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Autism spectrum
DisorDers
Foundations, CharaCteristiCs, and eFFeCtive strategies
Second Edition
E. Amanda Boutot
Texas State University
Boston Columbus Indianapolis New York San Francisco
Amsterdam Cape Town Dubai London Madrid Milan Munich
Paris Montreal Toronto
Delhi Mexico City São Paulo Sydney Hong Kong Seoul
Singapore Taipei Tokyo
A01_BOUT6877_02_SE_FM.indd 1 1/28/16 5:42 PM
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Library of Congress Cataloging-in-Publication Data
Names: Boutot, E. Amanda, editor of compilation, author. |
Myles,
Brenda Smith, editor of compilation, author.
Title: Autism spectrum disorders : foundations, characteristics,
and
effective strategies / edited by E. Amanda Boutot, Texas State
University.
Description: Second edition. | Pearson : Boston, 2017. | Includes
index.
Identifiers: LCCN 2015039818| ISBN 9780133436877 (alk.
paper) |
ISBN 013343687X (alk. paper)
Subjects: LCSH: Youth with autism spectrum disorders—
Education —United
States. | Youth with autism spectrum disorders—United States.
| Inclusive
education—United States.
Classification: LCC LC4718 .A87 2017 | DDC 371.9—dc23 LC
record available at http://lccn.loc.gov/2015039818
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http://lccn.loc.gov/2015039818
iii
BriEf ContEnts
chapter 1 overview of Autism spectrum Disorders 1
chapter 2 Evidence-Based Practices for Educating students with
Autism spectrum Disorders 21
chapter 3 Working with families of Children with Autism 40
chapter 4 Environmental Arrangement to Prevent Contextually
inappropriate Behavior 59
chapter 5 teaching students with Autism Using the Principles
of Applied Behavior Analysis 79
chapter 6 teaching students with Autism to Communicate 96
chapter 7 social Challenges of Children and Youth with Autism
spectrum Disorders 123
chapter 8 Daily Living skills 141
chapter 9 Effective Practices for teaching Academic skills to
students with Autism spectrum Disorders 157
chapter 10 Play-focused interventions for Young Children
with Autism 169
chapter 11 Assistive technology for Learners with Autism
spectrum Disorders 181
chapter 12 Motor Consideration for individuals with Autism
spectrum Disorder 192
chapter 13 sexuality Education for students with AsD 205
chapter 14 transition to Postsecondary Environments for
students with Autism spectrum Disorders 217
A01_BOUT6877_02_SE_FM.indd 3 1/28/16 5:42 PM
iv
ContEnts
Preface viii
Chapter 1 overview of Autism spectrum Disorders 1
Chapter Objectives 1
Case Study Examples 1
Introduction 2
Autism Spectrum Disorders 3
Diagnosing Autism Spectrum Disorders 4
Causes of Autism Spectrum Disorders 6
Characteristics of Autism Spectrum Disorders 8
Development of the Individualized Education Program 16
Summary 20 • Chapter Review Questions 20 • Key Terms 20 •
Internet Resources 20
Chapter 2 Evidence-Based Practices for Educating students
with Autism spectrum Disorders 21
Chapter Objectives 21
Introduction 21
Evidence-Based Practices: Definition and Rationale 23
Unestablished and Fad Treatments 30
Child and Family-Centered Decision Making 33
Selecting an Instructional Approach 35
Summary 38 • Chapter Review Questions 39 • Key Terms 39 •
Internet Resources 39
Chapter 3 Working with families of Children with
Autism 40
Chapter Objectives 40
Case Study Examples 40
Introduction 42
Getting the Diagnosis 42
Parental Priorities for Their Children with Autism 44
Impact of Autism on Parents 45
Siblings 53
Family Issues Across the Life Span 55
Summary 58 • Chapter Review Questions 58 • Key Terms 58 •
Internet Resources 58
A01_BOUT6877_02_SE_FM.indd 4 1/28/16 5:42 PM
Chapter 4 Environmental Arrangement to
Prevent Contextually inappropriate Behavior 59
Chapter Objectives 59
Case Study Examples 59
Introduction 61
Motivation 62
Functional Assessment and Behavior Support Planning 63
Antecedent-Based Intervention 68
Summary 78 • Chapter Review Questions 78 • Key Terms 78 •
Internet Resources 78
Chapter 5 teaching students with Autism Using the
Principles of Applied Behavior Analysis 79
Chapter Objectives 79
Case Study Examples 79
Introduction to Applied Behavior Analysis 80
Using ABA to Teach Students with Autism 82
Using ABA to Teach Skill Acquisition (New Learning) 82
Variations of Instructional Focus and Delivery 89
Using ABA to Address Challenging Behaviors 92
Summary 95 • Chapter Review Questions 95 • Key Terms 95
Chapter 6 teaching students with Autism to
Communicate 96
Chapter Objectives 96
Case Study Examples 96
Introduction 97
What Is Social Communication and Why Is It Important? 97
Communication Characteristics of Learners with Autism 103
Communication Assessment and Intervention 105
Summary 121 • Chapter Review Questions 121 • Key
Terms 122 • Internet Resources 122
Chapter 7 social Challenges of Children and Youth with
Autism spectrum Disorders 123
Chapter Objectives 123
Case Study Examples 123
Introduction 124
Common Social Skills Deficits 124
Social Skills Assessment 128
Social Skills Training 130
Summary 139 • Chapter Review Questions 139 • Key Terms 140
CONTENTS v
A01_BOUT6877_02_SE_FM.indd 5 1/28/16 5:42 PM
Chapter 8 Daily Living skills 141
Chapter Objectives 141
Case Study Examples 141
Introduction 142
Core Characteristics That Impact Daily Living Skill Deficits
143
Independence 145
Concerns When Skills Are Not Developed 145
Barriers to Learning and Dependence on Others 145
Challenging Behaviors 147
Daily Living Skills—Developmental Milestones 147
Instructional Strategies 149
Development of Goals and Objectives for Daily Living Skills
152
Measurement of Goals and Progress 152
Data Collection Procedures 153
Visual Analysis of Progress 154
Summary 155 • Chapter Review Questions 156 • Key
Terms 156 • Internet Resources 156
Chapter 9 Effective Practices for teaching
Academic skills to students with Autism
spectrum Disorders 157
Chapter Objectives 157
Looking Ahead: Academic Expectations That Impact Students
with ASD 158
Academic Outcomes 159
Connecting Research and Practice 160
Summary 167 • Chapter Review Questions 168 • Key
Terms 168 • Internet Resources 168
Chapter 10 Play-focused interventions for Young Children
with Autism 169
Chapter Objectives 169
Case Study Examples 169
Overview of Play Characteristics and Issues for Young Children
with Autism 170
Teaching Children with Autism to Play 174
Adapting Play Materials 175
Chapter Review Questions 180
Chapter 11 Assistive technology for Learners with
Autism spectrum Disorders 181
Chapter Objectives 181
Case Study Examples 181
Introduction 182
Areas of Human Function 183
vi CONTENTS
A01_BOUT6877_02_SE_FM.indd 6 1/28/16 5:42 PM
Assistive Technology Service Delivery Systems 188
Collaboration 189
Summary 190 • Key Terms 190 • Chapter Review
Questions 190 • Internet Resources 190
Chapter 12 Motor Consideration for individuals
with Autism spectrum Disorder 192
Chapter Objectives 192
Case Study Examples 192
Introduction 193
The Importance of Movement 193
Movement Taxonomies 193
Why Is the Investigation of Motor Deficits an Important
Question? 194
What Is the Evidence for Motor Deficits in Children with ASD?
196
Can Motor Impairments Be Part of Early Detection? 200
What Is the Importance of Physical Therapy? 201
Standard Motor Skill Assessments 202
Summary 203 • Chapter Review Questions 204 • Key Terms
204
Chapter 13 sexuality Education for students with AsD 205
Chapter Objectives 205
Case Study 1: Understanding the Need for Sexuality Education
205
Sexuality Education 206
Teaching Sexuality Across the Life Span 207
Case Study 2: Teaching Sexuality Education Through
Collaboration 208
Collaboration of the IEP Team 208
Choosing a Curriculum to Teach Sexuality 209
Individualizing Curricula with Evidence-Based Strategies 209
Case Study 3: Individualizing Sexuality Education Training 211
Building Sexuality Education Intervention Plans 211
Summary 216 • Chapter Review Questions 216 • Key Terms 216
• Internet
Resources 216
Chapter 14 transition to Postsecondary Environments for
students with Autism spectrum Disorders 217
Chapter Objectives 217
Introduction 217
Overview and History of the Transition Process and Services
218
Issues and Considerations in Transition Programming for
Students with ASD 220
Autism Intervention Models and the Transition Process 222
Components of Effective Transition Programming 224
Summary 231 • Chapter Review Questions 231 • Key Terms 231
• Internet Resources 232
References 233
Index 261
CONTENTS vii
A01_BOUT6877_02_SE_FM.indd 7 1/28/16 5:42 PM
viii
This is an introductory text on Autism Spectrum Disorder
(ASD). When I began in this field
as a graduate student and teacher in 1990, the prevalence was
5–10 in 10,000; today it is
1 in 68, with a recent survey suggesting it is even higher. Over
the years, this field has seen
not only extreme growth in the number of diagnoses, but also in
the number of theories as
to cause and treatment. Autism has always been a field fraught
with myth and mystery, and
has seen its fair share of snake oil salesmen and bandwagons.
The truth is that it is still enig-
matic; we know more about cause (genetics; not vaccines) than
we have in the past, yet we are
still without a cure. Until such time as a cure is discovered,
education will remain the most
important and validated tool we have to help these individuals
and their families. I chose to
teach at a university so that I could share with others the truths,
as we know them today, so
that they could help improve the lives of children and youth
with ASD and their families on a
regular, daily basis.
This book is intended for introductory courses on ASD at both
the undergraduate
(pre-service teacher) and graduate (pre- or in-service teacher)
student. Given the increasing
prevalence of children and youth with ASD in public schools
and the extraordinary number
of opinions and options for educating these students, this book
will be valuable for current
and future practitioners seeking a deeper understanding of ASD
as well as a clear explanation
of intervention strategies. This book will be useful for special
and general education courses
covering the autism spectrum, as well as other courses dealing
with ASD such as psychol-
ogy, applied behavior analysis, school psychology, speech
pathology, occupational therapy, and
child development.
The goal in developing this text was to provide a
comprehensive, up-to-date, research-
based introduction to and overview of Autism Spectrum
Disorders (ASD) for future and
current educators and other practitioners. The primary aim was
to bring together, in one text-
book, all of the things university instructors need to present a
broad yet in-depth overview of
ASD, rather than having to pull pieces from multiple sources.
The book was developed to pro-
vide necessary background information so that students
studying the autism spectrum would
(a) understand the disorder, including its many manifestations
and associated characteristics;
(b) understand and appreciate the issues faced by the families of
children and youth on the
autism spectrum so that students could more empathetically
work with them; and (c) have
sufficient information on the myriad instructional strategies
from which students with ASD
may benefit, and based on this knowledge, be able to make an
appropriate decision as to which
strategy may benefit a particular student and why. Most
importantly, the purpose of this text
was to provide sufficient information in major areas related to
educating students with ASD
so that current and future teachers would not have to fall back
on what is found in the media,
social media, or through their own sometimes limited
experiences. One of the most important
concepts a student in an introductory ASD course can
understand is that no two individuals
with ASD are alike, and there is no quick fix or “one size fits
all” for this population. I hope
this message is clear in this second edition of this text. The
original goal was to create a
resource so that future or current teachers could be informed
consumers in the field of ASD, so
that they could distinguish fad and snake oil from evidence-base
and fact. This second edition
continues with that tradition.
PrEfACE
A01_BOUT6877_02_SE_FM.indd 8 1/28/16 5:42 PM
text orgAnizAtion
Instructors will find that the major issues and questions faced
by teachers and future teach-
ers of students on the autism spectrum have been addressed
within this text. The expertise
of multiple individuals from a variety of disciplines (e.g.,
special education, speech-language
pathology, psychology, behavior analysis, and motor behavior)
has been brought together to
provide a comprehensive resource for professionals. As with the
first edition, the book has been
organized to follow the scope and sequence of an introductory
course on ASD, and instructors
of such courses will hopefully find the progression of
information as useful for their courses as
I do for my own. The goal was to provide both depth and
breadth, so that current and future
teachers of students with ASD have a solid foundation of
knowledge on ASD with which to
make important educational decisions for this population of
students.
upDAteD AnD expAnDeD coverAge
In preparing this edition, I, the editor, considered both the ever-
changing field of ASD as
well as the expected knowledge and skills of the teachers who
work with these students and
expanded the text to include both more in-depth foundational
information as well as broader
contexts. The goal was to develop a text that could serve not
only as an introductory text on
ASD, but also as a resource for the professional working with
students with ASD on a day-to-
day basis.
new to this eDition
• We have updated the first chapter on the overview of ASD
for the reader. Not only do
we include the current Diagnostic and Statistical Manual of the
American Psychiatric
Association, Fifth Edition (DSM-V) diagnostic criteria, we also
discuss the current prev-
alence rate, and various characteristics of ASD that may impact
how these students learn.
• In Chapter 2 we have provide an expanded overview of
the research-supported strategies
for students with ASD.
• As professionals, one of our most important assets in our
work is the child’s family.
Chapter 3 covers the impact of ASD on the family across the
lifespan and discusses ways
to improve communication and collaboration with this important
constituency.
• When working with students with ASD, behavioral issues
are often one of the largest
hurdles teachers face. Chapter 4 presents a comprehensive
overview of environmental
modifications that can assist teachers in addressing these
behavioral challenges.
• In chapter 5, we provide an overview of Applied Behavior
Analysis, which is considered
an evident-based practice for working with individuals with
ASD.
• The updated and expanded chapter on Communication
Interventions (Chapter 6) pro-
vides more detail on the development of language for children
with and without ASD,
as well as more recent evidence-base on strategies for
communication instruction.
• As with the previous edition, the Social Skills chapter (7)
provides an in depth review
of the socialization needs of individuals with ASD as well as
current research supported
strategies for social skills instruction.
• Because of the importance of daily living skills
instruction for many students on the
autism spectrum, Chapter 8 was also expanded to include
current evidence-based strate-
gies and program development considerations for teachers.
• As the spectrum of autism includes not only students who
have daily living skills needs,
but also those who require academic skills instruction, Chapter
9 provides an overview
of the current literature on strategies relevant to teaching
reading, math, and writing
skills to students with ASD.
• An expanded Assistive Technology chapter (11) provides
up-to-date evidence-based
information for teachers, who regularly make important
assistive technology decisions
for their students.
PREFACE ix
A01_BOUT6877_02_SE_FM.indd 9 1/28/16 5:42 PM
• Finally, Chapter 14 provides an expansion on Transition
services for youth with ASD.
The chapter includes strategies and resources for instructing
secondary students with
ASD and suggestions for preparing for post-secondary life.
• As previously stated, the field of autism is ever changing,
and this second edition was
designed to keep up with these changes. Three new chapters
were added to improve
upon the comprehensiveness of the text and to provide more
breadth for teachers of
students with ASD:
Chapter 10, Play Focused Interventions for Young Children
with Autism
Chapter 12, Motor Considerations for Individuals with Autism
Spectrum Disorder
Chapter 13: Sexuality Education for Students with Autism
Spectrum Disorder.
FeAtures oF the text
Each chapter begins with learning objectives, which serve as an
advanced organizer to guide
the reader through the more salient concepts that are presented.
At the end of each chapter are
study questions, derived directly from the learning objectives,
to promote self-reflection of the
reader. Throughout each chapter we provide real-life scenarios,
anecdotes, and case studies to
support the concepts presented. In addition, we provide
synopses of current or classic research
(Research Boxes), which further support these concepts.
Information related to diversity is
infused in selected chapters throughout the text in Diversity
Boxes. Trends and Issues Boxes
provide current information on important topics in the field.
Each chapter has a list of key
terms to guide study and a list of Internet resources is also
available in most chapters for those
wishing to take their studies beyond the text.
AcknowleDgments
I would like to thank the individuals who helped in the revision
of this text. I am, as always,
grateful for the support of the Pearson editing team, Ann Davis,
Lindsay Bethoney, Sridhar
Annadurai, and Kerry Rubadue for their unwavering support and
never-ending patience as my
co-contributors as I endeavored to complete this second edition.
I wish to also thank those con-
tributors who assisted with these edits, to make old chapters
new again: Gena Barnhill, Scott
Bellini, Christina Carnahan, Tricia Cassel, Charles Dukes,
Jennifer Durocher, Ketty Patino
Gonzales, Melissa Olive, Jonathan Tarbox, Jennifer Loncola
Walberg, and Elizabeth West.
I’d also like to extend a warm welcome to the authors who
contributed to expanded or new
chapters, bringing their wisdom, experience, and expertise to
the project to make it special and
unique: Christie Aylsworth, Justin Aylsworth, Amarie Carnett,
Clare Chung, Stephen Ciullo,
Shana Gilbert, Mark Guadagnoli, Jennifer Hamrick, Amy
Harbison, Kara Hume, Allyson Lee,
Anna Merrill, Lyndsey Nunes, Amber Paige, Tracy Raulston,
Tal Slemrod, Jason Travers, Amy
Tostonoski, Lauren Tuner-Brown, Michael Wehmeyer, Peggy
Whitby, and Dianne Zager.
I wish also to thank Dr. Brenda Smith Myles. Without her
vision and her faith in me as
an educator, an advocate, and a writer the first edition would
not have been possible. Dr. Myles
gave me confidence and encouragement early in my career and
for that I am grateful.
Many thanks also go to the reviewers of the first edition: Kevin
J. Callahan, University
of North Texas; Thomas McLaughlin, Gonzaga University;
Shanon Taylor, University of
Nevada-Reno; Jane R. Wegner, University of Kansas; and
Thomas Williams, Virginia Tech.
Finally, I’d like to thank my family: my children Georgia and
Isaac; my mom, Essie; and
my partner, Sam. Their encouragement and support were
instrumental in completion of this
project.
EAB
Austin, Texas
x PREFACE
A01_BOUT6877_02_SE_FM.indd 10 1/28/16 5:42 PM
1
Overview of Autism
Spectrum Disorders
Chapter 1
Ketty Gonzalez, ph.D.
tricia Cassel, ph.D.
Psychologists in Private Practice
Jennifer S. Durocher, ph.D.
University of Miami Center for
Autism and Related Disabilities
allyson Lee, M.ed., BCBa
Clinic for Autism, Research,
Evaluation, and Support at
Texas State University
CaSe of roBert
Robert was only 7 years old and his parents had no idea how
they would
be able to manage getting him through the next 11 years of
school. While
Robert had always been a bit temperamental and knew what he
wanted,
his parents never had any significant difficulties parenting him
until he
began preschool at age 3.
From the time he entered preschool, Robert was ostracized by
his
peers because of his lack of social graces and high activity
level. In fact,
Robert was labeled as hyperactive from the moment he set foot
in school. He
would not sit down during Circle Time, refused to share his
toys, and would
frequently hide under a table. Robert’s mother took him to his
pediatrician,
who felt that Robert was a little overactive but that he would
“grow out of
it.” Unfortunately, things continued to go badly in school.
Robert always
seemed upset about something and occasionally bit or
physically fought
with his peers. Time-outs had no effect, and he was kicked out
of two pre-
schools. Robert was labeled a bad seed. Robert’s parents did not
understand
why Robert would behave this way at school, while at home he
could spend
hours with his trains. They started to believe that the teachers
were right
and that they were doing something wrong.
Unfortunately, kindergarten was not any better, and his teacher
sug-
gested that Robert may have Attention-Deficit/Hyperactivity
Disorder
(ADHD). A school psychologist confirmed this suspicion. Then,
in addition to
his aggressive behavior, Robert began to lag behind his
classmates in penman-
ship and coloring. He was also terrible at sports and always the
last child picked
for a team. Robert started getting stomachaches every morning
before school.
By the time Robert entered first grade he hated school and
wondered
why he did not have any friends. His parents started to consider
home-
schooling him. At home, his parents were sometimes puzzled by
Robert.
His facial expressions did not always match his mood and
sometimes he
would have explosive meltdowns, making his parents feel as if
he were a time
bomb ready to explode at any moment. His parents also began
noticing that
Robert did not understand jokes and had difficulty following
movie plots.
They began to worry that perhaps he was not very intelligent. In
addition
to diagnosing Robert with ADHD, doctors suggested that he
may have
early-onset bipolar disorder, which could explain Robert’s
explosive behavior.
Something called Oppositional Defiant Disorder was also
mentioned. In the
summer between first and second grade, Robert attended a
summer camp,
CaSe StuDy Examples
Chapter ObjectiveS
After reading this chapter,
learners should be able to:
1. Describe the characteristics of
Autism Spectrum Disorders.
2. Explain how Autism Spectrum
Disorders are identified and
diagnosed.
3. Identify the changes in the
definition of Autism Spectrum
Disorders.
4. Discuss causal theories
associated with autism.
5. Describe instructional
planning for students with
autism.
M01_BOUT6877_02_SE_C01.indd 1 1/2/16 9:30 AM
2 chApter 1 • Overview Of AutiSm Spectrum DiSOrDerS
and one of the counselors suggested to his parents that an
assessment test for Asperger Syndrome
(AS), a form of autism, should be given to Robert. His parents
took him to a university-based
clinic, where they were immediately told that while Robert
certainly exhibited many symp-
toms consistent with ADHD, a significant number of his
problems were not explained by
ADHD. After a thorough assessment, Robert was diagnosed
with Autism Spectrum Disorder.
Recommendations included treating the co-occurring ADHD
symptoms through a combination
of medication and behavioral techniques, specific behavioral
recommendations, school accommo-
dations, plus therapies for specific deficits. Robert’s parents
were worried, but relieved, with the
diagnosis. At this time, Robert is getting ready to start middle
school. Although things are not
perfect and he continues to struggle, he has made much progress
socially and has one good friend
who is described as somewhat odd himself. However, the match
between the two of them has
done wonders for Robert’s self-esteem and he enjoys going to
school again.
CaSe of JaCoB
Jacob’s parents first became concerned about his development
when he was around 18 months
old, when they realized he was not talking, or even babbling,
like other children his age. As Jacob
got a little older, he showed limited interest in playing with his
toys and tended to line them up
or examine them while waving them in front of his face. He
occasionally babbled, but this bab-
bling did not seem to be an attempt to communicate. In fact,
Jacob rarely communicated with
his family unless he wanted something. Even when something
was important to him, he rarely
made eye contact with his mother or smiled at her. Jacob
frequently flapped his arms, spun
around in circles, or tensed his body when he was upset or
excited. Jacob’s parents had him eval-
uated when he was almost 3 years old. Results of the evaluation
indicated that Jacob had severe
deficits in the primary areas associated with Autism Spectrum
Disorder. Jacob is now 5 and con-
tinues to flap his arms and rock back and forth. He does not
have friends, nor does he have any
interest in other children. Although he can be loving with his
family, it is always on his terms.
Jacob is able to say several words, but mainly uses pictures to
communicate with his family.
He is obsessed with Thomas the Tank Engine and carries a train
with him wherever he goes.
IntroduCtIon
One in 68 individuals in the United States is diagnosed with an
Autism Spectrum Disorder
(ASD), according to the Centers for Disease Control and
Prevention (CDC, 2014). This rep-
resents a substantial increase in overall prevalence over the last
two decades. In 1990, for
example, that figure was 5 to 10 in 10,000. In fact, autism is the
fastest growing childhood
disorder and is more common than childhood cancer, cystic
fibrosis, and multiple sclerosis
combined (Autism Society of America, 2008). Teachers in
public schools today will almost
certainly encounter a student with ASD, and for those entering
the field of special education,
the chances are probably greater that you will win the lottery
than not have a student with
ASD during the course of your career. Autism is a relatively
recent disorder, having only been
recognized in the early 1940s. Therefore, what we know and
understand about ASD is still
in its infancy; there is still much unknown and misunderstood
about this exceptionality. The
purpose of this chapter is to provide the reader with a basic
overview to help guide under-
standing of the complexities of ASD as well as changes to the
diagnosis. This text is …

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  • 1. Autism spectrum DisorDers Foundations, CharaCteristiCs, and eFFeCtive strategies Second Edition E. Amanda Boutot Texas State University Boston Columbus Indianapolis New York San Francisco Amsterdam Cape Town Dubai London Madrid Milan Munich Paris Montreal Toronto Delhi Mexico City São Paulo Sydney Hong Kong Seoul Singapore Taipei Tokyo A01_BOUT6877_02_SE_FM.indd 1 1/28/16 5:42 PM Vice President and Editorial Director: Jeffery W. Johnston Executive Editor: Ann Castel Davis Editorial Assistant: Anne McAlpine Executive Field Marketing Manager: Krista Clark Senior Product Marketing Manager: Christopher Barry Project Manager: Kerry Rubadue Program Manager: Joe Sweeney Operations Specialist: Carol Melville Text Designer: Lumina Datamatics, Inc.
  • 2. Cover Design Director: Diane Ernsberger Cover Art: Roy Scott/Ikon Images/Corbis Media Producer: Autumn Benson Full-Service Project Management: Lumina Datamatics, Inc. Composition: Lumina Datamatics, Inc. Printer/Binder: RR Donnelley / Harrisonburg South Cover Printer: Phoenix Color/Hagerstown Text Font: 10/12 Garamond 3 LT Pro Package ISBN 10: 0-13-383369-0 ISBN 13: 978-0-13-383369-0 E-text ISBN 10: 0-13-352264-4 ISBN 13: 978-0-13-352264-8 Access Code Card ISBN 10: 0-13-377988-2 ISBN 13: 978-0-13-377988-2 Loose Leaf Version ISBN 10: 0-13-343687-X ISBN 13: 978-0-13-343687-7 Copyright © 2017, 2011 by Pearson Education, Inc. or its affiliates. All Rights Reserved. Printed in the United States of America. This publication is protected by copyright, and permission should be obtained from the publisher prior to any prohibited reproduction, storage in a retrieval system, or transmission in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise. For information regarding permissions, request forms and the appropriate contacts within the Pearson Education Global Rights & Permissions department, please visit www.pearsoned.com/permissions/. Acknowledgements of third party content appear on pages within text, which constitute an extension of this copyright page.
  • 3. Unless otherwise indicated herein, any third-party trademarks that may appear in this work are the property of their respective owners and any references to third-party trademarks, logos or other trade dress are for demonstrative or descriptive purposes only. Such references are not intended to imply any sponsorship, endorsement, authorization, or promotion of Pearson’s products by the owners of such marks, or any relationship between the owner and Pearson Education, Inc. or its affiliates, authors, licensees or distributors. Library of Congress Cataloging-in-Publication Data Names: Boutot, E. Amanda, editor of compilation, author. | Myles, Brenda Smith, editor of compilation, author. Title: Autism spectrum disorders : foundations, characteristics, and effective strategies / edited by E. Amanda Boutot, Texas State University. Description: Second edition. | Pearson : Boston, 2017. | Includes index. Identifiers: LCCN 2015039818| ISBN 9780133436877 (alk. paper) | ISBN 013343687X (alk. paper) Subjects: LCSH: Youth with autism spectrum disorders— Education —United States. | Youth with autism spectrum disorders—United States. | Inclusive education—United States. Classification: LCC LC4718 .A87 2017 | DDC 371.9—dc23 LC record available at http://lccn.loc.gov/2015039818 10 9 8 7 6 5 4 3 2 1 A01_BOUT6877_02_SE_FM.indd 2 1/28/16 5:42 PM
  • 4. www.pearsoned.com/permissions/ http://lccn.loc.gov/2015039818 iii BriEf ContEnts chapter 1 overview of Autism spectrum Disorders 1 chapter 2 Evidence-Based Practices for Educating students with Autism spectrum Disorders 21 chapter 3 Working with families of Children with Autism 40 chapter 4 Environmental Arrangement to Prevent Contextually inappropriate Behavior 59 chapter 5 teaching students with Autism Using the Principles of Applied Behavior Analysis 79 chapter 6 teaching students with Autism to Communicate 96 chapter 7 social Challenges of Children and Youth with Autism spectrum Disorders 123 chapter 8 Daily Living skills 141 chapter 9 Effective Practices for teaching Academic skills to students with Autism spectrum Disorders 157 chapter 10 Play-focused interventions for Young Children with Autism 169 chapter 11 Assistive technology for Learners with Autism
  • 5. spectrum Disorders 181 chapter 12 Motor Consideration for individuals with Autism spectrum Disorder 192 chapter 13 sexuality Education for students with AsD 205 chapter 14 transition to Postsecondary Environments for students with Autism spectrum Disorders 217 A01_BOUT6877_02_SE_FM.indd 3 1/28/16 5:42 PM iv ContEnts Preface viii Chapter 1 overview of Autism spectrum Disorders 1 Chapter Objectives 1 Case Study Examples 1 Introduction 2 Autism Spectrum Disorders 3 Diagnosing Autism Spectrum Disorders 4 Causes of Autism Spectrum Disorders 6 Characteristics of Autism Spectrum Disorders 8 Development of the Individualized Education Program 16 Summary 20 • Chapter Review Questions 20 • Key Terms 20 • Internet Resources 20 Chapter 2 Evidence-Based Practices for Educating students with Autism spectrum Disorders 21
  • 6. Chapter Objectives 21 Introduction 21 Evidence-Based Practices: Definition and Rationale 23 Unestablished and Fad Treatments 30 Child and Family-Centered Decision Making 33 Selecting an Instructional Approach 35 Summary 38 • Chapter Review Questions 39 • Key Terms 39 • Internet Resources 39 Chapter 3 Working with families of Children with Autism 40 Chapter Objectives 40 Case Study Examples 40 Introduction 42 Getting the Diagnosis 42 Parental Priorities for Their Children with Autism 44 Impact of Autism on Parents 45 Siblings 53 Family Issues Across the Life Span 55 Summary 58 • Chapter Review Questions 58 • Key Terms 58 • Internet Resources 58 A01_BOUT6877_02_SE_FM.indd 4 1/28/16 5:42 PM Chapter 4 Environmental Arrangement to Prevent Contextually inappropriate Behavior 59 Chapter Objectives 59
  • 7. Case Study Examples 59 Introduction 61 Motivation 62 Functional Assessment and Behavior Support Planning 63 Antecedent-Based Intervention 68 Summary 78 • Chapter Review Questions 78 • Key Terms 78 • Internet Resources 78 Chapter 5 teaching students with Autism Using the Principles of Applied Behavior Analysis 79 Chapter Objectives 79 Case Study Examples 79 Introduction to Applied Behavior Analysis 80 Using ABA to Teach Students with Autism 82 Using ABA to Teach Skill Acquisition (New Learning) 82 Variations of Instructional Focus and Delivery 89 Using ABA to Address Challenging Behaviors 92 Summary 95 • Chapter Review Questions 95 • Key Terms 95 Chapter 6 teaching students with Autism to Communicate 96 Chapter Objectives 96 Case Study Examples 96 Introduction 97 What Is Social Communication and Why Is It Important? 97 Communication Characteristics of Learners with Autism 103 Communication Assessment and Intervention 105 Summary 121 • Chapter Review Questions 121 • Key
  • 8. Terms 122 • Internet Resources 122 Chapter 7 social Challenges of Children and Youth with Autism spectrum Disorders 123 Chapter Objectives 123 Case Study Examples 123 Introduction 124 Common Social Skills Deficits 124 Social Skills Assessment 128 Social Skills Training 130 Summary 139 • Chapter Review Questions 139 • Key Terms 140 CONTENTS v A01_BOUT6877_02_SE_FM.indd 5 1/28/16 5:42 PM Chapter 8 Daily Living skills 141 Chapter Objectives 141 Case Study Examples 141 Introduction 142 Core Characteristics That Impact Daily Living Skill Deficits 143 Independence 145 Concerns When Skills Are Not Developed 145 Barriers to Learning and Dependence on Others 145 Challenging Behaviors 147 Daily Living Skills—Developmental Milestones 147 Instructional Strategies 149 Development of Goals and Objectives for Daily Living Skills 152
  • 9. Measurement of Goals and Progress 152 Data Collection Procedures 153 Visual Analysis of Progress 154 Summary 155 • Chapter Review Questions 156 • Key Terms 156 • Internet Resources 156 Chapter 9 Effective Practices for teaching Academic skills to students with Autism spectrum Disorders 157 Chapter Objectives 157 Looking Ahead: Academic Expectations That Impact Students with ASD 158 Academic Outcomes 159 Connecting Research and Practice 160 Summary 167 • Chapter Review Questions 168 • Key Terms 168 • Internet Resources 168 Chapter 10 Play-focused interventions for Young Children with Autism 169 Chapter Objectives 169 Case Study Examples 169 Overview of Play Characteristics and Issues for Young Children with Autism 170 Teaching Children with Autism to Play 174 Adapting Play Materials 175 Chapter Review Questions 180 Chapter 11 Assistive technology for Learners with Autism spectrum Disorders 181
  • 10. Chapter Objectives 181 Case Study Examples 181 Introduction 182 Areas of Human Function 183 vi CONTENTS A01_BOUT6877_02_SE_FM.indd 6 1/28/16 5:42 PM Assistive Technology Service Delivery Systems 188 Collaboration 189 Summary 190 • Key Terms 190 • Chapter Review Questions 190 • Internet Resources 190 Chapter 12 Motor Consideration for individuals with Autism spectrum Disorder 192 Chapter Objectives 192 Case Study Examples 192 Introduction 193 The Importance of Movement 193 Movement Taxonomies 193 Why Is the Investigation of Motor Deficits an Important Question? 194 What Is the Evidence for Motor Deficits in Children with ASD? 196 Can Motor Impairments Be Part of Early Detection? 200 What Is the Importance of Physical Therapy? 201 Standard Motor Skill Assessments 202
  • 11. Summary 203 • Chapter Review Questions 204 • Key Terms 204 Chapter 13 sexuality Education for students with AsD 205 Chapter Objectives 205 Case Study 1: Understanding the Need for Sexuality Education 205 Sexuality Education 206 Teaching Sexuality Across the Life Span 207 Case Study 2: Teaching Sexuality Education Through Collaboration 208 Collaboration of the IEP Team 208 Choosing a Curriculum to Teach Sexuality 209 Individualizing Curricula with Evidence-Based Strategies 209 Case Study 3: Individualizing Sexuality Education Training 211 Building Sexuality Education Intervention Plans 211 Summary 216 • Chapter Review Questions 216 • Key Terms 216 • Internet Resources 216 Chapter 14 transition to Postsecondary Environments for students with Autism spectrum Disorders 217 Chapter Objectives 217 Introduction 217 Overview and History of the Transition Process and Services 218 Issues and Considerations in Transition Programming for Students with ASD 220 Autism Intervention Models and the Transition Process 222 Components of Effective Transition Programming 224 Summary 231 • Chapter Review Questions 231 • Key Terms 231
  • 12. • Internet Resources 232 References 233 Index 261 CONTENTS vii A01_BOUT6877_02_SE_FM.indd 7 1/28/16 5:42 PM viii This is an introductory text on Autism Spectrum Disorder (ASD). When I began in this field as a graduate student and teacher in 1990, the prevalence was 5–10 in 10,000; today it is 1 in 68, with a recent survey suggesting it is even higher. Over the years, this field has seen not only extreme growth in the number of diagnoses, but also in the number of theories as to cause and treatment. Autism has always been a field fraught with myth and mystery, and has seen its fair share of snake oil salesmen and bandwagons. The truth is that it is still enig- matic; we know more about cause (genetics; not vaccines) than we have in the past, yet we are still without a cure. Until such time as a cure is discovered, education will remain the most important and validated tool we have to help these individuals and their families. I chose to teach at a university so that I could share with others the truths, as we know them today, so that they could help improve the lives of children and youth with ASD and their families on a
  • 13. regular, daily basis. This book is intended for introductory courses on ASD at both the undergraduate (pre-service teacher) and graduate (pre- or in-service teacher) student. Given the increasing prevalence of children and youth with ASD in public schools and the extraordinary number of opinions and options for educating these students, this book will be valuable for current and future practitioners seeking a deeper understanding of ASD as well as a clear explanation of intervention strategies. This book will be useful for special and general education courses covering the autism spectrum, as well as other courses dealing with ASD such as psychol- ogy, applied behavior analysis, school psychology, speech pathology, occupational therapy, and child development. The goal in developing this text was to provide a comprehensive, up-to-date, research- based introduction to and overview of Autism Spectrum Disorders (ASD) for future and current educators and other practitioners. The primary aim was to bring together, in one text- book, all of the things university instructors need to present a broad yet in-depth overview of ASD, rather than having to pull pieces from multiple sources. The book was developed to pro- vide necessary background information so that students studying the autism spectrum would (a) understand the disorder, including its many manifestations and associated characteristics; (b) understand and appreciate the issues faced by the families of children and youth on the
  • 14. autism spectrum so that students could more empathetically work with them; and (c) have sufficient information on the myriad instructional strategies from which students with ASD may benefit, and based on this knowledge, be able to make an appropriate decision as to which strategy may benefit a particular student and why. Most importantly, the purpose of this text was to provide sufficient information in major areas related to educating students with ASD so that current and future teachers would not have to fall back on what is found in the media, social media, or through their own sometimes limited experiences. One of the most important concepts a student in an introductory ASD course can understand is that no two individuals with ASD are alike, and there is no quick fix or “one size fits all” for this population. I hope this message is clear in this second edition of this text. The original goal was to create a resource so that future or current teachers could be informed consumers in the field of ASD, so that they could distinguish fad and snake oil from evidence-base and fact. This second edition continues with that tradition. PrEfACE A01_BOUT6877_02_SE_FM.indd 8 1/28/16 5:42 PM text orgAnizAtion Instructors will find that the major issues and questions faced by teachers and future teach-
  • 15. ers of students on the autism spectrum have been addressed within this text. The expertise of multiple individuals from a variety of disciplines (e.g., special education, speech-language pathology, psychology, behavior analysis, and motor behavior) has been brought together to provide a comprehensive resource for professionals. As with the first edition, the book has been organized to follow the scope and sequence of an introductory course on ASD, and instructors of such courses will hopefully find the progression of information as useful for their courses as I do for my own. The goal was to provide both depth and breadth, so that current and future teachers of students with ASD have a solid foundation of knowledge on ASD with which to make important educational decisions for this population of students. upDAteD AnD expAnDeD coverAge In preparing this edition, I, the editor, considered both the ever- changing field of ASD as well as the expected knowledge and skills of the teachers who work with these students and expanded the text to include both more in-depth foundational information as well as broader contexts. The goal was to develop a text that could serve not only as an introductory text on ASD, but also as a resource for the professional working with students with ASD on a day-to- day basis. new to this eDition • We have updated the first chapter on the overview of ASD
  • 16. for the reader. Not only do we include the current Diagnostic and Statistical Manual of the American Psychiatric Association, Fifth Edition (DSM-V) diagnostic criteria, we also discuss the current prev- alence rate, and various characteristics of ASD that may impact how these students learn. • In Chapter 2 we have provide an expanded overview of the research-supported strategies for students with ASD. • As professionals, one of our most important assets in our work is the child’s family. Chapter 3 covers the impact of ASD on the family across the lifespan and discusses ways to improve communication and collaboration with this important constituency. • When working with students with ASD, behavioral issues are often one of the largest hurdles teachers face. Chapter 4 presents a comprehensive overview of environmental modifications that can assist teachers in addressing these behavioral challenges. • In chapter 5, we provide an overview of Applied Behavior Analysis, which is considered an evident-based practice for working with individuals with ASD. • The updated and expanded chapter on Communication Interventions (Chapter 6) pro- vides more detail on the development of language for children with and without ASD, as well as more recent evidence-base on strategies for
  • 17. communication instruction. • As with the previous edition, the Social Skills chapter (7) provides an in depth review of the socialization needs of individuals with ASD as well as current research supported strategies for social skills instruction. • Because of the importance of daily living skills instruction for many students on the autism spectrum, Chapter 8 was also expanded to include current evidence-based strate- gies and program development considerations for teachers. • As the spectrum of autism includes not only students who have daily living skills needs, but also those who require academic skills instruction, Chapter 9 provides an overview of the current literature on strategies relevant to teaching reading, math, and writing skills to students with ASD. • An expanded Assistive Technology chapter (11) provides up-to-date evidence-based information for teachers, who regularly make important assistive technology decisions for their students. PREFACE ix A01_BOUT6877_02_SE_FM.indd 9 1/28/16 5:42 PM • Finally, Chapter 14 provides an expansion on Transition services for youth with ASD.
  • 18. The chapter includes strategies and resources for instructing secondary students with ASD and suggestions for preparing for post-secondary life. • As previously stated, the field of autism is ever changing, and this second edition was designed to keep up with these changes. Three new chapters were added to improve upon the comprehensiveness of the text and to provide more breadth for teachers of students with ASD: Chapter 10, Play Focused Interventions for Young Children with Autism Chapter 12, Motor Considerations for Individuals with Autism Spectrum Disorder Chapter 13: Sexuality Education for Students with Autism Spectrum Disorder. FeAtures oF the text Each chapter begins with learning objectives, which serve as an advanced organizer to guide the reader through the more salient concepts that are presented. At the end of each chapter are study questions, derived directly from the learning objectives, to promote self-reflection of the reader. Throughout each chapter we provide real-life scenarios, anecdotes, and case studies to support the concepts presented. In addition, we provide synopses of current or classic research (Research Boxes), which further support these concepts. Information related to diversity is infused in selected chapters throughout the text in Diversity Boxes. Trends and Issues Boxes provide current information on important topics in the field.
  • 19. Each chapter has a list of key terms to guide study and a list of Internet resources is also available in most chapters for those wishing to take their studies beyond the text. AcknowleDgments I would like to thank the individuals who helped in the revision of this text. I am, as always, grateful for the support of the Pearson editing team, Ann Davis, Lindsay Bethoney, Sridhar Annadurai, and Kerry Rubadue for their unwavering support and never-ending patience as my co-contributors as I endeavored to complete this second edition. I wish to also thank those con- tributors who assisted with these edits, to make old chapters new again: Gena Barnhill, Scott Bellini, Christina Carnahan, Tricia Cassel, Charles Dukes, Jennifer Durocher, Ketty Patino Gonzales, Melissa Olive, Jonathan Tarbox, Jennifer Loncola Walberg, and Elizabeth West. I’d also like to extend a warm welcome to the authors who contributed to expanded or new chapters, bringing their wisdom, experience, and expertise to the project to make it special and unique: Christie Aylsworth, Justin Aylsworth, Amarie Carnett, Clare Chung, Stephen Ciullo, Shana Gilbert, Mark Guadagnoli, Jennifer Hamrick, Amy Harbison, Kara Hume, Allyson Lee, Anna Merrill, Lyndsey Nunes, Amber Paige, Tracy Raulston, Tal Slemrod, Jason Travers, Amy Tostonoski, Lauren Tuner-Brown, Michael Wehmeyer, Peggy Whitby, and Dianne Zager. I wish also to thank Dr. Brenda Smith Myles. Without her vision and her faith in me as
  • 20. an educator, an advocate, and a writer the first edition would not have been possible. Dr. Myles gave me confidence and encouragement early in my career and for that I am grateful. Many thanks also go to the reviewers of the first edition: Kevin J. Callahan, University of North Texas; Thomas McLaughlin, Gonzaga University; Shanon Taylor, University of Nevada-Reno; Jane R. Wegner, University of Kansas; and Thomas Williams, Virginia Tech. Finally, I’d like to thank my family: my children Georgia and Isaac; my mom, Essie; and my partner, Sam. Their encouragement and support were instrumental in completion of this project. EAB Austin, Texas x PREFACE A01_BOUT6877_02_SE_FM.indd 10 1/28/16 5:42 PM 1 Overview of Autism Spectrum Disorders Chapter 1 Ketty Gonzalez, ph.D.
  • 21. tricia Cassel, ph.D. Psychologists in Private Practice Jennifer S. Durocher, ph.D. University of Miami Center for Autism and Related Disabilities allyson Lee, M.ed., BCBa Clinic for Autism, Research, Evaluation, and Support at Texas State University CaSe of roBert Robert was only 7 years old and his parents had no idea how they would be able to manage getting him through the next 11 years of school. While Robert had always been a bit temperamental and knew what he wanted, his parents never had any significant difficulties parenting him until he began preschool at age 3. From the time he entered preschool, Robert was ostracized by his peers because of his lack of social graces and high activity level. In fact, Robert was labeled as hyperactive from the moment he set foot in school. He would not sit down during Circle Time, refused to share his toys, and would frequently hide under a table. Robert’s mother took him to his pediatrician, who felt that Robert was a little overactive but that he would “grow out of
  • 22. it.” Unfortunately, things continued to go badly in school. Robert always seemed upset about something and occasionally bit or physically fought with his peers. Time-outs had no effect, and he was kicked out of two pre- schools. Robert was labeled a bad seed. Robert’s parents did not understand why Robert would behave this way at school, while at home he could spend hours with his trains. They started to believe that the teachers were right and that they were doing something wrong. Unfortunately, kindergarten was not any better, and his teacher sug- gested that Robert may have Attention-Deficit/Hyperactivity Disorder (ADHD). A school psychologist confirmed this suspicion. Then, in addition to his aggressive behavior, Robert began to lag behind his classmates in penman- ship and coloring. He was also terrible at sports and always the last child picked for a team. Robert started getting stomachaches every morning before school. By the time Robert entered first grade he hated school and wondered why he did not have any friends. His parents started to consider home- schooling him. At home, his parents were sometimes puzzled by Robert. His facial expressions did not always match his mood and sometimes he would have explosive meltdowns, making his parents feel as if
  • 23. he were a time bomb ready to explode at any moment. His parents also began noticing that Robert did not understand jokes and had difficulty following movie plots. They began to worry that perhaps he was not very intelligent. In addition to diagnosing Robert with ADHD, doctors suggested that he may have early-onset bipolar disorder, which could explain Robert’s explosive behavior. Something called Oppositional Defiant Disorder was also mentioned. In the summer between first and second grade, Robert attended a summer camp, CaSe StuDy Examples Chapter ObjectiveS After reading this chapter, learners should be able to: 1. Describe the characteristics of Autism Spectrum Disorders. 2. Explain how Autism Spectrum Disorders are identified and diagnosed. 3. Identify the changes in the definition of Autism Spectrum Disorders. 4. Discuss causal theories associated with autism.
  • 24. 5. Describe instructional planning for students with autism. M01_BOUT6877_02_SE_C01.indd 1 1/2/16 9:30 AM 2 chApter 1 • Overview Of AutiSm Spectrum DiSOrDerS and one of the counselors suggested to his parents that an assessment test for Asperger Syndrome (AS), a form of autism, should be given to Robert. His parents took him to a university-based clinic, where they were immediately told that while Robert certainly exhibited many symp- toms consistent with ADHD, a significant number of his problems were not explained by ADHD. After a thorough assessment, Robert was diagnosed with Autism Spectrum Disorder. Recommendations included treating the co-occurring ADHD symptoms through a combination of medication and behavioral techniques, specific behavioral recommendations, school accommo- dations, plus therapies for specific deficits. Robert’s parents were worried, but relieved, with the diagnosis. At this time, Robert is getting ready to start middle school. Although things are not perfect and he continues to struggle, he has made much progress socially and has one good friend who is described as somewhat odd himself. However, the match between the two of them has done wonders for Robert’s self-esteem and he enjoys going to school again. CaSe of JaCoB
  • 25. Jacob’s parents first became concerned about his development when he was around 18 months old, when they realized he was not talking, or even babbling, like other children his age. As Jacob got a little older, he showed limited interest in playing with his toys and tended to line them up or examine them while waving them in front of his face. He occasionally babbled, but this bab- bling did not seem to be an attempt to communicate. In fact, Jacob rarely communicated with his family unless he wanted something. Even when something was important to him, he rarely made eye contact with his mother or smiled at her. Jacob frequently flapped his arms, spun around in circles, or tensed his body when he was upset or excited. Jacob’s parents had him eval- uated when he was almost 3 years old. Results of the evaluation indicated that Jacob had severe deficits in the primary areas associated with Autism Spectrum Disorder. Jacob is now 5 and con- tinues to flap his arms and rock back and forth. He does not have friends, nor does he have any interest in other children. Although he can be loving with his family, it is always on his terms. Jacob is able to say several words, but mainly uses pictures to communicate with his family. He is obsessed with Thomas the Tank Engine and carries a train with him wherever he goes. IntroduCtIon One in 68 individuals in the United States is diagnosed with an Autism Spectrum Disorder (ASD), according to the Centers for Disease Control and Prevention (CDC, 2014). This rep- resents a substantial increase in overall prevalence over the last
  • 26. two decades. In 1990, for example, that figure was 5 to 10 in 10,000. In fact, autism is the fastest growing childhood disorder and is more common than childhood cancer, cystic fibrosis, and multiple sclerosis combined (Autism Society of America, 2008). Teachers in public schools today will almost certainly encounter a student with ASD, and for those entering the field of special education, the chances are probably greater that you will win the lottery than not have a student with ASD during the course of your career. Autism is a relatively recent disorder, having only been recognized in the early 1940s. Therefore, what we know and understand about ASD is still in its infancy; there is still much unknown and misunderstood about this exceptionality. The purpose of this chapter is to provide the reader with a basic overview to help guide under- standing of the complexities of ASD as well as changes to the diagnosis. This text is …