Information Governance And Cancer Intelligence V1 0
•Download as PPT, PDF•
0 likes•156 views
This document discusses the information governance and privacy considerations regarding cancer registration data in the UK. It notes that while cancer registration requires identifiable patient data, strict policies are in place to protect privacy and prevent unauthorized access, disclosure, or misuse of data. Identifiable data is collected and processed in a secure environment, then anonymized or pseudonymized data is released under strict conditions only for authorized cancer research or healthcare purposes.
Report
Share
Report
Share
![Successful cancer intelligence requires access to personal information... ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
Recommended
Personal Health Records
Personal health records (PHRs) have the potential to improve health outcomes but face challenges regarding interoperability, security, and privacy. PHRs could allow individuals to manage their own healthcare by communicating with providers and accessing health information. However, PHRs currently lack standardization and the ability to exchange information between different systems. Addressing issues such as determining security protocols, exchanging data between health information exchanges, and clarifying legal policies will help realize the full benefits of PHRs. Widespread adoption also requires resolving questions over who pays for and controls PHR data. Further research is needed to understand how to best design PHRs and incentivize their use.
How EMR can connect You and Your Doctor?
EMR software allow the transfer of data from anywhere to any place, in the shortest possible time, to enable doctors across the globe to take care of their patients in a much better way than before. This has been made possible through the wide usage of EMRs. Implementation of EMR, that has been a personal preference hitherto, may be mandated in the medical service over time.
As electronic exchange of information facilitates better service for patients and supports physicians as well, it is no wonder that a major portion of the medical professionals are beginning to lean more toward EMR as their preferred system. Quick access, reliability, ‘anytime and anywhere’ reach are the main factors that make EMRs popular among today’s learned medicos. At times, it becomes necessary to share patient details using EMRs, when patients need medical attention from different doctors. EMR involves sharing individual information over the digital media. This calls for a cautious and secure exchange of data.
Chapter 7 & 14 HIT 109
This document summarizes different types of health record systems and data analysis approaches. It discusses patient identification systems, record filing and storage methods, master patient indexes, record tracking and retention policies. It also describes different types of data sets and indexes that can be used for analysis, such as facility-specific indexes, disease indexes, and registers that collect targeted information on specific patient groups.
The Icelandic Cancer Registry ICR
The document summarizes the activities of the Icelandic Cancer Registry (ICR). It notes that the ICR was established in 1954 by the Icelandic Cancer Society to conduct nationwide cancer registration. It receives data from various sources to register all cancer cases in Iceland. The ICR calculates cancer incidence, mortality and survival rates and conducts epidemiological research on cancer risk factors and prognosis. It collaborates internationally on research and data comparison. The document provides examples of ICR research findings on BRCA2 mutations and their implications for cancer risk and prognosis.
Computer based record
The document discusses computer-based patient records (CPRs). It defines CPRs and compares them to electronic medical records (EMRs). CPRs contain complete patient data across providers and are designed to support users. EMRs focus on a single provider and usually stay within a practice. The document also outlines characteristics of CPRs like accountability, flexibility, interoperability and comprehensiveness. Benefits include coordinated care, reduced errors and costs. Legal issues involve privacy and patients' rights to access their health records.
Electronic health record
The document discusses an electronic health record (EHR) system that aims to provide a comprehensive lifetime medical record for patients. It describes the key components of an EHR including demographics, medical history, examinations, investigations, diagnoses, treatments, and the ability to view trends over time. The EHR aims to store data in a structured way for analysis while maintaining usability.
COVID-19 Re-opening Your Practice
A short presentation outlining risk management resources and recommendations for physicians as they continue to practice medicine during COVID-19. Topics include encouraging social distancing and screening patients.
Personal Health Records - An Overview
Personal health records (PHRs) combine patient data, knowledge, and software tools to help patients actively participate in their own care. PHRs can be standalone systems maintained by patients, tethered to access institutional records, or interoperable across multiple systems. While 75% of consumers want online access to medical records and test results, current PHR utilization in the US is only around 2-3% due to barriers like difficulty finding and using PHR systems and a lack of valuable clinical content beyond data storage. Health systems that have integrated robust PHR portals into their electronic medical record systems have seen much higher adoption rates, up to 34% in some cases, demonstrating that ease of access and useful functions are key to
Recommended
Personal Health Records
Personal health records (PHRs) have the potential to improve health outcomes but face challenges regarding interoperability, security, and privacy. PHRs could allow individuals to manage their own healthcare by communicating with providers and accessing health information. However, PHRs currently lack standardization and the ability to exchange information between different systems. Addressing issues such as determining security protocols, exchanging data between health information exchanges, and clarifying legal policies will help realize the full benefits of PHRs. Widespread adoption also requires resolving questions over who pays for and controls PHR data. Further research is needed to understand how to best design PHRs and incentivize their use.
How EMR can connect You and Your Doctor?
EMR software allow the transfer of data from anywhere to any place, in the shortest possible time, to enable doctors across the globe to take care of their patients in a much better way than before. This has been made possible through the wide usage of EMRs. Implementation of EMR, that has been a personal preference hitherto, may be mandated in the medical service over time.
As electronic exchange of information facilitates better service for patients and supports physicians as well, it is no wonder that a major portion of the medical professionals are beginning to lean more toward EMR as their preferred system. Quick access, reliability, ‘anytime and anywhere’ reach are the main factors that make EMRs popular among today’s learned medicos. At times, it becomes necessary to share patient details using EMRs, when patients need medical attention from different doctors. EMR involves sharing individual information over the digital media. This calls for a cautious and secure exchange of data.
Chapter 7 & 14 HIT 109
This document summarizes different types of health record systems and data analysis approaches. It discusses patient identification systems, record filing and storage methods, master patient indexes, record tracking and retention policies. It also describes different types of data sets and indexes that can be used for analysis, such as facility-specific indexes, disease indexes, and registers that collect targeted information on specific patient groups.
The Icelandic Cancer Registry ICR
The document summarizes the activities of the Icelandic Cancer Registry (ICR). It notes that the ICR was established in 1954 by the Icelandic Cancer Society to conduct nationwide cancer registration. It receives data from various sources to register all cancer cases in Iceland. The ICR calculates cancer incidence, mortality and survival rates and conducts epidemiological research on cancer risk factors and prognosis. It collaborates internationally on research and data comparison. The document provides examples of ICR research findings on BRCA2 mutations and their implications for cancer risk and prognosis.
Computer based record
The document discusses computer-based patient records (CPRs). It defines CPRs and compares them to electronic medical records (EMRs). CPRs contain complete patient data across providers and are designed to support users. EMRs focus on a single provider and usually stay within a practice. The document also outlines characteristics of CPRs like accountability, flexibility, interoperability and comprehensiveness. Benefits include coordinated care, reduced errors and costs. Legal issues involve privacy and patients' rights to access their health records.
Electronic health record
The document discusses an electronic health record (EHR) system that aims to provide a comprehensive lifetime medical record for patients. It describes the key components of an EHR including demographics, medical history, examinations, investigations, diagnoses, treatments, and the ability to view trends over time. The EHR aims to store data in a structured way for analysis while maintaining usability.
COVID-19 Re-opening Your Practice
A short presentation outlining risk management resources and recommendations for physicians as they continue to practice medicine during COVID-19. Topics include encouraging social distancing and screening patients.
Personal Health Records - An Overview
Personal health records (PHRs) combine patient data, knowledge, and software tools to help patients actively participate in their own care. PHRs can be standalone systems maintained by patients, tethered to access institutional records, or interoperable across multiple systems. While 75% of consumers want online access to medical records and test results, current PHR utilization in the US is only around 2-3% due to barriers like difficulty finding and using PHR systems and a lack of valuable clinical content beyond data storage. Health systems that have integrated robust PHR portals into their electronic medical record systems have seen much higher adoption rates, up to 34% in some cases, demonstrating that ease of access and useful functions are key to
Health information security system
The document discusses the Health Insurance Portability and Accountability Act (HIPAA) of 1996, which established regulations to protect the privacy and security of patients' health information. It outlines the Privacy Rule and Security Rule established by HIPAA. The Security Rule requires technical, physical, and administrative safeguards to protect electronic protected health information (EPHI). Technical safeguards include access controls, unique user identification, encryption, and automatic logoff. Physical safeguards involve security measures for offices and computing equipment. Administrative safeguards refer to designating a privacy officer, training programs, and policies to prevent improper access to health information.
Electronic Medical Record (Emr)
- Lawrence Weed first described the concept of electronic medical records in the 1960s as a way to automate and organize patient records to improve care. Early systems like POMR were developed in the 1970s and refined in later decades.
- Today, most medical practices use electronic systems to record patient information like medical history, medications, test results, and billing data. Adoption has increased but fewer than half of physicians fully utilize digital records.
- Benefits include increased efficiency, reduced errors, better access to information, and potential financial incentives. Challenges include costs of implementation and use, user resistance, and privacy concerns over confidential patient data.
Electronic Medical record (emr)
The document discusses an electronic medical record (EMR) framework that allows healthcare practices to create automated medical records to improve patient care cost-effectively. The EMR framework includes key modules like patient details, clinical charting, billing, document management, and reporting. It offers benefits like portable and accessible records, compliance with healthcare standards, and integrated management of the healthcare practice.
Dr. Dawn Sievert - Monitoring Healthcare-Associated Infections At The Nationa...
Monitoring Healthcare-Associated Infections At The National Level - Dr. Dawn Sievert, Associate Director for Antimicrobial Resistance, Division of Foodborne, Waterborne, and Environmental Diseases, Centers for Disease Control and Prevention, from the 2018 NIAA Antibiotic Symposium: New Science & Technology Tools for Antibiotic Stewardship, November 13-15, 2018, Overland Park, KS, USA.
More presentations at https://www.youtube.com/playlist?list=PL8ZKJKD9cmEffjOrjbBvQZeN2_SZB_Skc
EMR vs EHR
EMR systems provide more in-depth data tracking over time with access to clinical decision support tools and a full medical history including x-rays, labs, and allergies. In contrast, EHR systems focus on giving reminders for patient screenings and checkups to improve individual patient care and simplify sharing up-to-date real time information.
Electronic Medical Records - MxSecure
Learn more about Electronic Medical Records and Meaningful Use in this OnDemand webinar presented by MxSecure, Inc.
Health Information System (HIS) at Landspitali University Hospital
Landspítali University Hospital is Iceland's largest hospital, located in Reykjavik. It has 4,600 employees and serves as the main referral center for all of Iceland. The hospital uses a variety of electronic health record (EHR) systems, with the main EHR called Saga. Landspítali's EHR strategy is to implement a new comprehensive EHR system to support all clinical activity, with the goal of the new system being in use within 7-10 years. The project is expected to cost 6-8 billion Icelandic krónur and take 4-7 years to complete.
Big data and better health outcomes - Government perspective
Big data and better health outcomes, the journey to the Ministry of Health virtual information centre. Viewed from the National Health IT Board perspective.
Graeme Osborne, Director National Health IT Board
Presented at HINZ 2014, 12 November 2014, 8.30am, Plenary Room
Electronic Health Recordsand Electronic Case Records in 2012
This document discusses the potential for electronic health records (EHRs) and electronic case records (ECRs) in 2012. It outlines several scenarios where EHRs and ECRs could improve patient care, such as allowing primary care providers, long-term care specialists, and ambulance services to access key health information. The document also describes an information architecture that would allow sharing of health event summaries and records across different healthcare organizations while addressing privacy concerns. It concludes that technology is not a major barrier and work is underway on related strategies, policies and standards.
Building a Consensus for EHR
This document discusses building consensus for electronic health records (EHRs) in healthcare. It begins by outlining goals for improving healthcare quality put forth by the Institute of Medicine. It then discusses executive mandates for implementing EHRs and defines EHRs and how they differ from electronic medical records. Factors driving the need for EHRs are described. The stages of EHR implementation and meaningful use requirements are outlined. Attributes of EHRs that support continuity of care are listed. Considerations for EHR implementation including costs, downtime, caregiver assistance, and data integrity are also discussed.
Powerpoint on electronic health record lab 1
This presentation provides an overview of electronic health records (EHR). It defines EHR as a digital format for documenting a patient's medical history maintained by healthcare providers. EHR files contain sections for different types of health information. The presentation outlines benefits of EHR such as reducing medical errors, improving quality of care through better disease management and education, and decreasing healthcare costs. It also discusses how EHR protects patient privacy through security measures and restrictions on who can access records.
ChathamHealthLink
The document summarizes ChathamHealthLink, a health information exchange program in Chatham County, Georgia. It was formed by the Chatham County Safety Net Planning Council in 2004 to improve access to and quality of healthcare for uninsured county residents. The program allows different healthcare providers using separate electronic medical record systems to securely share patient information through a central database. This reduces duplication of services, improves care coordination, and allows providers and the Council to track health outcomes and service trends across the safety net system. The goal is for ChathamHealthLink to eventually connect all area providers, hospitals, and behavioral health organizations using interoperable electronic records.
Electronic health record powerpoint assignment for informatics
The document discusses the electronic health record (EHR) and its benefits. An EHR centralizes a patient's medical records including diagnostic tests and treatment history and allows any healthcare provider secure access to this information. This ensures providers have complete information to aid in diagnosis and treatment. EHRs help reduce medical errors, streamline care, and empower patients by allowing some to access and contribute to their own records online. While privacy is a concern, laws aim to protect sensitive health information and only grant access to authorized individuals.
Electronic health record
Electronic health records allow doctors to digitally store patient information such as symptoms, test results, and medical history. This replaces the traditional paper record-keeping system. Storing records electronically provides advantages like more accurate documentation that is easier for doctors to access and update. It also reduces healthcare costs by enabling evidence-based treatment and easier information sharing between medical professionals. Overall electronic records aim to improve patient care through a more convenient, efficient, and accurate method of record storage and access.
Health Information Science_completed courses
This document lists 33 courses completed as part of a Health Information Science program of study. The courses cover topics such as the Canadian healthcare system, database design, healthcare delivery models, electronic records, project management, legal issues, standards, security, the human aspects of healthcare systems, procurement, epidemiology, research methods, programming, systems analysis, mathematics, statistics, biology, writing, and learning design. Cultural anthropology and the relationship between environment and health were also studied.
Electronic Medical Records
This study assessed the use of personal digital assistants (PDAs) in conjunction with electronic medical records (EMRs) by physician assistants (PAs) through a questionnaire sent to recent graduates. Of 122 respondents, 72 used PDAs but only 5 used PDAs with EMRs, suggesting barriers to adoption. Those using PDAs and EMRs perceived benefits like improved quality of care and efficiency. However, adoption of the combined technology lags behind individual adoption, and future research is needed to understand barriers and promote integration.
Building blockchain based Healthcare infrastructure with beyond block labs
The Current healthcare ecosystem mainly consists of seven key stakeholders –
patient, provider, payer, pharma, medical technology, technology vendors and
suppliers, and the government and healthcare regulator.
A Consistent Nationwide Data Matching Strategy Donna Roach & Nancy Walker
This document discusses patient matching from the provider perspective. It describes two hospitals, Borgess Health and Our Lady of Lourdes, and their approaches to patient matching. Borgess Health uses a probabilistic enterprise master patient index from Netrix with a 95% tolerance threshold that weights different patient identifying factors. Their process involves policy, the probabilistic system, manual intervention from HIM and registration teams, and results in merging duplicate records after discharge and monthly record clean up. The conclusion emphasizes that patient matching is a patient safety issue according to organizations like The Joint Commission, and risks can be mitigated through human responsibility, design quality, technical implementation, standardized processes, and patient involvement.
Electronic health record
An electronic health record (EHR) is a collection of patient’s electronically-stored health information in a digital and systematic format. EHR system can store data accurately.
ETguglielmetti
A deserted factory in Como has been transformed into a colorful street art museum. Strange creatures and kids populate the abandoned floor alongside stolen scooters. However, the formerly grey and desolate walls are now covered in vibrant artwork, allowing visitors to view and contribute to a modern art collection anywhere in the space. The street art project was created by students and photographed at the I.T.I.S. "Paolo Carcano" in Como, Italy.
ETluzzani
The document discusses the degradation of infrastructure in cities, noting that ruined asphalt, holes in roads, and walls falling into pieces have become more common and worrying due to neglected city maintenance. Photos were taken in Como, Italy by Luzzani Dario to illustrate these issues.
ETabbate
Street art, specifically graffiti, is a way for young people to express their art, though in Como there are no designated areas for it. As a result, street artists have to work in the night in unauthorized locations. Graffiti tags by writers can be found in the city center, but larger graffiti pieces are mainly seen on the empty walls of parking structures and abandoned factories, as well as on trains and in train stations.
More Related Content
What's hot
Health information security system
The document discusses the Health Insurance Portability and Accountability Act (HIPAA) of 1996, which established regulations to protect the privacy and security of patients' health information. It outlines the Privacy Rule and Security Rule established by HIPAA. The Security Rule requires technical, physical, and administrative safeguards to protect electronic protected health information (EPHI). Technical safeguards include access controls, unique user identification, encryption, and automatic logoff. Physical safeguards involve security measures for offices and computing equipment. Administrative safeguards refer to designating a privacy officer, training programs, and policies to prevent improper access to health information.
Electronic Medical Record (Emr)
- Lawrence Weed first described the concept of electronic medical records in the 1960s as a way to automate and organize patient records to improve care. Early systems like POMR were developed in the 1970s and refined in later decades.
- Today, most medical practices use electronic systems to record patient information like medical history, medications, test results, and billing data. Adoption has increased but fewer than half of physicians fully utilize digital records.
- Benefits include increased efficiency, reduced errors, better access to information, and potential financial incentives. Challenges include costs of implementation and use, user resistance, and privacy concerns over confidential patient data.
Electronic Medical record (emr)
The document discusses an electronic medical record (EMR) framework that allows healthcare practices to create automated medical records to improve patient care cost-effectively. The EMR framework includes key modules like patient details, clinical charting, billing, document management, and reporting. It offers benefits like portable and accessible records, compliance with healthcare standards, and integrated management of the healthcare practice.
Dr. Dawn Sievert - Monitoring Healthcare-Associated Infections At The Nationa...
Monitoring Healthcare-Associated Infections At The National Level - Dr. Dawn Sievert, Associate Director for Antimicrobial Resistance, Division of Foodborne, Waterborne, and Environmental Diseases, Centers for Disease Control and Prevention, from the 2018 NIAA Antibiotic Symposium: New Science & Technology Tools for Antibiotic Stewardship, November 13-15, 2018, Overland Park, KS, USA.
More presentations at https://www.youtube.com/playlist?list=PL8ZKJKD9cmEffjOrjbBvQZeN2_SZB_Skc
EMR vs EHR
EMR systems provide more in-depth data tracking over time with access to clinical decision support tools and a full medical history including x-rays, labs, and allergies. In contrast, EHR systems focus on giving reminders for patient screenings and checkups to improve individual patient care and simplify sharing up-to-date real time information.
Electronic Medical Records - MxSecure
Learn more about Electronic Medical Records and Meaningful Use in this OnDemand webinar presented by MxSecure, Inc.
Health Information System (HIS) at Landspitali University Hospital
Landspítali University Hospital is Iceland's largest hospital, located in Reykjavik. It has 4,600 employees and serves as the main referral center for all of Iceland. The hospital uses a variety of electronic health record (EHR) systems, with the main EHR called Saga. Landspítali's EHR strategy is to implement a new comprehensive EHR system to support all clinical activity, with the goal of the new system being in use within 7-10 years. The project is expected to cost 6-8 billion Icelandic krónur and take 4-7 years to complete.
Big data and better health outcomes - Government perspective
Big data and better health outcomes, the journey to the Ministry of Health virtual information centre. Viewed from the National Health IT Board perspective.
Graeme Osborne, Director National Health IT Board
Presented at HINZ 2014, 12 November 2014, 8.30am, Plenary Room
Electronic Health Recordsand Electronic Case Records in 2012
This document discusses the potential for electronic health records (EHRs) and electronic case records (ECRs) in 2012. It outlines several scenarios where EHRs and ECRs could improve patient care, such as allowing primary care providers, long-term care specialists, and ambulance services to access key health information. The document also describes an information architecture that would allow sharing of health event summaries and records across different healthcare organizations while addressing privacy concerns. It concludes that technology is not a major barrier and work is underway on related strategies, policies and standards.
Building a Consensus for EHR
This document discusses building consensus for electronic health records (EHRs) in healthcare. It begins by outlining goals for improving healthcare quality put forth by the Institute of Medicine. It then discusses executive mandates for implementing EHRs and defines EHRs and how they differ from electronic medical records. Factors driving the need for EHRs are described. The stages of EHR implementation and meaningful use requirements are outlined. Attributes of EHRs that support continuity of care are listed. Considerations for EHR implementation including costs, downtime, caregiver assistance, and data integrity are also discussed.
Powerpoint on electronic health record lab 1
This presentation provides an overview of electronic health records (EHR). It defines EHR as a digital format for documenting a patient's medical history maintained by healthcare providers. EHR files contain sections for different types of health information. The presentation outlines benefits of EHR such as reducing medical errors, improving quality of care through better disease management and education, and decreasing healthcare costs. It also discusses how EHR protects patient privacy through security measures and restrictions on who can access records.
ChathamHealthLink
The document summarizes ChathamHealthLink, a health information exchange program in Chatham County, Georgia. It was formed by the Chatham County Safety Net Planning Council in 2004 to improve access to and quality of healthcare for uninsured county residents. The program allows different healthcare providers using separate electronic medical record systems to securely share patient information through a central database. This reduces duplication of services, improves care coordination, and allows providers and the Council to track health outcomes and service trends across the safety net system. The goal is for ChathamHealthLink to eventually connect all area providers, hospitals, and behavioral health organizations using interoperable electronic records.
Electronic health record powerpoint assignment for informatics
The document discusses the electronic health record (EHR) and its benefits. An EHR centralizes a patient's medical records including diagnostic tests and treatment history and allows any healthcare provider secure access to this information. This ensures providers have complete information to aid in diagnosis and treatment. EHRs help reduce medical errors, streamline care, and empower patients by allowing some to access and contribute to their own records online. While privacy is a concern, laws aim to protect sensitive health information and only grant access to authorized individuals.
Electronic health record
Electronic health records allow doctors to digitally store patient information such as symptoms, test results, and medical history. This replaces the traditional paper record-keeping system. Storing records electronically provides advantages like more accurate documentation that is easier for doctors to access and update. It also reduces healthcare costs by enabling evidence-based treatment and easier information sharing between medical professionals. Overall electronic records aim to improve patient care through a more convenient, efficient, and accurate method of record storage and access.
Health Information Science_completed courses
This document lists 33 courses completed as part of a Health Information Science program of study. The courses cover topics such as the Canadian healthcare system, database design, healthcare delivery models, electronic records, project management, legal issues, standards, security, the human aspects of healthcare systems, procurement, epidemiology, research methods, programming, systems analysis, mathematics, statistics, biology, writing, and learning design. Cultural anthropology and the relationship between environment and health were also studied.
Electronic Medical Records
This study assessed the use of personal digital assistants (PDAs) in conjunction with electronic medical records (EMRs) by physician assistants (PAs) through a questionnaire sent to recent graduates. Of 122 respondents, 72 used PDAs but only 5 used PDAs with EMRs, suggesting barriers to adoption. Those using PDAs and EMRs perceived benefits like improved quality of care and efficiency. However, adoption of the combined technology lags behind individual adoption, and future research is needed to understand barriers and promote integration.
Building blockchain based Healthcare infrastructure with beyond block labs
The Current healthcare ecosystem mainly consists of seven key stakeholders –
patient, provider, payer, pharma, medical technology, technology vendors and
suppliers, and the government and healthcare regulator.
A Consistent Nationwide Data Matching Strategy Donna Roach & Nancy Walker
This document discusses patient matching from the provider perspective. It describes two hospitals, Borgess Health and Our Lady of Lourdes, and their approaches to patient matching. Borgess Health uses a probabilistic enterprise master patient index from Netrix with a 95% tolerance threshold that weights different patient identifying factors. Their process involves policy, the probabilistic system, manual intervention from HIM and registration teams, and results in merging duplicate records after discharge and monthly record clean up. The conclusion emphasizes that patient matching is a patient safety issue according to organizations like The Joint Commission, and risks can be mitigated through human responsibility, design quality, technical implementation, standardized processes, and patient involvement.
Electronic health record
An electronic health record (EHR) is a collection of patient’s electronically-stored health information in a digital and systematic format. EHR system can store data accurately.
What's hot (19)
Dr. Dawn Sievert - Monitoring Healthcare-Associated Infections At The Nationa...
Dr. Dawn Sievert - Monitoring Healthcare-Associated Infections At The Nationa...
Health Information System (HIS) at Landspitali University Hospital
Health Information System (HIS) at Landspitali University Hospital
Big data and better health outcomes - Government perspective
Big data and better health outcomes - Government perspective
Electronic Health Recordsand Electronic Case Records in 2012
Electronic Health Recordsand Electronic Case Records in 2012
Electronic health record powerpoint assignment for informatics
Electronic health record powerpoint assignment for informatics
Building blockchain based Healthcare infrastructure with beyond block labs
Building blockchain based Healthcare infrastructure with beyond block labs
A Consistent Nationwide Data Matching Strategy Donna Roach & Nancy Walker
A Consistent Nationwide Data Matching Strategy Donna Roach & Nancy Walker
Viewers also liked
ETguglielmetti
A deserted factory in Como has been transformed into a colorful street art museum. Strange creatures and kids populate the abandoned floor alongside stolen scooters. However, the formerly grey and desolate walls are now covered in vibrant artwork, allowing visitors to view and contribute to a modern art collection anywhere in the space. The street art project was created by students and photographed at the I.T.I.S. "Paolo Carcano" in Como, Italy.
ETluzzani
The document discusses the degradation of infrastructure in cities, noting that ruined asphalt, holes in roads, and walls falling into pieces have become more common and worrying due to neglected city maintenance. Photos were taken in Como, Italy by Luzzani Dario to illustrate these issues.
ETabbate
Street art, specifically graffiti, is a way for young people to express their art, though in Como there are no designated areas for it. As a result, street artists have to work in the night in unauthorized locations. Graffiti tags by writers can be found in the city center, but larger graffiti pieces are mainly seen on the empty walls of parking structures and abandoned factories, as well as on trains and in train stations.
Festejo Del DíA Del Maestro
El personal auxiliar, los alumnos y maestros de los grados tercero, segundo y primero de una escuela acompañaron y festejaron a alguien. Agradeció a todos por los besos y buenos deseos.
ETricci
The document discusses street art and how it brings color and imagination to cities. It notes that the city of Como, Italy, in particular, contains many paintings and murals that make it a beautiful city to visit. Different forms of street art are found throughout Italy, including mosaics lining streets and beautiful paintings inside underground transit stations. The document was created by a student at I.T.I.S. "Paolo Carcano" in Como, Italy.
Dengue
El documento describe al mosquito Aedes aegypti, transmisor del dengue y dengue hemorrágico, como un asesino que amenaza la salud y la vida de las personas. Se explica su ciclo de vida, las características de las enfermedades que transmite, y la importancia de eliminar sus criaderos para prevenir su propagación. También incluye estadísticas sobre el número de personas afectadas y fallecidas por estas enfermedades transmitidas por mosquitos.
ETcanonaco
This document welcomes the reader to Como, Italy. It describes Como as a lake city with clear waters and natural and artificial tenants. It mentions the city's monuments, including one dedicated to Alessandro Volta, the inventor of the battery. It also references the War Memorial from 1915. However, it notes that not everything is as it seems, as there are issues like expensive parking, pollution, and unfinished buildings. Nonetheless, the document expresses love for Como's green spaces and sailing on its waters and shores. It conveys gratitude for the city's landscapes and how it binds its children. The document was created by students at I.T.I.S. "PAOLO CARCANO" in
Creating Your Blogging Superhero
The document discusses creating an authentic "blogging superhero" persona by focusing on your most marketable traits and storytelling in a strategic way. It recommends identifying your place in the market, core values, and strengths to build a character that emphasizes the best version of yourself for your audience. While focusing only on relevant qualities, this curated persona still tells an authentic story and allows you to bravely connect with customers in a genuine yet strategic marketing way.
Viewers also liked (8)
Similar to Information Governance And Cancer Intelligence V1 0
Workshop 3 - "Presentation of the concept, definitions and terminology"
Workshop 3 - "Presentation of the concept, definitions and terminology"EURORDIS - Rare Diseases Europe
Workshop 3 - Registries
"Presentation of the concept, definitions
and terminology"
Ulrike Pypops, CF BelgiumE health
This document outlines a lecture on eHealth. It discusses how eHealth can support healthcare through electronic medical records, clinical decision support systems, telemedicine, and standards. Examples are provided of how telemedicine is used in minor injury units in Cornwall and by NHS Direct. eHealth/eScience is described as supporting cancer diagnosis and treatment through technologies like teleconferencing, imaging delivery, data mining of patient records, and access to medical simulations. Overall the document provides an overview of existing and future applications of eHealth.
Cutting Edge Conversations: Addressing Orphan and Rare Diseases
There are over 7,000 rare and orphan diseases known to impact approximately 1 in 17 individuals globally, or 50 million in the EU and USA alone. The development of safe, effective, and accessible therapies against these diseases has been challenged by manufacturing, clinical and regulatory hurdles. Despite these obstacles, increased awareness, greater funding, and new research technologies are driving discoveries in this area. Join this webinar to learn how various research groups are working in this space.
Dr. Zabinski discusses how Artificial Intelligence (AI) and Real-World Datasets (RWD) can work in synergy to address many of the challenges facing rare disease researchers, including better describing real-world epidemiology; identifying meaningful patterns in rare disease patient journeys; and assisting in finding patients, plus those not yet diagnosed. This presentation will briefly explore the ways AI and RWD together can enhance visibility into patient trajectories, improve rare disease patient identification for clinical trial recruitment and observational research, and shorten time to diagnosis.
Dr. Kish discusses how precision medicine is redefining how we evaluate and treat rare diseases. No longer is cancer defined by its organ of origin, tissue or cell type but rather its genotype. Over just a few decades lung cancer has been transformed from one disease affecting 100,000+ in the U.S. annually to dozens of cancers that each inflict just a few thousand. But, finding patients and RWD to improve outcomes can be challenging. Learn how Cardinal Health Real-World Evidence and Insights takes a decentralized approach to identify hard to find patients and RWD.
An Introduction to Health Informatics
Presented by Dr Dave Parry(1) and Dr Inga Hunter(2)
(1) Auckland University of Technology
(2) Massey University
Legal and regulatory challenges to data sharing for clinical genetics and ge...
Legal and regulatory challenges to data sharing for clinical genetics and ge...Human Variome Project
There are many factors that impede genomic variant sharing in the UK, despite it becoming a necessary part of clinical care. These include the lack of a designated infrastructure or mechanism aggravated by the complexity of laws that apply, and fragmented and variable advice from local ‘Caldicott guardians’ who guide NHS trusts on their responsibilities concerning data protection and confidentiality. Since the legitimacy of data sharing in the UK is framed in terms of ‘personal data’ being shared for ‘direct care’ (subject to legal exceptions), the blurred boundaries between clinical care and research, and the spectrum of identifiability of data also lead to differing interpretations resulting in inconsistent practices.
In a multidisciplinary collaboration, the PHG Foundation and the UK’s Association for Clinical Genetic Science co-hosted a workshop to examine the clinical necessity for sharing variant data and associated phenotypic information, the technical feasibility and the legal and regulatory impediments to such sharing. Delegates included clinicians, laboratory scientists, and key policy makers, including the National Data Guardian for Health and Care and representatives from the 100,000 Genomes Project, a pioneering research project which promises to build a legacy for future genomics services in the UK. The key finding from our work was that current arrangements for sharing genomic variants within the NHS are unsatisfactory and inconsistent practices are compromising safety and quality. Our workshop report [1] highlights the urgent need for (i) national agreement to optimise sharing within the NHS and develop consensus on the legitimacy of data sharing, (ii) standardised operational processes, including a designated sustainable database or mechanism for sharing, and (iii) strong leadership by the multiple relevant health organisations to demonstrate the benefits and risks associated with sharing and not sharing data.
Since publication of the workshop report, the NHS Consortium (operating within the DECIPHER database) has reported a 120% increase in the number of cases shared, the 100,000 Genomes Project and associated data embassy have got underway and the EU Data Protection Regulation has been finalised. However research highlights continuing public reservations about some aspects of data sharing including commercial access and misgivings around secondary uses of data. Publication of the National Data Guardian’s long-awaited review of consent and security provisions to provide guidance on a new consent and opt-out model for sharing patient information in the NHS, has been delayed pending the results of the EU referendum being known. Against this backdrop, the imperative to develop robust, proportionate policies for genomic data sharing becomes increasingly acute.
Funding from the PHG Foundation and the Association for Clinical Genetic Science.Building public trust in the use of health and care data
Dame Fiona Caldicott, National Data Guardian for Health and Care
Expo 2016, Day Two, FutureNHS Stage
Stem cells: Information environment
Alternative way of generating data from stem cells interventions performed under 21 CFR part 1271 (CGTP)
https://www.aretezoe.com/stem-cells
Priyanka pillai-Tools for rare cancer data analytics
BioGridTM is a data integration portal that curates clinical, genomic, and other health data from various sources to enable its use for research while protecting privacy. Cart-WheelTM is a rare cancer database where patients can submit information about their rare tumor to facilitate research. A researcher studying small cell-ovarian cancer could access de-identified data from BioGridTM and collaborate with Cart-WheelTM to analyze genetic pathways and design treatment plans for patients with this rare cancer type.
Early diagnosis and prevention enabled by big data geneva conference final
The presentation provides an overview of how digital health or use of data processing and telecommunication infrastructure can contribute to the early diagnosis and prevention of diseases.
Middleton.Cgu2005v6
The document summarizes the Partners HealthCare Patient Gateway, which allows patients to access their medical information online. It discusses how the gateway aims to address issues like medical errors due to a lack of access to patient information. It also notes that the gateway is part of Partners HealthCare's efforts to improve patient-centered care by better engaging and informing patients.
Towards a National Learning Health System - Aziz Sheikh
This document discusses moving from current ad-hoc healthcare systems to a national learning health system. It outlines challenges facing healthcare like rising costs and an aging population. Current digital health data is underused. Examples show how data can enable epidemiological research, evaluate policies, and support clinical trials. Bigger efforts are needed to create a prototype national asthma learning health system. This would use various data sources to monitor asthma burden, improve outcomes and reduce deaths. The goal is an integrated system that continuously learns from patient care to drive discovery and improve value.
Why merging medical records, hospital reports, and clinical trial data is a v...
Medical privacy and breaches of personal health information (PHI) has been a hot topic for several years. For the clinical trial industry, the main concerns are decline in recruitment resulting from lack of confidence in data handling and instances of breaches that affect data integrity that adversely affect NDA and MA applications in major markets, which precipitates administrative action taken by national regulators in response to local incidents.
European legislators rely extensively on administrative measures implemented by national competent authorities. Although specific and detailed EU-level legislation exists, specific information about data breaches, cases and incidents, volume and type of affected data, root causes and analysis of consequences is largely missing. According to Howard and Gulyas (2014), this lack of organized event records is currently an empirical obstacle but provides opportunity to generate new knowledge about data and privacy protection that could bolster future trial recruitment.
In the U.S., summary details of breaches that involved more than 500 individuals are available at the OCR portal called Wall of Shame for everyone to analyze. Disclosure obligations in HIPAA made the problem of data breaches in healthcare obvious and protection of the privacy of patients has been an important part of physicians’ code of conduct. This offers lessons learned to mitigate systemic vulnerabilities that undermine trial participation.
CLQ Overview Deck
CancerLinQ aims to harness big data to improve cancer care by learning from every patient. It faces challenges of integrating diverse data types from genomics to behaviors. Its goals are precision, personalized medicine through molecular profiling of individual cancers. As clinical trials enroll few patients, CancerLinQ would provide real-world data from electronic health records to uncover new insights. When deployed, it will analyze de-identified patient records to uncover care patterns, allow comparing care to guidelines and peers, and provide evidence-based guidance. This has the potential to improve outcomes for patients and quality for providers and researchers.
Health Information Strategy for New Zealand Sharing personal health information
Health Information Strategy for New Zealand Sharing personal health informationHealth Informatics New Zealand
The document outlines New Zealand's Health Information Strategy (HIS-NZ) which signals increased sharing of personal health information through 12 action zones rather than a single electronic health record. It discusses principles for information sharing including using key health event summaries to support integrated care while maintaining distributed electronic health records. The strategy will be overseen by an independent ministerial committee and emphasizes stakeholder engagement including improving consumer involvement.0303 Julius Zaleskis - GDPR and data protection for cancer advocates
0303 Julius Zaleskis - GDPR and data protection for cancer advocatesWorkgroup of European Cancer Patient Advocacy Networks
This document provides an overview of key GDPR concepts and requirements that cancer patient advocates need to know. It discusses how GDPR protects patient data and health information, the rights it provides to patients, and how cancer organizations should comply. This includes only processing data that is necessary, establishing procedures for responding to requests and breaches, designating a data protection officer for consultations, revising IT security, and educating staff on their responsibilities. It also presents a case study where a hospital was fined for excessive access to patient medical records without proper access rights management or security policies.Sucessful Healthcare Organizations will be Data Driven
The document discusses how healthcare organizations are becoming increasingly data-driven. It notes that there is an estimated 50 petabytes of healthcare data, much of which is unstructured, and stored across hundreds of different sources like medical images and lab results. Integrating medical devices with electronic health records could save over $30 billion per year while improving patient care. However, only a third of hospitals currently integrate devices with EHRs. The large amount of data from various sources presents challenges around data quality, fragmentation, accuracy, and security. Healthcare organizations are increasingly relying on data and analytics to support population health, deliver best practices, increase patient engagement, and move from volume-based to value-based care. Clean, connected, and secure data
The Epidemiologist's Dream: Denmark
This document discusses Denmark's national health registries and their use for epidemiological research. It notes that Denmark assigns unique personal identification numbers to all citizens, allowing accurate linkage between various health registries. This enables large population-based cohort studies with long-term follow up. The registries contain information on healthcare utilization, prescriptions, and diagnoses. Several studies are described that use the registries to study topics like MMR vaccination and autism, quality of diabetes care, and blood pressure control. Challenges with using registry data include ensuring validity of diagnoses and missing data. However, strengths include no selection bias, large sample sizes, and prospectively collected data.
Linking Systems to Strategy - Information Systems Evolution in ProCare
Linking Systems to Strategy - Information Systems Evolution in ProCareHealth Informatics New Zealand
The document discusses the evolution of information systems to better support healthcare in New Zealand. It outlines several key areas such as meeting the needs of patients, providers, and the population's health as a whole. It also addresses the importance of innovation, privacy, infrastructure investment, and balancing the perspectives of individuals, providers, and policymakers. The response is to bring a more complete health picture for individuals into consultations to enable informed treatment decisions.MANAGING THE INFORMATION SECURITY ISSUES OF ELECTRONIC MEDICAL RECORDS
The document discusses three key factors for securing electronic medical records:
1) Sharing sensitive patient information securely across healthcare providers through centralized databases while connecting more hospitals.
2) Creating laws and regulations focused on protecting sensitive health information and electronic medical records.
3) Increasing awareness among healthcare providers about the importance of health information security through training programs.
Why collect and use health data? Professor Peter Bradley, Director of Knowl...
Professor Bradley outlines the importance of population based studies, the development of data science and what is needed for the efficient use of data.
Similar to Information Governance And Cancer Intelligence V1 0 (20)
Workshop 3 - "Presentation of the concept, definitions and terminology"
Workshop 3 - "Presentation of the concept, definitions and terminology"
Cutting Edge Conversations: Addressing Orphan and Rare Diseases
Cutting Edge Conversations: Addressing Orphan and Rare Diseases
Legal and regulatory challenges to data sharing for clinical genetics and ge...
Legal and regulatory challenges to data sharing for clinical genetics and ge...
Building public trust in the use of health and care data
Building public trust in the use of health and care data
Priyanka pillai-Tools for rare cancer data analytics
Priyanka pillai-Tools for rare cancer data analytics
Early diagnosis and prevention enabled by big data geneva conference final
Early diagnosis and prevention enabled by big data geneva conference final
Towards a National Learning Health System - Aziz Sheikh
Towards a National Learning Health System - Aziz Sheikh
Why merging medical records, hospital reports, and clinical trial data is a v...
Why merging medical records, hospital reports, and clinical trial data is a v...
Health Information Strategy for New Zealand Sharing personal health information
Health Information Strategy for New Zealand Sharing personal health information
0303 Julius Zaleskis - GDPR and data protection for cancer advocates
0303 Julius Zaleskis - GDPR and data protection for cancer advocates
Sucessful Healthcare Organizations will be Data Driven
Sucessful Healthcare Organizations will be Data Driven
Linking Systems to Strategy - Information Systems Evolution in ProCare
Linking Systems to Strategy - Information Systems Evolution in ProCare
MANAGING THE INFORMATION SECURITY ISSUES OF ELECTRONIC MEDICAL RECORDS
MANAGING THE INFORMATION SECURITY ISSUES OF ELECTRONIC MEDICAL RECORDS
Why collect and use health data? Professor Peter Bradley, Director of Knowl...
Why collect and use health data? Professor Peter Bradley, Director of Knowl...
Recently uploaded
Medical Quiz ( Online Quiz for API Meet 2024 ).pdf
This quiz was conducted as a promotional event for the 2024 Annual Meet of Kerala Chapter of API.
More than 20 participants took part everyday !
Hemodialysis: Chapter 5, Dialyzers Overview - Dr.Gawad
- Video recording of this lecture in English language: https://youtu.be/Pt1nA32sdHQ
- Video recording of this lecture in Arabic language: https://youtu.be/uFdc9F0rlP0
- Link to download the book free: https://nephrotube.blogspot.com/p/nephrotube-nephrology-books.html
- Link to NephroTube website: www.NephroTube.com
- Link to NephroTube social media accounts: https://nephrotube.blogspot.com/p/join-nephrotube-on-social-media.html
MERCURY GROUP.BHMS.MATERIA MEDICA.HOMOEOPATHY
Mercurius is named after the roman god mercurius, the god of trade and science. The planet mercurius is named after the same god. Mercurius is sometimes called hydrargyrum, means ‘watery silver’. Its shine and colour are very similar to silver, but mercury is a fluid at room temperatures. The name quick silver is a translation of hydrargyrum, where the word quick describes its tendency to scatter away in all directions.
The droplets have a tendency to conglomerate to one big mass, but on being shaken they fall apart into countless little droplets again. It is used to ignite explosives, like mercury fulminate, the explosive character is one of its general themes.
Travel Clinic Cardiff: Health Advice for International Travelers
Travel Clinic Cardiff offers comprehensive travel health services, including vaccinations, travel advice, and preventive care for international travelers. Our expert team ensures you are well-prepared and protected for your journey, providing personalized consultations tailored to your destination. Conveniently located in Cardiff, we help you travel with confidence and peace of mind. Visit us: www.nxhealthcare.co.uk
Top Travel Vaccinations in Manchester
Travel vaccination in Manchester offers comprehensive immunization services for individuals planning international trips. Expert healthcare providers administer vaccines tailored to your destination, ensuring you stay protected against various diseases. Conveniently located clinics and flexible appointment options make it easy to get the necessary shots before your journey. Stay healthy and travel with confidence by getting vaccinated in Manchester. Visit us: www.nxhealthcare.co.uk
Acute Gout Care & Urate Lowering Therapy .pdf
In this document , the management of acute gout attacks and a description of urate lowering therapy is mentioned.
Demystifying Fallopian Tube Blockage- Grading the Differences and Implication...
Fallopian tube blockage may cause female infertility. For treatment, herbal medicine Fuyan Pill can be a solution.
Osteoporosis - Definition , Evaluation and Management .pdf
Osteoporosis is an increasing cause of morbidity among the elderly.
In this document , a brief outline of osteoporosis is given , including the risk factors of osteoporosis fractures , the indications for testing bone mineral density and the management of osteoporosis
pathology MCQS introduction to pathology general pathology
pathology MCQS introduction to pathology general pathology
REGULATION FOR COMBINATION PRODUCTS AND MEDICAL DEVICES.pptx
It includes regulation of combination products and medical devices. FDA and industry liaisons.
Does Over-Masturbation Contribute to Chronic Prostatitis.pptx
In some case, your chronic prostatitis may be related to over-masturbation. Generally, natural medicine Diuretic and Anti-inflammatory Pill can help mee get a cure.
Post-Menstrual Smell- When to Suspect Vaginitis.pptx
Do you have abnormal smell after periods? It may be vaginitis. Do not worry, herbal medicine Fuyan Pill can help you get a cure.
June 2024 Oncology Cartoons By Dr Kanhu Charan Patro
une 2024 Oncology Cartoons By Dr Kanhu Charan Patro
Efficacy of Avartana Sneha in Ayurveda
Avartana Sneha is a unique method of Preparation of Sneha Kalpana in Ayurveda, mainly it is indicated for the Vataja rogas.
The Nervous and Chemical Regulation of Respiration
These lecture slides, by Dr Sidra Arshad, offer a simplified look into the mechanisms involved in the regulation of respiration:
Learning objectives:
1. Describe the organisation of respiratory center
2. Describe the nervous control of inspiration and respiratory rhythm
3. Describe the functions of the dorsal and respiratory groups of neurons
4. Describe the influences of the Pneumotaxic and Apneustic centers
5. Explain the role of Hering-Breur inflation reflex in regulation of inspiration
6. Explain the role of central chemoreceptors in regulation of respiration
7. Explain the role of peripheral chemoreceptors in regulation of respiration
8. Explain the regulation of respiration during exercise
9. Integrate the respiratory regulatory mechanisms
10. Describe the Cheyne-Stokes breathing
Study Resources:
1. Chapter 42, Guyton and Hall Textbook of Medical Physiology, 14th edition
2. Chapter 36, Ganong’s Review of Medical Physiology, 26th edition
3. Chapter 13, Human Physiology by Lauralee Sherwood, 9th edition
Recently uploaded (20)
Medical Quiz ( Online Quiz for API Meet 2024 ).pdf
Medical Quiz ( Online Quiz for API Meet 2024 ).pdf
Hemodialysis: Chapter 5, Dialyzers Overview - Dr.Gawad
Hemodialysis: Chapter 5, Dialyzers Overview - Dr.Gawad
Travel Clinic Cardiff: Health Advice for International Travelers
Travel Clinic Cardiff: Health Advice for International Travelers
CHEMOTHERAPY_RDP_CHAPTER 6_Anti Malarial Drugs.pdf
CHEMOTHERAPY_RDP_CHAPTER 6_Anti Malarial Drugs.pdf
Demystifying Fallopian Tube Blockage- Grading the Differences and Implication...
Demystifying Fallopian Tube Blockage- Grading the Differences and Implication...
Osteoporosis - Definition , Evaluation and Management .pdf
Osteoporosis - Definition , Evaluation and Management .pdf
pathology MCQS introduction to pathology general pathology
pathology MCQS introduction to pathology general pathology
REGULATION FOR COMBINATION PRODUCTS AND MEDICAL DEVICES.pptx
REGULATION FOR COMBINATION PRODUCTS AND MEDICAL DEVICES.pptx
Does Over-Masturbation Contribute to Chronic Prostatitis.pptx
Does Over-Masturbation Contribute to Chronic Prostatitis.pptx
Tests for analysis of different pharmaceutical.pptx
Tests for analysis of different pharmaceutical.pptx
Post-Menstrual Smell- When to Suspect Vaginitis.pptx
Post-Menstrual Smell- When to Suspect Vaginitis.pptx
June 2024 Oncology Cartoons By Dr Kanhu Charan Patro
June 2024 Oncology Cartoons By Dr Kanhu Charan Patro
The Nervous and Chemical Regulation of Respiration
The Nervous and Chemical Regulation of Respiration
Information Governance And Cancer Intelligence V1 0
- 1. Information Governance and Cancer Intelligence National Cancer Intelligence Network
- 3. ..but holding such information presents risks that must be managed through appropriate governance and security measures Losses of sensitive data: Breaches of trust / confidentiality: Inappropriate or misleading uses: Sources: BBC News; International Herald Tribune; Press Association; Associated Press; Nature
- 6. By providing a single, controlled repository of data, cancer registries can minimise risks to privacy and maximise benefits Cancer registration Cancer waits Hospital Episode Statistics Mortality data Radiotherapy / chemotherapy data Linked National Repository Commissioning Clinical Audit Research Analysis Data are collected once... ...processed and linked in a controlled environment... ...and released under strict conditions Cancer Registries Identifiable data (Encrypted) Identifiable data (Encrypted) Anonymised / pseudonymised data Data held in a secure environment
- 7. Cancer registry access policies are designed to prevent the disclosure of identifiable data into the public domain Identifiable Data Items: Name Address or postcode Full date of birth Full date or cause of death NHS or hospital numbers Potentially Identifiable Data Items: Individual records (even if they do not include identifiable information) Tables of data with cell counts of less than 5 based on: Tables of data containing cells that have underlying populations of less than 1000 areas where the total population is less than approximately 62,000 any area where data may be combined with PCT level data to provide information on population ‘slivers’ five-year age groups between 0 and 24 years where there is a non-negligible risk of disclosure No registry publications or reports ever identify individuals
- 10. Information Governance and Cancer Intelligence National Cancer Intelligence Network