- The document is a lecture given by Dr. ROJoson at the Cancer Crusaders Club 35th Annual Christmas Get-together on how to live a life after a cancer diagnosis.
- Dr. ROJoson emphasizes the importance of acceptance of the cancer diagnosis and creating an intentional living plan to cope with the psychological distress of a cancer diagnosis and continue living a functional and meaningful life.
- An intentional living plan involves setting goals and plans for the next years of one's life based on cancer prognosis to feel a sense of fulfillment and be ready to die a happy death when the time comes.
ROJoson PEP Talk: How to Live a Life with a Cancer DiagnosisReynaldo Joson
This document discusses strategies for living with a cancer diagnosis, focusing on acceptance and creating an intentional living plan. It recommends accepting the reality of the diagnosis to reduce distress. An intentional living plan should be made using cancer prognosis information from doctors, outlining goals for the remaining years to live a purposeful life. Acceptance allows one to take control and continue living functionally despite cancer. An intentional living plan promotes intentional, meaningful living through the cancer journey.
ROJoson PEP Talk: How to Live a Life with a Possible and Actual CancerReynaldo Joson
The document provides guidance on how to live with a possible or actual cancer diagnosis. It recommends accepting the reality of cancer risk, avoiding modifiable risk factors, learning cancer symptoms, conducting regular self-exams, seeing an oncologist yearly, and getting treatment early if cancer is detected. It also stresses trusting doctors and one's spirituality, sharing one's cancer journey, and making an intentional living plan to cope with cancer and its uncertainties.
This document provides information about cancer survivorship from the American Society of Clinical Oncology. It defines survivorship as beginning at diagnosis and discusses the challenges survivors may face after treatment, both psychological and physical. It emphasizes the importance of follow-up care, lifestyle changes, asking questions, and utilizing survivorship resources to help adjust to life after cancer treatment.
ROJoson PEP Talk: CANCER CURABILITY & SURVIVORSHIPReynaldo Joson
The document discusses cancer curability and survivorship. It begins by defining cancer as uncontrolled cell growth that can spread to other tissues. It then notes that while there is no true cure for cancer currently, some cancers may be considered cured if they do not recur within a certain time period, such as 10 years, based on the typical recurrence timelines for different cancer types. The document also discusses how physicians use the term "remission" if cancer is undetectable, but do not guarantee it will not return. It defines a cancer survivor as anyone diagnosed with cancer and notes the speaker's registry of over 150 survivors who have been in remission for 10+ years.
This document provides information about advanced cancer care planning for patients and their families. It discusses care options for advanced cancer such as standard treatment, clinical trials, palliative care, and hospice care. It explains that palliative care focuses on improving quality of life by managing symptoms and providing emotional and practical support. Hospice care is a form of palliative care for those expected to live 6 months or less and focuses on ensuring compassionate end-of-life care. The document provides guidance on exploring care options, involving family in decision making, and coping near the end of life.
The psychological impact of living with and beyond cancer - reportAlex King
Earlier diagnosis and advances in treatment mean that more people are living with and beyond cancer,1 with approximately half of those diagnosed today living for ten years or more.2 Alongside positive clinical outcomes is the need to identify the key psychological challenges faced by individuals experiencing longterm cancer survival, and whether current provision of psychological support and services meet the needs of this relatively new group of patients. It is important to note that the psychological challenges faced during long-term survivorship are often not independent of those experienced at other points in a patient’s journey, including diagnosis, during or at completion of treatment, remission or at no evidence of disease (NED). As such, a broader view is necessary to ensure that psychological challenges faced in long-term survivorship are not addressed in isolation and individual impact is acknowledged.
Many European countries include referral pathways to psychological support in cancer care guidelines however, this is not always the case in the UK. For example, lung cancer guidelines do not include psychological assessment, referral pathways to psychological support or mention psychological burden.3 Existing guidance relating to the supportive and palliative care for adults with cancer was published by the National Institute for Health and Care Excellence (NICE) in 2004.4 Since then, the cancer treatment landscape has seen significant advances with earlier diagnosis and improved survival rates alongside changes within the wider environment including the advent of social media and other digital resources.
The ‘Psychological Support for Patients Living with Cancer - Patient Workshop’ aimed to identify the uniting, unmet psychological needs of people living with and beyond cancer. The workshop found the following key themes: • Prioritising quality of life (QoL) • Challenge of re-introduction to the community following treatment • The impact of cancer on families and carers
When addressing the provision of psychological support and ways in which current services could be improved, the following areas were discussed: • Integrating psychological support into the treatment pathway • Improving timing and communication • Securing timely support • Acknowledging differences • Getting support for families and carers
The wider environment, existing initiatives and the resulting workshop learnings will help inform MSD’s wider understanding of this topic and help to shape future planning regarding MSD’s contribution to support the psychological well-being of patients living with and beyond cancer.
ROJoson PEP Talk: CANCER INCURABILITY and HOSPICE CAREReynaldo Joson
The document discusses cancer incurability and hospice care. It defines cancer as an uncontrolled growth of cells that can spread to other tissues. Cancer incurability means the cancer cannot be cured or there is no cure. Some cancers may be incurable but not all - early treatment and effective therapies can cure some cancers. A cancer is considered terminally incurable if it is advanced, growing rapidly, recurring and no effective treatment exists, and the patient is expected to pass away within a year. At that point, the goal shifts from curative to palliative care and hospice to improve quality of life.
ROJoson PEP Talk: How to Live a Life with a Cancer DiagnosisReynaldo Joson
This document discusses strategies for living with a cancer diagnosis, focusing on acceptance and creating an intentional living plan. It recommends accepting the reality of the diagnosis to reduce distress. An intentional living plan should be made using cancer prognosis information from doctors, outlining goals for the remaining years to live a purposeful life. Acceptance allows one to take control and continue living functionally despite cancer. An intentional living plan promotes intentional, meaningful living through the cancer journey.
ROJoson PEP Talk: How to Live a Life with a Possible and Actual CancerReynaldo Joson
The document provides guidance on how to live with a possible or actual cancer diagnosis. It recommends accepting the reality of cancer risk, avoiding modifiable risk factors, learning cancer symptoms, conducting regular self-exams, seeing an oncologist yearly, and getting treatment early if cancer is detected. It also stresses trusting doctors and one's spirituality, sharing one's cancer journey, and making an intentional living plan to cope with cancer and its uncertainties.
This document provides information about cancer survivorship from the American Society of Clinical Oncology. It defines survivorship as beginning at diagnosis and discusses the challenges survivors may face after treatment, both psychological and physical. It emphasizes the importance of follow-up care, lifestyle changes, asking questions, and utilizing survivorship resources to help adjust to life after cancer treatment.
ROJoson PEP Talk: CANCER CURABILITY & SURVIVORSHIPReynaldo Joson
The document discusses cancer curability and survivorship. It begins by defining cancer as uncontrolled cell growth that can spread to other tissues. It then notes that while there is no true cure for cancer currently, some cancers may be considered cured if they do not recur within a certain time period, such as 10 years, based on the typical recurrence timelines for different cancer types. The document also discusses how physicians use the term "remission" if cancer is undetectable, but do not guarantee it will not return. It defines a cancer survivor as anyone diagnosed with cancer and notes the speaker's registry of over 150 survivors who have been in remission for 10+ years.
This document provides information about advanced cancer care planning for patients and their families. It discusses care options for advanced cancer such as standard treatment, clinical trials, palliative care, and hospice care. It explains that palliative care focuses on improving quality of life by managing symptoms and providing emotional and practical support. Hospice care is a form of palliative care for those expected to live 6 months or less and focuses on ensuring compassionate end-of-life care. The document provides guidance on exploring care options, involving family in decision making, and coping near the end of life.
The psychological impact of living with and beyond cancer - reportAlex King
Earlier diagnosis and advances in treatment mean that more people are living with and beyond cancer,1 with approximately half of those diagnosed today living for ten years or more.2 Alongside positive clinical outcomes is the need to identify the key psychological challenges faced by individuals experiencing longterm cancer survival, and whether current provision of psychological support and services meet the needs of this relatively new group of patients. It is important to note that the psychological challenges faced during long-term survivorship are often not independent of those experienced at other points in a patient’s journey, including diagnosis, during or at completion of treatment, remission or at no evidence of disease (NED). As such, a broader view is necessary to ensure that psychological challenges faced in long-term survivorship are not addressed in isolation and individual impact is acknowledged.
Many European countries include referral pathways to psychological support in cancer care guidelines however, this is not always the case in the UK. For example, lung cancer guidelines do not include psychological assessment, referral pathways to psychological support or mention psychological burden.3 Existing guidance relating to the supportive and palliative care for adults with cancer was published by the National Institute for Health and Care Excellence (NICE) in 2004.4 Since then, the cancer treatment landscape has seen significant advances with earlier diagnosis and improved survival rates alongside changes within the wider environment including the advent of social media and other digital resources.
The ‘Psychological Support for Patients Living with Cancer - Patient Workshop’ aimed to identify the uniting, unmet psychological needs of people living with and beyond cancer. The workshop found the following key themes: • Prioritising quality of life (QoL) • Challenge of re-introduction to the community following treatment • The impact of cancer on families and carers
When addressing the provision of psychological support and ways in which current services could be improved, the following areas were discussed: • Integrating psychological support into the treatment pathway • Improving timing and communication • Securing timely support • Acknowledging differences • Getting support for families and carers
The wider environment, existing initiatives and the resulting workshop learnings will help inform MSD’s wider understanding of this topic and help to shape future planning regarding MSD’s contribution to support the psychological well-being of patients living with and beyond cancer.
ROJoson PEP Talk: CANCER INCURABILITY and HOSPICE CAREReynaldo Joson
The document discusses cancer incurability and hospice care. It defines cancer as an uncontrolled growth of cells that can spread to other tissues. Cancer incurability means the cancer cannot be cured or there is no cure. Some cancers may be incurable but not all - early treatment and effective therapies can cure some cancers. A cancer is considered terminally incurable if it is advanced, growing rapidly, recurring and no effective treatment exists, and the patient is expected to pass away within a year. At that point, the goal shifts from curative to palliative care and hospice to improve quality of life.
Palliative care provides relief from symptoms of serious illnesses and improves quality of life. It involves a team that focuses on pain management, symptom control, and emotional and spiritual support for patients and families. Palliative care can be provided at any stage of a serious illness alongside curative treatment.
The document discusses Cancer Journey Sharing, which involves voluntarily disclosing one's experience of living with cancer. It describes the benefits of sharing one's cancer journey, such as promoting acceptance of the diagnosis and raising awareness. Tips are provided for how to share one's story, including being open, real, and concise. Cancer Journey Sharing can help control depression and anxiety by connecting with others also experiencing cancer and learning from their journeys. Opening up about one's personal experience can provide solace and transform overall well-being.
On September 3, 2015, Ovarian cancer survivors and FDA Patient Representatives Peg Ford, Susan Leighton and Annie Ellis were invited to provide the patient perspective at the recent Ovarian Cancer Endpoints Workshop hosted by the Food and Drug Administration (FDA). This meeting was co-sponsored by the Society of Gynecologic Oncology (SGO), the American Association for Cancer Research (AACR) and the American Society of Clinical Oncology (ASCO). Many important topics to the ovarian cancer community were discussed, including novel clinical trial designs, biomarkers, and new classes of agents such as immunotherapies.
This document provides an overview of palliative care, including its definition, goals, scope, principles, and models. Palliative care aims to relieve suffering and improve quality of life for patients facing serious illnesses. It focuses on addressing physical, psychological, social, and spiritual needs through a holistic, team-based approach. While still limited in availability worldwide, palliative care services are expanding, especially to address needs for chronic disease management in addition to cancer care.
This document provides an overview and summary of a conference on early age onset colorectal cancer (EAO-CRC). It begins with an introduction by Dr. Thomas K. Weber and discusses increasing incidence trends in CRC, particularly among younger age groups. Several presentations are summarized that cover topics like psychosocial support needs, integrative wellness strategies, and survivorship care programs. The importance of a multidisciplinary approach to meet patients' complex needs is emphasized.
This document provides an overview of palliative care, including:
1) Palliative care aims to relieve suffering and improve quality of life for patients facing serious illnesses, and involves addressing physical, emotional, and spiritual needs.
2) As the population ages and chronic diseases increase, more patients will benefit from palliative care services to improve end-of-life experiences and outcomes.
3) Prognostication, or predicting a patient's life expectancy, is an important but challenging skill for physicians, and palliative care aims to improve care based on patient preferences near the end of life.
ROJoson PEP Talk: HOSPICE CARE IN CANCER PATIENTSReynaldo Joson
The document discusses a presentation on hospice care in cancer patients. The presentation aims to provide laypeople with an essential understanding of hospice care. It covers topics like what hospice care is, when it is indicated, the difference between hospice and palliative care, how hospice care is provided at home, and recommendations around patient empowerment and hospice care decision making. The presentation encourages participants to gain knowledge about hospice care through the talk and subsequent evaluation to better understand care options for cancer patients.
The document discusses palliative care, what it is, and its benefits. It provides evidence that palliative care can improve quality of life for patients with serious illnesses, help patients live longer, and reduce healthcare costs. The document proposes developing a palliative care program at HealthAlliance Hospital through a team approach and various models of consultative and inpatient palliative care services.
Depression not only affects your brain and behavior—it affects your entire
body. Depression has been linked with other health problems, including
cancer. Dealing with more than one health problem at a time
can be difficult, so proper
treatment is important.
Cancer patients have to deal with lots of feelings, not knowing what will happen next, and feeling sick all the time. This journey has different parts full of ups and downs, each with its own problems and chances to be strong. Dr Austin Fernandes, Psychiatrist, Dr L H Hiranandani Hospital, Powai, Mumbai, shared that as psychiatrist, he has watched and helped patients through this tough time.
Breast cancer medical treatment, side effects and complementary therapies 2017mostafa hegazy
This book aims to provide breast cancer patients and their caregivers with comprehensive information about breast cancer diagnosis, treatment, side effects, and complementary therapies. It takes readers through the journey of Prema, who was diagnosed with breast cancer, and her caregiver Prem. The book covers topics like cancer diagnosis, medical treatment options, physical and psychosocial side effects of treatment, complementary therapies, and the importance of patient-centered care to improve quality of life. By presenting medical and non-medical information in simple language, the authors hope future breast cancer patients and their families will feel prepared to face the challenges of dealing with breast cancer.
iOH Webinar Slide - Cancer Prehabilitation Webinar slideshowiohwebsiteian
Cancer Prehabilitation aims to prepare patients for cancer treatment through physical activity, nutrition, and mental well-being support from the point of diagnosis. The three core elements of prehabilitation are physical activity, nutrition and eating well, and emotional and mental well-being. Engaging in prehabilitation can lead to improved outcomes including better tolerance of treatment, faster recovery times, and reduced complications. Prehabilitation supports patients' resilience and empowers them to play an active role in their cancer journey from the start.
AN EYE OPENER
I am not telling you that you have to do this, I am nearly asking you to have an open mind and research the information I am providing.
Last week my husband and I had the opportunity to be part of the Annual Cancer Convention/Alternative therapies. We heard well-known medical doctors, clinical researchers, nutritionists and authors speak on prevention and control of cancer along with other diseases through nutrition, tests and non-toxic therapies.
For nearly seven years of research, since I was diagnosed with breast cancer stage 2 and I have always believed in non-toxic treatments. My husband and I both were struck with this disease and neither of us had surgery, chemo and radiation. To this day we are striving to educate others in the cause of managing a healthier lifestyle, for this is the first step to a cleaner life. Through opening others minds to what is out there, for them to see that you do not need chemicals and toxins to heal this disease.
By going to the convention, it just broadens our knowledge in just what is out there as far as products, assistance, and treatments. Here are some slides and pictures from this amazing three days of listening to speakers, talking to vendors and patients from all over.
REMEMBER THERE ARE NO MISTAKES JUST LESSONS.
TRUST YOUR SELF AND LOVE YOUR SELF.
WITH THIS ANYTHING IS POSSIBLE.
KNOWLEDGE IS POWER
This document provides an overview of a webinar on goals of care when cancer is chronic. It introduces the speakers, Dr. Jim Cleary and Reese Garcia. It provides information on how to ask questions during the webinar and access webinar archives. The document also includes a disclaimer and biographies of the speakers. Finally, it outlines some of the topics that will be covered in the webinar, including palliative vs curative intentions, informed consent, maintaining hope, and adjusting goals of care over time.
This document discusses human behavior and health from several perspectives. It introduces concepts from anthropology, sociology, and psychology that can help understand human behavior. It then discusses the Health Belief Model, which proposes that people's beliefs influence their health behaviors. The model includes perceptions of susceptibility, severity, benefits, and barriers. Cues to action and self-efficacy can also impact health behaviors. The document applies the Health Belief Model to understand behaviors like vaccination and managing heart conditions. It also examines illness behavior, patient compliance, and factors that can influence adherence to medical advice.
Obesity is a serious and complex disease that affects many people worldwide. It can negatively impact health if left unmanaged. Successful weight loss requires a comprehensive approach involving medical care, nutrition, exercise, and education to develop lasting lifestyle changes. Managing obesity may involve identifying the underlying causes, creating a personalized plan, and receiving support from a healthcare team with expertise in weight management. Reaching a health goal like weight loss is a lifelong journey that requires commitment over time.
The document discusses factors that influence human behavior related to health issues according to the Health Belief Model. The Health Belief Model was developed in the 1950s to understand why people were not participating in disease screening programs. It identifies key constructs including perceived susceptibility, severity, benefits, and barriers that impact health behaviors. The model can help explain behaviors related to disease prevention, screening, and treatment adherence. Improving understanding of factors like these that influence illness behaviors and patient compliance can help improve health outcomes.
The document discusses Cancer Journey Sharing, which involves a cancer patient voluntarily disclosing and sharing information about their life and experience with cancer. The discussion covers:
1. The benefits of sharing, such as promoting acceptance of the diagnosis and raising awareness.
2. When sharing is appropriate, such as when comfortable, and who to share with, like friends and support groups.
3. Tips for sharing, including being open, real, and concise in telling one's story.
4. The importance of sharing to help cope with depression/anxiety, connect with others, and inspire by sharing hard-earned wisdom.
The document discusses ethics of end-of-life care. It begins by defining end-of-life care and palliative care. It then outlines the four guiding ethical principles of clinical integrity, beneficence, autonomy, and justice/non-maleficence. The document discusses some key ethical dilemmas at the end of life including advance directives, surrogate decision makers, and refusal of treatment. It also discusses controversial issues like euthanasia and physician-assisted suicide.
Goals of care should be patient-centered objectives that can be achieved by medical treatment. Too often in our healthcare system goals of care result in two extremes: (1) patients are led to believe that the goals of care only incorporates their hopes, regardless of the clinical situation, with this being the only possible clinical outcome, or (2) that goals of care are synonyms for a conversation about changing code status to “do not attempt resuscitation” and/or referral to hospice. In reality, goals of care should include both what the patient, their family, and providers hope for while simultaneously planning for the worst. Goals of care most encompass and evolve with the patient’s disease and not simply brought into and only focus on end of life.
Palliative care provides relief from symptoms of serious illnesses and improves quality of life. It involves a team that focuses on pain management, symptom control, and emotional and spiritual support for patients and families. Palliative care can be provided at any stage of a serious illness alongside curative treatment.
The document discusses Cancer Journey Sharing, which involves voluntarily disclosing one's experience of living with cancer. It describes the benefits of sharing one's cancer journey, such as promoting acceptance of the diagnosis and raising awareness. Tips are provided for how to share one's story, including being open, real, and concise. Cancer Journey Sharing can help control depression and anxiety by connecting with others also experiencing cancer and learning from their journeys. Opening up about one's personal experience can provide solace and transform overall well-being.
On September 3, 2015, Ovarian cancer survivors and FDA Patient Representatives Peg Ford, Susan Leighton and Annie Ellis were invited to provide the patient perspective at the recent Ovarian Cancer Endpoints Workshop hosted by the Food and Drug Administration (FDA). This meeting was co-sponsored by the Society of Gynecologic Oncology (SGO), the American Association for Cancer Research (AACR) and the American Society of Clinical Oncology (ASCO). Many important topics to the ovarian cancer community were discussed, including novel clinical trial designs, biomarkers, and new classes of agents such as immunotherapies.
This document provides an overview of palliative care, including its definition, goals, scope, principles, and models. Palliative care aims to relieve suffering and improve quality of life for patients facing serious illnesses. It focuses on addressing physical, psychological, social, and spiritual needs through a holistic, team-based approach. While still limited in availability worldwide, palliative care services are expanding, especially to address needs for chronic disease management in addition to cancer care.
This document provides an overview and summary of a conference on early age onset colorectal cancer (EAO-CRC). It begins with an introduction by Dr. Thomas K. Weber and discusses increasing incidence trends in CRC, particularly among younger age groups. Several presentations are summarized that cover topics like psychosocial support needs, integrative wellness strategies, and survivorship care programs. The importance of a multidisciplinary approach to meet patients' complex needs is emphasized.
This document provides an overview of palliative care, including:
1) Palliative care aims to relieve suffering and improve quality of life for patients facing serious illnesses, and involves addressing physical, emotional, and spiritual needs.
2) As the population ages and chronic diseases increase, more patients will benefit from palliative care services to improve end-of-life experiences and outcomes.
3) Prognostication, or predicting a patient's life expectancy, is an important but challenging skill for physicians, and palliative care aims to improve care based on patient preferences near the end of life.
ROJoson PEP Talk: HOSPICE CARE IN CANCER PATIENTSReynaldo Joson
The document discusses a presentation on hospice care in cancer patients. The presentation aims to provide laypeople with an essential understanding of hospice care. It covers topics like what hospice care is, when it is indicated, the difference between hospice and palliative care, how hospice care is provided at home, and recommendations around patient empowerment and hospice care decision making. The presentation encourages participants to gain knowledge about hospice care through the talk and subsequent evaluation to better understand care options for cancer patients.
The document discusses palliative care, what it is, and its benefits. It provides evidence that palliative care can improve quality of life for patients with serious illnesses, help patients live longer, and reduce healthcare costs. The document proposes developing a palliative care program at HealthAlliance Hospital through a team approach and various models of consultative and inpatient palliative care services.
Depression not only affects your brain and behavior—it affects your entire
body. Depression has been linked with other health problems, including
cancer. Dealing with more than one health problem at a time
can be difficult, so proper
treatment is important.
Cancer patients have to deal with lots of feelings, not knowing what will happen next, and feeling sick all the time. This journey has different parts full of ups and downs, each with its own problems and chances to be strong. Dr Austin Fernandes, Psychiatrist, Dr L H Hiranandani Hospital, Powai, Mumbai, shared that as psychiatrist, he has watched and helped patients through this tough time.
Breast cancer medical treatment, side effects and complementary therapies 2017mostafa hegazy
This book aims to provide breast cancer patients and their caregivers with comprehensive information about breast cancer diagnosis, treatment, side effects, and complementary therapies. It takes readers through the journey of Prema, who was diagnosed with breast cancer, and her caregiver Prem. The book covers topics like cancer diagnosis, medical treatment options, physical and psychosocial side effects of treatment, complementary therapies, and the importance of patient-centered care to improve quality of life. By presenting medical and non-medical information in simple language, the authors hope future breast cancer patients and their families will feel prepared to face the challenges of dealing with breast cancer.
iOH Webinar Slide - Cancer Prehabilitation Webinar slideshowiohwebsiteian
Cancer Prehabilitation aims to prepare patients for cancer treatment through physical activity, nutrition, and mental well-being support from the point of diagnosis. The three core elements of prehabilitation are physical activity, nutrition and eating well, and emotional and mental well-being. Engaging in prehabilitation can lead to improved outcomes including better tolerance of treatment, faster recovery times, and reduced complications. Prehabilitation supports patients' resilience and empowers them to play an active role in their cancer journey from the start.
AN EYE OPENER
I am not telling you that you have to do this, I am nearly asking you to have an open mind and research the information I am providing.
Last week my husband and I had the opportunity to be part of the Annual Cancer Convention/Alternative therapies. We heard well-known medical doctors, clinical researchers, nutritionists and authors speak on prevention and control of cancer along with other diseases through nutrition, tests and non-toxic therapies.
For nearly seven years of research, since I was diagnosed with breast cancer stage 2 and I have always believed in non-toxic treatments. My husband and I both were struck with this disease and neither of us had surgery, chemo and radiation. To this day we are striving to educate others in the cause of managing a healthier lifestyle, for this is the first step to a cleaner life. Through opening others minds to what is out there, for them to see that you do not need chemicals and toxins to heal this disease.
By going to the convention, it just broadens our knowledge in just what is out there as far as products, assistance, and treatments. Here are some slides and pictures from this amazing three days of listening to speakers, talking to vendors and patients from all over.
REMEMBER THERE ARE NO MISTAKES JUST LESSONS.
TRUST YOUR SELF AND LOVE YOUR SELF.
WITH THIS ANYTHING IS POSSIBLE.
KNOWLEDGE IS POWER
This document provides an overview of a webinar on goals of care when cancer is chronic. It introduces the speakers, Dr. Jim Cleary and Reese Garcia. It provides information on how to ask questions during the webinar and access webinar archives. The document also includes a disclaimer and biographies of the speakers. Finally, it outlines some of the topics that will be covered in the webinar, including palliative vs curative intentions, informed consent, maintaining hope, and adjusting goals of care over time.
This document discusses human behavior and health from several perspectives. It introduces concepts from anthropology, sociology, and psychology that can help understand human behavior. It then discusses the Health Belief Model, which proposes that people's beliefs influence their health behaviors. The model includes perceptions of susceptibility, severity, benefits, and barriers. Cues to action and self-efficacy can also impact health behaviors. The document applies the Health Belief Model to understand behaviors like vaccination and managing heart conditions. It also examines illness behavior, patient compliance, and factors that can influence adherence to medical advice.
Obesity is a serious and complex disease that affects many people worldwide. It can negatively impact health if left unmanaged. Successful weight loss requires a comprehensive approach involving medical care, nutrition, exercise, and education to develop lasting lifestyle changes. Managing obesity may involve identifying the underlying causes, creating a personalized plan, and receiving support from a healthcare team with expertise in weight management. Reaching a health goal like weight loss is a lifelong journey that requires commitment over time.
The document discusses factors that influence human behavior related to health issues according to the Health Belief Model. The Health Belief Model was developed in the 1950s to understand why people were not participating in disease screening programs. It identifies key constructs including perceived susceptibility, severity, benefits, and barriers that impact health behaviors. The model can help explain behaviors related to disease prevention, screening, and treatment adherence. Improving understanding of factors like these that influence illness behaviors and patient compliance can help improve health outcomes.
The document discusses Cancer Journey Sharing, which involves a cancer patient voluntarily disclosing and sharing information about their life and experience with cancer. The discussion covers:
1. The benefits of sharing, such as promoting acceptance of the diagnosis and raising awareness.
2. When sharing is appropriate, such as when comfortable, and who to share with, like friends and support groups.
3. Tips for sharing, including being open, real, and concise in telling one's story.
4. The importance of sharing to help cope with depression/anxiety, connect with others, and inspire by sharing hard-earned wisdom.
The document discusses ethics of end-of-life care. It begins by defining end-of-life care and palliative care. It then outlines the four guiding ethical principles of clinical integrity, beneficence, autonomy, and justice/non-maleficence. The document discusses some key ethical dilemmas at the end of life including advance directives, surrogate decision makers, and refusal of treatment. It also discusses controversial issues like euthanasia and physician-assisted suicide.
Goals of care should be patient-centered objectives that can be achieved by medical treatment. Too often in our healthcare system goals of care result in two extremes: (1) patients are led to believe that the goals of care only incorporates their hopes, regardless of the clinical situation, with this being the only possible clinical outcome, or (2) that goals of care are synonyms for a conversation about changing code status to “do not attempt resuscitation” and/or referral to hospice. In reality, goals of care should include both what the patient, their family, and providers hope for while simultaneously planning for the worst. Goals of care most encompass and evolve with the patient’s disease and not simply brought into and only focus on end of life.
Similar to How to live a life with a cancer diagnosis (20)
ROJoson PEP Talk: High Blood Pressure (Hypertension) ManagementReynaldo Joson
The document provides information about a zoom session on April 13, 2024 from 1400H to 1500H on High Blood Pressure (Hypertension) Management. The objective is for laypeople to have an essential understanding of managing hypertension as part of their health management. The session will include a presentation, group pictures, an online test for a certificate, and feedback in the chat box. [/SUMMARY]
ROJoson PEP Talk: Does Biopsy Make Cancer Spread?Reynaldo Joson
This document contains information from a presentation on whether biopsies can cause cancer to spread. It defines a biopsy as a procedure that removes a sample of tissues, cells, or fluid from the body to examine for diagnosis. Different types of biopsies are described, including those that remove samples versus whole masses. Benefits of biopsies include obtaining a definite diagnosis to guide treatment planning. The document discusses the fear that biopsies may cause cancer seeding or spread, and defines cancer seeding as cancer cells spreading along the needle track during a biopsy.
ROJoson PEP Talk: Developing a Breast Self-Exam Habit through a Motivating AwardReynaldo Joson
This document outlines a Zoom presentation on developing a breast self-exam habit through motivating awards. It provides logistical details for the event, including the date, time, and instructions for participants. The presentation aims to teach laypeople how to perform breast self-exams and develop the habit through an awards program. It will cover what breast self-exams are, their importance, and how to properly conduct one. The speaker will advocate for their breast self-exam awards initiative to motivate more women to regularly perform self-exams.
ROJoson PEP Talk: CAN ONE SKIP RADIOACTIVE IODINE THERAPY IN THYROID CANCER T...Reynaldo Joson
The document discusses radioactive iodine therapy (RAIT) for thyroid cancer treatment. RAIT involves using radioactive iodine-131, which is taken orally and concentrates in thyroid tissue to destroy cancer cells. It is effective for papillary and follicular thyroid cancers. RAIT is used for remnant ablation after surgery, adjuvant therapy to prevent recurrence, and treatment of known disease. While commonly recommended in the past, the use of RAIT has evolved to focus on patients at higher risk, as not all thyroid cancers require aggressive treatment like RAIT. The document questions whether RAIT can be skipped in some patients.
ROJoson PEP Talk: Can one skip RADIOACTIVE IODINE THERAPY in Thyroid Cancer T...Reynaldo Joson
The document discusses radioactive iodine therapy (RAIT) for thyroid cancer treatment. RAIT involves using radioactive iodine-131, which is taken orally and concentrates in thyroid tissue to destroy cancer cells. It is effective for papillary and follicular thyroid cancers. RAIT is used for remnant ablation after surgery, adjuvant therapy to prevent recurrence, and treatment of known disease. While commonly recommended in the past, the use of RAIT has evolved to focus on patients at higher risk of recurrence rather than applying it routinely, as many thyroid cancers have excellent outcomes with surgery alone. The document questions whether RAIT can be skipped in some patients with a very low risk.
ROJoson PEP Talk: DOES EVERYONE HAVE CANCER CELLS IN THEIR BODY?Reynaldo Joson
The document discusses whether everyone has cancer cells in their body. It explains that while our bodies are constantly producing new cells, not all of these cells are destined to become cancerous. A typical healthy cell goes through cycles of growth, division and death, while a cancer cell does not follow this normal cycle and keeps reproducing abnormally. Not everyone inherently has cancer cells in their body from the beginning - it is possible for initially normal cells to eventually develop into cancer cells due to certain risk factors.
ROJoson PEP Talk: Can one skip CHEMOTHERAPY in BREAST CANCER TREATMENT?Reynaldo Joson
Chemotherapy is a systemic cancer treatment that uses powerful drugs to destroy fast-growing cancer cells. It works by keeping cancer cells from growing and dividing. Chemotherapy can be given alone or with other treatments depending on the cancer type and stage. Factors like a person's age, health, and the cancer details help determine the chemotherapy plan and drugs. Chemotherapy aims to cure cancer, shrink tumors before other treatments, destroy remaining cancer cells after treatment, or slow cancer progression and relieve symptoms.
ROJoson PEP Talk: Do all patients need painkillers after an operation?Reynaldo Joson
This document provides information from a Patient Empowerment Program (PEP) Talk on the use of painkillers after an operation. The PEP Talk aims to give laypeople an essential understanding of painkiller use after surgery in managing their health. It discusses that not all patients need painkillers after an operation, as some procedures do not involve cutting or cause pain. It also outlines factors that govern physician prescription and patient intake of postoperative painkillers.
- Video recording of this lecture in English language: https://youtu.be/kqbnxVAZs-0
- Video recording of this lecture in Arabic language: https://youtu.be/SINlygW1Mpc
- Link to download the book free: https://nephrotube.blogspot.com/p/nephrotube-nephrology-books.html
- Link to NephroTube website: www.NephroTube.com
- Link to NephroTube social media accounts: https://nephrotube.blogspot.com/p/join-nephrotube-on-social-media.html
Promoting Wellbeing - Applied Social Psychology - Psychology SuperNotesPsychoTech Services
A proprietary approach developed by bringing together the best of learning theories from Psychology, design principles from the world of visualization, and pedagogical methods from over a decade of training experience, that enables you to: Learn better, faster!
Integrating Ayurveda into Parkinson’s Management: A Holistic ApproachAyurveda ForAll
Explore the benefits of combining Ayurveda with conventional Parkinson's treatments. Learn how a holistic approach can manage symptoms, enhance well-being, and balance body energies. Discover the steps to safely integrate Ayurvedic practices into your Parkinson’s care plan, including expert guidance on diet, herbal remedies, and lifestyle modifications.
Osteoporosis - Definition , Evaluation and Management .pdfJim Jacob Roy
Osteoporosis is an increasing cause of morbidity among the elderly.
In this document , a brief outline of osteoporosis is given , including the risk factors of osteoporosis fractures , the indications for testing bone mineral density and the management of osteoporosis
1. Cancer Crusaders Club
35th Annual Christmas Get-together
December 4, 2022
ROJOSON LECTURETTE
How to Live a Life with a Cancer Diagnosis
(ROJoson TPORs – Thoughts, Perceptions, Opinions and
Recommendations)
2. How to live a life with a cancer diagnosis
How does or how should one live a life after a cancer diagnosis?
Here are my personal TPORs (thoughts, perceptions, opinions and
recommendations).
3. “After a cancer diagnosis” may mean the following:
• Right after diagnosis that one is said to truly have a cancer in the
body
• During treatment
• After treatment
• During the surveillance (monitoring) period
• During the time cancer recurrence has occurred
• During the near-end-of-life stage
How to live a life with a cancer diagnosis
4. Note that psychological distresses (emotional sufferings) can be
seen in the following phases of the cancer journey:
• PHASE OF DIAGNOSIS
• PHASE OF TREATMENT (DURING, RIGHT AND/OR SOON AFTER
TREATMENT)
• PHASE AFTER TREATMENT (IN REMISSION)
• PHASE WHEN THERE IS RECURRENCE OF CANCER
• PHASE DURING NEAR-END-OF-LIFE
This is the reason for this talk on “How to live a life with a cancer
diagnosis.”
How to live a life with a cancer diagnosis
5. “How to live a life”
will be operationally defined as
how to live or continue to live a
functional and meaningful earthly life
after a cancer diagnosis.
How to live a life with a cancer diagnosis
6. A lot of times, after a cancer diagnosis,
people or patients have ceased or have a hard time
living a functional and meaningful earthly life.
This is mainly due to uncontrolled ANXIETY AND DEPRESSION
which in turn are due to
• uncontrolled fear
• sadness
• personal apprehensions
• psychosocial apprehensions
How to live a life with a cancer diagnosis
7. In the past Cancer Crusaders Club Annual Get-Togethers,
I have identified and mentioned the following which I think are key
coping tactics against the psychological distresses of cancer patients:
• Acceptance of the cancer diagnosis
• Intentional living plan in the light of cancer
diagnosis
• Trust in a competent and compassionate physician
• Spiritual trust
• Support from loved ones and significant others
• Cancer journey sharing
How to live a life with a cancer diagnosis
8. This year, my lecturette on how to deal with cancer, I will expound
on ACCEPTANCE AND INTENTIONAL LIVING PLAN as coping tactics
against the psychological distresses of cancer patients.
Before anything else, I like to emphasize that there must be
AWARENESS then ACCEPTANCE before the formulation of the
INTENTIONAL LIVING PLAN.
How to live a life with a cancer diagnosis
ILP
9. AWARENESS
At least of your cancer diagnosis and its prognosis
with correlation to your purpose and estimated lifespan on earth.
How to live a life with a cancer diagnosis
10. How to live a life with a cancer diagnosis
After
AWARENESS
11. ACCEPTANCE
Acceptance of cancer has long been recognized as playing a critical
role in the psychological adjustment to the illness (also true for
other diseases).
It is effective in reducing the patient’s distress with cancer.
How to live a life with a cancer diagnosis
12. What is ACCEPTANCE?
Acceptance is emotion-focused coping that involves acknowledging
the reality of the illness, learning to live with it, and engaging in
attempts to address it (Carver et al., 1989).
That is why I said there must be acceptance first before the
formulation of the intentional living plan.
How to live a life with a cancer diagnosis
13. What is ACCEPTANCE?
Other definitions of acceptance
Acceptance of illness - as a process of value change by which the
patient accepts the losses related to the illness while maintaining a
sense of self-worth. This process may involve exploring new
meanings or possibilities in life based on one’s existing values and
strengths (Wright, 1983).
How to live a life with a cancer diagnosis
14. What is ACCEPTANCE?
Other definitions of acceptance
Acceptance - as a willingness to be present with one’s illness-related
thoughts, feelings, and bodily sensations without judging or making
unnecessary attempts to control them (Hayes, Jacobson, Follette, &
Dougher, 1994).
How to live a life with a cancer diagnosis
15. What is ACCEPTANCE?
Other definitions of acceptance
Acceptance is a realistic way of living with illness; that is, an
accepting patient does not judge, avoid, or deny the illness, but
continues feasible engagement in everyday activities.(McCracken
and Eccleston 2003)
How to live a life with a cancer diagnosis
16. Acceptance differs from resignation (i.e., fatalism).
How to live a life with a cancer diagnosis
17. For cancer patients, resignation refers to considering the illness as
fate and believing that there is little or nothing one can do to change
or control the illness, its symptoms, and one’s quality of life (Livneh,
2000).
In other words, resignation refers to giving up and no longer striving
for a fulfilling life—choosing instead to remain helpless, hopeless,
and passive.
How to live a life with a cancer diagnosis
18. How to live a life with a cancer diagnosis
Research suggests that ACCEPTANCE is associated with LOWER
anxiety and depressive symptoms (e.g., Bussell & Naus,
2010; Peters, Goedendorp, Verhagen, van der Graaf, & Bleijenberg,
2014),
whereas RESIGNATION is associated with HIGHER anxiety and
depressive symptoms (Andreu et al., 2012; Hong, Wei, & Wang,
2015).
19. How to live a life with a cancer diagnosis
Acceptance also differs from a FIGHTING SPIRIT.
In the context of cancer, having a fighting spirit involves viewing the
illness as a challenge, maintaining an optimistic outlook, and
working towards beating the disease (Livneh, 2000; Watson et al.,
1988).
Although both acceptance and having a fighting spirit involve taking
an active stance, acceptance does not necessarily include efforts of
positive reframing or aiming to change the course of the disease.
20. How to live a life with a cancer diagnosis
Acceptance of cancer is MAKING PEACE with the
disease.
Letting Go but Not Giving Up and Accepting the Reality
of a Cancer Diagnosis!
21. How to live a life with a cancer diagnosis
Acceptance doesn’t mean that anyone is giving up.
Acceptance allows you to take control of your life and
focus on what’s most important to you.
Live on despite a cancer diagnosis!
Continue to live a functional and meaningful life!
22. How to live a life with a cancer diagnosis
So, my foremost advice is ACCEPTANCE as the coping tactic as this is
effective in reducing the patient’s distress with cancer.
23. How to live a life with a cancer diagnosis
After acceptance, make an INTENTIONAL LIVING PLAN. This will
constitute your plan of action for a meaningful cancer journey.
ILP
24. How to live a life with a cancer diagnosis
My operational definition of intentional living plan:
Intentional Living Plan (ILP) is a plan you make targeting a certain
number of years (guided by the prognosis of your cancer) in which
you write down things you intend or want to accomplish on your
graduation day (last day of your targeted year) which will make you
feel you have lived your life to the fullest; you have lived a
meaningful life; and you are contented and ready to die a happy
death. [Assumption and reality: all of us will die one day.]
25. How to live a life with a cancer diagnosis
Before making an intentional living plan, get the following
information from your trusted and compassionate physician: (Make
an intentional living plan with the answers in mind.)
• What kind of cancer do I have?
• Where is the cancer?
• Has it spread?
• Can my cancer be treated?
• What is the prognosis of my cancer? What is the chance that my
cancer can be “cured”?
26. How to live a life with a cancer diagnosis
• What other tests or procedures do I need?
• What are my treatment options? How will the treatment benefit
me?
• What can I expect during treatment? What are the side effects of
the treatment?
• What happens if I don’t get treatment?
27. How to live a life with a cancer diagnosis
• What is the surveillance plan after treatment?
• What can I do to prevent my cancer from coming back?
• How likely are my children or other family members to get
cancer?
• Others
28. How to live a life with a cancer diagnosis
• Intentional living plan promotes living with intention; living a
purposeful life.
• It will be your cancer journey plan.
• It will be your plan on how to live a life with a diagnosis of cancer.
29. How to live a life with a cancer diagnosis
ROJoson Template of Intentional Living Plan
My Intentional Living Plan (ILP)
PART I. Owner and Number of Years to Target for the
Intentional Living Plan.
OWNER OF INTENTIONAL LIVING PLAN (ILP):
NAME: Reynaldo O. Joson
Current Age: 70
From: Year ___2019_____ to _2024__2032_
From: Age ____70______ to _75___83___
30. How to live a life with a cancer diagnosis
ROJoson Template of Intentional Living Plan
My Intentional Living Plan (ILP)
PART I. Owner and Number of Years to Target
for the Intentional Living Plan.
NUMBER OF YEARS TO TARGET IN THE
INTENTIONAL LIFE PLAN: __5 yrs to 13 yrs__
If with STRETCH TARGET, specify the reasons.
31. How to live a life with a cancer diagnosis
ROJoson Template of Intentional Living Plan
PART II. People to include in Intentional Living Plan
Enumerate the names of other people (spouse / partner; children; and
significant others) you want to include in your Intentional Living Plan (ILP).
SPOUSE / PARTNER to be included in the ILP:
NAME: ________________________ Current Age: ____
CHILDREN to be included in the ILP:
NAME: ________________________ Current Age: ____
SIGNIFICANT OTHERS to be included in the ILP:
NAME: ________________________ Current Age: ____
32. How to live a life with a cancer diagnosis
ROJoson Template of Intentional Living Plan
Part III. Legacies (Answer the following questions
as indicated)
IF I WERE TO DIE AT ___75___83___ YEARS OLD
(AGE) OR IN _2024___2032__ (YEAR),
WHAT ARE THE LEGACIES THAT I WANT TO LEAVE
BEHIND FOR MY FAMILY AND FOR MY
COMMUNITY? [Be as specific as possible and
include a timeline or deadline.]
33. How to live a life with a cancer diagnosis
ROJoson Template of Intentional Living Plan
Part IV. FOR SPOUSE / PARTNER (Answer the
following questions as indicated)
IF I WERE TO DIE AT ___75___83___ YEARS OLD
(AGE) OR IN _2024___2032__ (YEAR),
WHAT WILL I DO FOR MY SPOUSE /
PARTNER? [Be as specific as possible and include
a timeline or deadline. Place NA if not
applicable.]
34. How to live a life with a cancer diagnosis
ROJoson Template of Intentional Living Plan
Part V. FOR CHILDREN (Answer the following questions
as indicated)
IF I WERE TO DIE AT ___75___83___ YEARS OLD (AGE)
OR IN _2024___2032__ (YEAR),
WHAT WILL I DO FOR CHILDREN [Be as specific as
possible and include a timeline or deadline. Place NA if
not applicable.]
35. How to live a life with a cancer diagnosis
ROJoson Template of Intentional Living Plan
Part VI. FOR SIGNIFICANT OTHERS (Answer the
following questions as indicated)
IF I WERE TO DIE AT ___75___83___ YEARS OLD
(AGE) OR IN _2024___2032__ (YEAR),
WHAT WILL I DO FOR MY SIGNIFICANT
OTHERS? [Be as specific as possible and include a
timeline or deadline. Place NA if not applicable.]
36. How to live a life with a cancer diagnosis
ROJoson Template of Intentional Living Plan
Part VII. FOR MYSELF (Answer the following questions as
indicated)
IF I WERE TO DIE AT ___75___83___ YEARS OLD (AGE) OR IN
_2024___2032__ (YEAR),
WHAT WILL I DO FOR MYSELF? [Be as speciifc as possible and
include a timeline or deadline. Include the following goals as
applicable: health; contentment; enjoyment; God or Creator;
financial; career; professional; social and relationship goal; etc.]
37. How to live a life with a cancer diagnosis
ROJoson Template of Intentional Living Plan
Part VIII. PREPARING FOR A HAPPY DEATH (Answer the following
questions as indicated)
IF I WERE TO DIE AT ___75___83___ YEARS OLD (AGE) OR IN
_2024___2032__ (YEAR),
WHAT WILL I DO TO PREPARE FOR A HAPPY DEATH (CONTENTED AND READY TO
LEAVE THIS EARTH)? [Be as specific as possible and include a timeline or
deadline.]
Signature
Date First Accomplished:
Date Reviewed and Updated:
38. How to live a life with a cancer diagnosis
Having a well-formulated INTENTIONAL LIVING PLAN in the light of
cancer can contribute to
• BEING HEALTHY and NOT CRIPPLED AS LONG AS POSSIBLE
• BEING PRODUCTIVE
• HAVING PEACE OF MIND
• BEING CONTENTED
• ENJOYING LIFE
• BEING HAPPY IN LIFE
• REACHING THE REALISTIC LONGEVITY TARGETS
• BEING READY TO FACE CURTAIN CALL (DEATH)
39. How to live a life with a cancer diagnosis
So, my advice is to have acceptance of cancer as the first step in
living a life with cancer so as to live a functional and meaningful
earthly life as long as possible.
Make peace with the cancer disease or cancer diagnosis.
Let go but not giving up.
Continue to live a functional and meaningful earthly life as long as
possible through your well-formulated intentional living plan.
40. Cancer Crusaders Club
35th Annual Christmas Get-together
December 4, 2022
ROJOSON LECTURETTE
How to Live a Life with a Cancer Diagnosis
(ROJoson TPORs – Thoughts, Perceptions, Opinions and
Recommendations)
Editor's Notes
I will give a lecturette with the title: How to Live a Life with a Cancer Diagnosis
How to live a life with a cancer diagnosis
How does or how should one live a life after a cancer diagnosis?
Here are my personal TPORs (thoughts, perceptions, opinions and recommendations).