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Working together 
in health information for 
Health and Well-being 
in Europe 
Dr Claudia Stein 
Director 
Division of Information, Evidence, Research and Innovation
R e s e a rc h 
Problems 
How best to 
coordinate all 
the activities…? 
R e s e a rc h 
IEA World Congress of Epidemiology 
Plenary Session 
7 August 2011 
Problems 
R e s e a rc h 
Problems
Single integrated Health Information System 
for Europe (53 Member States) 
• Roadmap with European 
Commission agreed in 
2010 
OECD became a 
partner in 2012
Agreed roadmap for 
Health Information System for Europe 
1. Conduct mapping exercises for existing health information systems & 
databases in the agencies; 
2. Conduct reviews of the quality and architecture of information systems → 
criteria; 
3. Conduct landscaping of current and potential partners and stakeholders and 
engage them → in progress; 
4. Define common needs and constraints, 
5. Discuss a concrete way forward based on the above steps and devise an 
action plan. 
• Definition of the goal we are aiming for; 
• Sketch out practical possibilities. 
• Meeting of DG Sanco and WHO Europe in 
February 2015 to discuss next steps
Where are we going with this 
initiative?
22 core and 19 additional 
indicators for 6 targets 
Approximately 50% of these 
indicators are also ECHI 
indicators
All on WHO EURO website: www.euro.who.int
New EURO web-portal – launch this week
Autumn school of health information and 
Opened by Minister of Health, 
Turkey and WHO Regional Director 
- attended by 
21 Member States (8 EU) 
Next school October 
2014 in Poland 
evidence for policy making 
Focus: Health 2020 monitoring 
(country case studies, inequalities, 
reporting)
EVIPNet (Evidence-informed policy network) 
• EVIPNet promotes the systematic use of health 
research evidence in policy-making; 
• Through a series of training workshops, EVIPNet 
promotes partnerships at the country level between 
policy-makers, researchers and civil society; 
• EVIPNet facilitates policy development and policy 
implementation through its platform and workshops. 
13 
Launch last week: Europe 
Gone live in 8 
countries in 
European Region 
October 2012, Bishkek, Kyrgyzstan
European Advisory Committee on Health Research: 
Proposal for development of a 
European action plan 
on knowledge translation (KT) 
Challenges: 
Health evidence and 
information not 
consistently used 
Insufficient support 
and incentives for KT 
Most successful 
KT mechanisms 
not widely 
applied 
EACHR KT 
sub-committee 
Action Plan: 
To enhance and 
institutionalize knowledge 
translation capacity in the 
WHO European Region to 
support evidence-informed 
policy-making
Revitalizing sub-regional 
information networks: 
xx 
Central Asian Republics Information Network 
• Collaboration between national health information systems in CAR 
countries; 
• Fostering intelligence sharing and exchange; 
• Harmonization of definitions; 
• Joint analysis and reporting; 
• Close communication with policy makers and partners; 
• Ceased in 2005 due to lack of funding. 
→ RELAUNCHED ON 4 JULY 2014 in Bishkek, Kyrgyzstan
8 other Member States & one Foundation 
have become contributors
European Health Information Initiative 
Turkey: 
Hosted first autumn 
school Oct 2013 
Poland: 
Hosting autumn school 
Oct 2014 
Russian Federation: 
New WHO Collaborating Centre on 
health information 
and supporting strategy work 
Kazakhstan & Kyrgyzstan: 
Staff & infrastructure for 
regional health information 
network in CAR countries 
UK: 
1. New WHO Collaborating Centre 
on Health 2020 indicator 
development 
2. Wellcome Trust: Grant funding 
& senior staff secondment 
Germany: 
Full time staff member 
funded as JPO
Next steps for the Initiative 
• Initiative could serve as major vehicle towards an integrated health 
information system for Europe → support from all parts of European 
region and operative now; 
• Increase harmonization of indicators with other agencies; 
• Improve measurement of inequalities in the European Region; 
• Enhance the work on the measurement of well-being in Europe; 
• Lead the development of new evidence (e.g. cultural determinants of 
health, etc).
Next steps for the Initiative (cont.) 
• Expand the partners network; 
• Finalize business plan & proposing type of collaborative framework that 
gives all partners equal rights and standing; 
• Invite existing partners to Steering Group meeting in early 2015 to finalize 
Terms of Reference and type of partnership for the group; 
• Work with the group for expansion, advocacy and fundraising.
Спасибо, Danke, 
Merci, Thank you!
Extra slides
Collaboration of WHO/EURO and Institute of 
Health Metrics and Evaluation, USA 
• To collaborate on burden of disease assessments in European Region; 
• To improve coherence of quantitative messages; 
• To facilitate national burden of disease studies, including training; 
Country interest increasing: 
10 countries completed, conducting 
or planning NBD studies 
(5 EU, 5 non-EU) 
WHO country profiles 
Highlights on Health 
revitalized & to include 
burden information
Supporting evidence – in preparation 
Key elements of and principles 
for successful integration of 
national health information 
systems 
(funding: DG Sanco) 
Literature review & 
questionnaires/ interviews with 
key stakeholders at country level 
Output: 
Evidence summary of 
definitions and best practices

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Working together in health information for Health and Well-being in Europe

  • 1. Working together in health information for Health and Well-being in Europe Dr Claudia Stein Director Division of Information, Evidence, Research and Innovation
  • 2. R e s e a rc h Problems How best to coordinate all the activities…? R e s e a rc h IEA World Congress of Epidemiology Plenary Session 7 August 2011 Problems R e s e a rc h Problems
  • 3. Single integrated Health Information System for Europe (53 Member States) • Roadmap with European Commission agreed in 2010 OECD became a partner in 2012
  • 4.
  • 5. Agreed roadmap for Health Information System for Europe 1. Conduct mapping exercises for existing health information systems & databases in the agencies; 2. Conduct reviews of the quality and architecture of information systems → criteria; 3. Conduct landscaping of current and potential partners and stakeholders and engage them → in progress; 4. Define common needs and constraints, 5. Discuss a concrete way forward based on the above steps and devise an action plan. • Definition of the goal we are aiming for; • Sketch out practical possibilities. • Meeting of DG Sanco and WHO Europe in February 2015 to discuss next steps
  • 6. Where are we going with this initiative?
  • 7.
  • 8. 22 core and 19 additional indicators for 6 targets Approximately 50% of these indicators are also ECHI indicators
  • 9. All on WHO EURO website: www.euro.who.int
  • 10. New EURO web-portal – launch this week
  • 11.
  • 12. Autumn school of health information and Opened by Minister of Health, Turkey and WHO Regional Director - attended by 21 Member States (8 EU) Next school October 2014 in Poland evidence for policy making Focus: Health 2020 monitoring (country case studies, inequalities, reporting)
  • 13. EVIPNet (Evidence-informed policy network) • EVIPNet promotes the systematic use of health research evidence in policy-making; • Through a series of training workshops, EVIPNet promotes partnerships at the country level between policy-makers, researchers and civil society; • EVIPNet facilitates policy development and policy implementation through its platform and workshops. 13 Launch last week: Europe Gone live in 8 countries in European Region October 2012, Bishkek, Kyrgyzstan
  • 14. European Advisory Committee on Health Research: Proposal for development of a European action plan on knowledge translation (KT) Challenges: Health evidence and information not consistently used Insufficient support and incentives for KT Most successful KT mechanisms not widely applied EACHR KT sub-committee Action Plan: To enhance and institutionalize knowledge translation capacity in the WHO European Region to support evidence-informed policy-making
  • 15. Revitalizing sub-regional information networks: xx Central Asian Republics Information Network • Collaboration between national health information systems in CAR countries; • Fostering intelligence sharing and exchange; • Harmonization of definitions; • Joint analysis and reporting; • Close communication with policy makers and partners; • Ceased in 2005 due to lack of funding. → RELAUNCHED ON 4 JULY 2014 in Bishkek, Kyrgyzstan
  • 16. 8 other Member States & one Foundation have become contributors
  • 17. European Health Information Initiative Turkey: Hosted first autumn school Oct 2013 Poland: Hosting autumn school Oct 2014 Russian Federation: New WHO Collaborating Centre on health information and supporting strategy work Kazakhstan & Kyrgyzstan: Staff & infrastructure for regional health information network in CAR countries UK: 1. New WHO Collaborating Centre on Health 2020 indicator development 2. Wellcome Trust: Grant funding & senior staff secondment Germany: Full time staff member funded as JPO
  • 18. Next steps for the Initiative • Initiative could serve as major vehicle towards an integrated health information system for Europe → support from all parts of European region and operative now; • Increase harmonization of indicators with other agencies; • Improve measurement of inequalities in the European Region; • Enhance the work on the measurement of well-being in Europe; • Lead the development of new evidence (e.g. cultural determinants of health, etc).
  • 19. Next steps for the Initiative (cont.) • Expand the partners network; • Finalize business plan & proposing type of collaborative framework that gives all partners equal rights and standing; • Invite existing partners to Steering Group meeting in early 2015 to finalize Terms of Reference and type of partnership for the group; • Work with the group for expansion, advocacy and fundraising.
  • 22. Collaboration of WHO/EURO and Institute of Health Metrics and Evaluation, USA • To collaborate on burden of disease assessments in European Region; • To improve coherence of quantitative messages; • To facilitate national burden of disease studies, including training; Country interest increasing: 10 countries completed, conducting or planning NBD studies (5 EU, 5 non-EU) WHO country profiles Highlights on Health revitalized & to include burden information
  • 23. Supporting evidence – in preparation Key elements of and principles for successful integration of national health information systems (funding: DG Sanco) Literature review & questionnaires/ interviews with key stakeholders at country level Output: Evidence summary of definitions and best practices