Pdssn power point final membership meeting - 1.11.13
Piedmont Down Syndrome Support Network
Piedmont Down Syndrome Support Network’s Mission• Enhance the lives of people with Down syndrome• Provide information and support to families and professionals• Provide educational and social opportunities for our members• Educate the community to promote awareness, respect, and inclusion of people with Down syndrome
PDSSN is a Support and Advocacy GroupFounded in 1987Has grown and increased services toothers over the past 12 yearsBecame a 501(c)(3) nonprofitorganization in 2005While the main advocacy remainson Down syndrome, welcomesother special needs groups to manyactivities
PDSSN OrganizationIn 2012, awarded a grant from the Winston-Salem Foundation and hireda part-time executive directorAffiliations: National Down Syndrome Congress, the National DownSyndrome Society, and the Down Syndrome Affiliates in Actionwww.pdssn.com highlights our mission, programs, events calendar,information about Down syndrome, and more.
Programs for Families Who Have Children with Down SyndromeFamily Social GatheringsLadies and Guys Nights OutPDSSN Member ScholarshipsSunshine FundNew Parent Resource NotebookPre and Post Natal ProgramTriad First in Family FundsSeasonal Newsletters
Family Social GatheringsRegular gatherings include:• PDSSN family nights at area restaurants• A winter family gathering• A summer family picnic• Spring KIDS FEST• Ladies Nights Out• Guys Night Out
PDSSN Member ScholarshipsPDSSN members can apply forfunding to attend national and localDown syndrome related conferences.Scholarship awards based on pastyears involvement with the PDSSN.
Sunshine FundThe PDSSN shows supportfor families who arehospitalized by offeringvisits and a gift card toassist families during theirtime of need
PDSSN New Parent Resource NotebookProvides comprehensiveinformation for ages birth throughadulthoodLists I/DD related resources for thesurrounding six countiesAvailable in both English andSpanishMaterials also available online atwww.pdssn.com
Pre & Post Natal ProgramAvailable to any family whose child is diagnosed with Downsyndrome before or after birthProvides up-to-date accurate written information as well as atrained volunteer
Triad First in Family Funds First In Families of North Carolina Believe, Achieve, Give Back. TFIF offers support to families and individuals in Forsyth, Davie & Stokes Counties. Support might be achieved by connecting them to community programs, obtaining discounts and in some cases providing funds. The PDSSN annually provides funds to TFIF that can be used for people who have Down syndrome and their families in the 3 counties TFIF covers plus Surry, Yadkin, and Davidson. Distribution of funds is determined by the TFIF management team.Eligibility Requirements: Triad First In Families supports any family in which one family member has a developmental disability or traumatic brain injury. The family/individual must be living in their own rented or owned home, not in a group home. Total household income cannot exceed $65,000 per year.
PDSSN Programs Open to the CommunityExceptional Families ProgramNext Chapter Book ClubsCommunity EducationProgramsAnnual Down SyndromeUpdateCommunity Grants
Exceptional Families ProgramPartnership with Family Support NetworkMeets 10 times a year on the 4th Thursday ofthe month from 5:30pm to 7:00pm at theLittle Creek Recreation CenterGuest facilitators support discussionsregarding topics of interest to parents ofchildren who have intellectual anddevelopmental disabilitiesA light supper and childcare are availablebut reservations for both are requiredProfessionals are welcome and InfantToddler Credit is available
Next Chapter Book ClubPromotes literacy and encouragesfriendships among adolescents andadults with intellectual disabilities.Members meet for one hour a weekat local bookstores, coffee shopsand cafés to read and discuss abook of their choosing.Anyone can participate, no mattertheir reading or ability level.Two trained volunteers facilitateeach group.
Community Education ProgramsPDSSN Community EducationPrograms are open to everyone.Our speakers have included:speech language pathologists;occupational therapists; ear, noseand throat doctors; special needstrusts attorneys; estate planningprofessionals; and others.PDSSN hosts an annual DownSyndrome update meeting everyJanuary, at which Dr. TamisonJewett presents the most currentmedical information availableabout Down syndrome.
Community GrantsPDSSN makes donations togroups that support people whohave Down syndrome or otherintellectual disabilities.Some recipients: Triad First inFamilies, Beyond Academics,The Special Children’s School,No Limits II, Friday Socialites,and the Family SupportNetwork.
PDSSN Representation on Community Committees CenterPoint’s Consumer & Family Advisory Committee CenterPoint’s I/DD Advisory Committee TFIF Management Team Forsyth County Special Needs Planning Committee Family Support Network’s Local Collaboration Team
The PDSSN Buddy WalkPDSSN’s largest annual fundraiserHeld in October which is DownSyndrome Awareness MonthFun for all includes: food, photos,carnival games, live bands, magicshows, inflatables, and the famoustalent show
2012 Buddy Walk Results Revenue Expenses Net2012 Walk $46,932 $10,388 $36,5432011 Walk $22,048 $9,255 $12,793
2012 AccomplishmentsHeld most successful Buddy WalkTripled our membershipIncreased community awarenessLaunched PDSSN Wine
2013 InitiativesIncrease number and variety of social and educational gatheringsWelcome each new family with a PDSSN Baby Bootie BoxLaunch D.A.D.S. – Dads Appreciating Down SyndromeBuild and expand partnerships with community organizationsProduce our first PDSSN Calendar
PDSSN Member BenefitsSupport, social, and educational opportunitiesInput and voting privileges regarding PDSSN issuesInformation on Down syndrome, resources, and advocacyParent resource notebooksSupport if a family member is hospitalizedScholarship funds to attend local and national conferences