BRINGING THE
ELECTRONIC HEALTH RECORD
         TO LIFE

 Dr Douglas Kingsford MBCHB, PhD (Engineering)
    •   Practising GP in Auckland
    •   CEO, Caseweaver Development Ltd (medical decision support)
    •   Particular interest in artificial intelligence, workflow, EHR
    •   Served on relevant HISO Expert Committees

                                                           HINZ Seminar, 21 June 2012
EHR IS ALL ABOUT INTEROPERABILITY

   It’s about sharing data

   And collaborating in patient care

   Sounds simple

   So what needs to happen?
HERE’S WHAT’S NEEDED
   Open interoperability standards
   Developed through collaboration of
    vendors, healthcare providers, patient
    representatives and technical experts
   Clinician led, clinicians choosing what works
    best
   With good, transparent
    governance, accreditation, incentives/enforce
    ment
We’re there now…

                   … aren’t
we?
FIRST WE FIGURED OUT INTEROPERABLITY
First we discussed how we need something along the lines of:
1.   Agreed format (syntax and grammar)
     – data model (instantiation of information model, eg. R-MIM),
        mechanism for defining content (document and form
     templates,
        eg. openEHR Templates), messaging structure (eg. HL7 v3
        Messages).
2.   Equivalent datatypes
     – for elements in the messages and documents
3.   Common semantics
     – reference model, domain information model (what is
     meaningful
        to say), terminologies and bindings to domain information
     model
        (vocabulary), mechanism for declaring post-coordinations
        (openEHR archetypes, HL7 v3 templates, SNOMED CT
        terminology expressions)
THEN TYPES OF INTEROPERABLITY
Then we moved on to:
   Functional Interoperability – HL7 v2/3, web services, DICOM, etc
    - agreement on message structure and how to send/receive messages
    - prior agreement on meaning of message elements, plus agreed coding for
    detail
    - but inherent weaknesses (HL7 v2)– optionality, can’t easily represent context,
      post-coordinations, etc

   Semantic Interoperability – openEHR, HL7 v3, CDA, SNOMED CT, etc
    - supposedly the laudable ability to consume and interpret clinical data
      without prior agreement on message content or data dictionary
    - work has trended towards templates, archetypes
    - which are really agreement on a common information model
    - but with competing reference models (HL7 v3, openEHR)
    - and so sending agreed v3 messages is kind of back to functional
      interoperability again, with prior agreement, and details of meaning
      delegated to the terminology

   Workflow Interoperability – BPEL, BPMN, YAWL, HL7 v2/3, IHE XDW (Oct
    2011), etc
    - ability to coordinate business processes – orchestration and choreography
    - yet to really see this in health outside monolithic systems and dynamic
    behaviour of
AND USUALLY ENDED UP WITH…

   Complex proposed reference architectures
    (Connecting For Health, Canada Health Infoway, now NZ
    Interoperability Reference Architecture)

   Recommendations for large central data
    repositories
   Convergence on a few, large vendors
BUT THERE ARE SOME PROBLEMS…
BUT THERE ARE SOME PROBLEMS…

   There’s little actual progress outside
    monolithic systems
   (It’s easy - if everyone would just agree to
    use one system!)
BUT THERE ARE SOME PROBLEMS…

   Everyone wants to protect their investment in
    existing systems
   And those systems often aren’t as
    expressive as the reference architectures
    would like.
BUT THERE ARE SOME PROBLEMS…

   Whilst IT people see data centralization as
    logical
   Clinicians want to retain control of their patient’s
    data
   Patients may resist having their info in systems
    outside the control of those they personally trust
   And some clinicians perceive they are adding
    value by building up the richness of their
    patients’ records.
BUT THERE ARE SOME PROBLEMS…

   Clinicians tend to want to use a single
    system if they can (eg. their EMR)
   But not necessarily the same single system
    as the guy down the road
   Or the systems of a central agency.
BUT THERE ARE SOME PROBLEMS…

   Vendors want to continue to deliver unique
    value to their customers
   And may be resistant to key functionality
    slipping away into “the cloud”.
   Which is a problem, because vendors are
    key to the deployment of innovation to the
    point of care.
WHICH SUGGESTS…
WHICH SUGGESTS…

   The proprietary needs of the various
    participants in healthcare delivery are real
   And must be acknowledged and respected
   If we are to have progress beyond monolithic
    centralized systems.
WHICH SUGGESTS…

   There will always be important information held
    in source systems that is not passed to central
    repositories
   The complex many-to-many interactions that
    already exist between the participants in
    healthcare delivery will need to be supported
   In an environment where many of these
    participants do not want to be controlled by
    others.
WHICH SUGGESTS…

   New types of cooperation will be required
    between patients, providers, government
    agencies and vendors.
   New business models will be required to
    motivate cooperation between all the
    involved stakeholders.
   It shouldn’t matter where the data sits.
SO WHAT ARE WE GOING TO NEED?
SO WHAT ARE WE GOING TO NEED?
   An environment of open interoperability
    standards
   With good governance, incentives and
    accreditation –
   Promoting innovation, lowering barriers to
    entry, facilitating evolution and competition
   Enabling new ventures to plug niche
    advancements into existing systems
SO WHAT ARE WE GOING TO NEED?

   Interface and data standards that support:
     distributed queries for data held in source systems
     decentralized workflow
      – with extended information models that better
         encompass workflow
      – not just the “integrated workflow” of centralized,
         single-vendor systems

   An approach that allows for incremental
    increases in sophistication by participants over
    time.
THE VISION
   Seamless interoperability across a distributed
    system featuring diverse components and no
    central control – much like the internet itself.
   An environment for collaboration and
    competition that drives innovation and boosts
    overall functionality/capability.
   An ecosystem of specialized, niche players that
    allow composite “best of breed” solutions to
    arise by evolution - “survival of the
    fittest”, based on fitness for purpose as

EHR Interoperatbility

  • 1.
    BRINGING THE ELECTRONIC HEALTHRECORD TO LIFE Dr Douglas Kingsford MBCHB, PhD (Engineering) • Practising GP in Auckland • CEO, Caseweaver Development Ltd (medical decision support) • Particular interest in artificial intelligence, workflow, EHR • Served on relevant HISO Expert Committees HINZ Seminar, 21 June 2012
  • 2.
    EHR IS ALLABOUT INTEROPERABILITY  It’s about sharing data  And collaborating in patient care  Sounds simple  So what needs to happen?
  • 3.
    HERE’S WHAT’S NEEDED  Open interoperability standards  Developed through collaboration of vendors, healthcare providers, patient representatives and technical experts  Clinician led, clinicians choosing what works best  With good, transparent governance, accreditation, incentives/enforce ment
  • 4.
    We’re there now… … aren’t we?
  • 5.
    FIRST WE FIGUREDOUT INTEROPERABLITY First we discussed how we need something along the lines of: 1. Agreed format (syntax and grammar) – data model (instantiation of information model, eg. R-MIM), mechanism for defining content (document and form templates, eg. openEHR Templates), messaging structure (eg. HL7 v3 Messages). 2. Equivalent datatypes – for elements in the messages and documents 3. Common semantics – reference model, domain information model (what is meaningful to say), terminologies and bindings to domain information model (vocabulary), mechanism for declaring post-coordinations (openEHR archetypes, HL7 v3 templates, SNOMED CT terminology expressions)
  • 6.
    THEN TYPES OFINTEROPERABLITY Then we moved on to:  Functional Interoperability – HL7 v2/3, web services, DICOM, etc - agreement on message structure and how to send/receive messages - prior agreement on meaning of message elements, plus agreed coding for detail - but inherent weaknesses (HL7 v2)– optionality, can’t easily represent context, post-coordinations, etc  Semantic Interoperability – openEHR, HL7 v3, CDA, SNOMED CT, etc - supposedly the laudable ability to consume and interpret clinical data without prior agreement on message content or data dictionary - work has trended towards templates, archetypes - which are really agreement on a common information model - but with competing reference models (HL7 v3, openEHR) - and so sending agreed v3 messages is kind of back to functional interoperability again, with prior agreement, and details of meaning delegated to the terminology  Workflow Interoperability – BPEL, BPMN, YAWL, HL7 v2/3, IHE XDW (Oct 2011), etc - ability to coordinate business processes – orchestration and choreography - yet to really see this in health outside monolithic systems and dynamic behaviour of
  • 7.
    AND USUALLY ENDEDUP WITH…  Complex proposed reference architectures (Connecting For Health, Canada Health Infoway, now NZ Interoperability Reference Architecture)  Recommendations for large central data repositories  Convergence on a few, large vendors
  • 8.
    BUT THERE ARESOME PROBLEMS…
  • 9.
    BUT THERE ARESOME PROBLEMS…  There’s little actual progress outside monolithic systems  (It’s easy - if everyone would just agree to use one system!)
  • 10.
    BUT THERE ARESOME PROBLEMS…  Everyone wants to protect their investment in existing systems  And those systems often aren’t as expressive as the reference architectures would like.
  • 11.
    BUT THERE ARESOME PROBLEMS…  Whilst IT people see data centralization as logical  Clinicians want to retain control of their patient’s data  Patients may resist having their info in systems outside the control of those they personally trust  And some clinicians perceive they are adding value by building up the richness of their patients’ records.
  • 12.
    BUT THERE ARESOME PROBLEMS…  Clinicians tend to want to use a single system if they can (eg. their EMR)  But not necessarily the same single system as the guy down the road  Or the systems of a central agency.
  • 13.
    BUT THERE ARESOME PROBLEMS…  Vendors want to continue to deliver unique value to their customers  And may be resistant to key functionality slipping away into “the cloud”.  Which is a problem, because vendors are key to the deployment of innovation to the point of care.
  • 14.
  • 15.
    WHICH SUGGESTS…  The proprietary needs of the various participants in healthcare delivery are real  And must be acknowledged and respected  If we are to have progress beyond monolithic centralized systems.
  • 16.
    WHICH SUGGESTS…  There will always be important information held in source systems that is not passed to central repositories  The complex many-to-many interactions that already exist between the participants in healthcare delivery will need to be supported  In an environment where many of these participants do not want to be controlled by others.
  • 17.
    WHICH SUGGESTS…  New types of cooperation will be required between patients, providers, government agencies and vendors.  New business models will be required to motivate cooperation between all the involved stakeholders.  It shouldn’t matter where the data sits.
  • 18.
    SO WHAT AREWE GOING TO NEED?
  • 19.
    SO WHAT AREWE GOING TO NEED?  An environment of open interoperability standards  With good governance, incentives and accreditation –  Promoting innovation, lowering barriers to entry, facilitating evolution and competition  Enabling new ventures to plug niche advancements into existing systems
  • 20.
    SO WHAT AREWE GOING TO NEED?  Interface and data standards that support:  distributed queries for data held in source systems  decentralized workflow – with extended information models that better encompass workflow – not just the “integrated workflow” of centralized, single-vendor systems  An approach that allows for incremental increases in sophistication by participants over time.
  • 21.
    THE VISION  Seamless interoperability across a distributed system featuring diverse components and no central control – much like the internet itself.  An environment for collaboration and competition that drives innovation and boosts overall functionality/capability.  An ecosystem of specialized, niche players that allow composite “best of breed” solutions to arise by evolution - “survival of the fittest”, based on fitness for purpose as