20151028 presentation project healthdata.be to College van Geneesheren-Directeurs - Collège des directeurs médicaux. More info available @ http://www.healthdata.be
Guest lecture Programme in the Methods of Health Economics (Abteilung für Ges...healthdata be
Guest lecture Programme in the Methods of Health Economics (Abteilung für Gesundheitsökonomie, Zentrum für Public Health an der Medizinische Universität Wien)
Digital Health in Context - Insights from Denmark, USA, China, South Korea an...Till Winkler
Slides from the workshops on Digital Health in Context at Copenhagen Business School (CBS) June 28, and the Hamburg Center of Health Economics (CHE) July 4, 2018.
Kanta services for healthcare: Prescription service and Patient Data RepositoryTHL
Kanta services for healthcare: Prescription service and Patient Data Repository.Outi Lehtokari, Development Manager, Finnish Institute for Health and Welfare
Konstantin Hyppönen, Chief Architect for Kanta Services, Kela (Social Insurance Institution, Finland). Webinar on Kanta Services 30 October 2019
National Kanta Services Support Clinical Work in FinlandTHL
National Kanta Services Support Clinical Work in Finland. Vesa Jormanainen, Finnish Institute for Health and Welfare Webinar on Kanta Services
30 October 2019
Guest lecture Programme in the Methods of Health Economics (Abteilung für Ges...healthdata be
Guest lecture Programme in the Methods of Health Economics (Abteilung für Gesundheitsökonomie, Zentrum für Public Health an der Medizinische Universität Wien)
Digital Health in Context - Insights from Denmark, USA, China, South Korea an...Till Winkler
Slides from the workshops on Digital Health in Context at Copenhagen Business School (CBS) June 28, and the Hamburg Center of Health Economics (CHE) July 4, 2018.
Kanta services for healthcare: Prescription service and Patient Data RepositoryTHL
Kanta services for healthcare: Prescription service and Patient Data Repository.Outi Lehtokari, Development Manager, Finnish Institute for Health and Welfare
Konstantin Hyppönen, Chief Architect for Kanta Services, Kela (Social Insurance Institution, Finland). Webinar on Kanta Services 30 October 2019
National Kanta Services Support Clinical Work in FinlandTHL
National Kanta Services Support Clinical Work in Finland. Vesa Jormanainen, Finnish Institute for Health and Welfare Webinar on Kanta Services
30 October 2019
Disruptive Innovation in Health Care: A Path to High Quality, Affordable Care?The Commonwealth Fund
Talk delivered by Eric Schneider, MD, MSc, FACP to the Anthem Advisory Board on April 11, 2018. Dr. Schneider discussed the challenges facing the U.S. health care system and the potential for disruptive innovation.
An eHealth suite for the support of Primary Health Care.
Athena Triantafyllidi, IT Director at IDIKA explains the developments behind the eGov organisation for Social Security and what led them to be considered one of the leading European examples in implementing a digital reference for all those living in Greece.
Twitter: @idikagr
Larry Wolf, Kindred’s Health Information Technology Strategist, addressed the importance of information technology as one component for improving care at the Alliance for Home Health Quality and Innovation Symposium.
PADDI - A business intelligence and data quality platform for Piedmont healthGiuliana Bonello
This presentation highlights CSI experience on the PADDI Program. The project is the integration of all data belonging to health management systems into a Enterprise Data Warehouse. This integration is the result of the implementation of data cleansing services and decisional systems and it enables regional health authorities to appropriately supervise health policies within their territories
Healthcare related data is 20 times more valuable to hackers than financial data. Therefore, measurements need to be taken to safeguard privacy straight from the point of design of systems, procedures and data exchanges that involve the use of medical information.
In my presentation about the safety of healthcare data I explore steps that can be taken to safeguard information within the UK's National Health Service and other private healthcare providers.
Meaningful Use Audits and healthcare compliance course offered to Physicians and healthcare professionals to explain the basics of Meaningful Use and HITECH audits. Course is general in nature as many Physicians and organizations are in different stages of meaningful use.
Aguai Solutions brings deep expertise in Digital Healthcare leveraging technologies across Web, Cloud, Mobile and AI.
Patients are increasingly searching for good care givers, care centers. Need for Healthcare Ecosystem to go Digital is even greater today than ever before
Healthcare Outcomes Conference, RCSI, Feb 2018ipposi
IPPOSI CEO Derick Mitchell delivered this presentation entitled 'Outcomes of relevance to patients' at the first National Healthcare Outcomes conference in the Royal College of Surgeons, Ireland in February 2018
Important Information about the merger: https://trks.it/OLKFh
This combination will help transform the American healthcare delivery system by providing patient-centered, coordinated care at home and across the continuum of care.
The combination of Kindred and Gentiva will further enhance
Kindred’s industry leading position as the Nation’s premier post-acute and rehabilitation services provider and make Kindred at Home the largest and most geographically diversified home health and hospice organization in the United States.
Disruptive Innovation in Health Care: A Path to High Quality, Affordable Care?The Commonwealth Fund
Talk delivered by Eric Schneider, MD, MSc, FACP to the Anthem Advisory Board on April 11, 2018. Dr. Schneider discussed the challenges facing the U.S. health care system and the potential for disruptive innovation.
An eHealth suite for the support of Primary Health Care.
Athena Triantafyllidi, IT Director at IDIKA explains the developments behind the eGov organisation for Social Security and what led them to be considered one of the leading European examples in implementing a digital reference for all those living in Greece.
Twitter: @idikagr
Larry Wolf, Kindred’s Health Information Technology Strategist, addressed the importance of information technology as one component for improving care at the Alliance for Home Health Quality and Innovation Symposium.
PADDI - A business intelligence and data quality platform for Piedmont healthGiuliana Bonello
This presentation highlights CSI experience on the PADDI Program. The project is the integration of all data belonging to health management systems into a Enterprise Data Warehouse. This integration is the result of the implementation of data cleansing services and decisional systems and it enables regional health authorities to appropriately supervise health policies within their territories
Healthcare related data is 20 times more valuable to hackers than financial data. Therefore, measurements need to be taken to safeguard privacy straight from the point of design of systems, procedures and data exchanges that involve the use of medical information.
In my presentation about the safety of healthcare data I explore steps that can be taken to safeguard information within the UK's National Health Service and other private healthcare providers.
Meaningful Use Audits and healthcare compliance course offered to Physicians and healthcare professionals to explain the basics of Meaningful Use and HITECH audits. Course is general in nature as many Physicians and organizations are in different stages of meaningful use.
Aguai Solutions brings deep expertise in Digital Healthcare leveraging technologies across Web, Cloud, Mobile and AI.
Patients are increasingly searching for good care givers, care centers. Need for Healthcare Ecosystem to go Digital is even greater today than ever before
Healthcare Outcomes Conference, RCSI, Feb 2018ipposi
IPPOSI CEO Derick Mitchell delivered this presentation entitled 'Outcomes of relevance to patients' at the first National Healthcare Outcomes conference in the Royal College of Surgeons, Ireland in February 2018
Important Information about the merger: https://trks.it/OLKFh
This combination will help transform the American healthcare delivery system by providing patient-centered, coordinated care at home and across the continuum of care.
The combination of Kindred and Gentiva will further enhance
Kindred’s industry leading position as the Nation’s premier post-acute and rehabilitation services provider and make Kindred at Home the largest and most geographically diversified home health and hospice organization in the United States.
HIMMSEurope2019 - Anytime anywhere, for everyone healthRachel De Sain
Codesain CEO Rachel de Sain presented at the 2019 HIMMSEurope conference held in Helsinki in June. She shared information about the Australian Digital Health Journey and reminded us that we need to ensure the investment in transforming the health sector through digital to achieve anytime anywhere health ensures its for everyone. We can and should also look at this transformation as an opportunity to not only achieve the quadruple aim, but extend that to fuel innovation and new growth for the economy.
Presentation at the Parallel Session 1.5
Choosing and using standards for interoperable information systems at the PRINCE MAHIDOL AWARD CONFERENCE 2010, Bangkok, Jan 28-30
eHealth Practice in Europe: where do we stand?chronaki
eHealth as the use of Information and communication technologies in the practice of health care comprises Electronic health records, Healthcare information exchange cross-jurisdictions, Personal health records, Telehealth, telemedicine and remote monitoring.
There are several efforts to reflect and measure the practice of eHealth including efforts by the OECD and WHO, but in general there is little reported sharing of health data particularly with patients. Specific barriers frequently mentioned are supporting policies and coherent widely implemented standards.
The presentation discusses relevant efforts and programs supported by the European Commission such as the eHealth DSI, eStandards, ASSESS CT, and openMedicine aiming at large scale eHealth adoption It calls for engagement of European Society, its national societies, and its members.
Health IT actions in japansese public sector 2013-2017Yasuji Suda
summary of 5 years healthcare it related programs in Japanese public sector using text analysis to visualize relation among reports describing healthcare IT.
Chapter 6 Health Information ExchangeRobert Hoyt MDWilliam .docxrobertad6
Chapter 6: Health Information Exchange
Robert Hoyt MD
William Hersh MD
After viewing the presentation, viewers should be able to:
Identify the need for and benefits of health information exchange (HIE) and interoperability
List healthcare data that should be shared
Enumerate HIE challenges and barriers
Describe several organizations known as Health Information Organizations (HIOs)
Summarize the newest HIE models
Learning Objectives
Health Information Exchange (HIE) is the “electronic movement of health-related information among organizations according to nationally recognized standards”
Health Information Organization (HIO) is “an organization that oversees and governs the exchange of health-related information among organizations according to nationally recognized standards”
Important Definitions
Regional Health Information Organization (RHIO) is “a health information organization that brings together health care stakeholders within a defined geographic area and governs health information exchange among them for the purpose of improving health and care in that community.”
Interoperability is defined as “the ability of two or more systems or components to exchange information and to use the information that has been exchanged”. This implies that the data is computable and that standards exist that permit interoperability
Important Definitions
Foundational: refers to the technology or platform used to exchange information
Syntactic: means messages have a structure and syntax that is understandable. Uses XML and HL7 standards
Semantic: terminology and coding must be the same for the sending and receiving organizations
Interoperability Levels
Exchange (sharing) of health information is vital for healthcare reform at the local, state and national level
The next two slides will demonstrate the types of healthcare data that should be shared
If electronic health records don’t share data, then we have moved from paper siloes of information to electronic siloes; not the goal of anyone
HIE is part of the Meaningful Use program, discussed in the module on electronic health records
Introduction
Clinical results: Lab, pathology, medication , allergies, immunizations and microbiology data
Images: Actual images and radiology reports
Documents: Office notes, discharge notes and emergency room notes
Clinical summaries: Continuity of Care Documents (CCDs); XML-based documents that standardize and summarize care
Financial information: Claims data and eligibility checks
Medication data: Electronic prescriptions, formulary status, and prescription history
Healthcare Data Potentially Shared
Performance data: Quality measures like blood pressure or diabetes control, cholesterol levels, etc.
Case management: Management of the underserved and emergency room utilization
Public health data: Infectious diseases outbreak data, immunization records
Referral management: Management of re.
Similar to 20151028 hd College van Geneesheren-Directeurs - Collège des directeurs médicaux (20)
Acute scrotum is a general term referring to an emergency condition affecting the contents or the wall of the scrotum.
There are a number of conditions that present acutely, predominantly with pain and/or swelling
A careful and detailed history and examination, and in some cases, investigations allow differentiation between these diagnoses. A prompt diagnosis is essential as the patient may require urgent surgical intervention
Testicular torsion refers to twisting of the spermatic cord, causing ischaemia of the testicle.
Testicular torsion results from inadequate fixation of the testis to the tunica vaginalis producing ischemia from reduced arterial inflow and venous outflow obstruction.
The prevalence of testicular torsion in adult patients hospitalized with acute scrotal pain is approximately 25 to 50 percent
263778731218 Abortion Clinic /Pills In Harare ,sisternakatoto
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Couples presenting to the infertility clinic- Do they really have infertility...Sujoy Dasgupta
Dr Sujoy Dasgupta presented the study on "Couples presenting to the infertility clinic- Do they really have infertility? – The unexplored stories of non-consummation" in the 13th Congress of the Asia Pacific Initiative on Reproduction (ASPIRE 2024) at Manila on 24 May, 2024.
Flu Vaccine Alert in Bangalore Karnatakaaddon Scans
As flu season approaches, health officials in Bangalore, Karnataka, are urging residents to get their flu vaccinations. The seasonal flu, while common, can lead to severe health complications, particularly for vulnerable populations such as young children, the elderly, and those with underlying health conditions.
Dr. Vidisha Kumari, a leading epidemiologist in Bangalore, emphasizes the importance of getting vaccinated. "The flu vaccine is our best defense against the influenza virus. It not only protects individuals but also helps prevent the spread of the virus in our communities," he says.
This year, the flu season is expected to coincide with a potential increase in other respiratory illnesses. The Karnataka Health Department has launched an awareness campaign highlighting the significance of flu vaccinations. They have set up multiple vaccination centers across Bangalore, making it convenient for residents to receive their shots.
To encourage widespread vaccination, the government is also collaborating with local schools, workplaces, and community centers to facilitate vaccination drives. Special attention is being given to ensuring that the vaccine is accessible to all, including marginalized communities who may have limited access to healthcare.
Residents are reminded that the flu vaccine is safe and effective. Common side effects are mild and may include soreness at the injection site, mild fever, or muscle aches. These side effects are generally short-lived and far less severe than the flu itself.
Healthcare providers are also stressing the importance of continuing COVID-19 precautions. Wearing masks, practicing good hand hygiene, and maintaining social distancing are still crucial, especially in crowded places.
Protect yourself and your loved ones by getting vaccinated. Together, we can help keep Bangalore healthy and safe this flu season. For more information on vaccination centers and schedules, residents can visit the Karnataka Health Department’s official website or follow their social media pages.
Stay informed, stay safe, and get your flu shot today!
The prostate is an exocrine gland of the male mammalian reproductive system
It is a walnut-sized gland that forms part of the male reproductive system and is located in front of the rectum and just below the urinary bladder
Function is to store and secrete a clear, slightly alkaline fluid that constitutes 10-30% of the volume of the seminal fluid that along with the spermatozoa, constitutes semen
A healthy human prostate measures (4cm-vertical, by 3cm-horizontal, 2cm ant-post ).
It surrounds the urethra just below the urinary bladder. It has anterior, median, posterior and two lateral lobes
It’s work is regulated by androgens which are responsible for male sex characteristics
Generalised disease of the prostate due to hormonal derangement which leads to non malignant enlargement of the gland (increase in the number of epithelial cells and stromal tissue)to cause compression of the urethra leading to symptoms (LUTS
Tom Selleck Health: A Comprehensive Look at the Iconic Actor’s Wellness Journeygreendigital
Tom Selleck, an enduring figure in Hollywood. has captivated audiences for decades with his rugged charm, iconic moustache. and memorable roles in television and film. From his breakout role as Thomas Magnum in Magnum P.I. to his current portrayal of Frank Reagan in Blue Bloods. Selleck's career has spanned over 50 years. But beyond his professional achievements. fans have often been curious about Tom Selleck Health. especially as he has aged in the public eye.
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Introduction
Many have been interested in Tom Selleck health. not only because of his enduring presence on screen but also because of the challenges. and lifestyle choices he has faced and made over the years. This article delves into the various aspects of Tom Selleck health. exploring his fitness regimen, diet, mental health. and the challenges he has encountered as he ages. We'll look at how he maintains his well-being. the health issues he has faced, and his approach to ageing .
Early Life and Career
Childhood and Athletic Beginnings
Tom Selleck was born on January 29, 1945, in Detroit, Michigan, and grew up in Sherman Oaks, California. From an early age, he was involved in sports, particularly basketball. which played a significant role in his physical development. His athletic pursuits continued into college. where he attended the University of Southern California (USC) on a basketball scholarship. This early involvement in sports laid a strong foundation for his physical health and disciplined lifestyle.
Transition to Acting
Selleck's transition from an athlete to an actor came with its physical demands. His first significant role in "Magnum P.I." required him to perform various stunts and maintain a fit appearance. This role, which he played from 1980 to 1988. necessitated a rigorous fitness routine to meet the show's demands. setting the stage for his long-term commitment to health and wellness.
Fitness Regimen
Workout Routine
Tom Selleck health and fitness regimen has evolved. adapting to his changing roles and age. During his "Magnum, P.I." days. Selleck's workouts were intense and focused on building and maintaining muscle mass. His routine included weightlifting, cardiovascular exercises. and specific training for the stunts he performed on the show.
Selleck adjusted his fitness routine as he aged to suit his body's needs. Today, his workouts focus on maintaining flexibility, strength, and cardiovascular health. He incorporates low-impact exercises such as swimming, walking, and light weightlifting. This balanced approach helps him stay fit without putting undue strain on his joints and muscles.
Importance of Flexibility and Mobility
In recent years, Selleck has emphasized the importance of flexibility and mobility in his fitness regimen. Understanding the natural decline in muscle mass and joint flexibility with age. he includes stretching and yoga in his routine. These practices help prevent injuries, improve posture, and maintain mobilit
Title: Sense of Taste
Presenter: Dr. Faiza, Assistant Professor of Physiology
Qualifications:
MBBS (Best Graduate, AIMC Lahore)
FCPS Physiology
ICMT, CHPE, DHPE (STMU)
MPH (GC University, Faisalabad)
MBA (Virtual University of Pakistan)
Learning Objectives:
Describe the structure and function of taste buds.
Describe the relationship between the taste threshold and taste index of common substances.
Explain the chemical basis and signal transduction of taste perception for each type of primary taste sensation.
Recognize different abnormalities of taste perception and their causes.
Key Topics:
Significance of Taste Sensation:
Differentiation between pleasant and harmful food
Influence on behavior
Selection of food based on metabolic needs
Receptors of Taste:
Taste buds on the tongue
Influence of sense of smell, texture of food, and pain stimulation (e.g., by pepper)
Primary and Secondary Taste Sensations:
Primary taste sensations: Sweet, Sour, Salty, Bitter, Umami
Chemical basis and signal transduction mechanisms for each taste
Taste Threshold and Index:
Taste threshold values for Sweet (sucrose), Salty (NaCl), Sour (HCl), and Bitter (Quinine)
Taste index relationship: Inversely proportional to taste threshold
Taste Blindness:
Inability to taste certain substances, particularly thiourea compounds
Example: Phenylthiocarbamide
Structure and Function of Taste Buds:
Composition: Epithelial cells, Sustentacular/Supporting cells, Taste cells, Basal cells
Features: Taste pores, Taste hairs/microvilli, and Taste nerve fibers
Location of Taste Buds:
Found in papillae of the tongue (Fungiform, Circumvallate, Foliate)
Also present on the palate, tonsillar pillars, epiglottis, and proximal esophagus
Mechanism of Taste Stimulation:
Interaction of taste substances with receptors on microvilli
Signal transduction pathways for Umami, Sweet, Bitter, Sour, and Salty tastes
Taste Sensitivity and Adaptation:
Decrease in sensitivity with age
Rapid adaptation of taste sensation
Role of Saliva in Taste:
Dissolution of tastants to reach receptors
Washing away the stimulus
Taste Preferences and Aversions:
Mechanisms behind taste preference and aversion
Influence of receptors and neural pathways
Impact of Sensory Nerve Damage:
Degeneration of taste buds if the sensory nerve fiber is cut
Abnormalities of Taste Detection:
Conditions: Ageusia, Hypogeusia, Dysgeusia (parageusia)
Causes: Nerve damage, neurological disorders, infections, poor oral hygiene, adverse drug effects, deficiencies, aging, tobacco use, altered neurotransmitter levels
Neurotransmitters and Taste Threshold:
Effects of serotonin (5-HT) and norepinephrine (NE) on taste sensitivity
Supertasters:
25% of the population with heightened sensitivity to taste, especially bitterness
Increased number of fungiform papillae
ARTIFICIAL INTELLIGENCE IN HEALTHCARE.pdfAnujkumaranit
Artificial intelligence (AI) refers to the simulation of human intelligence processes by machines, especially computer systems. It encompasses tasks such as learning, reasoning, problem-solving, perception, and language understanding. AI technologies are revolutionizing various fields, from healthcare to finance, by enabling machines to perform tasks that typically require human intelligence.
Report Back from SGO 2024: What’s the Latest in Cervical Cancer?bkling
Are you curious about what’s new in cervical cancer research or unsure what the findings mean? Join Dr. Emily Ko, a gynecologic oncologist at Penn Medicine, to learn about the latest updates from the Society of Gynecologic Oncology (SGO) 2024 Annual Meeting on Women’s Cancer. Dr. Ko will discuss what the research presented at the conference means for you and answer your questions about the new developments.
Explore natural remedies for syphilis treatment in Singapore. Discover alternative therapies, herbal remedies, and lifestyle changes that may complement conventional treatments. Learn about holistic approaches to managing syphilis symptoms and supporting overall health.
Recomendações da OMS sobre cuidados maternos e neonatais para uma experiência pós-natal positiva.
Em consonância com os ODS – Objetivos do Desenvolvimento Sustentável e a Estratégia Global para a Saúde das Mulheres, Crianças e Adolescentes, e aplicando uma abordagem baseada nos direitos humanos, os esforços de cuidados pós-natais devem expandir-se para além da cobertura e da simples sobrevivência, de modo a incluir cuidados de qualidade.
Estas diretrizes visam melhorar a qualidade dos cuidados pós-natais essenciais e de rotina prestados às mulheres e aos recém-nascidos, com o objetivo final de melhorar a saúde e o bem-estar materno e neonatal.
Uma “experiência pós-natal positiva” é um resultado importante para todas as mulheres que dão à luz e para os seus recém-nascidos, estabelecendo as bases para a melhoria da saúde e do bem-estar a curto e longo prazo. Uma experiência pós-natal positiva é definida como aquela em que as mulheres, pessoas que gestam, os recém-nascidos, os casais, os pais, os cuidadores e as famílias recebem informação consistente, garantia e apoio de profissionais de saúde motivados; e onde um sistema de saúde flexível e com recursos reconheça as necessidades das mulheres e dos bebês e respeite o seu contexto cultural.
Estas diretrizes consolidadas apresentam algumas recomendações novas e já bem fundamentadas sobre cuidados pós-natais de rotina para mulheres e neonatos que recebem cuidados no pós-parto em unidades de saúde ou na comunidade, independentemente dos recursos disponíveis.
É fornecido um conjunto abrangente de recomendações para cuidados durante o período puerperal, com ênfase nos cuidados essenciais que todas as mulheres e recém-nascidos devem receber, e com a devida atenção à qualidade dos cuidados; isto é, a entrega e a experiência do cuidado recebido. Estas diretrizes atualizam e ampliam as recomendações da OMS de 2014 sobre cuidados pós-natais da mãe e do recém-nascido e complementam as atuais diretrizes da OMS sobre a gestão de complicações pós-natais.
O estabelecimento da amamentação e o manejo das principais intercorrências é contemplada.
Recomendamos muito.
Vamos discutir essas recomendações no nosso curso de pós-graduação em Aleitamento no Instituto Ciclos.
Esta publicação só está disponível em inglês até o momento.
Prof. Marcus Renato de Carvalho
www.agostodourado.com
These simplified slides by Dr. Sidra Arshad present an overview of the non-respiratory functions of the respiratory tract.
Learning objectives:
1. Enlist the non-respiratory functions of the respiratory tract
2. Briefly explain how these functions are carried out
3. Discuss the significance of dead space
4. Differentiate between minute ventilation and alveolar ventilation
5. Describe the cough and sneeze reflexes
Study Resources:
1. Chapter 39, Guyton and Hall Textbook of Medical Physiology, 14th edition
2. Chapter 34, Ganong’s Review of Medical Physiology, 26th edition
3. Chapter 17, Human Physiology by Lauralee Sherwood, 9th edition
4. Non-respiratory functions of the lungs https://academic.oup.com/bjaed/article/13/3/98/278874
4. Unknown
effectiveness
Likely to be ineffective or harmful (3%)
Unlikely to be beneficial (6%)
Trade-off between
benefits and harms (7%)
Likely to be
beneficial (24%)
Beneficial (11%)
BMJ Clinical Evidence (2014)
Clinical registries are necessary !
50%
Effectiveness of 3000
common therapeutic
interventions
Plan
Check
Act
Do
5. Epidemiological surveillances are necessary !
Sabbe et al., (2012) Measles resurgence in Belgium, Eurosurveillance
healthdata.be
data we care for
6. Value of care is central goal
in Value Based Health Care
Value of care =
Outcome of care
Cost of care
Quality of care registries
must increase value of care
Quality of care registries can
contribute in different ways
Value of care ↗
trough quality
of care registries
=
Contribution to
better outcomes of care
Continuous improvement and acceleration of the improvement
cycle of health care professionals by benchmarking
Contribution to
lower cost of care
Less complications
reduces costs
Benchmarking costs
of interventions
Decrease of cost of
registration
+ +
ZorgInstituut.NL, based on Michael Porter
Registries as a pillar of « Value Based Health Care »
7. 7
? ? ?
? ?
??! ? ?
healthdata.be
data we care for
8. healthdata.be
data we care for
Collection of health (care) related data
in Belgium (n > 160 projects): “AS-IS”
1
2
3
4
5
7
6
Stage
Stage
Stage
Stage
Stage
Stage
Stage
Repeated registration of same information: high costs
for data providers (ánd for researchers ánd government!)
Heterogeneous method & content: low transparency
and high administrative burden & complexity
Limited privacy & security
Insufficient return on information
Impact
9. Growing awareness
Milestone Date
1. Van de Sande, et al., Inventory of databases health care, KCE
Reports 30A, Brussels: KCE
2006
2. Belgian Court of Audit, Scientific support of the federal health
policy, BCA Reports, Brussels: BCA
2010
3. Coussée, et al., Charter High-quality recording of data by the
healthcare sector, Brussels; Zorgnet Vlaanderen
2010
4. Actionplan eHealth 2013-2018: Action point 18 “Inventory and
consolidation registers”
2012
5. Law of 5 May 2014: principle of “only once” data collection in
all activities of governemental services and institutes
2014
6. Federal (9.10.2014) coalition agreement prioritizes reduction
of administrative burden of health care professionals: “Only
once”!
2014
healthdata.be
data we care for
Van de Sande, et al. (2006) Inventory of databases health care, KCE
Reports 30A;
Belgian Court of Audit (2010) Scientific support of federal health policy,
BCA Reports;
Coussée (2010) Charter High-quality recording of data from the
healthcare sector, Brussels; Zorgnet Vlaanderen;
Action plan eHealth 2013-2018: Action point 18 “Inventory and
consolidation registers”;
Law 5 May 2014: principle of “only once” data collection in activities
gov. services & institutes;
Federal (9.10.2014) and Flemish (23.07.2014) coalition agreement
prioritizes reduction of administrative burden of health care
professionals: “Only once”!
Federal Minister Maggie De Block (25.04.2015) : Reform plan financing
of hospitals.
Version 2.0 of Action plan eHealth 2013-2018:;
Growing Awareness
10. Interministerial agreement dd. 14.10.2015:
Continuous actualization of inventory of patient
registries is mandatory (healthstat.be);
Procedures and criteria for new projects and
continuation of existing projects;
Generic Business Processen for all reccurent scientific
data collection projects;
Generic architecture of healthdata-platform for all
reccurent scientific data collection projects;
Use of “Clinical Building Blocks” by all reccurent
scientific data collection projects;
---
Update AP18!
http://www.plan-egezondheid.be
11. Law of 10 April 2014 various provisions related to health: Section 9:
initiative RIZIV-INAMI and WIV-ISP: healthdata.be;
A new service within the legal body of the Institute of Public Health
(WIV-ISP), funded by RIZIV-INAMI (20/04/2015, contract of open-end
duration)
Facilitate (in terms of technology and process management) data
exchange between healthcare professionals and researchers according
to only once principle and re-use of data, in order to increase public
health knowledge and to adjust health care policy, with respect for
privacy of patient, healthcare professional and medical confidentiality.
Intergovernmental services for both federal and community/regional
governments responsible for health and healthcare, and private legal
bodies (indirectly);
2014-2017: focus on uniformisation of 42 existing registers managed by
WIV-ISP and RIZIV.
healthdata.be
12. Experiment
healthdata.be within the empirical cycle
Observation
Research Question
Theory Development
Conclusion(s)
Analysis
healthdata.be
data we care for
13. healthdata.be
data we care for
TaxOffice.nl/declaration
We can’t make it enjoyable, we can make it easier
Healthdata.be will focus on the simplification,
standardization and automatization of the:
Business processes
Data collection architecture
Information architecture (terminology)
Data management
Feedback reporting
Simplification
14. healthdata.be
data we care for
Obtain standardization in way actors interact for certain
process
Simplify interaction between various actors by adhering
to ‘only once’ principle and maximally integrating with
existing workflows
Ensure compliance to various governance rules and
regulations
Create transparency and awareness for stakeholders
about various processes and status of on-going
processes
Support continuity of register management (e.g. in case
of staffing changes)
Business Processes
15. Secure Data
Transfer
Data
Validation
Annotation
& Correction
Request
Data
Storage
BI-Reporting
Registration
in Primary
System
healthdata.be
data we care for
HEALTHSTATHD4DP
Analysis
Data Collection
supported by healthdata.be
Data Management & BI-Reporting
supported by healthdata.be
healthdata.be: the end-to-end process
healthdata.be
Data
Captation
Data
Monitoring
HD4RES DATAWAREHOUSE (SAS)
HD4DP: Free and open (Apache License 2.0) local client
software (API* based with eForms) managed by HD Catalogue;
“Open” architecture approved by:
WG Architecture: Positive advise (12/12/2014 &
06/03/2015) generic healthdata architecture;
Sectorial Committee health (Privacy commission):
Authorization (21/04/2015) generic healthdata
architecture;
eHealth-platform : Authorization (22/04/2015) generic
healthdata architecture;
Successful test installations: UZLeuven, UZAntwerpen,
UZBrussels; GZA, ZNA, UZGent, CHU Erasme, CHU Charleroi,
Inkendaal; In production since 14.09.2015.
Industry: integration HD4DP in their (messaging) software
*API: Application Programming Interface
Architecture
17. Healthdata.be
Catalogue (PROD) with
Registry form definition
Data provider
Sending Data Through an
API & Prefilling Forms for
less Manual Work
Legend
Identifiers (SSIN, RIZIV, …)
Metadata (internal ID, type data, …)
Medical data
CSV
24/7
HD4DP
and / or
HD4DP : Healthdata for Data Providers
healthdata.be
data we care for
• All manual input remains available
(structured and coded, according to
[inter]national standard) in local database of
DP:
• Import in future upgrade of EPD/LIMS;
• Re-Use for internal BI & QI
19. ETK & E2E Encryption
eHealthBox with Codage
Legend
Identifiers (SSIN, RIZIV, transaction ID, ..)
Metadata (timestamp, type data, …)
Personal data (medical or other,
possibly KMEHR based)
Coded Identifiers
Encrypted Data
eHealth has never access to
medical data or metadata
Healthdata never receives
the original identifier, but
can reconcile different
entries
The data provider never
receives the coded
identifiers
CSV CSV
CSV
CSV
CSV
CSV
CSV
CSV
HD4RES
HD4DP
healthdata.be
data we care for
Secure transfer of data and encoding of identifiers
21. Feedback flow
Resubmission
(through the standard
data transfer flow)
No impact on eHealth, existing
services are used
eHealthBox with DECodage
Legend
Metadata (timestamp, type of data, …)
Feedback
Field to correct
Identifiers (SSIN, RIZIV, transaction ID, ..)
Personal Data (medical or other)
CSV CSVCSV
CSV
CSV
CSV
CSV
Researcher
HD4RESHD4DP
Verify data and feedback to data provider (HD4RES)
22. HIS, LIMS, EPD, … of
data provider
HD4DP
eHBox client
software
eHBox
ETK –
encryption module
+
By 3rd party
OR Development
Cookbook
+
+
+
• Encryption module & file interface
• Cookbook available
• Short development process
Re-use of information by extracting structured info
from primary system and uploading in HD4DP
Goal is to evolve towards extracting all
necessary information from primary systems
and move away from manual data entry
(eHealth roadmap 2013-2018)
OR Development
Cookbook
Technical building blocks @ data provider
healthdata.be
data we care for
22
23. HD4DP
HIS, LIMS, EPD, … of
data provider
X-Connect eHBox
client software
eHBox
X-Connect ETK –
encryption module
+
+
+
+
ACTH
(RSW/FRATEM)
X-connect
HIS, LIMS, EPD, … of
data provider
eHBox client
software
eHBox
ETK –
encryption module
+
+
+
+
Medibridge,
HealthConnect
Medimail,UM,Hector
HD4DP
Integration in existing software (in progress)
healthdata.be
data we care for
HD4DP
KWS
NEXUZ eHBox
client software
eHBox
NEXUZ ETK –
encryption module
+
+
+
+
NEXUZ
Health
24. Re-use of data in primary systems:
CSV-upload functionality to upload data
that is extracted from primary systems
(e.g. EPD, LIMS).
CSV upload improvements:
Various improvements of the prefill
functionality via CSV-upload, including
supporting the upload of different CSV's
for one record & support repeated
upload of the same CSV.
Integration with primary systems:
Allow users to open a prefilled
healthdata form in their primary systems
(e.g. EPD, LIMS).
Built-in validation:
Inter- and intrafield validations are
performed while the form is being filled
out.
Application integration:
HIMS and LIMS can send the data
through a standards based programmatic
interface (API)
Registry PM self-service:
Allow registry PMs to maintain their own
data collection definitions & reference
lists
Correction request handling:
Registry PM can annotate records and
send them back to the data providers for
review.
Origin of data:
Indicate for each record which data was
prefilled, manually provided or manually
modified after initial prefilling.
CURRENT VERSION 1.3.0. – 1.4.0. (dec2015)
Process reporting:
Display metrics about the data collection
process (e.g. # corrections, process time,
# sessions, …)
Desktop version of HD4DP:
Allow HD4DP to be installed on a desktop
instead of a local server. Necessary for
use by general practitioners.
Improved search functionality:
Allow registry PMs to more easily search
their records
PDF/Print View:
Provide a printer-friendly version of the
data collection form to support data
collection on paper
Bulk request corrections:
Allow the registry PM to select multiple
records for correction with one action
Email notifications:
Allow the registry PM to send email
reminders to data providers
Images in forms:
Allow data providers to indicate specific
locations/zones on an image
Pseudonimization via eHealth:
The eHealth-platform acts as Trusted
Third Party to pseudonimize patient
identifiers before they are sent to
healthdata.
Secure data transfer:
Data is transferred between data
providers and healthdata via the secure
eHealthBox channel
HD4DP – for data providers
HD4RES – for researchers
Legend:
healthdata.be
data we care for
Development Roadmap HD4DP* & HD4RES
Multi-center HD4DP:
Allow one HD4DP-installation to be used
by different organisations
PLANNED DEVELOPMENT
*4 planned major releases of HD4DP each year
25. 25
Technical onboarding: “Only Once” for every data provider
Step-by-step checklist to prep. install HD4DP, remote installation by
HD
People involved: IT data provider + HD (lead) + project owners
(support)
Thematical onboarding: “Only Once” for every registry at every
data provider
Step-by-step checklist to make people & HD4DP ready for registration
People involved: Data provider (IT, Medical, Admin) + project owners
(lead) + HD (support)
Onboarding
26. Type of Data provider Target
All General and academic hospitals 06/2016
All Medical Laboratories 12/2016
All Psychiatric hospitals 06/2017
All General Practitioners 12/2017
27. Technical onboarding : status (27.10.2015)
Organisation HD4DP Encryption + eHbox
UZ Antwerpen 12-05-2015 YES
UZ Gent 23-06-2015 YES
GZA 15-07-2015 YES
Erasme 22-06-2015 Ongoing
ZNA 18-06-2015 YES
IPG 17-06-2015 NO
Inkendaal 27-05-2015 NO
Hopital Andre Vesale 02-07-2015 NO
UZ Brussel 15-04-2015 NO
UZ Leuven 22-06-2015** NO**
HUDERF 08-07-2015 NO
CHU Liege 07-10-2015* NO*
CHC St-Joseph 07-10-2015* NO*
CHR Citadelle 07-10-2015* NO*
CHU St-Luc 29-10-2015 NO
WIV-ISP Labo’s Finalizing YES
NEXUZ group **Multi center vers. in DEV. (HD4DP 1.4.0.) In dev. (ETProd = 01.2016)
RSW group *Integration in X-connect in PROD In test. (ETProd = 12.2015)
Data provider for Belgian Cystic Fibrosis Registry
29. Secure: strict user & access management (Only HD
staff);
Privacy: “register” specific encoding of identifiers (by
HD);
Auditable: logs of who has seen what, how and when
(IBM InfoSphere Guardium);
Standardized: common technology (DB2, SAS BI) and
standards across registers;
HD Security officer (Ir. Nand Staes);
Location: Data center of Directorate General Statistics
and Economic Information (FOD ECO-DGSEI): Contract
and SLA available.
Data storage
31. Secure: strict user access management (Only authorized project
managers and researchers), through VPN, to MICRO data;
Current stat. software: SAS; 2016: R and STATA
Privacy: “analysis” specific encoding of identifiers (by HD) +
Statistical Disclosure Control by external MD-statistician +
Auditable (IBM InfoSphere Guardium);
Secundary use(rs) and cross-linking registers = possible ONLY
with proper authorization approvals.
Data analysis
32. 32
Healthstat.be (website; live 11/2015) as a secure reporting
platform, with only aggregated data;
Objective: to give Return on Information (ROI) to data
providers (reports designed by data providers), and up-to-date
reporting for governments and stakeholders;
2 sections: Authorized section for register stakeholders (data
providers, government, register project managers, …), with
reporting tailored for each user profile (UAM by eHealth);
Public section available for everyone.
BI-Reporting
33. Trusted Third Party: encryption (data and message) and
pseudonymisation by eHealth platform;
Secure DWH: strict user & access management (Only HD
staff);
Privacy: “register” & “analysis” specific encoding of
identifiers (by HD);
Auditable: logs of who has seen what, how and when
(IBM InfoSphere Guardium) + web portal access by
Security officers;
HD Security officer (Ir. Nand Staes) and responsible MD
(Dr. Michel Legrand);
End-to-End PEN tests by independent specialists;
Data center: FOD ECO-DGSEI: Contract & SLA available.
Security
34. 80 registers = > 8000 variables: need for standards!
Clinical Building Blocks: introduction of a national minimal set
of stable, structured, specialism independent, technical neutral,
and reusable data specifications for (hospital) EPD. Collaboration
with NICTIZ & NFU.
SNOMED-CT: Prioritized standard for Lists of Values (LOV’s) in
Clinical Building Blocks.
Terminology
35. Variables needed for
scientific research
question
healthdata.be
data we care for
Signalitics, typical available in
authentic sources
Information needed in context of
continuity of care or internal
administration
Information mostly not
available in primary systems
EPD, HIMS, LIMS, …)
The challenge for scientific data collection
Register A
Register B
Register C
Register D
Clinical building blocks
healthdata.be
data we care for
37. healthdata.be
data we care for
Stable, reuseable
building blocks
that can be used in
different contexts
Care transfer
Quality
indicators
Patient
summaries
Research
38. WAT TIMING WIE
18.11
“Een Belgische adaptatie wordt uitgevoerd voor elke
beschikbare specialisme overstijgende en technisch neutrale
NFU-NICTIZ Clinical Building Block, en wordt na validatie in een
publiek toegankelijke centrale digitale catalogus gepubliceerd
(http://www.healthdata.be/cbb) (Zie ook AP2.7 en AP13).”
vóór einde 2016_Q1
Coördinatie: WIV, via het HD-platform;
Uitvoering: Nederlandstalige en
Franstalige clinici;
Begeleiding en validatie: WG AP2,
Terminologie Centrum (WG AP13), en
Werkgroep Structurering van
Elementen;
Beheer cataloog: WIV, via HD-platform.
18.12
“Alle (a) nieuwe en (b) bestaande recurrente
beleidsondersteunende wetenschappelijke gegevens-
verzamelingen worden inhoudelijk samengesteld doormiddel
van de voor België beschikbare gevalideerde Clinical Building
Blocks (Zie ook AP2.7).”
vanaf 2016_Q1 (a);
vanaf 2016_Q1 gefa-
seerd volgens kalender
(b: voor allen);
uitgevoerd vóór einde
2017_Q4 (b: voor 42
projecten van WIV en
RIZIV).
Coördinatie: WIV, via het HD-platform;
Uitvoering: verantwoordelijken van
wetenschappelijke gegevensverza-
melingen.
18.13
“De waardenlijsten van Clinical Building Blocks in alle (a) nieuwe
en (b) bestaande recurrente beleidsondersteunende
wetenschappelijke gegevensverzamelingen in domein van
gezondheid en gezondheidszorg, worden prioritair met
SNOMED-CT concepten opgemaakt (Zie ook AP2.7 en AP13). “
vanaf 2016_Q1 (a) ;
vanaf 2016_Q1 gefas-
eerd volgens kalender (b:
voor allen);
uitgevoerd vóór einde
2017_Q4 (b: voor 42
projecten van WIV en
RIZIV).
Coördinatie: WIV, via het HD-platform;
Uitvoering: wetenschappelijk
verantwoordelijken van de
gegevensverzamelingen;
Begeleiding en validatie: Terminologie-
Centrum;
Evaluation Action Plan eHealth 2013-2018:
Revision Action Point 18: “Inventory & Consolidation of Registries
Official proclamation dd. 14.10.2015 by IMC public health
39. 39
2014-2017: focus on redesign of 42 existing registers
managed by WIV-ISP and RIZIV;
Examples: Rare diseases, HIV-AIDS, Diabetes, Influenza,
Common childhood vaccine-preventable infectious diseases,
Nosocomial infections, Medical devices (pacemakers, stents,
hip & knee, …), Rheumatoid arthritis …
3 ‘Waves’: 2014-2015(Q2); 2015-2016(Q2); 2016-2017(Q)
(see www.healthdata.be); Based on objective complexity
criteria and policy priorities
Actualization of planning possible because of new priorities
and urgencies. ==> NEW: Anatomic Pathologists towards
Belgian Cancer Register
Planning
41. Requests for new registries (01.10.2015)
healthdata.be
data we care for
In addition to the planned projects, HD received (informal) requests to
implement following data collections:
1. Belgian Trauma Registry (Belgian Orthopedic Traumatology Association) New
2. Belgian Spine Registry (Work Group SPINE TANGO) New
3. Belgian Registry of Cardiac Incidents (Amis SAMU (Services Aide Médicale Urgente) New
4. Belgian Registry Foetal Chromosomal Abnormalities (University Antwerp) New
5. Belgian Prematurity Cohort Registry (College of Medicine: Mother and Child) New
6. Belgian Pelvic Trauma Registry (Belgian Orthopedic Traumatology Association) New
7. Belgian Hepatitis C Registry (multiple requestors) New
8. Belgian Congenital Infections Registry (WIV-ISP) New
9. Belgian Cerebral Palsy Registry (University Leuven, Centres Development Disorders) New
10. Belgian Burns Registry (Association Patients Burns) New
11. Belgian Substitution Treatment Registry (Federal Agency Medicines and Health Products) New
12. Belgian Registry Next-Generation-Sequencing (NGS) tests for oncology (Cancer Centre, WIV-ISP) New
13. Belgian Urgency Registration (FOD VVVL) (Existing, support roll out)
14. Belgian Resident Assessment Instrument (BELRAI) (FOD VVVL, RIZIV) (Existing, migration)
healthdata.be
data we care for
42. HD4Patients: web portal supporting patient participation in
registries (Patient Reported Outcomes & Patient Reported
Experiences);
HD4Security_Officers: web application based on API of IBM
Gardium to provide external security officers access to
logging on DWH;
HD4ALL: web application based on API of IBM InfoSphere
Guardium to provide all Belgian citizens following
information: Is there data about me in a Registry? Who
submitted my data? Who used my data?;
HD4NGS: generic architecture to collect, store, and make
available for scientific analysis of human Next Generation
Sequencing Data.
What’s next?
43. Workshops with BRAS & Pharma.be (2014, 2015)
Toekomstpact voor de patiënt met de farmaceutische
industrie (2015)
“Er wordt een kennissysteem van patiëntenregisters
uitgewerkt die onderlinge communicatie tussen registers
mogelijk maakt, analoog met het efficiënter verzamelen van
epidemiologische gegevens via healthdata.be, op basis van
voorstellen van het European Medicines Agency en van de
Europese lidstaten, in samenwerking met onze EU partners, en
met respect voor de privacy.”
Koninklijk besluit van 12 mei 2014 “Unmet Medical Need”
HD4Industry
44. HD Staff 2015
FTE = 15.28
N = 20
0
5
10
15
20
25
30
2 teams (“Data collection” & “Data warehousing”) with project leaders, business analyst,
functional analysts, technical architects, developers, statisticians, test engineers, support officer,
security officer, responsible MD
45. Alignment with Action plan eHealth 2013-2018;
Define procedures and criteria for start of new registers
and the continuation of existing registers, with focus on
reduction of registration burden;
Evaluation and prioritisation new proposed projects;
Follow-up of Small Cell Risk Analyses (Statistical Disclosure
Control);
Service Level Objectives;
Budget control.
HD SteerCo
46. Healthdata SteerCo: Composition
Chair, not entitled to vote:
Chief civil servant (R De Ridder)
Members entitled to vote:
4 independent physicians (J Kips, P De Plaen, G De Moor, H Vanpottelbergh, P
Kelchtermans, P Vollemaere , H De Nutte, G Van Pottelbergh)
2 physician –scientists (P Cosyns , F Meunier, B Himpens, Y Englert)
2 physicians from health insurance institutions (P Berkein , M Callens)
3 experts medical informatics (E Bellon, A Vandenberghe, T Fiers)
2 repr. of patients (L De Bot, M Fierens, B Pirsoul, R Heijlen)
Members not entitled to vote:
1 repr. of NIDHI (N Marly, P Meeus)
1 repr. of FPS Health (C Decoster, I Mertens)
1 repr. of KCE (S Devriese)
1 repr. of eHealth-platform (F Robben, T Duvillier)
1 repr. of each regional and community government (E Hendrickx, H De Kind)
Project leader healthdata (J van Bussel, J Kips)
healthdata.be
data we care for
For each effective member, there is 1 deputy memberhealthdata.be
data we care for
47. Summary
1 technical implementation for all registries;
1 information architecture for all registries;
1 service provider for all registries;
1 set of business processes for all registries;
Max. re-use existing data (“only 1ce” registration);
Each DP can develop own strategy and priorities re. deep
integration and API’s;
Each DP has the original set of submitted data in structured
and coded (inter) national format, in 1 local database;
Each DP receives timely feedback reports within 1 reporting
environment;
==> Less administrative burden, higher efficiency, more time
for patient, higher quality of care, more time for
“research”, higher quality of research, lower costs
49. healthdata.be
data we care for
visual attention
auditory attention
somatosensory attention
Thank you for your attention!
Anderson, J. et al. “Topographic Maps of Multisensory Attention.”
PNAS 107.46 (2010): 20110–20114. PMC. Web. 31 Dec. 2014.
Johan van Bussel,
on behalf of the healthdata team
Editor's Notes
An
API to open form prefilled with a set existing data
API to pass full dataset & receive error message
API to pass full dataset & correct messages in form