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IBM Software




The Enterprise Master Person
Index – Delivering better
eHealth in Europe, the Middle
East and Africa (EMEA)
Matthew Shelley, Ph.D.
Penny Schlyer
The Enterprise Master Person Index – Delivering better eHealth in Europe, the Middle East and Africa (EMEA)




Contents                                                                                      delivery. This paper explores the advance of eHealth and the
                                                                                              role of the EMPI in its future.
2	 	 Introduction	and	Overview
2	 	 The	EMPI	in	eHealth                                                                      The EMPI in eHealth
                                                                                              A variety of roadblocks have to be negotiated for eHealth to
2	 	 Patient	Privacy	
                                                                                              achieve its potential, some technical, others social and
3	 	 Data	Quality	and	Accurate	Identification		                                               economic; an EMPI at the foundation can do much to help.
4	 	 eHealth	Architectures	and	Approaches                                                     Some of the most important issues that must be addressed
5	 	 EMPI	Boosts	Effectiveness	of	National	Health	Identifiers                                 include the type of information being made available, and to
                                                                                              whom. For example, mental health records, certain test results
6	 	 Choosing	the	Right	EMPI	for	Better	eHealth
                                                                                              or children’s health records can be very sensitive and should
6	 	 Why	IBM                                                                                  only be shared with certain individuals during specific episodes
7	 	 Footnotes	and	References                                                                 of care. An EMPI accurately associates the right records to the
                                                                                              right patient, ensuring accurate identification at the point of
                                                                                              care. It can be architected to only identify where all relative
Introduction and overview                                                                     records exist or to enable information sharing for an electronic
eHealth offers a potent means for health services in EMEA, and                                health record (EHR), portal or other sub-specialty applications.
worldwide, to tackle the daunting challenges of the 21st century.
Ageing populations, long-term management of chronic illnesses,                                Because of this flexibility, the EMPI can help deliver three
escalating costs1, changing patterns of disease, and a worldwide                              essentials to advance eHealth and provide the basis for trust
shortage of healthcare workers are all driving the need for health                            including protecting patient privacy, ensuring data quality and
information and communication technology (ICT) to improve                                     accurately identifying the patient.
healthcare administration and delivery.
                                                                                              Patient Privacy
For future sustainability, the healthcare system demands
                                                                                              In many countries there are profound worries among citizens
efficient and affordable access to finite healthcare resources,
                                                                                              and political decision makers about ensuring that only
improving care for all and reducing healthcare inequalities. To
                                                                                              authorised healthcare providers with a need to know, access
achieve its potential, eHealth must facilitate the secure
                                                                                              information about a patient. How and where information is
movement of patient data out of system silos and transform it
                                                                                              stored and accessed can help alleviate these concerns and add a
into intelligence for improved patient administration and
                                                                                              high degree of trust that is required for patient data sharing.
enablement of patient-centred, coordinated care.
                                                                                              There are essentially three implementation models organisations
The enterprise master person index (EMPI)2, or patient
                                                                                              have used to govern healthcare data to protect patient privacy
registry, has an essential role to play, facilitating trusted data
                                                                                              while facilitating health information sharing. One option – the
exchange while protecting the privacy of patient information.
                                                                                              hybrid model -- adopted by Canada Health Infoway leverages
An EMPI provides a real-time way to locate, identify, match
                                                                                              provincial EMPIs as part of its Health Information Access Layer
and cleanse information about a person from many sources to
                                                                                              (HIAL) to identify patients within the province and enable
create a comprehensive view for authorised health service
                                                                                              health information sharing.
providers. It is proven to reduce duplicate records within and
across systems to improve patient administration and care




                                                                                       2
Information	Management




In this Canadian model:                                                confidence and trust in the data quality and security of the HIE
                                                                       by allowing them to retain complete control and ownership of
•   Each province has an EMPI that serves as a registry                their data and only share what is needed, when it is needed. As
    (directory) of patients with demographic information and in        opposed to loading data into a central EMPI, the federated
    some cases the Health Card number.                                 model allows data owners to provide a minimal amount of
•   Patients in the directory are linked to their associated medical   demographic data to the EMPI so that when a provider queries
    records residing in multiple systems throughout the province.      the system, they accurately identify the patient and can see
•   Contributing providers can share records through the EHR           where additional records exist. As trust in data sharing grows,
    and also manage privacy by defining access rights at the           more data can be shared proactively.
    patient level.
                                                                       As a result of this distributed methodology, LARHIX was able
As a result:                                                           to avoid the common worries many providers have over data
• When an authorised healthcare provider queries for a patient         ownership and work involved in creating duplicate centralised
  in the EHR, he is more likely to identify the right patient and      databases, and go live in less than five months. Clinicians can
  all available records associated to the patient.                     now query the system, and in real time securely access a
• Sensitive or unauthorised records can be identified but not          portal-based view of patient-centric data housed in disparate
  shared electronically unless special permission is granted.          applications across multiple hospitals.
  Sensitive records can also be blocked from view.
• These registries will enable information sharing across
                                                                       Data Quality and Accurate Identification
  provinces by linking the right patient to the right records.
                                                                       Two additional concerns that go hand in hand for eHealth
                                                                       include creating and maintaining a high data quality
This hybrid data governance methodology helps reassure
                                                                       foundation within health information systems, and accurately
healthcare providers and patients that information sharing is
                                                                       identifying the patient at the point of care. The EMPI
tightly managed to protect privacy and to prevent unauthorised
                                                                       improves data quality by reconciling patient identities within a
users from gaining access.
                                                                       system that has duplicate records, and across systems that
The second approach is exemplified by NHS Wales which                  manage patient data in different ways. It can work
operates a centralised data governance model with a national           independently in the eHealth architecture or augment the
EMPI supporting patient identification for seven local health          function of a national health identifier to accurately associate
boards (LHBs). In this model, each LHB loads its data into the         the right records to the right patient.
central EMPI, but patient data is partitioned for each LHB
                                                                       With the vast proliferation of IT products, and multitude of
allowing them to maintain privacy and share only what is
                                                                       ways in which they are configured, the EMPI must not only
needed. The LHBs benefit from the power of the EMPI, and
                                                                       integrate with one or two marginally distinct systems, but with
maximise financial and administrative resources by leveraging
                                                                       dozens of sub-specialty systems which are fundamentally
the national solution. In the future as trust in information
                                                                       different from one another.
sharing grows, the LHBs will have the flexibility to grant
permission to connect and share information with other                 The EMPI must reconcile identities, even to the point where a
national services.                                                     patient has presented at several care settings over many years,
                                                                       has changed addresses, and where records have several versions
The third approach, adopted by the Louisiana Rural Health
                                                                       or spellings of his or her name – possibly including new
Information Exchange (LARHIX) is a federated data governance
                                                                       surnames due to marital status.
model. This model gives healthcare providers a strong sense of




                                                                       3
The Enterprise Master Person Index – Delivering better eHealth in Europe, the Middle East and Africa (EMEA)



  George Eliot Hospital
  Name: Colm Heaney
  Address: 25 Lombard Street         Local Identifier:
                                     12/19/61 - 727                                                                      Primary Physician
  Address 2: London, England                                                 EMPI/Patient Registry
  Warwickshire Royal
                                                                            Consolidated View
  Name: Colum Heaney
                                                                            First:         Colm
  Address: 25 Lombard Street         Local Identifier:
                                                                            Last:          Heaney                        Healthcare Authority
  Address 2: London, England           ABC98765
                                                                            Address:       25 Lombard Street
  Lloyds Pharmacy                                                           City:          London
  Name: Colm Heanie                                                         Country:       England
  UPIN#: Null                        Local Identifier:                      ID#:           5555-55-1234
  ID#: 5555-55-1234                   CHEANIE1234                                                                        Hospital Registration
                                                                            Gender:        M
  Burbage Surgery                                                           DOB:           1/1/65
  Name: Colm Heaney
  Address: 25 Lombard Street         Local Identifier:
  Phone: 41-473-3486                 VR:1432141234
                                                                                                                         Emergency Department

An EMPI establishes linkages across disparate systems to create a single view of the patient. This helps identify the patient at the point
of registration and ultimately facilitates information sharing for EHR and portal applications.


A sophisticated EMPI that uses probabilistic technology more                                   spelled differently, addresses have changed or records have
accurately matches patient identities by going beyond basic                                    typographical errors), to help them mobilise patient data from
name, address and health identifier matching. It employs                                       an institution and share it across borders, subject to applicable
advanced statistical algorithms to understand errors in name                                   patient consent rules.
spelling, demographic information and identify when records
refer to the same patient. Statistics from the data are used to                                eHealth architectures and approaches
determine the optimal way to put data together for                                             Health Information Exchanges (HIEs) enable the collection
identification. The probabilistic EMPI is therefore more                                       and movement of information between systems including
effective at selecting the right information, assuring that the                                Electronic Health Records (EHRs). Vital to their success is
patient record is complete, accurate and can be trusted.                                       ensuring that the information from disparate sources is
                                                                                               accurately combined and delivered in a way that is meaningful
This technology was important in Wales, for example, where
                                                                                               to the end user. While all eHealth and HIE architectures have
there are some 1,928 people called Margaret Jones in a
                                                                                               unique features and requirements, many depend on some form
population of three million. Equally, popular names such as
                                                                                               of EMPI or patient registry to accurately aggregate and match
Thomas/Tomas may have Welsh (spoken by 20% of the
                                                                                               information to provide an electronic record or complete view
population) and English versions. Parents in some countries
                                                                                               of the patient that can be trusted.
pass names to sons or daughters, so it is important to
distinguish between generations.                                                               Some examples of public hospital groups and national EHR
                                                                                               initiatives that have an EMPI at the foundation of the eHealth
The ability to uniquely identify patients with similar names,
                                                                                               architecture are provided below.
complex spellings or in different languages was also paramount
to a large hospital group in Brussels. This organisation                                       Public Hospital Groups:
required its EMPI to link patient records together across five                                 A public healthcare consortium in Switzerland included an
hospitals to reduce existing duplicate records and prevent                                     EMPI as part of its eHealth architecture to create single views
creation of duplicate records during the admission process.                                    of patients across their 12 healthcare facilities. Since deploying
This organisation is also now leveraging the EMPI as part of                                   the solution, duplicate records have been reduced from 10% to
its interoperability platform for a clinical portal, providing                                 1% and the organisation has expanded the EMPI to enable
access to medical records across all of its facilities.                                        information sharing via a clinical portal to improve patient
                                                                                               safety and quality of care.
As part of their eHealth or Health Information Exchange (HIE)
architectures, many healthcare organisations have implemented                                  ACT Health, a provider of government funded health care
a probabilistic EMPI that is capable of identifying patients who                               services in the Australian Capital Territory is implementing a
are the same across different institutions (even if their names are                            probabilistic EMPI to create the territory’s new patient master


                                                                                       4
Information	Management




index (PMI). The primary objective of the PMI is to integrate
all patient registration sources to create a trusted, unified view
                                                                         EMPI Boosts Effectiveness of National Health
of patients for use by all clinical and administrative systems,
facilitate participation in the national Individual Healthcare
                                                                         Identifiers
Identifier service (IHI) and provide identification services for         Some countries have introduced, or are considering, a social insurance
the ACT and national electronic health records (EHR).                    number, universal health identifier, or national ID card to manage patient
                                                                         identification. The EMPI has been shown to enhance the effectiveness,
National EHRs:                                                           and reduce the implementation time and cost, of these national
                                                                         identifiers in a number of ways including by:
Canada Health Infoway created a national blueprint to deliver
an integrated, pan-Canadian EHR which allows essential                   •   Tying the national number to patient records in each system without
patient information such as medications, x-rays, and lab results             requiring legacy systems to take in the ID as a new attribute. This
                                                                             speeds implementation time for the national ID card.
to be securely viewed, shared and updated across communities,
provinces and territories3. Each province deploys and manages            •   Leveraging additional attributes to capture historical records as
its own architecture, which includes among other things a                    demographic information changes over time. This increases the depth
                                                                             of medical information for the EHR and improves patient identification.
master patient registry and a master provider registry that
works in conjunction with the social insurance number, to                •   Identifying errors, or duplicate records, by matching on multiple
accurately match and link patient or provider identifications4.              identifying attributes. This improves fraud detection and makes it
                                                                             easier to maintain data quality.
This approach helps ensure a high degree of data quality by
accurately identifying the right records with the right patient,         Perhaps one of the most attractive features of the EMPI in this context is
even across provinces.                                                   that it brings all the above benefits, while integrating with legacy systems
                                                                         in a way that is minimally invasive.
Singapore is implementing a single medical record for every
patient, with the first phase due to go live in 2011. The
national electronic health record (NEHR) is based on a
                                                                         devolved to the four constituent home nations (England,
common enterprise architecture that includes an EMPI, data
                                                                         Scotland, Wales and Northern Ireland).
quality standards and privacy and security guidelines.5 By
accurately aggregating patient identification information into           •   In England eHealth developments have been managed by
the EMPI, each participant will have secure access to trusted                Connecting for Health, which created a National Care
and comprehensive information about the patient.                             Record for each citizen. Information is accessed on a need-to-
                                                                             know basis, using the patient’s 10-digit NHS number. The
The National Health Information Network (NHIN) being
                                                                             EMPI links the NHS number to patient records to ensure
developed in the USA is designed to provide a standards-based
                                                                             accurate patient identification.
foundation that enables providers and public and private
                                                                         •   Scotland, where care is delivered by 14 territorial NHS health
organisations to identify where records for a patient exist and if
                                                                             boards overseen by the Scottish Government, has its own
possible, securely share information via the internet. Some
                                                                             patient identification system, known as CHI (Community
defining characteristics of the NHIN architecture are technology
                                                                             Health Index) numbers.6
neutral interfaces and shared processes and procedures such as an
                                                                         •   In Wales the Informing Healthcare strategy developed an
EMPI to support real time patient identification.
                                                                             Individual Health Record (IHR) for each patient. Access is
In the UK, healthcare is publicly funded by the National                     confined to the local health board (of which there are seven)
Health Service (NHS) but policy and decision making has been                 rather than being national, is based on a standard data
                                                                             extraction model and a common user interface, and is being
                                                                             powered by an EMPI at the foundation.



                                                                     5
The Enterprise Master Person Index – Delivering better eHealth in Europe, the Middle East and Africa (EMEA)




Health Information Exchanges (HIEs) and EHRs around the                                     Flexible Data Governance
world have been developed – or are being developed – using a                                IBM Initiate solutions address the common challenges of data
variety of architectures to achieve a range of eHealth objectives.                          governance and ownership with adaptable data models
They are being adapted to serve the needs of large, populous,                               (federated, centralised or hybrid) that meet the needs of
independent countries like the USA and small, semi-autonomous                               stakeholders concerned with sharing sensitive data. IBM offers
ones like Wales. All have complex healthcare systems and distinct                           a collaborative data stewardship tool to allow individual
needs, but regard electronic information exchange as a route to                             participants to proactively manage their own data quality.
reduced administration and expense, improved patient outcomes
                                                                                            Trusted EMPI Technology
and increased organisational efficiency.
                                                                                            IBM® Initiate® Patient is in use in public and private hospital
Whatever the course, these eHealth architectures are                                        groups in Belgium, Switzerland and the United Kingdom. It is
leveraging an EMPI or a patient registry to accurately identify                             the client registry across much of Canada and will be
the patient and enable secure data exchange.                                                implemented as part of Singapore’s National Electronic Health
                                                                                            Record. Additionally it is used in six of the national health
Choosing the Right EMPI Solution for Better                                                 information network (NHIN) II and all four of the NHIN I
                                                                                            demonstrations in the USA, and is in use by 77 integrated
eHealth
                                                                                            delivery networks and 41 health information exchanges. The
Movement is a defining feature of the 21st-century world –
                                                                                            IBM solution has improved data quality and claims processing
whether between communities, regions, nations or continents.
                                                                                            for many large private health insurers, and is a key component
And the interplay between human mobility and the multiplicity
                                                                                            of the U.S. national ePrescribing network and is also used by
of healthcare providers presents fundamental challenges. These
                                                                                            large military healthcare services.
increase rather than decrease as healthcare becomes more
sophisticated, as it can tend towards growing fragmentation.                                Extensible Solution, Ongoing ROI
Patients may move and change names over time, but their                                     eHealth is a journey, not a short term endeavour. IBM®
medical information needs to follow them.                                                   Initiate® Master Data Service can be used to manage all types
                                                                                            of people and organisations, and can also provide record
To address challenges around data fragmentation, healthcare                                 locator services for the most federated environments. Entity
organisations of all types around the world have implemented                                types include patients, providers, health insurance members,
IBM® Initiate® Patient and IBM® Initiate®Provider to improve                                citizens and people subscribing to social services. The open
data quality and enable interoperability between health                                     and standards-based integration allows ongoing return on
information systems, while continuing to protect patient privacy.                           investment and growth over time to support broader initiatives
                                                                                            such as chronic disease management, provider management or
Why IBM® Initiate® Patient and IBM®                                                         connected social services.
Initiate® Provider?
Interoperable, Standards-Based Technology                                                   Proven Experience
IBM Initiate solutions are built with a Web Services integration                            IBM Initiate solutions are backed by a highly experienced team of
methodology and industry standards including HL7 and IHE.                                   implementation consultants and support specialists with decades
The solutions are software independent, which enables a                                     of real world experience in healthcare installations of all types.
plug-and-play eHealth architecture that can grow over time and                              As pressures mount for healthcare providers, many suppliers are
integrate with other regions, providers or federal entities.                                developing solutions that will enable them to harness the potential
                                                                                            of eHealth to provide more and better patient care. IBM is among
                                                                                            the leaders. To learn more visit: www.IBM.com/healthcare.




                                                                                          6
Information	Management




Footnotes                                                                        Available at: www.himss.org/content/files/200808_
                                                                                 EHRGlobalPerspective_whitepaper.pdf (last accessed 4, December 2010).
1 Recent research (eHealth Taskforce, 2007, 12) citing the PWC study,
HealthCast 2020: Creating a Sustainable Future, 2006, puts health                Ministry of Health, Singapore, 2007. Opening Address by PS at Health
spending in the EU at c.9% of GDP and predicts c.16% by 2020 in                  Infomatics Summit [online] (updated on 16, July 2010). Available at:
OECD countries.
                                                                                 www.moh.gov.sg/mohcorp/speeches.aspx?id=24664 (last accessed 4,
2 EMPIs are known by various names including Master Patient Index                December 2010).
(MPI), Patient Registry or Client Registry.
                                                                                 Rand Europe/Capgemini Consulting, 2010. Business Models for eHealth.
3 Defined as providing needed ‘information so that the appropriate               European Commission. Available at: ec.europa.eu/information_society/
granularity, flexibility and reusability are enabled throughout the different    activities/health/docs/studies/business_model/business_models_eHealth_
layers of functionality described in the architecture’. For a full description   report.pdf (last accessed 4, December 2010).
see the EHRS Blueprint at knowledge.infoway-inforoute.ca/EHRSRA/
                                                                                 Rockefeller Foundation, 2010. From Silos to Systems: An Overview of
doc/EHRS-Blueprint-v2-Exec-Overview.pdf (last accessed 4, December
                                                                                 eHealth’s Transformative Power. The Rockefeller Foundation, New York.
2010). For details of a range of national approaches see HIMSS, 2008. For
                                                                                 Available at: www.rockefellerfoundation.org/uploads/files/e331d255-059f-
a diagrammatic representation of typical EHR and EPR architectures
                                                                                 4fc6-b814-5938f8ee017e-rf.silos_1-13.pdf (last accessed 4, December
which distinguish between SOA and federated see (HIMSS, 2008, 14).
                                                                                 2010).
4 For further information on the Canadian approach, and a contrast with
                                                                                 Stroetmann, K. A., Jones, T., Dobrev, A., Stroetmann, V. N. for
some EMEA and worldwide attempts to create standardised infrastructures
                                                                                 eHealthImpact, 2006. eHealth is Worth it: The economic benefits of
or standards-based (such as through the use of variations of HL7) see
                                                                                 implemented eHealth solutions at ten European sites. Luxembourg: Office
HIMSS, 2008, 8-10.
                                                                                 for Official Publications of the European Communities. Available at: www.
5 The NEHR sets out the system-level architecture for how the existing           ehealth-impact.org/download/documents/ehealthimpactsept2006.pdf (last
and new systems must fit together. For a full description of the architecture    accessed 4, December 2010).
see the Ministry of Health Singapore website at www.moh.gov.sg, see also
                                                                                 UK Department of Health, 2010. An Information Revolution: a
HIMSS, 2007.
                                                                                 consultation on proposals. [online] at www.dh.gov.uk/en/Consultations/
6 NHS Scotland’s eHealth Strategy 2008-11 is available online at www.            Liveconsultations/DH_120080 (last accessed 4, December 2010).
scotland.gov.uk/Resource/Doc/236550/0064857.pdf (last accessed 4,
                                                                                 UN, 2010. World Population Ageing 2009. New York: United Nations.
December 2010).
                                                                                 Available online at: www.un.org/esa/population/publications/WPA2009/
                                                                                 WPA2009-report.pdf (last accessed 2, December 2010).
References
                                                                                 WHO, 2005. Connecting for Health: Global Vision, Local Insight. Report
                                                                                 for the World Summit on the Information Society. Geneva: WHO.
eHealth Taskforce, 2007. Accelerating the Development of the eHealth
                                                                                 Available at: www.who.int/kms/resources/WSISReport_Connecting_for_
Market in Europe. Luxembourg: Office for Official Publications of the
                                                                                 Health.pdf (last accessed 4, December 2010).
European Communities. Available at:ec.europa.eu/information_society/
activities/health/docs/publications/lmi-report-final-2007dec.pdf (last           WHO, 2006. Building the Foundations of eHealth: Progress of Member
accessed 4, December 2010).                                                      States. Geneva: WHO. Available at: apps.who.int/bookorders/anglais/
                                                                                 detart1.jsp?sesslan=1&codlan=1&codcol=15&codcch=696 (last accessed 4,
Fernandes, L., & Schumacher, S., for IBM. 2010. Universal Health
                                                                                 December 2010).
Identifiers: Issues and Requirements for Successful Patient Information
Exchange [online]. Available at:www.ehealthnews.eu/images/stories/pdf/           WHO, 2010. Fact Sheet No. 301: The Migration of Health Workers
universalhealthidentifier.pdf (last accessed 2, December 2010).                  [online] (Updated July 2010). Available at www.who.int/mediacentre/
                                                                                 factsheets/fs301/en/index.html (last accessed 4, December 2010).
Gartner RAS Core Research Note G00206031. 2010. Magic Quadrant for
Master Data Management of Customer Data. Gartner.                                WHO Regional Office for Africa, 2009. Africa urged to embrace and use of
                                                                                 e-health [online] (Updated on 30, August 2010). Available at www.afro.
HIMSS Enterprise Systems Steering Committee and the Global
                                                                                 who.int/en/media-centre/pressreleases/2401-africa-urged-to-embrace-
Enterprise Task Force, 2008. Electronic Health Records: A Global
                                                                                 and-use-e-health.html (last accessed 4, December 2010).
Perspective. Healthcare Information and Management Systems Society.




                                                                                 7
© Copyright IBM Corporation 2010

Initiate and Initiate Master Data Service are registered trademarks in the United
States and certain foreign jurisdictions

IBM and the IBM logo are trademarks of International Business Machines
Corporation in the United States, other countries or both. For a complete list of IBM
trademarks, see www.ibm.com/legal/copytrade.shtml.

Other company, product and service names may be trademarks or service marks of
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References in this publication to IBM products or services do not imply that IBM
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Any reference in this information to non-IBM Web sites are provided for convenience
only and do not in any manner serve as an endorsement of those Web sites. The
materials at those Web sites are not part of the materials for this IBM product and use
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Enterprise Master Patient Index - IBM White Paper

  • 1. IBM Software The Enterprise Master Person Index – Delivering better eHealth in Europe, the Middle East and Africa (EMEA) Matthew Shelley, Ph.D. Penny Schlyer
  • 2. The Enterprise Master Person Index – Delivering better eHealth in Europe, the Middle East and Africa (EMEA) Contents delivery. This paper explores the advance of eHealth and the role of the EMPI in its future. 2 Introduction and Overview 2 The EMPI in eHealth The EMPI in eHealth A variety of roadblocks have to be negotiated for eHealth to 2 Patient Privacy achieve its potential, some technical, others social and 3 Data Quality and Accurate Identification economic; an EMPI at the foundation can do much to help. 4 eHealth Architectures and Approaches Some of the most important issues that must be addressed 5 EMPI Boosts Effectiveness of National Health Identifiers include the type of information being made available, and to whom. For example, mental health records, certain test results 6 Choosing the Right EMPI for Better eHealth or children’s health records can be very sensitive and should 6 Why IBM only be shared with certain individuals during specific episodes 7 Footnotes and References of care. An EMPI accurately associates the right records to the right patient, ensuring accurate identification at the point of care. It can be architected to only identify where all relative Introduction and overview records exist or to enable information sharing for an electronic eHealth offers a potent means for health services in EMEA, and health record (EHR), portal or other sub-specialty applications. worldwide, to tackle the daunting challenges of the 21st century. Ageing populations, long-term management of chronic illnesses, Because of this flexibility, the EMPI can help deliver three escalating costs1, changing patterns of disease, and a worldwide essentials to advance eHealth and provide the basis for trust shortage of healthcare workers are all driving the need for health including protecting patient privacy, ensuring data quality and information and communication technology (ICT) to improve accurately identifying the patient. healthcare administration and delivery. Patient Privacy For future sustainability, the healthcare system demands In many countries there are profound worries among citizens efficient and affordable access to finite healthcare resources, and political decision makers about ensuring that only improving care for all and reducing healthcare inequalities. To authorised healthcare providers with a need to know, access achieve its potential, eHealth must facilitate the secure information about a patient. How and where information is movement of patient data out of system silos and transform it stored and accessed can help alleviate these concerns and add a into intelligence for improved patient administration and high degree of trust that is required for patient data sharing. enablement of patient-centred, coordinated care. There are essentially three implementation models organisations The enterprise master person index (EMPI)2, or patient have used to govern healthcare data to protect patient privacy registry, has an essential role to play, facilitating trusted data while facilitating health information sharing. One option – the exchange while protecting the privacy of patient information. hybrid model -- adopted by Canada Health Infoway leverages An EMPI provides a real-time way to locate, identify, match provincial EMPIs as part of its Health Information Access Layer and cleanse information about a person from many sources to (HIAL) to identify patients within the province and enable create a comprehensive view for authorised health service health information sharing. providers. It is proven to reduce duplicate records within and across systems to improve patient administration and care 2
  • 3. Information Management In this Canadian model: confidence and trust in the data quality and security of the HIE by allowing them to retain complete control and ownership of • Each province has an EMPI that serves as a registry their data and only share what is needed, when it is needed. As (directory) of patients with demographic information and in opposed to loading data into a central EMPI, the federated some cases the Health Card number. model allows data owners to provide a minimal amount of • Patients in the directory are linked to their associated medical demographic data to the EMPI so that when a provider queries records residing in multiple systems throughout the province. the system, they accurately identify the patient and can see • Contributing providers can share records through the EHR where additional records exist. As trust in data sharing grows, and also manage privacy by defining access rights at the more data can be shared proactively. patient level. As a result of this distributed methodology, LARHIX was able As a result: to avoid the common worries many providers have over data • When an authorised healthcare provider queries for a patient ownership and work involved in creating duplicate centralised in the EHR, he is more likely to identify the right patient and databases, and go live in less than five months. Clinicians can all available records associated to the patient. now query the system, and in real time securely access a • Sensitive or unauthorised records can be identified but not portal-based view of patient-centric data housed in disparate shared electronically unless special permission is granted. applications across multiple hospitals. Sensitive records can also be blocked from view. • These registries will enable information sharing across Data Quality and Accurate Identification provinces by linking the right patient to the right records. Two additional concerns that go hand in hand for eHealth include creating and maintaining a high data quality This hybrid data governance methodology helps reassure foundation within health information systems, and accurately healthcare providers and patients that information sharing is identifying the patient at the point of care. The EMPI tightly managed to protect privacy and to prevent unauthorised improves data quality by reconciling patient identities within a users from gaining access. system that has duplicate records, and across systems that The second approach is exemplified by NHS Wales which manage patient data in different ways. It can work operates a centralised data governance model with a national independently in the eHealth architecture or augment the EMPI supporting patient identification for seven local health function of a national health identifier to accurately associate boards (LHBs). In this model, each LHB loads its data into the the right records to the right patient. central EMPI, but patient data is partitioned for each LHB With the vast proliferation of IT products, and multitude of allowing them to maintain privacy and share only what is ways in which they are configured, the EMPI must not only needed. The LHBs benefit from the power of the EMPI, and integrate with one or two marginally distinct systems, but with maximise financial and administrative resources by leveraging dozens of sub-specialty systems which are fundamentally the national solution. In the future as trust in information different from one another. sharing grows, the LHBs will have the flexibility to grant permission to connect and share information with other The EMPI must reconcile identities, even to the point where a national services. patient has presented at several care settings over many years, has changed addresses, and where records have several versions The third approach, adopted by the Louisiana Rural Health or spellings of his or her name – possibly including new Information Exchange (LARHIX) is a federated data governance surnames due to marital status. model. This model gives healthcare providers a strong sense of 3
  • 4. The Enterprise Master Person Index – Delivering better eHealth in Europe, the Middle East and Africa (EMEA) George Eliot Hospital Name: Colm Heaney Address: 25 Lombard Street Local Identifier: 12/19/61 - 727 Primary Physician Address 2: London, England EMPI/Patient Registry Warwickshire Royal Consolidated View Name: Colum Heaney First: Colm Address: 25 Lombard Street Local Identifier: Last: Heaney Healthcare Authority Address 2: London, England ABC98765 Address: 25 Lombard Street Lloyds Pharmacy City: London Name: Colm Heanie Country: England UPIN#: Null Local Identifier: ID#: 5555-55-1234 ID#: 5555-55-1234 CHEANIE1234 Hospital Registration Gender: M Burbage Surgery DOB: 1/1/65 Name: Colm Heaney Address: 25 Lombard Street Local Identifier: Phone: 41-473-3486 VR:1432141234 Emergency Department An EMPI establishes linkages across disparate systems to create a single view of the patient. This helps identify the patient at the point of registration and ultimately facilitates information sharing for EHR and portal applications. A sophisticated EMPI that uses probabilistic technology more spelled differently, addresses have changed or records have accurately matches patient identities by going beyond basic typographical errors), to help them mobilise patient data from name, address and health identifier matching. It employs an institution and share it across borders, subject to applicable advanced statistical algorithms to understand errors in name patient consent rules. spelling, demographic information and identify when records refer to the same patient. Statistics from the data are used to eHealth architectures and approaches determine the optimal way to put data together for Health Information Exchanges (HIEs) enable the collection identification. The probabilistic EMPI is therefore more and movement of information between systems including effective at selecting the right information, assuring that the Electronic Health Records (EHRs). Vital to their success is patient record is complete, accurate and can be trusted. ensuring that the information from disparate sources is accurately combined and delivered in a way that is meaningful This technology was important in Wales, for example, where to the end user. While all eHealth and HIE architectures have there are some 1,928 people called Margaret Jones in a unique features and requirements, many depend on some form population of three million. Equally, popular names such as of EMPI or patient registry to accurately aggregate and match Thomas/Tomas may have Welsh (spoken by 20% of the information to provide an electronic record or complete view population) and English versions. Parents in some countries of the patient that can be trusted. pass names to sons or daughters, so it is important to distinguish between generations. Some examples of public hospital groups and national EHR initiatives that have an EMPI at the foundation of the eHealth The ability to uniquely identify patients with similar names, architecture are provided below. complex spellings or in different languages was also paramount to a large hospital group in Brussels. This organisation Public Hospital Groups: required its EMPI to link patient records together across five A public healthcare consortium in Switzerland included an hospitals to reduce existing duplicate records and prevent EMPI as part of its eHealth architecture to create single views creation of duplicate records during the admission process. of patients across their 12 healthcare facilities. Since deploying This organisation is also now leveraging the EMPI as part of the solution, duplicate records have been reduced from 10% to its interoperability platform for a clinical portal, providing 1% and the organisation has expanded the EMPI to enable access to medical records across all of its facilities. information sharing via a clinical portal to improve patient safety and quality of care. As part of their eHealth or Health Information Exchange (HIE) architectures, many healthcare organisations have implemented ACT Health, a provider of government funded health care a probabilistic EMPI that is capable of identifying patients who services in the Australian Capital Territory is implementing a are the same across different institutions (even if their names are probabilistic EMPI to create the territory’s new patient master 4
  • 5. Information Management index (PMI). The primary objective of the PMI is to integrate all patient registration sources to create a trusted, unified view EMPI Boosts Effectiveness of National Health of patients for use by all clinical and administrative systems, facilitate participation in the national Individual Healthcare Identifiers Identifier service (IHI) and provide identification services for Some countries have introduced, or are considering, a social insurance the ACT and national electronic health records (EHR). number, universal health identifier, or national ID card to manage patient identification. The EMPI has been shown to enhance the effectiveness, National EHRs: and reduce the implementation time and cost, of these national identifiers in a number of ways including by: Canada Health Infoway created a national blueprint to deliver an integrated, pan-Canadian EHR which allows essential • Tying the national number to patient records in each system without patient information such as medications, x-rays, and lab results requiring legacy systems to take in the ID as a new attribute. This speeds implementation time for the national ID card. to be securely viewed, shared and updated across communities, provinces and territories3. Each province deploys and manages • Leveraging additional attributes to capture historical records as its own architecture, which includes among other things a demographic information changes over time. This increases the depth of medical information for the EHR and improves patient identification. master patient registry and a master provider registry that works in conjunction with the social insurance number, to • Identifying errors, or duplicate records, by matching on multiple accurately match and link patient or provider identifications4. identifying attributes. This improves fraud detection and makes it easier to maintain data quality. This approach helps ensure a high degree of data quality by accurately identifying the right records with the right patient, Perhaps one of the most attractive features of the EMPI in this context is even across provinces. that it brings all the above benefits, while integrating with legacy systems in a way that is minimally invasive. Singapore is implementing a single medical record for every patient, with the first phase due to go live in 2011. The national electronic health record (NEHR) is based on a devolved to the four constituent home nations (England, common enterprise architecture that includes an EMPI, data Scotland, Wales and Northern Ireland). quality standards and privacy and security guidelines.5 By accurately aggregating patient identification information into • In England eHealth developments have been managed by the EMPI, each participant will have secure access to trusted Connecting for Health, which created a National Care and comprehensive information about the patient. Record for each citizen. Information is accessed on a need-to- know basis, using the patient’s 10-digit NHS number. The The National Health Information Network (NHIN) being EMPI links the NHS number to patient records to ensure developed in the USA is designed to provide a standards-based accurate patient identification. foundation that enables providers and public and private • Scotland, where care is delivered by 14 territorial NHS health organisations to identify where records for a patient exist and if boards overseen by the Scottish Government, has its own possible, securely share information via the internet. Some patient identification system, known as CHI (Community defining characteristics of the NHIN architecture are technology Health Index) numbers.6 neutral interfaces and shared processes and procedures such as an • In Wales the Informing Healthcare strategy developed an EMPI to support real time patient identification. Individual Health Record (IHR) for each patient. Access is In the UK, healthcare is publicly funded by the National confined to the local health board (of which there are seven) Health Service (NHS) but policy and decision making has been rather than being national, is based on a standard data extraction model and a common user interface, and is being powered by an EMPI at the foundation. 5
  • 6. The Enterprise Master Person Index – Delivering better eHealth in Europe, the Middle East and Africa (EMEA) Health Information Exchanges (HIEs) and EHRs around the Flexible Data Governance world have been developed – or are being developed – using a IBM Initiate solutions address the common challenges of data variety of architectures to achieve a range of eHealth objectives. governance and ownership with adaptable data models They are being adapted to serve the needs of large, populous, (federated, centralised or hybrid) that meet the needs of independent countries like the USA and small, semi-autonomous stakeholders concerned with sharing sensitive data. IBM offers ones like Wales. All have complex healthcare systems and distinct a collaborative data stewardship tool to allow individual needs, but regard electronic information exchange as a route to participants to proactively manage their own data quality. reduced administration and expense, improved patient outcomes Trusted EMPI Technology and increased organisational efficiency. IBM® Initiate® Patient is in use in public and private hospital Whatever the course, these eHealth architectures are groups in Belgium, Switzerland and the United Kingdom. It is leveraging an EMPI or a patient registry to accurately identify the client registry across much of Canada and will be the patient and enable secure data exchange. implemented as part of Singapore’s National Electronic Health Record. Additionally it is used in six of the national health Choosing the Right EMPI Solution for Better information network (NHIN) II and all four of the NHIN I demonstrations in the USA, and is in use by 77 integrated eHealth delivery networks and 41 health information exchanges. The Movement is a defining feature of the 21st-century world – IBM solution has improved data quality and claims processing whether between communities, regions, nations or continents. for many large private health insurers, and is a key component And the interplay between human mobility and the multiplicity of the U.S. national ePrescribing network and is also used by of healthcare providers presents fundamental challenges. These large military healthcare services. increase rather than decrease as healthcare becomes more sophisticated, as it can tend towards growing fragmentation. Extensible Solution, Ongoing ROI Patients may move and change names over time, but their eHealth is a journey, not a short term endeavour. IBM® medical information needs to follow them. Initiate® Master Data Service can be used to manage all types of people and organisations, and can also provide record To address challenges around data fragmentation, healthcare locator services for the most federated environments. Entity organisations of all types around the world have implemented types include patients, providers, health insurance members, IBM® Initiate® Patient and IBM® Initiate®Provider to improve citizens and people subscribing to social services. The open data quality and enable interoperability between health and standards-based integration allows ongoing return on information systems, while continuing to protect patient privacy. investment and growth over time to support broader initiatives such as chronic disease management, provider management or Why IBM® Initiate® Patient and IBM® connected social services. Initiate® Provider? Interoperable, Standards-Based Technology Proven Experience IBM Initiate solutions are built with a Web Services integration IBM Initiate solutions are backed by a highly experienced team of methodology and industry standards including HL7 and IHE. implementation consultants and support specialists with decades The solutions are software independent, which enables a of real world experience in healthcare installations of all types. plug-and-play eHealth architecture that can grow over time and As pressures mount for healthcare providers, many suppliers are integrate with other regions, providers or federal entities. developing solutions that will enable them to harness the potential of eHealth to provide more and better patient care. IBM is among the leaders. To learn more visit: www.IBM.com/healthcare. 6
  • 7. Information Management Footnotes Available at: www.himss.org/content/files/200808_ EHRGlobalPerspective_whitepaper.pdf (last accessed 4, December 2010). 1 Recent research (eHealth Taskforce, 2007, 12) citing the PWC study, HealthCast 2020: Creating a Sustainable Future, 2006, puts health Ministry of Health, Singapore, 2007. Opening Address by PS at Health spending in the EU at c.9% of GDP and predicts c.16% by 2020 in Infomatics Summit [online] (updated on 16, July 2010). Available at: OECD countries. www.moh.gov.sg/mohcorp/speeches.aspx?id=24664 (last accessed 4, 2 EMPIs are known by various names including Master Patient Index December 2010). (MPI), Patient Registry or Client Registry. Rand Europe/Capgemini Consulting, 2010. Business Models for eHealth. 3 Defined as providing needed ‘information so that the appropriate European Commission. Available at: ec.europa.eu/information_society/ granularity, flexibility and reusability are enabled throughout the different activities/health/docs/studies/business_model/business_models_eHealth_ layers of functionality described in the architecture’. For a full description report.pdf (last accessed 4, December 2010). see the EHRS Blueprint at knowledge.infoway-inforoute.ca/EHRSRA/ Rockefeller Foundation, 2010. From Silos to Systems: An Overview of doc/EHRS-Blueprint-v2-Exec-Overview.pdf (last accessed 4, December eHealth’s Transformative Power. The Rockefeller Foundation, New York. 2010). For details of a range of national approaches see HIMSS, 2008. For Available at: www.rockefellerfoundation.org/uploads/files/e331d255-059f- a diagrammatic representation of typical EHR and EPR architectures 4fc6-b814-5938f8ee017e-rf.silos_1-13.pdf (last accessed 4, December which distinguish between SOA and federated see (HIMSS, 2008, 14). 2010). 4 For further information on the Canadian approach, and a contrast with Stroetmann, K. A., Jones, T., Dobrev, A., Stroetmann, V. N. for some EMEA and worldwide attempts to create standardised infrastructures eHealthImpact, 2006. eHealth is Worth it: The economic benefits of or standards-based (such as through the use of variations of HL7) see implemented eHealth solutions at ten European sites. Luxembourg: Office HIMSS, 2008, 8-10. for Official Publications of the European Communities. Available at: www. 5 The NEHR sets out the system-level architecture for how the existing ehealth-impact.org/download/documents/ehealthimpactsept2006.pdf (last and new systems must fit together. For a full description of the architecture accessed 4, December 2010). see the Ministry of Health Singapore website at www.moh.gov.sg, see also UK Department of Health, 2010. An Information Revolution: a HIMSS, 2007. consultation on proposals. [online] at www.dh.gov.uk/en/Consultations/ 6 NHS Scotland’s eHealth Strategy 2008-11 is available online at www. Liveconsultations/DH_120080 (last accessed 4, December 2010). scotland.gov.uk/Resource/Doc/236550/0064857.pdf (last accessed 4, UN, 2010. World Population Ageing 2009. New York: United Nations. December 2010). Available online at: www.un.org/esa/population/publications/WPA2009/ WPA2009-report.pdf (last accessed 2, December 2010). References WHO, 2005. Connecting for Health: Global Vision, Local Insight. Report for the World Summit on the Information Society. Geneva: WHO. eHealth Taskforce, 2007. Accelerating the Development of the eHealth Available at: www.who.int/kms/resources/WSISReport_Connecting_for_ Market in Europe. Luxembourg: Office for Official Publications of the Health.pdf (last accessed 4, December 2010). European Communities. Available at:ec.europa.eu/information_society/ activities/health/docs/publications/lmi-report-final-2007dec.pdf (last WHO, 2006. Building the Foundations of eHealth: Progress of Member accessed 4, December 2010). States. Geneva: WHO. Available at: apps.who.int/bookorders/anglais/ detart1.jsp?sesslan=1&codlan=1&codcol=15&codcch=696 (last accessed 4, Fernandes, L., & Schumacher, S., for IBM. 2010. Universal Health December 2010). Identifiers: Issues and Requirements for Successful Patient Information Exchange [online]. Available at:www.ehealthnews.eu/images/stories/pdf/ WHO, 2010. Fact Sheet No. 301: The Migration of Health Workers universalhealthidentifier.pdf (last accessed 2, December 2010). [online] (Updated July 2010). Available at www.who.int/mediacentre/ factsheets/fs301/en/index.html (last accessed 4, December 2010). Gartner RAS Core Research Note G00206031. 2010. Magic Quadrant for Master Data Management of Customer Data. Gartner. WHO Regional Office for Africa, 2009. Africa urged to embrace and use of e-health [online] (Updated on 30, August 2010). Available at www.afro. HIMSS Enterprise Systems Steering Committee and the Global who.int/en/media-centre/pressreleases/2401-africa-urged-to-embrace- Enterprise Task Force, 2008. Electronic Health Records: A Global and-use-e-health.html (last accessed 4, December 2010). Perspective. Healthcare Information and Management Systems Society. 7
  • 8. © Copyright IBM Corporation 2010 Initiate and Initiate Master Data Service are registered trademarks in the United States and certain foreign jurisdictions IBM and the IBM logo are trademarks of International Business Machines Corporation in the United States, other countries or both. For a complete list of IBM trademarks, see www.ibm.com/legal/copytrade.shtml. Other company, product and service names may be trademarks or service marks of others. References in this publication to IBM products or services do not imply that IBM intends to make them available in all countries in which IBM operates. Any reference in this information to non-IBM Web sites are provided for convenience only and do not in any manner serve as an endorsement of those Web sites. The materials at those Web sites are not part of the materials for this IBM product and use of those Web sites is at your own risk. Please Recycle IMW14564-GBEN-01