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Grant & Brewster - Creative pedagogies and health information literacy: the Storying Sheffield Knowing as Healing Project

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Grant & Brewster - Creative pedagogies and health information literacy: the Storying Sheffield Knowing as Healing Project

  1. 1. LILAC March 2013Creative pedagogies and health informationliteracy: the Storying Sheffield Knowing asHealing ProjectVicky Grant (presenting) and Rene MeijerUniversity of SheffieldLiz BrewsterUniversity of LeicesterAn Arts Enterprise fundedproject
  2. 2. Alexandria proclamation“Information Literacy lies at the core of lifelong learning. It empowers people in all walks of life to seek, evaluate, use and create information effectively to achieve their personal, social, occupational and educational goals. It is a basic human right in a digital world and promotes social inclusion of all nations”http://www.ifla.org/publications/beacons-of-the-information-society-the-alexandria-proclamation-on-informati
  3. 3. Internet informed patients:cyberchondriacs or activepartners?
  4. 4. Cyberchondria“refers to the unfounded escalation of concerns about common symptomology based on review of search results and literature online”Wikipedia
  5. 5. Information obesity. An abundance of information coupled with aloss of quality, WHITWORTH, A. 2008. I rm a tio n o be s ity , nfoOxford, Chandos.
  6. 6. “ Every month, month after month,we get more hits forthan any other condition”Dr Tim Kenny, founder ofpatient.co.uk
  7. 7. “ Every month, month after month,we get more hits forIBSthan any other condition”Dr Tim Kenny, founder ofpatient.co.uk
  8. 8. Health information prescriptions?• Should we have a PIL for every ill?(patient information leaflet)• Or be doing more to make people HIL?(health information literate)
  9. 9. Confused?
  10. 10. Study days
  11. 11. Health Information LiteracyEvents10,00 Welcome 13.15 Rotating sessions10.15 Ice breaker 1. Post it note exercises Where do you10.30  Talk by Dr Tim Kenny of look for health information/ How do patient.co.uk you decide if the information is reliable?11.00 Short films 2. Search exercise. Including demo the of11.15 Coffee and discussion of films patient.co.uk IBS app.11.45 Discuss information brought by 3. Storytelling. Create short stories participants telling your IBS story12.30 Lunch 14.45 Tea 15.00 Story sharing 15.45 Evaluation and close
  12. 12. “I spent a lot of time searching on the internet ... but you can be terrified ... like what if it gets worse ... Some of the GPs can be resentful and will say ‘oh I don’t know about that’ ...” [participant infers that GPs don’t agree with internet informed patients] “But I think that internet informed patients are a good thing because it [IBS] is an illness with so many different symptoms ... Learning from other people is good ... so its just filtering out the right things”
  13. 13. Feedback“Now I have more an  energy and a motivation to win with IBS” ”I feel a lot more confident talking about my IBS after today, and dont feel quite so despondent about it, so thank you! ”“patients do want to know more and sometimes do know more than the doctor.”“the medical aspects/jargon are hard to relate to when you’re not a medical student.”The best thing “hearing other people’s stories” “don’t feel so isolated”The worst thing “initially getting over my embarrassment of talking about my symptoms in front of other people”
  14. 14. Next steps• To enhance • To collaborate with inclusion by a local artist and working out in the to plan an city exhibition
  15. 15. VideoHealth information obesity: the new epidemic?
  16. 16. Make information poverty history Questions?
  17. 17. AcknowledgementsWith grateful thanks toThe project supervisors: Prof Brendan Stone and Dr Bernard CorfeThe University of Sheffield Faculty of Arts & Humanities for Arts Enterprise fundingThe University of Sheffield Librarypatient.co.uk and the IBS NetworkThe Medical Students and IBS Participants who have given their time and their stories to the project. Thank you

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