2. We fi rst learned about
Cystic Fibrosis (CF) from our coworker,
Hugh. Hugh
Landmark Design 2011
3. Hugh’s son, Ben, was diagnosed with CF when he was 3
months old. At that time, Ben’s parents were told the life
expectancy for someone with CF was 27 years.
Ben
4. CF is a genetic condition that primarily impacts
lung and pancreatic function.
5. Ben and others with CF have cells that don’t function
correctly, making them unable to break down the mucus
in their lungs and to digest food properly.
I’m sure you can imagine what it
would feel like with a whole lot
of mucus in your lungs.
6. Ben depends on daily medications to help break up
the mucus and assist with digestion. He also does
morning and evening breathing treatments.
Yep, breathing treatments every day.
Even when camping.
7. But even with the medicine & treatments, it’s a given
that Ben will require hospital “clean outs”
lasting two weeks, as often as once a year.
Clean Outs = Rigorous physical therapy and
antibiotic treatments to break up the mucus and
get rid of the bad bugs that get stuck in Ben’s
lungs.
8. Ben is now 19 years old. He completed his fi rst
year of college at Utah State University and is now
volunteering abroad.
He loves to play soccer and
the French horn.
9. Since Ben was diagnosed with CF, research
advancements have increased the life expectancy of
someone with CF to 37 years.
Advancements in treatments—and toward a
cure—are being made each day due to research.
10. Contributions made as part of the Cycle for Life ride
will go toward the ongoing research and efforts to
make life for those with CF better (and longer).
11. That’s where you come in . . .
If every colleague, friend, and
family member who receives this
invitation contributes a minimum
of $15, we can easily reach our
Team goal.
Team Pulmonary Peddlers’
Cycle for Life Goal: $500
12. Donate your $15 (or more!) today by going here:
http://bit.ly/1vjhJUn
All donations can be made online or in person
through the eve of the Cycle for Life ride:
Saturday, September 13, 2014.
13. The end.
This is the end of this slide show. But, as you might have
guessed, there’s a lot more to know about CF.
To learn more, check out this video:
http://youtu.be/EsCfi jn-z1E
Or visit:
www.cff.org
