Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Pei-Yun Sabrina HSUEH, , Michael MARSCHOLLEK, Yardena PERES, Stefan von CAVALLAR and Fernando J. MARTIN-SANCHEZ
IBM T.J. Watson Research Center, Yorktown Heights, NY, USA
Hannover Medical School, Germany
IBM Research Lab in Haifa, Israel
IBM Research Lab in Melbourne, Australia
Melbourne Medical School, Australia
Mobile computing, wearable and embedded tech entail new and different styles of healthcare data processing, clinical and wellness decision support, and patient engagement schemes. This is especially important to the preventive and disease management scenarios that require better understanding of disease progression previously unable to achieve due to the lack of reliable means to capture granular patient-generated data in non-clinical settings. The new sources of data, when coupled with a framework to integrate analytical insights with feasible service models, enable reliable detection of inflection points, habit formation cycles and assessments of treatment efficacy. Research into data collection, recording, management and analysis of behavioral manisfestations and triggers will help address these challenges in areas spanning from simple fall detection to situations requiring complicated, multi-modal health monitoring such as Alzheimer’s progression and other adherence management cases. Leveraging recent advance in health devices and sensors as well as expertise in healthcare practice and informatics, the proposed workshop will help form a deeper understanding of requirements on patient-controlled devices to address unique healthcare challenges, identify care flow gaps and translate these findings to the design of platforms for patient-controlled devices and a portfolio of potential service models for preventive care and disease management.
The Future of Medical Education From Dreams to Reality (VR, AR, AI)SeriousGamesAssoc
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Interactive Technologies and Games (ITAG) Conference 2016
Health, Disability and EducationDates: Wednesday 26 October 2016 - Thursday 27 October 2016 Location: The Council House, NG1 2DT
The Future of Medical Education From Dreams to Reality (VR, AR, AI)SeriousGamesAssoc
With three decades of e-learning experience, Dr. Levy will present innovations in technology-enhanced education from the past, present, and into the future. He will highlight some of his medical education inventions and advances including some of the first laser discs, CD-ROMs, online case-based education, 3-D anatomical and procedural animations, robotic-assisted surgery, and virtual reality surgical simulation. He will describe the role of artificial intelligence and machine learning in medical education and clinical decision support and some future work in augmented reality. It is true that what were once dreams are now reality, but there are certainly more dreams to come.
Support Dementia: using wearable assistive technology and analysing real-time data (Fehmida Mohamedali and Nasser Matoorian)
Interactive Technologies and Games (ITAG) Conference 2016
Health, Disability and EducationDates: Wednesday 26 October 2016 - Thursday 27 October 2016 Location: The Council House, NG1 2DT
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Healthcare is shifting from the traditional provider-centric,
in-patient setting to patient-centric, virtual consultations
with increased remote care monitoring. This transition
has prompted the need for MedTech industry to relook
at the products they develop and enhance value in care
delivery.
The COVID-19 pandemic has increased the use of
digital health technologies, and the need to develop
innovative devices or systems that support virtual
health. The last couple of years have seen increased
use of wearables, mobile and app-based technologies
along with data and analytics have been transforming
healthcare delivery.
Advancements in healthcare technologies like
Artificial Intelligence (AI), Virtual Reality and Augmented
Reality 3D-printing, robotics and nanotechnology are
shaping the future of healthcare. This technology boom
is helping address disease and medical conditions
through provision of cheaper, faster and more effective
solutions for diseases.
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Welcome to the age of cognitive computing: where intelligent machines have
moved from the realms of science fiction to the present day. This groundbreaking
technology is driving advanced discoveries and allowing improved decision-making –
resulting in better patient care
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Workshop: Effective Patient Adherence Management by Engaging Enabling Technologies
Pei-Yun Sabrina Hsueha, Vimla L. Patelb, Fernando Sanchezc, Marcia Itod,e, Chohreh Partoviana, María V. Giussi Bordonig, Marion Ballf,a
a IBM T.J. Watson Research Center, Yorktown Heights, NY, USA
b Center for Cognitive Studies in Medicine and Public Health, the New York Academy of Medicine, New York, NY, USA
c Health and Biomedical Informatics Center, University of Melbourne, Melbourne, Australia
d IBM Brazil Research Lab, Sao Paolo, Brazil
e Telehealth/Teledentistry Center, School of Dentistry, University of Sao Paulo, Sao Paulo, Brazil
f Johns Hopkins University, Baltimore, MD, USA
g Health Informatics Department, Hospital Italiano de Buenos Aires, Argentina.
Abstract
Effective patient adherence management strategies require better understanding of patient-generated data, including patient-reported data and measurements from devices and sensors, as key to assisting providers in learning more about their patients’needs and enhancing patient centric care. Gaining “meaningful use” of patient-generated data could ultimately lead to improvements in patient safety and outcomes. In this workshop, we review proof of concept studies using technology to assess patient health literacy and self-efficacy with the goal of providing timely intervention, remedy, and improvements in cost and quality of care. In particular, we focus on engagement-enabling technolgoies that can leverage non-clinical information sources and reflect patient activities in the “wild”. We look into barriers to adherence, patients and providers roles in improving adherence, and the use of technology to assist patients in staying on track. The speakers will address the issues related tothe integration of patient-generated data into everyday life and clinical practice and share lessons learned from implementing these designs in practice. This workshop aims to share requirements gathered for the design of next-generation healthcare systems, especially in areas where the explosive availability of patient-generated data is expected to make impacts.
The Power of Sensors in health & healthcareD3 Consutling
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New Normal, New Future - Free Download E bookkevin brown
Healthcare is shifting from the traditional provider-centric,
in-patient setting to patient-centric, virtual consultations
with increased remote care monitoring. This transition
has prompted the need for MedTech industry to relook
at the products they develop and enhance value in care
delivery.
The COVID-19 pandemic has increased the use of
digital health technologies, and the need to develop
innovative devices or systems that support virtual
health. The last couple of years have seen increased
use of wearables, mobile and app-based technologies
along with data and analytics have been transforming
healthcare delivery.
Advancements in healthcare technologies like
Artificial Intelligence (AI), Virtual Reality and Augmented
Reality 3D-printing, robotics and nanotechnology are
shaping the future of healthcare. This technology boom
is helping address disease and medical conditions
through provision of cheaper, faster and more effective
solutions for diseases.
Introduction to Health Informatics and Health Information Technology (Part 1)...Nawanan Theera-Ampornpunt
Presented at the Health Informatics and Health Information Technology Course, Doctor of Philosophy and Master of Science Programs in Data Science for Health Care (International Program), Faculty of Medicine Ramathibodi Hospital, Mahidol University on October 3, 2017
Welcome to the age of cognitive computing: where intelligent machines have
moved from the realms of science fiction to the present day. This groundbreaking
technology is driving advanced discoveries and allowing improved decision-making –
resulting in better patient care
Optimising maternal & child healthcare in India through the integrated use of...Skannd Tyagi
This paper is a literature review on the present condition of pre-natal and post-natal Maternal and Child healthcare in Rural India. This is a first step on finding the several possibilities using AI, Big Data and Telemedicine in identifying patterns and provide more structured and streamlined support to rural and semi-urban communities. Our endeavour with this research paper is to identify the pain points and attempt to find solutions using current technologies.
Startupfest 2015: DR. JONATHAN KANEVSKY - "Future of" stageStartupfest
The future of medicine
The future of medicine is bright. In the era of big data, nanotechnology, and advanced robotics, medicine is becoming more advanced than ever. Dr. Kanevsky will outline the most interesting innovations in medicine and surgery that are changing the face of healthcare.
Workshop: Effective Patient Adherence Management by Engaging Enabling Technologies
Pei-Yun Sabrina Hsueha, Vimla L. Patelb, Fernando Sanchezc, Marcia Itod,e, Chohreh Partoviana, María V. Giussi Bordonig, Marion Ballf,a
a IBM T.J. Watson Research Center, Yorktown Heights, NY, USA
b Center for Cognitive Studies in Medicine and Public Health, the New York Academy of Medicine, New York, NY, USA
c Health and Biomedical Informatics Center, University of Melbourne, Melbourne, Australia
d IBM Brazil Research Lab, Sao Paolo, Brazil
e Telehealth/Teledentistry Center, School of Dentistry, University of Sao Paulo, Sao Paulo, Brazil
f Johns Hopkins University, Baltimore, MD, USA
g Health Informatics Department, Hospital Italiano de Buenos Aires, Argentina.
Abstract
Effective patient adherence management strategies require better understanding of patient-generated data, including patient-reported data and measurements from devices and sensors, as key to assisting providers in learning more about their patients’needs and enhancing patient centric care. Gaining “meaningful use” of patient-generated data could ultimately lead to improvements in patient safety and outcomes. In this workshop, we review proof of concept studies using technology to assess patient health literacy and self-efficacy with the goal of providing timely intervention, remedy, and improvements in cost and quality of care. In particular, we focus on engagement-enabling technolgoies that can leverage non-clinical information sources and reflect patient activities in the “wild”. We look into barriers to adherence, patients and providers roles in improving adherence, and the use of technology to assist patients in staying on track. The speakers will address the issues related tothe integration of patient-generated data into everyday life and clinical practice and share lessons learned from implementing these designs in practice. This workshop aims to share requirements gathered for the design of next-generation healthcare systems, especially in areas where the explosive availability of patient-generated data is expected to make impacts.
The Power of Sensors in health & healthcareD3 Consutling
In a series of reports we explore key digital health trends and related opportunities for technology companies, healthcare providers and patients-consumers. We take both an international and Flemish perspective, the latter based on interviews with local stakeholders. In this report we focus on sensor-based applications.
Big Data, CEP and IoT : Redefining Holistic Healthcare Information Systems an...Tauseef Naquishbandi
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The integration of data analytics in healthcare contributes to more informed decision-making, better patient outcomes, and increased efficiency throughout the healthcare ecosystem. It also paves the way for ongoing advancements in the field of medical research and healthcare delivery.
MIE Medical Informatics in Europe: European Federation for Medical Informatics (EFMI) annual meeting
Worklshop: Addressing Patient Adherence Issues by Engaging Enabling Technologies
Chair: Pei-Yun Sabrina Hsueh (IBM T.J. Watson Research Center)
Pei-Yun Sabrina HSUEHa, , Marion BALL b,a, Michael MARSCHOLLEKc, Fernando J. MARTIN-SANCHEZd , Chohreh PARTOVIANa, and Vimla PATELe
aIBM T.J. Watson Research Center, NY, USA
b John Hopkins University, MD, USA
c Hannover Medical School, Germany
d Melbourne Medical School, Australia
e Center for Cognitive Studies in Medicine and Public Health, The New York Academy, USA
Abstract One of the well known issues providers have contended with for many years is the issue of patients’ adherence to their care plans and medications outside clinical encounters. In this workshop, we review proof of concept studies using technology at the point of care to assess patient literacy and self-efficacy to provide timely intervention, remedy, and improvements in cost and quality. We focus on patient-generated information, including patient reported data and measurements from devices and sensors, as key to improving patient safety, gaining “meaningful use” data, improving patient centric care, and assisting providers in learning more about their patient needs to improve outcomes. We look into barriers to adherence, basic understanding of the patients and providers roles in improving adherence, and the use of technology to assist patients in staying on track. The participants will address their findings in the integration of patient-generated information into everyday life and clinical practice and share lessons learned from implementing these designs in practice. This workshop aims to share requirements for the next-generation healthcare systems, especially in areas where the explosive availability of patient-generated data is expected to make impacts.
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Mie2014 workshop: Gap Analysis of Personalized Health Services through Patient-Controlled Devices
1. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Gap Analysis of Insight-Driven
Personalized Health Services through
Patient-Controlled Devices
MIE 2014 Workshop 510 W17 25
TUESDAY 17:00 - 18:30
Pei-Yun Sabrina Hsueh, Michael Marschollek, Yardena Peres, Stefan Von Cavallar,
Fernando Martin Sanchez
2. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Logistics
• 17:00-17:15 Opening Remark
• Key drivers and problems being addressed (Dr, Hsueh, IBM T.J. Watson Research)
• 17:15-18:10 Presentations
• Overview of service classes for health-enabling technologies for elderly and a physician’s view
in relevant applications in the future (Prof. Marschollek, Hanover Medical School).
• Enablers for successful development of mobile health solution– mobile health solution
requirements and challenges for scaling up and realizing its full potential (Mr. von Cavallar,
IBM Research Australia)
• Enablers for applications in research and potential clinical use – the need for standardised
reporting guidelines in self-monitoring experiments (Prof. Martin-Sanchez, Melbourne
Medical School)
• Business aspects of insight-driven Personalized Health Services through Patient-Controlled
Devices (Dr. Peres, IBM Research Haifa)
• Development of Temporal Context-based Feature Abstractions for Enabling Monitoring and
Managing of Interventions (Dr. Hsueh)
• 18:10-18:30 Workshop discussion (gap analysis, requirement
gathering)/audience Q&A
• 1. Implications and lessons learned from the case studies -- especially the gaps you perceived
as barriers of entry
• 2. Requirements for successful redesign of healthcare systems to accommodate patient-generated
information (with a sub-goal of identifying the areas where such information can
make most impacts).
Please leave your email and questions (if any)….
3. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Pei-Yun (Sabrina) Hsueh, PhD
Wellness Analytics Lead
Global Technology Outlook Healthcare Topic co-Lead
Health Informatics Research Group
IBM T. J. Watson Research Center
• Research focus: Insight-driven Healthcare service design via
wearables and biosensor devices/implants, Patient-generation info,
Personalization analytics, Patient engagement & Adherence risk
mitigation
4. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Elder population and care costs are growing annually, but no reliable
solutions for early detection and efficacy monitoring
4 IBM Confidential
4
Elderly population expected
to double by 2030 in US
Annual per capita healthcare costs
grows significantly with age
Early detection and efficacy
monitoring are key
Cognitive health is imperiled by the
lack of reliable solutions
1 in 3 seniors dies with
Alzheimer’s or other
dementia. Up to 72%
of cases are
misdiagnosed at the
PCP level
In 2013, Alzheimer’s will
cost US $203 billion.
This number is
expected to rise to
$1.2 trillion by 2050.
5. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Holistic View of Determinants of Health to Personalized Services
Endogenous determinant
(e.g., genetics predisposition)
Clinical determinant
(e.g., care flow, care delivery)
Exogenous determinant
(e,g, environment, behavioral
social factors)
30%
10%
60%
SA Schroder. We can do better - Improving the Health of the Amarican People. NEJM 2007;357:1221-8.
Cardiovascul
ar disease
(73-83%)
(NHS, NEJM 2000)
Type II Diabetes
(58-91%)
(Finland DPS, NEJM 2001, 2007)
(US NHS, 2000; CDC DPP,
2002)(China Da-Qing, 2001)
Cancer
(60-69%)
(HALE, JAMA 2004;
de lorgeril Arch
Intern Med, 1998)
Personalized Medicine
Personalized Care
Personalized Prevention and
Disease Management
Cardiovascular
complication (42-57%)
(UKPDS, US EDIC)
Eye complication
(76%), Kidney
complication (50%),
Nerve complication
(60%)
(UKPDS, US DCCT)
Huge opportunity space for risk reduction:
Progress impeded by the lack of granular data capturing tools!
6. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Technology barriers are lower than ever.
A whole array of patient-controlled devices are on the rise….
fall sensor in a pocket
adhesive vitals sensor
6 IBM Confidential
stretch sensors
gait analysis in a pocket
vitals sensor in t-shirt
insole sensors
e-textile wireless ECG
Cardiac monitoring systems
Requires ultra-low power adaptive
circuits, non-intrusive form factors
OpenBCI
7. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
7
Wearable/IOT computing is the new mobile
“Three medical technology stories to watch
in these areas will be wearable technologies
for fitness, aging-in-place technologies, and
real-time monitoring. ”
—Forbes, “Medical technology stories to
watch in CES 2014” (Jan 2, 2014)
“Wearable tech will be as big as the
smartphone.”
—Wired, Cover story (Dec 17, 2013)
• Quantified self (27% of US users) - IDC Report, 2014
• From IOT to “Internet of Everything” (IOE): 30-50 bn devices in 2020
- Gartners Report, 2014
• IoT enabled “Connected Life” market forecast in 2020: Clinical Remote Monitoring
and Assisted Living to be the 2nd and 3rd largest mkt
- IDC Report, 2014
8. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Healthcare is being re-imagined by bringing together high-growth,
high-value patient generated information and EMR data
9. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Healthcare becoming both Personal and Collaborative
The Creative Destruction of Medicine: How Digital Revolution will Create Better
Healthcare (Eric Topol, 2012)
(1) What are the implications and lessons? What are the gaps as barriers of entry?
(2) What are the Requirements for successful redesign of healthcare systems to
accommodate patient-generated information? What are the areas where such
information can make most impacts?
1990 Empirical Medicine
Intuitive Medicine
Personalized Service
Patient-Centric
Service
Disease-Centric
Guideline
Century of
behavior change
Precision Medicine
Degree of personalization
Degree of collaboration
(data dimension)
Data-Driven
Evidence
10. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Workshop Theme
• 1. Implications and lessons learned from the case
studies -- especially the gaps you perceived as
barriers of entry
• 2. Requirements for successful redesign of
healthcare systems to accommodate patient-generated
information (with a sub-goal of identifying
the areas where such information can make most
impacts).
11. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
INTRODUCTION
• 17:00-17:15 Opening Remark
• Key drivers and problems being addressed (Dr, Hsueh, IBM T.J. Watson Research)
• 17:15-18:10 Presentations
• Overview of service classes for health-enabling technologies for elderly and a physician’s view
in relevant applications in the future (Prof. Marschollek, Hanover Medical School).
• Enablers for successful development of mobile health solution– mobile health solution
requirements and challenges for scaling up and realizing its full potential (Mr. von Cavallar,
IBM Research Australia)
• Enablers for applications in research and potential clinical use – the need for standardised
reporting guidelines in self-monitoring experiments (Prof. Martin-Sanchez, Melbourne
Medical School)
• Business aspects of insight-driven Personalized Health Services through Patient-Controlled
Devices (Dr. Peres, IBM Research Haifa)
• Development of Temporal Context-based Feature Abstractions for Enabling Monitoring and
Managing of Interventions (Dr. Hsueh)
• 18:10-18:30 Workshop discussion (gap analysis, requirement
gathering)/audience Q&A
• 1. Implications and lessons learned from the case studies -- especially the gaps you perceived
as barriers of entry
• 2. Requirements for successful redesign of healthcare systems to accommodate patient-generated
information (with a sub-goal of identifying the areas where such information can
make most impacts).
12. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Service classes of health-enabling technologies –
relevant applications in the future
Michael Marschollek
13. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Wearables – just nice toys?
? ? ? ?
Good medicine and good healthcare
demand good information
14. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Wearables – just nice toys?
more data, (hopefully) more information
more accurate diagnoses
early detection of subtle changes, disease onset
better, targeted treatment
• Niilo Saranummis‘s 3 ‚P‘s:
– pervasive technologies
shall enable semantically interoperable platforms to communicate and store health data
– personal services
using sensor technologies for continuously measuring health-related data of an
individual; to support her or him at specific health problems
– personalized decision support
adapted, ‘tuned’ to the individual’s norm, not to averages in populations (not one-size-fits-
all)
Saranummi N. IT applications for pervasive, personal, and
personalized health. IEEE Trans Inf Technol Biomed. 2008; 12: 1-4.
15. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Haux R et al.. Inform Health Soc Care. 2010 Sep-Dec;35(3-
4):92-103. PubMed PMID: 21133766.
16. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Service classes
• Basic services:
– Emergency detection and alarm
– Disease management (chronic diseases)
– Health status feedback and advice
• Other services:
– Communication and social interaction
– Support for daily life and activities
– Entertainment, information and communication
S. Koch et al. Methods Inf Med, 2009.
Ludwig W et al. Comput Methods Programs Biomed. 2012,
May;106(2):70-8.
17. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Example: emergency detection – falls
• Feldwieser F, Gietzelt M, Goevercin M, Marschollek M, Meis M, Winkelbach S, et al.
Multimodal sensor-based fall detection within the domestic environment of elderly
people. Z Gerontol Geriatr. 2014 Aug 12. PubMed PMID: 25112402.
• Kangas M, Korpelainen R, Vikman I, Nyberg L, Jämsä T. Sensitivity and False Alarm Rate
of a Fall Sensor in Long-Term Fall Detection in the Elderly. Gerontology. 2014 Aug 13.
18. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Example: disease management
• Whole System Demonstrator (WSD) study (UK):
– Different chronic diseases (e.g. heart failure)
– ‚Telehealth‘ intervention (oximeters, scales, glucometers, …)
– Lower mortality and admission rates, higher cost
– Steventon et al. BMJ 2012; 444:e3874
• NATARS study (Germany):
– Geriatric home rehabilitation after mobility-impairing
fractures
– Wearable sensor, smart home sensors
– Marschollek et al. Inform Health Soc Care. 2014 Sep;39(3-
4):262-71.
19. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Example: early detection/ diagn., prevention
• Fall risk assessment/ fall prediction:
– medium-scale prospective studies, e.g. Greene et al, 2012,
Gerontology; Marschollek et al, 2012, Meth Inf Med; Gietzelt
et al, 2014, Inf Health Soc Care
• Rehabilitation Monitoring/ relapse identification:
– Steventon et al. BMJ 2012 (WSD study)
– Marschollek M et al. Inform Health Soc Care. 2014
– Calliess et al. Sensors, 2014
• Physical activity promotion (Plischke et al. 2008)
• Aftercare, paediatric liver TX patients (Marschollek et al. 2013)
• …
20. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Epidemiologic perspective: future diseases
• increase of chronic diseases
• increase of “age-related deficits”
• decrease of health professionals
• application areas:
– cardiovascular diseases (e.g. congestive heart disease)
– neuropsychiatric disorders (dementia, uni-/bipolar
depressive disorders, anxiety disorder)
– diabetes (and follow-up conditions)
– musculoskeletal diseases (arthritis and esp. follow-up
conditions (e.g. post-implant rehabilitation))
• but: this is only secondary/ tertiary source: Institute for Hea plthr eMveterincst iaondn E!valuation,
healthmetricsandevaluation.org
21. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Gaps and Pitfalls (subjective!)
• Translating (diagnostic) knowledge into action
• Lack of integration into health information systems,
especially on semantic level (modeling)
– E.g. Marschollek M. Inform Health Soc Care. 2009
• Psychological:
– the right not to know
– trust, security
• and still: Device interoperability
22. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
join our IMIA WG: www.wearable-sensors.org
23. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Stefan von Cavallar Advisory Software Engineer, IBM Research Australia
24. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
The title of Stefan von Cavallar’s Presentation
will be:
Mobile health: Solution requirements and challenges
for scale-up
25. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Mobile Health
Benefits
•Unprecedented opportunities
•High growth usage in developing countries = health
service delivery in regions where otherwise limited
•Improved access to health services
•Improved patient communication, ie. Reminders, Care
plans
•Monitoring of treatment compliance
•And MORE… !
26. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Mobile Health Solution Considerations
• Health information privacy
• Health information security
• Standardization
• Interoperability
• Device fragmentation
• Data fragmentation
• Geography
• Budgets $
27. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Specifically...
The exchange and collection of data from different
systems and platforms will be…
*Essential for users with multiple clinical
requirements
*Key to preventing further fragmentation between
health programs
28. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
What are we trying to solve?
Consider this use case:
•Mother, with daughter
•Daughter sick for several days with lots of fluid loss
•They know nearest medical health center is 60Km away, they have no
transport
•Both walk to health center, and wait for a further 24 hours until seen due to
understaffing and high patient numbers
•Assessment made, treatment given and returned home
•Mother has no care plan or guidance on next steps
What happens next?
29. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
What do we want to do?
1. Improve health!
How about the previous use-case becomes:
• Mother, with daughter
• Daughter sick for several days with lots of fluid loss
• They know nearest medical health center is 60Km away, they have no transport
• Mother uses mobile health credits to send message to a Cognitive Healthcare
Hub where it is analyzed. Identify open questions to determine severity
• Message sent back requesting additional information and includes guidance on
how to gain that information (e.g. how to perform a pinch test)
• Mother carries out tests and responds. Guidance is given to seek medical
assistance in the nearest healthcare center. Details for the center are different
to what the mother knows, its closer (8Km), but in a different direction…
30. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
• Details of daughters condition are recorded and monitored via the Cognitive
Healthcare Hub
• At the health center social worked collect biometric data of waiting patients
• Information collected and presented to physician for accelerated diagnosis
• Information fed into Cognitive Healthcare Hub
• Diagnosis and treatment options presented through the Cognitive Healthcare Hub
to the healthcare worker. Support diagnosis by checking guidelines, hilight
treatment options and assemble care plan
• Daughter is being treated for diarrhea and dehydration
• The Cognitive Healthcare Hub allows healthcare worker or physician to select a
recommended care plan that the Hub has personalized for the daughters
conditions
• The mother is sent the care plan via wifi
• Mother and daughter are discharged, complete with a take-home plan for on-going
treatment
• At points of time afterwards, the Hub sends out reminders and short enquiries to
follow up and if necessary request that a health worker check on them
31. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Solution Requirements
The solution must engage:
•A unified data view
•Health information privacy
•Health information security
•Standardized
•Interoperable
•Defined device and data structure
•The users and fulfil their use cases
32. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Solution Requirements
• Provide information collecting, learning and sharing infrastructure (ie,
cognitive healthcare hub)
• Include historical disease, climate and population data
• Include continuous disease surveillance and drug consumption data
• Learn from historical and continuous data
• Two-way information flow
• Mobile sensing (eg, occurrence of certain symptoms in a region) and multi-casting
• Practitioner support (eg, recent weather condition and high number of reported
infections with same symptoms in the region suggest particular diagnosis)
• Value proposition
• Support health workers and the need for diagnosis
• Provide visibility and forecasting of disease outbreaks and drug demand supply
• Enable macro-level priority setting and investment support
• Monitor the ROI of health investments
• Provide sustainable infrastructure for data collection and dissemination
33. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Cognitive Healthcare Hub
Interface Gateway
Governments
Interaction Communication Visualisation
Mobile Internet Community Radio TV
Statistics
Modelling
Cognitive Computing Analytics
Machine Learning
Simulation
Prediction
Business Intelligence
Unified Data View
Security Access Quality
Environment Mobile Social
Media
Indigenous
Knowledge
Guidelines
Publications
Remote
Sensors
Registries
34. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Watson: Question Answer
Hospitals
Deep Thunder: Climate Modeling
Cognitive Healthcare
Pharmacies
Health
Workers
Community
Health
Centers
Patients
Prepare for patient
increase
Hub
Optimized drug distribution
Support untrained
Advice for rare conditions
STEM: Epidemiological Modeling
Public
Health
Boards
Optimized Resource Allocation
35. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
36. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
GPS Healthcare worker entry Sensors
Dehydration
*Healthcare/trained worker only
Visual
inspection
Skin pinch
timer; App
Blood viscosity;
Infra-red sensors;
camera modified*
Image analytics on
lips, eyes; camera;
MMS
Community
General
questioning
Tests
Diagnosis
Aftercare
Oral Zinc supplements Rehydration Salts
Rehydration schedule
Tracking; how? Reminders
Local Push
Treatment
Calculate therapy
Public Health
Water supply analysis
Pathogen outbreak Pathogen identification
Individual
App;
decision
tree
Intravenous fluids
37. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Challenges for Scale Up
• Data Fragmentation/Distribution
• Data inconsistencies
• Education/Training i.e. Hardware, software
• Differing working practices
• Infrastructure, i.e. Easily no data reception
• Costs, incentives and funding $$$$$
• Not everyone has the same level of access to
technology
38. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Summary – Implications and lessons learnt
from this case study
• Assume nothing… i.e. users with smartphones
• While countries want the same thing, how they get
there varies greatly…
• Technology uptake is not always as easy or advanced
as one might think
• Infrastructure is not as mature as required
• Limited funding/incentives available for adopting
these technologies/infrastructures
• Integrating the fragmented data
39. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Summary – Requirements for successful
redesign of healthcare systems
• Everyone to want to contribute
• Analytics engines using structured and unstructured
data
• A system that enables contributors and provides
tailored data to consumers
• Data consumption and feedback for improved
analytics
• Education and “buy-in”
40. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Enablers for applications in research and
potential clinical use:
Standardised reporting guidelines in self-monitoring
experiments
Prof. Martin-Sanchez
Melbourne Medical School
41. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
41
Manager, Mobile Big Data Solutions
IBM Research - Haifa
B.A., M.Sc., Technion – Israel Institute of Technology
Senior Researcher, IBM Research – Haifa
Focus on leveraging state-of-the-art IT to solve industry
pain points
Mobile, Cloud, Big Data, Analytics
Standards Interoperability
HC/Wellness, Retail
Prolific EU FP6, FP7 and H2020 research activities
Yardena Peres
42. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Research project funded by the
EU (Nov 2013 - Oct 2016)
• DAPHNE Consortium:
– Sensor partners: Evalan, UPM
– IT partners: IBM Research – Haifa, TreeLogic, Atos, SilverCloud
– HC partners: Nevet, Bambino Gesu, University of Leeds, IASO
• DAPHNE Objective:
– Develop a novel IT platform for delivering personalized guidance
services for lifestyle management (focused on reducing
sedentariness) to the citizen/patient by means of:
• Advanced sensors and mobile phones to acquire and store data on
lifestyle aspects, behavior and surrounding environment
• Individual models to monitor health and fitness status
• Intelligent data processing for the recognition of behavioral trends
and services for personalized guidance on healthy lifestyle and
disease prevention
• Use Case:
– The system receives clinical parameters from the selected
sensors, stores health markers, learns personal preferences, and
generates feedback and recommendations.
42
43. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Business aspects of insight-driven Personalized Health
Services through Patient-Controlled Devices
• Patient-Controlled Devices are generating large
amounts of new data
• This poses several IT challenges
– Cope with large amounts of varied data while maintaining
data quality
– Connect with existing Healthcare Systems (e.g., EHR, HIS)
– Handle security, privacy and consent management
44. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Business aspects of insight-driven Personalized Health
Services through Patient-Controlled Devices
• Monetize data, e.g. Data as a
Service (DaaS) Model
– Patients generate new data
– IT companies manage it
– HC providers, Pharma, Payers,
Retailers, Governments,
Scientific Research, etc.
consume it
– All stakeholders are part of the
same value-chain
45. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Development of Temporal Context-based
Feature Abstractions for Enabling Monitoring
and Managing of Interventions
MIE 2014
Pei-Yun Sabrina Hsueh
Ke Yu
Marina Akushevich
Shweta Shama
Peter Mooiweer
Sreeram Ramakrishnan
IBM GBS BAO/Watson Research
46. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Technology barriers are lower than ever.
A whole array of patient-controlled devices are on the rise….
fall sensor in a pocket
adhesive vitals sensor
46 IBM Confidential
stretch sensors
gait analysis in a pocket
vitals sensor in t-shirt
insole sensors
e-textile wireless ECG
Cardiac monitoring systems
Requires ultra-low power adaptive
circuits, non-intrusive form factors
OpenBCI
47. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Significant growth in exogenous data poses challenges to existing BigData
storage and analytics solutions
Determinants of Health
Outcomes
Exogenous
(Behavior, Socio-economic,
60
Environmental, ....)
% Fitness/WellnessPatient-controlled medical
devices
Affinity (digital)Affinity
(retail)
Employ
ment
Socio-econo
mic
databa
ses
Data Sources
Endogenous
(-omics) 30
%
Clinical
(EMR)
10
%
Exogenous Data Growing Fast
1240
PB
1800
PB
6800
PB
(annu
al)
Episodic; care
pathways in
controlled
settings
Mostly static
data, but
critical for
personalized
medicine
Significant volume
(every step, heart
rate, meals,….) and
variety
(physiological,
psychological,
socio-economic)
and dynamic
Data generation ~
uncontrolled
environment
!
48. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
A perfect storm awaits…..
Data Deluge from Patient-generated information
49. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
49
Patient generated information are effective for self-management
and personalized intervention/adaptation
Increase awareness to self-monitoring
(Prestwich et al., 09; Burke et al., 05)
Promoting behavioral change
(Dietary intake: Burke et al., 05;
Physical activity: Prestwich et al., 09; Michie et al., 09)
Triggering reminders to care plans
(Consolvo et al. 09; Hurling et al., 07)
Personalizing communication
messages and education materials
(Thaler and Sustein, ‘08)
Nudge: Improving Decisions About Health
50. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Existing tools lack capabilities to determine appropriate
metrics most sensitive to individuals
• Especially true for those require artful interpretation of the
temporal context of measurement
– E.g., Hypertension = blood pressure; Diabetes = SMBG; Metabolic
syndrome = weight, cholesterol level
• Need new capability to calibrate intra-individual variability
– E.g., Heart rate variability (HRV) detect abnormal symptoms of
autonomic nervous system that are correlated with lethal arrhythmias
– E.g., The variability of B-type natriuretic peptide (BNP) detect cardiac
ischemia
• Barriers:
– (1) No unifying theoretical models exists for enabling such interpretations
– (2) The process from feature abstraction to individualized prognosis is
non-trivial.
51. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Data-driven Calibration and Personalization Process:
From Population-based evidence to individualized alerting/adaptatio
Population Data-driven Insight
Feature
Abstraction
(Candidate feature
generation)
Complete feature set
Feature
Optimization
1
2
(Optimal set construction)
Construction of features
based on variance over
time
Analyze and select
variance features from
the complete set of
constructed features
Optimized Feature subset
Identify input data
sources from the optimal
feature set and configure
the input of data sources
Feature
3
Population (data
source configuration)
Individual Data-driven Personalization
Individual data captured based on input configuration
Alert Setting
(individual-based
calibration)
Individual-based alert
Learning for
Adaptation
Slide 51 IBM CONFIDENTIAL
Monitoring biomarker/patient-generated
info operational DB
EHR/PHR
Repository
Learn from baseline to understand
normal variance and use the info to
determine when to send alerts
Verify if the selected abstraction is the
right one for the individual according to
the KPI. Create time gates events,
triggers to check if the selected feature
is the optimal one.
Individually adapted
plan (alert and
intervention)
4
5
Verified feature set for the target individual
52. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Enabling personalized temporal context interpretation
by data-driven calibration and personalization
• Need to streamline the process from population-based feature abstraction
to individualization
• Enable more effective monitoring and management of interventions
Monitoring
device
Intra-individual
variability calibration
(evidence-based)
• Service Scenarios:
Input for monitoring
feedback generation
and
diagnosis/intervention
– 1. Development of adherence programs for patient self-management
– 2. Enablement of intervention design for care coordinators/care givers
– 3. Understanding efficacy for care givers to adapt suggested
interventions for an individual
– 4. Evidence-generation for intervention efficacy (population data)
53. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Summary: Gaps observed in Service Design
• The lack of reliable means to capture granular patient-generated data in non-clinical
settings (user’s daily life contexts)
– Leads to unreliable detection of inflection points, habit formation cycles and assessments of
treatment efficacy.
• Need for a framework to integrate analytical insights with feasible service models.
– Progress impeded by the lack of modular design and data standardization in existing
healthcare systems
53 IBM Confidential
Customer/
Patient
Adherence
Theme
#1
Theme
#2
Theme
#3
Personalization for
risk stratification
(from population to
individual evidence)
Personalization for in-context
recommendation
(from disease-centric to
patient-centric)
Personalization for
adherence risk
mitigation
(from status-insensitive
to status-sensitive)
54. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Summary: New requirement of a modular framework to
accelerate personalized service design
Technologies to enhance wellness services
– Guide the identification of customization points in clinical workflow and
deployment of the Analytics and IM offerings
– Create new tools and infrastructure for client engagements
– Explore light-weight approach to connect the components (to prepare for future
cloud offerings)
New solutions and services
– Bring together clients and researchers to understand clinical touch points
– Demonstrate how to leverage customization points to engage users and possibly
improve health literacy and outcomes
Replicable patterns for patient engagement deployment
– Create ETL procedures to be repeatedly use in other provider settings
– Explore both hosted and internal deployment possibilities
Plug-in for other tools
– Create a recipe from data collection to summarization to customization to
engagement to outcome measurement
– Each component can be singled out as a standalone process for other tools
55. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Gap Analysis of Insight-Driven
Personalized Health Services through
Patient-Controlled Devices
MIE 2014 Workshop 510 W17 25
TUESDAY 17:00 - 18:30
Pei-Yun Sabrina Hsueh, Michael Marschollek, Yardena Peres, Stefan Von Cavallar,
Fernando Martin Sanchez
56. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Logistics
• 17:00-17:15 Opening Remark
• Key drivers and problems being addressed (Dr, Hsueh, IBM T.J. Watson Research)
• 17:15-18:10 Presentations
• Overview of service classes for health-enabling technologies for elderly and a physician’s view
in relevant applications in the future (Prof. Marschollek, Hanover Medical School).
• Enablers for successful development of mobile health solution– mobile health solution
requirements and challenges for scaling up and realizing its full potential (Mr. von Cavallar,
IBM Research Australia)
• Enablers for applications in research and potential clinical use – the need for standardised
reporting guidelines in self-monitoring experiments (Prof. Martin-Sanchez, Melbourne
Medical School)
• Business aspects of insight-driven Personalized Health Services through Patient-Controlled
Devices (Dr. Peres, IBM Research Haifa)
• Development of Temporal Context-based Feature Abstractions for Enabling Monitoring and
Managing of Interventions (Dr. Hsueh)
• 18:10-18:30 Workshop discussion (gap analysis, requirement
gathering)/audience QA
• 1. Implications and lessons learned from the case studies -- especially the gaps you perceived
as barriers of entry
• 2. Requirements for successful redesign of healthcare systems to accommodate patient-generated
information (with a sub-goal of identifying the areas where such information can
make most impacts).
Please leave your email and questions (if any)….
57. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Workshop Theme
1. Implications and lessons
learned from the case
studies -- especially the
gaps you perceived as
barriers of entry
2. Requirements for
successful redesign of
healthcare systems to
accommodate patient-generated
information
(with a sub-goal of
identifying the areas
where such information
can make most impacts).
• Workflow
– Knowledge actionable?
– Integration
– Lack of modular design
• User
– Right not to know, trust, security,
consent management
• Data
– Fragmented, lack of EHR interoperability
– Beyond big data, uncontrolled env.
• Device
– Interoperability, infrastructure
• Service
• Resource
58. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Summary:
Gap analysis and HC re-design requirement
• Workflow
– Lack of integration into health information systems, especially on semantic level (modeling)
– Lack of modular design of existing healthcare system
• User
– Manage the right not to know, trust, security, consent
– Assume nothing from the start
– Country/Cultural differences
• Device
– Fragmentation ; Lack of interoperability
– Immature infrastructure
• Data
– Fragmented data sources (need to integrate with EHR / HIS)
– Ecosystem platform (enabling contributors, tailoring data to consumers)
– Need to create personalization analytics framework (and engine) (data consumption feedback)
– BigData: large amounts of varied data while maintaining data quality
– Beyond Bigdata storage and processing, in uncontrolled env.
– Beyond Bigdata analytics, in uncontrolled env.
• Service
– Touchpoint redesign to integrated Clinical/Wellness Service
• Resource
– Lack of funding/incentives
59. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
More questions to think Suggestions on next
step?
• Do provider beliefs and support of these technologies and approaches affect
patient usage?
• Will patient interactive reported data improve provider and patient
communications, reduce risks and increase early interventions?
• Can adherence to care plans for patients with chronic health conditions be
increased through technology-mediated techniques?
• Can analytics based on patient characteristics and adherence behavior be used to
identify patients at risk for adverse health events, as well as identify “model”
adherers who are more effective than the average patient at remaining healthy?
• Can dynamically configured software improve health outcomes for the patient
and help control costs?
• How will real time patient reported data shift communications, culture, care
processes and the patient – provider partnership?
Consider publishing our summary report in MEDINFO 2015? (any other venue?)
A follow-up workshop/panel with a more focused theme on the gap and
requirement perceived as priority?
60. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Suggestions on next step?
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61. Gap Analysis of Insight-Driven Personalized Health Services through Patient-Controlled Devices
Questions?