This document summarizes a peer support project called Type 1 Kidz that engages children and young people with type 1 diabetes and their families. Type 1 diabetes is a lifelong condition requiring intensive management to avoid complications that affects the whole family. The project runs monthly group sessions across the North East to help families better manage the condition. Through sharing information both to and from families and medical teams, the project has enabled improved care, such as adding a psychologist to the team and offering insulin pump therapy. Evaluations found children who attended more sessions had greater diabetes knowledge and independence.
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Lisa has a portfolio of applied, mixed methods, social science research specialising primarily in women's health, in particular experiences of infertility, pregnancy, childbirth and neonatal care. She is also involved in several studies seeking to improve patient experiences in critical care.The role of digital technology in patient self-management and healthcare is another area of interest.
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Meet Shango, Kate and Jake of BounceBack Kids, a non-profit organization that works to enrich the lives of children with serious medical conditions and their families by offering free year-round recreational, athletic, and social activities in a caring, supportive and medically-safe environment.
Mothers in Critical Care: learning from patients’ experiences & challenges to...Intensive Care Society
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Lisa has a portfolio of applied, mixed methods, social science research specialising primarily in women's health, in particular experiences of infertility, pregnancy, childbirth and neonatal care. She is also involved in several studies seeking to improve patient experiences in critical care.The role of digital technology in patient self-management and healthcare is another area of interest.
Lisa leads qualitative work developing and evaluating complex interventions and is currently working on two clinical trials of self-monitoring of blood pressure. One is studying the impact of SMBP during pregnancy and a second the impact of SMBP after a stroke or TIA (see Hypertension). She also leads a programme of work as part of the Oxford BRC's Partnerships for Health Wealth and Innovation theme exploring research participation and patient and public involvement.
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'Overview of the Palliative Care Service at Our Lady’s Children’s Hospital, C...Irish Hospice Foundation
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A presentation given by Nick Kowalenko at The Journey, CHA Conference 2012, in the 'Innovations in Mental Health Care for Children and Young People' stream.
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Home is the best place for the best healing. Aging, temporary illness or permanent illness can be managed better with the help of a home caregiver. Prenatal and post-natal mom’s also need home care assistance. Your sweet home with our close relatives or spouse provides a relaxing environment for you when you are recovering from an illness, injury or surgery. When your loved one’s health conditions are declining,
you will be under great stress, and physically and emotionally.
This document describes work undertaken by NHS Kidney Care around young people with kidney disease, and the issues faced by their families and carers.The emergent themes have significant alignment with current NHS Improving Quality and NHS England national programmes, including Long Term Conditions, Experience of Care, Transition from Paediatric to Adult Services and Living Longer Lives.
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'Overview of the Palliative Care Service at Our Lady’s Children’s Hospital, C...Irish Hospice Foundation
'Overview of the Palliative Care Service at Our Lady’s Children’s Hospital, Crumlin' (Presentation at the Maternity and Neonatal Network Meeting, April 2015) [MNN 12]
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This document describes work undertaken by NHS Kidney Care around young people with kidney disease, and the issues faced by their families and carers.The emergent themes have significant alignment with current NHS Improving Quality and NHS England national programmes, including Long Term Conditions, Experience of Care, Transition from Paediatric to Adult Services and Living Longer Lives.
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Child Illness Resilience Program: Summary of outcomes.
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This presentation introduces the types of Diabetes and updates on the care, support and information available from Diabetes UK.
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Pediatric nurses play a vital role in the health and well-being of children. Their responsibilities are wide-ranging, and their objectives can be categorized into several key areas:
1. Direct Patient Care:
Objective: Provide comprehensive and compassionate care to infants, children, and adolescents in various healthcare settings (hospitals, clinics, etc.).
This includes tasks like:
Monitoring vital signs and physical condition.
Administering medications and treatments.
Performing procedures as directed by doctors.
Assisting with daily living activities (bathing, feeding).
Providing emotional support and pain management.
2. Health Promotion and Education:
Objective: Promote healthy behaviors and educate children, families, and communities about preventive healthcare.
This includes tasks like:
Administering vaccinations.
Providing education on nutrition, hygiene, and development.
Offering breastfeeding and childbirth support.
Counseling families on safety and injury prevention.
3. Collaboration and Advocacy:
Objective: Collaborate effectively with doctors, social workers, therapists, and other healthcare professionals to ensure coordinated care for children.
Objective: Advocate for the rights and best interests of their patients, especially when children cannot speak for themselves.
This includes tasks like:
Communicating effectively with healthcare teams.
Identifying and addressing potential risks to child welfare.
Educating families about their child's condition and treatment options.
4. Professional Development and Research:
Objective: Stay up-to-date on the latest advancements in pediatric healthcare through continuing education and research.
Objective: Contribute to improving the quality of care for children by participating in research initiatives.
This includes tasks like:
Attending workshops and conferences on pediatric nursing.
Participating in clinical trials related to child health.
Implementing evidence-based practices into their daily routines.
By fulfilling these objectives, pediatric nurses play a crucial role in ensuring the optimal health and well-being of children throughout all stages of their development.
Health Education on prevention of hypertensionRadhika kulvi
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Equity: High costs could limit access to this potentially life-saving technology.
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International Collaboration: Clear guidelines are needed for research and human trials.
Public Education: Open discussions ensure informed decisions about CRISPR.
Prioritize Safety and Ethics: Safety and ethical principles must be paramount.
CRISPR offers a powerful tool for a better future, but responsible development and addressing ethical concerns are essential. By prioritizing safety, fostering open dialogue, and ensuring equitable access, we can harness CRISPR's power for the benefit of all. (2998 characters)
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Defecation
Normal defecation begins with movement in the left colon, moving stool toward the anus. When stool reaches the rectum, the distention causes relaxation of the internal sphincter and an awareness of the need to defecate. At the time of defecation, the external sphincter relaxes, and abdominal muscles contract, increasing intrarectal pressure and forcing the stool out
The Valsalva maneuver exerts pressure to expel faeces through a voluntary contraction of the abdominal muscles while maintaining forced expiration against a closed airway. Patients with cardiovascular disease, glaucoma, increased intracranial pressure, or a new surgical wound are at greater risk for cardiac dysrhythmias and elevated blood pressure with the Valsalva maneuver and need to avoid straining to pass the stool.
Normal defecation is painless, resulting in passage of soft, formed stool
CONSTIPATION
Constipation is a symptom, not a disease. Improper diet, reduced fluid intake, lack of exercise, and certain medications can cause constipation. For example, patients receiving opiates for pain after surgery often require a stool softener or laxative to prevent constipation. The signs of constipation include infrequent bowel movements (less than every 3 days), difficulty passing stools, excessive straining, inability to defecate at will, and hard feaces
IMPACTION
Fecal impaction results from unrelieved constipation. It is a collection of hardened feces wedged in the rectum that a person cannot expel. In cases of severe impaction the mass extends up into the sigmoid colon.
DIARRHEA
Diarrhea is an increase in the number of stools and the passage of liquid, unformed feces. It is associated with disorders affecting digestion, absorption, and secretion in the GI tract. Intestinal contents pass through the small and large intestine too quickly to allow for the usual absorption of fluid and nutrients. Irritation within the colon results in increased mucus secretion. As a result, feces become watery, and the patient is unable to control the urge to defecate. Normally an anal bag is safe and effective in long-term treatment of patients with fecal incontinence at home, in hospice, or in the hospital. Fecal incontinence is expensive and a potentially dangerous condition in terms of contamination and risk of skin ulceration
HEMORRHOIDS
Hemorrhoids are dilated, engorged veins in the lining of the rectum. They are either external or internal.
FLATULENCE
As gas accumulates in the lumen of the intestines, the bowel wall stretches and distends (flatulence). It is a common cause of abdominal fullness, pain, and cramping. Normally intestinal gas escapes through the mouth (belching) or the anus (passing of flatus)
FECAL INCONTINENCE
Fecal incontinence is the inability to control passage of feces and gas from the anus. Incontinence harms a patient’s body image
PREPARATION AND GIVING OF LAXATIVESACCORDING TO POTTER AND PERRY,
An enema is the instillation of a solution into the rectum and sig
1. Chloe Brown
Project Worker, Investing in Children
Type 1 Kidz - The Impact of Engaging Children and Young People with Type 1
Diabetes and Their Families to a Peer Support Project
#IiC_Rights / #IiC_Chloe
2. Type 1 Diabetes
• A life-long condition where the body produces no insulin, meaning the person affected has to have
multiple daily injections or wear an insulin pump. Requires blood glucose tests up to 8 times a day.
• Cannot be prevented in any circumstances and has no cure.
• Requires intensive management to avoid / reduce short and long term complications, therefore affects the
whole family and all aspects of life.
3. Background
• Investing in Children (IiC) - established in Durham in 1995, now a Community Interest Company and works
nationally and internationally.
• In 2001 – started to support children and young people (CYP) to have a say in their care and service
provided by the Paediatric Diabetes Team in Co. Durham and Darlington.
• In 2012 the group took on a new dimension and group sessions start to run monthly. The CYP named this
project ‘T1KZ - Type 1 Kidz.’
4. Sharing Information
• Monthly group sessions across the North East for families (parents, siblings, grandparents, aunties,
uncles, cousins, close friends …) to help families manage Type 1 Diabetes the best they can to improve
health outcomes now and in the future. The Paediatric Diabetes Teams attend group sessions ‘informally’
to build a better relationship with families.
• This allows continuous sharing and access to information both from families to the diabetes teams and
vice-versa.
• Dedicated Project Worker sits on the County Durham & Darlington Multi-Disciplinary Team Meetings to
share information.
5. Access to Information: Examples
In the early days …
• Children & young people said they wanted more support and because of this
a Psychologist was employed and is now a core part of the team.
• Children & young people expressed an interest in insulin pump therapy; they
visited a pump clinic in Sweden and brought information back. County
Durham & Darlington Trust were the first clinic in the UK to offer insulin
pump therapy.
• Children and young people designed and updated display boards to share
information with one another.
6. Access to Information: Examples
More recently …
• During a peer mentoring session children and young people said they
wanted to direct their own appointments so they could get the most out of it.
This is now been trialled at Newcastle Hospital and children / young people
are given a sheet to fill in before their appointment and see the clinical team
at the beginning without parents/carers.
7. Access to Information: Examples
More recently …
• Young people said that they wanted more realistic information about
complications, this now happens.
• Children said they wanted more support to reach their goals and be
recognised when they do; children are now given certificates when they
achieve their goals.
• Families said they want more information about managing their condition
while doing sports, this has happened.
8. Access to Information: Examples
Access to information in this way
enables the hospital to offer more
effective and efficient clinical
appointments and allows children &
young people to manage their
diabetes the best they can to stay
healthy now and in the future.
9. Sharing Information
Information that is gathered is shared:
• Quarterly at a Professional Steering Group
• Through the North East and North Cumbria Families Diabetes Network
• Journal Articles: Nursing Times x 2 (Jan 2017) and Practical Diabetes Guide
(June 2017).
• Presentations: Diabetes UK, BSPED, PharmaTimes, AHSN ….
• Awards: Bright Ideas in Health Awards, Quality in Care x2
10. Evaluating Type 1 Kidz
➢182 children and young people with T1 Diabetes have attended a Type
1 Kidz session in the last two years. On average this is 20% of the
patient population.
➢C&YP who attended more group sessions had more knowledge,
worried less, relied on fewer people to help them, were more
motivated to lead a healthy lifestyle and were more independent
than those who attended fewer group sessions.*
*This data was analysed by Newcastle
University and Newcastle Hospital
Trust
11. Evaluating Type 1 Kidz & Flo
➢ Children, young people and parents who attended Type 1 Kidz for a longer time
reported to have more understanding of managing diabetes in the following
situations:
- Hyperglycaemia (high blood sugars)
- Different ways to manage diabetes, injections, pumps etc.
- Had a higher overall Score (understanding T1, how it affects the wider family, treatment
options, hypoglycaemia, hyperglycaemia, illness, exercise, food and carb counting, on
holiday and at school).
Than those who had attended for a shorter time.
(September 2017, analysed by Sunderland University).
