Author: Conrad Fernandez, MD., IWK Health Centre, Halifax, NS Presented at the 2010 Texas Adolescent and Young Adult Oncology Conference hosted by Methodist Healthcare-San Antonio in October 2010

1. Consent and assent in the adolescent and young adult with cancer Conrad Fernandez MD, FRCPC Pediatric Hematologist/Oncologist Professor Pediatrics Departments of Pediatrics and Bioethics Halifax, NS, Canada

4. For those who remain standing – this is your destination : “Pillars of Heaven” in the Eagle nebula http://hubblesite.org/ newscenter/newsdesk/ archive/releases/ 1995/44/image/a

27. Research in AYA patients

43. Decision-making by adolescents and parents for taking part in research AYAs with cancer Parents of child with cancer I thought it would help me/my child 26% 60% I thought it would help others 67% 85% Not add too much time 14% 13% Pressure from family/friends 16% 3% Not add too much discomfort 19% 20%

44. Decision-making by adolescents and parents for declining research AYAs with cancer Parents of child with cancer I did not think it would help 18% 13% Too much else to think about 36% 21% Added too much time 45% 13% Added too much discomfort 18% 26% Too risky 0% 13%

45. Problems in Consent/Assent in Pediatric Oncology 10/14/10

61. Discussion