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New media and my personal
experience of research into
dementia
Dr Shibley Rahman
Centre for Ageing and Biographical Studies (CABS) and
Centre for Policy on Ageing (CPA) OU Seminar
30 October 2015
Disruption and transformation change
Important issues for older people – including
loneliness and dementia
Traditional research training
Social media platforms – Facebook and Twitter
How I’ve personally used new media to conduct
research and share research results
Research impact
Self-reflection
Provocation paper (Ayres)
“Feeling connected and having supportive social
relationships has a strong link to health and
longevity. Isolation, loneliness, physical and
mental health challenges are important social
challenges facing society as a whole. And for
older people in particular, isolation is a major
factor impacting on their wellbeing and life
expectancy.”
The Hélène Campbell Effect
Hélène Campbell is a 21-year-old Barrhaven
woman who raised awareness for organ donations
across the world while she lived with a progressive
degenerative lung disease.
She received a double lung transplant in a Toronto
hospital on April 6 after her campaign caught the
attention of elebrities including Ellen Degeneres
and pop sensation Justin Bieber through her
Twitter account @alungstory.
Open Access publishing
Advantages
• Open Access enhances visibility and impact of one's own work
as Open Access articles are downloaded and cited more
frequently than articles from non-Open Access journals.
• Free access to scientific knowledge, information and data
strengthens the basis for knowledge transfer
• Developing countries and small or specialised research
institutions and corporations have access to all Open Access
articles.
Melissa Terras, “Digital Curiosities: Resource
Creation Via Amateur Digitisation,” Literary and
Linguistic Computing, 25.4 (2009): 425 – 438.
Examples of posters (Alzheimer
Europe 2014)
P14.4. Dr Shibley Rahman (England, UK), Kate Swaffer
(Australia), Dr Peter Gordon (Scotland), Prof Facundo Manes
(Argentina): Would future NHS dementia care easily lend itself
to private markets?
PO124. Dr Shibley Rahman (England, UK), Kate Swaffer
(Australia), Dr Peter Gordon (Scotland), Prof Facundo Manes
(Argentina): Who were the biggest winners and losers of the
G8 Dementia Summit? An online survey
PO167. Dr Shibley Rahman (England, UK), Kate Swaffer
(Australia), Dr Peter Gordon (Scotland), Prof Facundo Manes
(Argentina):An analysis of 75 English language online articles
on the G8 Dementia Summit
Disruption and transformation change
Important issues for older people – including
loneliness and dementia
Traditional research training
Social media platforms – Facebook and Twitter
How I’ve personally used new media to conduct
research and share research results
Research impact
Self-reflection

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New media and my personal experience of research into dementia

  • 1. New media and my personal experience of research into dementia Dr Shibley Rahman Centre for Ageing and Biographical Studies (CABS) and Centre for Policy on Ageing (CPA) OU Seminar 30 October 2015
  • 2.
  • 3. Disruption and transformation change Important issues for older people – including loneliness and dementia Traditional research training Social media platforms – Facebook and Twitter How I’ve personally used new media to conduct research and share research results Research impact Self-reflection
  • 4.
  • 5.
  • 6. Provocation paper (Ayres) “Feeling connected and having supportive social relationships has a strong link to health and longevity. Isolation, loneliness, physical and mental health challenges are important social challenges facing society as a whole. And for older people in particular, isolation is a major factor impacting on their wellbeing and life expectancy.”
  • 7.
  • 8.
  • 9.
  • 10.
  • 11.
  • 12.
  • 13. The Hélène Campbell Effect Hélène Campbell is a 21-year-old Barrhaven woman who raised awareness for organ donations across the world while she lived with a progressive degenerative lung disease. She received a double lung transplant in a Toronto hospital on April 6 after her campaign caught the attention of elebrities including Ellen Degeneres and pop sensation Justin Bieber through her Twitter account @alungstory.
  • 14.
  • 15.
  • 16.
  • 17.
  • 18. Open Access publishing Advantages • Open Access enhances visibility and impact of one's own work as Open Access articles are downloaded and cited more frequently than articles from non-Open Access journals. • Free access to scientific knowledge, information and data strengthens the basis for knowledge transfer • Developing countries and small or specialised research institutions and corporations have access to all Open Access articles.
  • 19. Melissa Terras, “Digital Curiosities: Resource Creation Via Amateur Digitisation,” Literary and Linguistic Computing, 25.4 (2009): 425 – 438.
  • 20.
  • 21.
  • 22.
  • 23.
  • 24.
  • 25.
  • 26.
  • 27. Examples of posters (Alzheimer Europe 2014) P14.4. Dr Shibley Rahman (England, UK), Kate Swaffer (Australia), Dr Peter Gordon (Scotland), Prof Facundo Manes (Argentina): Would future NHS dementia care easily lend itself to private markets? PO124. Dr Shibley Rahman (England, UK), Kate Swaffer (Australia), Dr Peter Gordon (Scotland), Prof Facundo Manes (Argentina): Who were the biggest winners and losers of the G8 Dementia Summit? An online survey PO167. Dr Shibley Rahman (England, UK), Kate Swaffer (Australia), Dr Peter Gordon (Scotland), Prof Facundo Manes (Argentina):An analysis of 75 English language online articles on the G8 Dementia Summit
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  • 36. Disruption and transformation change Important issues for older people – including loneliness and dementia Traditional research training Social media platforms – Facebook and Twitter How I’ve personally used new media to conduct research and share research results Research impact Self-reflection