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10th EFAS Congress, 22 – 25 June, 2011
               Warsaw, Poland




        Enhanced Patient Care –
Exploiting the Social Web Environments



         Dr. Dr. h.c. Monika Lehnhardt




                                www.monika-lehnhardt.net
Enhanced Patient Care – why is it desirable or
                even inevitable?




• Technological advances/quantum leaps occur more frequently and
  need to be applied within the shortest possible time
• Emancipation of patients
• Importance of patient satisfaction (High Tech & High Touch)
• An ageing population
• Economical constraints



                                           www.monika-lehnhardt.net
Web 2.0 Social Web:
How mass collaboration changes everything
               The technical basis
                    – Individual tools: Weblog (“personal
                      publishing”), new generation web conference
                      rooms, skype
                    – Platforms:
                        • to upload content: videos (YouTube),
                          presentations (Slideshare), photos (Flickr)
                        • to network: social networks (Facebook,
                          mySpace), business networks (LinkedIn,
                          XING)
                        • for knowledge-sharing (Wikipedia, forums)
                        • for role-play (Internet gaming)
               The socio-psychological basis
                   – People like to cooperate, empathy drives
                      them to establish “succeeding relationships”
                      (Joachim Bauer)  global neighbourhood
                      support
                   – Self-presentation is the basis for learning
                      from the example of others
                   – Acknowledgement / Recognition 
                      Participation



                                      www.monika-lehnhardt.net
Communication in Social Web Environments
          in various structures

           •   Inter-disciplinary: professionals in various
               disciplines sharing core competence to
               conclude on the most promising treatment
               for a patient
           •   Intra-disciplinary: professionals in the same
               discipline joining forces; parents seeking
               treatment for their deaf children empower
               each other by sharing knowledge and
               experience leading to “Participatory
               Medicine”
           •   Supra- or meta-disciplinary: people
               accessing information available in the
               Internet, e.g. Wikipedia.




                                   www.monika-lehnhardt.net
Social Web “en route” from Neonatal Hearing Screening to
          Early Intervention and Long-Term Care
                                                  NHS                            parents’ suspicion
                                                  pass or fail                        confirmation
                                                                            
                                                  shock, denial, confusion, anger, sadness,
                                                  desperation
                                                                            
Access Internet                                   action (search for information - limited results)
search for information                                                      
contact experts, clinics, CI centers,             present child for in-depth diagnosis
manufacturers of HAs and CIs                      hearing problem/deafness confirmed
                                                                            
                                                  action (search for information - limited results)
Confronted with an overwhelming amount of         small ‘objective’ basis to make a decision
information                                                                 
Access Web 2.0 Social Media; Contact parents,     decision which therapy is the most suitable for
exchange knowledge, Cooperate                     the child and the family
                                                                            
Return to experts – shared decision-making        1 phase of (re)habilitation
                                                    st

‘participative medicine’                          provision of HA
Talk to parents of babies/children with CI;       decision for or against CI (based on limited and
Contact surgeons, audiologists, therapists on a   ‘local’ knowledge)
GLOBAL BASIS;                                                               




                                                                  www.monika-lehnhardt.net
Social Web “en route” from Neonatal Hearing Screening to
          Early Intervention and Long-Term Care
Talk to the surgeon also in his ‘consulting hours’   CI surgery (surgeon has limited time for
                                                     consultation)
                                                                               
YouTube “Cochlear Implant Activation” 524            First fitting (unsure what to expect)
results;                                                                       
Keep contact with professionals AND parents          repeated fitting sessions and (re)habilitation,
(weblogs, SKYPE, chat-rooms, conference              counseling of parents (limited by ease of access,
rooms)                                               time constraints)
                                                                               
                                                     Annual medical check-up at the implant clinic;
remote fitting and counseling;                       occasional fitting and counseling;
                                                                               
remote support                                       The teenager CI recipient may need support to
                                                     successfully attend mainstream schools and
                                                     institutions for higher education (maybe not easily
                                                     available, expensive)
                                                                               
CI recipients contact each other – Network –         Inclusion
regardless of age




                                                                    www.monika-lehnhardt.net
Illustration of using the Social Web Environment for a family
           whose child has been diagnosed as deaf




                                        www.monika-lehnhardt.net
www.monika-lehnhardt.net
Examples of already existing communities
    focusing on Cochlear Implants
            •   www.cochlearimplantonline.com
            •   www.cochlearimplant.ru/forum
            •   www.cochlear.am
            •   www.lehnhardt-akademie.net/weblog
            •   www.lehnhardt-akademie.net/porasemin




                              www.monika-lehnhardt.net
Call for Action




www.monika-lehnhardt.net/weblog


                            www.monika-lehnhardt.net

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10th EFAS Congress Social Web Enhanced Patient Care

  • 1. 10th EFAS Congress, 22 – 25 June, 2011 Warsaw, Poland Enhanced Patient Care – Exploiting the Social Web Environments Dr. Dr. h.c. Monika Lehnhardt www.monika-lehnhardt.net
  • 2. Enhanced Patient Care – why is it desirable or even inevitable? • Technological advances/quantum leaps occur more frequently and need to be applied within the shortest possible time • Emancipation of patients • Importance of patient satisfaction (High Tech & High Touch) • An ageing population • Economical constraints www.monika-lehnhardt.net
  • 3. Web 2.0 Social Web: How mass collaboration changes everything The technical basis – Individual tools: Weblog (“personal publishing”), new generation web conference rooms, skype – Platforms: • to upload content: videos (YouTube), presentations (Slideshare), photos (Flickr) • to network: social networks (Facebook, mySpace), business networks (LinkedIn, XING) • for knowledge-sharing (Wikipedia, forums) • for role-play (Internet gaming) The socio-psychological basis – People like to cooperate, empathy drives them to establish “succeeding relationships” (Joachim Bauer)  global neighbourhood support – Self-presentation is the basis for learning from the example of others – Acknowledgement / Recognition  Participation www.monika-lehnhardt.net
  • 4. Communication in Social Web Environments in various structures • Inter-disciplinary: professionals in various disciplines sharing core competence to conclude on the most promising treatment for a patient • Intra-disciplinary: professionals in the same discipline joining forces; parents seeking treatment for their deaf children empower each other by sharing knowledge and experience leading to “Participatory Medicine” • Supra- or meta-disciplinary: people accessing information available in the Internet, e.g. Wikipedia. www.monika-lehnhardt.net
  • 5. Social Web “en route” from Neonatal Hearing Screening to Early Intervention and Long-Term Care NHS parents’ suspicion pass or fail confirmation  shock, denial, confusion, anger, sadness, desperation  Access Internet action (search for information - limited results) search for information  contact experts, clinics, CI centers, present child for in-depth diagnosis manufacturers of HAs and CIs  hearing problem/deafness confirmed  action (search for information - limited results) Confronted with an overwhelming amount of small ‘objective’ basis to make a decision information  Access Web 2.0 Social Media; Contact parents, decision which therapy is the most suitable for exchange knowledge, Cooperate the child and the family  Return to experts – shared decision-making 1 phase of (re)habilitation st ‘participative medicine’ provision of HA Talk to parents of babies/children with CI; decision for or against CI (based on limited and Contact surgeons, audiologists, therapists on a ‘local’ knowledge) GLOBAL BASIS;  www.monika-lehnhardt.net
  • 6. Social Web “en route” from Neonatal Hearing Screening to Early Intervention and Long-Term Care Talk to the surgeon also in his ‘consulting hours’ CI surgery (surgeon has limited time for consultation)  YouTube “Cochlear Implant Activation” 524 First fitting (unsure what to expect) results;  Keep contact with professionals AND parents repeated fitting sessions and (re)habilitation, (weblogs, SKYPE, chat-rooms, conference counseling of parents (limited by ease of access, rooms) time constraints)  Annual medical check-up at the implant clinic; remote fitting and counseling; occasional fitting and counseling;  remote support The teenager CI recipient may need support to successfully attend mainstream schools and institutions for higher education (maybe not easily available, expensive)  CI recipients contact each other – Network – Inclusion regardless of age www.monika-lehnhardt.net
  • 7. Illustration of using the Social Web Environment for a family whose child has been diagnosed as deaf www.monika-lehnhardt.net
  • 9. Examples of already existing communities focusing on Cochlear Implants • www.cochlearimplantonline.com • www.cochlearimplant.ru/forum • www.cochlear.am • www.lehnhardt-akademie.net/weblog • www.lehnhardt-akademie.net/porasemin www.monika-lehnhardt.net