The Board orientation presentation contains more comprehensive information on the role of the chapter in the organization .

1. The Kidney Foundation of Canada Windsor & District BOARD DEVELOPMENT INFORMATION

3. Our Vision Our Mission

5. About Us…... In the 1960s, people with kidney failure had little hope of survival. Dialysis was considered an extraordinary treatment and restricted to very few. Transplantation was still experimental. It was during this time that a young Montreal architect, Morty Tarder, died from kidney disease. Confronted with their son’s death, the Tarder family vowed to start an organization that would raise money for research into this poorly understood disease. In 1964, The Kidney Disease Foundation of Canada, as it was known then, was created in Montreal. Today, the Kidney Foundation of Canada is the national health charity committed to kidney health and to improved lives for all people living with kidney disease. Our vision for the future is an enduring legacy of those dedicated volunteers who, 40 years ago, started out with a compelling cause and the resolve to make a difference.

6. About Us…... The 60s Only a handful of hospitals provide hemodialysis, treatments are strictly rationed and selection committees determine who will receive this life-saving therapy. The Foundation begins to advocate for greater awareness of kidney disease, more treatment centres and research into kidney transplantation. 1964: The death of young Montreal architect Morty Tarder from kidney disease sparks the creation of The Kidney Disease Foundation of Canada. 1965: The Women's Auxiliary of the Foundation organizes the first child-testing program to screen for kidney disease with the help of several doctors from the Royal Victoria Hospital in Montreal. 1968: The Foundation launches its first fundraiser, the "Trick or Treat" campaign, endorsed by Prime Minister Pierre Elliot Trudeau.

7. About Us…... The 70’s The Foundation becomes a vibrant, national health charity expanding to include Branches and Chapters across Canada. Money raised by the Foundation is used to provide seed funding for the establishment of organ retrieval systems and to support kidney-related research. 1974: Volunteers for the Foundation number more than 10,000 nationally. 1975: The Foundation awards a total of 11 research grants to renal investigators in various provinces. 1978: The Foundation breaks the million dollar mark through its various fundraising activities across the country. 1979: March is officially declared Kidney Month in Canada and the flagship door-to-door fundraiser, the March Drive, is launched.

8. About Us…... 1980s Many more kidney patients have access to treatment through the success of an alternative form of dialysis called peritoneal dialysis. The use of the anti-rejection drug cyclosporin leads to vast improvements in transplant success. The Foundation presses for more federal government involvement in promoting organ donation and the development of national standards for patient care. 1982: The first edition of the Patient Manual is published in English and French. 1984: Over 25,000 volunteers contribute their time and talents to support the work of the Foundation. 1985: 75 Research Grants are awarded by the Foundation to various renal investigators. 1985: The Foundation distributes over 1,000,000 wallet-sized cards to the public, explaining the warning signs of kidney disease. 1987: The province of British Columbia reverses its decision to decline payment for cyclosporine, an anti-rejection medication used by transplant recipients, thanks to Foundation advocacy initiatives. Meanwhile, further efforts convince the province of Quebec to have the organ donor consent form placed on the back of all newly issued provincial Medicare cards. 1988: The National Direct Mail program is launched, bringing in over one million dollars in gross revenues.

9. About Us…... 1990s The number of people receiving treatment for end-stage renal disease is growing as the population ages. Transplantation success, ironically, is creating longer waiting lists. The Foundation increases it efforts to ensure the best possible future for people living with kidney disease, through the delivery of its broad range of programs and various collaborative initiatives. 1994: Michel Perron, a kidney transplant recipient, successfully completes his journey to the North Pole, raising more than $260,000 for the Foundation. Two years later, he repeats his remarkable feat … this time, voyaging to the South Pole. 1996: The Foundation hosts the Links to Success Forum, bringing together representatives from government, healthcare institutions, the organ donation community, and staff and volunteers from the Foundation to develop solutions to the critical shortage of organs for transplantation. 1998: More than 85,000 volunteers are actively contributing to the mission of the Foundation. 1999: The Foundation hosts the Horizons 2000+ Conference, bringing together the country’s leading kidney scientists and other stakeholders to explore themes and make recommendations that will eventually form the basis of an enhanced national kidney research strategy.

10. About Us…... 2000+ As growing evidence points to the preventable nature of kidney disease among certain high-risk groups, the Foundation begins to explore an expanded role in early detection. 2002: The Foundation hosts the first National Forum on Chronic Kidney Disease, attended by a broad range of stakeholders, to highlight the key issues, increase knowledge and identify the action needed to reduce the burden of kidney disease over the next three years. 2003: In order to address the expanded constituency, which now includes populations at risk, and to guide and align its activities across the country, the Foundation reviews and renews its vision, mission and guiding principles. 2004: The Foundation’s Endowment Fund surpasses the $5 million mark, and its contribution to research since its creation in 1964 surpasses $70 million. 2005: A new brand identity for the Foundation is developed and launched: The Kidney Foundation of Canada – the foundation of kidney care. The new tagline reflects the broadening of the mission to embrace all aspects of kidney care – from earliest prevention to the treatment and care of individuals affected by kidney disease.

11. Programs Community Awareness For more information on programs visit www.kidney.on.ca

12. Research & Programs Every day in Canada , an average of 12 people are diagnosed with kidney failure. In many cases, this diagnosis changes a person's life forever. Adjusting to the demands of a chronic illness can be difficult and demanding. Fortunately, people are not alone as they learn to manage kidney disease. The Kidney Foundation has services and programs in place to help people adjust to the changes brought about by kidney disease, and to learn to lead fulfilling lives while managing the condition. The Kidney Foundation of Canada is the only national health charity committed to reducing the challenges of kidney disease. Our many programs and our investment in research helps us to reduce the burden of kidney disease in Canada. For more information on programs visit www.kidney.on.ca

13. For more information on programs visit www.kidney.on.ca Research Research has led to the development and perfection of dialysis treatment. It has made transplantation the treatment of choice for an increasing number of patients, and has led to the development of the anti-rejection drugs that have made kidney transplants so successful. All of these advances as well as countless others would never have been made were it not for thousands of hours and millions of dollars first being spent on basic and clinical medical research. Researchers are working towards improved means of managing kidney disease, and, ultimately, reducing the impact it has on Canadians.

14. For more information on programs visit www.kidney.on.ca Educational Material Living with Kidney Disease Manual - comprehensive information on treatment options, diet, exercise and lifestyle specifically developed for people with kidney failure - available in English, French, Chinese, Italian, Portuguese and Punjabi. The Kidney Foundation of Canada is committed to providing education about kidneys and kidney disease. Through information pamphlets, fact sheets and brochures on specific aspects of living with kidney disease.

16. For more information on programs visit www.kidney.on.ca Information & Referral Referrals to appropriate community agencies and resources. Information and referral services are intended to guide patients through the sometimes confusing and stressful process of adjusting to living with kidney disease.

17. For more information on programs visit www.kidney.on.ca The Peer Support Program Volunteers are renal patients or family members themselves who have adjusted to living with kidney disease, have participated in training programs, and have the desire to help others by sharing their experiences.

21. For more information on programs visit www.kidney.on.ca Living with Kidney Disease Patient & Family Symposium The “Living with Kidney Disease” Patient and Family Symposium provided opportunities to learn from, interact with, and ask questions of renal professionals and service providers, and to find out about other people’s experiences with renal disease. Whether they had been personally affected by kidney disease, or have someone they care about who is affected by kidney disease, we provided a casual, comfortable and friendly environment to explore a variety of different workshops and information sessions all related to living with kidney disease.

23. Living Green Ribbon A flagship event in Ontario during National Organ and Tissue Donor Awareness Week, the Living Green Ribbon is an annual photo shoot where people become part of a living tableau – a giant green ribbon - the internationally recognized symbol of organ and tissue donation. Photos from previous events have been used in posters, public service announcements and notecards. Organized in schools and public venues, the Living Green Ribbon brings together students, local dignitaries and community members to show their support for organ and tissue donation Transplant Recipients are wearing white. Volunteers from The Kidney Foundation, Hotel Dieu Grace Medical Staff, Other Organ Donation Awareness volunteers wear the signature green ponchos and hold signs indicating their consent. Firefighters and the Chief of Police outline the ribbon. For more information on awareness visit www.kidney.on.ca

25. Patient & Family Social Activities Patient & Family Christmas Party November Patient & Family Barbeque - July Subject to interest

26. Please contact erika@mdirect.net for more information on events Fund Development 3 rd Party Events

27. Fund Development & Events Please contact our office for more information on events Campaigns The March Drive Campaign Beginning in 1976, The March Drive Door to Door Campaign has raised more than $60 million dollars for the Foundation, and is our single biggest revenue generator. The March Drive offers a double opportunity; it enables the Foundation to raise much needed funds to support our mission and it provides a way for the Foundation to share the accomplishments through thousands of volunteers who support us from coast to coast. Other Campaigns Service Club & Associations Campaign U Plus 2 Campaign Individual/Corporate Campaigns In Honor/In Memorium Donations F2F Campaign

28. Fund Development & Events Please contact our office for more information on events Annual Pasta & Pizza Fest A Kidney Foundation's signature lunchtime fundraising event, held annually during the month of May. Showcasing an array of unique pasta and pizza dishes from approximately 25 of Windsor and Essex County's finest restaurants and banquet facilities, attending Pasta Fest is a great opportunity to enjoy an inexpensive all-you-can-eat pasta & pizza feast. The funds raised will go towards supporting the Kidney Foundation's mission. MAY

29. Fund Development & Events Please contact erika@mdirect for more information on events Beach Jam Volleyball Tournament Mixed teams of six take to the courts for a fun day of volleyball consisting of a minimum of four games per team, plus elimination rounds. Teams can register online. At registration, each player receives a designated amount of tickets to put in containers for a chance to win some handsome door prizes. Cash sponsorships are available at varying levels such as title sponsor or courtside. Teams or individual players also have the opportunity to raise pledges for additional revenue for The Kidney Foundation. JUNE

30. Fund Development & Events Please contact erika@mdirect for more information on events Festival Epicure Festival Epicure is an annual three-day celebration of food, wine and music every July at the Riverfront Festival Plaza. The event is organized by Windfest Productions with volunteer operations developed by The Kidney Foundation of Canada, Windsor & District Chapter. Every year the bar gets raised higher to outdo the previous years excitement. With its eclectic, high caliber approach to every facet of the festival, Festival Epicure continues to kick off the Windsor-Detroit region's summer festival season with a bang. JULY

31. Fund Development & Events Please contact erika@mdirect for more information on events Hub International Golf Classic This popular tournament is sold out every year and features a Texas scramble format round of golf with a shotgun start, registration prizes and competitive prizes, followed by a delicious dinner in the clubhouse. Competitions include: closest to the pin, longest drive, a putting contest, a chipping contest, and several hole-in-one chances to win fabulous prizes such as cash or a leased car. AUGUST

32. Fund Development & Events Please contact erika@mdirect for more information on events The “Give the Gift of Life” Walk Friends, family, coworkers and caring individuals band together to raise funds and walk for those suffering from kidney disease. This event was launched in 2001 as the “Be a Lifesaver” walk and was rebranded as the “Give the Gift of Life” walk in 2008 with an emphasis on organ donation awareness. This event is now being held at Colasanti’s Tropical Gardens and has been met with great success and continues to keep expanding. A 5km walk is followed by a social breakfast allowing participants to meet and greet with each other. Incentive prizes make this a fun family challenge and outing. SEPTEMBER

33. Fund Development & Events Please contact erika@mdirect for more information on events Third Party Events Our Foundation is very fortunate to have incredible support in our communities. Creative individuals from communities all over Essex County have generously supported our programs and services with unique fundraising ideas. You may have an idea like a small barbecue or a larger event like a bowl-a-thon or a High School Halloween Costume Walk. Whatever the idea there are staff at the Foundation who would be pleased to offer guidance. Third Party Events Windsor Homebulders Association Golf Tourney BMO Golf Tourney A Day for a Life Tourney Windsor Firefighters Chilifest Windsor Public Library Dress Down Days Jamieson Labs Casual Days Green Shield Casual Days Riverside HS Halloween Walk

34. For Volunteer Opportunities contact our office. Volunteer Engagement Volunteer Fairs & Materials Campaign Recruitment Event Recruitment Community Awareness Volunteer Recognition/Chapter Committee Office/Clerical

35. Operations

36. Windsor & District Chapter (our region) * Tilbury and Wheatley part of Kent county not shown

37. The Role of the Chapter Introduction Chapters or community entities are the points of contact between the Kidney Foundation of Canada (KFOC) and people affected by or at risk of kidney disease. Typically they are communities of people who may be organized around such activities as fundraising, organ donation, government relations, programs and services, and volunteer engagement dedicated to supporting Branch-wide strategies and plans.

38. The Role of the Chapter . Formation The Branch Board of Directors may, by resolution, establish Chapters of the Foundation in any community within the Branch. Each Chapter will be comprised of three (3) or more persons from the community grouped by: geography culture/ethnicity (e.g. Chinese Renal Association) issue (e.g. organ donation) activity (e.g. fundraising initiative,).

39. The Role of the Chapter . Jurisdiction A Chapter has the authority: To enroll members of the Foundation. To select a Board from among its voting members, current volunteers and/or new volunteers. To promote the presence of the Foundation within its Branch-designated communities.

40. The Role of the Chapter . Membership Qualifications : Any person resident in Canada who applies for membership in the Foundation and who subscribes to the objectives and purposes of the Foundation is eligible for membership in the Foundation. Voting Rights : A member registered with a Chapter has a right to notice of and a right to vote at the Ontario Branch AGM.

41. The Role of the Chapter . Membership Qualifications : Any person resident in Canada who applies for membership in the Foundation and who subscribes to the objectives and purposes of the Foundation is eligible for membership in the Foundation. Voting Rights : A member registered with a Chapter has a right to notice of and a right to vote at the Ontario Branch AGM.

42. The Chapter Board Roles and Responsibilities

43. The Chapter Board THE CHAPTER BOARD Role The Chapter Board is to function as an Operating Board and should have a succession plan in place. Composition The Chapter Board shall consist of not less than three (3) and not more than twenty (20) persons and may be composed as follows: President Immediate Past-President Vice-President (as needed) Members (at least 2) Tenure President One (1) year, renewed annually to a maximum of two (2) terms. (Exemptions must be approved at the Branch Board.) Vice-President One (1) year, renewed annually to a maximum of two (2) terms. Members One (1) year, renewed annually May serve up to a maximum of six (6) years and potentially two (2) more years, if re-elected annually (as per National By-laws)

44. The Chapter Board Responsibilities* The Chapter Board shall have the following duties: Chapter Work Program Over the course of the year, develop and monitor a Chapter Work Program in support of the Kidney Foundation’s mission, and aligned with the Branch Strategic Directions, outlining what the Chapter will do in such areas as fundraising, provision of programs and services to patients and their families, public education, advocacy, outreach to renal professionals, organ donation awareness, etc; Board Members may also be involved in the implementation of elements of the work plan. Develop and implement a volunteer engagement plan to support the Chapter’s activities. This includes recruitment, orientation, development, deployment, and recognition of volunteers. The Board will be aided in its volunteer engagement activities by the Branch’s Volunteer Development Network. There will be community presence on the Branch Board, but not all Chapter Presidents and other community entity leaders would sit automatically on the Branch Board. Chapters’ engagement in influencing Branch directions and policies is vital to the strength of the Kidney Foundation in Ontario.

45. The Chapter Board Meetings Frequency ; to be determined locally but the following is recommended: A minimum of at least three (3) times in each year to review work plans. Additional meetings may be required to conduct other business or Chapter Board orientation; Annually, the Chapter Board shall hold a meeting for all members and volunteers. Action steps recommended, formal minutes not required. Annual Meeting The Chapter shall hold a meeting annually prior to the Branch Annual General Meeting, timing to be determined by the Chapter Board. This meeting shall address a variety of functions such as: Reporting on the year’s activities; Recognizing supporters (volunteers, donors, sponsors, partners, etc.); Introducing the Board Members.

46. The Chapter Board Chapter Annual Meeting & Volunteer Recognition

47. The Chapter Board Membership Membership Roster - A Roster of all persons registered as members shall be kept current. Each Chapter shall send a copy of the Chapter Membership Roster to the Branch Office each year at least 60 days prior to the Branch Annual General meeting. Chapter Nominating Committee The Chapter Board shall appoint a Nominating Committee comprised of the President, , Immediate Chapter Past-president, other Chapter Board Members (as necessary) and a Senior Foundation Employee. The Committee shall identify and recruit potential members for the Chapter Board. These members and ratified by the Chapter Board and introduced at a Chapter Annual Meeting,

48. Chapter Structure (Direct Line Report) Effective 1999, Direct-Line Reporting was adapted by the Ontario Branch. The implementation of this new system meant that chapter boards no longer assumed the role of overseeing staffing and administrative details of the chapter (operational management), and instead took on the role of fundraising within the chapter.

49. Questions