Advocay for human rights

1. Disability is complex, dynamic, multidimensional, and contested. “It is the umbrella
term for impairments, activity limitations and participation restrictions, referring to
the negative aspects of the interaction between an individual (with a health
condition) and that individual’s contextual factors (environmental and personal
factors).”
As per Census 2011, in India, out of the 121 Cr population, about 2.68 Cr persons
are ‘disabled’ which is 2.21% of the total population. In an era where ‘inclusive
development’ is being emphasized as the right path towards sustainable
development, focused initiatives for the welfare of disabled persons are essential.
This emphasizes the need for strengthening disability statistics in the Country.

2. The World Health Organization (WHO 1976) draws on a three fold
distinction between impairment, disability and handicap:
 Impairment is any loss or abnormality of psychological, physiological or
anatomical structure or function.
 Disability is any restriction or lack (resulting from an impairment) of
ability to perform an activity in the manner or within the range considered
normal for a human being.
 Handicap is a disadvantage, for a given individual, resulting from
impairment or a disability, which prevents the fulfillment of a role that is
considered normal (depending on age, sex and social and cultural factors)
for that individual.

3.  Person with disability" means a person suffering from not less than 40% of
any disability as certified by a medical authority (any hospital or institution,
specified for the purposes of this Act by notification by the appropriate
Government). As per the act "Disability" means –
 Blindness
 Low vision
 Leprosy-cured
 Hearing impairment
 Loco motor disability
 Mental retardation
 Mental illness

4.  The most common causes of impairment and disability include chronic
diseases such as -
 Diabetes and cardiovascular disease
 Cancer
 Injuries such as those due to road traffic crashes
 Mental impairments
 Birth defects
 Malnutrition
 HIV/AIDS and other communicable diseases

5.  An astonishing but a major cause of Disability prevailing in India and especially in
eastern Uttar Pradesh (a hub of the lethal disease – “Japanese Encephalitis”)
 As per the records Government JE kills approximately 15,000 people of the
estimated 50,000 cases reported annually in India. Among the survivors, up to 75
percent suffer from disabilities, including paralysis and mental retardation. JE's
mortality rate is approximately 25% to 30%.
 In medical terms Patients often suffer significant long-term morbidity. Some
effects, such as learning difficulties and behavioral problems, can be subtle and
may remain undetected for several years. 50% of those who recover suffer from
neurological deficit.

6.  Over the past 60 years, it has been estimated that JEV has infected more than
ten million people, of whom three million died and four million suffered long-
term disabilities.
 As per the reviews of members of National Health mission officials in last 30
years Japanese Encephalitis have resulted in 50000 deaths including 39
districts of Uttar Pradesh especially the eastern belt
 Approximately 597,542,000 people in India live in JE-endemic regions, and
1,500 to 4,000 cases are reported every year. ( figures are based on total
reported cases only)
 Japanese Encephalitis alone has been a contributory factor in adding
approximately 35-40 thousand disabled to the total population of disabled in
Uttar Pradesh

7.  Social Exclusion
 Inferiority Complex
 Economic Setback
 High Vulnerability towards Natural and Man Made Disasters
 Feeling of Insecurity
 No streamlined recognition in social and economical
participation

8. Seeing
Hearing
Speech
Movement
Mental
Retardation
Mental
Illness
Any Other
Multiple
Disability
0
200000
400000
600000
800000
1000000
1200000
Breakup of Total Disabled Poulation of Uttar Pradesh -
4157514

9. Highest Number Of Disabled in India among States
 Uttar Pradesh (3.6 million) (Number Speaks for Themselves)
 Bihar (1.9 million)
 West Bengal (1.8million)
 Tamil Nadu (1.6 million each).

10.  The British Department for International Development (DFID)
has recognized that, ‘disability is a major cause of social
exclusion and it is both the cause and consequence of poverty’
(DFID 2000).
 Recent World Bank studies assert that ‘half a billion disabled
people are undisputedly amongst the poorest of the poor.’
 Socio-Economic burden of disability
 The financial impact of disablement on the family/household is
significant
 More specifically, a south Indian study evaluating the economic
burden of families with disabled children indicated that the
mean expenditure of the families with a disabled child was
$254 per year compared with an expenditure of $181 per year
of families with normal children, (t=10.2, P<.00001).
 Of the disabled children, 80% were not getting any social
security payments and 90% had no special concessions for
medical and other educational purposes.
 Of the mothers of the disabled children, 21% were unemployed
as against 12% in the case of normal children.

11. Uttar Pradesh
 Reservation In Government job: 3% reservation in all the categories of State Services has been made e.g. 1%
for visually handicapped, 1% for physically handicapped and 1% for deaf and dumb
 Age relaxation for job: 10 years in the prescribed upper age limit is available in State Government Services of
group 'C' & 'D' and 5 years relaxation in the prescribed upper age limit is available in group 'A' and 'B'
services
In Educational Institutions: There is no uniform policy for all the institutions/ colleges. However, the
facilities have been provided to disabled by certain Universities, which are as follows
 All types of fee relaxation - Agra, Kanpur, Meerut Univ.
 Relaxation in merit at the time of admission - Allahabad Univ.
 Reservation in admission -
 5% Ruhelkhand University
 iv. Preference in admission - Agra Univ. to disabled soldiers v. Writer's facility in Exam. - Lucknow, Kanpur,
Agra University. vi. Half hours extra time in examination - Kanpur University

12.  Bus Concession
 There is a proposal to provide free travelling to handicapped person in UPSRTC buses up to a
distance of 1000 kms in one calendar year. Government of UP have already allocated 9.19 lacs for
this purpose in this current financial year.
 Construction of Shops for Handicapped Persons Assistance for Marrying a Disabled Person
 Concession / Grace Time / Writer / Syllabus in the Examination
 There is a proposal to provide ` 20,000 to all categories of handicapped persons for construction
of shops. This amount includes ` 5,000 as grant-in-aid and `15,000 as loan without interest.
Government of UP have allocated ` 50 lakhs for this purpose in the present financial year. 11,000 is
given to those normal person who marry to a disabled persons
 Only Visually handicapped students are given grace time, writer and relaxation in syllabus of
Mathematics, Science and Geography Map. State Award There is a scheme for State level award to
efficient handicapped employees, self employed handicapped, and placement officers of
handicapped persons

13.  Other Concessions /
Reimbursement of medical treatment: For special diseases medical
Exemption in typing test: Physically handicapped persons get exemption in
proficiency in typing test at the time of appointment to clerical posts.
 School for visually handicapped students: 4 (3 for boys and 1 for girls)
 School for physically handicapped students: 2
 School for mentally retarded children: 2 (1 for boys and 1 for girls)
 Training Centre-cum-Sheltered workshop for visually handicapped: 3
 Training Centre-cum-Sheltered workshop for physically handicapped: 6
 Eight Special Employment Exchanges for handicapped persons have been opened
in the state.

14.  The Mental Health Act 1987
 The Rehabilitation Council of India Act 1992
 The Persons with Disabilities (Equal Opportunities, protection
Of Rights And Full Participation) Act 1995
 The National Trust for Welfare of Persons with Autism,
Cerebral Palsy, Mental Retardation and Multiple Disabilities
Act 1999
 National Policy for Persons with Disabilities Act 2005
 The Disability and Rehabilitation WHO Action Plan 2006-2011
 The Rights of Persons with Disabilities Bill, 2014

15.  Vocational Rehabilitation
 Community Based Rehabilitation
 Proper utilization of schemes and benefits. ADIP,NHFDC, DDRS
 Integrated and inclusive education. barrier free environment in
school iternary teachers, open schooling system, alternative
education
 Vocational training. microfinance. arrangement for suitable job for
differently abled. ensure reservation in jobs adequate representation
in private sector livelihood programme
 Involving the community members in rehabilitation process
 Sensitization of the community based organizations
 Rehabilitative services at the doorsteps of the PWDs
 Capacity building programme for CBR workers

16. State
Government
Schemes
Implementation
by NGO’s at
community level
Socio-economic
development of
the disabled
population
Entitlements of
Legal rights and
awareness
Resulting in
attainment and
safeguarding of
Disabled
Privillieges
Central
Government
Schemes and
Policies
Government
, Ngos
Coordinatio
n

17.  Inherent challenges of inter Inherent challenges of inter - sectoral
coordination
 Awareness among service providers, officials and PWD often low ‹
 Executive Coordination Structures very weak in most states ‹
 Commissioners ’ offices usually under –resourced in funds and people
 ‹Mechanisms for service outreach below district remain under -developed
 Unclear PRI strategy ‹
 NGO sector vibrant but challenges to expand into rural areas and to
strengthen business processes

18.  As seen, people with disabilities are unseen and unaccounted
in our country. There is a huge underestimation of number of
people with disabilities. As a result, people with disabilities do
not have the necessary facilities.
 A combined efforts from Ngo’s and Go’s would indeed be a
difference making conjunction towards the betterment and in
the lives of people with disability by eradicating the inferioty
sense And feel that they are not disabled , they are differently
abled

19. THANK YOU
TEACH ME SKILLS
DON’T
TREAT MY ILLS