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Digital tools that facilitate conversations: Understanding the social health experience
The document discusses the role of digital tools in enhancing healthcare experiences through participatory medicine, where patients become active participants in their health management. It presents data showing the increasing use of online health communities for obtaining health information and influencing treatment decisions. The findings indicate significant impacts on patients' choices regarding physicians and self-care management based on insights from social media and online interactions.
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Digital tools that facilitate conversations: Understanding the social health experience
- 1. Digital tools thatfacilitate conversations: Understanding the social health experience Craig Lefebvre, PhD Alexandra Bornkessel, MA 1
- 2. To me theideal doctor would be a man endowed with profound knowledge of life and of the soul, intuitively divining any suffering or disorder of whatever kind, and restoring peace by his mere presence. ~Henri Amiel Providing Optimal Healthcare: The Doctor 2
- 3. Connected health continuously aggregates personaldata from multiple stakeholders to “connect” the patient to the optimal tool or provider that can address needs immediately and in the most appropriate and cost- effective manner. ~Grameen Research Providing Optimal Healthcare: Connections 3
- 4. Participatory Medicine isa movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners. ~Society for Participatory Medicine Providing Optimal Healthcare: Participatory 4
- 5. Digital Connections forHealth & Healthcare Integrative and Ubiquitous Digital Health Experiences
- 6. Figure 1: Socialnetwork site use by age group, 2005-2012 (adapted from Pew Internet and American Life Project surveys: February 2005, April 2009 and August 2012).
- 7. The Health CareDyad and Digital Health Experiences 7
- 8. Motivations for Participating inOnline Communities and Social Network Sites General Term Entertainment Social Enhancement Maintaining Interpersonal Connectivity Self-discovery Get Information Provide Information Convenience Source; Kamal, N., Fels, S., & Ho, K. (2010, October). Online social networks for personal informatics to promote positive health behavior. In Proceedings of second ACM SIGMM workshop on Social media (pp. 47-52). ACM.
- 9. Social Identity Theoryand Social Media Use Component Social Categorization Social Identity Social Comparison Psychological Distinction Sense of Belonging Source; Kamal, N., Fels, S., & Ho, K. (2010, October). Online social networks for personal informatics to promote positive health behavior. In Proceedings of second ACM SIGMM workshop on Social media (pp. 47-52). ACM
- 10. User behavior inonline health communities (OHC)s• Need for Answers. OHC membership motivated by desire to learn more about own (or loved one’s) health condition. • Stumble Across OHCs. Membership idea often planted by Web search results or self-directed research. • Cautious. Healthy skepticism of members, information. • Verify Information. Cross-check OHC info with online resources and healthcare providers. • Personal Experiences. Discussions revolve around personal experiences with medications, self-care. • Starting Point. OHC info used as starting point for health decisions. Supplements provider advice, other research. 10 Source: Rupert, et al. (2012). How do online health communities influence treatment decisions?
- 11. Creating Social HealthExperiences • 42% use social media to look up consumer reviews of health treatments or physicians; • 25% share their own health experiences on social media websites; and • 20% belong to a health forum or online health community. PricewaterhouseCoopers. Social media “likes” healthcare: From marketing to social business. 2012.
- 12. Outcomes of SocialHealth Experiences • Health information obtained through social media sites would cause them to seek a second opinion (45%); • Influence their choice of a specific physician, hospital or medical facility (41%); • Affect how they manage a chronic condition or approach diet and exercise routines (40%); and • Be considered in their decision to take certain medications (34%). PricewaterhouseCoopers. Social media “likes” healthcare: From marketing to social business. 2012.
- 13. Reminder: The dataand discussion from this presentation are available at http:xxxx 13
Editor's Notes
- #6 This afternoon we’re going to focus on “The People” – the social aspects of digital health experiences – and how those experiences are being facilitated by digital social networks and other forms of social technologies.
- #8 People seem to use the internet as a resource to facilitate conversations with others, especially their health care providers. One survey by Tu (2011) found that 58% of all American adults searched for health or medical information online in the past year (among online adults that figure increases to 85%). Another survey by PwC found the average US adult seeks health information online about 3x/month. Tu found that about half of health searchers said the information influenced whether they asked their doctor a question or even whether t6o see a doctor (43%). About 20% said that the information influenced their decision about seeking a second opinion. Fox et al found that about half of online health searchers are doing it on behalf of someone else. Now that 2/3s of all internet users are using SNS, the role of social experiences has expanded for them; 33% are using SNS to obtain health information and share symptoms. Yet, another survey puts this figure closer to 6% for people who go to SNS to search for health information. HOWEVER, a survey of healthcare providers by AMN Healthcare found that while 48% are using SNS to access continuing education, share articles with colleagues and communicate with employers, only 8% are using social media to connect with patients
- #9 The Uses & Gratification is a social science theory that has been emerging since the 1970’s, and the theory has found new focus in light of telecommunications, computer-mediated-communication, and the internet. The foundations are based on understanding why people use a specific media and the gratification that they receive from it. U&G research categorizes motivations for media use by the following: diversions, social utility, personal identity, and surveillance. Table 1 summarizes the key motivators based on U&G that have been identified in the literature. Empirically Validated Motivator Entertainment - Diversions, Pass time, Entertainment Social Enhancement - Social utility, Interpersonal utility, Social enhancement Connectivity - Social utility, Interpersonal utility, Maintaining interpersonal connectivity Self-discovery - Personal identity, Self-discovery Get Information - Surveillance, Information seeking, Purposive value, Get Information Provide Information - Purposive value, Provide Information Convenience - convenience LINK: http://hct.ece.ubc.ca/publications/pdf/noreen-fels-ho-acmmm2010.pdf
- #10 Definition Categorization -The ordering of social environment in groupings of persons in a manner that is meaningful to the subject. Identity - Part of an individual’s self concept which derives from his knowledge of his membership of a social group(s) together with the emotional significance attached to that membership. Comparison - Ability to define one’s self and one’s group by measuring it against another group. Distinction - Ability to separate one’s own group from another by Similarities. Belonging - The ability for one to have greater similarities with others in the group.