The document summarizes the care.data conference held on April 5th 2013 at Queen Mary University of London. It discusses the previous NHS structure, changes from the 2012 Health and Social Care Act, and the new structure of the NHS. It also explains what patient data would be collected through care.data, how it would be used by various organizations, and concerns about who would have access to patient data.

1. care.data conference,
QMUL, 5th April 2013

2. Previous NHS structure

3. Health and Social
Care Act 2012

4. The ‘new’ NHS

5. GPES-Q
GPET-E
HSCA s259
requires
care.data
Patient-level Identifiable Data (PID)
including NHS number, postcode,
DoB, gender & ethnicity
HSCIC
Your GP
NHS
England
The Commissioning
Board
GPES IAG
Independent
Advisory Group
HSCA
s254
directs
data linkage,
pseudonymisation,
passing on & sale
DAAG
Data Access
Advisory Group
CAG
Confidentiality
Advisory Group
CES
GPET-Q
aggregate statistics,
Open Data
Section 251 approval
CPRD
Clinical Practice
Research Datalink
PID
including
free text

6. who gets your data?
“This addendum proposes that applications
may be considered by the HSCIC from all
organisations, subject to their eligibility as
determined through the HSCIC’s governance
processes. Such organisations may include
research bodies, information intermediaries,
companies, charities, and others.”
- care.data addendum, September 2013

10. THANK YOU
Phil Booth
Coordinator, medConfidential
coordinator@medconfidential.org
www.medconfidential.org