M Lynch - HFH HSE Updates
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Marie Lynch, Head of Healthcare Programmes IHF, updates on recent Hospice Friendly Hospitals/HSE activities.
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M Lynch - HFH HSE Updates
- 2. Todays Agenda General Updates Networking Patient Engagement SPC MDS Stress and Self Care ADMA session
- 3. Remembering Stephen Hawkins ‘One, remember to look up at the stars and not down at your feet. Two never give up work. Work gives you meaning and purpose and life is empty with out it. Three if you are lucky enough to find love, remember it is there and don’t throw it away’
- 5. HFH ACUTE HOSPITAL NETWORK 20 MARCH 2018 IHF UPDATES Marie Lynch Head of Healthcare Programmes
- 6. The Hospice Friendly Hospitals Programme seeks to ensure that end of life, palliative and bereavement care are central to the everyday business of hospitals. The HFH Programme supports individual hospitals, hospital groups and the HSE. Supporting hospitals through the HFH Programme
- 9. CEO Sharon Foley & Head of healthcare Marie Lynch Education team Breffni, Bryan HFH development / outreach coordinator Joanne Brennan Georgina Buffini/Alice Anderson (Mat Leave) Admin Support Bronagh Curran D & D project manager Mary Lovegrove
- 10. 04/03/18 Presentation Title goes here 10 47 Hospitals linked to the HFH Programme Saolta RCSI IE RCSI Hospitals Groups Rotunda Hospital, Dublin Beaumont Hospital Connolly Hospital, Blanchardstown Cavan General Hospital Louth County Hospital, Dundalk Our Lady of Lourdes Hospital, Drogheda Saolta University Health Care Group University Hospital Galway and Merlin Park Letterkenny General Hospital Sligo Regional Hospital Mayo General Hospital Roscommon County Hospital Portiuncula Hospital, Ballinasloe Ireland East Hospitals Group Mater Misericordiae University Hospital National Maternity Hospital, Holles St Midland Regional Hospital Mullingar St Luke's General Hospital, Kilkenny Wexford General Hospital Our Lady's Hospital, Navan St Columcilles Hospital South / South West Hospital Group Cork University Hospital Cork University Maternity Hospital Bantry General Hospital Mallow General Hospital South Victoria University Hospital Mercy University Hospital South Tipperary General Hospital Kerry General Hospital University Hospital Waterford S / SW Dublin Midlands Hospital Group St James's Hospital Tallaght Hospital The Coombe Women and Infant University Hospital Naas General Hospital Midland Regional Hospital, Portlaoise Tullamore Hospital DM University of Limerick Hospitals Group University Hospital, Limerick University Maternity Hospital, Limerick Nenagh Hospital Ennis Hospital St John’s Hospital UL Mar 2018 Children’s Hospitals Our Lady's Children's Hospital, Crumlin Templet St Children’s University Hospital Private Hospitals Mater Private Hospital The Galway Clinic Bons Secours Hospital, Dublin The Beacon Hospital, Dublin The Hermitage Medical Clinic
- 11. End-of-Life Care Coordinators Mar 2017 Hospital Group Location of Coordinator WTE Post created in: 1 Ireland East Mater Hospital (Diarmuid Ó Coimin) 1.0 WTE 2010 2 Dublin Midlands St James’s Hospital (Bettina Korn) 1.0 WTE 2011 3 Dublin Midlands Tallaght Hospital –(Ann Hickey) 1.0 WTE 2017 4 Saolta Sligo Regional Hospital (Ann Hayes) 1.0 WTE 2015 5 RCSI Connolly Hospital (Debby Gregg) 0.25 WTE 2008 6 RCSI Beaumont Hospital (Gill Rufli) 0.50 WTE 2013 7 South/South West Serving all hospitals in the group (Post Vacant) 1.0 WTE 2015 8 University of Limerick Serving all hospitals in the group (Denis Casey) 1.0 WTE 2011
- 12. Updates • HFH Updates • What's new from IHF • Related policy and reports
- 13. HFH 2018 • Outreach • Proactive support EOLC committees • Strategic • Link with Oversight • D & D • Business case • EOLC coordinators • Evidence based approach • Build on MaJam, QIP and existing metrics • Engagement • Networks • Repository
- 14. HFH & HSE Joint Oversight activities
- 15. Major workstreams identified by group
- 16. Current work of Oversight Group Education/Training •Sub-group formed Jan 2018 •Chaired by Patricia Blunden HSE Change Management Resources •First Meeting Feb 20 2018 •Time Frame – 10 Months •Review of “Final Journeys” training course •Identification of additional delivery platforms (eg Change Hub, HSE Induction) •Work with National Occupational Health Clinical Lead on staff self- care
- 17. Update Final Journeys Training programme Terms of reference and membership
- 18. Current work of Oversight Group Care delivered at End-of-Life • Sub-group formed July 2017 • Chaired by Margaret McKiernan • Developing national standard patient/carer literature on the death and bereavement process • Consultation process 12 Feb – 12 March- 40 responses received • Finalised in the summer • Other patient booklets for consideration: • Post Mortem process • Receiving diagnosis of life • Update HSE Bereavement How can we reduce the variability in care delivery at end of life across hospitals ?
- 19. IHF D & D project manager Mary Lovegrove
- 20. D & D So far 31 projects funded: 21 complete Project Hospital No Mortuaries Beaumont, Kerry, Limerick, Mercy, Sligo, Roscommon, Coombe, Mayo, Portiuncula 9 General family rooms Beaumont , Connolly (2), Mayo, Navan, Nenagh, Portiuncula, Roscommon, St John’s, Mercy 10 ICU Family Rooms Mater , Beaumont ), St James’ 3 Maternity Out Patients Family Room UL Maternity 1 Mortuary family room St James 1 Bereavement suites (family room & viewing area) St James ED, Tallaght ED, Ennis 3 Maternity inpatient rooms Galway, Portlaoise 2 Palliative Care Comfort Suite Mater 1 ICU waiting area & family room Mater 1
- 21. D & D Planning for 2018 Round 4 Grant Scheme (TBC) •Mortuaries •Emergency departments Bereavement suites •Family Rooms – wards, ICU, CCU •Inpatient suites •Seek support from the Design & Dignity Project Team mary.lovegrove@hospicefoundation.ie
- 22. D & D Campaign for National Capital Mortuary programme What you can do 1.Invite EOLC Committee on a tour of the mortuary and assess against D&D guidelines using D&D Assessment Tool 2.Take photos of existing mortuary 3.Show EOLC Committee photos of newly refurbished D&D mortuaries 4.Visit other newly refurbished mortuaries 5.Seek support from the D&D project team
- 23. IHF updates • HFH Updates • What's new from IHF • Related policy and reports
- 24. AIMS 1.Provide the best possible end-of-life care for people living in RCCs 2.Enable and empower staff to continuously review, reflect and improve the end-of-life care they provide 24
- 25. CEOL Objectives •Establish a CEOL Group with responsibility for driving, developing and changing in end-of-life care. •Develop a vision for end-of-life care •Establish CEOL reviews after the death of each resident to support staff. •Invite feedback from bereaved relatives and friends. •Implement change projects 25
- 26. Dublin CEOL Network February 2018 27 Midlands CEOL Network May 2017
- 27. Bereavement strategic focus • 2016 inaugural Bereavement Forum IHF hosted • nationally coordinated approach to bereavement care promotes connection & collaborative working. • 2017 2nd Bereavement Forum • feasibility/scoping study to determine a realistic way of developing a national approach to bereavement care. • Aims of study: • (1) Establish a vision for a national approach to bereavement care in Ireland (2) Develop an implementation framework for enhancing bereavement care in Ireland. • Status: • Report due late Spring
- 28. • HFH Updates • What's new from IHF • Related policy and reports
- 30. Recommendations relevant to palliative and end of life care: •SPC Staffing •Access to Psycho-oncology •Focus on Quality of Life •Survivorship
- 31. How does palliative and end of life care fit in with the survivorship model? 32 IHF welcome your views – marie.lynch@hospicefoundation.ie
- 32. Experience in ED Communications re treatment Emotional support Discharge planning Involvement in treatment decisions Physical discomfort
- 33. Update due Q2 2018
- 34. How We are Funded We rely upon voluntary support to keep our programmes and services working across Ireland. 95% of our income comes from our donors, philanthropic benefactors, sponsors, corporates, event participants and committee members. 5% of our income comes from statutory sources and these funds began in 2015. Our heartfelt thanks to everyone that has joined us. Your generosity helps us achieve meaningful impact for so many people. To donate, receive news about our events or to get involved please see: hospicefoundation.ie or call the fundraising team on 01 679 3188
- 35. HFH In the News 2017
Editor's Notes
- Welcome background to those here for first time
- Context of HFH within HC programmes and Where people die What people die from
- This is how we describe the HFH programme Supported via HFH dev officer – Alice, and education team, Mary from D and D and CEO / Sen management
- 21 Hospitals represented here today
- Congrats to Tallaght
- 56 sites participating across Ireland
- 70 people representing 33 organisations with a focus or interest in bereavement care and support in Ireland attended the These visions included (1) Broad initiatives to recognise, celebrate and promote awareness of bereavement in Ireland; (2) A national approach to the development of standards, pathways of support, guidelines and services; (3) The need for education for the public, volunteers and professionals; (4) The need for organisation, good governance, networking and funding. Methodology Systematic literature review of evidence to understand and compare bereavement care, policy, standards, structures, guidance and support. Interviews with national and international bereavement care leads Focus groups with stakeholders involved in the provision of bereavement care and support in Dublin, Cork, Limerick, and Sligo. We are inviting representatives from agencies directly involved in bereavement support and those who support the bereaved as part of their day to day work to share their views. Analysis of bereavement focused questions in ‘Have your say’ survey Outcome: A proposed pathway towards a national approach to bereavement care in Ireland. A pathway informed by the literature, international and national bereavement care leaders, key stakeholders in health and social care in Ireland, bereavement care providers in Ireland, organisations that provide bereavement support as part as their day to day work and those who have been bereaved in Ireland.
- Survivorship Definitions Cancer Survivor An individual is considered a cancer survivor from the time of diagnosis, through the balance of his or her life. Family members, friends, and caregivers are also impacted by the survivorship experience and are therefore included in this definition.Adapted from the National Coalition for Cancer Survivorship Cancer Survivorship Research NCI Cancer survivorship research encompasses the physical, psychosocial, and economic sequelae of cancer diagnosis and its treatment among both pediatric and adult survivors of cancer. It also includes within its domain, issues related to health care delivery, access, and follow up care, as they relate to survivors. Survivorship research focuses on the health and life of a person with a history of cancer beyond the acute diagnosis and treatment phase. It seeks to both prevent and control adverse cancer diagnosis and treatment-related outcomes such as late effects of treatment, second cancers, and poor quality of life, to provide a knowledge base regarding optimal follow-up care and surveillance of cancers, and to optimize health after cancer treatment.
- Met with CEO of HIQA to recommend next NPES would refer more explicitly to end of life and he indicated his interest in themed inspection.
- Report launch 15 DEC – 5 diagnosis categories Patient involvement Quality improvement Compassion Bereavement Staff support Metrics and measures
- Hospice Friendly Hospitals generated 24 pieces of news content, including 13 reports on Dignity & Design: 14 x print (regional and specialist) 9 x online (regional and specialist) 1 x broadcast (Shannonside FM)