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What do you want to know?
What do you think
you should know?
What do you already know?
How can you grow that?
Nursing is one of
 the most difficult of arts.

Compassion may provide the motive,

        But knowledge is
     our only working power.
                     M Adelaide Nutting (1858 – 1948)
Hospice Frameworks of Care


         Social/               Spiritual/Wairua
         Whanaungatanga


                           i




         Physical/Tinana   Emotional/Hinengaro
The one thing people need to be assured
  of, if they are walking along this route
             for the first time,
is that they will not be left to fend for
                themselves.

 Our job is to walk the path with each
                  other.
Draft National Specialist Palliative Care
        Service Specifications
Interdisciplinary   Vs
                         Multidisciplinary
•  The nurse relationship is an important
   part of the healing relationship

•  It is crucial

Together with knowledge and expertise this
  relationship is the “essence” of palliative
                care nursing
Good palliative care
      enables nurses
   to return to the root
of our ability to care fully
         for people
   in a holistic manner.
                           Mary Vachon
“They said there was “nothing to do”
          for this young man
         who was “end stage”.
He was restless and short of breath;
           he couldn’t talk
         and looked terrified.
      I didn’t know what to do,
so I patted him on the shoulder, said
            something inane
               and left.
At 7 am he died.
The memory haunts me. I failed
    to care for him properly
    because I was ignorant.”
      A young clinician who later became an palliative care expert.
“Some days I feel “I don’t
 really have anything to
 give today” – but there’s
always something to give”
                      Hospice nurse
“It is one of the most
 rewarding areas of
        nursing”
                    Hospice nurse
People you are looking
     after are real –
  in that their façade
is stripped away from
           them.      Hospice nurse
People ask
“How can you do that type of
         nursing?”

         I reply
    “How can you not?”
                         Hospice nurse
“You only get one shot at
 helping that person and
   that family thru it”
                     Hospice nurse
How do I do the best for
     these people?
“Dying is a part of living –
   it is a natural thing”
                      Hospice Nurse
“Its about them running
   the ship……being in
      control of their
        symptoms”
                   Hospice Nurse
It’s about teaching people
  to live well rather than
       only dying well
                 Palliative Medical Specialist
“Being invited into their
 homes….witnessing their
     care at home ”
                    Hospice Nurse
“Having the opportunity
 to care for the family as
  well during this time”
                     Hospice Nurse
What is it like to be there
when someone leaves this
          world?
What are the dead like?
Quiet
  still
 calm
peaceful
But they still are
   what they
  always were
“You matter because you are you, and
 you matter until the last moment of
             your life.”
                            Cecily Saunders
“It’s such a fine line between
trying to be emphatic and care
about them and also not take it
      home to your own life.

It seems like you have to do
something to kind of separate
      yourself from it.”
                         Home care nurse
Learning to deal with our own loss and
    grief, coming in touch with our
    wounded healers and spiritual
   selves, will help us to continue to
           survive and thrive.
                                 Mary Vachon
Lazarus
For my patients……….
And myself….
Care of the Dying

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Care of the Dying

  • 1.
  • 2.
  • 3.
  • 4.
  • 5. What do you want to know?
  • 6. What do you think you should know?
  • 7. What do you already know?
  • 8. How can you grow that?
  • 9.
  • 10.
  • 11.
  • 12. Nursing is one of the most difficult of arts. Compassion may provide the motive, But knowledge is our only working power. M Adelaide Nutting (1858 – 1948)
  • 13.
  • 14.
  • 15.
  • 16. Hospice Frameworks of Care Social/ Spiritual/Wairua Whanaungatanga i Physical/Tinana Emotional/Hinengaro
  • 17.
  • 18. The one thing people need to be assured of, if they are walking along this route for the first time, is that they will not be left to fend for themselves. Our job is to walk the path with each other.
  • 19. Draft National Specialist Palliative Care Service Specifications
  • 20.
  • 21.
  • 22. Interdisciplinary Vs Multidisciplinary
  • 23.
  • 24. •  The nurse relationship is an important part of the healing relationship •  It is crucial Together with knowledge and expertise this relationship is the “essence” of palliative care nursing
  • 25.
  • 26. Good palliative care enables nurses to return to the root of our ability to care fully for people in a holistic manner. Mary Vachon
  • 27.
  • 28.
  • 29. “They said there was “nothing to do” for this young man who was “end stage”. He was restless and short of breath; he couldn’t talk and looked terrified. I didn’t know what to do, so I patted him on the shoulder, said something inane and left.
  • 30. At 7 am he died.
  • 31. The memory haunts me. I failed to care for him properly because I was ignorant.” A young clinician who later became an palliative care expert.
  • 32.
  • 33. “Some days I feel “I don’t really have anything to give today” – but there’s always something to give” Hospice nurse
  • 34.
  • 35. “It is one of the most rewarding areas of nursing” Hospice nurse
  • 36.
  • 37. People you are looking after are real – in that their façade is stripped away from them. Hospice nurse
  • 38.
  • 39. People ask “How can you do that type of nursing?” I reply “How can you not?” Hospice nurse
  • 40.
  • 41.
  • 42.
  • 43. “You only get one shot at helping that person and that family thru it” Hospice nurse
  • 44.
  • 45. How do I do the best for these people?
  • 46.
  • 47. “Dying is a part of living – it is a natural thing” Hospice Nurse
  • 48.
  • 49.
  • 50.
  • 51. “Its about them running the ship……being in control of their symptoms” Hospice Nurse
  • 52.
  • 53. It’s about teaching people to live well rather than only dying well Palliative Medical Specialist
  • 54.
  • 55.
  • 56. “Being invited into their homes….witnessing their care at home ” Hospice Nurse
  • 57.
  • 58. “Having the opportunity to care for the family as well during this time” Hospice Nurse
  • 59.
  • 60. What is it like to be there when someone leaves this world?
  • 61.
  • 62.
  • 63.
  • 64. What are the dead like?
  • 65. Quiet still calm peaceful
  • 66. But they still are what they always were
  • 67. “You matter because you are you, and you matter until the last moment of your life.” Cecily Saunders
  • 68.
  • 69. “It’s such a fine line between trying to be emphatic and care about them and also not take it home to your own life. It seems like you have to do something to kind of separate yourself from it.” Home care nurse
  • 70.
  • 71.
  • 72.
  • 73.
  • 74.
  • 75.
  • 76.
  • 77. Learning to deal with our own loss and grief, coming in touch with our wounded healers and spiritual selves, will help us to continue to survive and thrive. Mary Vachon
  • 78.
  • 79.
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  • 91.