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Global Dementia Legacy Event: Ms Inez Jabalpurwala, President and CEO, Brain Canada Foundation


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Session Two: Barriers to investment in research to find a disease modifying therapy or cure for dementia

Ms Inez Jabalpurwala, President and CEO, Brain Canada Foundation

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Global Dementia Legacy Event: Ms Inez Jabalpurwala, President and CEO, Brain Canada Foundation

  1. 1. Brain Canada 2014 Global Dementia Legacy Event London, UK, June 19th, 2014 Inez Jabalpurwala, President & CEO
  2. 2. Vision: To understand the brain, in health and illness, to improve lives and achieve societal impact. Mission: Brain Canada is achieving its vision by: Increasing the scale and scope of funding to accelerate the pace of Canadian brain research; Creating a collective commitment to brain research across the public, private and voluntary sectors; Delivering transformative, original and outstanding research programs. Brain Canada
  3. 3. An independent Board of Directors with distinguished members drawn from the business, science, and academic communities  Chair, Rupert Duchesne, Group Chief Executive, AIMIA Inc.  Honourary Chair, Hon. Michael H. Wilson Ongoing consultation with the research community in Canada and internationally and other stakeholders Research Policy Committee and Science Advisory Forum, with Canadian and international members (to replace Science Advisory Council)  Chair, Brian MacVicar, University of British Columbia Stakeholder consultations Strategic planning process Brain Canada – joining business and science leadership
  4. 4. On June 6, 2011, the Canadian government allocated up to $100 million in new funding over six years to establish the Canada Brain Research Fund “to support the very best Canadian neuroscience,” to be matched by $100 million in private and non-governmental sources, with funding stewarded by Brain Canada The Canada Brain Research Fund (CBRF) is a partnership between Brain Canada, the Government of Canada, and all those who share the commitment to advancing brain research and brain health; the Fund is intended to stimulate increased awareness and investment in brain research The Canada Brain Research Fund
  5. 5. The Canada Brain Research Fund A Public-Private Partnership to Support Canada’s World Class Brain Research
  6. 6. CBRF - expected outcomes A substantial increase in private investment in brain research in Canada An increase in the number of multidisciplinary, networked researchers and research projects in universities and academic health centres Training for the next generation of researchers A stronger neuroscience community through increased partnerships and collaborations, leading to A reduced individual and societal burden of brain disease
  7. 7. Highlights since launch of CBRF in May 2012 Closing on $45 million raised. These funds are being matched on a 1:1 basis by the Government of Canada to reach $90 million Includes largest private commitment to support Alzheimer prevention research - $25 million from Chagnon Family Includes largest private donation to support neurodevelopmental research (with a focus on Autism Spectrum Disorder and Fragile X syndrome) – $7.5 million from the Azrieli Foundation $35.5 million already allocated – this is new funding for brain research
  8. 8. Funded research – by theme
  9. 9. Brain Canada’s support of research on Alzheimer’s disease and dementia $25 million – partnership with the Chagnon Family for research on prevention interventions for Alzheimer Disease and Related Disorders $7.5 million – partnership in British Columbia to support projects focused on Alzheimer Disease research led by Principal Investigators in British Columbia $5.6 million – partnership with funding organizations in Alberta to support project(s) studying healthy brain aging and dementia in Alberta $1.5 million – partnership with The W. Garfield Weston Foundation and Krembil Foundation for early detection methods for brain amyloid in neurodegeneration ~$8 million – partnerships with universities, hospitals for support of national and regional infrastructure (under review)
  10. 10. What we have learned At more than $40 million (funds already allocated + donor and partner commitments), largest allocation from CBRF is expected to support Alzheimer’s disease/dementia research Public-private partnership means harnessing the power of philanthropy to direct Government funding Patient/family/donor voice key to size of investment and major focus on prevention
  11. 11. What’s next A more strategic approach: What is happening around the world—from silos to collaborations—risk of another type of fragmentation Where are the gaps and opportunities for a coordinated strategy for research AND investment which integrates the patient/family/donor voice; what outcomes do we want to achieve How can Canada connect to this
  12. 12. Our team For more information: