SlideShare a Scribd company logo
1 of 32
When Cancer Changes our
Relationship with Our Children
Haley Pollack (she/her)
Executive Director and Co-Founder, Bright Spot Network
SHARE Cancer Support
May 15, 2023
Agenda
● About me
● About Bright Spot Network
● Impact of Cancer on a Family
● What Does Your Child Need?
● Ways your Child Might Respond
● Talking to you Kids
● Ways to Cope
● Ways to Connect
About Me
Mission
Bright Spot Network provides young cancer survivors who are parents
of small children with a safe space for individual and familial healing,
recovery, and reconnection.
Our Support & Care Programs:
Bright Reads
Bright Box
Bright Grants
Support Groups
Kids Connections
Webinars & Wellness Workshops
Family Resource Navigation
Web Resources
How do I tell them?
What do I tell them?
How do I protect them?
How do I shield them from THIS?
Impact of Cancer on the Family
● According to a 2011 study on parental cancer:
○ Estimated 2.85 million US children less than 18 years of age are
living with a parent who has been diagnosed with cancer.
○ “...children’s health and functioning are closely tied with those of
their parents, [and] the young offspring of these survivors are at
increased risk for problems in emotional, social, cognitive,
behavioural, and physical functioning domains.”
(Weaver, et al., 2011)
Impact of Cancer on a Family
● Cancer “turns up the volume of what is already there” (Stress
Pileup)
○ Financial stress and access to resources
Especially true for young families
○ Financial and workplace stress
○ Support circle (ie.e single parent families, no local
family/friends/community, etc.)
○ Mental illness & substance use
○ Additional medical issues
○ Strained relationships
○ Poor family communication
○ Low self-esteem
What is Working?
● Established sense of trust and belonging
● Strong family and peer bonds
● Emotional vocabulary and expression
● Family functionality pre-cancer
● Connection to outside support
● Resilient characteristics
“The greatest gift you can give your children is not protection from change, loss, pain, or
stress, but the confidence and tools to cope and grow with all that life has to offer them.”
Wendy Schlessel Harpham, MD, “When a Parent Has Cancer: A Guide to Caring for Your Children” (2004)
“Our job is to walk with our children through their difficult moments with connection and
empathy, allowing them to feel, to be active participants in problem-solving, and to discover
the depth of their own capacity. It’s out of our deep love for our children that we want to
protect them, but their capacity will be greater if we allow that love to lead us to our own
courage, so that we can feel strong enough to let them discover their own strength.”
Daniel J. Siegel, MD & Tina Payne Byson, PhD, “The Yes Brain: How to Cultivate Courage, Curiosity, and
Resilience
in Your Child” (2018)
What do your Children Need?
● Safe, reliable and compassionate caregivers
● Consistent routines and structure
● Open, honest and developmentally-appropriate communication
What do your Children Need?
● Parents have a unique expertise on their children
○ Bring in professionals and expert information for support, but filter through your gut
● You may not have all of the answers to their questions, but your presence,
attention, and willingness to talk is most important.
○ Role modeling your big feelings and coping tools are invaluable
● Honesty really is the best policy
How Might Your Children Respond
Infants & Toddlers
● More tantrums than usual
● Changes in sleeping
● Changes in eating
● Increased Separation Anxiety
How Might Your Children Respond
Preschool
● Regressive behavior (i.e. accidents
even if toilet trained)
● Short and intense bursts of emotion
● Asking the same questions about
cancer over and over again
● Separation anxiety
● Playing it Out: playing with themes of
doctors, nurses, medicine, etc
How Might Your Children Respond
School Age
● Regression: Acting younger than they are (i.e. baby talk or wetting the bed)
● Worrying about the person living with cancer as well as others (i.e. fear that others
will become sick)
● Asking questions related to physical changes (i.e. hair loss, scars, bandages, etc.)
● Showing anger if normal day-to-day routine is changed because of cancer (i.e.
parent unable to drive to dance practice because they are too tired)
● Separation Anxiety
● Playing it Out: playing with themes of doctors, nurses, medicine, etc
● Distancing themselves from the sick parent because of fear or discomfort
How Might Your Children Respond
Middle School
● Showing anger if normal day-to-day routine is changed because of cancer (i.e.
parent unable to drive to dance practice because they are too tired)
● Hiding feelings from family and friends
● Worrying that others will become sick
● Showing fear and sadness as anger, and often directing it at family members
● Feeling embarrassed by the sick parent because they are different
How Might Your Children Respond
Teenagers
● Struggling between remaining close to family while also trying to
gain independence as a teenager
● Showing fear and sadness as anger, and often directing it at family members
● May not share feelings or talk openly with family or friends about the
cancer experience
● Taking out frustrations or anger on family members
Signs of Distress
● “Is my child functioning in her life?”
● Disturbances in the big four:
○ Development (especially for young children)
○ School
○ Sleep
○ Eating
● Persistent change in mood or patterns of behavior
○ Exploding/Withdrawing
Professional Support
Individual and Family Therapy
● Look for therapist who is trained in family systems, children and chronic
illness
Talking to Kids
● Cancer is not your fault.
○ No behavior, words, or thoughts made someone get cancer.
● Cancer is not contagious.
○ Try to avoid using the word “sick” in describing cancer, since it makes kids think of
the cold, flu or COVID.
● No matter what happens, you will be loved and cared for.
○ This requires parents truly make a plan.
Talking to Kids
● Any question is okay to ask.
○ Create a safe space to talk.
● You will be kept informed.
○ You may need time to process it yourself first, make a plan, and/or rehearse.
○ “Tell them enough, not everything” (Harpham, 2004)
● I will always be honest with you.
○ If you don’t know, say so.
Talking to Kids
● Developmentally appropriate
● Avoid euphemisms
● Unique kids, special approaches
● Showing emotions
● Expect the unexpected
● Managing Your Message
● Wash. Rinse. Repeat.
“Life is not fair. Life hurts. Life is good. These three seemingly incompatible
expressions are really three parts of the whole of living. They are threads
woven through the tapestry each one of us creates as the visible expression of
our being a part of humanity. To accept these three is not to abandon hope or
optimism, or to deny our real grief. To accept them is to rid ourselves of the
unnecessary suffering that comes from struggling against these three truths
and trying to make them something they are not.” (Coloroso, 2000).
Ways to Help Kids Cope
Schedules
● Gives kids the opportunity to know
what to expect–decreases anxiety
● Empowerment
mightyandbright.com
Ways to Help Kids Cope
Play, play, play:
● Have variety of toys, including items other than dolls that can
represent people, play money (financial worries), houses or building
structures, medical equipment
“Play reflects an emotional reality, not an exact retelling of real events.
Your child is likely playing out the story just the right way for her own
needs.” (Rauch & Muriel, 2006).
Ways to Help Kids Cope
Artistic expression
○ Individually and as a family
○ Variety of modalities & mediums
○ (writing, collage, paint, clay, sculpture)
○ Prompts:
■ Family drawings
■ Play-doh monsters (fears/control)
■ Family flag/crest (safety/cohesion)
Ways to Help Kids Cope
Mindfulness
● Breathing
● Guided imagery
● Yoga
● Mindfulness Jars
Information
● Children’s books about
cancer, treatment, death &
dying
● Kid-friendly glossaries
Ways to Connect
Parenting from the Couch
● Ask your kids to help
● Watch TV or listen to a podcast together
● Read together
● Play games
● Cuddle
● Check out the book “Horizontal Parenting” by Michelle Woo
Ways to Connect
Intentional Time
● 10 minutes a day (phone down)
● Physical connection
● Quality not quantity
● Do something together (i.e. go to the movies… do something where you
don’t need to TALK)
Ways to Connect… Around Cancer
● Reading kids books about cancer
● Medical Play
● Taking an older child to the clinic with you
Feedback from Parents and Children
“It changed my relationship with my mom. We don’t focus on little things we used to fight about.
Like doing the dishes. If she would ask me, normally I would have started an argument. And
now, I just do the dishes” (college student, child)
“I think it brought my mom and me a lot closer. We’re buddies, great friends. Cancer makes
you realize that you definitely don’t know what you have until it’s tone, or it’s almost gone.”
(child)
“Cancer fast-tracked the growing up process. An appreciation for days and time together was
embraced. We no longer complained or focussed on things that didn’t really matter. We talked
more openly and valued family time much more.” (parent)
“My daughter is more sympathetic to those that are experiencing a similar situation. It’s
definitely taught her empathy.” (parent)
“We understand the importance now of being in the present and doing what we can when we
can as a family.” (parent)
THANK YOU!
Haley Pollack
Executive Director, Bright Spot Network
haley@brightspotnetwork.org

More Related Content

Similar to When Cancer Changes our Relationship with Our Children

Monday earthquake presentation for faculty
Monday earthquake presentation for facultyMonday earthquake presentation for faculty
Monday earthquake presentation for facultyadamclark_yis
 
Disability is a natural part of the human experience
Disability is a natural part of the human experienceDisability is a natural part of the human experience
Disability is a natural part of the human experienceLubna Nawaz
 
Recovery, Occupation and Serious Mental Illness: A Case Study
Recovery, Occupation and Serious Mental Illness: A Case StudyRecovery, Occupation and Serious Mental Illness: A Case Study
Recovery, Occupation and Serious Mental Illness: A Case StudyAmee Le
 
Facing Bereavement for YouthFrancesca Balzano, Lily Spinelli, .docx
Facing Bereavement for YouthFrancesca Balzano, Lily Spinelli, .docxFacing Bereavement for YouthFrancesca Balzano, Lily Spinelli, .docx
Facing Bereavement for YouthFrancesca Balzano, Lily Spinelli, .docxssuser454af01
 
Helping Children Cope with Grief and Loss: A Guide for Caregivers
Helping Children Cope with Grief and Loss: A Guide for CaregiversHelping Children Cope with Grief and Loss: A Guide for Caregivers
Helping Children Cope with Grief and Loss: A Guide for CaregiversKaitlynJones26
 
Let them be
Let them beLet them be
Let them beRubiMena
 
Talking to Your Family about Hereditary Cancer
Talking to Your Family about Hereditary CancerTalking to Your Family about Hereditary Cancer
Talking to Your Family about Hereditary CancerMelissa Sakow
 
Talking with Your Family about Hereditary Cancer
Talking with Your Family about Hereditary CancerTalking with Your Family about Hereditary Cancer
Talking with Your Family about Hereditary Cancerbkling
 
Talking to Your Family about Hereditary Cancer
Talking to Your Family about Hereditary CancerTalking to Your Family about Hereditary Cancer
Talking to Your Family about Hereditary Cancerbkling
 
WGBH_LiveSTRONG_Arthur_booklet_ENG-Final
WGBH_LiveSTRONG_Arthur_booklet_ENG-FinalWGBH_LiveSTRONG_Arthur_booklet_ENG-Final
WGBH_LiveSTRONG_Arthur_booklet_ENG-FinalDevon McGoldrick
 
Conduct Disorder Power Point 2007 Fall Pba
Conduct Disorder Power Point 2007 Fall PbaConduct Disorder Power Point 2007 Fall Pba
Conduct Disorder Power Point 2007 Fall PbaLeslie3509
 
Gabrielle Reif- Children of Divorce PowerPoint
Gabrielle Reif- Children of Divorce PowerPointGabrielle Reif- Children of Divorce PowerPoint
Gabrielle Reif- Children of Divorce PowerPointGabby Reif
 
Protective Factors that Prevent Child Abuse & Neglect
Protective Factors that Prevent Child Abuse & NeglectProtective Factors that Prevent Child Abuse & Neglect
Protective Factors that Prevent Child Abuse & NeglectJim McKay
 

Similar to When Cancer Changes our Relationship with Our Children (15)

Monday earthquake presentation for faculty
Monday earthquake presentation for facultyMonday earthquake presentation for faculty
Monday earthquake presentation for faculty
 
Disability is a natural part of the human experience
Disability is a natural part of the human experienceDisability is a natural part of the human experience
Disability is a natural part of the human experience
 
Recovery, Occupation and Serious Mental Illness: A Case Study
Recovery, Occupation and Serious Mental Illness: A Case StudyRecovery, Occupation and Serious Mental Illness: A Case Study
Recovery, Occupation and Serious Mental Illness: A Case Study
 
Facing Bereavement for YouthFrancesca Balzano, Lily Spinelli, .docx
Facing Bereavement for YouthFrancesca Balzano, Lily Spinelli, .docxFacing Bereavement for YouthFrancesca Balzano, Lily Spinelli, .docx
Facing Bereavement for YouthFrancesca Balzano, Lily Spinelli, .docx
 
Helping Children Cope with Grief and Loss: A Guide for Caregivers
Helping Children Cope with Grief and Loss: A Guide for CaregiversHelping Children Cope with Grief and Loss: A Guide for Caregivers
Helping Children Cope with Grief and Loss: A Guide for Caregivers
 
Let them be
Let them beLet them be
Let them be
 
Talking to Your Family about Hereditary Cancer
Talking to Your Family about Hereditary CancerTalking to Your Family about Hereditary Cancer
Talking to Your Family about Hereditary Cancer
 
Talking with Your Family about Hereditary Cancer
Talking with Your Family about Hereditary CancerTalking with Your Family about Hereditary Cancer
Talking with Your Family about Hereditary Cancer
 
Talking to Your Family about Hereditary Cancer
Talking to Your Family about Hereditary CancerTalking to Your Family about Hereditary Cancer
Talking to Your Family about Hereditary Cancer
 
WGBH_LiveSTRONG_Arthur_booklet_ENG-Final
WGBH_LiveSTRONG_Arthur_booklet_ENG-FinalWGBH_LiveSTRONG_Arthur_booklet_ENG-Final
WGBH_LiveSTRONG_Arthur_booklet_ENG-Final
 
Sep bb page 32
Sep bb page 32Sep bb page 32
Sep bb page 32
 
Conduct Disorder Power Point 2007 Fall Pba
Conduct Disorder Power Point 2007 Fall PbaConduct Disorder Power Point 2007 Fall Pba
Conduct Disorder Power Point 2007 Fall Pba
 
Gabrielle Reif- Children of Divorce PowerPoint
Gabrielle Reif- Children of Divorce PowerPointGabrielle Reif- Children of Divorce PowerPoint
Gabrielle Reif- Children of Divorce PowerPoint
 
Protective Factors that Prevent Child Abuse & Neglect
Protective Factors that Prevent Child Abuse & NeglectProtective Factors that Prevent Child Abuse & Neglect
Protective Factors that Prevent Child Abuse & Neglect
 
Ind eng-750-doc
Ind eng-750-docInd eng-750-doc
Ind eng-750-doc
 

More from bkling

Advocating for Better Outcomes: Ovarian Cancer and You
Advocating for Better Outcomes: Ovarian Cancer and YouAdvocating for Better Outcomes: Ovarian Cancer and You
Advocating for Better Outcomes: Ovarian Cancer and Youbkling
 
Embracing Life's Balancing Act - Part 1
Embracing Life's Balancing Act  - Part 1Embracing Life's Balancing Act  - Part 1
Embracing Life's Balancing Act - Part 1bkling
 
Embracing Life's Balancing Act: Part 2 - Fall Action Plan
Embracing Life's Balancing Act: Part 2 - Fall Action PlanEmbracing Life's Balancing Act: Part 2 - Fall Action Plan
Embracing Life's Balancing Act: Part 2 - Fall Action Planbkling
 
Let's Talk About It: Communication, Intimacy, and Sex… Oh My!
Let's Talk About It: Communication, Intimacy, and Sex… Oh My!Let's Talk About It: Communication, Intimacy, and Sex… Oh My!
Let's Talk About It: Communication, Intimacy, and Sex… Oh My!bkling
 
Let's Talk About It: To Disclose or Not to Disclose?
Let's Talk About It: To Disclose or Not to Disclose?Let's Talk About It: To Disclose or Not to Disclose?
Let's Talk About It: To Disclose or Not to Disclose?bkling
 
Report Back from SGO: What’s New in Uterine Cancer?.pptx
Report Back from SGO: What’s New in Uterine Cancer?.pptxReport Back from SGO: What’s New in Uterine Cancer?.pptx
Report Back from SGO: What’s New in Uterine Cancer?.pptxbkling
 
Learn Tips for Managing Chemobrain or Mental Fogginess
Learn Tips for Managing Chemobrain or Mental FogginessLearn Tips for Managing Chemobrain or Mental Fogginess
Learn Tips for Managing Chemobrain or Mental Fogginessbkling
 
Vaccines: Will they become a form of Secondary and Primary Breast Cancer Prev...
Vaccines: Will they become a form of Secondary and Primary Breast Cancer Prev...Vaccines: Will they become a form of Secondary and Primary Breast Cancer Prev...
Vaccines: Will they become a form of Secondary and Primary Breast Cancer Prev...bkling
 
Let's Talk About It: Uterine Cancer (Advance Care Planning)
Let's Talk About It: Uterine Cancer (Advance Care Planning)Let's Talk About It: Uterine Cancer (Advance Care Planning)
Let's Talk About It: Uterine Cancer (Advance Care Planning)bkling
 
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...bkling
 
Understanding and Managing Chemo-Induced Peripheral Neuropathy (CIPN)
Understanding and Managing Chemo-Induced Peripheral Neuropathy (CIPN)Understanding and Managing Chemo-Induced Peripheral Neuropathy (CIPN)
Understanding and Managing Chemo-Induced Peripheral Neuropathy (CIPN)bkling
 
Let's Talk About It: Sick and Tired of Being Sick and Tired
Let's Talk About It: Sick and Tired of Being Sick and TiredLet's Talk About It: Sick and Tired of Being Sick and Tired
Let's Talk About It: Sick and Tired of Being Sick and Tiredbkling
 
What’s New with PARP Inhibitors and Ovarian Cancer?
What’s New with PARP Inhibitors and Ovarian Cancer?What’s New with PARP Inhibitors and Ovarian Cancer?
What’s New with PARP Inhibitors and Ovarian Cancer?bkling
 
Caring for You: The Mental & Emotional Toll of Survivorship
Caring for You: The Mental & Emotional Toll of SurvivorshipCaring for You: The Mental & Emotional Toll of Survivorship
Caring for You: The Mental & Emotional Toll of Survivorshipbkling
 
Let's Talk About It: Ovarian Cancer (Shifting Focus: The Relationship with Yo...
Let's Talk About It: Ovarian Cancer (Shifting Focus: The Relationship with Yo...Let's Talk About It: Ovarian Cancer (Shifting Focus: The Relationship with Yo...
Let's Talk About It: Ovarian Cancer (Shifting Focus: The Relationship with Yo...bkling
 
Ways to Manage Ovarian Cancer Treatment Side Effects
Ways to Manage Ovarian Cancer Treatment Side EffectsWays to Manage Ovarian Cancer Treatment Side Effects
Ways to Manage Ovarian Cancer Treatment Side Effectsbkling
 
Part II: DCIS Research: De-escalating the Fear of Recurrence
Part II: DCIS Research: De-escalating the Fear of RecurrencePart II: DCIS Research: De-escalating the Fear of Recurrence
Part II: DCIS Research: De-escalating the Fear of Recurrencebkling
 
Report Back from San Antonio Breast Cancer Symposium (SABCS) 2023: Spotlight ...
Report Back from San Antonio Breast Cancer Symposium (SABCS) 2023: Spotlight ...Report Back from San Antonio Breast Cancer Symposium (SABCS) 2023: Spotlight ...
Report Back from San Antonio Breast Cancer Symposium (SABCS) 2023: Spotlight ...bkling
 
Sharing Our Own Experience- A Qualitative Study with Black Women Diagnosed wi...
Sharing Our Own Experience- A Qualitative Study with Black Women Diagnosed wi...Sharing Our Own Experience- A Qualitative Study with Black Women Diagnosed wi...
Sharing Our Own Experience- A Qualitative Study with Black Women Diagnosed wi...bkling
 
Part I: Not all DCIS is "Risky"
Part I: Not all DCIS is "Risky"Part I: Not all DCIS is "Risky"
Part I: Not all DCIS is "Risky"bkling
 

More from bkling (20)

Advocating for Better Outcomes: Ovarian Cancer and You
Advocating for Better Outcomes: Ovarian Cancer and YouAdvocating for Better Outcomes: Ovarian Cancer and You
Advocating for Better Outcomes: Ovarian Cancer and You
 
Embracing Life's Balancing Act - Part 1
Embracing Life's Balancing Act  - Part 1Embracing Life's Balancing Act  - Part 1
Embracing Life's Balancing Act - Part 1
 
Embracing Life's Balancing Act: Part 2 - Fall Action Plan
Embracing Life's Balancing Act: Part 2 - Fall Action PlanEmbracing Life's Balancing Act: Part 2 - Fall Action Plan
Embracing Life's Balancing Act: Part 2 - Fall Action Plan
 
Let's Talk About It: Communication, Intimacy, and Sex… Oh My!
Let's Talk About It: Communication, Intimacy, and Sex… Oh My!Let's Talk About It: Communication, Intimacy, and Sex… Oh My!
Let's Talk About It: Communication, Intimacy, and Sex… Oh My!
 
Let's Talk About It: To Disclose or Not to Disclose?
Let's Talk About It: To Disclose or Not to Disclose?Let's Talk About It: To Disclose or Not to Disclose?
Let's Talk About It: To Disclose or Not to Disclose?
 
Report Back from SGO: What’s New in Uterine Cancer?.pptx
Report Back from SGO: What’s New in Uterine Cancer?.pptxReport Back from SGO: What’s New in Uterine Cancer?.pptx
Report Back from SGO: What’s New in Uterine Cancer?.pptx
 
Learn Tips for Managing Chemobrain or Mental Fogginess
Learn Tips for Managing Chemobrain or Mental FogginessLearn Tips for Managing Chemobrain or Mental Fogginess
Learn Tips for Managing Chemobrain or Mental Fogginess
 
Vaccines: Will they become a form of Secondary and Primary Breast Cancer Prev...
Vaccines: Will they become a form of Secondary and Primary Breast Cancer Prev...Vaccines: Will they become a form of Secondary and Primary Breast Cancer Prev...
Vaccines: Will they become a form of Secondary and Primary Breast Cancer Prev...
 
Let's Talk About It: Uterine Cancer (Advance Care Planning)
Let's Talk About It: Uterine Cancer (Advance Care Planning)Let's Talk About It: Uterine Cancer (Advance Care Planning)
Let's Talk About It: Uterine Cancer (Advance Care Planning)
 
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...
 
Understanding and Managing Chemo-Induced Peripheral Neuropathy (CIPN)
Understanding and Managing Chemo-Induced Peripheral Neuropathy (CIPN)Understanding and Managing Chemo-Induced Peripheral Neuropathy (CIPN)
Understanding and Managing Chemo-Induced Peripheral Neuropathy (CIPN)
 
Let's Talk About It: Sick and Tired of Being Sick and Tired
Let's Talk About It: Sick and Tired of Being Sick and TiredLet's Talk About It: Sick and Tired of Being Sick and Tired
Let's Talk About It: Sick and Tired of Being Sick and Tired
 
What’s New with PARP Inhibitors and Ovarian Cancer?
What’s New with PARP Inhibitors and Ovarian Cancer?What’s New with PARP Inhibitors and Ovarian Cancer?
What’s New with PARP Inhibitors and Ovarian Cancer?
 
Caring for You: The Mental & Emotional Toll of Survivorship
Caring for You: The Mental & Emotional Toll of SurvivorshipCaring for You: The Mental & Emotional Toll of Survivorship
Caring for You: The Mental & Emotional Toll of Survivorship
 
Let's Talk About It: Ovarian Cancer (Shifting Focus: The Relationship with Yo...
Let's Talk About It: Ovarian Cancer (Shifting Focus: The Relationship with Yo...Let's Talk About It: Ovarian Cancer (Shifting Focus: The Relationship with Yo...
Let's Talk About It: Ovarian Cancer (Shifting Focus: The Relationship with Yo...
 
Ways to Manage Ovarian Cancer Treatment Side Effects
Ways to Manage Ovarian Cancer Treatment Side EffectsWays to Manage Ovarian Cancer Treatment Side Effects
Ways to Manage Ovarian Cancer Treatment Side Effects
 
Part II: DCIS Research: De-escalating the Fear of Recurrence
Part II: DCIS Research: De-escalating the Fear of RecurrencePart II: DCIS Research: De-escalating the Fear of Recurrence
Part II: DCIS Research: De-escalating the Fear of Recurrence
 
Report Back from San Antonio Breast Cancer Symposium (SABCS) 2023: Spotlight ...
Report Back from San Antonio Breast Cancer Symposium (SABCS) 2023: Spotlight ...Report Back from San Antonio Breast Cancer Symposium (SABCS) 2023: Spotlight ...
Report Back from San Antonio Breast Cancer Symposium (SABCS) 2023: Spotlight ...
 
Sharing Our Own Experience- A Qualitative Study with Black Women Diagnosed wi...
Sharing Our Own Experience- A Qualitative Study with Black Women Diagnosed wi...Sharing Our Own Experience- A Qualitative Study with Black Women Diagnosed wi...
Sharing Our Own Experience- A Qualitative Study with Black Women Diagnosed wi...
 
Part I: Not all DCIS is "Risky"
Part I: Not all DCIS is "Risky"Part I: Not all DCIS is "Risky"
Part I: Not all DCIS is "Risky"
 

Recently uploaded

Sonagachi Call Girls Services 9907093804 @24x7 High Class Babes Here Call Now
Sonagachi Call Girls Services 9907093804 @24x7 High Class Babes Here Call NowSonagachi Call Girls Services 9907093804 @24x7 High Class Babes Here Call Now
Sonagachi Call Girls Services 9907093804 @24x7 High Class Babes Here Call NowRiya Pathan
 
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...Miss joya
 
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknow
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service LucknowVIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknow
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknownarwatsonia7
 
Call Girls Service Chennai Jiya 7001305949 Independent Escort Service Chennai
Call Girls Service Chennai Jiya 7001305949 Independent Escort Service ChennaiCall Girls Service Chennai Jiya 7001305949 Independent Escort Service Chennai
Call Girls Service Chennai Jiya 7001305949 Independent Escort Service ChennaiNehru place Escorts
 
Bangalore Call Girls Majestic 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Majestic 📞 9907093804 High Profile Service 100% SafeBangalore Call Girls Majestic 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Majestic 📞 9907093804 High Profile Service 100% Safenarwatsonia7
 
Call Girls Frazer Town Just Call 7001305949 Top Class Call Girl Service Avail...
Call Girls Frazer Town Just Call 7001305949 Top Class Call Girl Service Avail...Call Girls Frazer Town Just Call 7001305949 Top Class Call Girl Service Avail...
Call Girls Frazer Town Just Call 7001305949 Top Class Call Girl Service Avail...narwatsonia7
 
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...narwatsonia7
 
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Service
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort ServiceCall Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Service
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Serviceparulsinha
 
Call Girls Hsr Layout Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hsr Layout Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Hsr Layout Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hsr Layout Just Call 7001305949 Top Class Call Girl Service Availablenarwatsonia7
 
Call Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknow
Call Girl Lucknow Mallika 7001305949 Independent Escort Service LucknowCall Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknow
Call Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknownarwatsonia7
 
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.Artifacts in Nuclear Medicine with Identifying and resolving artifacts.
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.MiadAlsulami
 
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% SafeBangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safenarwatsonia7
 
Call Girls ITPL Just Call 7001305949 Top Class Call Girl Service Available
Call Girls ITPL Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls ITPL Just Call 7001305949 Top Class Call Girl Service Available
Call Girls ITPL Just Call 7001305949 Top Class Call Girl Service Availablenarwatsonia7
 
Call Girls Jp Nagar Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Jp Nagar Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Jp Nagar Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Jp Nagar Just Call 7001305949 Top Class Call Girl Service Availablenarwatsonia7
 
Call Girls Service Nandiambakkam | 7001305949 At Low Cost Cash Payment Booking
Call Girls Service Nandiambakkam | 7001305949 At Low Cost Cash Payment BookingCall Girls Service Nandiambakkam | 7001305949 At Low Cost Cash Payment Booking
Call Girls Service Nandiambakkam | 7001305949 At Low Cost Cash Payment BookingNehru place Escorts
 
Call Girl Koramangala | 7001305949 At Low Cost Cash Payment Booking
Call Girl Koramangala | 7001305949 At Low Cost Cash Payment BookingCall Girl Koramangala | 7001305949 At Low Cost Cash Payment Booking
Call Girl Koramangala | 7001305949 At Low Cost Cash Payment Bookingnarwatsonia7
 
Book Call Girls in Kasavanahalli - 7001305949 with real photos and phone numbers
Book Call Girls in Kasavanahalli - 7001305949 with real photos and phone numbersBook Call Girls in Kasavanahalli - 7001305949 with real photos and phone numbers
Book Call Girls in Kasavanahalli - 7001305949 with real photos and phone numbersnarwatsonia7
 
Russian Call Girl Brookfield - 7001305949 Escorts Service 50% Off with Cash O...
Russian Call Girl Brookfield - 7001305949 Escorts Service 50% Off with Cash O...Russian Call Girl Brookfield - 7001305949 Escorts Service 50% Off with Cash O...
Russian Call Girl Brookfield - 7001305949 Escorts Service 50% Off with Cash O...narwatsonia7
 
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Availablenarwatsonia7
 

Recently uploaded (20)

Sonagachi Call Girls Services 9907093804 @24x7 High Class Babes Here Call Now
Sonagachi Call Girls Services 9907093804 @24x7 High Class Babes Here Call NowSonagachi Call Girls Services 9907093804 @24x7 High Class Babes Here Call Now
Sonagachi Call Girls Services 9907093804 @24x7 High Class Babes Here Call Now
 
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...
 
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknow
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service LucknowVIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknow
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknow
 
Escort Service Call Girls In Sarita Vihar,, 99530°56974 Delhi NCR
Escort Service Call Girls In Sarita Vihar,, 99530°56974 Delhi NCREscort Service Call Girls In Sarita Vihar,, 99530°56974 Delhi NCR
Escort Service Call Girls In Sarita Vihar,, 99530°56974 Delhi NCR
 
Call Girls Service Chennai Jiya 7001305949 Independent Escort Service Chennai
Call Girls Service Chennai Jiya 7001305949 Independent Escort Service ChennaiCall Girls Service Chennai Jiya 7001305949 Independent Escort Service Chennai
Call Girls Service Chennai Jiya 7001305949 Independent Escort Service Chennai
 
Bangalore Call Girls Majestic 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Majestic 📞 9907093804 High Profile Service 100% SafeBangalore Call Girls Majestic 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Majestic 📞 9907093804 High Profile Service 100% Safe
 
Call Girls Frazer Town Just Call 7001305949 Top Class Call Girl Service Avail...
Call Girls Frazer Town Just Call 7001305949 Top Class Call Girl Service Avail...Call Girls Frazer Town Just Call 7001305949 Top Class Call Girl Service Avail...
Call Girls Frazer Town Just Call 7001305949 Top Class Call Girl Service Avail...
 
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...
 
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Service
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort ServiceCall Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Service
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Service
 
Call Girls Hsr Layout Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hsr Layout Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Hsr Layout Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hsr Layout Just Call 7001305949 Top Class Call Girl Service Available
 
Call Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknow
Call Girl Lucknow Mallika 7001305949 Independent Escort Service LucknowCall Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknow
Call Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknow
 
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.Artifacts in Nuclear Medicine with Identifying and resolving artifacts.
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.
 
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% SafeBangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safe
 
Call Girls ITPL Just Call 7001305949 Top Class Call Girl Service Available
Call Girls ITPL Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls ITPL Just Call 7001305949 Top Class Call Girl Service Available
Call Girls ITPL Just Call 7001305949 Top Class Call Girl Service Available
 
Call Girls Jp Nagar Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Jp Nagar Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Jp Nagar Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Jp Nagar Just Call 7001305949 Top Class Call Girl Service Available
 
Call Girls Service Nandiambakkam | 7001305949 At Low Cost Cash Payment Booking
Call Girls Service Nandiambakkam | 7001305949 At Low Cost Cash Payment BookingCall Girls Service Nandiambakkam | 7001305949 At Low Cost Cash Payment Booking
Call Girls Service Nandiambakkam | 7001305949 At Low Cost Cash Payment Booking
 
Call Girl Koramangala | 7001305949 At Low Cost Cash Payment Booking
Call Girl Koramangala | 7001305949 At Low Cost Cash Payment BookingCall Girl Koramangala | 7001305949 At Low Cost Cash Payment Booking
Call Girl Koramangala | 7001305949 At Low Cost Cash Payment Booking
 
Book Call Girls in Kasavanahalli - 7001305949 with real photos and phone numbers
Book Call Girls in Kasavanahalli - 7001305949 with real photos and phone numbersBook Call Girls in Kasavanahalli - 7001305949 with real photos and phone numbers
Book Call Girls in Kasavanahalli - 7001305949 with real photos and phone numbers
 
Russian Call Girl Brookfield - 7001305949 Escorts Service 50% Off with Cash O...
Russian Call Girl Brookfield - 7001305949 Escorts Service 50% Off with Cash O...Russian Call Girl Brookfield - 7001305949 Escorts Service 50% Off with Cash O...
Russian Call Girl Brookfield - 7001305949 Escorts Service 50% Off with Cash O...
 
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Available
 

When Cancer Changes our Relationship with Our Children

  • 1. When Cancer Changes our Relationship with Our Children Haley Pollack (she/her) Executive Director and Co-Founder, Bright Spot Network SHARE Cancer Support May 15, 2023
  • 2. Agenda ● About me ● About Bright Spot Network ● Impact of Cancer on a Family ● What Does Your Child Need? ● Ways your Child Might Respond ● Talking to you Kids ● Ways to Cope ● Ways to Connect
  • 4. Mission Bright Spot Network provides young cancer survivors who are parents of small children with a safe space for individual and familial healing, recovery, and reconnection.
  • 5. Our Support & Care Programs: Bright Reads Bright Box Bright Grants Support Groups Kids Connections Webinars & Wellness Workshops Family Resource Navigation Web Resources
  • 6. How do I tell them? What do I tell them? How do I protect them? How do I shield them from THIS?
  • 7. Impact of Cancer on the Family ● According to a 2011 study on parental cancer: ○ Estimated 2.85 million US children less than 18 years of age are living with a parent who has been diagnosed with cancer. ○ “...children’s health and functioning are closely tied with those of their parents, [and] the young offspring of these survivors are at increased risk for problems in emotional, social, cognitive, behavioural, and physical functioning domains.” (Weaver, et al., 2011)
  • 8. Impact of Cancer on a Family ● Cancer “turns up the volume of what is already there” (Stress Pileup) ○ Financial stress and access to resources Especially true for young families ○ Financial and workplace stress ○ Support circle (ie.e single parent families, no local family/friends/community, etc.) ○ Mental illness & substance use ○ Additional medical issues ○ Strained relationships ○ Poor family communication ○ Low self-esteem
  • 9. What is Working? ● Established sense of trust and belonging ● Strong family and peer bonds ● Emotional vocabulary and expression ● Family functionality pre-cancer ● Connection to outside support ● Resilient characteristics
  • 10. “The greatest gift you can give your children is not protection from change, loss, pain, or stress, but the confidence and tools to cope and grow with all that life has to offer them.” Wendy Schlessel Harpham, MD, “When a Parent Has Cancer: A Guide to Caring for Your Children” (2004) “Our job is to walk with our children through their difficult moments with connection and empathy, allowing them to feel, to be active participants in problem-solving, and to discover the depth of their own capacity. It’s out of our deep love for our children that we want to protect them, but their capacity will be greater if we allow that love to lead us to our own courage, so that we can feel strong enough to let them discover their own strength.” Daniel J. Siegel, MD & Tina Payne Byson, PhD, “The Yes Brain: How to Cultivate Courage, Curiosity, and Resilience in Your Child” (2018)
  • 11. What do your Children Need? ● Safe, reliable and compassionate caregivers ● Consistent routines and structure ● Open, honest and developmentally-appropriate communication
  • 12. What do your Children Need? ● Parents have a unique expertise on their children ○ Bring in professionals and expert information for support, but filter through your gut ● You may not have all of the answers to their questions, but your presence, attention, and willingness to talk is most important. ○ Role modeling your big feelings and coping tools are invaluable ● Honesty really is the best policy
  • 13. How Might Your Children Respond Infants & Toddlers ● More tantrums than usual ● Changes in sleeping ● Changes in eating ● Increased Separation Anxiety
  • 14. How Might Your Children Respond Preschool ● Regressive behavior (i.e. accidents even if toilet trained) ● Short and intense bursts of emotion ● Asking the same questions about cancer over and over again ● Separation anxiety ● Playing it Out: playing with themes of doctors, nurses, medicine, etc
  • 15. How Might Your Children Respond School Age ● Regression: Acting younger than they are (i.e. baby talk or wetting the bed) ● Worrying about the person living with cancer as well as others (i.e. fear that others will become sick) ● Asking questions related to physical changes (i.e. hair loss, scars, bandages, etc.) ● Showing anger if normal day-to-day routine is changed because of cancer (i.e. parent unable to drive to dance practice because they are too tired) ● Separation Anxiety ● Playing it Out: playing with themes of doctors, nurses, medicine, etc ● Distancing themselves from the sick parent because of fear or discomfort
  • 16. How Might Your Children Respond Middle School ● Showing anger if normal day-to-day routine is changed because of cancer (i.e. parent unable to drive to dance practice because they are too tired) ● Hiding feelings from family and friends ● Worrying that others will become sick ● Showing fear and sadness as anger, and often directing it at family members ● Feeling embarrassed by the sick parent because they are different
  • 17. How Might Your Children Respond Teenagers ● Struggling between remaining close to family while also trying to gain independence as a teenager ● Showing fear and sadness as anger, and often directing it at family members ● May not share feelings or talk openly with family or friends about the cancer experience ● Taking out frustrations or anger on family members
  • 18. Signs of Distress ● “Is my child functioning in her life?” ● Disturbances in the big four: ○ Development (especially for young children) ○ School ○ Sleep ○ Eating ● Persistent change in mood or patterns of behavior ○ Exploding/Withdrawing
  • 19. Professional Support Individual and Family Therapy ● Look for therapist who is trained in family systems, children and chronic illness
  • 20. Talking to Kids ● Cancer is not your fault. ○ No behavior, words, or thoughts made someone get cancer. ● Cancer is not contagious. ○ Try to avoid using the word “sick” in describing cancer, since it makes kids think of the cold, flu or COVID. ● No matter what happens, you will be loved and cared for. ○ This requires parents truly make a plan.
  • 21. Talking to Kids ● Any question is okay to ask. ○ Create a safe space to talk. ● You will be kept informed. ○ You may need time to process it yourself first, make a plan, and/or rehearse. ○ “Tell them enough, not everything” (Harpham, 2004) ● I will always be honest with you. ○ If you don’t know, say so.
  • 22. Talking to Kids ● Developmentally appropriate ● Avoid euphemisms ● Unique kids, special approaches ● Showing emotions ● Expect the unexpected ● Managing Your Message ● Wash. Rinse. Repeat.
  • 23. “Life is not fair. Life hurts. Life is good. These three seemingly incompatible expressions are really three parts of the whole of living. They are threads woven through the tapestry each one of us creates as the visible expression of our being a part of humanity. To accept these three is not to abandon hope or optimism, or to deny our real grief. To accept them is to rid ourselves of the unnecessary suffering that comes from struggling against these three truths and trying to make them something they are not.” (Coloroso, 2000).
  • 24. Ways to Help Kids Cope Schedules ● Gives kids the opportunity to know what to expect–decreases anxiety ● Empowerment mightyandbright.com
  • 25. Ways to Help Kids Cope Play, play, play: ● Have variety of toys, including items other than dolls that can represent people, play money (financial worries), houses or building structures, medical equipment “Play reflects an emotional reality, not an exact retelling of real events. Your child is likely playing out the story just the right way for her own needs.” (Rauch & Muriel, 2006).
  • 26. Ways to Help Kids Cope Artistic expression ○ Individually and as a family ○ Variety of modalities & mediums ○ (writing, collage, paint, clay, sculpture) ○ Prompts: ■ Family drawings ■ Play-doh monsters (fears/control) ■ Family flag/crest (safety/cohesion)
  • 27. Ways to Help Kids Cope Mindfulness ● Breathing ● Guided imagery ● Yoga ● Mindfulness Jars Information ● Children’s books about cancer, treatment, death & dying ● Kid-friendly glossaries
  • 28. Ways to Connect Parenting from the Couch ● Ask your kids to help ● Watch TV or listen to a podcast together ● Read together ● Play games ● Cuddle ● Check out the book “Horizontal Parenting” by Michelle Woo
  • 29. Ways to Connect Intentional Time ● 10 minutes a day (phone down) ● Physical connection ● Quality not quantity ● Do something together (i.e. go to the movies… do something where you don’t need to TALK)
  • 30. Ways to Connect… Around Cancer ● Reading kids books about cancer ● Medical Play ● Taking an older child to the clinic with you
  • 31. Feedback from Parents and Children “It changed my relationship with my mom. We don’t focus on little things we used to fight about. Like doing the dishes. If she would ask me, normally I would have started an argument. And now, I just do the dishes” (college student, child) “I think it brought my mom and me a lot closer. We’re buddies, great friends. Cancer makes you realize that you definitely don’t know what you have until it’s tone, or it’s almost gone.” (child) “Cancer fast-tracked the growing up process. An appreciation for days and time together was embraced. We no longer complained or focussed on things that didn’t really matter. We talked more openly and valued family time much more.” (parent) “My daughter is more sympathetic to those that are experiencing a similar situation. It’s definitely taught her empathy.” (parent) “We understand the importance now of being in the present and doing what we can when we can as a family.” (parent)
  • 32. THANK YOU! Haley Pollack Executive Director, Bright Spot Network haley@brightspotnetwork.org