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iMedPub Journals
www.imedpub.com Neurological Science Journal
2017
Vol.1 No.1:7
1© Under License of Creative Commons Attribution 3.0 License |This article is available in: http://www.imedpub.com/neurological-science-journal/
Short Communication
Henry C*
Lourdes Memory Centre, USA
*Corresponding author: Henry C
 caringresources@gmail.com
Dementia Specialist at Lourdes Memory
Centre Director, USA.
Tel: 781-540-1526
Citation: Henry C (2017) Educating the
Dementia Caregiver. Neurol Sci J Vol.1 No.1:7
Introduction
With the continued growth of the aging population, there
continues to be global concern about efficient care and support
for people diagnosed with dementia. Effective interventions have
been developed to care for dementia clients and their families,
but there is still lack of care practice integration. Most of the
work involves the need for higher education including dementia
studies, that can provide key role of specialized knowledge, and
skills, that are needed in dementia care. The goal is to inform the
reader that higher education is a significant player in supplying
proficient practitioners, and health care professionals, the
necessary skills to administer care to dementia clients.
Demographics of Alzheimer’s Disease
Alzheimer’sdisease,themostcommondementia,isaprogressive,
terminal, brain disorder with no known cause or cure [1]. One in
nine Americans over the age of 65 has Alzheimer’s disease [2].
Alzheimer’s disease should not be thought of as a disease, but as
a group of symptoms to manage.
Alzheimer’s disease is a serious health problem throughout the
world.Researchersestimatethatmorethan5.4millionAmericans
have the disease; Alzheimer’s disease is the 6th leading cause of
death in America [3]. “By 2050, the number of people age 65 and
older with Alzheimer’s disease could triple, from 5.2 million to
a projected 13.8 million, barring the development of medical
breakthroughs to prevent or cure the disease” Alzheimer’s
disease is one of the world’s greatest health concerns, impacting
the lives of a significant number of people. This has generated
great concern about the quality of care. Thus, higher education
and dementia studies are playing significant roles in providing
specialist appropriate knowledge, and skills, for dementia care
[4].
Educating the Health Care Work Force
All agree that healthcare workforces must possess specialized
skills to help dementia clients. Training of the dementia workforce
is a huge challenge primarily, because of the increasing number
of people with dementia [5]. “Having a healthcare workforce
skilled in providing high quality care to people with dementia is
of international concern; and high-quality dementia education is
naturally being attached to this ambition”.
Higher Education institutions are of extreme importance since
they prepare students to serve as proficient health professionals.
Research literature constantly examines the curriculum,
development, and resources targeted to students getting ready to
provide healthcare. Where dementia is included in the curricula
is the result of the availability of staff members with knowledge,
experience and a passionate interest, in dementia education [6].
A primary goal is to generate interest related to international
efforts in higher education of dementia care services. Research
has proven that learning outcomes, curricula, approach to
teaching, and assessments required to manage dementia
Behavioral symptomology. Unfortunately, there a shortage of
gerontology programs working with older adults which might
lead to higher psychoactive drug use that too often produce poor
outcomes.
A Theoretical Framework for Dementia:
Person-Centered Care
Person-centered care models, regarding dementia care, have
demonstrated positive outcomes for behavioural disturbances.
The leadership, guidance and training in promoting this model
into practice is weak in our healthcare system. There is an urgent
and growing need for educators, clinicians and researchers
to increase awareness of the requirements of the dementia
population.
Older people with dementia, not surprisingly, have complex
needs, that often require specialized treatment and care. For
example: cognitive and functional impairment often coexists
with additional neuropsychiatric symptoms such as psychosis,
aggression, agitation and depression. Our outcome investigations
stress the unmet needs of this population “and are likely to
Educating the Dementia Caregiver
Received: October 08, 2017; Accepted: October 22, 2017; Published: November 04,
2017
ARCHIVOS DE MEDICINA
ISSN 1698-9465
2017
Vol.1 No.1:7
Neurological Science Journal
2 This article is available in: http://www.imedpub.com/neurological-science-journal/
contribute to an increase in neuropsychiatric symptoms and
unfortunately the widespread prescribing of antipsychotic drugs”
[7].
There has been increasing concentration on the care of the
dementia client in long term care facilities. The health care
work force is constantly trained to provide “task driven” care,
with emphasis on meeting basic physical needs of the patient
through nutrition, hygiene and medication management
(consumerreports.org/patient-centered-care-helps-dementia).
Research points out that task oriented approach to care leads to
inconsistent routines, inability to meet the individual’s social and
emotional needs which lead to increased behavioural symptoms.
Achieving person-centered care consistently requires specific
knowledge, skills and methods of work, a shared philosophy that
utilized the nursing team, and effective culture and organizational
support [8].
Research has provided outcome studies from a conceptual
framework,indicatingthatperson-centeredtraininginterventions
“conferred significant benefit in improving agitation and reducing
the use of antipsychotics”.
Understanding the Dementia Clients
View of Reality
When author first began the work with dementia care,
the philosophy of care centered on “Reality Orientation”.
Fortunately, today, we not only have a better understanding of
the disease process; but have become better acquainted with
interpreting moods and Behavioral interventions to respond
better to our clients. The philosophies of “Habilitation” and
Validation” therapies have done tremendous service for the
dementia client, particularly regarding the individual’s need to
preserve “personhood”. Family and professional caregivers must
continue to understand that dementia clients have little or no
control over verbal and or physical behaviours. However, with the
philosophies of “person centered care” we can keep symptoms
to the minimum.
There existed a concern about dementia care in this country.
The National Dementia Initiative (CCAL Advancing Person-
Centered Living) led by national dementia experts from across
the country came together “to discuss the overall lack of quality
care in general and the overuse of antipsychotic medications for
people who have dementia” [9]. The experts were unanimous
in agreement that the fundamental problems existed in the
mindset of care provision, and concluded that there is a need
and understanding for:
1. Every person has his/her own meaning in life, authenticity
(personality, spirit and character), history, interests, personal
preferences and needs to continue to experience life at all stages
of dementia.
2.Focusonthestrengthsofthepersonlivingwithdementiarather
than on what abilities and capabilities have been diminished.
3. Enter the world” of the person living with dementia to best
understand, communicate with, and interpret the meaning of
his/her Behavioral expressions from their perspective [10].
Author witnessed the significance of the role of physical and
social environments in meeting the needs of the dementia client.
Despite efforts of many to shift the trend from the medical
model of care to a more holistic approach, we still struggle in
this country with the medical community’s inability to focus
on individuality and choice of the dementia client. Author is
fortunate with his work environment in that the organizational
leadership embraced the philosophy of care promoting “person
centered care”.
As mentioned, the healthcare culture has made strides in moving
away from a task oriented model of care towards a more holistic
approach for dementia patients to care better, this we refer to as
person centered care. To better understand this relationship to
dementia care we should review it from a historical perspective
such as:
1) The caregiver viewed dementia strictly from a medical
perspective,
2)	 Care was task driven,
3) 	 Managed the client through chemical and physical restraints,
4) 	 Care disempowered the dementia client. In contrast, person-
centered care empowers the individual through maintaining
independence, empowering the individual through validation
of their lifetime experiences and the freedom to promote a
dignified quality of life.
To further illustrate this, person centered care promotes
the principle of the individual’s life time experiences, unique
relationships and contributions using lifestyle assessments
and appropriate treatment options. These lifetime patterns of
the individual become part of the individual treatment plan.
The “personhood” of the individual with dementia is able to
participate in strength based programming, with a positive
emotional response to care with an improved quality of life for
the individual.
For instance, a client by the name of Theresa, who moved from
Ireland to this country at the age of 16, and met her husband
at an Irish dance in Boston raised five children while working
as a nurse for the 11 pm to 7 am shift. Consequently, she was
diagnosed with Dementia with Behavioral Disturbance, and
admitted to the local skilled nursing facility and medicated for
her disruptive behaviour during her hours of sleep.
When the facility practices “person centered care” the facility
must understand Theresa’s, personhood including her Irish
heritage, occupation, sleep patterns and most importantly her
reality. This is best describing as “…the caregiver must understand
the person with dementia as having personal beliefs, remaining
abilities, life experiences and relationships that are important to
them and contribute to who they are as a person”.
For instance, the client living within the skilled nursing facility
exhibits increased pacing as if looking to go home. Understanding
thisclientviewofrealityindicatesthatinfacttheclientwaslooking
for his childhood home. To determine successful Behavioral and
3
ARCHIVOS DE MEDICINA
ISSN 1698-9465
2017
Vol.1 No.1:7
Neurological Science Journal
© Under License of Creative Commons Attribution 3.0 License
redirection strategies one must utilize a good social history, and
understand behaviour triggers and appropriate environmental
cues. Recommended redirection approaches include:
1. Agreement: attempts to change the client’s reality often
resulting with increased frustration, anxieties and aggression.
2. Redirection: due to client’s short attention span can be
redirected to a new activity with appropriate visual cues and
understanding the client’s reality.
3. Environment: have an understanding that clients are sensitive
to environmental stimulation such as noise, clutter and
lighting.
4. Task completion: behavioural episodes may be reduced by
simplifying tasks to complete, such as dressing, and utilization
programming.
Before we conclude it should be mentioned how the
“environment correlates to behavioural health in the Alzheimer
Special Care Unit” (Gerontologist, 2011). Research has centered
on creating way finding environments, and developing freedom
of movement for the client. The goal is to create an environment
of autonomy and support which encourages and supports
residents to use their remaining faculties to carry out basic tasks
and activities independently and with dignity.
Why person-centered care? There are some clinicians who
believe that too much focus has been on developing person-
centered care cultures, instead of valuing the physician-patient
relationship. My response is that we need more education
regarding the philosophy; in fact, the philosophy should be
enhancing our relationships. Person centered care provides
caregivers the necessary skills and resources to enable them to
provide exceptional care for the client.
An attempt here was to demonstrate the limited exposure to
knowledge, understanding and resources, with discussion for
implication for the care and person-centered responses to staff
trained in dementia services. The sample discussed was based on
measuring healthcare worker knowledge of dementia, standard
of care, staff training and outcome studies of psychotropic drug
use among this clientele.
“Antipsychotic medications continue to be prescribed for the
management of Behavioral and Psychological Symptoms of
Dementia (BPSD) despite revised guidelines, tighter regulations,
and evidence for associated risks including increased cognitive
declineandstroke.Theevidencepointstotheglobalrestructuring
of the Dementia Training Initiatives, and finding new ways to
“enhance the quality of life for people with dementia, protect
them from substandard care and promote goal-oriented, person-
centered care; while the initial focus was on reducing the use of
antipsychotic medications, the larger mission was to enhance
and explain the non-pharmacological approaches and person-
centered dementia practices” [11].
References
1	 Bright Focus Foundation (2016) Alzheimer’s Disease Research
Program. Retrieved From http://www.Brightfocus.org/research/
Alzheimer’s-Disease-research-program.
2	 Alzheimer’s Disease Facts and Figures (2016) Retrieved from http://
www.alz.org/facts.
3	 Alzheimer’s Statistic. Retrieved from http://www.alzheimers.net/
resources/Alzheimer’s-statistic/
4	 Downs M, Capstick A, Baldwin PC, Surr E, Bruce E (2009) The role
of higher education in transforming the quality of dementia care:
dementia studies at the University of Bradford. International Journal
Psychogeriatric 21: S3-S15.
5	 Mustafa, Sorocaba, Le Measurer, Beknows, Kingston P (2013)
Educating and training the workforce to work with people with
Dementia: Two Projects from the United Kingdom. Educational
Gerontology 39: 398-412.
6	 Collier E, Knifton C, Surr C (2015) Dementia education in higher
education. Nurse Education Today.
7	 Fossey J, Mason S, Stafford J, Lawrence V, Corbett A, et al. (2014) The
Disconnect between evidence and practice: a systematic review of
person-Centered interventions and training manuals for care home
staff working with People with dementia. Geriatric Psychiatry 797-
807.
8	 Manley (2011) Person-centered care: Principle of Nursing Practice.
Nursing standard 25: 35-37.
9	 CCAL-Advancing Person Centered Living Retrieved from http://
www.ccal.org/person-centered-dementia-care/.
10	 Generations (2013) Journal of the American Society on Aging.
11	 Brodaty H (2016) Describing antipsychotics in long term care
residents with Behavioral and psychological symptoms of dementia,
Dementia Collaborative Research Centre, University of New South
Wales, Sidney, Australia.

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Educating the dementia caregiver

  • 1. iMedPub Journals www.imedpub.com Neurological Science Journal 2017 Vol.1 No.1:7 1© Under License of Creative Commons Attribution 3.0 License |This article is available in: http://www.imedpub.com/neurological-science-journal/ Short Communication Henry C* Lourdes Memory Centre, USA *Corresponding author: Henry C  caringresources@gmail.com Dementia Specialist at Lourdes Memory Centre Director, USA. Tel: 781-540-1526 Citation: Henry C (2017) Educating the Dementia Caregiver. Neurol Sci J Vol.1 No.1:7 Introduction With the continued growth of the aging population, there continues to be global concern about efficient care and support for people diagnosed with dementia. Effective interventions have been developed to care for dementia clients and their families, but there is still lack of care practice integration. Most of the work involves the need for higher education including dementia studies, that can provide key role of specialized knowledge, and skills, that are needed in dementia care. The goal is to inform the reader that higher education is a significant player in supplying proficient practitioners, and health care professionals, the necessary skills to administer care to dementia clients. Demographics of Alzheimer’s Disease Alzheimer’sdisease,themostcommondementia,isaprogressive, terminal, brain disorder with no known cause or cure [1]. One in nine Americans over the age of 65 has Alzheimer’s disease [2]. Alzheimer’s disease should not be thought of as a disease, but as a group of symptoms to manage. Alzheimer’s disease is a serious health problem throughout the world.Researchersestimatethatmorethan5.4millionAmericans have the disease; Alzheimer’s disease is the 6th leading cause of death in America [3]. “By 2050, the number of people age 65 and older with Alzheimer’s disease could triple, from 5.2 million to a projected 13.8 million, barring the development of medical breakthroughs to prevent or cure the disease” Alzheimer’s disease is one of the world’s greatest health concerns, impacting the lives of a significant number of people. This has generated great concern about the quality of care. Thus, higher education and dementia studies are playing significant roles in providing specialist appropriate knowledge, and skills, for dementia care [4]. Educating the Health Care Work Force All agree that healthcare workforces must possess specialized skills to help dementia clients. Training of the dementia workforce is a huge challenge primarily, because of the increasing number of people with dementia [5]. “Having a healthcare workforce skilled in providing high quality care to people with dementia is of international concern; and high-quality dementia education is naturally being attached to this ambition”. Higher Education institutions are of extreme importance since they prepare students to serve as proficient health professionals. Research literature constantly examines the curriculum, development, and resources targeted to students getting ready to provide healthcare. Where dementia is included in the curricula is the result of the availability of staff members with knowledge, experience and a passionate interest, in dementia education [6]. A primary goal is to generate interest related to international efforts in higher education of dementia care services. Research has proven that learning outcomes, curricula, approach to teaching, and assessments required to manage dementia Behavioral symptomology. Unfortunately, there a shortage of gerontology programs working with older adults which might lead to higher psychoactive drug use that too often produce poor outcomes. A Theoretical Framework for Dementia: Person-Centered Care Person-centered care models, regarding dementia care, have demonstrated positive outcomes for behavioural disturbances. The leadership, guidance and training in promoting this model into practice is weak in our healthcare system. There is an urgent and growing need for educators, clinicians and researchers to increase awareness of the requirements of the dementia population. Older people with dementia, not surprisingly, have complex needs, that often require specialized treatment and care. For example: cognitive and functional impairment often coexists with additional neuropsychiatric symptoms such as psychosis, aggression, agitation and depression. Our outcome investigations stress the unmet needs of this population “and are likely to Educating the Dementia Caregiver Received: October 08, 2017; Accepted: October 22, 2017; Published: November 04, 2017
  • 2. ARCHIVOS DE MEDICINA ISSN 1698-9465 2017 Vol.1 No.1:7 Neurological Science Journal 2 This article is available in: http://www.imedpub.com/neurological-science-journal/ contribute to an increase in neuropsychiatric symptoms and unfortunately the widespread prescribing of antipsychotic drugs” [7]. There has been increasing concentration on the care of the dementia client in long term care facilities. The health care work force is constantly trained to provide “task driven” care, with emphasis on meeting basic physical needs of the patient through nutrition, hygiene and medication management (consumerreports.org/patient-centered-care-helps-dementia). Research points out that task oriented approach to care leads to inconsistent routines, inability to meet the individual’s social and emotional needs which lead to increased behavioural symptoms. Achieving person-centered care consistently requires specific knowledge, skills and methods of work, a shared philosophy that utilized the nursing team, and effective culture and organizational support [8]. Research has provided outcome studies from a conceptual framework,indicatingthatperson-centeredtraininginterventions “conferred significant benefit in improving agitation and reducing the use of antipsychotics”. Understanding the Dementia Clients View of Reality When author first began the work with dementia care, the philosophy of care centered on “Reality Orientation”. Fortunately, today, we not only have a better understanding of the disease process; but have become better acquainted with interpreting moods and Behavioral interventions to respond better to our clients. The philosophies of “Habilitation” and Validation” therapies have done tremendous service for the dementia client, particularly regarding the individual’s need to preserve “personhood”. Family and professional caregivers must continue to understand that dementia clients have little or no control over verbal and or physical behaviours. However, with the philosophies of “person centered care” we can keep symptoms to the minimum. There existed a concern about dementia care in this country. The National Dementia Initiative (CCAL Advancing Person- Centered Living) led by national dementia experts from across the country came together “to discuss the overall lack of quality care in general and the overuse of antipsychotic medications for people who have dementia” [9]. The experts were unanimous in agreement that the fundamental problems existed in the mindset of care provision, and concluded that there is a need and understanding for: 1. Every person has his/her own meaning in life, authenticity (personality, spirit and character), history, interests, personal preferences and needs to continue to experience life at all stages of dementia. 2.Focusonthestrengthsofthepersonlivingwithdementiarather than on what abilities and capabilities have been diminished. 3. Enter the world” of the person living with dementia to best understand, communicate with, and interpret the meaning of his/her Behavioral expressions from their perspective [10]. Author witnessed the significance of the role of physical and social environments in meeting the needs of the dementia client. Despite efforts of many to shift the trend from the medical model of care to a more holistic approach, we still struggle in this country with the medical community’s inability to focus on individuality and choice of the dementia client. Author is fortunate with his work environment in that the organizational leadership embraced the philosophy of care promoting “person centered care”. As mentioned, the healthcare culture has made strides in moving away from a task oriented model of care towards a more holistic approach for dementia patients to care better, this we refer to as person centered care. To better understand this relationship to dementia care we should review it from a historical perspective such as: 1) The caregiver viewed dementia strictly from a medical perspective, 2) Care was task driven, 3) Managed the client through chemical and physical restraints, 4) Care disempowered the dementia client. In contrast, person- centered care empowers the individual through maintaining independence, empowering the individual through validation of their lifetime experiences and the freedom to promote a dignified quality of life. To further illustrate this, person centered care promotes the principle of the individual’s life time experiences, unique relationships and contributions using lifestyle assessments and appropriate treatment options. These lifetime patterns of the individual become part of the individual treatment plan. The “personhood” of the individual with dementia is able to participate in strength based programming, with a positive emotional response to care with an improved quality of life for the individual. For instance, a client by the name of Theresa, who moved from Ireland to this country at the age of 16, and met her husband at an Irish dance in Boston raised five children while working as a nurse for the 11 pm to 7 am shift. Consequently, she was diagnosed with Dementia with Behavioral Disturbance, and admitted to the local skilled nursing facility and medicated for her disruptive behaviour during her hours of sleep. When the facility practices “person centered care” the facility must understand Theresa’s, personhood including her Irish heritage, occupation, sleep patterns and most importantly her reality. This is best describing as “…the caregiver must understand the person with dementia as having personal beliefs, remaining abilities, life experiences and relationships that are important to them and contribute to who they are as a person”. For instance, the client living within the skilled nursing facility exhibits increased pacing as if looking to go home. Understanding thisclientviewofrealityindicatesthatinfacttheclientwaslooking for his childhood home. To determine successful Behavioral and
  • 3. 3 ARCHIVOS DE MEDICINA ISSN 1698-9465 2017 Vol.1 No.1:7 Neurological Science Journal © Under License of Creative Commons Attribution 3.0 License redirection strategies one must utilize a good social history, and understand behaviour triggers and appropriate environmental cues. Recommended redirection approaches include: 1. Agreement: attempts to change the client’s reality often resulting with increased frustration, anxieties and aggression. 2. Redirection: due to client’s short attention span can be redirected to a new activity with appropriate visual cues and understanding the client’s reality. 3. Environment: have an understanding that clients are sensitive to environmental stimulation such as noise, clutter and lighting. 4. Task completion: behavioural episodes may be reduced by simplifying tasks to complete, such as dressing, and utilization programming. Before we conclude it should be mentioned how the “environment correlates to behavioural health in the Alzheimer Special Care Unit” (Gerontologist, 2011). Research has centered on creating way finding environments, and developing freedom of movement for the client. The goal is to create an environment of autonomy and support which encourages and supports residents to use their remaining faculties to carry out basic tasks and activities independently and with dignity. Why person-centered care? There are some clinicians who believe that too much focus has been on developing person- centered care cultures, instead of valuing the physician-patient relationship. My response is that we need more education regarding the philosophy; in fact, the philosophy should be enhancing our relationships. Person centered care provides caregivers the necessary skills and resources to enable them to provide exceptional care for the client. An attempt here was to demonstrate the limited exposure to knowledge, understanding and resources, with discussion for implication for the care and person-centered responses to staff trained in dementia services. The sample discussed was based on measuring healthcare worker knowledge of dementia, standard of care, staff training and outcome studies of psychotropic drug use among this clientele. “Antipsychotic medications continue to be prescribed for the management of Behavioral and Psychological Symptoms of Dementia (BPSD) despite revised guidelines, tighter regulations, and evidence for associated risks including increased cognitive declineandstroke.Theevidencepointstotheglobalrestructuring of the Dementia Training Initiatives, and finding new ways to “enhance the quality of life for people with dementia, protect them from substandard care and promote goal-oriented, person- centered care; while the initial focus was on reducing the use of antipsychotic medications, the larger mission was to enhance and explain the non-pharmacological approaches and person- centered dementia practices” [11]. References 1 Bright Focus Foundation (2016) Alzheimer’s Disease Research Program. Retrieved From http://www.Brightfocus.org/research/ Alzheimer’s-Disease-research-program. 2 Alzheimer’s Disease Facts and Figures (2016) Retrieved from http:// www.alz.org/facts. 3 Alzheimer’s Statistic. Retrieved from http://www.alzheimers.net/ resources/Alzheimer’s-statistic/ 4 Downs M, Capstick A, Baldwin PC, Surr E, Bruce E (2009) The role of higher education in transforming the quality of dementia care: dementia studies at the University of Bradford. International Journal Psychogeriatric 21: S3-S15. 5 Mustafa, Sorocaba, Le Measurer, Beknows, Kingston P (2013) Educating and training the workforce to work with people with Dementia: Two Projects from the United Kingdom. Educational Gerontology 39: 398-412. 6 Collier E, Knifton C, Surr C (2015) Dementia education in higher education. Nurse Education Today. 7 Fossey J, Mason S, Stafford J, Lawrence V, Corbett A, et al. (2014) The Disconnect between evidence and practice: a systematic review of person-Centered interventions and training manuals for care home staff working with People with dementia. Geriatric Psychiatry 797- 807. 8 Manley (2011) Person-centered care: Principle of Nursing Practice. Nursing standard 25: 35-37. 9 CCAL-Advancing Person Centered Living Retrieved from http:// www.ccal.org/person-centered-dementia-care/. 10 Generations (2013) Journal of the American Society on Aging. 11 Brodaty H (2016) Describing antipsychotics in long term care residents with Behavioral and psychological symptoms of dementia, Dementia Collaborative Research Centre, University of New South Wales, Sidney, Australia.