community services.” (Class Notes, week 5)
Resources/Agencies
• One great resource Brittany and her family can use
  would be www.ConnectABILITY.com – it has a lot of great
  resources and ideas that Brittany and her family can use
  and incorporate at home. It also has a lot of fun games
  and activities they could do together as a family.
Resources/Agencies
   • Toronto Public Library (Main Street
     location) is a public Library in the
     Toronto area where you can go to find
     books, videos, do research, classes,
     programs, exhibits and more.
     (torontopubliclibrary.ca)

      Located at:
      137 Main Street, Toronto, ON M4E
      2V9
      Telephone:
      416-393-7700
      Website:
      http://www.torontopubliclibrary.ca/




Good for helping Brittany and her
family to research things, being new to
Toronto, its good to know a library!
Resources/Agencies


     • Sick Kids Hospital is a
       hospital in the Toronto
       area that is dedicated to
       improving the health of
       children in the country
       (sickkids.ca)
                                                   “Each day we strive to provide better care than the day
                                                before, a pursuit of excellence that depends on learning, the
                                               critical link between new knowledge and its application in the
The Hospital for Sick Children                                  care of a sick child.” (sickkids.ca)
555 University Avenue
Toronto, Ontario
Canada                                                        Video from Sick Kids Hospital:
M5G 1X8
                                               http://www.youtube.com/user/SickKidsFoundation
Important contacts:
General inquiries: 416-813-1500
Patient information/locating: 416-813-6621
Ontario Poison Centre: 416-813-5900
Telehealth Ontario info line: 1-866-797-0000
Resources/Agencies
• Family Service Toronto is an                     MISSION
  agency that helps families and            “Family Service Toronto
  individuals with a wide variety       collaborates with individuals,
  of challenges. They assist        families and communities to create
  families and individuals          lasting, measurable improvements
  through counseling, advocacy,      in their health and well-being. We
  community development, and          achieve this through counseling,
  public education programs.         education, social action, advocacy,
                                        community development and
                                    working with partners to advance a
                                    vibrant community services sector.”
                                          (familyservicetoronto.org)
Resources/Agencies
                                          Family Service Toronto Cont’d…
                                                                           *Free Walk-In Counseling
                                                                           Wednesdays 4-8 pm – First-come-
  Phone: 416-595-9618 ; Office 416-595-9230
                                                                           first-served basis*
  Web site: www.familyservicetoronto.org
                                                                           (familyservicetoronto.org)
  Address: 355 Church St, Toronto, ON, M5B 1Z8
  Hours: Mon-Fri 9 am-5 pm * evening appointments available
  Languages of service: Many Different Languages Spoken
  Eligibility: Anyone living or working in City of Toronto, regardless of age,
  cultural background, race or sexual orientation, including children *
  particularly individuals and families with low incomes in need
  How to apply: Call Service Access Unit 416-595-9618 to discuss available
  programs and arrange appointment
  Fees: Geared to income * some services free
Information taken directly from 211toronto.ca
Resources/Agencies

• “Childs Life – Finding Fun
  Close to Home” is a great
  website that can be used
  to find any events or
  activities for children
  going on around in your
  community. It is also a
  place to show you events
  or shows that are
  upcoming. (childslife.ca)                             This resource would be a great
                                                        way for Brittany to meet new
                                                        friends and be social in the
                               Website:                 Toronto area.
                     http://childslife.ca/events/events_toronto.html
Bibliography
•   Bullard, Julie. Creating environments for learning: birth to age eight. Upper Saddle River, N.J.: Merrill, 2010. Print.
•   "Bloom syndrome - Genetics Home Reference." Genetics Home Reference - Your guide to understanding genetic
    conditions. N.p., n.d. Web. 2 Apr. 2013. <http://ghr.nlm.nih.gov/condition/bloom-syndrome>. (slide 3)
•   "Bloom Syndrome Symptoms, Diagnosis, Treatments and Causes - RightDiagnosis.com." Right Diagnosis. N.p., n.d.
    Web. 2 Apr. 2013. <http://www.rightdiagnosis.com/b/bloom_s
•   "What is Bloom Syndrome?." wiseGEEK: clear answers for common questions. N.p., n.d. Web. 3 Apr. 2013.
    <http://www.wisegeek.com/what-is-bloom-syndrome.htm>.
•   "Blooms Syndrome." 23andme. N.p., n.d. Web. 29 Mar. 2013. <https://www.23andme.com/health/Blooms-
    Syndrome/>.
•   "Bloom Syndrome | Emedicinezone."emedicinezone.com. N.p., n.d. Web. 3 Apr. 2013.
    <http://www.emedicinezone.com/pediatrics/bloom-syndrome>.
•   (Class Notes, Connectability Toy Workshop)
•   Class Notes, Connectability, Inclusion Workshop
•   "Bloom syndrome - Cream of the Crop."Cream Of The Crop - Natural Market, Juice Bar and Deli - Home Page. N.p.,
    n.d. Web. 3 Apr. 2013.
    <http://www.creamofthecropnatural.com/ns/DisplayMonograph.asp?StoreID=bb0f665fa17a417c847258f7c5f34b
    81&DocID=allergy-bloomsyndrome>.
Bibliography Cont’d
•   Connectability, Toy Shop Workshop).
•   "Materials/Equipment List." Preschool Child Care Centres. N.p., n.d. Web. 29 Mar. 2013.
    <http://www.gov.mb.ca/fs/childcare/pubs/
•   "ConnectABILITY | Resources for people with a developmental disability and their support networks." ConnectABILITY |
    Resources for people with a developmental disability and their support networks. N.p., n.d. Web. 29 Mar. 2013.
    <http://connectability.ca/>.
•   Kail, Robert V., and Theresa Zolner.Children: a chronological approach. 2nd Canadian ed. Toronto: Pearson Canada, 2005.
    Print.
•   "Wordle - Create." Wordle - Beautiful Word Clouds. N.p., n.d. Web. 3 Apr. 2013. <http://www.wordle.net/create>.
•   Reading Package – ECEP 233. “Inclusion of Children with Special Needs” – Centennial College Early Childhood Education
    2011
•   Class Notes – week 5. ECEP-233, “The Role of the Educator”
•   "211Toronto.ca - Organization or Program Information." 211Toronto.ca. N.p., n.d. Web. 4 Apr. 2013.
    <http://www.211toronto.ca/Gatekeeper?WebAppId=fht&RequestedSubmitAction=Or
•   "Main Street : Toronto Public Library."Home : Toronto Public Library. N.p., n.d. Web. 4 Apr. 2013.
    <http://www.torontopubliclibrary.ca/detail.jsp?Nr=p_cat_branch_name:Main%20Street>.
•   SickKidsFoundation. "SickKidsFoundation - YouTube." YouTube. N.p., n.d. Web. 4 Apr. 2013.
    <http://www.youtube.com/user/SickKidsFo
•   "Family Service Toronto." Family Service Toronto. N.p., n.d. Web. 4 Apr. 2013. <http://www.familyservicetoronto.org/>.
•   "Child’s Life | York Region, Durham & Toronto Kids Guide - Markham, Richmond Hill, Durham, Stouffville, Toronto, Vaughan."
    Markham, York Region, Durham Region | Kids Events, Kids Directory, Activities & Programs, Family Fun. N.p., n.d. Web. 4 Apr.
    2013. <http://childslife.ca/about/about.html>.
Pictures from
•   http://upload.wikimedia.org/wikipedia/commons/d/d3/Nelumno_nucifera_open_flower_-_botanic_garden_adelaide2.jpg
•   http://www.84444.ca/images/system_images/editor_images/subsite45/Toronto_Canada.jpg
•   http://www.brocku.ca/sites/default/files/Concurrent%20Education%20website%20picture.png
•   http://madisoncollege.edu/files/users/JMDyar/buildingblocks.jpg
•   http://www.4400ece.org/images/ece_home_hi.jpg
•   http://1.bp.blogspot.com/-N1vLbBZwtTM/TgVZXB2H2pI/AAAAAAAAAc8/h-ja4G2Tafc/s1600/rk8_teacher1.gif
•   https://23andme.https.internapcdn.net/res/img/phenotype/blooms/qrxveb-RjjBELXc0BUPIvg_23chromosomes2.jpg
•   http://4.bp.blogspot.com/-Ibri7sZ0BCs/UELoOsYI3cI/AAAAAAAABWw/7vvC3vb9_U0/s1600/1prevention.jpg
•   http://calgarypolitics.com/wp-content/uploads/2010/09/bowling.jpg
•   http://www.womenshealthmag.com/files/images/800-SS-0706-sunscreens_0.jpg
•   http://3.bp.blogspot.com/-6myFNM4E8zE/Tl0y-DSp9ZI/AAAAAAAAAbA/sJhItAum-vk/s1600/sunshine.png
•   http://www.v3im.com/wp-content/uploads/2010/10/socialmediacampaign1.jpg
•   http://futurity.org/wp-content/uploads/2010/03/siblings_autism_1.jpg
•   http://images.trademe.co.nz/photoserver/tq/251933429.jpg
•   http://www.wordle.net/create
•   http://teaching.monster.com/nfs/teaching/attachment_images/0004/6333/Picture_1_crop380w.png?1221246138
•   http://mysurgery.nshealth.ca/Style%20Library/Ortho/Images/Community.gif
•   http://www.rowancountync.gov/portals/0/Government/Departments/Health%20Department/images/Community_Resources.jpg
•   http://img.archiexpo.com/images_ae/photo-g/shade-structure-for-playground-11200-2901113.jpg
•   http://printable.tipjunkie.com/wp-content/uploads/2010/03/276__ex_1572.jpg
•   http://img.docstoccdn.com/thumb/orig/99921182.png
•   http://images.travelpod.com/users/siggymadda09/1.1246041842.welcome-to-toronto.jpg
•   http://www.torontopubliclibrary.ca/detail.jsp?Nr=p_cat_branch_name:Main%20Street
•   http://www.turkishcanada.org/images/event_photos/23_Nisan_2012_Sick_Kids/resim.jpg
    http://www.familyservicetoronto.org/
•   http://4.bp.blogspot.com/__N4J7S1MGhA/SclZ79rJ-BI/AAAAAAAAAbM/g-IKZUwf5wg/s400/Close-Up-Pink-Flower.jpg
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•   http://childslife.ca/about/about.html

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Powerpoint

  • 1. Meeting the Needs of Children and Families Part 1 By, Kellie Downing 300607008 Lisa McCaie ECEP - 233 Due: April 4th 2013
  • 2. Brittany’s family has moved from the sunny state of Florida to Toronto since her diagnosis of Bloom Syndrome. She has been assigned to your preschool room and will begin in a couple of days. Since the move Brittany is feeling sad because she misses her friends back home. Her brother is very mad at Brittany because he believes that the move is all her fault. His behavior is very difficult for the parents. They ask for your help. Exact Quote from Case Study (Case Study)
  • 3. Needs of the Child and Family Brittany has been diagnosed with Blooms Syndrome. This is going to cause changes in not only her life but her families as well. They had to move from the state of Florida to Toronto. Brittany is upset because she is missing her friends from her old house and school. She may be feeling lonely not being able to see and speak to her old friends all the time. It may take some time for her to find some new friends. Info from Case Study
  • 4. Needs of the Child and Family Cont’d Brittany’s family is new to the city of Toronto so they may not know many resources around the community. They are going to need some guidance and help with finding some agencies or resources they can access, if needed. One need or concern for Brittany and her family would be the fact that Brittany’s brother is blaming her for the move. This is causing Brittany’s brothers behavior to change. Info from Case Study
  • 5. Needs of the Child and Family Cont’d Brittany’s brother is blaming her for the move and is very mad at her. A need for this would be to allow Brittany and her brother resolve their issues towards one another about the move. Because Brittany has Bloom Syndrome, she is at a greater risk to cancer. Info from case study and wisegeek.com
  • 6. What is Bloom Syndrome? “Bloom Syndrome is a genetic condition characterized by a problem with the BLM gene, which normally governs recombination during cell division. Due to a malfunction in this gene, people with Bloom Syndrome experience chromosomal breakage and rearrangement, which can in turn cause a number of complications.” (wisegeek.com) Bloom Syndrome has no cure. Prevention is something that is always focused on, when it is possible. For someone who already has Bloom Syndrome, they can try and manage the symptoms it may cause. (wisegeek.com).
  • 7. Bloom Syndrome Cont’d “About one out of every 100 people with Ashkenazi Jewish ancestry carries a particular mutation known as BLMAsh. Almost every Jewish person known to have Bloom's syndrome has two copies of this mutation.” (www.23andme.com) Video: http://www.youtube.com/watch?v=1jNbeOR1ryI
  • 8. Symptoms of Bloom Syndrome “What are the symptoms of Bloom syndrome? - Growth delay. - Congenital telangiectatic erythema (dilated blood vessels) - Facial rash that developed shortly after first exposure to sun (Rash may be butterfly-shaped patch mainly on the cheeks). - Pigmentation changes in skin including hyper or hypo pigmented areas. - Café-au-lait spots - High pitch voice - Long and narrow face, micrognathism of the mandible and prominent nose and ears. - Immune deficiency characterized by recurrent respiratory tract infection like pneumonia and ear infection. - Most patients have Type 2 diabetes mellitus. - About 20% patients with bloom syndrome may develop malignancies like acute leukemia, lymphoma, and gastrointestinal adenocarcinoma.” (emedicinezone.com) All points taken from (www.emedicinezone.com)
  • 9. History of Bloom Syndrome The genetic disorder of Bloom Syndrome is named after Dr. David Bloom. He discovered the syndrome in 1954. The disorder is more commonly found in Eastern Europeans, including Ashkenazim. (wisegeek.com) In order for a child to have Bloom Syndrome both parents must carry the damaged gene. (wisegeek.com)
  • 10. How Bloom syndrome diagnosed? “Bloom syndrome is diagnosed by patient’s history; physical examination and lab test. Bloom syndrome is only confirmed by chromosomal study.” (emedicinezone.com) Looking for abnormal chromosomes in a sample of ones cells is the most common way to test for Bloom Syndrome. (23andme.com)
  • 11. Treating and Managing Bloom Syndrome Although Bloom Syndrome has no cure, there are still ways to treat and manage it. Cancer prevention is a main priority for individuals who have Bloom Syndrome. The screening process for cancer must be started very early on. (www.23andme.com) The most common cancer type for individuals with Bloom Syndrome is Colon Cancer. This cancer must be checked for and treated for way before anything else. It should also be checked more frequently than any other type of cancer. (www.23andme.com)
  • 12.
  • 13. Meeting the Needs Changes to Physical Environment Since Bloom Syndrome “Being outdoors provides can cause a rash from many benefits to exposure to sun one children’s health thing I would change to including the opportunity our physical to receive physical environment would be exercise. However, there to make sure outside in are two potential the playground there is concerns that we must be a set place that has aware of so that we can shade. Not just a spot in provide protection the corner with some against them. These are shade but a big area the use of arsenic on created that the child playground equipment can expand and play and ultraviolet rays from like everyone else. the sun” (Bullard, page 335).
  • 14. Meeting the Needs Changes to Physical Environment Cont’d This change in the environment would not only benefit a child who has Bloom Syndrome but as well as all the children in the environment as well. Having protection from the sun is something everyone in the room can be included in and benefit from. “To protect children, it is important to provide shade on the playground. This can be both natural shade from trees and bushes, and human-made shade.” (Bullard, page 335).
  • 15. Meeting the Needs Changes to Classroom Environment Cont’d Brittany should be able to sit with her friends at the tables in our classroom for any activities. Which is why chairs or desks must be at a level she too can be comfortable at as well. “The materials and equipment should be accessible to children where they can reach and use the materials by themselves with adaptations to furniture to meet all children’s needs” (gov.mb.ca) Also when Brittany needs to use the sink or maybe reach onto a small shelf I will make sure to incorporate step stools around the classroom so she can access them.
  • 16. Meeting the Needs Changes to Physical Environment In the classroom, I will make sure to have no scented lotions or creams that may cause irritation. I will make sure to always have specific sunscreen for Brittany, through conversations with her parents we can find out which ones are best suited for her. As well as any creams her parents use for her when she may get a rash. In the environment I will make sure to keep hats as well, not just for Brittany but for all the children as well. To make sure they can keep their heads and faces protected from the sun.
  • 17. Meeting the Needs Changes to Physical Environment Cont’d Since Brittany will be new to this center and doesn’t know any of the children. I will make sure to set up the environment in a way where she can be sociable without being forced to. I would do this by allowing centers and areas to be a place for more than 1 child so she would be included. As well as also setting up a lot of group activities to make Brittany feel welcome and get her interacting right away. This also will help all the other children to be more social and will take less time to incorporate Brittany into their friendships. “All children benefit from inclusion with others. Better social and adaptive skills.” (Class Notes, Connectability, Inclusion Workshop)
  • 18. Meeting the Needs Changes to Physical Environment Cont’d Growth delay is a symptom seen in children with Bloom Syndrome. So practicing motor skills with children can help to increase skills in that area. For Brittany, as well as her classmates I would make sure to set up Motor Skill areas within the classroom. Things that can help her to develop and practice her motor skills over and over. I would include a bowling game within the classroom. “Model by tapping your chest, stating “my turn” before throwing the ball. Set up again and repeat for “your turn”” (Class Notes, Connectability Toy Workshop). This game would also be good to help Brittany meet new friends in a social interactions. “In many ways, the ways you include a child with physical differ-ences or impairments will benefit all children in your care.” (ces.ncsu.edu)
  • 19. Meeting the Needs - Strategies Gross Motor Skills could be practiced through the activity of “Feed the Clown: Position your child with (his) back against the wall. The act of throwing will encourage him to move away briefly and to balance in the standing position. Gradually move further away from the wall.” (Connectability, Toy Shop Workshop). This activity is a great way to get Brittany to use more of her gross motor development, as well as practicing her balance. It can also involve other children as well to help her social development as well. Through the preschool years, children move beyond simple walking to running and jumping and other complex motor skills that require greater coordination and precise timing of movements, such as swinging.” (Kail, 228)
  • 20. Meeting the Needs - Strategies For Fine Motor Skills an activity I would include would be “Scarf-in-a Bottle: Provide hand over hand assistance as the child grasps the toy to place it into the bottle and then grasping the end of the scarf to remove it. The child is expected to poke it into the bottle until fully inserted.” (Connectability, Toy Shop Workshop). This activity would be good for Brittany because it would encourage “Preschool children become much more her to use her fine motor dexterous, able to make many precise and skills such as pushing and delicate movements with their hands and pulling through with her fingers. Improved fine motor skills means fingers. that school children can begin to care for themselves.” (Kail, 229)
  • 21. Meeting the Needs - Strategies In order to help For example, using the Brittany become story “Tucker the Turtle familiar with the Takes Time to Tuck and classroom and other Think” (Rochelle Lentini) children, and to help and allowing Brittany to her feel comfortable I be interactive with the would allow a time for process of the story as her to be sociable in a well as participating in group. the actions alongside her peers. Tucker the Turtle taken from Class Notes and story. (ECEP-233)
  • 22. Meeting the Needs - Strategies Routine Posters will be kept up around the classroom as well, including what to wear during those activities. For example “Outdoor Activity (summer): hats, sun lotion etc”. These posters would be also near the children’s cubbies. That way, when they are getting ready to go outside. Also I would make sure to allow children enough time daily to get their sunscreen applied and put on their hats. “place transition times on the daily schedule and on the daily plan.” (Bullard, 60).
  • 23. Meeting the Needs Any of the changes made to the environment or any teaching strategies used would be beneficial to other children in the classroom as well. The environment will be including for Brittany, but wont be spotlighting her either. This allows equal opportunity for all children within the classroom. “Play, engaged in by children throughout the world, is a very important vehicle for children's development. A rich environment can support children's’ play, providing social, emotional, physical, and cognitive benefits.” (Bullard, 6).
  • 24. Meeting the Needs – Strategies for Working with Parents I would always make sure Brittany’s parents know they can approach me at any time and that if they have any concerns or questions in the future to not hesitate and let me know. “Create and open door atmosphere from the start.” (Connectability, Inclusion Workshop”. Daily Journals of Brittany’s daily activities, anything parents should know. This keeps parents informed and allows room for parent-questions. “Maintaining open communication with a child’s family is very important but sometimes difficult to do. A communication book allows child care staff and parents to exchange a few written words about the child's day or This can also allow the parents an night, share information about appointments or special events and it opportunity to be familiar with can also be used as a record-keeping the strategies we use in class with tool.” (Reading Package, Unit 5, page Brittany and the other children 1). and will gave them the chance to try them out at home.
  • 25. Meeting the Needs – Strategies for Working with Parents Having Conversations with the parents, and finding out what they want and need from the childcare setting and how I and the other staff can help make them feel as comfortable as possible. I would also make sure to present the Brittany and her family resources in the community that could help them out as well. “A major responsibility of teachers is to refer children to the appropriate support and services. It is important that ECE’s know the local community services.” (Class Notes, week 5)
  • 26. Meeting the Needs – Strategies for Working with Parents In order to meet the need of Brittany’s brother having anger towards her for the family move, I would suggest the parents sit down with him and have a conversation about why they had to move and discuss all the ways it can be a good thing. I would encourage them to use positive wording about the new city and allow Brittany’s brother a chance to speak his mind as well. They should continue to have conversations like this daily with Brittany’s brother, not only to show him it is not Brittany’s fault, but also to allow him to let out his frustrations and thoughts. I would suggest family counseling if they feel those at- home conversations aren’t working well enough. Brittany’s parents can also bring her brother with them to any doctors appointments so he can be knowledgeable about what is going on around him.
  • 27. Resources and Agencies in the Local Community “A major responsibility of teachers is to refer children to the appropriate support and services. It is important that ECE’s know the local community services.” (Class Notes, week 5)
  • 28. Resources/Agencies • One great resource Brittany and her family can use would be www.ConnectABILITY.com – it has a lot of great resources and ideas that Brittany and her family can use and incorporate at home. It also has a lot of fun games and activities they could do together as a family.
  • 29. Resources/Agencies • Toronto Public Library (Main Street location) is a public Library in the Toronto area where you can go to find books, videos, do research, classes, programs, exhibits and more. (torontopubliclibrary.ca) Located at: 137 Main Street, Toronto, ON M4E 2V9 Telephone: 416-393-7700 Website: http://www.torontopubliclibrary.ca/ Good for helping Brittany and her family to research things, being new to Toronto, its good to know a library!
  • 30. Resources/Agencies • Sick Kids Hospital is a hospital in the Toronto area that is dedicated to improving the health of children in the country (sickkids.ca) “Each day we strive to provide better care than the day before, a pursuit of excellence that depends on learning, the critical link between new knowledge and its application in the The Hospital for Sick Children care of a sick child.” (sickkids.ca) 555 University Avenue Toronto, Ontario Canada Video from Sick Kids Hospital: M5G 1X8 http://www.youtube.com/user/SickKidsFoundation Important contacts: General inquiries: 416-813-1500 Patient information/locating: 416-813-6621 Ontario Poison Centre: 416-813-5900 Telehealth Ontario info line: 1-866-797-0000
  • 31. Resources/Agencies • Family Service Toronto is an MISSION agency that helps families and “Family Service Toronto individuals with a wide variety collaborates with individuals, of challenges. They assist families and communities to create families and individuals lasting, measurable improvements through counseling, advocacy, in their health and well-being. We community development, and achieve this through counseling, public education programs. education, social action, advocacy, community development and working with partners to advance a vibrant community services sector.” (familyservicetoronto.org)
  • 32. Resources/Agencies Family Service Toronto Cont’d… *Free Walk-In Counseling Wednesdays 4-8 pm – First-come- Phone: 416-595-9618 ; Office 416-595-9230 first-served basis* Web site: www.familyservicetoronto.org (familyservicetoronto.org) Address: 355 Church St, Toronto, ON, M5B 1Z8 Hours: Mon-Fri 9 am-5 pm * evening appointments available Languages of service: Many Different Languages Spoken Eligibility: Anyone living or working in City of Toronto, regardless of age, cultural background, race or sexual orientation, including children * particularly individuals and families with low incomes in need How to apply: Call Service Access Unit 416-595-9618 to discuss available programs and arrange appointment Fees: Geared to income * some services free Information taken directly from 211toronto.ca
  • 33. Resources/Agencies • “Childs Life – Finding Fun Close to Home” is a great website that can be used to find any events or activities for children going on around in your community. It is also a place to show you events or shows that are upcoming. (childslife.ca) This resource would be a great way for Brittany to meet new friends and be social in the Website: Toronto area. http://childslife.ca/events/events_toronto.html
  • 34. Bibliography • Bullard, Julie. Creating environments for learning: birth to age eight. Upper Saddle River, N.J.: Merrill, 2010. Print. • "Bloom syndrome - Genetics Home Reference." Genetics Home Reference - Your guide to understanding genetic conditions. N.p., n.d. Web. 2 Apr. 2013. <http://ghr.nlm.nih.gov/condition/bloom-syndrome>. (slide 3) • "Bloom Syndrome Symptoms, Diagnosis, Treatments and Causes - RightDiagnosis.com." Right Diagnosis. N.p., n.d. Web. 2 Apr. 2013. <http://www.rightdiagnosis.com/b/bloom_s • "What is Bloom Syndrome?." wiseGEEK: clear answers for common questions. N.p., n.d. Web. 3 Apr. 2013. <http://www.wisegeek.com/what-is-bloom-syndrome.htm>. • "Blooms Syndrome." 23andme. N.p., n.d. Web. 29 Mar. 2013. <https://www.23andme.com/health/Blooms- Syndrome/>. • "Bloom Syndrome | Emedicinezone."emedicinezone.com. N.p., n.d. Web. 3 Apr. 2013. <http://www.emedicinezone.com/pediatrics/bloom-syndrome>. • (Class Notes, Connectability Toy Workshop) • Class Notes, Connectability, Inclusion Workshop • "Bloom syndrome - Cream of the Crop."Cream Of The Crop - Natural Market, Juice Bar and Deli - Home Page. N.p., n.d. Web. 3 Apr. 2013. <http://www.creamofthecropnatural.com/ns/DisplayMonograph.asp?StoreID=bb0f665fa17a417c847258f7c5f34b 81&DocID=allergy-bloomsyndrome>.
  • 35. Bibliography Cont’d • Connectability, Toy Shop Workshop). • "Materials/Equipment List." Preschool Child Care Centres. N.p., n.d. Web. 29 Mar. 2013. <http://www.gov.mb.ca/fs/childcare/pubs/ • "ConnectABILITY | Resources for people with a developmental disability and their support networks." ConnectABILITY | Resources for people with a developmental disability and their support networks. N.p., n.d. Web. 29 Mar. 2013. <http://connectability.ca/>. • Kail, Robert V., and Theresa Zolner.Children: a chronological approach. 2nd Canadian ed. Toronto: Pearson Canada, 2005. Print. • "Wordle - Create." Wordle - Beautiful Word Clouds. N.p., n.d. Web. 3 Apr. 2013. <http://www.wordle.net/create>. • Reading Package – ECEP 233. “Inclusion of Children with Special Needs” – Centennial College Early Childhood Education 2011 • Class Notes – week 5. ECEP-233, “The Role of the Educator” • "211Toronto.ca - Organization or Program Information." 211Toronto.ca. N.p., n.d. Web. 4 Apr. 2013. <http://www.211toronto.ca/Gatekeeper?WebAppId=fht&RequestedSubmitAction=Or • "Main Street : Toronto Public Library."Home : Toronto Public Library. N.p., n.d. Web. 4 Apr. 2013. <http://www.torontopubliclibrary.ca/detail.jsp?Nr=p_cat_branch_name:Main%20Street>. • SickKidsFoundation. "SickKidsFoundation - YouTube." YouTube. N.p., n.d. Web. 4 Apr. 2013. <http://www.youtube.com/user/SickKidsFo • "Family Service Toronto." Family Service Toronto. N.p., n.d. Web. 4 Apr. 2013. <http://www.familyservicetoronto.org/>. • "Child’s Life | York Region, Durham & Toronto Kids Guide - Markham, Richmond Hill, Durham, Stouffville, Toronto, Vaughan." Markham, York Region, Durham Region | Kids Events, Kids Directory, Activities & Programs, Family Fun. N.p., n.d. Web. 4 Apr. 2013. <http://childslife.ca/about/about.html>.
  • 36. Pictures from • http://upload.wikimedia.org/wikipedia/commons/d/d3/Nelumno_nucifera_open_flower_-_botanic_garden_adelaide2.jpg • http://www.84444.ca/images/system_images/editor_images/subsite45/Toronto_Canada.jpg • http://www.brocku.ca/sites/default/files/Concurrent%20Education%20website%20picture.png • http://madisoncollege.edu/files/users/JMDyar/buildingblocks.jpg • http://www.4400ece.org/images/ece_home_hi.jpg • http://1.bp.blogspot.com/-N1vLbBZwtTM/TgVZXB2H2pI/AAAAAAAAAc8/h-ja4G2Tafc/s1600/rk8_teacher1.gif • https://23andme.https.internapcdn.net/res/img/phenotype/blooms/qrxveb-RjjBELXc0BUPIvg_23chromosomes2.jpg • http://4.bp.blogspot.com/-Ibri7sZ0BCs/UELoOsYI3cI/AAAAAAAABWw/7vvC3vb9_U0/s1600/1prevention.jpg • http://calgarypolitics.com/wp-content/uploads/2010/09/bowling.jpg • http://www.womenshealthmag.com/files/images/800-SS-0706-sunscreens_0.jpg • http://3.bp.blogspot.com/-6myFNM4E8zE/Tl0y-DSp9ZI/AAAAAAAAAbA/sJhItAum-vk/s1600/sunshine.png • http://www.v3im.com/wp-content/uploads/2010/10/socialmediacampaign1.jpg • http://futurity.org/wp-content/uploads/2010/03/siblings_autism_1.jpg • http://images.trademe.co.nz/photoserver/tq/251933429.jpg • http://www.wordle.net/create • http://teaching.monster.com/nfs/teaching/attachment_images/0004/6333/Picture_1_crop380w.png?1221246138 • http://mysurgery.nshealth.ca/Style%20Library/Ortho/Images/Community.gif • http://www.rowancountync.gov/portals/0/Government/Departments/Health%20Department/images/Community_Resources.jpg • http://img.archiexpo.com/images_ae/photo-g/shade-structure-for-playground-11200-2901113.jpg • http://printable.tipjunkie.com/wp-content/uploads/2010/03/276__ex_1572.jpg • http://img.docstoccdn.com/thumb/orig/99921182.png • http://images.travelpod.com/users/siggymadda09/1.1246041842.welcome-to-toronto.jpg • http://www.torontopubliclibrary.ca/detail.jsp?Nr=p_cat_branch_name:Main%20Street • http://www.turkishcanada.org/images/event_photos/23_Nisan_2012_Sick_Kids/resim.jpg http://www.familyservicetoronto.org/ • http://4.bp.blogspot.com/__N4J7S1MGhA/SclZ79rJ-BI/AAAAAAAAAbM/g-IKZUwf5wg/s400/Close-Up-Pink-Flower.jpg • http://www.hangthebankers.com/wp-content/uploads/2012/09/ring-around-the-rosie-childs-play.jpg • http://childslife.ca/about/about.html