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AIDSTAR-One | CASE STUDY SERIES                                                                                                       October 2011

Different Needs But Equal Rights
Giving Voice to Transgender Communities through ASPIDH
in El Salvador


                                                      I
                                                         t is approaching midnight on the Alameda Roosevelt in San
                                                         Salvador. Women stand along the sidewalk dressed in mini-
                                                         skirts and high heels, waiting for their next client. These
                                                      women, however, are transgender women—once named Omar
                                                      and Guillermo, they now identify as Andrea and Patricia.1 Facing
                                                      extreme discrimination for transgressing traditional gender norms,
                                        Myra Betron




                                                      many transgender people have been thrown out of their homes
                                                      and schools, or simply cannot find a job. Sex work is one of the
                                                      very few ways they can make a living. On the streets transgender
ASPIDH staff giving a press
conference for journalists regarding                  people face even greater risk, including exposure to HIV, extreme
transgender rights.                                   violence, and even murder. In the first six months of 2010 alone,
                                                      five transgender individuals were murdered in the city.

                                                      Lissa, an outreach worker with the Solidarity Association to Promote
                                                      Human Development (ASPIDH), El Salvador’s only legally recognized
                                                      transgender organization, approaches Patricia and Andrea. She talks to
                                                      them about the dangers of HIV and other sexually transmitted infections
                                                      (STIs) and the importance of condom use and safe-sex behaviors, as
                                                      well as how to defend themselves against discrimination and abuse. She
                                                      then invites the women to ASPIDH’s offices downtown for a workshop on
                                                      HIV prevention and transgender rights later that week.

                                                      ASPIDH is a nongovernmental, nonprofit organization that aims to
                                                      improve the human development and quality of life of transgender
                                                      populations (including transvestites and transsexuals) in El Salvador.
                                                      To that end, ASPIDH conducts sensitization, education, and advocacy
By Myra Betron                                        activities to promote the human rights of transgender people and
                                                      contribute to the reduction of stigma and discrimination against them;
                                                      facilitate their access to employment, education, health, and safety; and
                                                      1
                                                          Names used are pseudonyms.

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reduce the prevalence of HIV and other STIs within      of additional vulnerabilities, including rape, physical
the transgender population.                             abuse, drug addiction, and extortion (Ministerio
                                                        de Salud, Programa Nacional de ITS/VIH/SIDA El
This case study describes ASPIDH’s efforts and          Salvador 2008).
challenges to achieving these objectives. Data
collection for this case study consisted of a series    Other barriers to health services can directly affect
of key informant interviews with ASPIDH staff and       HIV vulnerability by blocking access to sexual
volunteers, partner organizations, funders, and         and reproductive health information and care.
representatives of government, as well as focus         Discriminatory behavior by health providers and the
group discussions with ASPIDH’s beneficiaries           humiliation of being called a male name in front of
and participants.                                       other patients discourage many transgender women
                                                        from seeking health services. Outright denial of
                                                        service by providers is also commonplace. Finally,
Transgenders, Sexual                                    transgender women may make sex reassignment
                                                        their primary health concern, which may compete
Diversity, and HIV in                                   with HIV prevention or relegate prevention to a
El Salvador                                             secondary health need.

The transgender community is one of the populations     Until very recently there has been little HIV
most vulnerable to HIV in El Salvador. According        programming in El Salvador specifically for the
to the Central American Sexual Behavioral               transgender population. Instead, transgender
Surveillance Survey (ECVC), HIV prevalence among        women have been historically categorized as MSM,
the transgender population in the capital city of       rendering them an “invisible” group whose special
San Salvador is 19.7 percent, compared to the           needs and risks are neglected. An evaluation
gay and heterosexual/bisexual populations, where        of El Salvador’s National Strategic Plan for the
HIV prevalence is 10.6 percent and 8.8 percent,         Prevention, Attention and Control of HIV/AIDS
respectively (Ministerio de Salud, Programa Nacional    and STIs (2005–2010) by the U.S. Agency for
de ITS/VIH/SIDA El Salvador 2008). The Joint U.N.       International Development’s (USAID’s) Program
Programme on HIV/AIDS (UNAIDS) estimates that           for Strengthening the Central American Response
HIV prevalence among all Salvadorans aged 15 to         to HIV/AIDS (PASCA) project found that the plan
49 is 0.8 percent (UNAIDS 2011).                        lacks a strategy specifically for transgender people,
                                                        gender equality, and sexual diversity (USAID PASCA
Discrimination, which limits access to employment,      2010). Moreover, the government invests most of
housing, health services, education, information, and   its funds in prevention of vertical transmission and
other resources, contributes to the vulnerability of    prevention in the general population, whereas few
transgender people. As a result, many enter into sex    resources are directed to most-at-risk populations.
work as the only means of economic livelihood they      In 2006 and 2007, for example, government, donors,
can find. The ECVC found that more than half of men     and nongovernmental organizations (NGOs) spent
who have sex with men (MSM) who self-identify as        just U.S.$30,000 on HIV prevention programs with
transsexuals or transvestites were selling sex at the   transgender people out of a total budget of over
time of the study. Sex work can bring a whole host      U.S.$16 million (Ministerio de Salud 2007).




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Advances in the Policy Environment                                                                       BOX 1. PRESIDENTIAL
Over the past two years, however, a series of policies and political                                     DECREE NO. 56
changes in the government have created a highly favorable political
                                                                                                         Key articles that reflect and
environment for HIV prevention and human rights work within El
                                                                                                         summarize points relevant to
Salvador’s transgender population. President Mauricio Funes, with
                                                                                                         LGBT groups.
strong support from the first lady, Dr. Vanda Pinhato, has promoted
respect for sexual diversity, particularly by supporting the passage of                                  Article 1: Prohibits all forms of
Presidential Decree No. 56. This decree stipulates that there shall be                                   discrimination based on gender
no discrimination in any executive agencies, which includes ministries,                                  identity and/or sexual orientation
the police, the military, and the social security office. In practical                                   in any activities of the Executive
terms, Decree 56 has initiated training of government personnel on                                       Office.
the human rights of lesbian, gay, bisexual, and transgender (LGBT)                                       Article 3: Directs the institutions
groups (see Box 1).                                                                                      under the Executive Office to
                                                                                                         conduct an exhaustive review of
Similarly, in 2009, the Ministry of Public Health and Social Assistance                                  policies, programs, and projects
passed a decree that guarantees access to health services and                                            and institute any corrective
respect for the human rights of MSM, transgender people, and lesbians                                    measure necessary to ensure
(UNAIDS 2009). As a result of this order and Presidential Decree No.                                     that they do not directly or
56, the National HIV and AIDS Program is training health providers and                                   indirectly discriminate based
the police on the Law and Regulations for the Prevention and Control                                     on gender identity or sexual
of Infections Provoked by the Human Immunodeficiency Virus,2 known                                       orientation.
as the HIV Law, and on stigma and discrimination and sexual diversity
                                                                                                         Article 4: Guarantees the
(Nieto 2010).
                                                                                                         creation of a culture of respect
The current representatives of the National HIV and AIDS Program are                                     and tolerance within the
also reported to have a more consultative and collaborative approach                                     institutions under the Executive
to working with civil society than the previous administration, which                                    Office so they conduct their
has allowed the transgender movement to have a greater voice in                                          activities irrespective of
identifying their HIV-related needs. Currently being developed, the                                      gender identity and/or sexual
National Strategic Plan 2011–2015 will include components specifically                                   orientation.
for transgender people. Civil society organizations working in HIV,                                      Article 6: Establishes that no
including ASPIDH, now have the opportunity to provide input into the plan                                statutory provision, agreement,
in monthly meetings with the National HIV and AIDS Program. Likewise,                                    order, instruction, resolution,
the Global Fund to Fight AIDS, Tuberculosis and Malaria’s (GFATM’s)                                      or circular would be developed
activities in El Salvador will include strategies specifically for transgender                           that may generate or otherwise
people; until 2009, there were no GFATM indicators or guidelines for                                     encourage discrimination based
transgender people (Miranda 2010).                                                                       on gender identity or sexual
                                                                                                         orientation.
2
 This law provides regulations on the prevention, control, and care for HIV as well as establishes the
obligations and rights of people living with HIV.




                                  Different Needs But Equal Rights: Giving Voice to Transgender Communities through ASPIDH in El Salvador      3
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                                      Finally, donors have also increased attention to the transgender
  PEPFAR GENDER                       population in El Salvador, due largely to advocacy by ASPIDH as
  STRATEGIES                          well as the results of the most recent ECVC, which demonstrated
  ADDRESSED BY ASPIDH                 that transgender people are the population most vulnerable to HIV.
                                      UNAIDS and the U.N. Development Programme (UNDP), for example,
  •	Increasing gender equity in HIV   are supporting ASPIDH and two smaller transgender groups in the
    programs and services             area of organizational development, whereas the Pan American Health
  •	Increasing legal protection       Organization has supported ASPIDH’s advocacy events for the public
  •	Addressing harmful gender         and key stakeholders.
    norms and behaviors
  •	Reducing violence and
    coercion.                         The History of ASPIDH
                                      ASPIDH began to organize in 1996 under the leadership of Monica
                                      Hernandez (a transgender sex worker) and Edwin Aguilar (a transvestite3
                                      sex worker who had been working for Entre Amigos) and became
                                      a leading organization working with gay, bisexual, and transgender
                                      populations to prevent HIV and advance human rights. Tired of the
                                      discrimination, abuse, and murders of fellow transgender persons,
                                      Hernandez and Aguilar identified the need to organize a movement and
                                      services especially for this population. The organization’s staff includes
                                      eight transgender persons and one transvestite, four of whom work as
                                      volunteers; the membership includes over 200 transgender people.

                                      In 1999, ASPIDH tried to achieve legal status as a formal NGO, but the
                                      Ministry of Governorship rejected its application in an outright act of
                                      discrimination based on gender identity. Subsequently, Hernandez sued
                                      the Ministry for violating the right to free association and right to equality.
                                      Yet it was not until December 2009, after the case lay dormant for many
                                      years, that the Supreme Court decided in favor of Hernandez. During
                                      that period, in 2006, the organization received support from USAID’s
                                      PASCA project to attain legal status, which it officially received in June
                                      2008. To date, ASPIDH is the only legally recognized transgender
                                      organization in El Salvador.

                                      Over the past two years, ASPIDH has received increasing donor
                                      support, although its funding for 2010 was still limited to U.S.$28,000,
                                      which it received from international NGOs. Most notably, in 2009,
                                      the Pan American Social Marketing Organization (PASMO) and the

                                      3
                                       Transgender indicates all people who live, or desire to live, a large part of their adult life in the
                                      role and dress of the gender group that is considered opposite of their sex as designated at birth.
                                      A transvestite is a person who wears clothing of the opposite natal sex and does not intend to
                                      undergo sex reassignment treatment (Whittle 2002).



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                                                                           as given it the opportunity for future growth. UNDP
                                                                           and amfAR have provided technical assistance in
                                                                           project management, monitoring and evaluation,
                                                                           and financial management; PASMO has provided
                                                                           technical methodology used by ASPIDH in their
                                                                           HIV prevention outreach; and REDLACTRANS,
                                                                           a regional network of transgender organizations
                                                                           in Latin America, and the Association of Christian
                                                                           Youth of El Salvador have provided significant
                                                                           technical guidance on and support for advocacy.


                                                             Myra Betron
Users of ASPIDH services.                                                  How ASPIDH Implements
                                                                           the PEPFAR Gender
American Foundation for AIDS Research (amfAR)
began funding to ASPIDH to adapt PASMO’s HIV                               Strategies
prevention methodology, Viviendo la Vida (Living
Life More Fully), for MSM. This methodology                                Formed initially as an advocacy organization seeking
includes dissemination of risk reduction information,                      to promote the rights of transgender people, ASPIDH
skills building to increase HIV preventive behavior,                       is especially good at public campaigns aimed at
distribution of male condoms and lubricants, and                           increasing recognition of transgender people and
referrals to HIV services. To adapt the methodology                        their rights. This is done primarily through marches;
for transgender persons, ASPIDH, with the help of an                       the distribution of information, education, and
external consultant, included information and training                     communication materials; press conferences; legal
on health issues related to hormone and silicone                           petitions; and direct meetings with government
injections for those working on sex reassignment.                          personnel. Within this work, specific U.S. President’s
                                                                           Emergency Plan for AIDS Relief (PEPFAR) gender
Support from amfAR has facilitated the                                     strategies and approaches include the following:
establishment of a drop-in center, which offers a
social space and support groups for the transgender                        •	 Increasing gender equity in HIV programs
and MSM communities. On average, the center                                   and services: ASPIDH conducts advocacy
receives about 30 transgender people a day                                    with the government and directly with health
who often come in for male condoms but also to                                providers to ensure that they provide services to
participate in HIV prevention training that introduces                        transgender people, who suffer discrimination by
concepts of gender, gender equality, and human                                health providers and are often turned away from
rights. In addition, amfAR has supported workshops                            hospitals. ASPIDH also sensitizes health clinics to
at the drop-in center using the Viviendo la Vida                              understand the importance of using transgender
methodology.                                                                  women’s preferred names so that they do not feel
                                                                              humiliated by being called a male name when
ASPIDH has also received significant technical                                they identify as female. Finally, ASPIDH’s drop-
assistance from various organizations, which has                              in services include the accompaniment of clients
allowed it to grow significantly in recent years as well                      to health centers with which ASPIDH has an


                            Different Needs But Equal Rights: Giving Voice to Transgender Communities through ASPIDH in El Salvador   5
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  established relationship and more transgender-              the psychologist provides services on a volunteer
  friendly services.                                          basis and is not available consistently.

•	 Increasing legal protection: ASPIDH
   accompanies program users to the Human
   Rights Protection Office to file complaints when         What Works Well
   service providers—especially health providers
   and the police—violate their rights. ASPIDH              Peer education and outreach: ASPIDH is
   also makes presentations at Ministry of Public           made up entirely of transgender staff and volunteers
   Health-sponsored workshops for the police on             who conduct HIV prevention outreach using a
   human rights, the HIV Law, and discrimination            face-to-face approach, which involves talking to
   against most-at-risk-populations. Finally,               transgender individuals about HIV on the streets
   ASPIDH’s major objective is to advocate for              at night where they are typically found selling sex.
   the passage of a gender identity law that would          This is a very effective strategy for reaching the
   allow individuals to change their legal names so         transgender population, who identify with and listen
   that transgender people can use the female- or           to other transgender people. Moreover, program
   male-identified name that matches their gender           participants commonly say that what they appreciate
   identity.                                                most about ASPIDH’s activities is the opportunity
                                                            to learn about sexual health. Indeed, because of
•	 Addressing harmful gender norms and                      ASPIDH’s active outreach and promotion of their
   behaviors: Through its ongoing and persistent            services, transgender individuals go to the ASPIDH
   advocacy, ASPIDH is working to increase the              center for workshops on HIV or for HIV testing
   recognition of a range of gender identities, including   days. Partners working in HIV note that—given their
   transgender people and transvestites. For example,       own experiences with low turnout for events they
   in May 2010, ASPIDH organized El Salvador’s              sponsor—ASPIDH’s ability to attract clients is an
   first-ever transgender pride march, which ASPIDH         impressive accomplishment.
   estimates was attended by approximately 300
   individuals, many more than expected. ASPIDH             Helping transgender people with their
   also hosted a public launch of the movie                 gender identity: Program participants also said
   Translatina, which portrays the discrimination and       that ASPIDH workshops helped them learn about
   vulnerabilities faced by transgender women. These        their own gender identity as well as broader issues
   events attracted significant media attention and         in sexual diversity. For many, these workshops were
   discussion. In addition, the leadership of ASPIDH        the first time they realized that their gender identity
   often holds press conferences or talks with the          can be categorized as “transgender” and how that
   media about transgender issues to bring them to          gender category is defined. Several participants
   broader public attention.                                said that they appreciated the simple fact that they

•	 Reducing violence and coercion: ASPIDH                     ASPIDH has raised the profile of
   encourages friends and clients who experience
   violence to file complaints with the Human Rights
                                                              transgender people so that, little by
   Protection Office. To help transgender individuals         little, they are being accepted by society,
   cope with violence and discrimination, ASPIDH              accessing services, and achieving equal rights
   facilitates support groups and, occasionally,              as citizens.
   offers the services of a psychologist. However,

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could identify with others they perceived to be                     ASPIDH’s activities go beyond public marches and
like them. For HIV prevention, self-identification                  campaigns to include more informal advocacy in
and group identification can be very important.                     meetings with donors and government representatives
As experts have noted, transgender people, or                       to request financial and in-kind support for their HIV
any other population, will not participate in HIV                   prevention and human rights work.
prevention activities if they do not identify with the
population that the activities are targeting.                       Practicing “lateral advocacy”: ASPIDH also
                                                                    reaches out laterally to organizations that may not be
Self-empowerment of volunteers and                                  seen as traditional partners. For example, ASPIDH
members: Increased understanding of their                           provides technical assistance to the conservative
gender identity, as well as participating in advocacy               evangelical church El Renuevo so that the church
and building the skills to lead prevention activities,              can integrate the topic of sexual diversity into its HIV
has empowered the staff, volunteers, and members                    education activities. This lateral advocacy is also
of ASPIDH to leave sex work to seek other work,                     important for changing gender norms on a wider
stop abusing drugs and alcohol, and go back to                      scale. For example, El Renuevo’s partnership with
school. Volunteers in particular say they feel more                 ASPIDH has contributed to the church’s greater
empowered and “useful” as a result of their work with               acceptance and understanding of all its members,
ASPIDH. Many program participants said that they                    regardless of sexual orientation or gender identity.
now have a better awareness of their rights. When
those rights are violated, they file complaints with the            A deeply committed staff and members:
Human Rights Protection Office.                                     Several partners and donors identified the tireless
                                                                    commitment of ASPIDH members as one of the
Personalized attention and support to                               organization’s greatest strengths. ASPIDH staff and
ensure gender-equitable access to health                            members have been critical to achieving increased
services: Program participants expressed their                      attention to the human rights and HIV prevention needs
appreciation for ASPIDH’s personalized attention and                of transgender people. For many years, ASPIDH’s
support in accompanying them to health services                     leadership organized and conducted advocacy
as well as for filing complaints with the prosecutor’s              campaigns and sought funding, all without external
or human rights offices for violation of their rights. A            support. Even today, five of the nine members of the
number of program participants also noted that other                ASPIDH staff work as volunteers. Others work full-time
organizations do not provide this type of support                   but only receive part-time pay. The staff and volunteers
and that, without it, they may not otherwise access                 often pay for materials out of their own pockets. This
services. In this way, ASPIDH is increasing gender                  personal commitment has been and will continue to be
equity in access to services.                                       key to the organization’s long-term sustainability.

Advocacy to increase the rights of
transgender people: Both partners and donors                        Challenges
noted that perhaps ASPIDH’s greatest strength is its
ability to effectively advocate for the rights and needs            Weak institutional capacity: As a relatively
of transgender people. As the first legally recognized              young organization, ASPIDH still has many areas
transgender organization in El Salvador, ASPIDH has                 to be strengthened. Key informants most commonly
raised the profile of transgender people so that, little            noted ASPIDH’s weak institutional capacity, including
by little, they are being accepted by society, accessing            financial management, administration, proposal
services, and achieving equal rights as citizens.                   development, and diversification in leadership

                          Different Needs But Equal Rights: Giving Voice to Transgender Communities through ASPIDH in El Salvador   7
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capacity among staff to share the burden of work.          Fierce competition for limited resources:
Skills in proposal development are crucial to the          Given the new political and donor environment
ongoing sustainability of ASPIDH, which currently          that increasingly recognizes the importance of
operates on a very limited budget, the majority of         supporting transgender people, there is more
which will not be renewed. Most staff and volunteers       competition for the scant resources available
barely have had a high school education, let alone         to serve El Salvador’s LGBT communities. Key
formal training in public health or HIV. An advisor        informants noted that in-fighting over resources
to the organization noted that ASPIDH likely needs         among these groups has made cooperation
further technical assistance and capacity building,        difficult at times. This situation might jeopardize
especially in HIV prevention.                              strategic alliances that could benefit the work with
                                                           transgender populations.
Lack of quality control or evaluation:
To date, ASPIDH has collected some information             Backlash from the public: Major social
supporting the monitoring of its work such as              change is often accompanied by opposition.
service statistics. However, the impact of ASPIDH’s        ASPIDH’s work to ensure that transgender people
work has not been evaluated and there is little            have equal rights represents social change of great
technical oversight of ASPIDH’s HIV work. Although         magnitude for Salvadoran society. The backlash
monitoring and evaluation guidance has been                ASPIDH has faced includes threats, grenades
provided by amfAR and Population Services                  sometimes thrown into its office building, and insults
International, transgender people have unique              by public officials. The Catholic Church and media
vulnerabilities to HIV, which require further research     have attacked the wider LGBT movement, claiming
to subsequently inform interventions that will respond     it is promoting the right to marriage to unleash
to those vulnerabilities.                                  criticism of the current government and bring about
                                                           its demise. These threats to the lives of ASPIDH
Incomplete understanding of gender-                        staff and members as well as to the political viability
related vulnerabilities of transgender                     of the current government make advances in the
people: HIV prevention work among transgender              transgender movement precarious.
people is fairly nascent; there has been little research
or documentation of this population. Although
ASPIDH addresses health issues related to sex              Recommendations
reassignment therapy, there may be other special
vulnerabilities of transgender people that have            Consider the full range of gender
been missed, such as mental health issues related          identities in the target population when
to gender dysphoria and an understanding of how            designing programs and messages: Not
embracing female gender norms can also increase            all transgender people identify themselves as
HIV vulnerability. One important limitation that a         MSM or gay and, thus, may not feel HIV prevention
few key informants mentioned regarding ASPIDH’s            campaigns are relevant to them. For many years,
approach to changing gender norms is that it is largely    campaigns have targeted MSM as a high-risk
limited to issues of gender identity and does not          group for HIV and have included male-to-female
address the disadvantages of women in society. This        transgender individuals in this group. As a result, in
limited approach could increase the risk for HIV. For      settings with concentrated epidemics, transgender
example, one focus group participant noted that some       people may feel excluded from HIV activities and
transgender women like to experience violence so           may not perceive themselves to be a group at risk
that they “feel more like a woman.”                        for HIV.

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                                                                  in making their gender identity public, transgender
   We have learned along the way that the                         persons can be wary of others outside of their
   messages actually for the gay population                       population. HIV programmers can endanger the
                                                                  transgender community by bringing unwanted or
   are not the same messages for the
                                                                  unexpected attention to them from the general
   transgender population or for the bisexual                     public. ASPIDH’s careful and effective strategies of
   population.                                                    reaching transgender people in their neighborhoods
                           –UNDP representative                   and places of work are worthy of replication.

                                                                  Network and collaborate with partners
                                                                  both nationally and internationally:
Continue to research the health needs
                                                                  ASPIDH’s leaders emerged from and participated
of transgender people: To fully consider and
                                                                  in MSM organizations and activities in El Salvador,
include the HIV prevention needs of transgender
                                                                  such as Entre Amigos, which helped them gain
people, further research is necessary to understand
                                                                  the knowledge and experience to establish
the interplay and effects of the many vulnerabilities
                                                                  ASPIDH. They also established relationships with
they face. These include mental health problems
                                                                  international organizations and advocacy groups,
from gender dysphoria resulting from internal stigma,
                                                                  such as USAID PASCA and REDLACTRANS,
extreme stigma, discrimination, and violence from
                                                                  which have helped them advocate for their rights
others, as well as lack of education and limited
                                                                  in the higher reaches of government. However,
livelihood options.
                                                                  managing these relationships can be challenging
Use a comprehensive approach, including                           at times. Key informants pointed to the need for
gender needs of women, not just the                               better coordination among MSM and transgender
issue of gender identity: Many transgender                        civil society organizations so that they can prioritize
women identify as women or aspire to be women,                    their demands from government and donors,
which includes dressing like women and assuming                   as well as divide up the work to more efficiently
female gender roles, as well as surgery and other                 achieve their objectives.
medical procedures to take on female physical
attributes. As such, transgender women may be
perceived as women and treated like women, and                    Future Programming
therefore face the same vulnerabilities that women
may face. HIV prevention strategies for transgender               ASPIDH has developed a Strategic Plan 2010–2013
women should also integrate key strategies for HIV                to guide its work in the next few years. Recent
prevention for women, including empowerment                       ASPIDH activities are ongoing to ensure stability
to negotiate condom use, interventions to reduce                  and continuity.
risk and occurrence of sexual and intimate partner
violence, and livelihood programs.                                At the policy level, the plan establishes the
                                                                  development of a bill of gender identity that
Build the capacity of transgender people                          guarantees the rights of transgender people and the
to lead HIV prevention and outreach                               creation of an advocacy and communication strategy
efforts within their own community:                               that increases the visibility of the organization. To
ASPIDH’s experience has demonstrated that                         further strengthen the organization, the plan includes
transgender people are best positioned to reach                   activities to build staff and volunteer capacities,
out to their own population. Given the risk involved              establish an executive committee, improve

                        Different Needs But Equal Rights: Giving Voice to Transgender Communities through ASPIDH in El Salvador   9
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financial and administrative internal operations,        Presidencia de la República de El Salvador. Decreto
and strengthen networks with other organizations         56 [Decree 56]. El Salvador: Presidencia de la
working in human rights and gender equality.             República de El Salvador.

In the future, implementers envision activities that     U.S. Agency for International Development’s
will provide integral support to the transgender         Program for Strengthening the Central American
population, including education development; access      Response to HIV/AIDS. 2010. Resumen de
to health services; greater knowledge about gender,      Evaluación del Plan estratégico Nacional Para la
HIV, and human rights; and support to survivors of       Prevención, atención y Control del VIH-SIDA e ITS,
violence. g                                              2005-2010 (Summary Evaluation of the Strategic
                                                         Plan for the Prevention and Control of HIV/AIDS and
                                                         STIs). Washington, DC: U.S. Agency for International
REFERENCES                                               Development.

Joint U.N. Programme on HIV/AIDS. 2009. El               Whittle, S. 2002. Respect and Equality: Transsexual
Salvador: Ministerial Decree to Reduce Homophobia        and Transgender Rights. London, England:
in Health Services. Available at www.unaids.org/en/      Cavendish Publishing Limited.
resources/presscentre/featurestories/2009/april/2009
0403ministerialdecreesalvador/ (accessed July 2010)
                                                         ACKNOWLEDGMENTS
Joint U.N. Programme on HIV/AIDS. 2011. “El
Salvador HIV and AIDS Estimates (2009).” UNAIDS.         The author would like to thank the leadership of
Available at www.unaids.org/en/regionscountries/         ASPIDH, in particular Edwin Hernandez and Monica
countries/elsalvador/ (accessed August 2011)             Linares, for organizing the data collection visit and
                                                         ASPIDH staff for accompanying her to meetings.
Ministerio de Salud. 2007. Medición del Gasto en         Meg Galas of Population Services International in El
SIDA (Measuring the Costs of AIDS). San Salvador,        Salvador was also very helpful in organizing logistics
El Salvador: Ministerio de Salud.                        and lending the time of Edwin Hernandez, who is
                                                         also her staff member. Additional thanks goes to the
Ministerio de Salud, Programa Nacional de ITS/VIH/       PEPFAR Gender Technical Working Group for its
SIDA El Salvador. 2008. Encuesta Centroamericana         support and careful review of this case study. Finally,
de Vigilancia de Comportamiento Sexual y                 a warm thank you goes to all of ASPIDH’s staff and
Prevalencia de VIH/ITS en Poblaciones Vulnerables        volunteers for their commitment and courage in
(ECVC) El Salvador (Central American Survey on           advocating for transgender rights and services.
Sexual Behavior and AIDS Prevention for Vulnerable
Populations, El Salvador). San Salvador, El
Salvador: Ministerio de Salud.                           RECOMMENDED CITATION
Miranda, Celina (Coordinator for HIV and Tuberculosis,   Betron, Myra. 2011. Different Needs but Equal
GFATM/UNDP). Interview, July 26, 2010.                   Rights: Giving Voice to Transgender Communities
                                                         through ASPIDH in El Salvador. Case Study Series.
Nieto, Ana Isabel (Coordinator, National HIV/AIDS        Arlington, VA: USAID’s AIDS Support and Technical
Program). Interview, July 29, 2010.                      Assistance Resources, AIDSTAR-One, Task Order 1.



10	AIDSTAR-One | October 2011
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Empowering Transgender Communities in El Salvador

  • 1. AIDSTAR-One | CASE STUDY SERIES October 2011 Different Needs But Equal Rights Giving Voice to Transgender Communities through ASPIDH in El Salvador I t is approaching midnight on the Alameda Roosevelt in San Salvador. Women stand along the sidewalk dressed in mini- skirts and high heels, waiting for their next client. These women, however, are transgender women—once named Omar and Guillermo, they now identify as Andrea and Patricia.1 Facing extreme discrimination for transgressing traditional gender norms, Myra Betron many transgender people have been thrown out of their homes and schools, or simply cannot find a job. Sex work is one of the very few ways they can make a living. On the streets transgender ASPIDH staff giving a press conference for journalists regarding people face even greater risk, including exposure to HIV, extreme transgender rights. violence, and even murder. In the first six months of 2010 alone, five transgender individuals were murdered in the city. Lissa, an outreach worker with the Solidarity Association to Promote Human Development (ASPIDH), El Salvador’s only legally recognized transgender organization, approaches Patricia and Andrea. She talks to them about the dangers of HIV and other sexually transmitted infections (STIs) and the importance of condom use and safe-sex behaviors, as well as how to defend themselves against discrimination and abuse. She then invites the women to ASPIDH’s offices downtown for a workshop on HIV prevention and transgender rights later that week. ASPIDH is a nongovernmental, nonprofit organization that aims to improve the human development and quality of life of transgender populations (including transvestites and transsexuals) in El Salvador. To that end, ASPIDH conducts sensitization, education, and advocacy By Myra Betron activities to promote the human rights of transgender people and contribute to the reduction of stigma and discrimination against them; facilitate their access to employment, education, health, and safety; and 1 Names used are pseudonyms. AIDSTAR-One John Snow, Inc. 1616 North Ft. Myer Drive, 11th Floor This publication was produced by the AIDS Support and Technical Assistance Resources Arlington, VA 22209 USA (AIDSTAR-One) Project, Sector 1, Task Order 1. Tel.: +1 703-528-7474 USAID Contract # GHH-I-00-07-00059-00, funded January 31, 2008. Fax: +1 703-528-7480 Disclaimer: The author’s views expressed in this publication do not necessarily reflect the views of the United States www.aidstar-one.com Agency for International Development or the United States Government.
  • 2. AIDSTAR-One | CASE STUDY SERIES reduce the prevalence of HIV and other STIs within of additional vulnerabilities, including rape, physical the transgender population. abuse, drug addiction, and extortion (Ministerio de Salud, Programa Nacional de ITS/VIH/SIDA El This case study describes ASPIDH’s efforts and Salvador 2008). challenges to achieving these objectives. Data collection for this case study consisted of a series Other barriers to health services can directly affect of key informant interviews with ASPIDH staff and HIV vulnerability by blocking access to sexual volunteers, partner organizations, funders, and and reproductive health information and care. representatives of government, as well as focus Discriminatory behavior by health providers and the group discussions with ASPIDH’s beneficiaries humiliation of being called a male name in front of and participants. other patients discourage many transgender women from seeking health services. Outright denial of service by providers is also commonplace. Finally, Transgenders, Sexual transgender women may make sex reassignment their primary health concern, which may compete Diversity, and HIV in with HIV prevention or relegate prevention to a El Salvador secondary health need. The transgender community is one of the populations Until very recently there has been little HIV most vulnerable to HIV in El Salvador. According programming in El Salvador specifically for the to the Central American Sexual Behavioral transgender population. Instead, transgender Surveillance Survey (ECVC), HIV prevalence among women have been historically categorized as MSM, the transgender population in the capital city of rendering them an “invisible” group whose special San Salvador is 19.7 percent, compared to the needs and risks are neglected. An evaluation gay and heterosexual/bisexual populations, where of El Salvador’s National Strategic Plan for the HIV prevalence is 10.6 percent and 8.8 percent, Prevention, Attention and Control of HIV/AIDS respectively (Ministerio de Salud, Programa Nacional and STIs (2005–2010) by the U.S. Agency for de ITS/VIH/SIDA El Salvador 2008). The Joint U.N. International Development’s (USAID’s) Program Programme on HIV/AIDS (UNAIDS) estimates that for Strengthening the Central American Response HIV prevalence among all Salvadorans aged 15 to to HIV/AIDS (PASCA) project found that the plan 49 is 0.8 percent (UNAIDS 2011). lacks a strategy specifically for transgender people, gender equality, and sexual diversity (USAID PASCA Discrimination, which limits access to employment, 2010). Moreover, the government invests most of housing, health services, education, information, and its funds in prevention of vertical transmission and other resources, contributes to the vulnerability of prevention in the general population, whereas few transgender people. As a result, many enter into sex resources are directed to most-at-risk populations. work as the only means of economic livelihood they In 2006 and 2007, for example, government, donors, can find. The ECVC found that more than half of men and nongovernmental organizations (NGOs) spent who have sex with men (MSM) who self-identify as just U.S.$30,000 on HIV prevention programs with transsexuals or transvestites were selling sex at the transgender people out of a total budget of over time of the study. Sex work can bring a whole host U.S.$16 million (Ministerio de Salud 2007). 2 AIDSTAR-One | October 2011
  • 3. AIDSTAR-One | CASE STUDY SERIES Advances in the Policy Environment BOX 1. PRESIDENTIAL Over the past two years, however, a series of policies and political DECREE NO. 56 changes in the government have created a highly favorable political Key articles that reflect and environment for HIV prevention and human rights work within El summarize points relevant to Salvador’s transgender population. President Mauricio Funes, with LGBT groups. strong support from the first lady, Dr. Vanda Pinhato, has promoted respect for sexual diversity, particularly by supporting the passage of Article 1: Prohibits all forms of Presidential Decree No. 56. This decree stipulates that there shall be discrimination based on gender no discrimination in any executive agencies, which includes ministries, identity and/or sexual orientation the police, the military, and the social security office. In practical in any activities of the Executive terms, Decree 56 has initiated training of government personnel on Office. the human rights of lesbian, gay, bisexual, and transgender (LGBT) Article 3: Directs the institutions groups (see Box 1). under the Executive Office to conduct an exhaustive review of Similarly, in 2009, the Ministry of Public Health and Social Assistance policies, programs, and projects passed a decree that guarantees access to health services and and institute any corrective respect for the human rights of MSM, transgender people, and lesbians measure necessary to ensure (UNAIDS 2009). As a result of this order and Presidential Decree No. that they do not directly or 56, the National HIV and AIDS Program is training health providers and indirectly discriminate based the police on the Law and Regulations for the Prevention and Control on gender identity or sexual of Infections Provoked by the Human Immunodeficiency Virus,2 known orientation. as the HIV Law, and on stigma and discrimination and sexual diversity Article 4: Guarantees the (Nieto 2010). creation of a culture of respect The current representatives of the National HIV and AIDS Program are and tolerance within the also reported to have a more consultative and collaborative approach institutions under the Executive to working with civil society than the previous administration, which Office so they conduct their has allowed the transgender movement to have a greater voice in activities irrespective of identifying their HIV-related needs. Currently being developed, the gender identity and/or sexual National Strategic Plan 2011–2015 will include components specifically orientation. for transgender people. Civil society organizations working in HIV, Article 6: Establishes that no including ASPIDH, now have the opportunity to provide input into the plan statutory provision, agreement, in monthly meetings with the National HIV and AIDS Program. Likewise, order, instruction, resolution, the Global Fund to Fight AIDS, Tuberculosis and Malaria’s (GFATM’s) or circular would be developed activities in El Salvador will include strategies specifically for transgender that may generate or otherwise people; until 2009, there were no GFATM indicators or guidelines for encourage discrimination based transgender people (Miranda 2010). on gender identity or sexual orientation. 2 This law provides regulations on the prevention, control, and care for HIV as well as establishes the obligations and rights of people living with HIV. Different Needs But Equal Rights: Giving Voice to Transgender Communities through ASPIDH in El Salvador 3
  • 4. AIDSTAR-One | CASE STUDY SERIES Finally, donors have also increased attention to the transgender PEPFAR GENDER population in El Salvador, due largely to advocacy by ASPIDH as STRATEGIES well as the results of the most recent ECVC, which demonstrated ADDRESSED BY ASPIDH that transgender people are the population most vulnerable to HIV. UNAIDS and the U.N. Development Programme (UNDP), for example, • Increasing gender equity in HIV are supporting ASPIDH and two smaller transgender groups in the programs and services area of organizational development, whereas the Pan American Health • Increasing legal protection Organization has supported ASPIDH’s advocacy events for the public • Addressing harmful gender and key stakeholders. norms and behaviors • Reducing violence and coercion. The History of ASPIDH ASPIDH began to organize in 1996 under the leadership of Monica Hernandez (a transgender sex worker) and Edwin Aguilar (a transvestite3 sex worker who had been working for Entre Amigos) and became a leading organization working with gay, bisexual, and transgender populations to prevent HIV and advance human rights. Tired of the discrimination, abuse, and murders of fellow transgender persons, Hernandez and Aguilar identified the need to organize a movement and services especially for this population. The organization’s staff includes eight transgender persons and one transvestite, four of whom work as volunteers; the membership includes over 200 transgender people. In 1999, ASPIDH tried to achieve legal status as a formal NGO, but the Ministry of Governorship rejected its application in an outright act of discrimination based on gender identity. Subsequently, Hernandez sued the Ministry for violating the right to free association and right to equality. Yet it was not until December 2009, after the case lay dormant for many years, that the Supreme Court decided in favor of Hernandez. During that period, in 2006, the organization received support from USAID’s PASCA project to attain legal status, which it officially received in June 2008. To date, ASPIDH is the only legally recognized transgender organization in El Salvador. Over the past two years, ASPIDH has received increasing donor support, although its funding for 2010 was still limited to U.S.$28,000, which it received from international NGOs. Most notably, in 2009, the Pan American Social Marketing Organization (PASMO) and the 3 Transgender indicates all people who live, or desire to live, a large part of their adult life in the role and dress of the gender group that is considered opposite of their sex as designated at birth. A transvestite is a person who wears clothing of the opposite natal sex and does not intend to undergo sex reassignment treatment (Whittle 2002). 4 AIDSTAR-One | October 2011
  • 5. AIDSTAR-One | CASE STUDY SERIES as given it the opportunity for future growth. UNDP and amfAR have provided technical assistance in project management, monitoring and evaluation, and financial management; PASMO has provided technical methodology used by ASPIDH in their HIV prevention outreach; and REDLACTRANS, a regional network of transgender organizations in Latin America, and the Association of Christian Youth of El Salvador have provided significant technical guidance on and support for advocacy. Myra Betron Users of ASPIDH services. How ASPIDH Implements the PEPFAR Gender American Foundation for AIDS Research (amfAR) began funding to ASPIDH to adapt PASMO’s HIV Strategies prevention methodology, Viviendo la Vida (Living Life More Fully), for MSM. This methodology Formed initially as an advocacy organization seeking includes dissemination of risk reduction information, to promote the rights of transgender people, ASPIDH skills building to increase HIV preventive behavior, is especially good at public campaigns aimed at distribution of male condoms and lubricants, and increasing recognition of transgender people and referrals to HIV services. To adapt the methodology their rights. This is done primarily through marches; for transgender persons, ASPIDH, with the help of an the distribution of information, education, and external consultant, included information and training communication materials; press conferences; legal on health issues related to hormone and silicone petitions; and direct meetings with government injections for those working on sex reassignment. personnel. Within this work, specific U.S. President’s Emergency Plan for AIDS Relief (PEPFAR) gender Support from amfAR has facilitated the strategies and approaches include the following: establishment of a drop-in center, which offers a social space and support groups for the transgender • Increasing gender equity in HIV programs and MSM communities. On average, the center and services: ASPIDH conducts advocacy receives about 30 transgender people a day with the government and directly with health who often come in for male condoms but also to providers to ensure that they provide services to participate in HIV prevention training that introduces transgender people, who suffer discrimination by concepts of gender, gender equality, and human health providers and are often turned away from rights. In addition, amfAR has supported workshops hospitals. ASPIDH also sensitizes health clinics to at the drop-in center using the Viviendo la Vida understand the importance of using transgender methodology. women’s preferred names so that they do not feel humiliated by being called a male name when ASPIDH has also received significant technical they identify as female. Finally, ASPIDH’s drop- assistance from various organizations, which has in services include the accompaniment of clients allowed it to grow significantly in recent years as well to health centers with which ASPIDH has an Different Needs But Equal Rights: Giving Voice to Transgender Communities through ASPIDH in El Salvador 5
  • 6. AIDSTAR-One | CASE STUDY SERIES established relationship and more transgender- the psychologist provides services on a volunteer friendly services. basis and is not available consistently. • Increasing legal protection: ASPIDH accompanies program users to the Human Rights Protection Office to file complaints when What Works Well service providers—especially health providers and the police—violate their rights. ASPIDH Peer education and outreach: ASPIDH is also makes presentations at Ministry of Public made up entirely of transgender staff and volunteers Health-sponsored workshops for the police on who conduct HIV prevention outreach using a human rights, the HIV Law, and discrimination face-to-face approach, which involves talking to against most-at-risk-populations. Finally, transgender individuals about HIV on the streets ASPIDH’s major objective is to advocate for at night where they are typically found selling sex. the passage of a gender identity law that would This is a very effective strategy for reaching the allow individuals to change their legal names so transgender population, who identify with and listen that transgender people can use the female- or to other transgender people. Moreover, program male-identified name that matches their gender participants commonly say that what they appreciate identity. most about ASPIDH’s activities is the opportunity to learn about sexual health. Indeed, because of • Addressing harmful gender norms and ASPIDH’s active outreach and promotion of their behaviors: Through its ongoing and persistent services, transgender individuals go to the ASPIDH advocacy, ASPIDH is working to increase the center for workshops on HIV or for HIV testing recognition of a range of gender identities, including days. Partners working in HIV note that—given their transgender people and transvestites. For example, own experiences with low turnout for events they in May 2010, ASPIDH organized El Salvador’s sponsor—ASPIDH’s ability to attract clients is an first-ever transgender pride march, which ASPIDH impressive accomplishment. estimates was attended by approximately 300 individuals, many more than expected. ASPIDH Helping transgender people with their also hosted a public launch of the movie gender identity: Program participants also said Translatina, which portrays the discrimination and that ASPIDH workshops helped them learn about vulnerabilities faced by transgender women. These their own gender identity as well as broader issues events attracted significant media attention and in sexual diversity. For many, these workshops were discussion. In addition, the leadership of ASPIDH the first time they realized that their gender identity often holds press conferences or talks with the can be categorized as “transgender” and how that media about transgender issues to bring them to gender category is defined. Several participants broader public attention. said that they appreciated the simple fact that they • Reducing violence and coercion: ASPIDH ASPIDH has raised the profile of encourages friends and clients who experience violence to file complaints with the Human Rights transgender people so that, little by Protection Office. To help transgender individuals little, they are being accepted by society, cope with violence and discrimination, ASPIDH accessing services, and achieving equal rights facilitates support groups and, occasionally, as citizens. offers the services of a psychologist. However, 6 AIDSTAR-One | October 2011
  • 7. AIDSTAR-One | CASE STUDY SERIES could identify with others they perceived to be ASPIDH’s activities go beyond public marches and like them. For HIV prevention, self-identification campaigns to include more informal advocacy in and group identification can be very important. meetings with donors and government representatives As experts have noted, transgender people, or to request financial and in-kind support for their HIV any other population, will not participate in HIV prevention and human rights work. prevention activities if they do not identify with the population that the activities are targeting. Practicing “lateral advocacy”: ASPIDH also reaches out laterally to organizations that may not be Self-empowerment of volunteers and seen as traditional partners. For example, ASPIDH members: Increased understanding of their provides technical assistance to the conservative gender identity, as well as participating in advocacy evangelical church El Renuevo so that the church and building the skills to lead prevention activities, can integrate the topic of sexual diversity into its HIV has empowered the staff, volunteers, and members education activities. This lateral advocacy is also of ASPIDH to leave sex work to seek other work, important for changing gender norms on a wider stop abusing drugs and alcohol, and go back to scale. For example, El Renuevo’s partnership with school. Volunteers in particular say they feel more ASPIDH has contributed to the church’s greater empowered and “useful” as a result of their work with acceptance and understanding of all its members, ASPIDH. Many program participants said that they regardless of sexual orientation or gender identity. now have a better awareness of their rights. When those rights are violated, they file complaints with the A deeply committed staff and members: Human Rights Protection Office. Several partners and donors identified the tireless commitment of ASPIDH members as one of the Personalized attention and support to organization’s greatest strengths. ASPIDH staff and ensure gender-equitable access to health members have been critical to achieving increased services: Program participants expressed their attention to the human rights and HIV prevention needs appreciation for ASPIDH’s personalized attention and of transgender people. For many years, ASPIDH’s support in accompanying them to health services leadership organized and conducted advocacy as well as for filing complaints with the prosecutor’s campaigns and sought funding, all without external or human rights offices for violation of their rights. A support. Even today, five of the nine members of the number of program participants also noted that other ASPIDH staff work as volunteers. Others work full-time organizations do not provide this type of support but only receive part-time pay. The staff and volunteers and that, without it, they may not otherwise access often pay for materials out of their own pockets. This services. In this way, ASPIDH is increasing gender personal commitment has been and will continue to be equity in access to services. key to the organization’s long-term sustainability. Advocacy to increase the rights of transgender people: Both partners and donors Challenges noted that perhaps ASPIDH’s greatest strength is its ability to effectively advocate for the rights and needs Weak institutional capacity: As a relatively of transgender people. As the first legally recognized young organization, ASPIDH still has many areas transgender organization in El Salvador, ASPIDH has to be strengthened. Key informants most commonly raised the profile of transgender people so that, little noted ASPIDH’s weak institutional capacity, including by little, they are being accepted by society, accessing financial management, administration, proposal services, and achieving equal rights as citizens. development, and diversification in leadership Different Needs But Equal Rights: Giving Voice to Transgender Communities through ASPIDH in El Salvador 7
  • 8. AIDSTAR-One | CASE STUDY SERIES capacity among staff to share the burden of work. Fierce competition for limited resources: Skills in proposal development are crucial to the Given the new political and donor environment ongoing sustainability of ASPIDH, which currently that increasingly recognizes the importance of operates on a very limited budget, the majority of supporting transgender people, there is more which will not be renewed. Most staff and volunteers competition for the scant resources available barely have had a high school education, let alone to serve El Salvador’s LGBT communities. Key formal training in public health or HIV. An advisor informants noted that in-fighting over resources to the organization noted that ASPIDH likely needs among these groups has made cooperation further technical assistance and capacity building, difficult at times. This situation might jeopardize especially in HIV prevention. strategic alliances that could benefit the work with transgender populations. Lack of quality control or evaluation: To date, ASPIDH has collected some information Backlash from the public: Major social supporting the monitoring of its work such as change is often accompanied by opposition. service statistics. However, the impact of ASPIDH’s ASPIDH’s work to ensure that transgender people work has not been evaluated and there is little have equal rights represents social change of great technical oversight of ASPIDH’s HIV work. Although magnitude for Salvadoran society. The backlash monitoring and evaluation guidance has been ASPIDH has faced includes threats, grenades provided by amfAR and Population Services sometimes thrown into its office building, and insults International, transgender people have unique by public officials. The Catholic Church and media vulnerabilities to HIV, which require further research have attacked the wider LGBT movement, claiming to subsequently inform interventions that will respond it is promoting the right to marriage to unleash to those vulnerabilities. criticism of the current government and bring about its demise. These threats to the lives of ASPIDH Incomplete understanding of gender- staff and members as well as to the political viability related vulnerabilities of transgender of the current government make advances in the people: HIV prevention work among transgender transgender movement precarious. people is fairly nascent; there has been little research or documentation of this population. Although ASPIDH addresses health issues related to sex Recommendations reassignment therapy, there may be other special vulnerabilities of transgender people that have Consider the full range of gender been missed, such as mental health issues related identities in the target population when to gender dysphoria and an understanding of how designing programs and messages: Not embracing female gender norms can also increase all transgender people identify themselves as HIV vulnerability. One important limitation that a MSM or gay and, thus, may not feel HIV prevention few key informants mentioned regarding ASPIDH’s campaigns are relevant to them. For many years, approach to changing gender norms is that it is largely campaigns have targeted MSM as a high-risk limited to issues of gender identity and does not group for HIV and have included male-to-female address the disadvantages of women in society. This transgender individuals in this group. As a result, in limited approach could increase the risk for HIV. For settings with concentrated epidemics, transgender example, one focus group participant noted that some people may feel excluded from HIV activities and transgender women like to experience violence so may not perceive themselves to be a group at risk that they “feel more like a woman.” for HIV. 8 AIDSTAR-One | October 2011
  • 9. AIDSTAR-One | CASE STUDY SERIES in making their gender identity public, transgender We have learned along the way that the persons can be wary of others outside of their messages actually for the gay population population. HIV programmers can endanger the transgender community by bringing unwanted or are not the same messages for the unexpected attention to them from the general transgender population or for the bisexual public. ASPIDH’s careful and effective strategies of population. reaching transgender people in their neighborhoods –UNDP representative and places of work are worthy of replication. Network and collaborate with partners both nationally and internationally: Continue to research the health needs ASPIDH’s leaders emerged from and participated of transgender people: To fully consider and in MSM organizations and activities in El Salvador, include the HIV prevention needs of transgender such as Entre Amigos, which helped them gain people, further research is necessary to understand the knowledge and experience to establish the interplay and effects of the many vulnerabilities ASPIDH. They also established relationships with they face. These include mental health problems international organizations and advocacy groups, from gender dysphoria resulting from internal stigma, such as USAID PASCA and REDLACTRANS, extreme stigma, discrimination, and violence from which have helped them advocate for their rights others, as well as lack of education and limited in the higher reaches of government. However, livelihood options. managing these relationships can be challenging Use a comprehensive approach, including at times. Key informants pointed to the need for gender needs of women, not just the better coordination among MSM and transgender issue of gender identity: Many transgender civil society organizations so that they can prioritize women identify as women or aspire to be women, their demands from government and donors, which includes dressing like women and assuming as well as divide up the work to more efficiently female gender roles, as well as surgery and other achieve their objectives. medical procedures to take on female physical attributes. As such, transgender women may be perceived as women and treated like women, and Future Programming therefore face the same vulnerabilities that women may face. HIV prevention strategies for transgender ASPIDH has developed a Strategic Plan 2010–2013 women should also integrate key strategies for HIV to guide its work in the next few years. Recent prevention for women, including empowerment ASPIDH activities are ongoing to ensure stability to negotiate condom use, interventions to reduce and continuity. risk and occurrence of sexual and intimate partner violence, and livelihood programs. At the policy level, the plan establishes the development of a bill of gender identity that Build the capacity of transgender people guarantees the rights of transgender people and the to lead HIV prevention and outreach creation of an advocacy and communication strategy efforts within their own community: that increases the visibility of the organization. To ASPIDH’s experience has demonstrated that further strengthen the organization, the plan includes transgender people are best positioned to reach activities to build staff and volunteer capacities, out to their own population. Given the risk involved establish an executive committee, improve Different Needs But Equal Rights: Giving Voice to Transgender Communities through ASPIDH in El Salvador 9
  • 10. AIDSTAR-One | CASE STUDY SERIES financial and administrative internal operations, Presidencia de la República de El Salvador. Decreto and strengthen networks with other organizations 56 [Decree 56]. El Salvador: Presidencia de la working in human rights and gender equality. República de El Salvador. In the future, implementers envision activities that U.S. Agency for International Development’s will provide integral support to the transgender Program for Strengthening the Central American population, including education development; access Response to HIV/AIDS. 2010. Resumen de to health services; greater knowledge about gender, Evaluación del Plan estratégico Nacional Para la HIV, and human rights; and support to survivors of Prevención, atención y Control del VIH-SIDA e ITS, violence. g 2005-2010 (Summary Evaluation of the Strategic Plan for the Prevention and Control of HIV/AIDS and STIs). Washington, DC: U.S. Agency for International REFERENCES Development. Joint U.N. Programme on HIV/AIDS. 2009. El Whittle, S. 2002. Respect and Equality: Transsexual Salvador: Ministerial Decree to Reduce Homophobia and Transgender Rights. London, England: in Health Services. Available at www.unaids.org/en/ Cavendish Publishing Limited. resources/presscentre/featurestories/2009/april/2009 0403ministerialdecreesalvador/ (accessed July 2010) ACKNOWLEDGMENTS Joint U.N. Programme on HIV/AIDS. 2011. “El Salvador HIV and AIDS Estimates (2009).” UNAIDS. The author would like to thank the leadership of Available at www.unaids.org/en/regionscountries/ ASPIDH, in particular Edwin Hernandez and Monica countries/elsalvador/ (accessed August 2011) Linares, for organizing the data collection visit and ASPIDH staff for accompanying her to meetings. Ministerio de Salud. 2007. Medición del Gasto en Meg Galas of Population Services International in El SIDA (Measuring the Costs of AIDS). San Salvador, Salvador was also very helpful in organizing logistics El Salvador: Ministerio de Salud. and lending the time of Edwin Hernandez, who is also her staff member. Additional thanks goes to the Ministerio de Salud, Programa Nacional de ITS/VIH/ PEPFAR Gender Technical Working Group for its SIDA El Salvador. 2008. Encuesta Centroamericana support and careful review of this case study. Finally, de Vigilancia de Comportamiento Sexual y a warm thank you goes to all of ASPIDH’s staff and Prevalencia de VIH/ITS en Poblaciones Vulnerables volunteers for their commitment and courage in (ECVC) El Salvador (Central American Survey on advocating for transgender rights and services. Sexual Behavior and AIDS Prevention for Vulnerable Populations, El Salvador). San Salvador, El Salvador: Ministerio de Salud. RECOMMENDED CITATION Miranda, Celina (Coordinator for HIV and Tuberculosis, Betron, Myra. 2011. Different Needs but Equal GFATM/UNDP). Interview, July 26, 2010. Rights: Giving Voice to Transgender Communities through ASPIDH in El Salvador. Case Study Series. Nieto, Ana Isabel (Coordinator, National HIV/AIDS Arlington, VA: USAID’s AIDS Support and Technical Program). Interview, July 29, 2010. Assistance Resources, AIDSTAR-One, Task Order 1. 10 AIDSTAR-One | October 2011
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