This session explores the concept of identity in today's digital era and what that means to an individual's health, as well as to society's treatment of the individual, including genetic discrimination and universal access to and affordability of medical technology advancements.

1. Identity & Health in a Digital
World
Deborah Gonzalez, Esq.
Global Health & Humanitarian Summit
Emory, April, 2013

2. Welcome & Overview
• Digital Identity
• Digital Health
• Digital Global Health Concerns
• Solutions & Lessons Learned

3. Digital Identity
Excerpt from the report: Digital Identity Matters
(2010)
“Our relationship with the Internet is changing.
Mobile devices, wireless connectivity, and our
increasing virtual presence across multiple social
media services have all but collapsed the boundary
between being online or offline.”

4. The Context
“Together the virtual and the real form the seamless
space in which many of us live out our daily lives. We
fashion the self through social
interaction, community and network affiliations, and
here come to construct our identities as well as
interpret the identity of others.”
http://www.pontydysgu.org/2010/06/digital-identity-
matters/

5. Digital Identity
Beyond the Physical,
But based on the
Physical.

6. Defining Identity: Digital
A set of data that uniquely describes a
person or thing and contains information
about the subject’s relationships to other
entities.
http://en.wikipedia.org/wiki/Digital_identity

7. Defining Identity: Digital
Digital Identity Elements:
1. Authentication Elements
ID #, IP address, email address, user name,
password, etc.
2. Data
3. Identifiers
Photographs, avatars, logo, images, etc.
4. Digital Traces
Contributions to blogs, links, etc.
Source: CRIM & Quebec Government

8. Digital Health
• Health 2.0
• E-Health
• Wireless Wellness
• Digital Diagnosis
• Tele-health

9. Digital Health v Health Technology
• Technology in terms of equipment
• Information Storage (patient records)
• Physical Innovations: robotic limbs

10. Digital Health’s 8 Convergent Elements
1. Wireless Sensors and Devices
2. Genomics (A, C, G, T = digital)
3. Social Networking
4. Mobile Connectivity and Bandwidth
5. Imaging
6. Health Information Systems
7. The Internet
8. Computing Power and the Data Universe
Dr. Eric Topol, "The Creative Destruction of Medicine: How the Digital
Revolution Will Create Better Health Care"

11. Digital Global Health Concerns
• Access to
– Information
– Knowledge
– Experts
• Obstacles to Access
– Cost ($$)
– Technology
– Communications Channels

12. Digital Global Health Concerns
• Disease
– Promote Health
– Preventive Measures
– Prevent International Spread
• Lifestyle Conditions
– Diabetes and obesity
– Mental illness
• Internet Addiction/Facebook Psychology
– Substance abuse/use disorders, including
tobacco use
– Injuries

13. Digital Global Health Concerns
• Genetic Concerns
– Bio-Piracy
– Clinical Trials
– Genetic Discrimination
• Insurance Coverage
– Big Data
– Privacy

14. Solutions & Lessons Learned
• Health Technology & Digital Products
– $14 Billion Market
– Apps & Mobile Health Market
• Wearable Sensors/Feedback Technology
• Monitoring Apps for Preventive Healthcare
• Gamification (Motivation, Fitness)
– Virtual Treatments/Cross-cultural Medical
Teams
– Robots

15. Solutions & Lessons Learned
• Health Technology & Digital Products
– Patient Independence
– Accessibility for the Disabled
• Social as Holistic Health Helper
– Communities as Resource
– Communities of Support

16. Solutions & Lessons Learned
• Health & Technology Regulation
– Genetic Information Nondiscrimination Act
– HITECH Act (technology breaches)
– HIPPA (privacy)
– Health Information Technology for Economic
and Clinical Health Ac
– Electronic Health Records Rule
– Patient Safety Rules/Bill of Rights

17. Solutions & Lessons Learned
• Health & Technology Regulation (Intl)
– United Nations Institute for Training &
Research (UNITAR)
– World Health Organization
– 1948 Universal Declaration of Human Rights
(Right to Health)
• Connection between Health & Human Rights
– International & Global Health Institutes

18. Q&A

19. Thank You!
Deborah Gonzalez, Esq.
Law2sm, LLC
404-857-1331
@law2sm
www.law2sm.com
deborah@law2sm.com