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A Cry for Change



  Leilani Y. Roseberry
End-of-Life Care and Beyond
Currently…

๏ Many nurse assistants are not thoroughly
  trained in end-of-life care beyond post-mortem
  care.
๏ Nurse assistants work in a field, whether it’s
  private homes, nursing homes or elsewhere,
  which lacks end-of-life training, grief
  counseling, and support.
๏ This can lead to Unresolved Grief
The Nurse Assistant…

๏ Must be given the opportunity to process
  emotions surrounding end-of-life care and
  beyond.
๏ Currently there is limited professional support
๏ Support from co-workers is minimal
๏ The in-home nurse assistant works alone and
  experiences an even greater limitation on
  support because he or she works alone.
Unresolved Grief…

๏ Causes
๏ Symptoms
๏ Negative Outcomes
๏ Impact on Patient Care
๏ Cry for Change
Causes of Unresolved Grief…

๏ Absent grief
๏ Delayed grief
๏ Inhibited grief
๏ Conflicted grief
๏ Chronic grief
๏ Unanticipated grief
๏ Abbreviated grief
Symptoms of unresolved grief

๏ Irritability
๏ Apathy
๏ Preoccupation with thoughts of the deceased
๏ Lack of acceptance of death
Negative outcomes for the nurse
         assistant with unresolved grief

๏ Disenfranchised grief
๏ Compassion fatigue
๏ Moral distress
๏ Burnout
Disenfranchised Grief

๏ "Disenfranchised grief is when your heart is
  grieving but you can't talk about or share your
  pain with others because it is considered
  unacceptable to others. It's when you're sad
  and miserable and the world doesn't think you
  should be, either because you're not entitled or
  because it isn't worth it." E. Kupferman
๏ This leads to building of a protective shield
  and depersonalization (negative, cynical
  attitudes and feelings about one's clients)
Compassion Fatigue

๏ "It occurs as caregivers consistently give out
  more energy and compassion than they
  receive, and manifests itself as physical,
  emotional, and spiritual exhaustion." BM
  Frandsen
๏ "It can effect the ability to care for others."
  TA Brosche
Moral Distress

๏ "The stress, anxiety, apathy, and burnout that
  can often occur from repeated loss and when
  personal values conflict with the
  environment." TA Brosche
๏ "Cumulative exposure to patient death can
  serve as a reminder of the nurses' own life
  losses and can lead to painful awareness of
  their own mortality." Chrisitina G. Shinbara,
  Grief Support for Nurses: An Assessment of
  Needs, 2008
Burnout

๏ Job performance declines
๏ Health-related problems occur
๏ Depression sets in
๏ Possible career change leading to turnover
The Impact on Patient Care

๏ Unresolved grief has negative outcomes for
  the patient.
Impact of unresolved grief on
                            patient care

๏ Nurse assistants objectify patients-They "view
  residents as room numbers rather than
  people." KA Anderson
๏ They refer to patients by condition
๏ They provide care in an impersonal, hasty
  mechanical manner.
๏ This manner of care causes patient and patient
  family distress
Impact of unresolved grief on
                            patient care

๏ The turnover in nurse assistants causes
  discontinuity of care which greatly upsets
  patients who rely significantly on their
  caregiver, especially patients receiving in-
  home care.
๏ This is also “Reported as a primary concern of
  nursing home residents and their families.”
Nurse assistant turnover

๏ In 2007 the turnover was 65.6%
๏ In 2008 the US experienced a "turnover rate
  for Certified Nurse Assistants [that] was
  higher than other nursing staff, at 54%"
  (American Healthcare Association-Department
  of Research)
๏ "The current instability in the nursing
  workforce implies adverse impacts on the
  continuity and quality of patient care." Sung-
  Heui Bae, RN, MPH, PhD
Nationwide shortage of CNAs

๏ "Shortages of CNAs are estimated to be
  200,000 and anticipated to increase." KA
  Anderson, MSW, PhD
๏ In 2003 there were 52,000 vacant CNA
  positions nationwide-Robyn I. Stone, DrPH
True Healing

๏ Unresolved grief and the negative
  consequences can only be overcome by true
  healing
Where is the support for grief in
                 our professional lives?

๏ "Sad to say that many text books for NAs only
  address Stage of dying and how to do post
  mortem care-We don't have a lot of good
  training materials for NAs-so we borrow from
  other fields." Genevieve Gipson RN Med
  RNC, Director, National Network of Career
  Nursing Assistants
Cry for Change

๏ There is need for further empirical research
  focused on unresolved grief and the nurse
  assistant
๏ Require thorough CNA training programs
๏ Require employer provided routine access to
  grief counseling and support
๏ Maintain a support system for newly certified
  nurse assistants
Cry for change

๏ "We must protect, enhance, and continue to
  develop and educate staff in end-of-life issues.
   The support of a bereavement counselor,
  educational workshops, and spiritual
  enhancement is of the utmost importance for
  staff." Sally Wheeler, RN, Personal Touch
  Homecare-West Springfield, Massachusetts
Cry for change

๏ "Without proper support and death education,
  staff are on a quick road to burnout and
  turnover, and may be subject to issues related
  to grieving and depression" George Mercier,
  Administrator, Heritage Hall West Nursing
  Home-Agawam, Massachusetts
Cry for change

๏ "All nursing home staff must have an
  orientation that covers the stages of dying, the
  problems faced by those dying, bereavement
  issues for the family, and care for themselves."
  Donalyn Gross, PhD, LCSW, CMP, Creator of
  the Good Endings Program
Cry for change

๏ According to research findings by Lesley
  Spencer SRN BSc(HonS) PGDE MSc in 1994,
  there was a cry for change then and "All
  nurses [in the study] felt that more training
  about how to deal with thier own grief was
  needed."
With support we can move
                                forward

๏ With training and support it is possible to find
  peace
๏ "The healthy resolution of grief is associated
  with gains in self-efficacy, positive memories,
  and inner peace." KA Anderson, MSW, PhD
In Conclusion

๏ "I say there should be just as much prevention
  and support for the psychological aspect of the
  job as there are for the physical aspects."
          Leilani Y. Roseberry
Bibliography
Anderson, KA. “Grief Experiences of CNAs-Relationships with Burnout and Turnover.” Journal of Gerontological Nursing, Vol.
34, (1) 42-49, 2008

Anderson, KA and Joseph E Gaugler, “The Grief Experiences of Certified Nursing Assistants: Personal Growth and
Complicated Grief.” OMEGA, Vol. 54 (4) 301-318, 2006-2007

Bae, Sung-Heui, Barbara Mark and Bruce Fried. “Impact of Nursing Unit Turnover on Patient Outcomes in Hospitals.” Journal
of Nursing Scholarship, 42 (1), 40-49, 2010

Brosche, TA. “A Grief Team Within a Healthcare System.” Dimensions of Critical Care Nursing, Vol. 26 (1), 21-28, 2007

Brosche, TA. “Death, Dying, and the ICU Nurse.” Dimensions of Critical Care Nursing, Vol. 22 (4), 173-179, 2003

Frandsen, BM. “Burnout or compassion fatigue?” Long Term Living, 50-52, May 2010

G. Gipson (Personal Communication, October 31, 2010)

Gross, D. “Missing: Death education for nursing facilities.” Nursing Homes Magazines, 76-78, September 2004

Kupferman E. Grief Counselor, Expressive Counseling, http://www.expressivecounseling.com/

Shinbara, CG. “Grief Support for Nurses: An Assessment of Needs.” Dissertation, June 16, 2008

Spencer, L. “How do nurses deal with their own grief when a patient dies on an intensive care unit, and what help can be given
to enable them to overcome their grief effectively?” Journal of Advanced Nursing, Vol. 19, 1114-1150, 1994

Stone, RI, Steven L. Dawson and Mary Harahan. “Why Workforce Development Should Be Part of the Long-Term Care Quality
Debate.” Institute for the Future of Aging Services, 1-12, 2003

Zalaquett, CP and Richard J. Wood, eds. “Evaluating Stress.” A Book of Resources, 191-217, 1997
                                                                                                                  28

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A Cry For Change

  • 1. A Cry for Change Leilani Y. Roseberry
  • 3. Currently… ๏ Many nurse assistants are not thoroughly trained in end-of-life care beyond post-mortem care. ๏ Nurse assistants work in a field, whether it’s private homes, nursing homes or elsewhere, which lacks end-of-life training, grief counseling, and support. ๏ This can lead to Unresolved Grief
  • 4. The Nurse Assistant… ๏ Must be given the opportunity to process emotions surrounding end-of-life care and beyond. ๏ Currently there is limited professional support ๏ Support from co-workers is minimal ๏ The in-home nurse assistant works alone and experiences an even greater limitation on support because he or she works alone.
  • 5. Unresolved Grief… ๏ Causes ๏ Symptoms ๏ Negative Outcomes ๏ Impact on Patient Care ๏ Cry for Change
  • 6.
  • 7. Causes of Unresolved Grief… ๏ Absent grief ๏ Delayed grief ๏ Inhibited grief ๏ Conflicted grief ๏ Chronic grief ๏ Unanticipated grief ๏ Abbreviated grief
  • 8. Symptoms of unresolved grief ๏ Irritability ๏ Apathy ๏ Preoccupation with thoughts of the deceased ๏ Lack of acceptance of death
  • 9. Negative outcomes for the nurse assistant with unresolved grief ๏ Disenfranchised grief ๏ Compassion fatigue ๏ Moral distress ๏ Burnout
  • 10. Disenfranchised Grief ๏ "Disenfranchised grief is when your heart is grieving but you can't talk about or share your pain with others because it is considered unacceptable to others. It's when you're sad and miserable and the world doesn't think you should be, either because you're not entitled or because it isn't worth it." E. Kupferman ๏ This leads to building of a protective shield and depersonalization (negative, cynical attitudes and feelings about one's clients)
  • 11. Compassion Fatigue ๏ "It occurs as caregivers consistently give out more energy and compassion than they receive, and manifests itself as physical, emotional, and spiritual exhaustion." BM Frandsen ๏ "It can effect the ability to care for others." TA Brosche
  • 12. Moral Distress ๏ "The stress, anxiety, apathy, and burnout that can often occur from repeated loss and when personal values conflict with the environment." TA Brosche ๏ "Cumulative exposure to patient death can serve as a reminder of the nurses' own life losses and can lead to painful awareness of their own mortality." Chrisitina G. Shinbara, Grief Support for Nurses: An Assessment of Needs, 2008
  • 13. Burnout ๏ Job performance declines ๏ Health-related problems occur ๏ Depression sets in ๏ Possible career change leading to turnover
  • 14. The Impact on Patient Care ๏ Unresolved grief has negative outcomes for the patient.
  • 15. Impact of unresolved grief on patient care ๏ Nurse assistants objectify patients-They "view residents as room numbers rather than people." KA Anderson ๏ They refer to patients by condition ๏ They provide care in an impersonal, hasty mechanical manner. ๏ This manner of care causes patient and patient family distress
  • 16. Impact of unresolved grief on patient care ๏ The turnover in nurse assistants causes discontinuity of care which greatly upsets patients who rely significantly on their caregiver, especially patients receiving in- home care. ๏ This is also “Reported as a primary concern of nursing home residents and their families.”
  • 17. Nurse assistant turnover ๏ In 2007 the turnover was 65.6% ๏ In 2008 the US experienced a "turnover rate for Certified Nurse Assistants [that] was higher than other nursing staff, at 54%" (American Healthcare Association-Department of Research) ๏ "The current instability in the nursing workforce implies adverse impacts on the continuity and quality of patient care." Sung- Heui Bae, RN, MPH, PhD
  • 18. Nationwide shortage of CNAs ๏ "Shortages of CNAs are estimated to be 200,000 and anticipated to increase." KA Anderson, MSW, PhD ๏ In 2003 there were 52,000 vacant CNA positions nationwide-Robyn I. Stone, DrPH
  • 19. True Healing ๏ Unresolved grief and the negative consequences can only be overcome by true healing
  • 20. Where is the support for grief in our professional lives? ๏ "Sad to say that many text books for NAs only address Stage of dying and how to do post mortem care-We don't have a lot of good training materials for NAs-so we borrow from other fields." Genevieve Gipson RN Med RNC, Director, National Network of Career Nursing Assistants
  • 21. Cry for Change ๏ There is need for further empirical research focused on unresolved grief and the nurse assistant ๏ Require thorough CNA training programs ๏ Require employer provided routine access to grief counseling and support ๏ Maintain a support system for newly certified nurse assistants
  • 22. Cry for change ๏ "We must protect, enhance, and continue to develop and educate staff in end-of-life issues. The support of a bereavement counselor, educational workshops, and spiritual enhancement is of the utmost importance for staff." Sally Wheeler, RN, Personal Touch Homecare-West Springfield, Massachusetts
  • 23. Cry for change ๏ "Without proper support and death education, staff are on a quick road to burnout and turnover, and may be subject to issues related to grieving and depression" George Mercier, Administrator, Heritage Hall West Nursing Home-Agawam, Massachusetts
  • 24. Cry for change ๏ "All nursing home staff must have an orientation that covers the stages of dying, the problems faced by those dying, bereavement issues for the family, and care for themselves." Donalyn Gross, PhD, LCSW, CMP, Creator of the Good Endings Program
  • 25. Cry for change ๏ According to research findings by Lesley Spencer SRN BSc(HonS) PGDE MSc in 1994, there was a cry for change then and "All nurses [in the study] felt that more training about how to deal with thier own grief was needed."
  • 26. With support we can move forward ๏ With training and support it is possible to find peace ๏ "The healthy resolution of grief is associated with gains in self-efficacy, positive memories, and inner peace." KA Anderson, MSW, PhD
  • 27. In Conclusion ๏ "I say there should be just as much prevention and support for the psychological aspect of the job as there are for the physical aspects." Leilani Y. Roseberry
  • 28. Bibliography Anderson, KA. “Grief Experiences of CNAs-Relationships with Burnout and Turnover.” Journal of Gerontological Nursing, Vol. 34, (1) 42-49, 2008 Anderson, KA and Joseph E Gaugler, “The Grief Experiences of Certified Nursing Assistants: Personal Growth and Complicated Grief.” OMEGA, Vol. 54 (4) 301-318, 2006-2007 Bae, Sung-Heui, Barbara Mark and Bruce Fried. “Impact of Nursing Unit Turnover on Patient Outcomes in Hospitals.” Journal of Nursing Scholarship, 42 (1), 40-49, 2010 Brosche, TA. “A Grief Team Within a Healthcare System.” Dimensions of Critical Care Nursing, Vol. 26 (1), 21-28, 2007 Brosche, TA. “Death, Dying, and the ICU Nurse.” Dimensions of Critical Care Nursing, Vol. 22 (4), 173-179, 2003 Frandsen, BM. “Burnout or compassion fatigue?” Long Term Living, 50-52, May 2010 G. Gipson (Personal Communication, October 31, 2010) Gross, D. “Missing: Death education for nursing facilities.” Nursing Homes Magazines, 76-78, September 2004 Kupferman E. Grief Counselor, Expressive Counseling, http://www.expressivecounseling.com/ Shinbara, CG. “Grief Support for Nurses: An Assessment of Needs.” Dissertation, June 16, 2008 Spencer, L. “How do nurses deal with their own grief when a patient dies on an intensive care unit, and what help can be given to enable them to overcome their grief effectively?” Journal of Advanced Nursing, Vol. 19, 1114-1150, 1994 Stone, RI, Steven L. Dawson and Mary Harahan. “Why Workforce Development Should Be Part of the Long-Term Care Quality Debate.” Institute for the Future of Aging Services, 1-12, 2003 Zalaquett, CP and Richard J. Wood, eds. “Evaluating Stress.” A Book of Resources, 191-217, 1997 28

Editor's Notes

  1. Unresolved grief symptoms
  2. "Disenfranchised grief" is when your heart is grieving but you can't talk about or share your pain with others because it is considered unacceptable to others. It's when you're sad and miserable and the world doesn't think you should be, either because you're not "entitled" or because it isn't "worth it." (Kupferman E, Grief Counselor, Expressive Counseling, http://www.expressivecounseling.com /)
  3. a) Compassion fatigue i) “It occurs as caregivers consistently give out more energy and compassion than they receive, and manifests itself as physical, emotional, and spiritual exhaustion.” (Frandsen BM, Long-Term Living) ii) “It can effect the ability to care for others” (Brosche TA, Dimensions of Critical Care Nursing, Vol. 26/No. 1, p 21-28)
  4. a) Moral distress i) “The stress, anxiety, apathy, and burnout that can often occur from repeated loss and when personal values conflict with the environment.” (Brosche TA, Dimensions of Critical Care Nursing, Vol. 26/No. 1, p 21-28)
  5. Unresolved grief and the impact on patient care a) The objectification of patients “ View residents as room numbers rather than people” (Anderson KA, Journal of Gerontological Nursing, Vol. 34, No. 1, 2008, p 42-49) Impersonal care
  6. Unresolved grief and the impact on patient care a i) “’Reported as a primary concern of nursing home residents and their families’ (Edwards et al., 2003)” Anderson KA, Journal of Gerontological Nursing, Vol. 34, No. 1, 2008, p 42-49)