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WELCOME 
Today’s Webinar 
Frailty as a long term condition?
Frailty as a Long Term Condition? 
Monday 10 November 2014 
12noon – 12.45pm 
Professor John Young 
National Clinical Director for Integration & Frail Elderly, NHS England 
& 
Beverley Matthews 
LTC Programme Lead, NHS Improving Quality
Meet the Speakers 
Bev Matthews 
A nurse by background, Beverley has worked extensively throughout the NHS in a variety of 
clinical, managerial and strategic roles. Beverley’s current role as Programme Delivery Lead 
for Long Term Conditions Improvement Programmes: LTC Year of Care Commissioning 
Model and LTC Framework. Prior to joining NHS Improving Quality in April 2013, Beverley 
was Director of NHS Kidney Care and NHS Liver Care. Passionate about service 
transformation through developing networks and leading complex programmes. Providing 
strategic leadership to partners within health communities, managing stakeholders and 
working across agencies. 
Professor John Young 
Trained at the Middlesex Hospital, London; appointed as a consultant geriatrician in 
Bradford in 1986 . He has developed numerous new services including an elderly care 
assessment unit; a stroke unit; and an ortho-geriatric unit. Appointed as Head of the 
Academic Unit of Elderly Care & Rehabilitation, University of Leeds, 2005. 
Quality improvement work includes the national audits of intermediate care and of 
dementia care. Between 2001 and 2007 John was seconded to the DH to assist with the NSF 
for Older People. He is currently seconded to NHS England as National Clinical Director for 
Integration and Frail Elderly.
Learning Outcomes 
Frailty as a Long Term Condition? 
of Care foundation. 
 Understanding of case finding tools for frailty 
• Understanding a graduated long term condition response to people 
living with frailty based on supported self-management; care and 
support planning, case management; and anticipatory end of life 
care
Beverley Matthews 
LTC Programme Lead 
NHS Improving Quality 
Beverley.matthews@nhsiq.nhs.uk
Bespoke Support
The approach: 
• Identify sites guided by intelligence from the LTC Dashboard 
and local advice 
• Support local health economies to understand their baseline 
position through the self assessment Diagnostic Tool 
• Provide coaching support to start identifying interventions 
that will drive change and develop the local action plan. 
• Agree bespoke support package with memorandum of 
understanding 
• Developing a facilitators network of local champions 
• Use evidenced based improvement methodologies to 
facilitate change 
• Embed measurement and evaluation expertise throughout 
the delivery 
• Development of implementation guide in real time
Tools and Resources
Links 
Long Term Conditions Dashboard 
http://ccgtools.england.nhs.uk/ltcdashboard/flash/atlas.html 
Long Term Conditions House of Care Toolkit 
www.nhsiq.nhs.uk/improvement-programmes/long-term-conditions-and-integrated-care/house-of-care.aspx 
SIMUL8: Simulation Model 
http://www.simul8.com/viewer/download.htm 
#LTCyearofcare #LTCimprovement @NHSIQ
Case Studies 
http://www.nhsiq.nhs.uk/10486.aspx
LTC Learning Forum 
“Lunch & Learn” Webinar Series 
& 
Bite Size Master-classes
Virtual Learning Network 
“Lunch & Learn” 
• 45 minute “real time” Webinar 
sessions 
• Topics agreed and learning outcomes 
identified 
• Faculty of Speakers identified 
Open invitation 
Bite Size Learning Master-Classes 
• Pre-recorded 20 minute Master-classes 
• Master-class either as stand alone 
sessions or pre-requisites for 
Wednesday “Lunch & Learn” 
Webinars 
• Faculty of Speakers identified 
Open invitation
Frailty as a Long-Term Condition 
Professor John Young 
Geriatrician, Bradford Hospitals Trust 
National Clinical Director for Integration & Frail 
Elderly, NHS England 
john.young@bthft.nhs.uk
Care and Support Planning 
You are, or would like to be, a health care professional. 
Which of the following statements about care planning 
in respect of people with multiple LTCs are TRUE? 
When I make a care plan: 
1. I pass on lots of information to the patient True / False 
2. I do most of the talking True / False 
3. I follow a template very closely True / False
The Frailty Paradox 
National Audit of 
Community Rehab 2012 
N = 3,150 
Mean age 82y 
One or more LTC 77% 
Two or more LTC 41% 
The frailty paradox: 
We know it’s out there, but where exactly?
Frailty is currently recognised ……………… 
Mrs Greenaway was found on 
the floor (“FLOF”) with new 
confusion by the home care 
staff and taken to hospital 
where is was found to be 
poorly mobile. 
The hyperacute 
frailty 
syndromes 
 Fall 
 Delirium 
 Immobility
Frailty as a long-term condition ? 
A LTC is: 
“A condition that cannot, at present, be cured but is controlled by 
medication and/or other treatment/therapies” (DH 2012) 
Frailty is: 
• Common (25-50% of people over 80 years) 
• Progressive (5 to 15 years) 
• Episodic deteriorations (delirium; falls; immobility) 
• Preventable components 
• Potential to impact on quality of life 
• Expensive
A view of Mrs Greenaway ……… 
85 years 
Lives alone 
Recently in hospital following a fall 
Broken hip 2011 
Chronic heart failure 
Diabetes 
Chronic Kidney Disease 
Taking 10 medications 
Review 1 
Review 2 
Review 3 
Review 4 
System designed to fragment care into 
packages 
……. And the frailty??? ……
Mrs Greenaway was found on 
the floor (“FLOF”) with new 
confusion by the home care 
staff and taken to hospital 
where is was found to be 
poorly mobile. 
“She was a fall 
waiting to happen.” 
Home care staff 
 Fall 
 Delirium 
 Immobility 
Frailty is ………………
Frailty as a LTC 
(Global loss of physiological reserve) 
Clegg, Young, Iliffe, Olde-Rikkert, Rockwood. Frailty in elderly people. Lancet 2013; 381: 752-762
Frailty as a LTC 
(Global loss of physiological reserve) 
Clegg, Young, Iliffe, Olde-Rikkert, Rockwood. Frailty in elderly people. Lancet 2013; 381: 752-762
Frailty as a LTC 
(Global loss of physiological reserve) 
Resilience 
gap 
Clegg, Young, Iliffe, Olde-Rikkert, Rockwood. Frailty in elderly people. Lancet 2013; 381: 752-762
Earlier (more timely) diagnosis of frailty 
Two approaches: 
1. The simple way: empowering patients 
2. The very simple way: empowering professionals 
Which one shall we choose?? 
“Fit for Frailty” BGS/RCGP 2014 
http://www.bgs.org.uk/campaigns/fff/fff_full.pdf
The 4m walking speed test detects frailty 
Van Kan et al JNHA 2009; 13:881 
Systematic Review of 21 cohorts 
4M 
Taking more than 5 
seconds to walk 4m 
predicts future: 
 Disability 
 Long-term care 
 Falls 
 Mortality
Development of an NHS Primary 
Care Electronic Frailty Index (eFI) 
Existing EHR (“SystmOne”) 
Read Codes (>80,000 8,000 2,200) 
Read codes map onto 43 Candidate ‘DEFICIT’ Variables 
Tested in ResearchOne (n=226,988 >65y) 
Validation Process (n=227,063 >65y)
Deficits constructed for the eFI
Primary care electronic Frailty Index (eFI): 
survival plots (n=227,648; >65y) 
Proportion 
alive 
Time 
Fit 
Mild frailty 
Moderate frailty 
Severe frailty 
5 yrs
Candidate Preventable Components for “Frailty” 
• Alcohol excess 
• Cognitive impairment 
• Falls 
• Functional impairment 
• Hearing problems 
• Mood problems 
• Nutritional compromise 
• Physical inactivity 
• Polypharmacy 
• Smoking 
• Social isolation and loneliness 
• Vision problems 
Stuck et al. Soc Sci Med. 1999 
(Systematic review of 78 studies) 
Additional topics: 
• Look after you feet 
• Make your home safe 
• Vaccinations 
• Keep warm 
• Get ready for winter 
• Continence 
………others…….?? 
Supported-Self Management Plan for Healthy Living 
in Later Life
“It’s Care Planning 
Jim, but not as we 
know it!”
Care & Support Planning: 
Evidenced-based medicine or Evidenced-informed practice? 
Guideline medicine 
Care & Support Planning 
Single LTC Multiple 
LTCs/Frailty 
Standardised 
care 
Individualised 
care
Care and Support Planning 
(?2% ES 10% LES?) 
Information 
gathering 
Agreed & shared 
‘care plan’ 
Professional 
Story 
Information 
Sharing 
Person’s Story 
Goal Setting and 
Action Planning 
 Year of Care 
Consultation 1 
Consultation 2
Mrs Greenaway and Care & Support 
Planning…….. 
What are the most 
important things you’d like 
to discuss today? 
1. The pain in my feet 
2. Difficulty sleeping 
3. Getting out for a chat 
4. I don’t like all these 
tablets; do I really need 
them all?
Care and Support Planning 
You are, or would like to be, a health care professional. 
Which of the following statements about care planning 
in respect of people with multiple LTCs are TRUE? 
When I make a care plan: 
1. I pass on lots of information to the patient True / False 
2. I do most of the talking True / False 
3. I follow a template very closely True / False
Understanding frailty as a LTC 
Supported self-management 
for frailty 
Care & support planning 
Advanced care planning
Open Discussion
LTC Lunch & Learn Series 
….coming soon… 
Date Webinar Hosted by Bev Matthews & 
19 November 2014 
Self Management for Life Renata Drinkwater 
1 – 2pm 
Chief Executive & Trustee 
Self Management UK 
To register email LTC@nhsiq.nhs.uk 
3 December 2014 
1 – 2pm 
"Population level commissioning 
for the future" 
Dr Abraham George 
Kent County Council 
7 January 2015 
1 – 2pm 
Self Management Support 
Return on Investment 
Renata Drinkwater 
Chief Executive & Trustee Self 
Management UK 
21 January 2015 Commissioning for Outcomes Bob Ricketts CBE 
Director of Commissioning Support 
Services & Market Development, 
NHS England

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Frailty as a long term condition

  • 1. WELCOME Today’s Webinar Frailty as a long term condition?
  • 2. Frailty as a Long Term Condition? Monday 10 November 2014 12noon – 12.45pm Professor John Young National Clinical Director for Integration & Frail Elderly, NHS England & Beverley Matthews LTC Programme Lead, NHS Improving Quality
  • 3. Meet the Speakers Bev Matthews A nurse by background, Beverley has worked extensively throughout the NHS in a variety of clinical, managerial and strategic roles. Beverley’s current role as Programme Delivery Lead for Long Term Conditions Improvement Programmes: LTC Year of Care Commissioning Model and LTC Framework. Prior to joining NHS Improving Quality in April 2013, Beverley was Director of NHS Kidney Care and NHS Liver Care. Passionate about service transformation through developing networks and leading complex programmes. Providing strategic leadership to partners within health communities, managing stakeholders and working across agencies. Professor John Young Trained at the Middlesex Hospital, London; appointed as a consultant geriatrician in Bradford in 1986 . He has developed numerous new services including an elderly care assessment unit; a stroke unit; and an ortho-geriatric unit. Appointed as Head of the Academic Unit of Elderly Care & Rehabilitation, University of Leeds, 2005. Quality improvement work includes the national audits of intermediate care and of dementia care. Between 2001 and 2007 John was seconded to the DH to assist with the NSF for Older People. He is currently seconded to NHS England as National Clinical Director for Integration and Frail Elderly.
  • 4. Learning Outcomes Frailty as a Long Term Condition? of Care foundation.  Understanding of case finding tools for frailty • Understanding a graduated long term condition response to people living with frailty based on supported self-management; care and support planning, case management; and anticipatory end of life care
  • 5. Beverley Matthews LTC Programme Lead NHS Improving Quality Beverley.matthews@nhsiq.nhs.uk
  • 7. The approach: • Identify sites guided by intelligence from the LTC Dashboard and local advice • Support local health economies to understand their baseline position through the self assessment Diagnostic Tool • Provide coaching support to start identifying interventions that will drive change and develop the local action plan. • Agree bespoke support package with memorandum of understanding • Developing a facilitators network of local champions • Use evidenced based improvement methodologies to facilitate change • Embed measurement and evaluation expertise throughout the delivery • Development of implementation guide in real time
  • 9. Links Long Term Conditions Dashboard http://ccgtools.england.nhs.uk/ltcdashboard/flash/atlas.html Long Term Conditions House of Care Toolkit www.nhsiq.nhs.uk/improvement-programmes/long-term-conditions-and-integrated-care/house-of-care.aspx SIMUL8: Simulation Model http://www.simul8.com/viewer/download.htm #LTCyearofcare #LTCimprovement @NHSIQ
  • 11. LTC Learning Forum “Lunch & Learn” Webinar Series & Bite Size Master-classes
  • 12. Virtual Learning Network “Lunch & Learn” • 45 minute “real time” Webinar sessions • Topics agreed and learning outcomes identified • Faculty of Speakers identified Open invitation Bite Size Learning Master-Classes • Pre-recorded 20 minute Master-classes • Master-class either as stand alone sessions or pre-requisites for Wednesday “Lunch & Learn” Webinars • Faculty of Speakers identified Open invitation
  • 13. Frailty as a Long-Term Condition Professor John Young Geriatrician, Bradford Hospitals Trust National Clinical Director for Integration & Frail Elderly, NHS England john.young@bthft.nhs.uk
  • 14. Care and Support Planning You are, or would like to be, a health care professional. Which of the following statements about care planning in respect of people with multiple LTCs are TRUE? When I make a care plan: 1. I pass on lots of information to the patient True / False 2. I do most of the talking True / False 3. I follow a template very closely True / False
  • 15. The Frailty Paradox National Audit of Community Rehab 2012 N = 3,150 Mean age 82y One or more LTC 77% Two or more LTC 41% The frailty paradox: We know it’s out there, but where exactly?
  • 16. Frailty is currently recognised ……………… Mrs Greenaway was found on the floor (“FLOF”) with new confusion by the home care staff and taken to hospital where is was found to be poorly mobile. The hyperacute frailty syndromes  Fall  Delirium  Immobility
  • 17. Frailty as a long-term condition ? A LTC is: “A condition that cannot, at present, be cured but is controlled by medication and/or other treatment/therapies” (DH 2012) Frailty is: • Common (25-50% of people over 80 years) • Progressive (5 to 15 years) • Episodic deteriorations (delirium; falls; immobility) • Preventable components • Potential to impact on quality of life • Expensive
  • 18. A view of Mrs Greenaway ……… 85 years Lives alone Recently in hospital following a fall Broken hip 2011 Chronic heart failure Diabetes Chronic Kidney Disease Taking 10 medications Review 1 Review 2 Review 3 Review 4 System designed to fragment care into packages ……. And the frailty??? ……
  • 19. Mrs Greenaway was found on the floor (“FLOF”) with new confusion by the home care staff and taken to hospital where is was found to be poorly mobile. “She was a fall waiting to happen.” Home care staff  Fall  Delirium  Immobility Frailty is ………………
  • 20. Frailty as a LTC (Global loss of physiological reserve) Clegg, Young, Iliffe, Olde-Rikkert, Rockwood. Frailty in elderly people. Lancet 2013; 381: 752-762
  • 21. Frailty as a LTC (Global loss of physiological reserve) Clegg, Young, Iliffe, Olde-Rikkert, Rockwood. Frailty in elderly people. Lancet 2013; 381: 752-762
  • 22. Frailty as a LTC (Global loss of physiological reserve) Resilience gap Clegg, Young, Iliffe, Olde-Rikkert, Rockwood. Frailty in elderly people. Lancet 2013; 381: 752-762
  • 23. Earlier (more timely) diagnosis of frailty Two approaches: 1. The simple way: empowering patients 2. The very simple way: empowering professionals Which one shall we choose?? “Fit for Frailty” BGS/RCGP 2014 http://www.bgs.org.uk/campaigns/fff/fff_full.pdf
  • 24. The 4m walking speed test detects frailty Van Kan et al JNHA 2009; 13:881 Systematic Review of 21 cohorts 4M Taking more than 5 seconds to walk 4m predicts future:  Disability  Long-term care  Falls  Mortality
  • 25. Development of an NHS Primary Care Electronic Frailty Index (eFI) Existing EHR (“SystmOne”) Read Codes (>80,000 8,000 2,200) Read codes map onto 43 Candidate ‘DEFICIT’ Variables Tested in ResearchOne (n=226,988 >65y) Validation Process (n=227,063 >65y)
  • 27. Primary care electronic Frailty Index (eFI): survival plots (n=227,648; >65y) Proportion alive Time Fit Mild frailty Moderate frailty Severe frailty 5 yrs
  • 28. Candidate Preventable Components for “Frailty” • Alcohol excess • Cognitive impairment • Falls • Functional impairment • Hearing problems • Mood problems • Nutritional compromise • Physical inactivity • Polypharmacy • Smoking • Social isolation and loneliness • Vision problems Stuck et al. Soc Sci Med. 1999 (Systematic review of 78 studies) Additional topics: • Look after you feet • Make your home safe • Vaccinations • Keep warm • Get ready for winter • Continence ………others…….?? Supported-Self Management Plan for Healthy Living in Later Life
  • 29.
  • 30.
  • 31. “It’s Care Planning Jim, but not as we know it!”
  • 32. Care & Support Planning: Evidenced-based medicine or Evidenced-informed practice? Guideline medicine Care & Support Planning Single LTC Multiple LTCs/Frailty Standardised care Individualised care
  • 33. Care and Support Planning (?2% ES 10% LES?) Information gathering Agreed & shared ‘care plan’ Professional Story Information Sharing Person’s Story Goal Setting and Action Planning  Year of Care Consultation 1 Consultation 2
  • 34. Mrs Greenaway and Care & Support Planning…….. What are the most important things you’d like to discuss today? 1. The pain in my feet 2. Difficulty sleeping 3. Getting out for a chat 4. I don’t like all these tablets; do I really need them all?
  • 35. Care and Support Planning You are, or would like to be, a health care professional. Which of the following statements about care planning in respect of people with multiple LTCs are TRUE? When I make a care plan: 1. I pass on lots of information to the patient True / False 2. I do most of the talking True / False 3. I follow a template very closely True / False
  • 36. Understanding frailty as a LTC Supported self-management for frailty Care & support planning Advanced care planning
  • 38. LTC Lunch & Learn Series ….coming soon… Date Webinar Hosted by Bev Matthews & 19 November 2014 Self Management for Life Renata Drinkwater 1 – 2pm Chief Executive & Trustee Self Management UK To register email LTC@nhsiq.nhs.uk 3 December 2014 1 – 2pm "Population level commissioning for the future" Dr Abraham George Kent County Council 7 January 2015 1 – 2pm Self Management Support Return on Investment Renata Drinkwater Chief Executive & Trustee Self Management UK 21 January 2015 Commissioning for Outcomes Bob Ricketts CBE Director of Commissioning Support Services & Market Development, NHS England

Editor's Notes

  1. This is about changing the very nature of the consultation – the conversation – between professionals and the people they are serving.
  2. You can see that these so called frailty syndromes happen very quickly …… falls. Delirium, and sudden onset immobility
  3. You can see that these so called frailty syndromes happen very quickly …… falls. Delirium, and sudden onset immobility
  4. This is about changing the very nature of the consultation – the conversation – between professionals and the people they are serving.