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CONGRUENCE OF PARENT AND PRETEEN REPORTS OF THE PRETEENS’ EXPERIENCE WITH ASTHMA
                          N.M. CLARK, Ph.D., J.A. DODGE, M.S., R.H. ROBERTS, M.S., D.F. AWAD, M.A., L.J. THOMAS, M.P.H., S. SHAH, M.D., C.L.M. JOSEPH, Ph.D., M. VALERIO, M.P.H.
                                                      UNIVERSITY OF MICHIGAN, ANN ARBOR, MICHIGAN, UNITED STATES AND WESTMEAD HOSPITAL, SYDNEY, NEW SOUTH WALES, AUSTRALIA


                                   INTRODUCTION                                                                                                        RESULTS                                                                                           ADDITIONAL FINDINGS

Many asthma studies rely on parents' reports to assess the impact of asthma on a child. As children          Diagnosed Ever by Physician                                                                                                  Prescription Use by Nighttime Asthma Severity
reach the preteen years, they may be less available or willing to provide information to a parent
                                                                                                                                                                                                                                                           Children with a Diagnosis of Asthma
regarding their day-to-day experiences with the disease. This study of primarily 456 low income,                                                                           Parent Predicting Child's Response
minority children (aged 10 to 13 years) and their primary caregivers compared their reports of
                                                                                                                                               CHILD    PARENT              Overall                                                                                   Intermittent Asthma             Persistent Asthma
asthma problems experienced at school. Cases were identified from a health screener indicating the           Problems at School with. . .      % Yes     % Yes   p-value   Agreement   Sensitivity   Specificity
presence of asthma symptoms in the last 12 months.
                                                                                                             Taking medicine                   19.0%    16.4%     0.46       71.6%       18.2%         84.0%              Anti-inflammatory AND Bronchodilator

                                                                                                             Leaving class to take medicine    30.4%    16.5%    <0.0001     71.3%       30.0%         89.4%
                                                                                                                                                                                                                                                Bronchodilator only
                                  METHODOLOGY                                                                Leaving class when feeling sick   61.2%    37.0%    <0.0001     50.9%       40.1%         67.9%
                                                                                                                                                                                                                                             Anti-inflammatory only
                                                                                                             Teacher not wanting to give
                                                                                                                                               8.8%     19.9%    <0.001      75.7%       25.0%         80.6%
                                                                                                             medicines
Preteen data were collected by trained interviewers who conducted face-to-face interviews with the                                                                                                                                     No Prescription Medication
students at school. Data from the parent/guardians were collected using telephone interviews.                Too many absences                 36.8%    19.5%    <0.0001     68.2%       33.3%         88.6%

Overall measures of agreement were computed and specificity and sensitivity were determined                                                                                                                                                                            0%          10%          20%       30%      40%       50%       60%
using the preteen's response as the reference. Comparisons in the frequency of positive responses                                                                                                                       Definitions
                                                                                                             Symptomatic, But No Reported Diagnosis                                                                     Intermittent Asthma = Nighttime symptoms no more than two times per month
reported by preteen and parent were made using McNemar's test. All p-values are two sided.                                                                                                                              Persistent Asthma = Nighttime symptoms more than two times per month
                                                                                                                                                                           Parent Predicting Child's Response


                                                                                                                                               CHILD    PARENT              Overall
                                                                                                             Problems at School with. . .      % Yes     % Yes   p-value   Agreement   Sensitivity   Specificity
                                                                                                                                                                                                                   Reports of preteens in our sample with asthma:
 DESCRIPTION OF THE SAMPLE POPULATION (N = 456)                                                              Taking medicine                   9.2%      1.3%     0.03       89.5%       0.0%          98.6%        Related to Asthma Medication at School:                                Related to Other School Experiences:
                                                                                                                                                                                                                    • 23% of preteens with asthma take asthma                              • There are no differences by asthma severity or
                                                                                                             Leaving class to take medicine    12.0%     0.0%     0.003      88.0%       0.0%         100.0%          medication at school.                                                  gender in terms of feelings about school or
                       Gender                                            Race
                                                                                                                                                                                                                    • 85% of these preteens carry the medication                             experiences with peers.
                                                             3%                                              Leaving class when feeling sick   54.1%    23.9%    <0.0001     45.9%       22.1%         74.0%
                                                                   9%                                                                                                                                                 with them at school as opposed to keeping it in                      • Overall 42% of preteens with asthma ever choose
                                                         1%                           African-
                                                                                      American/Black
                                                                                                             Teacher not wanting to give                                                                              the office or with other school personnel.                             not to play sports because of their asthma.
                                                                                                                                               7.4%      8.6%     0.78       84.0%       0.0%          90.7%
                                                         1%                                                  medicines                                                                                              • A small percent (13%) of preteens report that                        • Overall 12% of preteens with asthma choose not to
                                                                                      Caucasian/White
                                                                                                             Too many absences                 27.7%    12.6%    <0.001      71.1%       20.5%         90.4%          it is sometimes hard to take medication at                             play sports most of the time because of their
          48%                                Male                                     Hispanic/Latino                                                                                                                 school.                                                                asthma.
                                  52%
                                             Female                                                                                                                                                                                                                                        • Significantly more preteens with persistent
                                                                                      Multi-racial
                                                                                                                                                                                                                                                                                             asthma choose not to play sports most of the time
                                                                                      Unknow n                                                                                                                                                                                               compared to students with intermittent asthma
                                                                          86%                           Overall, 63% of parents reported that their child had ever had a diagnosis of asthma. Diagnosed                                                                                      (15% vs. 9%, p = .05).
                                                                                                        children and their parent/guardians reported more problems at school than did the non-diagnosed
                          Age                                            Income                         children. However, across both sub-groups the pattern was the same with preteens consistently
                 4%
                                                                                                        reporting more problems at school than their parents related to: taking medicines, needing to leave                                                          CONCLUSIONS
                0%                                                  7%
                         14%
                                                             6%
                                                                                            <$10 K
                                                                                                        class to use medicine, leaving class when feeling sick, and too many school absences. Preteens
                3%
                                        10              4%                      30%         $10-20 K    reported fewer problems than their parents regarding a teacher not wanting to give medicines.              Overall preteens reported more problems with asthma at school than did their parent/guardians.
          17%
                                        11              5%                                  $20-30 K
                                                                                                                                                                                                                   Agreement between preteens and parents was considerably lower in the presence of asthma
                                        12                                                  $30-40 K
                                                                                            $40-50 K
                                                                                                                                                                                                                   problems. Studies with preteens should make a special effort to collect data from the preteens
                                        13              9%
                                        14                                                  $50-60 K                                                                                                               themselves.
                                        Unknow n                                            $60+ K                                                                                                                                                                                                                                                 printed by

                                                             15%                            Unknow n
                                                                          24%                                                                                                                                                                                                                                                                www.postersession.com

                        62%

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Congruence of parent and preteen reports of the preteens’ experience with asthma

  • 1. CONGRUENCE OF PARENT AND PRETEEN REPORTS OF THE PRETEENS’ EXPERIENCE WITH ASTHMA N.M. CLARK, Ph.D., J.A. DODGE, M.S., R.H. ROBERTS, M.S., D.F. AWAD, M.A., L.J. THOMAS, M.P.H., S. SHAH, M.D., C.L.M. JOSEPH, Ph.D., M. VALERIO, M.P.H. UNIVERSITY OF MICHIGAN, ANN ARBOR, MICHIGAN, UNITED STATES AND WESTMEAD HOSPITAL, SYDNEY, NEW SOUTH WALES, AUSTRALIA INTRODUCTION RESULTS ADDITIONAL FINDINGS Many asthma studies rely on parents' reports to assess the impact of asthma on a child. As children Diagnosed Ever by Physician Prescription Use by Nighttime Asthma Severity reach the preteen years, they may be less available or willing to provide information to a parent Children with a Diagnosis of Asthma regarding their day-to-day experiences with the disease. This study of primarily 456 low income, Parent Predicting Child's Response minority children (aged 10 to 13 years) and their primary caregivers compared their reports of CHILD PARENT Overall Intermittent Asthma Persistent Asthma asthma problems experienced at school. Cases were identified from a health screener indicating the Problems at School with. . . % Yes % Yes p-value Agreement Sensitivity Specificity presence of asthma symptoms in the last 12 months. Taking medicine 19.0% 16.4% 0.46 71.6% 18.2% 84.0% Anti-inflammatory AND Bronchodilator Leaving class to take medicine 30.4% 16.5% <0.0001 71.3% 30.0% 89.4% Bronchodilator only METHODOLOGY Leaving class when feeling sick 61.2% 37.0% <0.0001 50.9% 40.1% 67.9% Anti-inflammatory only Teacher not wanting to give 8.8% 19.9% <0.001 75.7% 25.0% 80.6% medicines Preteen data were collected by trained interviewers who conducted face-to-face interviews with the No Prescription Medication students at school. Data from the parent/guardians were collected using telephone interviews. Too many absences 36.8% 19.5% <0.0001 68.2% 33.3% 88.6% Overall measures of agreement were computed and specificity and sensitivity were determined 0% 10% 20% 30% 40% 50% 60% using the preteen's response as the reference. Comparisons in the frequency of positive responses Definitions Symptomatic, But No Reported Diagnosis Intermittent Asthma = Nighttime symptoms no more than two times per month reported by preteen and parent were made using McNemar's test. All p-values are two sided. Persistent Asthma = Nighttime symptoms more than two times per month Parent Predicting Child's Response CHILD PARENT Overall Problems at School with. . . % Yes % Yes p-value Agreement Sensitivity Specificity Reports of preteens in our sample with asthma: DESCRIPTION OF THE SAMPLE POPULATION (N = 456) Taking medicine 9.2% 1.3% 0.03 89.5% 0.0% 98.6% Related to Asthma Medication at School: Related to Other School Experiences: • 23% of preteens with asthma take asthma • There are no differences by asthma severity or Leaving class to take medicine 12.0% 0.0% 0.003 88.0% 0.0% 100.0% medication at school. gender in terms of feelings about school or Gender Race • 85% of these preteens carry the medication experiences with peers. 3% Leaving class when feeling sick 54.1% 23.9% <0.0001 45.9% 22.1% 74.0% 9% with them at school as opposed to keeping it in • Overall 42% of preteens with asthma ever choose 1% African- American/Black Teacher not wanting to give the office or with other school personnel. not to play sports because of their asthma. 7.4% 8.6% 0.78 84.0% 0.0% 90.7% 1% medicines • A small percent (13%) of preteens report that • Overall 12% of preteens with asthma choose not to Caucasian/White Too many absences 27.7% 12.6% <0.001 71.1% 20.5% 90.4% it is sometimes hard to take medication at play sports most of the time because of their 48% Male Hispanic/Latino school. asthma. 52% Female • Significantly more preteens with persistent Multi-racial asthma choose not to play sports most of the time Unknow n compared to students with intermittent asthma 86% Overall, 63% of parents reported that their child had ever had a diagnosis of asthma. Diagnosed (15% vs. 9%, p = .05). children and their parent/guardians reported more problems at school than did the non-diagnosed Age Income children. However, across both sub-groups the pattern was the same with preteens consistently 4% reporting more problems at school than their parents related to: taking medicines, needing to leave CONCLUSIONS 0% 7% 14% 6% <$10 K class to use medicine, leaving class when feeling sick, and too many school absences. Preteens 3% 10 4% 30% $10-20 K reported fewer problems than their parents regarding a teacher not wanting to give medicines. Overall preteens reported more problems with asthma at school than did their parent/guardians. 17% 11 5% $20-30 K Agreement between preteens and parents was considerably lower in the presence of asthma 12 $30-40 K $40-50 K problems. Studies with preteens should make a special effort to collect data from the preteens 13 9% 14 $50-60 K themselves. Unknow n $60+ K printed by 15% Unknow n 24% www.postersession.com 62%